My Crohn's and Colitis Blog » Ulcerative Colitis Crohn's » ! Please READ this if you have CD or Colitis
! Please READ this if you have CD or Colitis
Question:
Hi My consultant wanted my guts too. I asked to go back on Asacol and Colifoam enemas (which had been stopped when I went onto Azathioprine),in addition to Azathioprine. 72 hours later I was better than I have been for 6 months! Bowel movements are from 6-12 per day to 2-5 per day and almost always ‘normal’. Blood and mucus have stopped. As I understand it the risk of cancer is only important if the disease has been continually active for years, and even then, regular colonoscopies can detect pre cancerous polyps in time to remove them. I’m no doctor so don’t take my word but Get more opinions before you agree to surgery, they can’t reverse it! Geoff
– Hide quoted text — Show quoted text – CJ Have you had a second opinion? Surgery is so serious, as is IBD, as is cancer. In your shoes, I’d definitely seek out another GI’s opinion. As for diets, I don’t know what the original poster was talking about, but a good number of people here have had experience with the Specific Carbohydrate Diet. I don’t feel expert enough to counsel you on this, though, but maybe the other people on this ng can fill you in. I do know that there is a website called www.scdiet.org that has information. Hope this helps Jennifer Hi Al, Please send me the information on the nutritional program that you are taking. I have ulcerated colitis, I was in remission for 12 years until this past summer and it came back strongly. I never want it again, My Dr. wants my colon to prevent cancer. I want to keep from having this surgery and I want to heal it with nutritional products. Thanks, CJ Reagan
Response:
Hi Al You betcha a nutritional program can be a humongous help in battling this disease or most other chronic diseases. The hard part is finding a good quality one.For myself I use the one most recommended, Documentation beats Conversation, USANA Health Sciences has been my Savior. But would like to know which one you are talking about. Ken.W 5 Years Med Free!
– Hide quoted text — Show quoted text – Hi Al, Please send me the information on the nutritional program that you are taking. I have ulcerated colitis, I was in remission for 12 years until this past summer and it came back strongly. I never want it again, My Dr. wants my colon to prevent cancer. I want to keep from having this surgery and I want to heal it with nutritional products. Thanks, CJ Reagan Honestly i know nothing about this stuff except for one thing. I have talked to 2 people with ulcerated colitis one of which said she had been suffering with this condition for 21 years. At the time i met here she was on a nutritional program that i was just starting.I dont know(off hand) how long she was on these products and i beleive she was still taking prescription medication.One thing I do know is that she credits these nutritional products for clearing up her condition.Well to be more specific she says that the ulcers are clearing up.same thing for the CD for other people.Is CD a muscle or bone or fiber thing(no offence i justdont know)if it is this is what other people said cleared up on this progarm. PLEASE understand these products DO NOT claim to cure ANYTHING I’m just shareing the same information they shared with me. Im a newbie to newsgroups. Seen this one in a search and thought that if this info could maybe help one person it was worth any critcism. thanks AL
Response:
CJ Have you had a second opinion? Surgery is so serious, as is IBD, as is cancer. In your shoes, I’d definitely seek out another GI’s opinion. As for diets, I don’t know what the original poster was talking about, but a good number of people here have had experience with the Specific Carbohydrate Diet. I don’t feel expert enough to counsel you on this, though, but maybe the other people on this ng can fill you in. I do know that there is a website called www.scdiet.org that has information. Hope this helps Jennifer – Hide quoted text — Show quoted text – Hi Al, Please send me the information on the nutritional program that you are taking. I have ulcerated colitis, I was in remission for 12 years until this past summer and it came back strongly. I never want it again, My Dr. wants my colon to prevent cancer. I want to keep from having this surgery and I want to heal it with nutritional products. Thanks, CJ Reagan
Response:
Sure you can talk about it here if you keep the product out of it. You are welcome to join in. Mike HI, Thank you for being so nice about my post it was never my intent to just make a dollar in this group.I thought that sharing what i knew might help.I wont pitch anymore produts in this group again.please note that it was asked in someone elses message that i mentioned that "they took that stuff" but didn’t describe it thats why i pitched I’m sorry,really.those people that i heard talk didn’t talk about how much pain they were in i think because everyone but me,i think, knew what theyu were talking about.just one more question.If i talk with these people(because now i want more info)can i discuss it here if i dont talk about any products.or is that still spam?I make plenty of money at my day job,honestly. let me know. Thank you very much Al
Leah’s Body Sugaring Recipe Make it yourself and save http://www.for-romance.com/sugar
Response:
thanks mike Al
Response:
Hi Al, Please send me the information on the nutritional program that you are taking. I have ulcerated colitis, I was in remission for 12 years until this past summer and it came back strongly. I never want it again, My Dr. wants my colon to prevent cancer. I want to keep from having this surgery and I want to heal it with nutritional products. Thanks, CJ Reagan – Hide quoted text — Show quoted text -Honestly i know nothing about this stuff except for one thing. I have talked to 2 people with ulcerated colitis one of which said she had been suffering with this condition for 21 years. At the time i met here she was on a nutritional program that i was just starting.I dont know(off hand) how long she was on these products and i beleive she was still taking prescription medication.One thing I do know is that she credits these nutritional products for clearing up her condition.Well to be more specific she says that the ulcers are clearing up.same thing for the CD for other people.Is CD a muscle or bone or fiber thing(no offence i justdont know)if it is this is what other people said cleared up on this progarm. PLEASE understand these products DO NOT claim to cure ANYTHING I’m just shareing the same information they shared with me. Im a newbie to newsgroups. Seen this one in a search and thought that if this info could maybe help one person it was worth any critcism. thanks AL
Response:
HI, Thank you for being so nice about my post it was never my intent to just make a dollar in this group.I thought that sharing what i knew might help.I wont pitch anymore produts in this group again.please note that it was asked in someone elses message that i mentioned that "they took that stuff" but didn’t describe it thats why i pitched I’m sorry,really.those people that i heard talk didn’t talk about how much pain they were in i think because everyone but me,i think, knew what theyu were talking about.just one more question.If i talk with these people(because now i want more info)can i discuss it here if i dont talk about any products.or is that still spam?I make plenty of money at my day job,honestly. let me know. Thank you very much Al
Response:
Please read the newsgroup charter: What is Alt.support.crohns-colitis? Alt.support.crohns-colitis was created in early 1994 as a forum where people suffering from ulcerative colitis, Crohn’s Disease, and irritable bowel syndrome can share their everyday struggles with these illnesses, as well as discuss medicines, treatments, surgery, diet, health care providers, related illnesses, and anything else anyone can think of that relates to these diseases. In other words, this is the online equivalent of a support group, which means that no question is stupid and no condition embarrassing here. It also means we’re all here to help each other out, so please be nice, be polite, and no flaming. Discussions of all types of medicine- conventional and alternative, Western and Eastern, your Aunt Harriet’s home remedies, whatever- are welcome here; however, any person discussing a potential remedy which he or she also sells must explicitly begin the "Subject" header of their post with the word "AD" or "ADVERTISEMENT" in all caps, regardless of whether or not they profit from such sales. Spamming is expressly forbidden as violating the rules of netiquette as well as those of this newsgroup. Finally, please keep in mind that no one knows what causes these illnesses, no one’s come up with a cure, and we need all the help we can get. – Hide quoted text — Show quoted text -hi all Being new to NG is answering other posts considered spam?Is giving infomation about helping someone spam?how about explaining why i wrote the first post is that spam?
