Question:

"I know he is controversial".  Annie. Who me? Surely you jest? ) Navid, who has been controversial from the day he was born. <sigh

Response:

annie – thanks for posting this information. We need to exchange this type of stuff so that people can get to know each other before jumping to conclusions. In last nights exchanges a lot of assumptions were made along with many snide comments. Here is one of the first salvos from Navid: <Ken.W, ‘7 year’s intellect free’. Methink thou art a general offence KenW, and every man should beat the. Certainly there is no truth in him. And you seem to support this type: as for navid.. we all have posts we maybe would like to retract..all i know is 1) he has provided me at least with a ton of laughter with his literary remarks and style

When someone uses their so called literary remarks and style to berate someone who has been a member and solid contributor to this ng for a long time then I think you need to take a step back and take another look. You seemed to jump on the Navid bandwagon pretty easily. You may not like Ken or how he gets his message across but he at least is consistent and I believe sincere about his postings although perhaps overdone at times. You can disagree and question him all you want but there is no reason to sling insults at him. Now I do feel sorry about what happened to your friend and it does help me understand why you have this reaction. I lost both of my parents to cancer. My father had colon cancer and received all of the medical treatments but that did not save him. Also I had put him on a radical program of herbs that I read about – and that didn’t help either. I had agonized a great deal over this but I didn’t see any harm in attempting the herb treatment. Anyway I never tried to use that as a substitute. These things are very difficult and personally once you get cancer there may or may not be anything you can do about it. Maybe some treatments will prolong your life and that’s the best you can hope for. Some people beat it but the majority don’t. So whether you try some alternative or the standard treatments I don’t know if either one has an edge on the other. There are well documented cases where people have used alternatives to go into remission. One were this guy just watched old Marx brother’s movies. Laughed his way to health. This is a well known case. Another where a Boston physician who had agressive prostrate cancer and given only a short time to live did use the Macrobiotic diet and achieved total remission. Another well documented case. I don’t know if I would consul someone to use Macrobiotics in lieu of drugs and chemo. If you used it in combination however I think it could really help. In any case I had to set the record straight. Navid tried to paint me as a vitamin/pill pusher and that in and of itself is condescending and obtuse. I have posted many times to this ng and try to present my information objectively. I have had a lot of experience with alternative approaches and I feel I have a pretty good sense of what works and a little bit about how it works. Nutritional deficiencies are indicated in many disease processes. I have studied this and don’t make off the cuff comments. Another point I would like to make is that I rarely mention products and I do not sell anything. I will glady share my experiences and thoughts and don’t try to disguise myself as Navid suggested. <snipe Jeff is trying to play the innocent bystander, when in fact he promotes supplements just like KenW. A woolf in sheeps clothing if you will. He has simply come to the aid of his fellow vtamin pill pushers. I certainly do promote the use of supplements and there are many reasons why they have helped many people. In fact there are a lot of people that have posted here attesting to that fact. Navid has a very narrow mind and he catagorically dismisses this fact. I have never once said I was cured but always try to quantify my good results as based on a number of factors. Once again Navid likes to be inflammatory and will ignore things that people say that don’t fit in to his limited view on the subject. I really didn’t want to bring this up but Navid has a long and sordid history with this ng. I would have left this in the past but he has asked for it by this comment which he recently made. <snipe Jeff, you seem to be an expert in the art of looking for trouble, finding it whether it exists or not, diagnosing it incorrectly, and applying the wrong remedy. Once again he tries to lay the blame on others when he is clearly the one who has been doing the flame baiting all along. In the past Navid succeeded in alienating just about everyone by his baiting. Then he had the nerve to try to throw it back at people by saying that they were descriminating against him because he was black. This was almost laughable because no one had any idea what race he or most of the other people are. I am really sorry to have to waste time and energy on this subject. I believe that Navid has a social disorder. He seeks approval at times and that’s when he turns on the charm and wit. He is certainly intelligent but he is totaly self serving. He does not readily share any of his information with the group yet he will readily jump down other people’s throats if they mention something he doesn’t agree with. He doesn’t care about you one bit – he is only using you to prove his own theory. He may actually have something that works but so what, he picks who he wants to share it with. He does not share, I believe, because he does not want the same kind of scrutiny that he hands out. OK, enough ranting. Regards, Jeff

– Hide quoted text — Show quoted text – Like they say ignorance is bliss. Please show me one instance where I have contrived to misrepresent myself and I will humbly beg your forgiveness. I would also like to add that if you don’t know Navid from the past I will be most happy to produce many of his more famous, or should I say in-flamous postings from the past. Navid tore his way through this ng like Montesuma’s revenge. If you cannot back up your claims then please retract your misguided attempts to discredit me. You know very little about me at this point so you are going out to far on a limb to be throwing insults. Only shows that you are shallow. Thanks, Jeff jeff i didnt say you were misrepresenting yourself..i  have simply stated that i resent and dislike this board being used for sales.. all i know is if someone is using the people of this board as a captive audience to push products, that in my belief is totally unethical..there are too many newbies who have NOT had long conferences with their gi and nutrionists etc..who might inadvertantly because of the sales on here..not use their medications and think that supplements etc will save them.. i had a friend who had breast cancer..someone convinced her to use macrobiotics and supplements..too late..she changed her mind..she died at age 36..i talked with her 2 weeks before her death..SHE said she should have used the "known" methods of treatment and used the other just as extra….so every time i see a vitamin or supplement pusher on here, i think of my friend maryann..a lovely woman, art teacher and beautiful person, whose life was at least shortened if not lost due to the pursual of ‘alternative" treatments.. as for navid.. we all have posts we maybe would like to retract..all i know is 1) he has provided me at least with a ton of laughter with his literary remarks and style 2) he has given me advice..not saying it was a cure..just a suggestion..i have followed it and so far..its certainly not hurting and may be helping a great deal..and 3) he seems to feel about the vitamin and supplement pushers the way i do..i know he is controversial ..well i guess i am getting to be controversial too..but if i can stop one person from dying the way maryann did..then all the flaming aimed at me will be worth it.. annie

Response:

- Hide quoted text — Show quoted text – Like they say ignorance is bliss. Please show me one instance where I have contrived to misrepresent myself and I will humbly beg your forgiveness. I would also like to add that if you don’t know Navid from the past I will be most happy to produce many of his more famous, or should I say in-flamous postings from the past. Navid tore his way through this ng like Montesuma’s revenge. If you cannot back up your claims then please retract your misguided attempts to discredit me. You know very little about me at this point so you are going out to far on a limb to be throwing insults. Only shows that you are shallow. Thanks, Jeff jeff

i didnt say you were misrepresenting yourself..i  have simply stated that i resent and dislike this board being used for sales.. all i know is if someone is using the people of this board as a captive audience to push products, that in my belief is totally unethical..there are too many newbies who have NOT had long conferences with their gi and nutrionists etc..who might inadvertantly because of the sales on here..not use their medications and think that supplements etc will save them.. i had a friend who had breast cancer..someone convinced her to use macrobiotics and supplements..too late..she changed her mind..she died at age 36..i talked with her 2 weeks before her death..SHE said she should have used the "known" methods of treatment and used the other just as extra….so every time i see a vitamin or supplement pusher on here, i think of my friend maryann..a lovely woman, art teacher and beautiful person, whose life was at least shortened if not lost due to the pursual of ‘alternative" treatments.. as for navid.. we all have posts we maybe would like to retract..all i know is 1) he has provided me at least with a ton of laughter with his literary remarks and style 2) he has given me advice..not saying it was a cure..just a suggestion..i have followed it and so far..its certainly not hurting and may be helping a great deal..and 3) he seems to feel about the vitamin and supplement pushers the way i do..i know he is controversial ..well i guess i am getting to be controversial too..but if i can stop one person from dying the way maryann did..then all the flaming aimed at me will be worth it.. annie

Response:

Like they say ignorance is bliss. Please show me one instance where I have contrived to misrepresent myself and I will humbly beg your forgiveness. I would also like to add that if you don’t know Navid from the past I will be most happy to produce many of his more famous, or should I say in-flamous postings from the past. Navid tore his way through this ng like Montesuma’s revenge. If you cannot back up your claims then please retract your misguided attempts to discredit me. You know very little about me at this point so you are going out to far on a limb to be throwing insults. Only shows that you are shallow. Thanks, Jeff

– Hide quoted text — Show quoted text – "We all know Ken is a big proponent of the supplements" Jeff. And so are you Jeff.:o) Jeff is trying to play the innocent bystander, when in fact he promotes supplements just like KenW. A woolf in sheeps clothing if you will. He has simply come to the aid of his fellow vtamin pill pushers. Do tell Jeff, what have supplements done for you? Remission? Cured? Navid navid maybe the bell is tolling for jeff too..<g no thats NOT a threat..its just a piece from lit..how about this one..from navid’s favorite,,shakespeare.."full of sound and fury , signifying nothing" to describe the supplement people on here annie(thanks navid..i am returning to my literary roots)

Response:

Thanks Deb – good points, I am tired too. Jeff

– Hide quoted text — Show quoted text – If you want scientific and mathematical proof why are you relying on an N = 1 ?? The problem with the supplement industry is it’s lack of ’supervision’. There are very few laws that  govern the industry so nobody really has much of an idea what they are getting when they purchase a supplement. This is the truth. Plain and simple. The problem that I have with Kena nd USANA is that he BLINDLY believes whatever the company tells him. HE doesn’t question ANYTHING that they say and when he is questioned about it answers some random question that he generates! I have never said that supps are bad to take but: you should defintely talk about them with your  Dr. You have no idea about drug interactions or side effects of the supps. Ken has said in the past that USANA supps have NO SIDE EFFECTS!  Let’s be honest here, EVERYTHING you put in your mouth has side effects. I will stop here. Too tired, Debs Just for the record I am not a naive or gullible person. Actually I am somewhat of a scientist, and math and science where my best subjects. I have as much skepicism as anyone and I usually require some level of proof before I will believe something to be true. My most reliable form of proof is having had the actual experience myself. If I try something and it works for me then I feel confident in suggesting it to others as something worth consideration. As said a million times here nothing works for everyone though. So the point I am trying to make is that I feel I have a level of integrity to anything I post because I have either tried it or heard about it through what I consider to be a reputable source. This can always be debated I know. As we all know, however, the term anicdotal evidence is an import point to be made. No one knows if someone else is tellling the truth or not and there are plenty of snake oil salepeople out there. Unfortunately this makes the whole area of alternative methods very cloudy for many people. I totally understand this and I do not like the fact that people try to take advantage of others who are ill. Well, gotta go get some food. Chat with you later. Thanks, Jeff

Response:

"We all know Ken is a big proponent of the supplements" Jeff. And so are you Jeff.:o) Jeff is trying to play the innocent bystander, when in fact he promotes supplements just like KenW. A woolf in sheeps clothing if you will. He has simply come to the aid of his fellow vtamin pill pushers. Do tell Jeff, what have supplements done for you? Remission? Cured? Navid

navid maybe the bell is tolling for jeff too..<g no thats NOT a threat..its just a piece from lit..how about this one..from navid’s favorite,,shakespeare.."full of sound and fury , signifying nothing" to describe the supplement people on here annie(thanks navid..i am returning to my literary roots)

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<yawn

Response:

If you want scientific and mathematical proof why are you relying on an N = 1 ?? The problem with the supplement industry is it’s lack of ’supervision’. There are very few laws that  govern the industry so nobody really has much of an idea what they are getting when they purchase a supplement. This is the truth. Plain and simple. The problem that I have with Kena nd USANA is that he BLINDLY believes whatever the company tells him. HE doesn’t question ANYTHING that they say and when he is questioned about it answers some random question that he generates! I have never said that supps are bad to take but: you should defintely talk about them with your  Dr. You have no idea about drug interactions or side effects of the supps. Ken has said in the past that USANA supps have NO SIDE EFFECTS!  Let’s be honest here, EVERYTHING you put in your mouth has side effects. I will stop here. Too tired, Debs – Hide quoted text — Show quoted text – Just for the record I am not a naive or gullible person. Actually I am somewhat of a scientist, and math and science where my best subjects. I have as much skepicism as anyone and I usually require some level of proof before I will believe something to be true. My most reliable form of proof is having had the actual experience myself. If I try something and it works for me then I feel confident in suggesting it to others as something worth consideration. As said a million times here nothing works for everyone though. So the point I am trying to make is that I feel I have a level of integrity to anything I post because I have either tried it or heard about it through what I consider to be a reputable source. This can always be debated I know. As we all know, however, the term anicdotal evidence is an import point to be made. No one knows if someone else is tellling the truth or not and there are plenty of snake oil salepeople out there. Unfortunately this makes the whole area of alternative methods very cloudy for many people. I totally understand this and I do not like the fact that people try to take advantage of others who are ill. Well, gotta go get some food. Chat with you later. Thanks, Jeff

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OK, just a quick note before I go out for some Mexican food, which I would not be able to do had I not had some level of remission. When I take my supplements (will provide list to anyone interested) I not only feel better but my symptoms improve. I believe that supplements are just that – supplements – and should not be used to replace a proper diet (another complex subject0. I have posted this thought many times before so don’t assume I am just trying to cover my ass now. I have a long history of studying alternative approaches to health (over 20 years). I have studied martial arts, acupuncture, shiatsu, food and nutrition, and some herbology. Way before I ever had any incling of what Ulcerative Colitis is I had seen many people be helped with a wide variety of problems by incorporating various holistic practices. Just for the record I am not a naive or gullible person. Actually I am somewhat of a scientist, and math and science where my best subjects. I have as much skepicism as anyone and I usually require some level of proof before I will believe something to be true. My most reliable form of proof is having had the actual experience myself. If I try something and it works for me then I feel confident in suggesting it to others as something worth consideration. As said a million times here nothing works for everyone though. So the point I am trying to make is that I feel I have a level of integrity to anything I post because I have either tried it or heard about it through what I consider to be a reputable source. This can always be debated I know. As we all know, however, the term anicdotal evidence is an import point to be made. No one knows if someone else is tellling the truth or not and there are plenty of snake oil salepeople out there. Unfortunately this makes the whole area of alternative methods very cloudy for many people. I totally understand this and I do not like the fact that people try to take advantage of others who are ill. Getting off track again. I think I just wanted to post something on my internal philosophies. I think this is important. Well, gotta go get some food. Chat with you later. Thanks, Jeff

Response:

First, I make no secret of that fact that I take supplements so you are completely off base by calling me names which seems to be your "mo". I can see that your tactic is to bait people into an argument which I believe has to do with some irrational need to prove yourself better than they are – just MHO. Why would you call me a wolf when I make no secret of any of my experiences with my disease and what I take. To be quite frank I have been way more honest then you have in my communications with this group. As I recall form the past, you had posted extravagant claims about having conquered your disease,  however you were very careful not to divulge ANY of what you did. In fact,  you wanted to somehow market your so called "cure" so as to make money off of it. Actually I don’t even have a problem with this as long as you were straightforward about your approach, but you were very evasive about everything you did. I’m sure there are people that can cooberate this but if not I can dig up the emails. You were so controversial back then that you succeeded in alienating most of the news group. I am truly sorry to have to bring all this back up as you seemed to have turned over a new leaf. But now you are back to your same old way of trying to insult people, like me, who are just sharing their experience. You can try all you want but the more you try to insult me the worse you will look. I am a peaceful man but I will defend myself when attacked and you have attacked me. So if anyone is the wolf in sheep’s clothing it seems that you are the one who had been holding back something. Why don’t you tell us what you have done that has helped. That is what this ng is about. I have posted my experiences many times. If I missed yours then I apologize but so far I haven’t seen much of your personal experience or what you did that you claimed created remission. Anyway, my experience certainly qualifies me to be a member of this group and you can’t take that away. I first became a member because I was suffering from what was not yet diagnosed as UC. I had the usual gobs of mucus and bloody stools and constant pain in the abdomen. My first relief came when I was prescribed some antibiotics for a sinus infection that I had. This also reduced the mucus and blood and I was surprised about this. But it did plant a seed of knowledge which told me that my problems had something to do with bacteria. Later on when I found this ng and researched other sources I found a lot of information about this subject. Eventually I did get a proper dx on my disease and found a doctor that practices integrated medicine. Basically someone well versed in both modern medical practices as well as alternative practices. He not only prescribed asacol and Cipro but also recommended a number of supplements. This was before I ever knew of who Ken was. So I really get a laugh out of it when you say "I promote supplements just like Ken", as if that was a bad thing. LOL. Yes, I do promote supplements, maybe not "just" like Ken, but similar. Anyway and I take that as a compliment. Thanks! Also, just so you know, I am personally biased towards being open to alternative approaches. I have studied many eastern practices including martial arts and this has opened me to a different way of thinking. The modern medical approach would have you believe that nothing is true unless you can prove it in a laboratory. There are many problems with this. One is that the whole industry has been hijacked by the pharm companies who have enormous profits at stake. But  will save this discussion for another time so as not to get to far off the current topic. In any case it seemed to make sense to me that what you put in your mouth will have a profound effect on what comes out your ass. Since I already knew from experience (and I believe that experience is a damn good teacher) that antibiotics had a positive result it also seemed to make sense that restoring good bacteria by taking probiotics should also have positive results. Also my doctor said that some medications can deplete calcium and other nutrients that it would be a good idea to take additional supplements. Oiy – sorry – I will have to continue this later, I’ve been not feeling well due to a cold and need to get something to eat. My apologies, I’ll try to continue this as soon as  possible. Regards, Jeff

– Hide quoted text — Show quoted text – "We all know Ken is a big proponent of the supplements" Jeff. And so are you Jeff.:o) Jeff is trying to play the innocent bystander, when in fact he promotes supplements just like KenW. A woolf in sheeps clothing if you will. He has simply come to the aid of his fellow vtamin pill pushers. Do tell Jeff, what have supplements done for you? Remission? Cured? Navid

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On the other side of the coin, the enema guy seemed to have been caught in a bit of a lie himself with the supposed doctor reference on this forum… by the aforementioned person.

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"Well, I would certainly love for ya to try it"  Ken.W  7 Years intellect Free. You would answer very well to a whipping.

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"Well, I would certainly love for ya to try it"  Ken.W  7 Years intellect Free. You would answer very well to a whipping.

ken the bell is tolling? "dont ask for whom the bell tolls..it tolls for thee" (john donne..my favorite) annie

Response:

This whole level of response is totally uncalled for. We all know Ken is a big proponent of the supplements that he takes. I believe his intentions are good but I can see how people view it as either overkill or possibly a marketing ploy. I sincerely do not believe that he is getting rich over this so why would he keep posting if he wasn’t at least telling his own personal success story in the hopes that it would help someone. Yet you people counter his communications with derisive commentary that REALLY has nothing to do with IBD. Even worse you stoop to the lowest level of communication by throwing out personal threats. As Ken posted – OT – but you are so biased against him that you completely ignore that and go to great extremes to be mean. I have never once seen Ken initiate a mean comment – but I have seen him offer a lot of information with good intent. You know, if you don’t like what Ken posts then say so but please let’s keep this ng on course by allowing anyone to post as long as they don’t descend into flame wars and derisive commentary. Nothing good will come out of that. Again, just my two cents – thanks, jeff

– Hide quoted text — Show quoted text – "Well, I would certainly love for ya to try it"  Ken.W  7 Years intellect Free. You would answer very well to a whipping.

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" the bell is tolling? "dont ask for whom the bell tolls..it tolls for thee" (john donne..my favorite)" annie LOL!

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"We all know Ken is a big proponent of the supplements" Jeff. And so are you Jeff.:o) Jeff is trying to play the innocent bystander, when in fact he promotes supplements just like KenW. A woolf in sheeps clothing if you will. He has simply come to the aid of his fellow vtamin pill pushers. Do tell Jeff, what have supplements done for you? Remission? Cured? Navid

Response:

Ken.W, ‘7 year’s intellect free’. Methink thou art a general offence KenW, and every man should beat the. Certainly there is no truth in him.

Well Navid I would certainly love for ya to try it  :) I hear tell your Buddy the Quackbuster is in big caca for his not telling of the truth. See the truth always comes out sooner or later.  :) Ken.W  7 Years Med Free The bell is tolling for the National Council Against Health Fraud (NCAHF), it’s president Robert S. Baratz, it’s vice-president de-licensed MD Stephen Barrett (quackwatch.com), and the rest of the board members. Maybe even the membership. They are in the final days in a California Appeals Court, and it doesn’t look good for them. Last year the NCAHF organization name was used, without permission of the NCAHF board, by Baratz and Barrett, to sue approximately 43 defendants, all "Alternative Medicine" practitioners, or companies. Baratz and Barrett, who were trying to generate "expert witness" fees for themselves, were claiming that "since Alternative Medicine had never been scientifically proven – it was health fraud." They were laughed out of court, and out of California – with one exception – one California Superior Court Judge ordered a case dismissal based on California’s anti-SLAPP law. – Hide quoted text — Show quoted text –

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Ken.W, ‘7 year’s intellect free’. Methink thou art a general offence KenW, and every man should beat the. Certainly there is no truth in him.

