Question:

Haven’t been able to start the enema’s yet. I have tried 10 different chemists and been told by all that they can’t get it as there is a problem with the manufacturer. Went ack to my docs and he increased my pentasa until I can get the enemas!

– Hide quoted text — Show quoted text – Dear Yvie, It certainly sounds like you have had a hard time of it, and are doing everything you can do receive treatment. I suppose I am wondering why the doctors are telling you to come back when the inflammation is down, but are not actually treating you for severe inflammation – Pentasa may not be enough in an acute flare. The enemas should definitely help – I saw significant improvement in symptoms after a week on those. Take care, Amy. Believe it or not but over the past two years I have done nothing else but ring doctors and try to push things along. On one of the more severe days I ended up in casualty. I had been vommiting all night and was in agony. The doctor in the casualty dept sent me home with drugs for a kidney infection. They just really weren’t bothered! I am under a consultant now but I haven’t actually seen him yet. my first appointment is on the 28th Oct. I tried to hurry it as I actually got this appointment a mont ago but was told that there was no point as they needed the swelling to go down before they could do another colonoscopy. Until they do that they can’t decide on a course of action. Went back to my GP this morning as I felt really awful all weekend. I was passing blood and the pain in my abdomen had a got a lot worse. He prescribed prednisilone enema’s. 20mg twice daily for the next 10 days. then I have to go back again. I have registered with the NACC. I am just waiting for the info pack to arrive.

Response:

Dear Yvie, It certainly sounds like you have had a hard time of it, and are doing everything you can do receive treatment. I suppose I am wondering why the doctors are telling you to come back when the inflammation is down, but are not actually treating you for severe inflammation – Pentasa may not be enough in an acute flare. The enemas should definitely help – I saw significant improvement in symptoms after a week on those. Take care, Amy. – Hide quoted text — Show quoted text – Believe it or not but over the past two years I have done nothing else but ring doctors and try to push things along. On one of tag heuer meridiist gold replica the more severe days I ended up in casualty. I had been vommiting all night and was in agony. The doctor in the casualty dept sent me home with drugs for a kidney infection. They just really weren’t bothered! I am under a consultant now but I haven’t actually seen him yet. my first appointment is on the 28th Oct. I tried to hurry it as I actually got this appointment a mont ago but was told that there was no point as they needed the swelling to go down before they could do another colonoscopy. Until they do that they can’t decide on a course of action. Went back to my GP this morning as I felt really awful all weekend. I was passing blood and the pain in my abdomen had a got a lot worse. He prescribed prednisilone enema’s. 20mg twice daily for the next 10 days. then I have to go back again. I have registered with the NACC. I am just waiting for the info pack to arrive.

Response:

Hi Yvonne,     Here is some advice from a sideline quaterback (my daughter has UC)…..there are several things you can do to help you take control over the treatment of this illness.         1. Read EVERYTHING you can….and I mean everything!         2. Document EVERYTHING…eating habits/emotional state/meds/routines, symptoms etc…this could be invaluable info when trying to track a trend.  For instance, we found that coffee and chocolate can easily cause problems by charting food intake with symptoms.  A properly detailed diary could shed some light on things to avoid.         3. Look into alternate methods of treatment to augment your healing process         4. Find a doctor who suits you.         5. Use this board extensively for information and strenght. Hope this helps… Joe – Hide quoted text — Show quoted text – Hi there everyone! After two years of trips to the docs and hospital I have recently (one month ago) been diganosed with CD.

Response:

Yvonne, l am amazed at your experience. I was living in South London when l first showed signs of IBD. Within 24 hours a consultant at St. Georges hospital in Tooting was examining me with a sigmoidiscope. With a smile on her face, the consultant told me, ‘yes, you have Ulcerative Colitis’. After reading about other IBD’ers experiences , l can see l was very fortunate to be diagnosed so quickly. Navid

– Hide quoted text — Show quoted text – Believe it or not but over the past two years I have done nothing else but ring doctors and try to push things along. On one of the more severe days I ended up in casualty. I had been vommiting all night and was in agony. The doctor in the casualty dept sent me home with drugs for a kidney infection. They just really weren’t bothered! I am under a consultant now but I haven’t actually seen him yet. my first appointment is on the 28th Oct. I tried to hurry it as I actually got this appointment a mont ago but was told that there was no point as they needed the swelling to go down before they could do another colonoscopy. Until they do that they can’t decide on a course of action. Went back to my GP this morning as I felt really awful all weekend. I was passing blood and the pain in my abdomen had a got a lot worse. He prescribed prednisilone enema’s. 20mg twice daily for the next 10 days. then I have to go back again. I have registered with the NACC. I am just waiting for the info pack to arrive. Hi Yvie, Wow, I am shocked that the doctors aren’t doing more for you! I too had a similar experience with my first colonoscopy – they could only go 30cms in before stopping due to the severity of inflammation. The difference is, I had already been admitted to hospital and given IV steroids. Now steroids should be avoided whenever possible, but sometimes they are necessary. Are you under the care of a consultant? I am in Australia, we have a similar health system (free/low cost healthcare), but I think I am lucky in that I have had more attentive doctors. Sometimes you have to fight to Document get the care you need – phone up, get your GP to get you an appointment quicker, etc. Often when I have been told "come back in 4 weeks", I’ll phone up much earlier to be seen by a doctor if I am doing badly. Even just phone advice is better than nothing. Your UK Crohns and Colitis Association has a website: http://www.nacc.org.uk/ They will send out information and a "Can’t wait" card when you take out membership, and may also run support groups in your area. Others from the UK may also have advice about how to get more help from medical services. Take care, Amy. Hi there everyone! After two years of trips to the docs and hospital I have recently (one month ago) been diganosed with CD. My experiences with the UK NHS have not been very good. In fact no doctor has actually told me that I have crohns, I found that out reading my own file. I had numerous scans that showed nothing then about 6 weeks ago I had a barium xray that prompted the radiologist to comment that "it" was the worst case she had ever seen! Nice eh? I then went to the hospital to have a colonoscopy but it had to be abandoned half-way through as the inflammation was so severe the camera could not go any further. Then I was just sent home with a box of Pentasa and told to come back in two months. Since I have been on the pentasa I have actually felt worse. I am taking 1000mg twice daily. It seems like I am now constantly in the toilet and I can feel a lump on my right side. I have read some books and done my own research on the net and know a bit more about the replica watches area illness now but if anyone has any advice I would be really grateful. Just reading your posts on here have helped me to understand more about this illness already. Many thanks Yvie