Response:
Asking what CD is .. was not spam, the part that turned to spam was this when you started "pitching" the product. In this group we consider an advertisement to be naming a product with the intent to sell. When someone posts about a product and we check your posts on other NGs (news groups) and those posts are advertisements we automatically assume you are pitching. So any statements that seem to attempt to facilitate a sell will be looked on in the most unfavorable way. Please understand we have cronic and painful diseases. We have been pitched every snake oil cure you can imagine. "Take this herb and it will cure you" or my favorite "you hold the toxin in your left hand while so and so mumbles some stuff and you will be cured" (y’all remember that one) We also have new members that have just been diagnosed and are desperate for anything they think might help. Old timers feel a duty to protect, so we tend to be like a mother bear if you mess with our cub. I understand that you may be new to news groups, that is why in my email to you I was polite, but firm. I cut you slack because you seemed new. Most of the time I just have the account terminated. If we jumped you without merit I am sorry. We tend to be a proactive group. My suggestion is you moniter any NG you think you can be helpful in. If someone asks a question you can answer, but leave the product name out of the answer. Make yourself a signature line like you will find at the bottom of my post. Then if someone seeks you out that is their business. Please keep signatures to 6 lines or less. (don’t know why but more than 6 is rude… that’s geeks for ya) Mike hi all Being new to NG is answering other posts considered spam?Is giving infomation about helping someone spam?how about explaining why i wrote the first post is that spam?
Leah’s Body Sugaring Recipe Make it yourself and save http://www.for-romance.com/sugar
Response:
hi all Being new to NG is answering other posts considered spam?Is giving infomation about helping someone spam?how about explaining why i wrote the first post is that spam?
Response:
Ditto that!!! I appreciate all the research you do for us Mike
) Linda
– Hide quoted text — Show quoted text – And we love you! Rebecca
Consider it handled, I wrote a polite letter to them and if that doesn’t work I will have his account terminated…. I love my job. Mike This is SPAM for Herbalife. The poster’s address shown in the message bounced. Billy Goat, can you work your magic on this one too? Hi Sherry, What you said is correct the loss weight for free post is just a contest to win nutritional products.These products used as a program can asstist people in losing the amount of weight they want to lose over time.The products I’m talking about are called Herbalife.The "Core" of this program,which was started in 1980, consists of basiclly a protien shake,a mlutivitamin(w/herb and minerals in it) and a cell activator(this helps in the absorbtion of the vitamins and minerals from the foods you eat) a supplement to support proper heart function,a antioxidant formula from Schizandra, and an herbal aloe drink. I think maybe one more product but I’m not sure.Anyway the basis of the program is this:With good cellular nutrition you will lose weight.You don’t have to want to lose weight to take these products.Taking care of your body is reason enough isn’t it?I dont sell these products for a living just on the side,as a matter of fact i think its been 2 months now.The reason i didnt talk about the products the in my first post is i dont know a lot about them yet,still learning.But at an HOM(Herbalife Opportunity Meeting) and a training i attended the same women was there and gave basically the same testimonial I wrote.This is not someone trying to blow smoke at you to make a couple of buck.Until I attended my first HOM I never even heard of colitis,ulcerated colitis or CD until these people spoke about them.Then I had ask people "whats that?". So think what you want to.But if you want more info about what they did or took i can probably find out for you.Does that you will buy something from me, of course not but I’ll ask them anyway because it sound like some bad stuff you guys are dealing with.Maybe the info can help even if just a little. I hope that cleared things up a little. If not sorry to bother those i did but it was still worth the posting. Al Leah’s Body Sugaring Recipe Make it yourself and save http://www.for-romance.com/sugar
Response:
And we love you! Rebecca
– Hide quoted text — Show quoted text – Consider it handled, I wrote a polite letter to them and if that doesn’t work I will have his account terminated…. I love my job. Mike This is SPAM for Herbalife. The poster’s address shown in the message bounced. Billy Goat, can you work your magic on this one too? Hi Sherry, What you said is correct the loss weight for free post is just a contest to win nutritional products.These products used as a program can asstist people in losing the amount of weight they want to lose over time.The products I’m talking about are called Herbalife.The "Core" of this program,which was started in 1980, consists of basiclly a protien shake,a mlutivitamin(w/herb and minerals in it) and a cell activator(this helps in the absorbtion of the vitamins and minerals from the foods you eat) a