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Ken.W, ‘7 year’s intellect free’. Methink thou art a general offence KenW, and every man should beat the. Certainly there is no truth in him.

navid.. isnt ken’s post..arent they all..kind of like polonius’ speeches in hamlet? u know.."thus to thine own self be true" etc etc..all very noble and enlightening but spoken by one of shakespeare’s biggest buffoons (and do u mean every man should beat THEE..or "the crap outta thee" and make that every woman…symbolically and allegorically speaking of course..this is a nonviolent board..at least non violent physically..some of the "ads" on here do great violence to my sense of reason..<g annie

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– Hide quoted text — Show quoted text – This is an advertising award….effective advertising doesn’t necessarily mean a quality product….I mean I see Adelphia won an award also..and they are now in bankruptcy because their top guys looted the company..but oh, they had such good PR material, they won an award…oh yeah,and Boeing, which is laying off workers left and right, but still, good PR …. The USANA Difference Video was recently awarded the Crystal Award of Excellence for the Communicator Awards. The Communicator Awards in an international awards competition that recognizes outstanding work in the communications field.  Entries are judged by industry professionals who look for companies and individuals whose talent exceeds a high standard of excellence and whose work serves as a benchmark for the industry. There were approximately 4,000 entries from 48 states, the District of Columbia and nine other countries. The USANA Difference Video received the Award of Excellence by scoring in the top 10 percent of all entries.  The award is presented to those entrants whose ability to communicate places them among the best in the field. Other winners of the Award of Excellence this year include; AT&T, Warner Brothers, Mercedes-Benz USA, NASA., Sony International, ABC News Productions, Lockheed Martin, Johns Hopkins University, Giorgio Armani, Boeing, and New York University to name a few. carole you are so right..and ken..so what? what on earth does this have to do with crohns and uc?

It doesn’t have anything to do with IBD… Thats why I said OT which stands for Off Topic……     Andyes it doesn’t have anything to do with being a reputable company…..I think USANA’s History can speak for itself in that Department….. and it’s still rated #1.  All it was was an award they won for there Video explaining what puts USANA ahead of the rest. Ken.W  7 Years Med Free

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This is an advertising award….effective advertising doesn’t necessarily mean a quality product….I mean I see Adelphia won an award also..and they are now in bankruptcy because their top guys looted the company..but oh, they had such good PR material, they won an award…oh yeah,and Boeing, which is laying off workers left and right, but still, good PR …. – Hide quoted text — Show quoted text – The USANA Difference Video was recently awarded the Crystal Award of Excellence for the Communicator Awards. The Communicator Awards in an international awards competition that recognizes outstanding work in the communications field.  Entries are judged by industry professionals who look for companies and individuals whose talent exceeds a high standard of excellence and whose work serves as a benchmark for the industry. There were approximately 4,000 entries from 48 states, the District of Columbia and nine other countries. The USANA Difference Video received the Award of Excellence by scoring in the top 10 percent of all entries.  The award is presented to those entrants whose ability to communicate places them among the best in the field. Other winners of the Award of Excellence this year include; AT&T, Warner Brothers, Mercedes-Benz USA, NASA., Sony International, ABC News Productions, Lockheed Martin, Johns Hopkins University, Giorgio Armani, Boeing, and New York University to name a few.

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- Hide quoted text — Show quoted text – This is an advertising award….effective advertising doesn’t necessarily mean a quality product….I mean I see Adelphia won an award also..and they are now in bankruptcy because their top guys looted the company..but oh, they had such good PR material, they won an award…oh yeah,and Boeing, which is laying off workers left and right, but still, good PR …. The USANA Difference Video was recently awarded the Crystal Award of Excellence for the Communicator Awards. The Communicator Awards in an international awards competition that recognizes outstanding work in the communications field.  Entries are judged by industry professionals who look for companies and individuals whose talent exceeds a high standard of excellence and whose work serves as a benchmark for the industry. There were approximately 4,000 entries from 48 states, the District of Columbia and nine other countries. The USANA Difference Video received the Award of Excellence by scoring in the top 10 percent of all entries.  The award is presented to those entrants whose ability to communicate places them among the best in the field. Other winners of the Award of Excellence this year include; AT&T, Warner Brothers, Mercedes-Benz USA, NASA., Sony International, ABC News Productions, Lockheed Martin, Johns Hopkins University, Giorgio Armani, Boeing, and New York University to name a few.

carole you are so right..and ken..so what? what on earth does this have to do with crohns and uc?

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The USANA Difference Video was recently awarded the Crystal Award of Excellence for the Communicator Awards. The Communicator Awards in an international awards competition that recognizes outstanding work in the communications field.  Entries are judged by industry professionals who look for companies and individuals whose talent exceeds a high standard of excellence and whose work serves as a benchmark for the industry. There were approximately 4,000 entries from 48 states, the District of Columbia and nine other countries. The USANA Difference Video received the Award of Excellence by scoring in the top 10 percent of all entries.  The award is presented to those entrants whose ability to communicate places them among the best in the field. Other winners of the Award of Excellence this year include; AT&T, Warner Brothers, Mercedes-Benz USA, NASA, Sony International, ABC News Productions, Lockheed Martin, Johns Hopkins University, Giorgio Armani, Boeing, and New York University to name a few.

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Debs – Hide quoted text — Show quoted text – The USANA Difference Video was recently awarded the Crystal Award of Excellence for the Communicator Awards. The Communicator Awards in an international awards competition that recognizes outstanding work in the communications field.  Entries are judged by industry professionals who look for companies and individuals whose talent exceeds a high standard of excellence and whose work serves as a benchmark for the industry. There were approximately 4,000 entries from 48 states, the District of Columbia and nine other countries. The USANA Difference Video received the Award of Excellence by scoring in the top 10 percent of all entries.  The award is presented to those entrants whose ability to communicate places them among the best in the field. Other winners of the Award of Excellence this year include; AT&T, Warner Brothers, Mercedes-Benz USA, NASA, Sony International, ABC News Productions, Lockheed Martin, Johns Hopkins University, Giorgio Armani, Boeing, and New York University to name a few.

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Question:

AMEN!!  Back when they thought I had UC, I got so sick of hearing people say, "I had colitis when I was younger…"  Yeah, right.  And it just went away forever? Staci – Hide quoted text — Show quoted text – You are right, Sue. It is one of the problems with uninformed "friends" who, when you tell them you have UC, all they hear is *colitis*, and think you have something that will clear up in a couple of months (by doing whatever they did the last time they had diarrhea. Sure wish the name UC could be UCD (disease). Rebecca Susan, Did your dr say you had ulcerative colitis, or just that you have colitis.  If the latter, colitis simply means inflammation in the colon, and you could have Crohn’s Colitis, which is Crohn’s Disease in the colon.

Response:

You are right, Sue. It is one of the problems with uninformed "friends" who, when you tell them you have UC, all they hear is *colitis*, and think you have something that will clear up in a couple of months (by doing whatever they did the last time they had diarrhea. Sure wish the name UC could be UCD (disease). Rebecca – Hide quoted text — Show quoted text – Susan, Did your dr say you had ulcerative colitis, or just that you have colitis.  If the latter, colitis simply means inflammation in the colon, and you could have Crohn’s Colitis, which is Crohn’s Disease in the colon. writes: I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis.  I am having a bad flare and more tests to come. More meds too oh boy just what I needed.  So that solves one of my dilemas. I am still taking my water pill but I am again holding about 10 pounds or more of water.  He wants me to go back to the idiot but I said no so tomorrows appointment I will get him to give me a different name. That;s it for now going to watch a movie.  UM MOM Susan

Response:

Pseudomembranous colitis is diagnosed by stool analysis…… Donna

– Hide quoted text — Show quoted text – He gave the colitis a mane before the word colitis but I don’t remember what it was, but yes he said it was due to antibiotics but he also said he won’t know possitvely until I get the bloodwork. He wants to check one specific thing for sure plus the total test I had in September.  He thinks there maybe other things going on and we are starting with meds to get rid of the inflamation and the muddy stools I have been having.  He also going to check the urine and he is talking of a possible test at the hospital that would require no prep, or cleaning out because right now my system can’t take another cleansing.  He is also have me collect stools to be tested for bleeding and some other things that I didn’t really understand.  UM MOM Susan

– Hide quoted text — Show quoted text – But he said you had colitis caused by a medicine?  That’s not the same as having ulcerative colitis. writes: No he said I have crohn’s  and colitis.  Yes he did and he said that you can have both.  UM MOM Susan I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis. Did your doctor say you have Crohn’s disease and ULCERATIVE colitis? That’s what the question is. Sounds like you simply have Crohn’s in both the small intestine and the colon. That’s the most common pattern of Crohn’s (45 percent of all CD cases have it).

Response:

He didn’t use either.  He used another word in front of colitis which I can;t remember what it was.  But he was pretty sure it was antibiotics causing the problem.  But like I have said above we have to finish the test to seel UM MOM Susan

Pseudomembranous colitis?  This is the type that is assoicated with antibiotic use and fortunately it is curable. – Hide quoted text — Show quoted text –

Response:

He didn’t use either.  He used another word in front of colitis which I can;t remember what it was.  But he was pretty sure it was antibiotics causing the problem.  But like I have said above we have to finish the test to seel UM MOM Susan – Hide quoted text — Show quoted text – Susan, Did your dr say you had ulcerative colitis, or just that you have colitis.  If the latter, colitis simply means inflammation in the colon, and you could have Crohn’s Colitis, which is Crohn’s Disease in the colon. writes: I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis.  I am having a bad flare and more tests to come. More meds too oh boy just what I needed.  So that solves one of my dilemas. I am still taking my water pill but I am again holding about 10 pounds or more of water.  He wants me to go back to the idiot but I said no so tomorrows appointment I will get him to give me a different name. That;s it for now going to watch a movie.  UM MOM Susan

Response:

well, it sounds like your doctor is doing the right things to pursue the best course of action for you! good luck!  : ) Reesie

– Hide quoted text — Show quoted text – He gave the colitis a mane before the word colitis but I don’t remember what it was, but yes he said it was due to antibiotics but he also said he won’t know possitvely until I get the bloodwork. He wants to check one specific thing for sure plus the total test I had in September.  He thinks there maybe other things going on and we are starting with meds to get rid of the inflamation and the muddy stools I have been having.  He also going to check the urine and he is talking of a possible test at the hospital that would require no prep, or cleaning out because right now my system can’t take another cleansing.  He is also have me collect stools to be tested for bleeding and some other things that I didn’t really understand.  UM MOM Susan

Response:

Thanks Ceresse, he is one of the best doctors I have , him and my pulmonary one.  They both care about their patients and never just run away.  They listen.   I’ll try to email you tomight.  The kids are going out and wwf wrestling in on at 9.  UM MOM Susan

– Hide quoted text — Show quoted text – well, it sounds like your doctor is doing the right things to pursue the best course of action for you! good luck!  : ) Reesie He gave the colitis a mane before the word colitis but I don’t remember what it was, but yes he said it was due to antibiotics but he also said he won’t know possitvely until I get the bloodwork. He wants to check one specific thing for sure plus the total test I had in September.  He thinks there maybe other things going on and we are starting with meds to get rid of the inflamation and the muddy stools I have been having.  He also going to check the urine and he is talking of a possible test at the hospital that would require no prep, or cleaning out because right now my system can’t take another cleansing.  He is also have me collect stools to be tested for bleeding and some other things that I didn’t really understand.  UM MOM Susan

Response:

He gave the colitis a mane before the word colitis but I don’t remember what it was, but yes he said it was due to antibiotics but he also said he won’t know possitvely until I get the bloodwork. He wants to check one specific thing for sure plus the total test I had in September.  He thinks there maybe other things going on and we are starting with meds to get rid of the inflamation and the muddy stools I have been having.  He also going to check the urine and he is talking of a possible test at the hospital that would require no prep, or cleaning out because right now my system can’t take another cleansing.  He is also have me collect stools to be tested for bleeding and some other things that I didn’t really understand.  UM MOM Susan – Hide quoted text — Show quoted text – But he said you had colitis caused by a medicine?  That’s not the same as having ulcerative colitis. writes: No he said I have crohn’s  and colitis.  Yes he did and he said that you can have both.  UM MOM Susan I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis. Did your doctor say you have Crohn’s disease and ULCERATIVE colitis? That’s what the question is. Sounds like you simply have Crohn’s in both the small intestine and the colon. That’s the most common pattern of Crohn’s (45 percent of all CD cases have it).

Response:

Thanks Sue, you said it better than I could.  I don’t know what ulcerated colitis’s difference is.  After my tests we will know better.  UM MOM Susan – Hide quoted text — Show quoted text – Now I understand, you have colitis, which as I said is inflammation of the colon, from an antibiotic.  So you have antibiotic-induced colitis and Crohn’s Disease, not ulcerative colitis and Crohn’s Disease, which is what this discussion has been about. Hope I cleared this up for you! writes: This is a multi-part message in MIME format. Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable Yes.  My doctor told me that a lot of the antibiotics will cause a flare = and colitis.  Augmentin, amoxil, Leviquin just to name a few he  = mentioned.  UM MOM Susan  and now Leviquin which causes colitis.=20  leviquiin can cause colitis?????  I was on an iv drip for 6 days in = the hospital and was not making any progress at the time in fact I was = worse!!!…. could this have been my trouble the entire stay at the = hospital???  Tina   I have to make this quick got to get this room ready for my son.   I = have an   hour before he and Liz get here.  He gave quistrian (sp) powder, and   flexeral I think that’s the name.  I haven’t picked them up yet.  I = got   diagnosed with it because of the symptoms and exam and because I = took the   Augmentin  and now Leviquin which causes colitis.  I have other = tests to do   but didn’t feel like it today. Cross your fingers that at least this = will   heal quickly.  I also have the flare with the colitis.  And even = with the   water pill which I take everyday, no exceptions I loolk four months = pregnant   and my ankle and legs are really swollen. What a  day.  I hate this! = UM MOM   Susan, ps remember not to send anything to me with music so I can = get in   here easier.  Thanks   {{{{{{Susan}}}}} how did he dx the colitis without a colonoscopy? = just   curious, as if you didn’t have enough problems, eh?  : ) Reesie   I just wanted to let you all know that yes you can have both = because I   just   got diagnosed with colitis.  I am having a bad flare and more = tests to   come.   More meds too oh boy just what I needed.  So that solves one of = my   dilemas.   I am still taking my water pill but I am again holding about 10 = pounds   or   more of water.  He wants me to go back to the idiot but I said = no so   tomorrows appointment I will get him to give me a different = name. That;s   it   for now going to watch a movie.  UM MOM Susan  =20  =20 Content-Type: text/html; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable <!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN" <HTML<HEAD <META http-equiv=3DContent-Type content=3D"text/html; = charset=3Diso-8859-1" <META content=3D"MSHTML 6.00.2713.1100" name=3DGENERATOR <STYLE</STYLE </HEAD <BODY bgColor=3D#ffffff <DIV<FONT face=3DArial size=3D2Yes.&nbsp; My doctor told me that a lot = of the=20 antibiotics will cause a flare and colitis.&nbsp; Augmentin, amoxil, = Leviquin=20 just to name a few he&nbsp; mentioned.&nbsp; UM MOM Susan</FONT</DIV <BLOCKQUOTE=20 style=3D"PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; = BORDER-LEFT: #000000 2px solid; MARGIN-RIGHT: 0px"  <DIV"Tina" &lt;<A=20  = om</A&gt;=20  = ews.abs.net</A…</DIV  <DIV<FONT face=3DArial<EMand now Leviquin which causes = colitis.</EM=20  </FONT</DIV  <DIV<FONT face=3DArial</FONT&nbsp;</DIV  <DIV<FONT face=3DArialleviquiin can cause colitis?????&nbsp; I was = on an iv=20  drip for 6 days in the hospital and was not making any progress at the = time in=20  fact I was worse!!!…. could this have been my trouble the entire = stay at the=20  hospital???</FONT</DIV  <DIV<FONT face=3DArial</FONT&nbsp;</DIV  <DIV<FONT face=3DArialTina</FONT</DIV  <DIV<FONT face=3DArial</FONT&nbsp;</DIV  <DIV&nbsp;</DIV  <DIV<FONT face=3DArial"sdores" &lt;</FONT<A=20 in message=20  </FONT<A

href=3D"

Response:

Now I understand, you have colitis, which as I said is inflammation of the colon, from an antibiotic.  So you have antibiotic-induced colitis and Crohn’s Disease, not ulcerative colitis and Crohn’s Disease, which is what this discussion has been about. Hope I cleared this up for you! – Hide quoted text — Show quoted text -This is a multi-part message in MIME format. Content-Type: text/plain;    charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable Yes.  My doctor told me that a lot of the antibiotics will cause a flare = and colitis.  Augmentin, amoxil, Leviquin just to name a few he  = mentioned.  UM MOM Susan  and now Leviquin which causes colitis.=20  leviquiin can cause colitis?????  I was on an iv drip for 6 days in = the hospital and was not making any progress at the time in fact I was = worse!!!…. could this have been my trouble the entire stay at the = hospital???  Tina   I have to make this quick got to get this room ready for my son.   I = have an   hour before he and Liz get here.  He gave quistrian (sp) powder, and   flexeral I think that’s the name.  I haven’t picked them up yet.  I = got   diagnosed with it because of the symptoms and exam and because I = took the   Augmentin  and now Leviquin which causes colitis.  I have other = tests to do   but didn’t feel like it today. Cross your fingers that at least this = will   heal quickly.  I also have the flare with the colitis.  And even = with the   water pill which I take everyday, no exceptions I loolk four months = pregnant   and my ankle and legs are really swollen. What a  day.  I hate this! = UM MOM   Susan, ps remember not to send anything to me with music so I can = get in   here easier.  Thanks   {{{{{{Susan}}}}} how did he dx the colitis without a colonoscopy?  = just   curious, as if you didn’t have enough problems, eh?  : ) Reesie   I just wanted to let you all know that yes you can have both = because I   just   got diagnosed with colitis.  I am having a bad flare and more = tests to   come.   More meds too oh boy just what I needed.  So that solves one of = my   dilemas.   I am still taking my water pill but I am again holding about 10 = pounds   or   more of water.  He wants me to go back to the idiot but I said = no so   tomorrows appointment I will get him to give me a different = name. That;s   it   for now going to watch a movie.  UM MOM Susan  =20  =20 Content-Type: text/html;    charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable <!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN" <HTML<HEAD <META http-equiv=3DContent-Type content=3D"text/html; = charset=3Diso-8859-1" <META content=3D"MSHTML 6.00.2713.1100" name=3DGENERATOR <STYLE</STYLE </HEAD <BODY bgColor=3D#ffffff <DIV<FONT face=3DArial size=3D2Yes.&nbsp; My doctor told me that a lot = of the=20 antibiotics will cause a flare and colitis.&nbsp; Augmentin, amoxil, = Leviquin=20 just to name a few he&nbsp; mentioned.&nbsp; UM MOM Susan</FONT</DIV <BLOCKQUOTE=20 style=3D"PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; = BORDER-LEFT: #000000 2px solid; MARGIN-RIGHT: 0px"  <DIV"Tina" &lt;<A=20  = om</A&gt;=20  = ews.abs.net</A…</DIV  <DIV<FONT face=3DArial<EMand now Leviquin which causes = colitis.</EM=20  </FONT</DIV  <DIV<FONT face=3DArial</FONT&nbsp;</DIV  <DIV<FONT face=3DArialleviquiin can cause colitis?????&nbsp; I was = on an iv=20  drip for 6 days in the hospital and was not making any progress at the = time in=20  fact I was worse!!!…. could this have been my trouble the entire = stay at the=20  hospital???</FONT</DIV  <DIV<FONT face=3DArial</FONT&nbsp;</DIV  <DIV<FONT face=3DArialTina</FONT</DIV  <DIV<FONT face=3DArial</FONT&nbsp;</DIV  <DIV&nbsp;</DIV  <DIV<FONT face=3DArial"sdores" &lt;</FONT<A=20 in message=20  </FONT<A href=3D"

Response:

But he said you had colitis caused by a medicine?  That’s not the same as having ulcerative colitis. – Hide quoted text — Show quoted text -No he said I have crohn’s  and colitis.  Yes he did and he said that you can have both.  UM MOM Susan I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis. Did your doctor say you have Crohn’s disease and ULCERATIVE colitis? That’s what the question is. Sounds like you simply have Crohn’s in both the small intestine and the colon. That’s the most common pattern of Crohn’s (45 percent of all CD cases have it).