Response:

Went back to my docs today and was prescribed prednisilone enema’s. 20mg twice daily for the next 10 days. here’s hoping they help!

– Hide quoted text — Show quoted text – Sometimes I am able to drop to 2000 mgs/day but have mostly been at 4000 mgs/day ,which is considered the max. If it we’re me I would increase it to 4X a day at 1000 mgs. Check with your Dr first. It seems everyone responds differently . Wish you good luck. Check this out ,I found it interesting ,you my too. http://www.veganoutreach.org/health/gotmilk.html#Crohn’s%20Disease Alf Nilsen

Response:

I have read Jill Sklar’s Crohn’s and ulcerative collitis- The first year. I have also read another but unfortunately it is at a friends house and I can’t remember the name!!!!

– Hide quoted text — Show quoted text – Which books have you read? John

Response:

It’s a good idea to read. Recently I read "The Angry Gut" and "Eating well for a bad gut". The first is by a gastro the second by a nutiritionalist and pushes the limit as far as diets affect on IBD. John

– Hide quoted text — Show quoted text – I have read Jill Sklar’s Crohn’s and ulcerative collitis- The first year. I have also read another but unfortunately it is at a friends house and I can’t remember the name!!!! Which books have you read? John

Response:

Good Yvi, I’m glad you are not sitting by passively.  Unfortunately, in this world of managed healthcare you have to be aggressive to get the proper care you need. Hopefully, the short course of steroids will help you get the help you need when you see the GI.   It could be that you are having an obstruction from the narrowing and inflammation occurring; this is how I was originally diagnosed.  I also take Pentasa and it will cause me to vomit, especially if I have not taken it w/ food.  You don’t need an entire meal, sometimes just a cracker or two, a bit of applesauce, etc. I hope things work out for you, the doctors listen to you, find out what the exact problem is and get you on the right treatment; both short term and long term.  mgbio – Hide quoted text — Show quoted text – Believe it or not but over the past two years I have done nothing else but ring doctors and try to push things along. On one of the more severe days I ended up in casualty. I had been vommiting all night and was in agony. The doctor in the casualty dept sent me home with drugs for a kidney infection. They just really weren’t bothered! I am under a consultant now but I haven’t actually seen him yet. my first appointment is on the 28th Oct. I tried to hurry it as I actually got this appointment a mont ago but was told that there was no point as they needed the swelling to go down before they could do another colonoscopy. Until they do that they can’t decide on a course of action. Went back to my GP this morning as I felt really awful all weekend. I was passing blood and the pain in my abdomen had a got a lot worse. He prescribed prednisilone enema’s. 20mg twice daily for the next 10 days. then I have to go back again. I have registered with the NACC. I am just waiting for the info pack to arrive. Hi Yvie, Wow, I am shocked that the doctors aren’t doing more for you! I too had a similar experience with my first colonoscopy – they could only go 30cms in before stopping due to the severity of inflammation. The difference is, I had already been admitted to all watches replicas hospital and given IV steroids. Now steroids should be avoided whenever possible, but sometimes they are necessary. Are you under the care of a consultant? I am in Australia, we have a similar health system (free/low cost healthcare), but I think I am lucky in that I have had more attentive doctors. Sometimes you have to fight to get the care you need – phone up, get your GP to get you an appointment quicker, etc. Often when I have been told "come back in 4 weeks", I’ll phone up much earlier to be seen by a doctor if I am doing badly. Even just phone advice is better than nothing. Your UK Crohns and Colitis Association has a website: http://www.nacc.org.uk/ They will send out information and a "Can’t wait" card when you take out membership, and may also run support groups in your area. Others from the UK may also have advice about how to get more help from medical services. Take care, Amy. Hi there everyone! After two years of trips to the docs and hospital I have recently (one month ago) been diganosed with CD. My experiences with the UK NHS have not been very good. In fact no doctor has actually told me that I have crohns, I found that out reading my own file. I had numerous scans that showed nothing then about 6 weeks ago I had a barium xray that prompted the radiologist to comment that "it" was the worst case she had ever seen! Nice eh? I then went to the hospital to have a colonoscopy but it had to be abandoned half-way through as the inflammation was so severe the camera could not go any further. Then I was just sent home with a box of Pentasa and told to come back in two months. Since I have been on the pentasa I have actually felt worse. I am taking 1000mg twice daily. It seems like I am now constantly in the toilet and I can feel a lump on my right side. I have read some books and done my own research on the net and know a bit more about the illness now but if anyone has any advice I would be really grateful. Just reading your posts on here have helped me to understand more about this illness already. Many thanks Yvie

