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sinusitis and loss of smell
Question:
Hello! I have had two sinus surgeries, the first was a deviated septum, the second (last May) was ethmoidectomy. I just had a CAT scan and everything is infected again and we can’t seem to beat it with antibiotics. My major symptom is my loss of the sense of smell. Also, now I have tons of post nasal drip which gets in my lungs and causes asthma. My doctor is suggesting more surgery. I’ve had lots of steroids which bring back the sense of smell but as soon as they work, I get another infection which knocks it out again. And on and on… Any suggestions? I had all kinds of allergy tests and nothing. I just had the Rast tests done and tests for low functioning ?? (can’t think of it right now) and nothing! What now? I irrigate 2-3 times a day. C
Response:
Persons with persistant sinus/nose/ear/throat problems which do not respond to normal treatments might consider an autoimmune disease. There is an autoimmune disease, Wegener’s Granulomatosis (WG) which is rather rare, but very serious. It is not contagious, and is not hereditary so far as is known. Because the symptoms are so similar to various other common diseases, it is often not correctly diagnosed. Early diagnosis is essential to prevent serious organ damage. WG is a systemic disease, a formof vasculitis which affects mostly smaller blood vessels, down to capillary size, thus leading to cell death. About 1 in 40,000 develop the disease. It can strike at any age, and equally among both sexes. It affects the various organs with the approximate frequency listed with most frequent first: sinus, nose, ear, lung, joints, kidney, trachea, eye, skin, peripheral nerves, central nervous system. The first sign is usually an inflammation of one or more of the organs mentioned above, and which does not respond to normal treatment methods. Other symptoms can include loss of appetite, weight loss, fever, and fatigue. There is a blood test, the cANCA test, which is about 95% accurate in diagnosing the disease. Final diagnosis is usually based on a biopsy. Treatment is usually by a rheumatologist typically using cytoxan and prednisone or similar drugs over a period of about one year. 95% of patients achieve remission. There is an excellent support group which puts out a bi-monthly newsletter for an annual due of $10. (Donations gratefully received). Wegener’s Granulomatosis Support Group P. O. Box 28660 Kansas City, Missouri 64188-8660 1-800-277-9474 1-816-848-4444 (fax/phone) Their web page at http://www.wgsg.org has lots of useful information and links. There is an e-mail group (usenet listserve group) at wegen…@weareb.org Please e-mail the group if you have questions or concerns about this disease. P.S. I’m not a physician. What I’ve written above has been derived from experience and different publications. I can’t be held responsible for the accuracy of said information.
Response:
I might know of some thing that would help it’s worth a try right E-Mail me at(MomW7k…@aol.com) I’ll send you info. Sincerely Deanna
Response:
cr…@aol.com (CRAHN) wrote:
Hello! I have had two sinus surgeries, the first was a deviated septum, the second (last May) was ethmoidectomy. I just had a CAT scan and everything is infected again and we can’t seem to beat it with antibiotics. My major symptom is my loss of the sense of smell. Also, now I have tons of post nasal drip which gets in my lungs and causes asthma. My doctor is suggesting more surgery. I’ve had lots of steroids which bring back the sense of smell but as soon as they work, I get another infection which knocks it out again. And on and on… Any suggestions? I had all kinds of allergy tests and nothing. I just had the Rast tests done and tests for low functioning ?? (can’t think of it right now) and nothing! What now? I irrigate 2-3 times a day. C
— You need to see a doctor who specializes in treatment of difficult sinusitis patients. Have you had immune tests done? If you haven’t visited my website, please do so. Wellington S. Tichenor, M. D. 642 Park Avenue New York, New York 212 517 6611 Visit our website at: http://www.sinuses.com Sinusitis: A Treatment Plan that Works for Asthma and Allergy too Any information read here should not be viewed as medical advice, as individual medical problems must be addressed by your physician. If you are looking for a physician and cannot get to New York City, please see the FAQ page.
Response:
MomW7kids wrote:
I might know of some thing that would help it’s worth a try right E-Mail me at(MomW7k…@aol.com) I’ll send you info. Sincerely Deanna
As this seems to be your standard answer for many of the ??’s posted, why don’t you post your information , including cost and estimated delivery time. Those on the group who have tried everything can post their reactions to your product, those who like to do the research can post their findings, and the rest of us can weigh all the info and make up our minds if this is the next thing to try. In my mind , this would save a lot of time, I wouldn’t feel like putting a ’spam block’ filter on your posts, and unless you are trying to push complete crap, you might get an order or two. Deb — ****** Deb’s Endeavors d…@mtjeff.com or de…@teleport.com or d…@spoonman.com If *I* ran the world, we would certainly face a different set of challenges.
Response:
In article <3516252D.D19EF…@teleport.com
,
Deb Skinner <de…@teleport.com
wrote:
– Hide quoted text — Show quoted text -
MomW7kids wrote: I might know of some thing that would help it’s worth a try right E-Mail me at(MomW7k…@aol.com) I’ll send you info. Sincerely Deanna As this seems to be your standard answer for many of the ??’s posted, why don’t you post your information , including cost and estimated delivery time. Those on the group who have tried everything can post their reactions to your product, those who like to do the research can post their findings, and the rest of us can weigh all the info and make up our minds if this is the next thing to try. In my mind , this would save a lot of time, I wouldn’t feel like putting a ’spam block’ filter on your posts, and unless you are trying to push complete crap, you might get an order or two. Deb — ****** Deb’s Endeavors d…@mtjeff.com or de…@teleport.com or d…@spoonman.com If *I* ran
—–== Posted via Deja News, The Leader in Internet Discussion ==—– http://www.dejanews.com/ Now offering spam-free web-based newsreading
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