supplement to support proper heart function,a antioxidant formula from Schizandra, and an herbal aloe drink. I think maybe one more product but I’m not sure.Anyway the basis of the program is this:With good cellular nutrition you will lose weight.You don’t have to want to lose weight to take these products.Taking care of your body is reason enough isn’t it?I dont sell these products for a living just on the side,as a matter of fact i think its been 2 months now.The reason i didnt talk about the products the in my first post is i dont know a lot about them yet,still learning.But at an HOM(Herbalife Opportunity Meeting) and a training i attended the same women was there and gave basically the same testimonial I wrote.This is not someone trying to blow smoke at you to make a couple of buck.Until I attended my first HOM I never even heard of colitis,ulcerated colitis or CD until these people spoke about them.Then I had ask people "whats that?". So think what you want to.But if you want more info about what they did or took i can probably find out for you.Does that you will buy something from me, of course not but I’ll ask them anyway because it sound like some bad stuff you guys are dealing with.Maybe the info can help even if just a little. I hope that cleared things up a little. If not sorry to bother those i did but it was still worth the posting. Al Leah’s Body Sugaring Recipe Make it yourself and save http://www.for-romance.com/sugar
Response:
Consider it handled, I wrote a polite letter to them and if that doesn’t work I will have his account terminated…. I love my job. Mike – Hide quoted text — Show quoted text -This is SPAM for Herbalife. The poster’s address shown in the message bounced. Billy Goat, can you work your magic on this one too? Hi Sherry, What you said is correct the loss weight for free post is just a contest to win nutritional products.These products used as a program can asstist people in losing the amount of weight they want to lose over time.The products I’m talking about are called Herbalife.The "Core" of this program,which was started in 1980, consists of basiclly a protien shake,a mlutivitamin(w/herb and minerals in it) and a cell activator(this helps in the absorbtion of the vitamins and minerals from the foods you eat) a supplement to support proper heart function,a antioxidant formula from Schizandra, and an herbal aloe drink. I think maybe one more product but I’m not sure.Anyway the basis of the program is this:With good cellular nutrition you will lose weight.You don’t have to want to lose weight to take these products.Taking care of your body is reason enough isn’t it?I dont sell these products for a living just on the side,as a matter of fact i think its been 2 months now.The reason i didnt talk about the products the in my first post is i dont know a lot about them yet,still learning.But at an HOM(Herbalife Opportunity Meeting) and a training i attended the same women was there and gave basically the same testimonial I wrote.This is not someone trying to blow smoke at you to make a couple of buck.Until I attended my first HOM I never even heard of colitis,ulcerated colitis or CD until these people spoke about them.Then I had ask people "whats that?". So think what you want to.But if you want more info about what they did or took i can probably find out for you.Does that you will buy something from me, of course not but I’ll ask them anyway because it sound like some bad stuff you guys are dealing with.Maybe the info can help even if just a little. I hope that cleared things up a little. If not sorry to bother those i did but it was still worth the posting. Al
Leah’s Body Sugaring Recipe Make it yourself and save http://www.for-romance.com/sugar
Response:
This is SPAM for Herbalife. The poster’s address shown in the message bounced. Billy Goat, can you work your magic on this one too? – Hide quoted text — Show quoted text -Hi Sherry, What you said is correct the loss weight for free post is just a contest to win nutritional products.These products used as a program can asstist people in losing the amount of weight they want to lose over time.The products I’m talking about are called Herbalife.The "Core" of this program,which was started in 1980, consists of basiclly a protien shake,a mlutivitamin(w/herb and minerals in it) and a cell activator(this helps in the absorbtion of the vitamins and minerals from the foods you eat) a supplement to support proper heart function,a antioxidant formula from Schizandra, and an herbal aloe drink. I think maybe one more product but I’m not sure.Anyway the basis of the program is this:With good cellular nutrition you will lose weight.You don’t have to want to lose weight to take these products.Taking care of your body is reason enough isn’t it?I dont sell these products for a living just on the side,as a matter of fact i think its been 2 months now.The reason i didnt talk about the products the in my first post is i dont know a lot about them yet,still learning.But at an HOM(Herbalife Opportunity Meeting) and a training i attended the same women was there and gave basically the same testimonial I wrote.This is not someone trying to blow smoke at you to make a couple of buck.Until I attended my first HOM I never even heard of colitis,ulcerated colitis or CD until these people spoke about them.Then I had ask people "whats that?". So think what you want to.But if you want more info about what they did or took i can probably find out for you.Does that you will buy something from me, of course not but I’ll ask them anyway because it sound like some bad stuff you guys are dealing with.Maybe the info can help even if just a little. I hope that cleared things up a little. If not sorry to bother those i did but it was still worth the posting. Al