Response:

Susan, Did your dr say you had ulcerative colitis, or just that you have colitis.  If the latter, colitis simply means inflammation in the colon, and you could have Crohn’s Colitis, which is Crohn’s Disease in the colon. – Hide quoted text — Show quoted text -I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis.  I am having a bad flare and more tests to come. More meds too oh boy just what I needed.  So that solves one of my dilemas. I am still taking my water pill but I am again holding about 10 pounds or more of water.  He wants me to go back to the idiot but I said no so tomorrows appointment I will get him to give me a different name. That;s it for now going to watch a movie.  UM MOM Susan

Response:

No he said I have crohn’s  and colitis.  Yes he did and he said that you can have both.  UM MOM Susan

Listen to Donna. She’s right. You have antibiotic-associated colitis. It’s temporary. It is not ulcerative colitis. One more time: You have Crohn’s disease and a temporary case of antibiotic-associated colitis. You do NOT have Crohn’s disease and ULCERATIVE colitis.

Response:

lol at Donna’s "bought the t-shirt"…… <g Reesie : )

Antibiotics can cause pseudomembranous colitis……not to be mistaken for Crohn’s Colitis or Ulcerative Colitis…….completely different thing…….temporary condition……been there, done that, bought the Donna   Yes.  My doctor told me that a lot of the antibiotics will cause a flare and colitis.  Augmentin, amoxil, Leviquin just to name a few he  mentioned. UM MOM Susan

Response:

No problem, Susan.  So, your doc thinks it’s colitis from the antibiotic or leviquin? that makes sense, at least they can treat it!!  I’m glad you have some answers, doesn’t that help you feel better?  a little?  I know just the prospect of a new treatment, the potential to try something new to feel better, has my spirits very high!  : ) Reesie

– Hide quoted text — Show quoted text – I have to make this quick got to get this room ready for my son.   I have an hour before he and Liz get here.  He gave quistrian (sp) powder, and flexeral I think that’s the name.  I haven’t picked them up yet.  I got diagnosed with it because of the symptoms and exam and because I took the Augmentin  and now Leviquin which causes colitis.  I have other tests to do but didn’t feel like it today. Cross your fingers that at least this will heal quickly.  I also have the flare with the colitis.  And even with the water pill which I take everyday, no exceptions I loolk four months pregnant and my ankle and legs are really swollen. What a  day.  I hate this!  UM MOM Susan, ps remember not to send anything to me with music so I can get in here easier.  Thanks {{{{{{Susan}}}}} how did he dx the colitis without a colonoscopy?  just curious, as if you didn’t have enough problems, eh?  : ) Reesie I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis.  I am having a bad flare and more tests to come. More meds too oh boy just what I needed.  So that solves one of my dilemas. I am still taking my water pill but I am again holding about 10 pounds or more of water.  He wants me to go back to the idiot but I said no so tomorrows appointment I will get him to give me a different name. That;s it for now going to watch a movie.  UM MOM Susan

Response:

Susan, you can have Crohn’s anywhere from your mouth to your Donna

– Hide quoted text — Show quoted text – No he said I have crohn’s  and colitis.  Yes he did and he said that you can have both.  UM MOM Susan I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis. Did your doctor say you have Crohn’s disease and ULCERATIVE colitis? That’s what the question is. Sounds like you simply have Crohn’s in both the small intestine and the colon. That’s the most common pattern of Crohn’s (45 percent of all CD cases have it).

Response:

Donna   Yes.  My doctor told me that a lot of the antibiotics will cause a flare and colitis.  Augmentin, amoxil, Leviquin just to name a few he  mentioned.  UM MOM Susan     and now Leviquin which causes colitis.     leviquiin can cause colitis?????  I was on an iv drip for 6 days in the hospital and was not making any progress at the time in fact I was worse!!!…. could this have been my trouble the entire stay at the hospital???     Tina     I have to make this quick got to get this room ready for my son.   I have an     hour before he and Liz get here.  He gave quistrian (sp) powder, and     flexeral I think that’s the name.  I haven’t picked them up yet.  I got     diagnosed with it because of the symptoms and exam and because I took the     Augmentin  and now Leviquin which causes colitis.  I have other tests to do     but didn’t feel like it today. Cross your fingers that at least this will     heal quickly.  I also have the flare with the colitis.  And even with the     water pill which I take everyday, no exceptions I loolk four months pregnant     and my ankle and legs are really swollen. What a  day.  I hate this!  UM MOM     Susan, ps remember not to send anything to me with music so I can get in     here easier.  Thanks     {{{{{{Susan}}}}} how did he dx the colitis without a colonoscopy?  just     curious, as if you didn’t have enough problems, eh?  : ) Reesie     I just wanted to let you all know that yes you can have both because I     just     got diagnosed with colitis.  I am having a bad flare and more tests to     come.     More meds too oh boy just what I needed.  So that solves one of my     dilemas.     I am still taking my water pill but I am again holding about 10 pounds     or     more of water.  He wants me to go back to the idiot but I said no so     tomorrows appointment I will get him to give me a different name. That;s     it     for now going to watch a movie.  UM MOM Susan                            

Response:

and now Leviquin which causes colitis. leviquiin can cause colitis?????  I was on an iv drip for 6 days in the hospital and was not making any progress at the time in fact I was worse!!!…. could this have been my trouble the entire stay at the hospital??? Tina – Hide quoted text — Show quoted text – I have to make this quick got to get this room ready for my son.   I have an hour before he and Liz get here.  He gave quistrian (sp) powder, and flexeral I think that’s the name.  I haven’t picked them up yet.  I got diagnosed with it because of the symptoms and exam and because I took the Augmentin  and now Leviquin which causes colitis.  I have other tests to do but didn’t feel like it today. Cross your fingers that at least this will heal quickly.  I also have the flare with the colitis.  And even with the water pill which I take everyday, no exceptions I loolk four months pregnant and my ankle and legs are really swollen. What a  day.  I hate this!  UM MOM Susan, ps remember not to send anything to me with music so I can get in here easier.  Thanks {{{{{{Susan}}}}} how did he dx the colitis without a colonoscopy?  just curious, as if you didn’t have enough problems, eh?  : ) Reesie I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis.  I am having a bad flare and more tests to come. More meds too oh boy just what I needed.  So that solves one of my dilemas. I am still taking my water pill but I am again holding about 10 pounds or more of water.  He wants me to go back to the idiot but I said no so tomorrows appointment I will get him to give me a different name. That;s it for now going to watch a movie.  UM MOM Susan

Response:

Yes.  My doctor told me that a lot of the antibiotics will cause a flare and colitis.  Augmentin, amoxil, Leviquin just to name a few he  mentioned.  UM MOM Susan   and now Leviquin which causes colitis.   leviquiin can cause colitis?????  I was on an iv drip for 6 days in the hospital and was not making any progress at the time in fact I was worse!!!…. could this have been my trouble the entire stay at the hospital???   Tina   I have to make this quick got to get this room ready for my son.   I have an   hour before he and Liz get here.  He gave quistrian (sp) powder, and   flexeral I think that’s the name.  I haven’t picked them up yet.  I got   diagnosed with it because of the symptoms and exam and because I took the   Augmentin  and now Leviquin which causes colitis.  I have other tests to do   but didn’t feel like it today. Cross your fingers that at least this will   heal quickly.  I also have the flare with the colitis.  And even with the   water pill which I take everyday, no exceptions I loolk four months pregnant   and my ankle and legs are really swollen. What a  day.  I hate this!  UM MOM   Susan, ps remember not to send anything to me with music so I can get in   here easier.  Thanks   {{{{{{Susan}}}}} how did he dx the colitis without a colonoscopy?  just   curious, as if you didn’t have enough problems, eh?  : ) Reesie   I just wanted to let you all know that yes you can have both because I   just   got diagnosed with colitis.  I am having a bad flare and more tests to   come.   More meds too oh boy just what I needed.  So that solves one of my   dilemas.   I am still taking my water pill but I am again holding about 10 pounds   or   more of water.  He wants me to go back to the idiot but I said no so   tomorrows appointment I will get him to give me a different name. That;s   it   for now going to watch a movie.  UM MOM Susan              

Response:

No he said I have crohn’s  and colitis.  Yes he did and he said that you can have both.  UM MOM Susan

– Hide quoted text — Show quoted text – I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis. Did your doctor say you have Crohn’s disease and ULCERATIVE colitis? That’s what the question is. Sounds like you simply have Crohn’s in both the small intestine and the colon. That’s the most common pattern of Crohn’s (45 percent of all CD cases have it).

Response:

I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis.

Did your doctor say you have Crohn’s disease and ULCERATIVE colitis? That’s what the question is. Sounds like you simply have Crohn’s in both the small intestine and the colon. That’s the most common pattern of Crohn’s (45 percent of all CD cases have it).

Response:

I have to make this quick got to get this room ready for my son.   I have an hour before he and Liz get here.  He gave quistrian (sp) powder, and flexeral I think that’s the name.  I haven’t picked them up yet.  I got diagnosed with it because of the symptoms and exam and because I took the Augmentin  and now Leviquin which causes colitis.  I have other tests to do but didn’t feel like it today. Cross your fingers that at least this will heal quickly.  I also have the flare with the colitis.  And even with the water pill which I take everyday, no exceptions I loolk four months pregnant and my ankle and legs are really swollen. What a  day.  I hate this!  UM MOM Susan, ps remember not to send anything to me with music so I can get in here easier.  Thanks

– Hide quoted text — Show quoted text – {{{{{{Susan}}}}} how did he dx the colitis without a colonoscopy?  just curious, as if you didn’t have enough problems, eh?  : ) Reesie I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis.  I am having a bad flare and more tests to come. More meds too oh boy just what I needed.  So that solves one of my dilemas. I am still taking my water pill but I am again holding about 10 pounds or more of water.  He wants me to go back to the idiot but I said no so tomorrows appointment I will get him to give me a different name. That;s it for now going to watch a movie.  UM MOM Susan

Response:

{{{{{{Susan}}}}} how did he dx the colitis without a colonoscopy?  just curious, as if you didn’t have enough problems, eh?  : ) Reesie

– Hide quoted text — Show quoted text – I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis.  I am having a bad flare and more tests to come. More meds too oh boy just what I needed.  So that solves one of my dilemas. I am still taking my water pill but I am again holding about 10 pounds or more of water.  He wants me to go back to the idiot but I said no so tomorrows appointment I will get him to give me a different name. That;s it for now going to watch a movie.  UM MOM Susan

Response:

I just wanted to let you all know that yes you can have both because I just got diagnosed with colitis.  I am having a bad flare and more tests to come. More meds too oh boy just what I needed.  So that solves one of my dilemas. I am still taking my water pill but I am again holding about 10 pounds or more of water.  He wants me to go back to the idiot but I said no so tomorrows appointment I will get him to give me a different name. That;s it for now going to watch a movie.  UM MOM Susan

Response:

What did they give you for the colitis?  I’m glad you got some answers.  Sorry you gotta do more tests, YUK! I hope the doc tomorrow can recommend a good doctor for you.  Sorry it wasn’t good news today, but atleast they know where to start. STaci

Response:

Question:

Jeff, Any antibiotic can cause colitis in a healthy person.  If you look up the side effects on any antibiotic, you will see it listed.  There is a particular infectious colitis that can happen, colostridium (spelling probably incorrect) difficili, as a result of strong antibiotic use. Just becasue Cipro is used to treat some colitis patients does not mean that it cannot cause colitis in others. I blame long term antibiotic use for developing my colitis. Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address:

– Hide quoted text — Show quoted text – The other day I was listening to a news broadcast and they had a physician making statements about why you should not take Cipro preventatively. One of the reasons she stated was that it could cause colitis. Well that just didn’t jive with what I knew so I sent the station an email explaining that even the NIH doesn’t know what causes colitis so how could the doctor make that statement. I also mentioned that Cipro was used to treat colitis and not cause it. Well believe it or not I actually got back a nice reply which has some interesting information and also some web addresses. I am going to post it here in order to share this info. First the reply with the URLs near the end: Jeff, Thank you for writing. Yes, you are correct… Cipro is actually used to treat colitis. But there are several different types of colitis. You might be thinking of ulcerative colitis. The exact cause of ulcerative colitis is not yet known ~ but certainly not caused by Cipro. I believe, however, Dr. Cohen was referring to a type of colitis called pseudo membranous colitis. It is more commonly referred to as "antibiotic associated-colitis." It occurs when antibiotics are given incorrectly or taken for too long. The antibiotics can end up killing the good bacteria in the bowel, permitting a damaging strain to develop. Nearly all antibiotics, including Cipro, can cause pseudo membranous colitis. I hope this clears up any confusion. Here are some web sites that may help with background info. http://www.prostatitis.org/ciproeffects.html http://ibscrohns.about.com/library/sideeffects/blcipro.htm Please contact me if you have any further questions. Sincerely, Andrea R. (I removed the last name for privacy here) Next, an excerp from one of the sites which has some statements about the use of antibiotics, and food consumption which I found interesting. (I hope the formatting isn’t screwed up)     What is the cause of Microscopic Colitis?                            Extensive data from animals (mainly rodents) suggest that any form of colitis is the result of the body’s                            immune system setting up an unusual attack on the bacteria living in the colon. What makes the body                            suddenly recognize these bacteria as harmful and worthy of this attack is not fully understood but there                            are several clues based on my research. First, it is known that aspirin and other non-steroidal                            antiinflammatory drugs (NSAID’s) can cause this reaction. Also, if the balance of less immune                            stimulating bacteria (we will call "good bacteria") and more immunostimulatory bacteria ("bad bacteria")                            favors the latter, inflammation can result. This can occur from use of antibiotics and probably from                            chronic consumption of certain foods that favor growth of bad bacteria. The role of yeast (for example                            Candida) in this process is unstudied and therefore unknown. However, whatever tips the scale toward this                            reaction, it appears that there is an underlying gene responsible for the predisposition to have this form of                            colitis. In fact, my recent studies have revealed in most cases, the gene is the same as the one known to                            cause celiac sprue and gluten sensitivity (explaining why some patients get both syndromes).                            Furthermore, it appears that colitis can cause the immune system to begin recognizing gluten as                            immunostimulatory and vice versa, gluten sensitivity can lead to colitis. I do want to point out, however, that even though they mention the use of antibiotics as being able to cause bacterial imbalances that can cause an inflammatory response, there is NO indication that Cipro is one of those antibiotics. There are many different types of antibiotics and from what I have heard Cipro is designed to work on certain pathogenic bacteria. Anyway it does behove you to take probiotics when taking any antibiotic. Just thought I’d share this info with the group. Jeff (2)

Response:

The other day I was listening to a news broadcast and they had a physician making statements about why you should not take Cipro preventatively. One of the reasons she stated was that it could cause colitis. Well that just didn’t jive with what I knew so I sent the station an email explaining that even the NIH doesn’t know what causes colitis so how could the doctor make that statement. I also mentioned that Cipro was used to treat colitis and not cause it. Well believe it or not I actually got back a nice reply which has some interesting information and also some web addresses. I am going to post it here in order to share this info. First the reply with the URLs near the end: Jeff, Thank you for writing. Yes, you are correct… Cipro is actually used to treat colitis. But there are several different types of colitis. You might be thinking of ulcerative colitis. The exact cause of ulcerative colitis is not yet known ~ but certainly not caused by Cipro. I believe, however, Dr. Cohen was referring to a type of colitis called pseudo membranous colitis. It is more commonly referred to as "antibiotic associated-colitis." It occurs when antibiotics are given incorrectly or taken for too long. The antibiotics can end up killing the good bacteria in the bowel, permitting a damaging strain to develop. Nearly all antibiotics, including Cipro, can cause pseudo membranous colitis. I hope this clears up any confusion. Here are some web sites that may help with background info. http://www.prostatitis.org/ciproeffects.html http://ibscrohns.about.com/library/sideeffects/blcipro.htm Please contact me if you have any further questions. Sincerely, Andrea R. (I removed the last name for privacy here) Next, an excerp from one of the sites which has some statements about the use of antibiotics, and food consumption which I found interesting. (I hope the formatting isn’t screwed up)     What is the cause of Microscopic Colitis?                            Extensive data from animals (mainly rodents) suggest that any form of colitis is the result of the body’s                            immune system setting up an unusual attack on the bacteria living in the colon. What makes the body                            suddenly recognize these bacteria as harmful and worthy of this attack is not fully understood but there                            are several clues based on my research. First, it is known that aspirin and other non-steroidal                            antiinflammatory drugs (NSAID’s) can cause this reaction. Also, if the balance of less immune                            stimulating bacteria (we will call "good bacteria") and more immunostimulatory bacteria ("bad bacteria")                            favors the latter, inflammation can result. This can occur from use of antibiotics and probably from                            chronic consumption of certain foods that favor growth of bad bacteria. The role of yeast (for example                            Candida) in this process is unstudied and therefore unknown. However, whatever tips the scale toward this                            reaction, it appears that there is an underlying gene responsible for the predisposition to have this form of                            colitis. In fact, my recent studies have revealed in most cases, the gene is the same as the one known to                            cause celiac sprue and gluten sensitivity (explaining why some patients get both syndromes).                            Furthermore, it appears that colitis can cause the immune system to begin recognizing gluten as                            immunostimulatory and vice versa, gluten sensitivity can lead to colitis. I do want to point out, however, that even though they mention the use of antibiotics as being able to cause bacterial imbalances that can cause an inflammatory response, there is NO indication that Cipro is one of those antibiotics. There are many different types of antibiotics and from what I have heard Cipro is designed to work on certain pathogenic bacteria. Anyway it does behove you to take probiotics when taking any antibiotic. Just thought I’d share this info with the group. Jeff (2)

Response:

This is a total copy of a web page from the Prostatis Foundation, I hope they don’t mind that I am reprinting it here but I thought it was very informative.                   C I P R O Information                   and Side Effects                   A new research article explains how quinolone antibiotics (including "Cipro")                   cause joint and tendon ruptures…                   See also one young man’s testimony on the potential for side effects                   Reprint of Dr. Shoskes newsgroup comment on antibiotics in prostatitis                   treatment.                   by Jerry Snider R.Ph.                   C I P R O Information & Side Effects –                   Cipro (Ciprofloxin) is a member of the quinolone group of antibiotics. Peak                   blood levels are reached 1-2 hours after dosing. If you take an ANTACID                   containing magnesium or aluminum hydroxide (most have one or both), it will                   bind up to 90% of the drug, rendering it mostly ineffective. Same is true with                   zinc, iron, and calcium. It reaches optimum blood levels if taken 2 hours after a                   meal. If you take THEOPHYLLINE) for asthma, Cipro slows down the                   breakdown of Theophylline, and it will cause severe nervousness as you would                   expect with an overdose (could be fatal!). Cipro does the same with                   CAFFEINE, and will build up higher blood levels of caffeine, causing                   nervousness and CNS stimulation.                   Cipro is effective against gram positive and gram negative bacteria. It works by                   interfering with an enzyme that bacteria need to replicate their DNA. Cipro                   enters tissue, including the prostate, and can be isolated from prostatic                   secretions.                   RECOMMENDED DOSE FOR PROSTATITIS: 500mg every 12 hours for 28                   days.                   *EFFECTIVE AGAINST:                   AEROBIC GRAM POSITIVE:                        Enterococcus faecalis;                        Staph Aureus;                        Staph epidermis;                        Staph saprophyticus;                        Strep pneumoniae; and                        Strep pyogenes.                   AEROBIC GRAM NEGATIVE:                        Campylobacter jejuni                        Citrobacter diversus                        Citrobacterfreundii                        Enterobacter cloacae                        E.Coli                        Haemophilus influenzae                        Haemophilus parainfluenzae                        Klebsiella pneumonae                        Morganella morganii                        Neisseria gonorrheae                        Proteum mirabilis                        Proteus vulgaris                        Providencia rettgeri                        Providencia stuartii                        Pseudomonas aeruginose                        Salmonella typhi                        Serratia marcescens                        Shigella flexneri                        Shigella sonnei.                   Effective against 90% of the strains of the following                   In Vitro (test-tube) – - – -                   AEROBIC GRAM POS:                        Staph haemolyticus;                        Staph hominis                   AEROBIC GRAM NEG:                        Acinetobacter Iwoffi                        Aeromonas caviae                        Aeromonas hydrophilia                        Brucella melitensis                        Campylobacter coli                        Edwardsiella tarda                        Haemophilus ducreyi                        Klebsiella oxytoca                        Legionella pneumophila                        Moraxella catarrhalis                        Neisseria meningitidis                        Pasteurella multocida                        Salmonella enteritidis                        Vibrio cholerae                        Vibrio parahaemolyticus                        Vibrio vulnificus                        Yersinia enterocolitica                   OTHER:                        Clamydia trachomatis                        Mycobacterium tuberculosis (moderate on both)                   RESISTANT BACTERIA NOT HELPED BY CIPRO: Most strains of:                   Burkholderia cepacia, Stenotrophomonas maltophilia, Bacteroides fragilis,                   Clostridium difficile- Cipro is slightly less effective in an acid PH.- Resistance                   develops slowly to Cipro (multi-step mutations)- Synergistic (stronger) effects                   occur with Cipro if given with Flagyl (metronidazole), Cleocin (Clindamycin), or                   aminoglucocide or beta-lactam class antibiotics.                   CONTRAINDICATIONS: Should not be used by persons with a history of                   hypersensi-tivity to Cipro, or other quinolones. Not to be used by persons                   under the age of 18.                   WARNINGS: All quinolones cause erosion of cartilage in weight-bearing joints.                   They may cause convulsions, increases intracranial pressure, toxic                   psychosis, CNS stimulation (i.e.nervousness, lightheadedness, confusion,                   hallucinations).Should not be used in anyone with seizure disorders, or                   cerebral arteriosclerosis. There have been deaths due to anaphylactic shock,                   and cardiovascular collapse. Also occurring are tingling, itching, facial                   swelling, and difficult breathing.                   DISCONTINUE at the first sign of a rash or any hypersensitivity.                   Pseudomembranous colitis has been reported from nearly all antibacterial                   agents (mild to life-threatening), and anyone taking Cipro having diarrhea                   should immediately check with his prescribing physician. Antibacterial drugs                   may kill off normal intestinal flora, resulting in an overgrowth of Clostridia. It                   produces a toxin that is a primary cause of "antibiotic-associated- colitis".                   Achilles and other tendon ruptures requiring surgical repair, resulting in                   prolonged disability can occur from quinolone use. Discontinue Cipro, and                   consult your physician, if you experience pain, inflammation, or tendon                   rupture.                   Crystaluria (particles out of solution in urine) may occur, particularly if the urine                   is alkaline. While taking Cipro, maintain hydration (8-8oz glasses of water                   daily min.)and drink Orange or Cranberry juice, or apple cider vinegar (2 tsp.                   with 1 tsp.honey in 8 oz water) to maintain acidity of the urine. Photosensitivity                   (sunburn) occurs easily. Stay out of the sun all you can, or wear sunscreen                   (spf30) if you can’t. Monitor liver, kidney functions, and blood chemistry during                   prolonged therapy.                   DRUG INTERACTIONS:                          Raises blood levels of THEOPHYLLINE and decreases normal                          elimination resulting in overdosing, potentially fatal. Also alters                          DILANTIN blood levels.                          Given with GLYBURIDE (DIABETA, MICRONASE, GLYNASE), it                          can cause hypoglycemia. It increases the effects of the blood thinner                          COUMADIN (WARFARIN), and a patient taking COUMADIN needs                          to carefully monitor his prothrombin time.                          BENEMID (PROBENECID) causes decreased breakdown of Cipro                          requiring less Cipro, or discontinuance of Benemid.                          CARAFATE (SUCRALFATE), an ulcer drug, causes extremely                          decreased blood levels of Cipro.                   ADVERSE REACTIONS:                          Nausea (5.2%),                          Diarrhea (2.3%),                          vomiting (2%),                          abdominal pain/discomfort(1.7%),                          headache(1.2%),                          restlessness(1.1%), and                          rash (1.1%).                   The following were reported as less than one percent:                          CARDIOVASCULAR: Palpatation (feeling your heart beat), heart                          flutter, fainting, angina, heart attack, cardiopulmonary arrest, blood                          clot to the brain.                          CENTRAL NERVOUS SYSTEM: Nervousness, dizziness, headache,                          lightheadedness, insomnia, nightmares, hallucinations, manic                          attack, tremors, irritability, seizures, lethargy, drowsiness,                          weakness, no appetite, depression, numbness, depersonalization,                          ataxia ( lack of muscle coordination), agitation, confusion, delirium,                          toxic psychosis, muscle twitching, involuntary eye movements.                          GASTROINTESTINAL: painful oral mucosa, thrush(oral fungal                          infection),intestinal perforation, G.I. bleeding, jaundice, difficulty                          swallowing, constipation, intestinal gas, swelling of the pancreas.                          MUSCULOSKELETAL: joint stiffness, back pain, neck or chest pain,                          gout flare-up.                          KIDNEY/URINARY: Kidney failure, urinary retention, urethral                          bleeding, acidosis, nephritis (inflammation of the kidneys), increased                          urinary output, kidney stones.                          RESPIRATORY: difficult breathing, throat or lung swelling (edema),                          hiccoughs, bronchial

… read more »

Response:

Question:

Tom, This will be my last post on this topic but I hope you understood what I was originally saying, however, to reinforce that, I DO NOT condone you being attacked for your stance on gays, as everyone is entitled to their opinion. But again, my problem is/was that it was posted excessively by you and Mike, attacking each other and all I ask is that you take that to email as it has no business in at least this group, a SUPPORT group.  I served my great country, the United States, via the Navy, which some shot or something from the Gulf War caused my IBD(Crohn’s), to allow you and others to have your opinion and to express it, but when it becomes hateful or you and someone else get into a "spam war" I just ask that you take that to emailing. And I am man enough to apologize for referring to your "excessive posts on iron", but rather I should of said that I don’t understand how Iron can play such a diverse role as you describe it. Sure you may dislike or even hate homosexuals, however, IBD doesn’t discriminate and therefore there are gays and lesbians that are part of this group and if you want to make your stance, take it to an anti-gay newsgroup. But by all means if you have something to contribute to supporting those of us that have some fashion of IBD, please post. And in response to you being attacked for being a Christian, that too is unacceptable, especially if it happens in this newsgroup.  But one thing I’ve learned is that we are here to support each other, not to call each other names, and though I can’t quote the bible directly, I do know that Jesus said to turn the other cheek. The majority of us here come for support in a time of need, some of us don’t have spouses to listen, some spouses don’t understand what we endure and there is a comfort zone here as we can discuss virtually anything.  I tend to refer to it as a VERY large extended family of mine, and believe it or not, that includes you and Mike as I’ve said before, I’m not against you posting information about Iron and its possible connection to many diseases and Mike’s experience with MAP which he is virtually a database on information concerning the progression of the theory MAP plays with Crohn’s. All I ask is two things, if a thread starts to become personal to include attacks on you or anyone else, I ask that you take that to email.  The second is continue to post if you have information that you feel might be helpful and I doubt anyone should have any problem with that. Lastly, everything I’ve said here is my opinion and by no means represents the charter or the founder, Sue, rather just my 2 cents. Thanks for listening and I hope we can work together instead of against each other. Ken A — CD Class of 97 Home Page http://www.augustweb.com/~kjakin/ CD/UC User List:  "The Unofficial Birthday/Hometown List" http://www.augustweb.com/~kjakin/cduc.html or http://members.nbci.com/kjakin/cduc/cduc.html

– Hide quoted text — Show quoted text – include foul language at each other. I haven’t seen a whole lot of that compared to some posts ‘photo of my wife’.. which seems to continue on the list BECAUSE people ‘respond’ to it. As to ‘homosexual’.. remarks.. that I believe is ‘testosterone’.. talk and nothing else.. Part and parcel of ‘head butting’ .. homosexual or other things and that is COMPLETELY inappropriate for this newsgroup as there are some people in the group that are gay.  I doubt you I have been attacked by ‘gays’.. by reason of ONLY my stance on the cause of homosexuality. Vehemently attacked.. and also attacked by ‘christians’.. again because of my stance.. ‘They’ (both groups) think they can attack on the grounds of ‘personal feelings’.. rather than speaking to the ‘facts’ which I am most willing to ‘discuss’.. but ‘they’ seem far more interested in atacking. Tom’s excessive "Iron" postings, I just put him in my kill file as everything he posts is proven wrong in a 15 minute visit with an endocrinologist. Same endocrinologist who believes that when ‘hypogonadism’ strikes 50 percent of hiv/aids patients .. that it is NOT connected to homosexuality? So YOU believe it is a ‘choice’ and NOT a ‘medically’ compromised.. man? You have to understand where I am coming from here? Being that I cannot fathom it? I am not ‘against’ you .. just believe it is no different from diabetes, cancer and which HAS been shown can be reversed if ‘caught’ before puberty.. Who loves ya. Tom — Jesus was a Vegetarian! http://www.nucleus.com/watchman Moses was a Mystic! http://www.nucleus.com/watchman/light.html

Response:

Sure you may dislike or even hate homosexuals, however, IBD doesn’t discriminate and therefore there are gays and lesbians that are part of this group and if you want to make your stance, take it to an anti-gay newsgroup. But by all means if you have something to contribute to supporting those of us that have some fashion of IBD, please post.

Stance on gays is iron causes homosexuality and THAT is what I am attacked on.. I have no problem with gays.. or lesbians .. And in response to you being attacked for being a Christian, that too is

I am attacked BY .. ‘christians’.. for my stance of Jesus BEING a vegetarian .. which seems to be somewhat tantamount to me aligning myself closely with  .. Rushdie.. Jesus said to turn the other cheek.

I can also recall Him .. ‘bustin the place up’.. Who loves ya. Tom — Jesus was a Vegetarian! http://www.nucleus.com/watchman Moses was a Mystic! http://www.nucleus.com/watchman/light.html

Response:

Very well said Ken.  I did indeed post the charter and a warning under another topic. As it seems the flames have died down, either that or your posts have done the trick. – Hide quoted text — Show quoted text -Hopefully this won’t cause a spam war, but as a 4 year veteran of the newsgroup I felt like I needed to add my 2 cents as no one else has mentioned what I am going to suggest. This is addressed primarily to Mike and Tom. I have read all or at least the majority of your posts and I personally don’t subscribe to either sets of theories, however, I keep an open mind and read them, however, the BIG problem I have is your individual attacks that include foul language at each other.  When it gets to that point, both of you need to remove that crap from the newsgroup and deal with it via email. Your posts prove this, so their can’t be any denial calling each other a homosexual or other things and that is COMPLETELY inappropriate for this newsgroup as there are some people in the group that are gay.  I doubt you would use the "n" word if one was a different race or berate someone that was Latino or Jewish, etc. Please don’t mistake this as a request to stop posting as I do find Mike’s postings on MAP interesting, especially in light of the new discovery of NOD-2, but when it gets to the point of personal attacks, it is in MY opinion that you two should take it to email and leave the group to the "support" part.  I don’t want you to think that you can’t dispute one’s claim of this or that, but it is the personal attacks that disturb me.  For Tom’s excessive "Iron" postings, I just put him in my kill file as everything he posts is proven wrong in a 15 minute visit with an endocrinologist. I just have a hard time dealing with the fact that several days ago I logged in and there were 600+ messages and I’d bet at least 30% of them were Mike and Tom bickering and calling each other foul names.  And today it was somewhat of a pleasure to see a lot less of that, as I log in to get and offer support, not listen to how if you’re left handed means you’re a homosexual and I would think Sue (if she hasn’t already) would put a stop to that.  I know she’d never put a stop to people stating their opinion or offering support as she’s wonderful about that, but I am betting she’s disappointed at the name calling and such. My 2 cents. Ken A — CD Class of 97 Home Page http://www.augustweb.com/~kjakin/ CD/UC User List:  "The Unofficial Birthday/Hometown List" http://www.augustweb.com/~kjakin/cduc.html or http://members.nbci.com/kjakin/cduc/cduc.html Anyone that wishes to complain about Tom’s unproductive posts can are complaining about with headers intact. I also suggest you promise to email them a copy of every offending post. If you wish to call and complain the phone numbers are listed below. Registrant:    Nucleus Information Service Inc.    1835B – 10th Avenue S.W.    Calgary, AB T3C 0K2    Canada Domain Name: nucleus.com Administrative Contact, Billing Contact:    Nucleus Information Service Inc.    1835B – 10th Avenue S.W.    Calgary, AB T3C 0K2    Canada    Phone: (403) 209-0000 x, Fax: (403) 541-9474 x Technical Contact:    Nucleus Information Service Inc.    1835B – 10th Avenue S.W.    Calgary, AB T3C 0K2    Canada    Phone: (403) 209-0000, Fax: (403) 541-9474 Domain servers in listed order:    ns.nucleus.com   199.45.65.129    ns1.nucleus.com   199.45.65.8

Response:

include foul language at each other.

I haven’t seen a whole lot of that compared to some posts ‘photo of my wife’.. which seems to continue on the list BECAUSE people ‘respond’ to it. As to ‘homosexual’.. remarks.. that I believe is ‘testosterone’.. talk and nothing else.. Part and parcel of ‘head butting’ .. homosexual or other things and that is COMPLETELY inappropriate for this newsgroup as there are some people in the group that are gay.  I doubt you

I have been attacked by ‘gays’.. by reason of ONLY my stance on the cause of homosexuality. Vehemently attacked.. and also attacked by ‘christians’.. again because of my stance.. ‘They’ (both groups) think they can attack on the grounds of ‘personal feelings’.. rather than speaking to the ‘facts’ which I am most willing to ‘discuss’.. but ‘they’ seem far more interested in atacking. Tom’s excessive "Iron" postings, I just put him in my kill file as everything he posts is proven wrong in a 15 minute visit with an endocrinologist.

Same endocrinologist who believes that when ‘hypogonadism’ strikes 50 percent of hiv/aids patients .. that it is NOT connected to homosexuality? So YOU believe it is a ‘choice’ and NOT a ‘medically’ compromised.. man? You have to understand where I am coming from here? Being that I cannot fathom it? I am not ‘against’ you .. just believe it is no different from diabetes, cancer and which HAS been shown can be reversed if ‘caught’ before puberty.. Who loves ya. Tom – Hide quoted text — Show quoted text – I just have a hard time dealing with the fact that several days ago I logged in and there were 600+ messages and I’d bet at least 30% of them were Mike and Tom bickering and calling each other foul names.  And today it was somewhat of a pleasure to see a lot less of that, as I log in to get and offer support, not listen to how if you’re left handed means you’re a homosexual and I would think Sue (if she hasn’t already) would put a stop to that.  I know she’d never put a stop to people stating their opinion or offering support as she’s wonderful about that, but I am betting she’s disappointed at the name calling and such. My 2 cents. Ken A — CD Class of 97 Home Page http://www.augustweb.com/~kjakin/ CD/UC User List:  "The Unofficial Birthday/Hometown List" http://www.augustweb.com/~kjakin/cduc.html or http://members.nbci.com/kjakin/cduc/cduc.html Anyone that wishes to complain about Tom’s unproductive posts can are complaining about with headers intact. I also suggest you promise to email them a copy of every offending post. If you wish to call and complain the phone numbers are listed below. Registrant:    Nucleus Information Service Inc.    1835B – 10th Avenue S.W.    Calgary, AB T3C 0K2    Canada Domain Name: nucleus.com Administrative Contact, Billing Contact:    Nucleus Information Service Inc.    1835B – 10th Avenue S.W.    Calgary, AB T3C 0K2    Canada    Phone: (403) 209-0000 x, Fax: (403) 541-9474 x Technical Contact:    Nucleus Information Service Inc.    1835B – 10th Avenue S.W.    Calgary, AB T3C 0K2    Canada    Phone: (403) 209-0000, Fax: (403) 541-9474 Domain servers in listed order:    ns.nucleus.com   199.45.65.129    ns1.nucleus.com   199.45.65.8 Please Visit www.ibdcure.com and sign the petition for an IBD postage stamp. All opinions expressed are mine unless otherwise noted. Copyright

Question:

Amy You are welcome with the info on Florida … there are alot of us in the newsgroup here … besides myself, Staci and Mike in Ocala, there is Mark, Lynn, Karen, Cheryl, Odie (has anyone seen her ?) William Pope and numerous others scattered across the sunshine state … Definitly bring cash ……. upfront moving costs can be horrendous …. Thankfully, the Federal Government moved us !! Maryjo

Response:

I’m glad to hear you are doing well.  Crohn’s Colitis is the term they generally use to describe CD in the colon.  It distinguishes it from UC or CD elsewhere.  mgbio CD Class of ‘99 http://www.skyweb.net/~mgbio/ – Hide quoted text — Show quoted text – Hello again everyone, Hope all are doing well, hope you feel better Leighann.  I am doing pretty good, though I CANNOT wait to decrease my asacol.  Hopefully, this month’s visit will be the last for a while.  Anyway, to the point of my post… I just wanted to know what crohns colitis is?  Is it the same as crohns?  I was just wondering.  Thanks. BTW, thanks Marjo, for the info on Florida.  I will have to definitely check it out once I get some moola going.  It might be a little while, but at least I have some info. — Amy remove "no spam" when replying

Response:

Hello again everyone, Hope all are doing well, hope you feel better Leighann.  I am doing pretty good, though I CANNOT wait to decrease my asacol.  Hopefully, this month’s visit will be the last for a while.  Anyway, to the point of my post… I just wanted to know what crohns colitis is?  Is it the same as crohns?  I was just wondering.  Thanks. BTW, thanks Marjo, for the info on Florida.  I will have to definitely check it out once I get some moola going.  It might be a little while, but at least I have some info. — Amy remove "no spam" when replying

Response:

Question:

I have a really dumb question…what it gerd??

Response:

That’s not a dumb question.  GERD stands for gastroesophageal reflux disease, also referred to as acid reflux of just reflux.  GERD is a backflow of acid from the stomach into the esophagus. ~~~~Pat CD Class of 98

Response:

What kind of extraintestinal problems ?

Response:

Mike,I can vouch for the bloating and heartburn, and at high doses I get the dizzyness, headaches and even fatigue too, but keep in mind that only a small (though significant) percentage of people get these or any side effects from Asacol, and since it’s the med most likely to be side effect free, people should always give it a try. – Hide quoted text — Show quoted text -Aheroman, Right now, Nothing–I’m in remission.  Sometimes, I pop in a 5-asa suppository if I feel that something is working up.  I stay away from ALL dairy now (including yogurt–used to eat ii religiously), and that killed my last flare, so hopefully, that will continue. The Asacol worked great on my gut (other than the bloating and resultant gerd).  But, I started to have alot of extraintestinal problems not related to IBD.  Was it the medicine?  I don’t know. Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address: Mike, What do you take if you are not Asacol now ?

Response:

I have been on Asacol for 5 1/2 years – no serious side effects – and sustained remission from 48 hours after going on it to now- – Hide quoted text — Show quoted text – Asacol’s been great for me. No side effects that I can tell. I’ve been on it since July. THe main thing to remember is that it takes a few weeks to take effect. Since I’ve been on it things have improved dramatically. I have had no serious flare ups and even when I do get a flare, it’s not so bad that I’m incapacitated. The only down side is that it is so expensive. After 2 1/2 months of daily diarrhea, I finally have an answer why, and it could’ve been alot worse. Microscopic colitis. The doc wanted to put me on prednisone, but because of my bipolar disorder, this was not possible. So I’m on Asacol. (Ass + Colon??) I hope it helps. Has anyone been on this medication? What kind of side effects are there? How well did it work for you?

Response:

Aheroman, Right now, Nothing–I’m in remission.  Sometimes, I pop in a 5-asa suppository if I feel that something is working up.  I stay away from ALL dairy now (including yogurt–used to eat ii religiously), and that killed my last flare, so hopefully, that will continue. The Asacol worked great on my gut (other than the bloating and resultant gerd).  But, I started to have alot of extraintestinal problems not related to IBD.  Was it the medicine?  I don’t know. Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address: – Hide quoted text — Show quoted text – Mike, What do you take if you are not Asacol now ?

Response:

I have no idea … but if you look into the website it explains (especcially the FAQ) what Microscopic Colitis is … Collagenous Colitis is a Microscopic Colitis as it can only be seen with a Microscope but with CC there is a band of collagen under the  underlying tissue …… all have the same symptoms ……. My chronic complaint was continual non stop BIG "D" … cramping , queasiness, general ill feeling, and joint pain !! I did 15 months of Prednisone, with no increase in weight gain, except for unwanted mood swings, moon face, and unwanted body hair, It did nothing for the CC …… Asacol caused me to become anorexic , which is not cool on someone who weighed just 84 lbs … now, I am only on Colestid as needed …….