Response:

Believe it or not but over the past two years I have done nothing else but ring doctors and try to push things along. On one of the more severe days I ended up in casualty. I had been vommiting all night and was in agony. The doctor in the casualty dept sent me home with drugs for a kidney infection. They just really weren’t bothered! I am under a consultant now but I haven’t actually seen him yet. my first appointment is on the 28th Oct. I tried to hurry it as I actually got this appointment a mont ago but was told that there was no point as they needed the swelling to go down before they could do another colonoscopy. Until they do that they can’t decide on a course of action. Went back to my GP this morning as I felt really awful all weekend. I was passing blood and the pain in my abdomen had a got a lot worse. He prescribed prednisilone enema’s. 20mg twice daily for the next 10 days. then I have to go back again. I have registered with the NACC. I am just waiting for the info pack to arrive.

– Hide quoted text — Show quoted text – Hi Yvie, Wow, I am shocked that the doctors aren’t doing more for you! I too had a similar experience with my first colonoscopy – they could only go 30cms in before stopping due to the severity of inflammation. The difference is, I had already been admitted to bentley gt watch replica hospital and given IV steroids. Now steroids should be avoided whenever possible, but sometimes they are necessary. Are you under the care of a consultant? I am in Australia, we have a similar health system (free/low cost healthcare), but I think I am lucky in that I have had more attentive doctors. Sometimes you have to fight to get the care you need – phone up, get your GP to get you an appointment quicker, etc. Often when I have been told "come back in 4 weeks", I’ll phone up much earlier to be seen by a doctor if I am doing badly. Even just phone advice is better than nothing. Your UK Crohns and Colitis Association has a website: http://www.nacc.org.uk/ They will send out information and a "Can’t wait" card when you take out membership, and may also run support groups in your area. Others from the UK may also have advice about how to get more help from medical services. Take care, Amy. Hi there everyone! After two years of trips to the docs and hospital I have recently (one month ago) been diganosed with CD. My experiences with the UK NHS have not been very good. In fact no doctor has actually told me that I have crohns, I found that out reading my own file. I had numerous scans that showed nothing then about 6 weeks ago I had a barium xray that prompted the radiologist to comment that "it" was the worst case she had ever seen! Nice eh? I then went to the hospital to have a colonoscopy but it had to be abandoned half-way through as the inflammation was so severe the camera could not go any further. Then I was just sent home with a box of Pentasa and told to come back in two months. Since I have been on the pentasa I have actually felt worse. I am taking 1000mg twice daily. It seems like I am now constantly in the toilet and I can feel a lump on my right side. I have read some books and done my own research on the net and know a bit more about the illness now but if anyone has any advice I would be really grateful. Just reading your posts on here have helped me to understand more about this illness already. Many thanks Yvie

Response:

Hi Yvie, Wow, I am shocked that the doctors aren’t doing more for you! I too had a similar experience with my first colonoscopy – they could only go 30cms in before stopping due to the severity of inflammation. The difference is, I had already been admitted to hospital and given IV steroids. Now steroids should be avoided whenever possible, but sometimes they are necessary. Are you under the care of a consultant? I am in Australia, we have a similar health system (free/low cost healthcare), but I think I am lucky in that I have had more attentive doctors. Sometimes you have to fight to get the care you need – phone up, get your GP to get you an appointment quicker, etc. Often when I have been told "come back in 4 weeks", I’ll phone up much earlier to be seen by a doctor if I am doing badly. Even just phone advice is better than nothing. Your UK Crohns and Colitis Association has a website: http://www.nacc.org.uk/ They will send out information and a "Can’t wait" card when you take out membership, and may also run support groups in your area. Others from the UK may also have advice about how to get more help from medical services. Take care, Amy. – Hide quoted text — Show quoted text – Hi there everyone! After two years of trips to the docs and hospital I have recently (one month ago) been diganosed with CD. My experiences with the UK NHS have not been very good. In fact no doctor has actually told me that I have crohns, I found that out reading my own file. I had numerous scans that showed nothing then about 6 weeks ago I had a barium xray that prompted the radiologist to this site comment that "it" was the worst case she had ever seen! Nice eh? I then went to the hospital to have a colonoscopy but it had to be abandoned half-way through as the inflammation was so severe the camera could not go any further. Then I was just sent home with a box of Pentasa and told to come back in two months. Since I have been on the pentasa I have actually felt worse. I am taking 1000mg twice daily. It seems like I am now constantly in the toilet and I can feel a lump on my right side. I have read some books and done my own research on the net and know a bit more about the illness now but if anyone has any advice I would be really grateful. Just reading your posts on here have helped me to understand more about this illness already. Many thanks Yvie

Response:

Hi Yvie and Welcome! I am sorry to hear about your recent CD diagnosis.  It is really scary, esp. when the doctors don’t even have the professionalism to tell you your diagnosis.  I would be on the phone asking them why I was not told my dx, given proper medical education, options on medical treatment, etc.   Since it is obvious the medical "professionals" around you will not help you learn, you need to learn on your own.  I know in the U.S. a great source of information is the Crohn’s & Colitis Foundation of America, CCFA, http://www.ccfa.org.  I know the U.K. has their own equivalent, you can find the url by reading the FAQ for this news group.  I also created my own, easy to read, web site, http://www.skyweb.net/~mgbio/cd/cd.html. It was designed with people new to the disease in the mind of this educator <G with a hyperlinked dictionary to help you understand medical terms that you may be unfamiliar with quickly and easily.  Also, right here is a very good source to ask questions of those of us who have been there and done that.  Know you aren’t alone!  mgbio CD Class of ‘99 http://www.skyweb.net/~mgbio/cd/cd.html – Hide quoted text — Show quoted text – Hi there everyone! After two years of trips to the docs and hospital I have recently (one month ago) been diganosed with CD. My experiences with the UK NHS have not been very good. In fact no doctor has actually told me that I have crohns, I found that out reading my own file. I had numerous scans that showed nothing then about 6 weeks ago I had a barium xray that prompted the radiologist to comment that "it" was the worst case she had ever seen! Nice eh? I then went to the hospital to have a colonoscopy but it had to be abandoned half-way through as the inflammation was so severe the camera could not go any further. Then I was just sent home with a box of Pentasa and told to click here come back in two months. Since I have been on the pentasa I have actually felt worse. I am taking 1000mg twice daily. It seems like I am now constantly in the toilet and I can feel a lump on my right side. I have read some books and done my own research on the net and know a bit more about the illness now but if anyone has any advice I would be really grateful. Just reading your posts on here have helped me to understand more about this illness already. Many thanks Yvie

Response:

Which books have you read? John

Response:

Sometimes I am able to drop to 2000 mgs/day but have mostly been at 4000 mgs/day ,which is considered the max. If it we’re me I would increase it to 4X a day at 1000 mgs. Check with your Dr first. It seems everyone responds differently . Wish you good luck. Check this out ,I found it interesting ,you my too. http://www.veganoutreach.org/health/gotmilk.html#Crohn’s%20Disease Alf Nilsen

Response:

hi yvie, welcome to our group.  sorry you had to come visit.  i have cd, been almost 3 years since dx, had it probably for 5 or 6.  my cd is also in the small intestines.  the terminal ileum to be exact.  it is quite restricted, but as long as it does not flare, i am okay. sorry you have so much trouble with docs over there.  you want to keep in under control because the more flare, obvious, the more pain but also the more scare tissue ends up building up.  this sounds like this could be the problem. i have taken pentasa also, some people it helps.  it is a 5sa med.  i am on remicade infusionions and methotrexate.  also vioxx for the eneteropathic arthritis, restatis for the scleritis/cronic dry eye, a dieretic (due to vioxx and other reasons) and a few others. i get terrible extraintestineals as well.  i get pyoderma gangrenosum, enteropathic arthritis, scleritis or episcleritis in one eye, hearing loss with tinnitus.  these are all immune mediated along with the cd.  they are all forms of inflammation.  about 20% of replica watches sale south africa ibd patients get some or all of these extraintestineals. i hope things settle down and you get some good treatment before long.  you can e-mail me any time to chat about these conditions. be well, jeff

– Hide quoted text — Show quoted text – Hi there everyone! After two years of trips to the docs and hospital I have recently (one month ago) been diganosed with CD. My experiences with the UK NHS have not been very good. In fact no doctor has actually told me that I have crohns, I found that out reading my own file. I had numerous scans that showed nothing then about 6 weeks ago I had a barium xray that prompted the radiologist to comment that "it" was the worst case she had ever seen! Nice eh? I then went to the hospital to have a colonoscopy but it had to be abandoned half-way through as the inflammation was so severe the camera could not go any further. Then I was just sent home with a box of Pentasa and told to come back in two months. Since I have been on the pentasa I have actually felt worse. I am taking 1000mg twice daily. It seems like I am now constantly in the toilet and I can feel a lump on my right side. I have read some books and done my own research on the net and know a bit more about the illness now but if anyone has any advice I would be really grateful. Just reading your posts on here have helped me to understand more about this illness already. Many thanks Yvie

Response:

Hi there everyone! After two years of trips to the docs and hospital I have recently (one month ago) been diganosed with CD. My experiences with the UK NHS have not been very good. In fact no doctor has actually told me that I have crohns, I found that out reading my own file. I had numerous scans that showed nothing then about 6 weeks ago I had a barium xray that prompted the radiologist to comment that "it" was the worst case she had ever seen! Nice eh? I then went to the hospital to have a colonoscopy but it had to be abandoned half-way through as the inflammation was so severe the camera could not go any further. Then I was just sent home with a box of Pentasa and told to come back in two months. Since I have been on the pentasa I have actually felt worse. I am taking 1000mg twice daily. It seems like I am now constantly in the toilet and I can feel a lump on my right side. I have read some books and done my own research on the net and know a bit more about the illness now but if anyone has any advice I would be really grateful. Just reading your posts on here have helped me to understand more about this illness already. Many thanks Yvie

Response:

Question:

Hi, I belong to a group similar to this for the support of Crohns Disease and Ulcerative Collitis. The reason I am posting here is because a friend of my family was diagnosed with breast cancer about a year to two years ago.  She has had both her breasts removed and has had considerable radiotherapy and I think chemo. She went back to her doctor last week and found out that she has cancer in her spine as well as a spot on her lung.  She is completely at her wits end. She is really into alternative medicine and I was wondering if anyone here had tried or is using something along the alternative lines that they have found to be beneficial or knows of any web sites containing alternative treatment for cancer. Please email me personally at my address below. Thanks all so much.