Response:

mufin Microscopic Colitis, though not as bad as UC/CD can also create lifestyle changes .. and can affect those around you … they find a high impact of those with MC also tend to be gluten insensitive .. and lactose insensitive .. with me, it affected almost all of my lifestyle .. there are days, I still have to search prior for bathrooms … I can sense when it is not adviseable to eat while out … and sometimes a attack comes on suddenly without any warning .. I just want you to be prepared for the unexpected … I found not to expect miricles, but live each day to the fullest, even if it means counting flowers on the wallpaper in your bathroom … when I was in a major flare, I made sure that I had stuff to entertain me in the bathroom Drink (and I can’t stress this enough) lots of water …… It definitly is not fun being placed in the hospital for dehydration (been there, done that, don’t want to do that again) … stay away from fried foods, raw fruits,and veggies, and definitly nuts of any kind ……. come to think about it, there is not much that does not affect one who has MC/CC and remember what works for one, may not work for another !! Maryjo – CC class of ‘98

Response:

Asacol’s been great for me. No side effects that I can tell. I’ve been on it since July. THe main thing to remember is that it takes a few weeks to take effect. Since I’ve been on it things have improved dramatically. I have had no serious flare ups and even when I do get a flare, it’s not so bad that I’m incapacitated. The only down side is that it is so expensive. – Hide quoted text — Show quoted text – After 2 1/2 months of daily diarrhea, I finally have an answer why, and it could’ve been alot worse. Microscopic colitis. The doc wanted to put me on prednisone, but because of my bipolar disorder, this was not possible. So I’m on Asacol. (Ass + Colon??) I hope it helps. Has anyone been on this medication? What kind of side effects are there? How well did it work for you?

Response:

After reading some on your website I think he may have said lyphocytic. *shrug* I’ll have to ask.

– Hide quoted text — Show quoted text – Thanks for the input! The doc specifically said there was no evidence of CC, but there was a clear (#*$ blah, blah, blah…itis when seen under a microscope. I asked him to repeat it again….and was only able to catch that it started with a B the second time. I felt like a fool asking him to spell it. I’ll do that the next time I call. But it is some form of MC. Any clue what he might have been saying? Mufin I have Collagenous Colitis which is a Microscopic Colitis … check out my web page as it has lots of interesting information on it .. including the FAQ on CC/MC I was on Asacol, but it made me anorexic, and since I was already underweight, that was not the answer … Ask your Dr about Colestid or Questran, that helped get the BIG "D" under control !!  Also Dr Fine, who is doing research with those with CC/MC is doing a Pepto Bismal thing, and theat helps some, also that there is some connection between CC/MC and gluten intolerance (this I am beginning to totally believe in) Any questions, please feel free to ask

Response:

Has anyone been on this medication? What kind of side effects are there? How well did it work for you?

After 14 years on Sulfasalazine,  I was switched to Asacol (2 pills 3 times per day) last Wednesday.   The only side effect is my urine is back to looking normal….other than that, no headaches, no nausea, no heartburn.  I do have more intestinal gas, but that could be Holiday food and drinks. As to how it’s working….I probably haven’t been on it long enough yet, and I am also using Rowasa enemas every night. I do feel great, though.  

Response:

Mufin It would help if I gave you my web page … http://community-2.webtv.net/MaryjoL/MYPAGE/

Response:

Thanks for the input! The doc specifically said there was no evidence of CC, but there was a clear (#*$ blah, blah, blah…itis when seen under a microscope. I asked him to repeat it again….and was only able to catch that it started with a B the second time. I felt like a fool asking him to spell it. I’ll do that the next time I call. But it is some form of MC. Any clue what he might have been saying?

– Hide quoted text — Show quoted text – Mufin I have Collagenous Colitis which is a Microscopic Colitis … check out my web page as it has lots of interesting information on it .. including the FAQ on CC/MC I was on Asacol, but it made me anorexic, and since I was already underweight, that was not the answer … Ask your Dr about Colestid or Questran, that helped get the BIG "D" under control !!  Also Dr Fine, who is doing research with those with CC/MC is doing a Pepto Bismal thing, and theat helps some, also that there is some connection between CC/MC and gluten intolerance (this I am beginning to totally believe in) Any questions, please feel free to ask

Response:

I’ve been on asacol for a few months now, no sideffects. If anything its helped reduce the number of headaches I used to get(BTW Ecederin Migraine is amazing!). Good Luck!

Response:

gee, now I know why is carries that name!  ROFLMAO!  mgbio – Hide quoted text — Show quoted text – After 2 1/2 months of daily diarrhea, I finally have an answer why, and it could’ve been alot worse. Microscopic colitis. The doc wanted to put me on prednisone, but because of my bipolar disorder, this was not possible. So I’m on Asacol. (Ass + Colon??) I hope it helps. Has anyone been on this medication? What kind of side effects are there? How well did it work for you?

Response:

Mike, What do you take if you are not Asacol now ?

Response:

I haven’t had any problems on Asacol except for headaches on a high dose (more than 6 pills per day).  I drank lots of water and that seemed to help.  Good luck. Be well- Tracy CD class of ‘98 my homepage: http://home.talkcity.com/ParadiseDr/goodboie/index.html  : )  smile – it makes people wonder what you’re up to!

Response:

Mufin I have Collagenous Colitis which is a Microscopic Colitis … check out my web page as it has lots of interesting information on it .. including the FAQ on CC/MC I was on Asacol, but it made me anorexic, and since I was already underweight, that was not the answer … Ask your Dr about Colestid or Questran, that helped get the BIG "D" under control !!  Also Dr Fine, who is doing research with those with CC/MC is doing a Pepto Bismal thing, and theat helps some, also that there is some connection between CC/MC and gluten intolerance (this I am beginning to totally believe in) Any questions, please feel free to ask

Response:

Nope, no prednisone.  Just asacol. — To reply via email remove the (SPAM_BLOCKER) from my email address:

– Hide quoted text — Show quoted text – Hi Mike, You are reffering to the prednisone affects .. right ? Sounds like it to me as those were the kinds of  side affects I mostly had in my almost two years of average 40mg daily with prednisone. As far as Asacol by it self I had no real side affects other than being sensitve to sun rays. Be prepared for some awful bloating and GERD.  Alot of people get headaches or get really dizzy from it.  I thought that it dried my eyes out and just made me feel sick as heck.  Oh, it also gave me increased anxiety and panic attacks.  I pretty much blame it for everything, including my ear and hearing/balance problems, my persistent sore throat, my bell’s palsy, etc…. When I was on it, my colon felt great (had the best poops in my life)–just the rest of my body felt like crap (no pun intended). Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address: After 2 1/2 months of daily diarrhea, I finally have an answer why, and it could’ve been alot worse. Microscopic colitis. The doc wanted to put me on prednisone, but because of my bipolar disorder, this was not possible. So I’m on Asacol. (Ass + Colon??) I hope it helps. Has anyone been on this medication? What kind of side effects are there? How well did it work for you?

Response:

Muffin, I call it Ass on Call.  I’ve been on it for a year and haven’t had any problems.’ Staci

Response:

 Hi Mike, You are reffering to the prednisone affects .. right ? Sounds like it to me as those were the kinds of  side affects I mostly had in my almost two years of average 40mg daily with prednisone. As far as Asacol by it self I had no real side affects other than being sensitve to sun rays.

– Hide quoted text — Show quoted text – Be prepared for some awful bloating and GERD.  Alot of people get headaches or get really dizzy from it.  I thought that it dried my eyes out and just made me feel sick as heck.  Oh, it also gave me increased anxiety and panic attacks.  I pretty much blame it for everything, including my ear and hearing/balance problems, my persistent sore throat, my bell’s palsy, etc…. When I was on it, my colon felt great (had the best poops in my life)–just the rest of my body felt like crap (no pun intended). Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address: After 2 1/2 months of daily diarrhea, I finally have an answer why, and it could’ve been alot worse. Microscopic colitis. The doc wanted to put me on prednisone, but because of my bipolar disorder, this was not possible. So I’m on Asacol. (Ass + Colon??) I hope it helps. Has anyone been on this medication? What kind of side effects are there? How well did it work for you?

Response:

Be prepared for some awful bloating and GERD.  Alot of people get headaches or get really dizzy from it.  I thought that it dried my eyes out and just made me feel sick as heck.  Oh, it also gave me increased anxiety and panic attacks.  I pretty much blame it for everything, including my ear and hearing/balance problems, my persistent sore throat, my bell’s palsy, etc…. When I was on it, my colon felt great (had the best poops in my life)–just the rest of my body felt like crap (no pun intended). Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address: – Hide quoted text — Show quoted text – After 2 1/2 months of daily diarrhea, I finally have an answer why, and it could’ve been alot worse. Microscopic colitis. The doc wanted to put me on prednisone, but because of my bipolar disorder, this was not possible. So I’m on Asacol. (Ass + Colon??) I hope it helps. Has anyone been on this medication? What kind of side effects are there? How well did it work for you?

Response:

 I have a very bad case of UC myself. After almost two years of treatment and trying diffrent medications, what’s finnally worked ( at least since itself did not controll my UC, but many others have had very good results. Depending on how high the does for you, be careful of the UV rays from the sun. So ask your Dr. about sun exsposure.

– Hide quoted text — Show quoted text – After 2 1/2 months of daily diarrhea, I finally have an answer why, and it could’ve been alot worse. Microscopic colitis. The doc wanted to put me on prednisone, but because of my bipolar disorder, this was not possible. So I’m on Asacol. (Ass + Colon??) I hope it helps. Has anyone been on this medication? What kind of side effects are there? How well did it work for you?

Response:

After 2 1/2 months of daily diarrhea, I finally have an answer why, and it could’ve been alot worse. Microscopic colitis. The doc wanted to put me on prednisone, but because of my bipolar disorder, this was not possible. So I’m on Asacol. (Ass + Colon??) I hope it helps. Has anyone been on this medication? What kind of side effects are there? How well did it work for you?

Response:

I don’t find that it does that much(I’m ill with them, and I’m ill without them), but then I think I’m the exception to the case. The best thing for me when I get an attack seems to be to drink a hell of alot of water and fruit jucie and then eating little but healthily. Adam

– Hide quoted text — Show quoted text – After 2 1/2 months of daily diarrhea, I finally have an answer why, and it could’ve been alot worse. Microscopic colitis. The doc wanted to put me on prednisone, but because of my bipolar disorder, this was not possible. So I’m on Asacol. (Ass + Colon??) I hope it helps. Has anyone been on this medication? What kind of side effects are there? How well did it work for you?

Response:

Question:

Help — I posted before. Was on augmentin for sinusitis. After first pill, within 12 hours, started getting big-time D. I have CD but D had been kept in check with asacol. This is different. VERY liquid. Quit the medication after 2 days (my body did not seem to adjust). Last pill was yesterday morning. I will be starting bactrim today. Meanwhile, this D is continuing unabated. Miserable stuff — very liquid. I have heard of pseudomembranous colitis. Might I have contracted that colitis in such a short time — I was only on augmentin for 2 days? ALSO, IS THERE A PLACE ON THE NET TO ASK A DOCTOR ABOUT THIS? Mel

Response:

I was on antibiotics for over a year for acne.  I then switched to a more powerful antibiotic (again, for acne) and after two days I was struck with severe D and vomitting.  My doc suspected Cdiff and I had a stool sample sent to a lab, but they never checked for Cdiff.  One of those comedy-of-errors things.  He treated me for Cdiff anyhow. The lab did detect yeast, so I was also treated for a massive yeast infection in my intestines.  (And on a digression, it took awhile for this to be detected, and I kept getting ill and now likely have UC.) As I said, I was on antibiotics for over a year before this happened, but before I switched to the more powerful antibiotic I never had problems with D, etc.  It was after two days of the stronger antibiotic that things went haywire.  My personal guess (and it’s only a guess), is that you might be able to get this problem after two days.  Definitely check with a doctor.  A simple stool test can tell if that’s what’s going on, and you don’t want to let this go on untreated. Good luck Jennifer UC Class of 98

Response:

I have found that eating yogurt, and taking lactaid pills have helped reconstitute the good bacteria that is suppose to be inside of us that some of these powerful drugs seem to kill collaterally. If you are going through anything like I went through, you would be willing to try anything, so don’t laugh when I say to try meditation to relieve stress, even to go so far as to try Hatha yoga for an hour a day, also to try chewing ginger roots, and avoid all forms of caffeine.

Response:

hi Mel, ALSO, IS THERE A PLACE ON THE NET TO ASK A DOCTOR ABOUT THIS? CCFA’s "Ask A Specialist" is back up again!  

Response:

It’s very unlikely that 2 days of an antibiotic would give you a cdiff infection  (which I think is what pseudomembranous colitis is), unless you had been on other antibiotics recently. However, if you want to ease your mind, cdiff infections are pretty easily found in stool samples at labs, ask your dr. – Hide quoted text — Show quoted text -Help — I posted before. Was on augmentin for sinusitis. After first pill, within 12 hours, started getting big-time D. I have CD but D had been kept in check with asacol. This is different. VERY liquid. Quit the medication after 2 days (my body did not seem to adjust). Last pill was yesterday morning. I will be starting bactrim today. Meanwhile, this D is continuing unabated. Miserable stuff — very liquid. I have heard of pseudomembranous colitis. Might I have contracted that colitis in such a short time — I was only on augmentin for 2 days? ALSO, IS THERE A PLACE ON THE NET TO ASK A DOCTOR ABOUT THIS? Mel

Response:

Question:

This may sound weird but my hand did that , my thumb was so bad I couldn’t even roll down windows. They had me all set up for surgery (they said it was tendonitus in the wrist) Well I had to cancel surgery because of the death of my mom. For about a year before that I was playing game on my sons Nintendo….before my mom died my son bought a new game player and gave the nintendo away….my pain went away…come to find out the tendonitus was caused by the game controls:) jacquie

Is joint pain a complication of diabetes?  It has been 2 years since I was diagnosed.  BG is well controlled with glucophage and diet.  The last few weeks I have had pain and swelling in my fingers and thumbs.  One at a time. First the middle finger of my right hand, next my left thumb and now my right thumb. It starts getting sore, then swells and gets very sore and tender, then slowly gets better over 2 or 3 days until it is back to normal.  I went to the Dr with the finger.  He prescribed an anti-inflamatory drug.  Said cortisone would provide quick relief but couldn’t use it because of diabetes.  Just lived with the left thumb and it got better just as quickly as the finger did. I’m rambling here so I’ll shut up now. Larry

Response:

Bonita,  When I was a hundred pounds heavier I hated walking because my knees hurt so bad. The Doc told me my cartlidge was like spaggetti. I now walk two miles a day, My knees still complain, but they aren’t as agrevated as they were when I was heavier. Same with my back when I went shopping with my sister I had to sit down because of back spasims. My back still hurts in the morning(I’m pretty sure that is age:)) but I don’t get the spasims anymore. You will also notice the difference as you loose weight.(Now if I could figure out how to get rid of this last 50 pound) jacquie

It might just be a complication of aging, hon.  In my case, the excess weight I carry around has damaged my knees and back, but perhaps indirectly this was caused by diabetes because of the weight problems that seems to go with it.  I wish I could blame everything on the diabetes, but I can’t. Some things are just my body breaking down, and maybe at a faster rate because the immune system is compromised with diabetes.  It’s probably something to bring up with your doc and see whether you need to see and orthopedic specialist or pain management clinic. Bonita

– Hide quoted text — Show quoted text – Is joint pain a complication of diabetes?  It has been 2 years since I was diagnosed.  BG is well controlled with glucophage and diet.  The last few weeks I have had pain and swelling in my fingers and thumbs.  One at a time. First the middle finger of my right hand, next my left thumb and now my right thumb. It starts getting sore, then swells and gets very sore and tender, then slowly gets better over 2 or 3 days until it is back to normal.  I went to the Dr with the finger.  He prescribed an anti-inflamatory drug.  Said cortisone would provide quick relief but couldn’t use it because of diabetes.  Just lived with the left thumb and it got better just as quickly as the finger did. I’m rambling here so I’ll shut up now. Larry

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It might just be a complication of aging, hon.  In my case, the excess weight I carry around has damaged my knees and back, but perhaps indirectly this was caused by diabetes because of the weight problems that seems to go with it.  I wish I could blame everything on the diabetes, but I can’t. Some things are just my body breaking down, and maybe at a faster rate because the immune system is compromised with diabetes.  It’s probably something to bring up with your doc and see whether you need to see and orthopedic specialist or pain management clinic. Bonita

– Hide quoted text — Show quoted text – Is joint pain a complication of diabetes?  It has been 2 years since I was diagnosed.  BG is well controlled with glucophage and diet.  The last few weeks I have had pain and swelling in my fingers and thumbs.  One at a time. First the middle finger of my right hand, next my left thumb and now my right thumb. It starts getting sore, then swells and gets very sore and tender, then slowly gets better over 2 or 3 days until it is back to normal.  I went to the Dr with the finger.  He prescribed an anti-inflamatory drug.  Said cortisone would provide quick relief but couldn’t use it because of diabetes.  Just lived with the left thumb and it got better just as quickly as the finger did. I’m rambling here so I’ll shut up now. Larry

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Is joint pain a complication of diabetes?  It has been 2 years since I was diagnosed.  BG is well controlled with glucophage and diet.  The last few weeks I have had pain and swelling in my fingers and thumbs.  One at a time.  First the middle finger of my right hand, next my left thumb and now my right thumb. It starts getting sore, then swells and gets very sore and tender, then slowly gets better over 2 or 3 days until it is back to normal.  I went to the Dr with the finger.  He prescribed an anti-inflamatory drug.  Said cortisone would provide quick relief but couldn’t use it because of diabetes.  Just lived with the left thumb and it got better just as quickly as the finger did. I’m rambling here so I’ll shut up now. Larry

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It could be either a side effect of Crohn’s Disease or Imuran or both. One side effect of Crohn’s Disease is joint problems. Imuran can also cause joint problems. Because of Crohn’s Disease, I had an ileostomy and my joint problems disappeared. Then, following an outbreak of pydoderma, I was put on Imuran. A couple of months later (which is how long it takes for Imuran to kick in) my joints started hurting. My gastroenterologists says the joint problems are probably a result of the Imuran.

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This is my second week at 15 mgs. Then I go down to ten.  My next doctor appt. is on Thursday, so I will know then what’s next.  I have been on Prednisone, up and down for 3 months.  Last time my symptoms started returning at 15 mgs. This time I’m doing really well, but then I am not on a vacation and drinking White Russians every day like last time.  Think that made the difference? Catherine – Hide quoted text — Show quoted text – x-no-archive: yes I am going to start that SCD diet as soon as the book gets here, so I will be on the diet before I finish tapering off of the Prednisone [this time] so maybe I won’t have the D at all when I get off this time.  I’m  hoping. I hope so too, but please don’t let starting the diet make you over-confident… make sure you taper off the pred  V E R Y  S L O W L Y … — MG

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I have been on imuran for over a year now. I was on prednisone for about 6 weeks starting in March of this year when I went in for my second resection. I have joint pain in my left shoulder and elbow as well as the back of the left hand. The pain is only annoying except when I try to sleep. A couple tynlenol make it go away easily. My GI is a specialist in Crohn’s. He has Crohn’s himself and does research on an NIH grant. He too takes imuran. He says that notices that he often gets joint pain when he takes imuran that goes away when he stops. He reduced my dosage from 75mg to 50mg per day. My arm pain decreased in frequency quite noticeably. However, it has not gone away completely. Therefore, it seems that joint pain can be a side effect of imuran. Share what you know. Learn what you don’t.

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Well, it was only noctural at first, now I am doing OK, but that’s because of Prednisone.  I am going to start that SCD diet as soon as the book gets here, so I will be on the diet before I finish tapering off of the Prednisone [this time] so maybe I won’t have the D at all when I get off this time.  I’m  hoping. Catherine – Hide quoted text — Show quoted text – Hi Catherine, I wish my "D" was only nocturnal !!… Collagenous Colitis is a microscopic form of colitis … check out my home page at the botttom of this post to read more on Collagenous Colitis in my links My "D" is a 24 hour event!! ~~~Maryjo~~ check out my home page: http://community.webtv.net/MaryjoL/MYPAGE

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dont know where the original message was, so i’m replying here. my joint pain only really started to bother me 2 weeks after my first course of steroids ended (the d came back then too, imagine that). it hasnt gone away really for 4 years except for 2 weeks this past winter when my steroid dose was intollerably high for the rest of me. frankly the pain was most obscene when i tapered after that, but it wasnt just my joints, it was my muscles and bones and everything. i felt like i’d been run over by a truck. my garden variety joint pain is supposed to go away when i go into remission, whenever that may be. it’s always worse when the pressure changes a couple days before a storm. when it doesnt migrate after a few days it causes terrible shooting pains which nortriptyline or amitriptyline kill off well, but they dont help much otherwise. i’ve been taking relafen every day for 2+ years. that’s the only non-steroid thing that helps. nadia. – Hide quoted text — Show quoted text – I have the joint pain too, but was told that it is a symptom of my Collagenous Colitis …which I tend to agree with as I had the aching joints before being diagnosed with it and not on meds as of yet Maryjo

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Hi Catherine, I wish my "D" was only nocturnal !!… Collagenous Colitis is a microscopic form of colitis … check out my home page at the botttom of this post to read more on Collagenous Colitis in my links My "D" is a 24 hour event!! ~~~Maryjo~~ check out my home page: http://community.webtv.net/MaryjoL/MYPAGE

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Jason, Is there a specific diet that you use? Connie

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Joint pains are an indication that the underlying reason for the IBD, a bowel permeability problem, has not been corrected by the drugs.  Some people get skin rashes, others get joint pains.  The same drugs would be used to suppress these problems too. I’d suggest you start looking at the research on Leaky Gut Syndrome. I’ve altered my diet to keep both my IBD and my joint pain in good check.  Yes, I’m covering my bases with a course of Imuran, too.  Better safe than sorry, I say. — Jason Smith Agility Architect "growing your profits.  faster.  sustainably." Share what you know. Learn what you don’t.

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I’m not on any meds for my UC at this time (6 months), but I am semi-flaring. While I have taken Asacol, Pentasa and Budesonide ( a topical steroid), I have more lower back, hip, and leg discomfort now. I am taking one Celebrex at night 5 out of 7 nights. So in my opinion, based upon readings of the NG and my own experience, the joint pain can be due to both Pred and the desease itself (bummer).

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I had the same problem when I came off the Pred.  so bad so that I had to have Physcial theropy(sp).  And I still have it PLUS swelling of the knee’s and ankles too.  The Dr.said it was from the Crohns and he gave me some meds. for it. I see him tomorrow so we will see how thing’s have gone in the apst two month’s now. good luck.  I am on Imuran by the way and it is not from that.. – Hide quoted text — Show quoted text – Hi,  I was diagnosed with Crohn’s Colitis in Nov., ‘98.  I was on Prednisone and Immuran and have now tapered off of the Prednisone.  My problem now is that I’m having problems with pain in my knees, thighs, and hips.  Is this common after being on Prednisone or is it a side effect of Immuran?  I’d appreciate any feedback. Thanks, Connie

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Hi Connie I think it’s one of the symptoms of Crohns.  I’ve had increasing problems with joint pain recently, especially my back and hip.  Last night was really bad, but that may have been weather-related – it was raining.  I’m on Azulfidine and I haven’t taken Prednisone for several years. Regards, Mimi

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Connie, Yes, your joint pain is tied into the Crohn’s, and yes, prednisone will make it worse.  I found that the only thing that really alleviated the pain was swimming (but who wants to be seen in a bathing suit in full prednisone bloat?  :P)  However, going on Imuran seems to have helped with the pain considerably… as in I haven’t had any joint pain at all for months now. Good luck… Chris

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Thanks for responding to my questions.  Sometimes, by the end of my day at work, I’m so uncomfortable, I have a hard time walking to my car. Hopefully, being on the Immuran now and off of the Prednisone, I’ll get better.  I will also try using the Calcium/Magnesium supplement that was suggested I’m fairly new to this list and am impressed with the support it offers. Thanks again. Connie

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I think it is the Prednisone.  When I was on 60 mg. I woke up early in the morning and my right knee ached really bad.  I could barely walk.  I took some Tylenol and two hours later it didn’t seem to help.  That morning I was scheduled for some blood tests and wasn’t supposed to eat anything, but I had read somewhere on the net that joint pain was a withdrawal symptom from something…I wasn’t sure what…but I knew it was one of the drugs I was taking, so I took my 60 mgs of Prednisone with a glass of milk and 20 minutes later my knee pain was COMPLETELY gone.  Of course, it could have been that the Tylenol was kicking in later than I thought it should have.  But I suspect the pain was from the Prednisone because later on I relapsed and had to go back to 60 mgs. and I noticed knee pain again, not as drastic, but still it was there. I had never had any pain in my knees before that morning.  Then again, some people say that it is from the UC itself.  I just don’t know, but that’s my 2 cents worth. Catch ya later Catherine – Hide quoted text — Show quoted text – Hi Connie. I get these pain in my joints when I eat more than 40 mg Pred. I just tapered down from 80 to 40 and my knees are killing me right now. It could be the Crohns but It feels as if its the Pred. My Dr don’t know, he says it could be one or the other (aren’t they cute?) but I still think it’s the Pred Love Mona Hi,  I was diagnosed with Crohn’s Colitis in Nov., ‘98.  I was on Prednisone and Immuran and have now tapered off of the Prednisone.  My problem now is that I’m having problems with pain in my knees, thighs, and hips.  Is this common after being on Prednisone or is it a side effect of Immuran?  I’d appreciate any feedback. Thanks, Connie

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I have the joint pain too, but was told that it is a symptom of my Collagenous Colitis …which I tend to agree with as I had the aching joints before being diagnosed with it and not on meds as of yet Maryjo

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Maryjo- Please excuse my ignorance.  I am new to this NG, and have just been diagnosed with UC.  Can you tell me what Collagenous Colitis is?  What are the symptoms.  I seem to remember reading somewhere that it is a noctural variety of UC.  Is that correct?  I am asking because at first, my D was mostly noctural..it woke me up 2-3 times a night, and my doctor just looked at me like I was telling him something he’d never heard before.  Can you enlighten me. Thanks, Catherine – Hide quoted text — Show quoted text – I have the joint pain too, but was told that it is a symptom of my Collagenous Colitis …which I tend to agree with as I had the aching joints before being diagnosed with it and not on meds as of yet Maryjo

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Prednisone is famous for the sore joints…But your calcium/magnesium supplement should have helped you..

– Hide quoted text — Show quoted text – Hi,  I was diagnosed with Crohn’s Colitis in Nov., ‘98.  I was on Prednisone and Immuran and have now tapered off of the Prednisone.  My problem now is that I’m having problems with pain in my knees, thighs, and hips.  Is this common after being on Prednisone or is it a side effect of Immuran?  I’d appreciate any feedback. Thanks, Connie

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Hi Connie. I get these pain in my joints when I eat more than 40 mg Pred. I just tapered down from 80 to 40 and my knees are killing me right now. It could be the Crohns but It feels as if its the Pred. My Dr don’t know, he says it could be one or the other (aren’t they cute?) but I still think it’s the Pred Love Mona – Hide quoted text — Show quoted text – Hi,  I was diagnosed with Crohn’s Colitis in Nov., ‘98.  I was on Prednisone and Immuran and have now tapered off of the Prednisone.  My problem now is that I’m having problems with pain in my knees, thighs, and hips.  Is this common after being on Prednisone or is it a side effect of Immuran?  I’d appreciate any feedback. Thanks, Connie

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Hi,  I was diagnosed with Crohn’s Colitis in Nov., ‘98.  I was on Prednisone and Immuran and have now tapered off of the Prednisone.  My problem now is that I’m having problems with pain in my knees, thighs, and hips.  Is this common after being on Prednisone or is it a side effect of Immuran?  I’d appreciate any feedback. Thanks, Connie

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Hi,  I was diagnosed with Crohn’s Colitis in Nov., ‘98.  I was on Prednisone and Immuran and have now tapered off of the Prednisone.  My problem now is that I’m having problems with pain in my knees, thighs, and hips.  Is this common after being on Prednisone or is it a side effect of Immuran?  I’d appreciate any feedback. Thanks, Connie

Hi Connie – I am still going through diagnosis but have the same symptoms – I was told its a symptom of Crohn’s itself. Kay

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Can anyone please help me, I have had crohns for 18 years and in the last year  I have developed terrible pains in my knee joints ,

I have had CD for 33 years and knee joint problems for the last 10 years or so. I had a flare up about two months ago and the Dr. put me on Asacol. It gave me headaches so I started drinking over a gallon of water a day. I kept up almost a gallon even as the headaches stopped. I have noticed that my knees don’t hurt any more. It came on gradual and all of a sudden I realized THEY DON’T HURT. This may not be an answer but it wouldn’t hurt to give it a try. The water is very good for you anyway. Good luck, Liz/CD

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You might try some orthotics froma podiatrist. That really helped me. I gained weight and it flattened my feet out, lost my natural arch. Jennie

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Can anyone please help me, I have had crohns for 18 years and in the last year  I have developed terrible pains in my knee joints , on top of this i have flat feet which dont help…by the end of the day i feel totally stuffed….sugestions please !!!!! A.Gross Melbourne Australia

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check lately…or ever…. Pred causes low bone density,,,also know as Osteoporosis…or how ever u spell it… Its a possibility.. Joint pain is fairly common for me with my CD..often when I’m on the edge of a flare up.. Take care DM

– Hide quoted text — Show quoted text – Can anyone please help me, I have had crohns for 18 years and in the last year  I have developed terrible pains in my knee joints , on top of this i have flat feet which dont help…by the end of the day i feel totally stuffed….sugestions please !!!!! A.Gross Melbourne Australia

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Hi, I have Crohn’s and joint pain too.  My joint pain is from Ankylosing Spondalitis, a type of arthritis that is often associated with Crohn’s.  It is nasty when it flares….absolutely excruciating.  I would take a bad bout of Crohn’s over a bad flare of that any day….cause I am used to pain in my gut…but not in my joints.  *LOL*  When it is in a bad flare moist heat helps.  To avoid flares you should try to remain active.  The less active you are the more likely it is to flare if you have AS. Good Luck! *HUGS* Ann

– Hide quoted text — Show quoted text – Can anyone please help me, I have had crohns for 18 years and in the last year  I have developed terrible pains in my knee joints , on top of this i have flat feet which dont help…by the end of the day i feel totally stuffed….sugestions please !!!!! A.Gross Melbourne Australia

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I’ve never expereince ANY pain smoking a joint. In fact, it seems to make me feel ALOT better, and you should hear the music I write when stoned. Wait, are talking about joints or joints here?   grundman – Hide quoted text — Show quoted text – Robin I went through that recently and suffered horribly.  My GI doc finally gave up trying to treat it and referred me back to my primary care doctor.  He said it was acute arthritis, not joint pain.  If you have swelling, fever and severe pain, call your primary care doctor.  They gave me Indocin and it was helping within 24 hours.  Joint pain is common with Prednisone tapering, but if it is really bad you may need to be taking something for it. I’ve been off prednizone for 2 weeks, after 6 months off and on, and I’ve developed severe joint pain in my shoulders, hips, knees, fingers and ankles. It’s so bad if I crouch down I can barely get up.  Has anyone experienced this? Is there anything I can take for it? Also, I gained 20 lbs (that I did not need) and developed the well known "moon face" while on prednizone.  I work out 3-4 times a week and haven’t been able to take off the weight.  How long does it take?  I’m getting very frustrated. I appreciate any advise. Robin Roseanne Roseannadanna AGC Visually Impaired Item Maintenance Technician See the Blind Item Website at:  http://members.tripod.com/~Rogow/RoRo.htm Keeper of Daniel Day-Lewis!   BAGC

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It took about six months for the moon face and bloating to go this time – but my specialist did warn me that it can take up to a year to completely get the effects out of your system.  Be patient, and good luck. Annie

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Hi Robin I hate prednisolone/prednisone. I’d only accept it now if the only alternative was yet more surgery. Moon face of course, and everyone says how well you look… Aches, headaches, never feeling right… But the look does go (even for a couch potato like me), just give it time. I hope you stay well so you don’t need it any more. Good wishes Andrew

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After I went off steroids after my UC surgery, about a month later, all of a sudden my finger and knee joints started aching, especially first thing in the morning. My gastro said this was not uncommon and said that it would go away after several months.   That began for me in mid-December.  It’s somewhat better.  I could be wrong, but I think my best days seem to come right after I take a dose of allergy serum. Sam – Hide quoted text — Show quoted text – I’ve been off prednizone for 2 weeks, after 6 months off and on, and I’ve developed severe joint pain in my shoulders, hips, knees, fingers and ankles. It’s so bad if I crouch down I can barely get up.  Has anyone experienced this? Is there anything I can take for it? Also, I gained 20 lbs (that I did not need) and developed the well known "moon face" while on prednizone.  I work out 3-4 times a week and haven’t been able to take off the weight.  How long does it take?  I’m getting very frustrated.

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I’ve been off prednizone for 2 weeks, after 6 months off and on, and I’ve developed severe joint pain in my shoulders, hips, knees, fingers and ankles. It’s so bad if I crouch down I can barely get up.  Has anyone experienced this? Is there anything I can take for it? Robin

As Ro said, an increase in joint pain is common while tapering — I have also noted an increase although I’m actually seeing more problems with stiffness in my fingers and I’m noticing fine hand tremors and problems with weakness in my grip. I suspect that I would have a lot more pain if not for the seretonin blockers I take (nortriptyline and Prozac). If the pain is likely to be a chronic problem, you might want to consider this course. If not, then your PCP should be able to give you something for the pain. steve

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My doc had me on Asacol after I went off the prednisone this time… and I found that it made my aching joints even worse.  So, I took myself off of it (bad, I know), and the pain has lessened, but I still have trouble moving around. At least I haven’t had another flare up… yet, anyway. As for the moon face, it will disappear, you will become reacquainted with your neck, and you will stop having to wear only pants with elastic waistbands.  I promise.  Give it time. Think happy thoughts… Chris

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Indocin is an NSAID so please be careful.

One of the common side effects of indomethacin is a headache. In my NSAID taking career, this is the only one that has given me a headache. The last time that I was given this medication, I expected my usual headache, but awoke in the middle of the night with one of my worst ever headaches. I couldn’t figure out why this one was so much worse than I’d ever had with Indocin, until I realized that the doc had given me "sustained release" Indocin and I had a "sustained release" headache. It lasted for close to 24 hours and no amount of painkillers could alleviate it. I mentioned this to the doc and he said that I should start listing Indocin as a medication that I was allergic to. By doing this, nobody would ever prescribe it to me again. I realize it is a very good medication, particularly for gout. It was also one of the very first NSAIDs, but since there are now so many NSAIds on the market, I now have the option of avoiding it for a product that produces less side effects for me. Terri

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Indocin is an NSAID so please be careful. Long before I was diagnosed with Crohn’s I was put on Indocin for psoriatic arthritis. Even with a Carafate (anti ulcer medication) before each dose my system couldn’t tolerate it. I’ve had good luck with Orudis. Anyone with IBD should consult their doctor and ask about the risks involved taking an NSAID. I don’t have much choice since I can barely move my arms and legs without it. Lyn

– Hide quoted text — Show quoted text -Robin I went through that recently and suffered horribly.  My GI doc finally gave up trying to treat it and referred me back to my primary care doctor. He said it was acute arthritis, not joint pain.  If you have swelling, fever and severe pain, call your primary care doctor.  They gave me Indocin and it was helping within 24 hours.  Joint pain is common with Prednisone tapering, but if it is really bad you may need to be taking something for it. I’ve been off prednizone for 2 weeks, after 6 months off and on, and I’ve developed severe joint pain in my shoulders, hips, knees, fingers and ankles. It’s so bad if I crouch down I can barely get up.  Has anyone experienced this? Is there anything I can take for it? Also, I gained 20 lbs (that I did not need) and developed the well known "moon face" while on prednizone.  I work out 3-4 times a week and haven’t been able to take off the weight.  How long does it take?  I’m getting very frustrated. I appreciate any advise. Robin Roseanne Roseannadanna AGC Visually Impaired Item Maintenance Technician See the Blind Item Website at:  http://members.tripod.com/~Rogow/RoRo.htm Keeper of Daniel Day-Lewis!   BAGC

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Robin I went through that recently and suffered horribly.  My GI doc finally gave up trying to treat it and referred me back to my primary care doctor.  He said it was acute arthritis, not joint pain.  If you have swelling, fever and severe pain, call your primary care doctor.  They gave me Indocin and it was helping within 24 hours.  Joint pain is common with Prednisone tapering, but if it is really bad you may need to be taking something for it. – Hide quoted text — Show quoted text -I’ve been off prednizone for 2 weeks, after 6 months off and on, and I’ve developed severe joint pain in my shoulders, hips, knees, fingers and ankles. It’s so bad if I crouch down I can barely get up.  Has anyone experienced this? Is there anything I can take for it? Also, I gained 20 lbs (that I did not need) and developed the well known "moon face" while on prednizone.  I work out 3-4 times a week and haven’t been able to take off the weight.  How long does it take?  I’m getting very frustrated. I appreciate any advise. Robin

Roseanne Roseannadanna AGC Visually Impaired Item Maintenance Technician See the Blind Item Website at:  http://members.tripod.com/~Rogow/RoRo.htm Keeper of Daniel Day-Lewis!   BAGC

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I’ve been off prednizone for 2 weeks, after 6 months off and on, and I’ve developed severe joint pain in my shoulders, hips, knees, fingers and ankles. It’s so bad if I crouch down I can barely get up.  Has anyone experienced this?  Is there anything I can take for it? Also, I gained 20 lbs (that I did not need) and developed the well known "moon face" while on prednizone.  I work out 3-4 times a week and haven’t been able to take off the weight.  How long does it take?  I’m getting very frustrated. I appreciate any advise. Robin

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i just simply can’t afford it.  i had to find a generic to try. jeff

– Hide quoted text — Show quoted text – So far mine are telling me to continue my Celebrex. I take 400 mg split in two doses.  I have no heart problems and have had it tested with the surgery in 2003 and it showed my heart is strong with no irregularities.  I am going today for blood work and what ever else is decided before my surgery on the 25th for the hernia.  I will have to stop my vitamin and the Celebrex a week prior to the surgery.  I have had no problems with the Celebrex at all and would feel horrible if they take it away.  I don’t think they are at this point though, at least I hope.  UM MOM Susan Jeff, What do the IBD specialists have to say about using it for IBD’ers?  I’m curious because w/o Vioxx I am stuck w/o anything to take.  Personally, I’m willing to risk taking Vioxx after reading the data since the danger is more hype than danger to the general population. mgbio investigate lodine.  it is nsaid, but studies show it has less g.i. complications than vioxx.  lodine is generic and has been around since 1991 with no history of adverse effects to the cardio system.  it is rx. jeff With each flare up, I am experiencing increasing joint pain and joint swelling.  It is painful to walk.  Weaning off the prednisone only increases the joint pain.  Does anyone else experience these problems. Any ideas on reducing the pain?  My GI suggested tylenol but it does not help.  Also, anyone else taking Dipentum?  I can’t tolerate the 6MP drug.  Makes me very nauseated.

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Thanks Jeff.  I see my GI next week and I need an alternative to Vioxx.  Celebrex and Bextra are out because of my sulfur allergy. mgbio – Hide quoted text — Show quoted text – the texas study involved gi docs.  60% fewer gi effects from the participants.  only one study.  but i know i react really nasty to oral volaren.   lodine has not caused any problems.  but, i am only one "sample size"…hee, hee. jeff Jeff, What do the IBD specialists have to say about using it for IBD’ers?  I’m curious because w/o Vioxx I am stuck w/o anything to take.  Personally, I’m willing to risk taking Vioxx after reading the data since the danger is more hype than danger to the general population. mgbio investigate lodine.  it is nsaid, but studies show it has less g.i. complications than vioxx.  lodine is generic and has been around since 1991 with no history of adverse effects to the cardio system.  it is rx. jeff With each flare up, I am experiencing increasing joint pain and joint swelling.  It is painful to walk.  Weaning off the prednisone only increases the joint pain.  Does anyone else experience these problems. Any ideas on reducing the pain?  My GI suggested tylenol but it does not help.  Also, anyone else taking Dipentum?  I can’t tolerate the 6MP drug.  Makes me very nauseated.

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I have the ‘ol sulpha allergy…  The Lodine has worked good for Jeff. Mary

Thanks Jeff.  I see my GI next week and I need an alternative to Vioxx.

Celebrex and Bextra are out because of my sulfur allergy. – Hide quoted text — Show quoted text – mgbio the texas study involved gi docs.  60% fewer gi effects from the participants.  only one study.  but i know i react really nasty to oral volaren.   lodine has not caused any problems.  but, i am only one "sample size"…hee, hee. jeff Jeff, What do the IBD specialists have to say about using it for IBD’ers?  I’m curious because w/o Vioxx I am stuck w/o anything to take.  Personally, I’m willing to risk taking Vioxx after reading the data since the danger is more hype than danger to the general population. mgbio investigate lodine.  it is nsaid, but studies show it has less g.i. complications than vioxx.  lodine is generic and has been around since 1991 with no history of adverse effects to the cardio system.  it is rx. jeff With each flare up, I am experiencing increasing joint pain and joint swelling.  It is painful to walk.  Weaning off the prednisone only increases the joint pain.  Does anyone else experience these problems. Any ideas on reducing the pain?  My GI suggested tylenol but it does not help.  Also, anyone else taking Dipentum?  I can’t tolerate the 6MP drug.  Makes me very nauseated.