Response:

Kiri, I understand why you have posted to the cancer support newsgroup looking for information about alternative therapy for you friend, who is suffering from this disease.  We would all like to think that there is some wonderful alternative to chemo and radiation. I don’t have anything to offer other than a bit of advice.  You’ve probably just opened the floodgate to your email box from every quack that’s trying to sell his/her "miracle cure."  They love to feed on the sick and desparate so please keep this in mind when assessing information that you will receive. Beware of ganoderma spores, agaricus mushrooms, the various diet formulas, and basically anyone who wants your money for something that is unproven and may even be harmful, such as laetrile. Perhaps your friend can get involved in a clinical trial somewhere.  I have a friend who has mets all over her body from a breast cancer primary.  She was give 6 months over a year and a half ago.  She keeps signing up for clinical trials and has extended her life far beyond what was expected.  She’s currently in one at Dana Farber in Boston for herceptin and has been deemed in remission. In addition, if she’d like to eat a few rasberries or injest some extra grapes, it certainly won’t hurt her.  But, I’d be very wary of most alternative medicine practitioners. You might want to click for source ask this question over at alt.support.cancer.breast, too, just for more viewpoints.  I wish her the best of luck with whatever treatment regime she selects.  You’re a good friend to be concerned and I’m sure that she’ll need your love and support in her fight against this nasty disease. Take care. …lisa

Response:

… In addition, if she’d like to eat a few rasberries or injest some extra grapes, it certainly won’t hurt her.

Actually, it should be noted that current thinking among some researcers who are studying resveratrol, thought to be the main active ingredient in grapes, is that it is chemically similar to estrogen.  That means that it can stimulate the "estrogen receptor" in human tissue that has that receptor.  If the particular kind of tumor in the patient has those receptors, the tumor is said to be "estorgen responsive" or "ER-positive". Current thinking is that for ER-positive tumors, the use of grapes may be inadvisable or dangerous. My reading of the historical reports on grape therapy has not revealed any indications of sudden tumor growth when using a grape diet.  But that could be because enthusiasts for the method simply ignored such cases as baffling exceptions.  Or, it could possibly indicate that there are one or more chemicals besides resveratrol present in grapes that tend to block the estorgen receptor, or otherwise protect against any estrogen-like behavior from resveratrol. In any case, I would advise ANYBODY who tries grape therapy (or who uses estrogen replacement therapy, for that matter) to be on the alert for any sign of sudden growth of either a known tumor or a "lump". There could for example be an ER-positive tumor present that has not been detected, EVEN IF a biopsy on a known tumor shows it to be ER-negative. Anyway, if due care is taken about this issue, then yes, it shouldn’t hurt to experiment with grape therapy. So far, I have not heard of any similar "gotchas" about raspberries. -John S.

Response:

Actually, it should be noted that current thinking among some researcers who are studying resveratrol, thought to be the main active ingredient in grapes, is that it is chemically similar to estrogen.  That means that it can stimulate the "estrogen receptor" in human tissue that has that receptor.  If the particular kind of tumor in the patient has those receptors, the tumor is said to be "estorgen responsive" or "ER-positive".

Wow.  Thanks for that, John.  I guess I’ll remove grapes from the list.  You know, it’s amazing that we live at all based on what is actually in what we consume…guess there’s real validity in moderation in everything. …lisa

Response:

Actually, it should be noted that current thinking among some researcers who are studying resveratrol, thought to be the main active ingredient in grapes, is that it is chemically similar to estrogen.  That means that it can stimulate the "estrogen receptor" in human tissue that has that receptor.  If the particular kind of tumor in the patient has those receptors, the tumor is said to be "estorgen responsive" or "ER-positive". Wow.  Thanks for that, John.  I guess I’ll remove grapes from the list.  You know, it’s amazing that we live at all based on what is actually in what we consume…guess there’s real validity in moderation in everything. …lisa

I didn’t mean to shoot down grapes generally.  I don’t think they are any more dangerous than estrogen replacement therapy.  The main danger, if any, is to patients with known ER-positive tumors. For patients who know their tumors are ER-negative, the historical accounts in for example Johanna Brandt’s book "The Grape Cure" are pretty astonishing and seem to offer an excellent risk/benefit tradeoff. I.e. try the "all-grape diet" for a couple of weeks and see what happens. If it’s like what Brandt found, it might lead to a quick remission.  If it’s nonsense, so, what’s the downside of eating a lot of grapes for a few weeks?  Grapes are delicious! -John S.

Response:

Try searching our website at http://www.cancer-info.com/search.cgi — Cancer Information and Support International A Volunteer Driven Information and Support Organization Website URL: http://www.cancer-info.com

– Hide quoted text — Show quoted text – Hi, I belong to a group similar to this for the support of Crohns Disease and Ulcerative Collitis. The reason I am posting here is because a friend of my family was diagnosed with breast cancer about a year to two years ago.  She has had both her breasts removed and has had considerable radiotherapy and I think chemo. She went back to her doctor last week and found out that she has cancer in her spine as well as a spot on her lung.  She is completely at her wits end. She is really into alternative medicine and I was wondering if anyone here had tried or is using something along the alternative lines that they have found to be beneficial or knows of any web sites containing alternative treatment for cancer. Please email me personally at my address below. Thanks all so much.

Response:

Question:

I am giving a speech on athletic achievement. I recall a British athelete injured in the Olympics (1992?) and his father came out of the stands to help him finish. I would info on that and other courageous athletic stories. I have searched and searched and can’t find my way through. Got sources?       Bob * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!

Response:

Hi ! I am giving a speech on athletic achievement. I recall a British athelete injured in the Olympics (1992?) and panerai radiomir egiziano replica his father came out of the stands to help him finish. I would info on that and other courageous athletic stories. I have searched and searched and can’t find my way through. Got sources?       Bob

I remember seeing the 1997 (?) Hawaii Ironman Triathlon. There were these   2 ladies who broke down within sight of the finish line. They were totally   dehydrated ! They refused assistance and managed to crawl across the   finish. These ladies were TOUGH !!! Or how about the 1984 Olypmics in LA. Remember the woman torkling and   almost falling the last lap in the marathon ? THAT was an achievement ! Hope that helped…. — Christian Herboth ICQ # 52515902

Response:

The atheletes name was Derek Redmond Pulled hamstrings I think And the B******S  D/Qed him! (not like he was gonna get a medal or anything) 400m? Dave.

– Hide quoted text — Show quoted text – I am giving a speech on athletic achievement. I recall a British athelete injured in the Olympics (1992?) and his father came out of the stands to help him finish. I would info on that and other courageous athletic stories. I have searched and searched and can’t find my way through. Got sources?       Bob * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!

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Rules can be a bitch!

– Hide quoted text — Show quoted text – The atheletes name was Derek Redmond Pulled hamstrings I think And the B******S  D/Qed him! (not like he was gonna get a medal or anything) 400m? Dave. I am giving a speech on athletic achievement. I recall a British athelete injured in the Olympics (1992?) and hublot pvd replica his father came out of the stands to help him finish. I would info on that and other courageous athletic stories. I have searched and searched and can’t find my way through. Got sources?       Bob * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!

Response:

The atheletes name was Derek Redmond Pulled hamstrings I think And the B******S  D/Qed him! (not like he was gonna get a medal or anything) 400m? Dave.

…it was his first competition back after a string of problems with the other leg. …in the very next heat he lost his British record to David Grindley. …and the shock of it all sent his sister into premature labour. IanB – I think the comment from the reporter at the press conference was "You’re making this up aren’t you?"

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I am giving a speech on athletic achievement. I recall a British athelete injured in the Olympics (1992?) and his father came out of the stands to help him finish. I would info on that and other courageous athletic stories. I have searched and searched and can’t find my way through. Got sources?       Bob * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and where to buy replica watches in houston participate in Usenet – Free! Dear Coach;

I remember seeing a profile on Derek Redmond, the athelte in quesiton, on NBC during the Atlanta Games.  It was one of those obviously manipulative "one of the Olympians" type of shorts, but the story itself is quite moving. The event he was injured in was the 400m semi final. Myself, and many others, felt he had a legit chance at winning a medal. As an addition to the other posts, Derek met his wife, Olympic swimmer Sharon Davies, the same evening in the Olympic Village in 1992. They were married and later had a son.  Sadly, today they are no longer together…you may want to omit that from your talk : ) Derek now works for a Sports Management firm in London, but I’m not sure which one. You might be able to get in touch with him via UK Athletics. Sebestain Coe is another possible story.  He recovered from a mysterious glandular injury in 183, which left him seriously ill and incapable of training, to defending his 1500m title in 1984, the only athlete thus far to achieve that. (he also set the still standing Olympic record) I hope this is helpful. Marty Before you buy.

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MB Sebastian Coe … recovered from a mysterious glandular injury MB in 183, which left him seriously ill and incapable of training, MB to defending his 1500m title in 1984 He also appears to be the only athlete to compete in both the ancient Olympics (183) and the modern Olympics (1980s and 1990s). He da man! — Jeff Before you buy.

Let’s see, how do we spell Pedantic?  J-E-F-F! Before you buy.

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Though no one can argue steve is one of the worlds greatest athletes, sidney will be his first olympics with diabetes. Dave

– Hide quoted text — Show quoted text – Stevew Redgrave – rowing – Ulcerative collitis, insulin dependent diabetes mellitus, gold medals at four successive Olympic Games and going for the fifth at Sidney.

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Stevew Redgrave – rowing – Ulcerative collitis, insulin dependent diabetes mellitus, gold medals at four successive Olympic Games and going for the fifth at Sidney.

– Hide quoted text — Show quoted text – If you are looking for other courageous athletes consider: Lance Armstrong, cyclist, returning from testicular cancer that spread to his lungs and brain Sean Elliott (American basketball player who had a kidney transplant and is attempting to return), add in his brother who donated the kidney Jim Eisenreich (sp) American baseball player with Tourrette’s Syndrome Dave Dravecky, American baseball player who had cancer, returned, broke his arm throwing a pitch and had to have his pitching arm amputated. Alberto Salazar,  serious of ailments, came back and won Comrades

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S Jim Eisenreich (sp) American baseball player with S Tourrette’s Syndrome Um, how does Tourette’s Syndrome affect athletic performance? Unless all the cussing uses breath that could be put to better use performing …

Eisenreich was severely adversely affected by the abuse he took from fans. He has since played while medicated, which has impeded his performance. You could add in Bobby (basketball) Jones of the Philadelphia 76ers, who played fast, athletic, aggressive defense despite being on medication (phenobarbitol?) for epilepsy.

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Try hitting a 95 mph fast ball with a twitch (Eisenreich had twitches, not sure if he had the uncontrolled speech also). Seriously, people with Tourette’s Syndrome face a lot of ridicule and societal ridicule.  Maybe not up the the level of Lance or Lemieux but someone who  faced a lot of adversity.

– Hide quoted text — Show quoted text – S Jim Eisenreich (sp) American baseball player with S Tourrette’s Syndrome Um, how does Tourette’s Syndrome affect athletic performance? Unless all the cussing uses breath that could be put to better use performing … — Jeff Before you buy.