Response:

So far mine are telling me to continue my Celebrex. I take 400 mg split in two doses.  I have no heart problems and have had it tested with the surgery in 2003 and it showed my heart is strong with no irregularities.  I am going today for blood work and what ever else is decided before my surgery on the 25th for the hernia.  I will have to stop my vitamin and the Celebrex a week prior to the surgery.  I have had no problems with the Celebrex at all and would feel horrible if they take it away.  I don’t think they are at this point though, at least I hope.  UM MOM Susan

– Hide quoted text — Show quoted text – Jeff, What do the IBD specialists have to say about using it for IBD’ers?  I’m curious because w/o Vioxx I am stuck w/o anything to take.  Personally, I’m willing to risk taking Vioxx after reading the data since the danger is more hype than danger to the general population. mgbio investigate lodine.  it is nsaid, but studies show it has less g.i. complications than vioxx.  lodine is generic and has been around since 1991 with no history of adverse effects to the cardio system.  it is rx. jeff With each flare up, I am experiencing increasing joint pain and joint swelling.  It is painful to walk.  Weaning off the prednisone only increases the joint pain.  Does anyone else experience these problems. Any ideas on reducing the pain?  My GI suggested tylenol but it does not help.  Also, anyone else taking Dipentum?  I can’t tolerate the 6MP drug.  Makes me very nauseated.

Response:

the texas study involved gi docs.  60% fewer gi effects from the participants.  only one study.  but i know i react really nasty to oral volaren.   lodine has not caused any problems.  but, i am only one "sample size"…hee, hee. jeff

Jeff, What do the IBD specialists have to say about using it for IBD’ers?  I’m

curious because w/o Vioxx I am stuck w/o anything to take.  Personally, I’m willing to risk taking Vioxx after reading the data since the danger is more hype than danger to the general population. – Hide quoted text — Show quoted text – mgbio investigate lodine.  it is nsaid, but studies show it has less g.i. complications than vioxx.  lodine is generic and has been around since 1991 with no history of adverse effects to the cardio system.  it is rx. jeff With each flare up, I am experiencing increasing joint pain and joint swelling.  It is painful to walk.  Weaning off the prednisone only increases the joint pain.  Does anyone else experience these problems. Any ideas on reducing the pain?  My GI suggested tylenol but it does not help.  Also, anyone else taking Dipentum?  I can’t tolerate the 6MP drug.  Makes me very nauseated.

Response:

investigate lodine.  it is nsaid, but studies show it has less g.i. complications than vioxx.  lodine is generic and has been around since 1991 with no history of adverse effects to the cardio system.  it is rx. jeff

– Hide quoted text — Show quoted text – With each flare up, I am experiencing increasing joint pain and joint swelling.  It is painful to walk.  Weaning off the prednisone only increases the joint pain.  Does anyone else experience these problems. Any ideas on reducing the pain?  My GI suggested tylenol but it does not help.  Also, anyone else taking Dipentum?  I can’t tolerate the 6MP drug.  Makes me very nauseated.

Response:

Jeff, What do the IBD specialists have to say about using it for IBD’ers?  I’m curious because w/o Vioxx I am stuck w/o anything to take.  Personally, I’m willing to risk taking Vioxx after reading the data since the danger is more hype than danger to the general population. mgbio – Hide quoted text — Show quoted text – investigate lodine.  it is nsaid, but studies show it has less g.i. complications than vioxx.  lodine is generic and has been around since 1991 with no history of adverse effects to the cardio system.  it is rx. jeff With each flare up, I am experiencing increasing joint pain and joint swelling.  It is painful to walk.  Weaning off the prednisone only increases the joint pain.  Does anyone else experience these problems. Any ideas on reducing the pain?  My GI suggested tylenol but it does not help.  Also, anyone else taking Dipentum?  I can’t tolerate the 6MP drug.  Makes me very nauseated.

Response:

With each flare up, I am experiencing increasing joint pain and joint swelling.  It is painful to walk.  Weaning off the prednisone only increases the joint pain.  Does anyone else experience these problems. Any ideas on reducing the pain?  My GI suggested tylenol but it does not help.  Also, anyone else taking Dipentum?  I can’t tolerate the 6MP drug.  Makes me very nauseated.

Response:

Hi, I developed what is known as "enteropathic arthritis" (related to IBD) just over a year ago. My knees got all stiff and sore, and swelled up so I could barely walk. I was put on methotrexate for my UC at the same time as the arthritis developed, and felt the results in my knees before the methotrexate started helping my UC as well. If you can’t tolerate 6mp, you may still be able to tolerate methotrexate as it is different although still being an immunosuppressant. I saw a rheumatologist who put me on a short higher dose of pred (just a few days) and that really helped my knees. He was glad to see I was on the methotrexate as it is prescribed for arthritis too and knew it would help. I never took anything for the pain, just rested. Take care, Amy. – Hide quoted text — Show quoted text – With each flare up, I am experiencing increasing joint pain and joint swelling.  It is painful to walk.  Weaning off the prednisone only increases the joint pain.  Does anyone else experience these problems. Any ideas on reducing the pain?  My GI suggested tylenol but it does not help.  Also, anyone else taking Dipentum?  I can’t tolerate the 6MP drug.  Makes me very nauseated.

Response:

When I’m having a flair up my joints are very stiff, time released tylenol helps a lot. Brian

– Hide quoted text — Show quoted text – With each flare up, I am experiencing increasing joint pain and joint swelling.  It is painful to walk.  Weaning off the prednisone only increases the joint pain.  Does anyone else experience these problems. Any ideas on reducing the pain?  My GI suggested tylenol but it does not help.  Also, anyone else taking Dipentum?  I can’t tolerate the 6MP drug.  Makes me very nauseated.

Response:

HI MIKE I’M SUSAN-CROHNS FOR TEN YEARS-2 SURGERIES-STILL SICK.  I TOO FEEL 100. ALL MY JOINTS ARE STIFF AND I CAN HARDLY WALK.  I HAVE TAKEN ASACOL PREDNISONE, IMURAN, REMICADE, PENTASA, SULFA  DRUGS, AND LOTS OF LORTAB.  I STILL HURT AND I DON’T KNOW WHICH ONE OF THESE "MIRACLE DRUGS" CAUSED THIS.  ALL MY BEST! SUSAN

Response:

Hi Susan, You wouldn’t happen to be from Gadsden, Alabama would you?  I’m from North Alabama.  Gadsden is just down the way from here. ) Linda ~~~~~~

– Hide quoted text — Show quoted text – HI MIKE I’M SUSAN-CROHNS FOR TEN YEARS-2 SURGERIES-STILL SICK.  I TOO FEEL 100. ALL MY JOINTS ARE STIFF AND I CAN HARDLY WALK.  I HAVE TAKEN ASACOL PREDNISONE, IMURAN, REMICADE, PENTASA, SULFA  DRUGS, AND LOTS OF LORTAB.  I STILL HURT AND I DON’T KNOW WHICH ONE OF THESE "MIRACLE DRUGS" CAUSED THIS.  ALL MY BEST! SUSAN

Response:

Diag with crohns 10 years back and had similar symptoms of severe arthritic attacks that would make all movement impossilbe.  Started on regimine of heavy MSM and it did take three months but the symptoms are all but gone now.  Doctor denies it but the MSM also appears to have abated the crohn attack severity??? I suspected the joint pain was being caused by asacol but who knows?

Response:

I took imuran for a 18 months. I got stiffness in my ankles if I sat for more than 10 minutes or so.  There was no pain but I had to hobble around for a few minutes until my ankles loosened up after rising from a sitting position.  It is is possible that imuran is causing the joint problems, although or course there could be other causes.  My problem went away when I got off the imuran.

Response:

Kathi, I see the gastroenterologist reguarly.  Have had the same one for over 25 years.  I was diagnosed in 1973, although sick three years before that, have had 6 resections, total hysterectomy and massive gallstones resulting in having it removed.  This back pain is not confined to the small of my back as it was when my CD was active; this starts lower and shoots down one or both legs periodically.  I just finished a week’s worth of prednisone for it and it’s improved considerably.  I appreciate your advice though, thanks. Linda – who’s beginning to think alot of her aches & pains are from "old age"!!!  :o0 ~~~~~

– Hide quoted text — Show quoted text – "sierrasryder" Thanks for your post.  My pain starts in the upper buttocks, sending sharps down to the knee behind my thighs.  It seems to hurt most when I lift my leg to take a walking stride, or if I pivot on the leg that’s hurting.  Wow!! It’ll take your breath away!  I’d be real appreciative if you asked your doctor as I don’t have any appts any time soon.  (Yaaaaaayyy!!!) Inflammation of the colon can cause back pain.  You should see a gastroenterologist. Kathi

Response:

So if your sciatic pain goes below the knee, it could be ‘anything’, but if it stops above the knee, it might be the same as I have.

Mine was multiple sclerosis. Now the back pain is incredible.  (After years of being accused of being nuts.)  I have u.c. too.   :={ Kathi

Response:

Thanks for your post.  My pain starts in the upper buttocks, sending sharps down to the knee behind my thighs.  It seems to hurt most when I lift my leg to take a walking stride, or if I pivot on the leg that’s hurting.  Wow!! It’ll take your breath away!  I’d be real appreciative if you asked your doctor as I don’t have any appts any time soon.  (Yaaaaaayyy!!!)

Inflammation of the colon can cause back pain.  You should see a gastroenterologist. Kathi

Response:

Hi Linda, I’ll ask on my next app. in jan. And I’ll post here as soon as I have some kind of info for you. Take care & stay well Kind regards Kenneth G – Hide quoted text — Show quoted text – Hi Kenneth, Thanks for your post.  My pain starts in the upper buttocks, sending sharps down to the knee behind my thighs.  It seems to hurt most when I lift my leg to take a walking stride, or if I pivot on the leg that’s hurting.  Wow!! It’ll take your breath away!  I’d be real appreciative if you asked your doctor as I don’t have any appts any time soon.  (Yaaaaaayyy!!!) Linda

Response:

Hi Kenneth, Thanks for your post.  My pain starts in the upper buttocks, sending sharps down to the knee behind my thighs.  It seems to hurt most when I lift my leg to take a walking stride, or if I pivot on the leg that’s hurting.  Wow!! It’ll take your breath away!  I’d be real appreciative if you asked your doctor as I don’t have any appts any time soon.  (Yaaaaaayyy!!!) Linda ~~~~~

– Hide quoted text — Show quoted text – Hi Linda, All i know is, that if you have the ‘normal’ sciatic pain it goes from the buttock and extends below the knee, but if you have the Crohns version it will stop above the knee. So if your sciatic pain goes below the knee, it could be ‘anything’, but if it stops above the knee, it might be the same as I have. When it bothers me, it feels like a ’slow cramp’: it’s real sore, and then I have these flashes of pain going down trough my leg. When it’s bad it’s hard to sit, and just as hard to stand. Walking slowly around usually helps. Sorry, but thats all I know. I promise I will check with the docs on my next appointment on jan. 19th. Take care & stay well.. Kind regards Kenneth G Hi Kenneth, Do you have any information on what you called "Crohn’s Siatic Pain"?  I just finished a week of prednisone for terrible pain down both legs from my buns.  I fell down the stairs when I was a kid and many  years later, during some testing for Crohn’s, found out I had broken my tailbone and that it may be touching the nerves.  The last time I took a round of pred for this it worked (2 yrs ago).  This time, the right leg still hurts.  And it’s a real sharp pain when I walk on it and a bothersome ache when I’m just sitting. I’d like to mention this to my doctor. Thank you,   Linda

Response:

Mine started in the right ankle and traveled up to the hip joint over 2 days…Then my arms became involved elbows wrists, hands & fingers…Excruciating tendonitis type pain in the connecting tissue. Not to mention the hip joint pain !!  Then my groin muscles flared big tme and that put me in the hosp. They called it "acute migratory inflammatory arthritis"  For 3 weeks prior to this I suffered through stomach & bowel cramps like never before….diarrhea for the duration also…colonscopy results on the 27th…..prednisone for now. Keep the Faith… Ray – Hide quoted text — Show quoted text – Hi everyone, I am 22 years old and I have posted in here many times. I have a mix between UC and a spastic colon and maybe a little Crohns tossed in. I have had every IBD drug there is. I am currently taking Imuran and Levsinex. I have not had a blood test in over four months (not good). Is it possible that the Imuran is causing all of my joint pain? After a nice sleep all my joints hurt. My left knee hurts all the time. I feel like an old man. What is the cause of this? Anyone feel the same? Could I be toxic from the Imuran? -Michael- (Viperango1) -IBD 1994-

Response:

Hi Linda, All i know is, that if you have the ‘normal’ sciatic pain it goes from the buttock and extends below the knee, but if you have the Crohns version it will stop above the knee. So if your sciatic pain goes below the knee, it could be ‘anything’, but if it stops above the knee, it might be the same as I have. When it bothers me, it feels like a ’slow cramp’: it’s real sore, and then I have these flashes of pain going down trough my leg. When it’s bad it’s hard to sit, and just as hard to stand. Walking slowly around usually helps. Sorry, but thats all I know. I promise I will check with the docs on my next appointment on jan. 19th. Take care & stay well.. Kind regards Kenneth G – Hide quoted text — Show quoted text – Hi Kenneth, Do you have any information on what you called "Crohn’s Siatic Pain"?  I just finished a week of prednisone for terrible pain down both legs from my buns.  I fell down the stairs when I was a kid and many  years later, during some testing for Crohn’s, found out I had broken my tailbone and that it may be touching the nerves.  The last time I took a round of pred for this it worked (2 yrs ago).  This time, the right leg still hurts.  And it’s a real sharp pain when I walk on it and a bothersome ache when I’m just sitting. I’d like to mention this to my doctor. Thank you,   Linda

Response:

Hi Kenneth, Do you have any information on what you called "Crohn’s Siatic Pain"?  I just finished a week of prednisone for terrible pain down both legs from my buns.  I fell down the stairs when I was a kid and many  years later, during some testing for Crohn’s, found out I had broken my tailbone and that it may be touching the nerves.  The last time I took a round of pred for this it worked (2 yrs ago).  This time, the right leg still hurts.  And it’s a real sharp pain when I walk on it and a bothersome ache when I’m just sitting. I’d like to mention this to my doctor. Thank you,   Linda

– Hide quoted text — Show quoted text – Hi Michael, I have CD, and the connected atrhitis. I don’t know if you have the same, but my doctors explained to me, that not only do I get infections in my intestines, but I also get them in my joints. In my case, it’s my knees, hips, shoulders and wrists that are affected. When these infections are over, they leave a residue of little calcium-splinters in the joint. Then, when you use your joints, or especielly when you strain the joints, these calcium-splinters then cut and tear the tissue in the joints – giving me arthritis-like symptoms. There isn’t much to do about it. I’ve just started taking sulfasalazin for my joints, but it’s too soon to tell if there is an effect. The only other option is to exercise, so the muscles get strong enough to hold the joint in place, but I find it very difficult to even start exercising, as I am in pain for days/weeks after any kind of psysical labour. So if you are able to, start exercising, just be sure not to overdo it, and be sure to start VERY slowly. A part from this I have sciatic pains in both my legs. The pain goes from the buttock and stops just above the knee. This is supposed to be typical of a ‘Crohns’ sciatic pain, as the ‘normal’ type extends to below the knee. ( Ahh – the small blessings in life…) So in conclusion, I don’t know if it’s your medicine thats causing this, or if it’s ‘just’ another symptom of this f**** disease. Kind regards Kenneth G CD 99 Hi everyone, I am 22 years old and I have posted in here many times. I have a mix between UC and a spastic colon and maybe a little Crohns tossed in. I have had every IBD drug there is. I am currently taking Imuran and Levsinex. I have not had a blood test in over four months (not good). Is it possible that the Imuran is causing all of my joint pain? After a nice sleep all my joints hurt. My left knee hurts all the time. I feel like an old man. What is the cause of this? Anyone feel the same? Could I be toxic from the Imuran? -Michael- (Viperango1) -IBD 1994-

Response:

– Hide quoted text — Show quoted text – Michael, I would get your blood tested IMMEDIATELY!  I’m on 6MP (similar to immuran) and I have monthly blood tests at this point. As for the joint pain, I too have begun to experience this.  IBD patients are susceptible to arthritis, which I too am developing.  My GI gave me a prescription for Viox, one of the new CoxII inhibitors and one of the few NASIDS GI’s agree is "safe" for IBD patients to take. Good luck and talk to your GI ASAP!  mgbio CD Class of ‘99 http://www.skyweb.net./~mgbio/cd/cd.html

Be very careful of Vioxx.  It reduces your resistance of urinary tract infections.  If you are prone to these infections the probability is almost 100%.  Good drug but the side effects can be worse – been there done that – sighhhhhhhhhhhh. Ladyscotia

Response:

Hi Michael, I have CD, and the connected atrhitis. I don’t know if you have the same, but my doctors explained to me, that not only do I get infections in my intestines, but I also get them in my joints. In my case, it’s my knees, hips, shoulders and wrists that are affected. When these infections are over, they leave a residue of little calcium-splinters in the joint. Then, when you use your joints, or especielly when you strain the joints, these calcium-splinters then cut and tear the tissue in the joints – giving me arthritis-like symptoms. There isn’t much to do about it. I’ve just started taking sulfasalazin for my joints, but it’s too soon to tell if there is an effect. The only other option is to exercise, so the muscles get strong enough to hold the joint in place, but I find it very difficult to even start exercising, as I am in pain for days/weeks after any kind of psysical labour. So if you are able to, start exercising, just be sure not to overdo it, and be sure to start VERY slowly. A part from this I have sciatic pains in both my legs. The pain goes from the buttock and stops just above the knee. This is supposed to be typical of a ‘Crohns’ sciatic pain, as the ‘normal’ type extends to below the knee. ( Ahh – the small blessings in life…) So in conclusion, I don’t know if it’s your medicine thats causing this, or if it’s ‘just’ another symptom of this f**** disease. Kind regards Kenneth G CD 99 – Hide quoted text — Show quoted text – Hi everyone, I am 22 years old and I have posted in here many times. I have a mix between UC and a spastic colon and maybe a little Crohns tossed in. I have had every IBD drug there is. I am currently taking Imuran and Levsinex. I have not had a blood test in over four months (not good). Is it possible that the Imuran is causing all of my joint pain? After a nice sleep all my joints hurt. My left knee hurts all the time. I feel like an old man. What is the cause of this? Anyone feel the same? Could I be toxic from the Imuran? -Michael- (Viperango1) -IBD 1994-

Response:

Hi everyone, I am 22 years old and I have posted in here many times. I have a mix between UC and a spastic colon and maybe a little Crohns tossed in. I have had every IBD drug there is. I am currently taking Imuran and Levsinex. I have not had a blood test in over four months (not good). Is it possible that the Imuran is causing all of my joint pain? After a nice sleep all my joints hurt. My left knee hurts all the time. I feel like an old man. What is the cause of this? Anyone feel the same? Could I be toxic from the Imuran? -Michael- (Viperango1) -IBD 1994-

Response:

Michael, I would get your blood tested IMMEDIATELY!  I’m on 6MP (similar to immuran) and I have monthly blood tests at this point.   As for the joint pain, I too have begun to experience this.  IBD patients are susceptible to arthritis, which I too am developing.  My GI gave me a prescription for Viox, one of the new CoxII inhibitors and one of the few NASIDS GI’s agree is "safe" for IBD patients to take. Good luck and talk to your GI ASAP!  mgbio CD Class of ‘99 http://www.skyweb.net./~mgbio/cd/cd.html – Hide quoted text — Show quoted text – Hi everyone, I am 22 years old and I have posted in here many times. I have a mix between UC and a spastic colon and maybe a little Crohns tossed in. I have had every IBD drug there is. I am currently taking Imuran and Levsinex. I have not had a blood test in over four months (not good). Is it possible that the Imuran is causing all of my joint pain? After a nice sleep all my joints hurt. My left knee hurts all the time. I feel like an old man. What is the cause of this? Anyone feel the same? Could I be toxic from the Imuran? -Michael- (Viperango1) -IBD 1994-

Response:

Good luck and better health to you and your computer. <BG            Char – Hide quoted text — Show quoted text – Hi,   I have a lot of nagging joint pain, and I find Devil’s Claw works great. You take it for 20 weeks or so, then scale backwards to 0, then repeat again. I’m going to try a course of Knox Gelatin powder (one pouch daily). I’ve heard that it restores gelatonous quality to bones. It’s worth a shot. During a really bad session, especially when it’s damp, I have to return to a 3-4 day course of the drugs used to manage the cerebral palsy (Dantrium, a skeletal muscle relaxant, Tylenol #3 and Voltaren – anti-inflammatory). I don’t like taking this stuff on a regular basis because it makes me sort of stupified for walking. When I feel a fibromyalgia flare coming on, my heart goes way out of whack. The Calms Forte helps with that a lot.   You guys haven’t heard from me in a while. My computer has been crashing all over the place. When it’s up and running, which is sporadic, I press on with my scooter campaign. I’m almost finished! And I cannot thank you all enough for believing in me and what I am doing to help myself. Of late, I’ve been doing battle with a chest cold that may be working its way into pneumonia. May have to go on yet another course of antibiotics. I’m not amused.   Anyway, you all have a great day. Cheers! Carla http://www.brunnet.net/terrier – I added a new link called Heavenly Dogs – the story of my very, very old Westhighland White terrier (RIP)

Response:

When it’s up and running, which is sporadic, I press on with my scooter campaign. I’m almost finished!