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I think this tread turns into "stories of my link athletic stupidity"… Which is in many cases pretty much the same as "heroism". – Hide quoted text — Show quoted text – Hi ! I am giving a speech on athletic achievement. I recall a British athelete injured in the Olympics (1992?) and his father came out of the stands to help him finish. I would info on that and other courageous athletic stories. I have searched and searched and can’t find my way through. Got sources?       Bob I remember seeing the 1997 (?) Hawaii Ironman Triathlon. There were these   2 ladies who broke down within sight of the finish line. They were totally   dehydrated ! They refused assistance and managed to crawl across the   finish. These ladies were TOUGH !!! Or how about the 1984 Olypmics in LA. Remember the woman torkling and   almost falling the last lap in the marathon ? THAT was an achievement ! Hope that helped…. — Christian Herboth ICQ # 52515902

–  Oleg

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S Jim Eisenreich (sp) American baseball player with S Tourrette’s Syndrome Um, how does Tourette’s Syndrome affect athletic performance? Unless all the cussing uses breath that could be put to better use performing … — Jeff Before you buy.

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Mario Lemieux – Hodgkins Disease/ some form of cancer. – Hide quoted text — Show quoted text – If you are looking for other courageous athletes consider: Lance Armstrong, cyclist, returning from testicular cancer that spread to his lungs and brain Sean Elliott (American basketball player who had a kidney transplant and is attempting to return), add in his brother who donated the kidney Jim Eisenreich (sp) American baseball player with Tourrette’s Syndrome Dave Dravecky, American baseball player who had cancer, returned, broke his arm throwing a pitch and had to have his pitching arm amputated. Alberto Salazar,  serious of replica watches uk swiss movement ailments, came back and won Comrades I am giving a speech on athletic achievement. I recall a British athelete injured in the Olympics (1992?) and his father came out of the stands to help him finish. I would info on that and other courageous athletic stories. I have searched and searched and can’t find my way through. Got sources?       Bob * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!

Response:

MB Sebastian Coe … recovered from a mysterious glandular injury MB in 183, which left him seriously ill and incapable of training, MB to defending his 1500m title in 1984 He also appears to be the only athlete to compete in both the ancient Olympics (183) and the modern Olympics (1980s and 1990s). He da man! — Jeff Before you buy.

Response:

If you are looking for other courageous athletes consider: Lance Armstrong, cyclist, returning from testicular cancer that spread to his lungs and brain Sean Elliott (American basketball player who had a kidney transplant and is attempting to return), add in his brother who donated the kidney Jim Eisenreich (sp) American baseball player with Tourrette’s Syndrome Dave Dravecky, American baseball player who had cancer, returned, broke his arm throwing a pitch and had to have his pitching arm amputated. Alberto Salazar,  serious of ailments, came back and Continue Reading won Comrades

– Hide quoted text — Show quoted text – I am giving a speech on athletic achievement. I recall a British athelete injured in the Olympics (1992?) and his father came out of the stands to help him finish. I would info on that and other courageous athletic stories. I have searched and searched and can’t find my way through. Got sources?       Bob * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!

Response:

Question:

RLS,   I wish I had some suggestions on your dilema but I don’t.  But I am here to offer you support.  As far as endo goes, the only sure fire way to find out is to have a lap.  The best of luck to you on any decision you make. ((((((hugs)))))) Denise A.

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Some of your symptoms do sound endo related, but with you having ulcerative colitis, it is hard to say.  But the cyclical bleeding and pain points to endo.  And there must have been a reason the docs asked if you had ever been diagnosed or eval’d for endo.  I’d have that lap.  You could have endo on nerves that lead to the back area that is causing you so much pain or adhesions could be causing the problems.  Couldn’t hurt (too much) to take a look-see and have them correct it while in there.  I would try to see a Reproductive Endocrinolgist if possible.  I don’t have any names but someone may be able to offer a suggestion.  Take care and best wishes on finding your source of the pain. Here’s hoping it’s not endo, but rather something that can be dealt with quickly and painlessly. — In Friendship, John and Carey Florida ~~~Perception is Reality~~~ John’s web page: MENDO – For Men Whose Women Have Endometriosis: http://www.geocities.com/HotSprings/Spa/8449/ Carey’s Endo Window – Includes the "Endo Sister’s Survival Kit": http://www.geocities.com/HotSprings/Spa/8509/ – Hide quoted text — Show quoted text – Hi all – I am writing to see if any of you who are knowledgable in endo can help me understand whether I may be suffering with this – yet being led in many other medical directions. I am a 34 year old mother of 2.  I have never had horribly painful periods per say.  When I was 18 I was diagnosed with ulcerative collitis which was finally brought under control. The story is that for the past 4 years I have suffered with a very painful back problem.  It feels as though my joints get "locked" and then spasms start in the lower back, hip and leg.  I twist and "crack" to try to move my joints into a tolerable position – but it’s horrible.   I notice this syndrome flares terribly during certain times of the month – ovultion and right before menstruation.  I have been through all kinds of therapies with little success for the back/joint pain.  One round of steroid injections into the SI and facet joints left me with 26 days of uterine bleeding!!! For this I had to have a D&C. Most recently I have been suffering with an annal fissure.  This is like an ulcer in the rectal tissue and is extrememly painful. I had to aaa replica watches china have surgery (sphincterotomy) for this and still have recurrent episodes of pain and bleeding – also consistient with certain times of the month?? – worse with ovulation?? A few of the back doctors sort of in passing have asked if I’ve been evaluated for endo.  I never have and really didn’t think of it as a possibility. The thing is my current periods are very short in duration – really only one day of heavy bleeding.  The flow is odd – seems as though blood struggles to pass and seems to come out in clots alot – especially if I’m urinating or having a bm.   At this point I am researching serious back surgeries (fusion) – and at a loss about the rectal/instestinal problems.  I wondered if anyone on this board can be so kind as to comment on my dilemma.  Perhaps some of this will ring a bell for you who have been through so much in the endo area.   Also – I would really appreciate anyone sharing the names of excellent endo specialists in the Long Island/NYC area.  I suppose I should consider getting the exploratory Lap – though I must admit – I hate to do this if it’s way out of line given all my other medical problems. What do you think? Thanks so much for all your support – RLS

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Hi all – I am writing to see if any of you who are knowledgable in endo can help me understand whether I may be suffering with this – yet being led in many other medical directions. I am a 34 year old mother of 2.  I have never had horribly painful periods per say.  When I was 18 I was diagnosed with ulcerative collitis which was finally brought under control. The story is that for the past 4 years I have suffered with a very painful back problem.  It feels as though my joints get "locked" and then spasms start in the Document lower back, hip and leg.  I twist and "crack" to try to move my joints into a tolerable position – but it’s horrible.   I notice this syndrome flares terribly during certain times of the month – ovultion and right before menstruation.  I have been through all kinds of therapies with little success for the back/joint pain.  One round of steroid injections into the SI and facet joints left me with 26 days of uterine bleeding!!! For this I had to have a D&C. Most recently I have been suffering with an annal fissure.  This is like an ulcer in the rectal tissue and is extrememly painful. I had to have surgery (sphincterotomy) for this and still have recurrent episodes of pain and bleeding – also consistient with certain times of the month?? – worse with ovulation?? A few of the back doctors sort of in passing have asked if I’ve been evaluated for endo.  I never have and really didn’t think of it as a possibility.  The thing is my current periods are very short in duration – really only one day of heavy bleeding.  The flow is odd – seems as though blood struggles to pass and gmt master rolex replica watches seems to come out in clots alot – especially if I’m urinating or having a bm.   At this point I am researching serious back surgeries (fusion) – and at a loss about the rectal/instestinal problems.  I wondered if anyone on this board can be so kind as to comment on my dilemma.  Perhaps some of this will ring a bell for you who have been through so much in the endo area.   Also – I would really appreciate anyone sharing the names of excellent  endo specialists in the Long Island/NYC area.  I suppose I should consider getting the exploratory Lap – though I must admit – I hate to do this if it’s way out of line given all my other medical problems. What do you think? Thanks so much for all your support – RLS

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Question:

Hmmm, from my experience. For life. The drugs around at the moment only treat the symptoms, not the (real)cause (‘cos no one really knows what they are).

Response:

Hi everybody, I’m 30 and last year, my doctor confirmed that I was suffering of a crohns colitis.  Since then, I tried stopping my medication for periods, but my symptoms reappeared each time. I’m lucky enough for suffering of a non severe form of crohns colits, but I bleed each time I cease treatments. Since two weeks, I use Quintasa suppositories once a day (before sleeping) and get good results.  Do you think I’ll have to keep use them pemanently or will I be able to stop for a while, once I’ll have no symptoms? Thanks. Martin

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- Hide quoted text — Show quoted text – Hi everybody, I’m 30 and last year, my doctor confirmed that I was suffering of a crohns  colitis.  Since then, I tried stopping my medication for periods, but my symptoms reappeared each time. I’m lucky enough for suffering of a non severe form of crohns colits, but I bleed each time I cease treatments. Since two weeks, I use Quintasa suppositories once a day (before sleeping) and get good results.  Do you think I’ll have to keep use them pemanently or will I be able to stop for a while, once I’ll have no symptoms? Thanks. MartinMy son’s ten, I’ve had Ulcerative Collitis (more correctly proctititis)

starting 2 months before he was born. In me it’s a low grade chronic condition. Only with consistant medication have the symtoms abated slightly and homepage for the past 3 years, after consulting with my Gastroenterologist, have I stopped the medication. One time it last 6 moths, the other 3 times, not more than 4 weeks. I ask him if it will go away. He looks at me and changes the subject. You want hope ? – Recently it was discovered that stomach ulcers are cause by a bacteria (Hector Pylori ???) This may also be the case with collitis, and other conditions. Ulcers are cured with a course of anti biotics. If any form of IBD is caused buy the immune system, the recent dicoveries about the immune system may lead to a better understanding and treatment. Did I say cure ? You say "I use Quintasa suppositories " what are they ? Is that like "Rowesa" ?

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You want hope ? – Recently it was discovered that stomach ulcers are cause by a bacteria (Hector Pylori ???) This may also be the case with collitis, and other conditions. Ulcers are cured with a course of anti biotics.

While Helicobacter Pylori appears to cause 80% of all ulcers, it does NOT cause UC or Crohn’s. A recent large-scale study found that: 80% of people with ulcers have H. Pylori in their digestive system; 43% of people without ulcers have H. Pylori in their digestive system; but only 15% of people with UC or Crohn’s have H. Pylori. The proposed explanation is that, since UC and CD are autoimmune diseases, the immune system overactivity in the digestive system controls the H. Pylori. There are some other studies that show a relationship between other organisms and UC/CD, but eliminating the organisms doesn’t seem to help the UC/CD. But clearly, more research in this area is called for.

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