Hi Carla,     Great!  Be sure and let us know when you’re finished and tooling around in that scooter! Best wishes, Denise

Response:

Hi Denise,   You bet! I’ll let you know when I begin terrorizing, and terrierizing the neighborhood. I may have hubby take a picture of me on my first outing with it. Don’t anyone laugh! Mr. Alex (the blonde Cairn) is in decline at present, and I’m quite worried about him. He’s hypothyroid and has inhalant dermatitis and is on Benadryl. I didn’t want to go the steroid route, as my first Cairn succumbed to renal failure as a consequence of its use. We’re taking him to the vet for blood tests. She also wants a pee sample. That’s gonna be a trick. Me on my hands and knees with a little container trying to get a sample.   As to the scooter, it is a new design, by the father of the chap who is my contact with the company from where I’m getting it. I am told that it is designed for rough terrain. There are lots of hills where I live, and given we also have a lot of truck traffic (logging), I may use the service road to a woodlot that goes for miles past our house. It will be much safer for the dogs if I take them on an outing. I’m very excited at the prospect of having increased mobility in terms of getting out and about more easily.   Take care all! Cheers! Carla http://www.brunnet.net/terrier – check out http://www.brunnet.net/terrier/heavenly.htm for pics of my first and only Westhighland Terrier (RIP) A breeder in PA has another one for me whenever I’m ready; she retires dogs when they are 3-4, or a bit older. This will depend on the outcome for Mr. Alex. When it’s up and running, which is sporadic, I press on with my scooter campaign. I’m almost finished! Hi Carla,     Great!  Be sure and let us know when you’re finished and tooling around in that scooter! Best wishes, Denise

Response:

Hi,   I have a lot of nagging joint pain, and I find Devil’s Claw works great. You take it for 20 weeks or so, then scale backwards to 0, then repeat again. I’m going to try a course of Knox Gelatin powder (one pouch daily). I’ve heard that it restores gelatonous quality to bones. It’s worth a shot. During a really bad session, especially when it’s damp, I have to return to a 3-4 day course of the drugs used to manage the cerebral palsy (Dantrium, a skeletal muscle relaxant, Tylenol #3 and Voltaren – anti-inflammatory). I don’t like taking this stuff on a regular basis because it makes me sort of stupified for walking. When I feel a fibromyalgia flare coming on, my heart goes way out of whack. The Calms Forte helps with that a lot.   You guys haven’t heard from me in a while. My computer has been crashing all over the place. When it’s up and running, which is sporadic, I press on with my scooter campaign. I’m almost finished! And I cannot thank you all enough for believing in me and what I am doing to help myself. Of late, I’ve been doing battle with a chest cold that may be working its way into pneumonia. May have to go on yet another course of antibiotics. I’m not amused.   Anyway, you all have a great day. Cheers! Carla http://www.brunnet.net/terrier – I added a new link called Heavenly Dogs – the story of my very, very old Westhighland White terrier (RIP)

Response:

what causes pain or discomfort in all your joints?

During the inflammatory process, the following takes place: 1.  When the inflammation starts, signal agents draw granulocytes from the bloodstream to the synovial membrane ( the lining of the inner surface of the joint capsule). 2.  The granulocytes introduce the "oxidative burst reaction". In this oxygen consuming process, the granulocytes convert oxygen into ‘free radicals’, which contribute to a destruction of the joint in rheumatoid arthritis. 3.  The activated granulocytes create prostoglandins and leukotrienes, which enhance the inflammatory process and pain. NSAIDS can relieve the short term problems brought on by the prostoglandins, but have little to no effect on the leukotrienes.  The new dual inhibitors work on both of the problems.  Pharmaceutical type dual inhibitors have many side effects.  There are natural alternatives with no side effects. CLE

Response:

what causes pain or discomfort in all your joints?

Response:

Do you mean all your joints at one time, or one particular joint at a given time? – Hide quoted text — Show quoted text – what causes pain or discomfort in all your joints?

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Good luck and better health to you and your computer. <BG            Char – Hide quoted text — Show quoted text – Hi,   I have a lot of nagging joint pain, and I find Devil’s Claw works great. You take it for 20 weeks or so, then scale backwards to 0, then repeat again. I’m going to try a course of Knox Gelatin powder (one pouch daily). I’ve heard that it restores gelatonous quality to bones. It’s worth a shot. During a really bad session, especially when it’s damp, I have to return to a 3-4 day course of the drugs used to manage the cerebral palsy (Dantrium, a skeletal muscle relaxant, Tylenol #3 and Voltaren – anti-inflammatory). I don’t like taking this stuff on a regular basis because it makes me sort of stupified for walking. When I feel a fibromyalgia flare coming on, my heart goes way out of whack. The Calms Forte helps with that a lot.   You guys haven’t heard from me in a while. My computer has been crashing all over the place. When it’s up and running, which is sporadic, I press on with my scooter campaign. I’m almost finished! And I cannot thank you all enough for believing in me and what I am doing to help myself. Of late, I’ve been doing battle with a chest cold that may be working its way into pneumonia. May have to go on yet another course of antibiotics. I’m not amused.   Anyway, you all have a great day. Cheers! Carla http://www.brunnet.net/terrier – I added a new link called Heavenly Dogs – the story of my very, very old Westhighland White terrier (RIP)

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When it’s up and running, which is sporadic, I press on with my scooter campaign. I’m almost finished!

Hi Carla,     Great!  Be sure and let us know when you’re finished and tooling around in that scooter! Best wishes, Denise

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Hi Denise,   You bet! I’ll let you know when I begin terrorizing, and terrierizing the neighborhood. I may have hubby take a picture of me on my first outing with it. Don’t anyone laugh! Mr. Alex (the blonde Cairn) is in decline at present, and I’m quite worried about him. He’s hypothyroid and has inhalant dermatitis and is on Benadryl. I didn’t want to go the steroid route, as my first Cairn succumbed to renal failure as a consequence of its use. We’re taking him to the vet for blood tests. She also wants a pee sample. That’s gonna be a trick. Me on my hands and knees with a little container trying to get a sample.   As to the scooter, it is a new design, by the father of the chap who is my contact with the company from where I’m getting it. I am told that it is designed for rough terrain. There are lots of hills where I live, and given we also have a lot of truck traffic (logging), I may use the service road to a woodlot that goes for miles past our house. It will be much safer for the dogs if I take them on an outing. I’m very excited at the prospect of having increased mobility in terms of getting out and about more easily.   Take care all! Cheers! Carla http://www.brunnet.net/terrier – check out http://www.brunnet.net/terrier/heavenly.htm for pics of my first and only Westhighland Terrier (RIP) A breeder in PA has another one for me whenever I’m ready; she retires dogs when they are 3-4, or a bit older. This will depend on the outcome for Mr. Alex. When it’s up and running, which is sporadic, I press on with my scooter campaign. I’m almost finished! Hi Carla,     Great!  Be sure and let us know when you’re finished and tooling around in that scooter! Best wishes, Denise

Response:

Hi,   I have a lot of nagging joint pain, and I find Devil’s Claw works great. You take it for 20 weeks or so, then scale backwards to 0, then repeat again. I’m going to try a course of Knox Gelatin powder (one pouch daily). I’ve heard that it restores gelatonous quality to bones. It’s worth a shot. During a really bad session, especially when it’s damp, I have to return to a 3-4 day course of the drugs used to manage the cerebral palsy (Dantrium, a skeletal muscle relaxant, Tylenol #3 and Voltaren – anti-inflammatory). I don’t like taking this stuff on a regular basis because it makes me sort of stupified for walking. When I feel a fibromyalgia flare coming on, my heart goes way out of whack. The Calms Forte helps with that a lot.   You guys haven’t heard from me in a while. My computer has been crashing all over the place. When it’s up and running, which is sporadic, I press on with my scooter campaign. I’m almost finished! And I cannot thank you all enough for believing in me and what I am doing to help myself. Of late, I’ve been doing battle with a chest cold that may be working its way into pneumonia. May have to go on yet another course of antibiotics. I’m not amused.   Anyway, you all have a great day. Cheers! Carla http://www.brunnet.net/terrier – I added a new link called Heavenly Dogs – the story of my very, very old Westhighland White terrier (RIP)

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what causes pain or discomfort in all your joints?

During the inflammatory process, the following takes place: 1.  When the inflammation starts, signal agents draw granulocytes from the bloodstream to the synovial membrane ( the lining of the inner surface of the joint capsule). 2.  The granulocytes introduce the "oxidative burst reaction". In this oxygen consuming process, the granulocytes convert oxygen into ‘free radicals’, which contribute to a destruction of the joint in rheumatoid arthritis. 3.  The activated granulocytes create prostoglandins and leukotrienes, which enhance the inflammatory process and pain. NSAIDS can relieve the short term problems brought on by the prostoglandins, but have little to no effect on the leukotrienes.  The new dual inhibitors work on both of the problems.  Pharmaceutical type dual inhibitors have many side effects.  There are natural alternatives with no side effects. CLE

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what causes pain or discomfort in all your joints?

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Do you mean all your joints at one time, or one particular joint at a given time? – Hide quoted text — Show quoted text – what causes pain or discomfort in all your joints?

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Question:

I guess its just my ethnicity.  I was told it is not roscea, but a cousin and I could develop roscea later.  I am too vain for this.  I miss having clear skin.  I am very fair.  I am not on prednisone. Bummer. Though if it was related to the Asacol, I can’t go off it. Thanks for your posts.

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Jane, I don’t know what crohns-colitis is, but the same thing happens to me as in your related question below.  Any stress, good or bad, embarrassment, exercise, and I get the same red face, red blotches from about my chest area and up including my upper arms, shoulders, neck, throat.  This has been happening for about 10 years.  I am always worried/obsessed about it happening which causes stress, which makes this happen.  Viciuos circle.  I don’t know what to do.  I take Klonopin to help relax me a bit.  Am I in the right group or is there another group which deals with this?  I am a red head with fair skin. Please help!!! – Hide quoted text — Show quoted text – Hi,   Fellow Pole here–I’m more Polish than anything else, but I’m only 1/4 Polish!  I come from a long line of lovers I guess.  I have had the burning sensation and reddening of skin, too.  I don’t think it is related to Asacol however, because it started happening before I tried Asacol.  The dermatologist has labeled it rosacea, although I have my doubts.  I have a few topical things to put on it which seems to help.  Let me ask you a related question.  My face gets red and I get huge red blotches all over my neck, throat and chest area whenever I even get SLIGHTLY stressed.  It gets embarrassing sometimes!  Also, when I exercise in the least I get extremely red.  I feel fine, but people that see me get extremely concerned!  Has this happened to you?  I never really related a skin thing with Crohn’s but more and more I’m thinking a lot of this is interrelated.    Jane I have had trouble with a burning sensation in my face accompanied by facial acne over the past 2 years.  I saw a dermatologist and he said it was related to my ethnicity and common to first appear during pregnancy. I am wondering if maybe it is related to Asacol.  I have been on Asacol about five years maybe.  Any one else taking this med. with similiar complaints or is this just a result of Polish ancestry.

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I’ve been on prednisone on and off over the last 30 years, but have been off for 10 years (since I had my resection done).  I don’t think it would have lasting effects; do you?  Nothing would surprise me though!    Jane – Hide quoted text — Show quoted text – Sounds like Rosacea, which fair-skinned people can get.  Have you ever been on prednisone?  It’s a common side effect of prednisone called steroid rosacea (BTW, I’m not sure if I’m spelling rosacea correctly). I have had trouble with a burning sensation in my face accompanied by facial acne over the past 2 years.  I saw a dermatologist and he said it was related to my ethnicity and common to first appear during pregnancy. I am wondering if maybe it is related to Asacol.  I have been on Asacol about five years maybe.  Any one else taking this med. with similiar complaints or is this just a result of Polish ancestry.

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Oh, one more thing–I’m really not that fair.  I tan easily and don’t have that porcelein skin I associate with being fair.  My skin in super sensitive, though.  If I touch it, it will turn red.  JD – Hide quoted text — Show quoted text – I’ve been on prednisone on and off over the last 30 years, but have been off for 10 years (since I had my resection done).  I don’t think it would have lasting effects; do you?  Nothing would surprise me though!    Jane Sounds like Rosacea, which fair-skinned people can get.  Have you ever been on prednisone?  It’s a common side effect of prednisone called steroid rosacea (BTW, I’m not sure if I’m spelling rosacea correctly). I have had trouble with a burning sensation in my face accompanied by facial acne over the past 2 years.  I saw a dermatologist and he said it was related to my ethnicity and common to first appear during pregnancy. I am wondering if maybe it is related to Asacol.  I have been on Asacol about five years maybe.  Any one else taking this med. with similiar complaints or is this just a result of Polish ancestry.

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Hi..I know Prednisone can cause acne..do you happen to be on it.. Just curious! Lisa

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Sounds like Rosacea, which fair-skinned people can get.  Have you ever been on prednisone?  It’s a common side effect of prednisone called steroid rosacea (BTW, I’m not sure if I’m spelling rosacea correctly). – Hide quoted text — Show quoted text – I have had trouble with a burning sensation in my face accompanied by facial acne over the past 2 years.  I saw a dermatologist and he said it was related to my ethnicity and common to first appear during pregnancy. I am wondering if maybe it is related to Asacol.  I have been on Asacol about five years maybe.  Any one else taking this med. with similiar complaints or is this just a result of Polish ancestry.

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Hi,   Fellow Pole here–I’m more Polish than anything else, but I’m only 1/4 Polish!  I come from a long line of lovers I guess.  I have had the burning sensation and reddening of skin, too.  I don’t think it is related to Asacol however, because it started happening before I tried Asacol.  The dermatologist has labeled it rosacea, although I have my doubts.  I have a few topical things to put on it which seems to help.  Let me ask you a related question.  My face gets red and I get huge red blotches all over my neck, throat and chest area whenever I even get SLIGHTLY stressed.  It gets embarrassing sometimes!  Also, when I exercise in the least I get extremely red.  I feel fine, but people that see me get extremely concerned!  Has this happened to you?  I never really related a skin thing with Crohn’s but more and more I’m thinking a lot of this is interrelated.    Jane – Hide quoted text — Show quoted text – I have had trouble with a burning sensation in my face accompanied by facial acne over the past 2 years.  I saw a dermatologist and he said it was related to my ethnicity and common to first appear during pregnancy. I am wondering if maybe it is related to Asacol.  I have been on Asacol about five years maybe.  Any one else taking this med. with similiar complaints or is this just a result of Polish ancestry.

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I have had trouble with a burning sensation in my face accompanied by facial acne over the past 2 years.  I saw a dermatologist and he said it was related to my ethnicity and common to first appear during pregnancy. I am wondering if maybe it is related to Asacol.  I have been on Asacol about five years maybe.  Any one else taking this med. with similiar complaints or is this just a result of Polish ancestry.

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Question:

160mg of prednisone is a huge amount. I believe she should at least seek a second opinion. It can do more arm than good, especially if it is taken on a long term basis. Noella – Hide quoted text — Show quoted text – her doctor is a fool short and simple no one should be on prednisone esp that dose (which is double the usual maximum amount) for more than a coupleor  3 months you need to get her to a university hosptital fast You can’t know all that unless you are a doctor yourself.  And even THEY can’t agree on a specific course of treatment.  It is very unfair of you to panic someone like that.  Yelling that they need to get her to a university hospital fast is a very unjust thing to do to a person.  Just my opinion.   Margie CD Class of 67 UC Class of 96

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I aggree. When i first went on 80mg, I had chest palpitations, passing out, etc. 40mg/day usually clears things up for me rather quickly. — Save big at www.electronics-forless.com

her doctor is a fool short and simple no one should be on prednisone esp that dose (which is double the usual maximum amount) for more than a coupleor  3 months you need to get her to a university hosptital fast

Posted Via Uncensored-News.Com – Still Only $9.95 – http://www.uncensored-news.com    With Seven Servers In California And Texas – The Worlds Uncensored News Source

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her doctor is a fool short and simple no one should be on prednisone esp that dose (which is double the usual maximum amount) for more than a coupleor  3 months you need to get her to a university hosptital fast

You can’t know all that unless you are a doctor yourself.  And even THEY can’t agree on a specific course of treatment.  It is very unfair of you to panic someone like that.  Yelling that they need to get her to a university hospital fast is a very unjust thing to do to a person.  Just my opinion.   Margie CD Class of 67 UC Class of 96

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her doctor is a fool short and simple no one should be on prednisone esp that dose (which is double the usual maximum amount) for more than a coupleor  3 months you need to get her to a university hosptital fast

Response:

Jason Yes, there is hope. When I was first diagnosed, in addition to the sulfasalazine (which I was on at the time) I needed to do 3-4 enemas/week (Rowasa or Cortenemas). As time passed, and I was switched to Pentasa, (and I realized I had a problem with milk), my UC has settled down somewhat. And at the present time I only need the enemas 1-2 times/month. (By the way, the Asacol your wife is on, is a similar medication to the Pentasa that I am on. It delivers an anti-inflammatory drug ‘mesalamine’ to the colon without the use of sulfa.) Yes, there is hope, Jason. One of the books I got from the CCFA bookstore is, ‘The New People: Not Patients’ by Penny Steiner-Grossman, Peter Banks, and Daniel Present. It clearly explains what ulcerative colitis is, many of the medications used to treat it, etc. And it does so in non-medicalize language which the layman can understand. I was so impressed by it that I bought two copies for each of our local libraries. You might find it in your local library. I don’t know about you, but to this day I feel more comfortable sitting down and reading information in a book. The fact is that there is a cure for ulcerative colitis. (Yes it is an extreme cure, and one that I would only consider as a LAST RESORT.) Surgical removal of the colon is a cure for ulcerative colitis. There is also a lot of research that is going on to find a cure for crohn’s disease and ulcerative colitis. In the past year, the CCFA alone has sponsered $8,000,000 in various research programs. Hang in there, Jason. There is hope. Howard in Alaska UC since 1995 Peace and Harmony – Hide quoted text — Show quoted text – Thank You All,     Your info. has been great for me.  I think my wife is a little too (computer un-friendly) or shy to post anything.  I am very nervous to say anything to anybody but here it feels fine.  She (my wife) was taking 80 mg of predizone twice a day for almost a year.  Her dr. just put her on (excuse my spelling) asocole and imuran.  She has been sick since she has been taking them both.  The Dr. pumped 2 litres of fluid into her this afternoon and wants her to stop taking the imuran and double up on the asocole.  Like I said earlier she has had this for over a year now and I want some answers. I am just a guy that has found answers for everything else and wandering if the Mayos Clinic isn’t the next stop.  Just wandering how long you all have had UC and if there is any HOPE!!  Thanks again. Jason (concerned HUSBAND) Hello all;     Just a concerned husband with a wife with Ulcerative Colitis.  Just wandering if anyone has some (or any) information for a newly wed struggling with an ill wife. Thanks —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 80,000 Newsgroups – 16 Different Servers! =—– —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 80,000 Newsgroups – 16 Different Servers! =—–

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LOL!!!!!! Hugs,  Linda – Hide quoted text — Show quoted text – I avoided the stress of mom planning the wedding and semi eloped…. at McDonald’s…..  "you want fries with that?" was a whole lot better than "what color do you want this…  no that is the wrong color …. no that is the wrong color ….  no that is the wrong color …. ok that is the color I would chose…." Mike x-no-archive: yes Yeah I knew what she had but was kind of dumb to how severe it is. Wedding plans weren’t too bad.  Our moms took care of most of that. Yeah, well getting married can be a *major* stress, no matter who’s doing the party-planning part. As far as her diet goes, we have taken all the spicy things away No salads and so on and so on. OK, but what I’m talking about is a much more fundamental change than that. I am going to check out that web site you sent. While you’re at it, please read about the book on Amazon: http://www.amazon.com/exec/obidos/tg/stores/detail/-/books/0969276818…

mer-reviews/qid=994598600/sr=1-1/ref=sc_b_1/103-9522594-0618243 – Hide quoted text — Show quoted text – — MG Please Visit www.ibdcure.com and sign the petition for an IBD postage stamp. All opinions expressed are mine unless otherwise noted. Copyright