Response:
Hi Sherry, What you said is correct the loss weight for free post is just a contest to win nutritional products.These products used as a program can asstist people in losing the amount of weight they want to lose over time.The products I’m talking about are called Herbalife.The "Core" of this program,which was started in 1980, consists of basiclly a protien shake,a mlutivitamin(w/herb and minerals in it) and a cell activator(this helps in the absorbtion of the vitamins and minerals from the foods you eat) a supplement to support proper heart function,a antioxidant formula from Schizandra, and an herbal aloe drink. I think maybe one more product but I’m not sure.Anyway the basis of the program is this:With good cellular nutrition you will lose weight.You don’t have to want to lose weight to take these products.Taking care of your body is reason enough isn’t it?I dont sell these products for a living just on the side,as a matter of fact i think its been 2 months now.The reason i didnt talk about the products the in my first post is i dont know a lot about them yet,still learning.But at an HOM(Herbalife Opportunity Meeting) and a training i attended the same women was there and gave basically the same testimonial I wrote.This is not someone trying to blow smoke at you to make a couple of buck.Until I attended my first HOM I never even heard of colitis,ulcerated colitis or CD until these people spoke about them.Then I had ask people "whats that?". So think what you want to.But if you want more info about what they did or took i can probably find out for you.Does that you will buy something from me, of course not but I’ll ask them anyway because it sound like some bad stuff you guys are dealing with.Maybe the info can help even if just a little. I hope that cleared things up a little. If not sorry to bother those i did but it was still worth the posting. Al
Response:
This was his first post here and most of his other posts to other newsgroups are about losing weight for free. So I think its just more spam. I may be wrong but, I don’t think so. Sherry – Hide quoted text — Show quoted text – Al Did I miss something here. You told us your friend had been helped by a ‘nutritional program,’ but you never described it. Howard Honestly i know nothing about this stuff except for one thing. I have talked to 2 people with ulcerated colitis one of which said she had been suffering with this condition for 21 years. At the time i met here she was on a nutritional program that i was just starting.I dont know(off hand) how long she was on these products and i beleive she was still taking prescription medication.One thing I do know is that she credits these nutritional products for clearing up her
condition.Well to be more specific she says that the ulcers are clearing up.same thing for the CD for other people.Is CD a muscle or bone or fiber thing(no offence i justdont know)if it is this is what other people said cleared up on this progarm. PLEASE understand these products DO NOT claim to cure ANYTHING I’m just shareing the same information they shared with me. Im a newbie to newsgroups. Seen this one in a search and thought that if this info could maybe help one person it was worth any critcism. thanks AL
Response:
Al UC,CD, CC, and MC are all different types if IBD .. Whereas UC is located in the colon only, CD can be found anywhere from the mouth to the anus … MC, and CCare microscopic forms of colitis found in the underlying tissues of the colon … All CAN … but not always, react positively to a nutritional change of diet .. some of our regular posters are having positive results from the SCD Diet .. while some did not find the results beneficial .. everyone reacts differently to any form of meds, or diet change … BTW … Welcome to the newsgroup family Maryjo – CC class of ‘98
Response:
Al I appreciate that you feel you must pass this information on to those who might benefit. All I can say is that if we eat a good diet (I have my own feelings and beliefs on this and folks here know generally what it is) we shouldn’t actually need nutritional supplments. But one thing I’ve learnt is that you can’t convince or coax people to hear what they’re not ready to hear. Each comes to the best decision for themselves in their own way. Mandy
Response:
Al Did I miss something here. You told us your friend had been helped by a ‘nutritional program,’ but you never described it. Howard – Hide quoted text — Show quoted text – Honestly i know nothing about this stuff except for one thing. I have talked to 2 people with ulcerated colitis one of which said she had been suffering with this condition for 21 years. At the time i met here she was on a nutritional program that i was just starting.I dont know(off hand) how long she was on these products and i beleive she was still taking prescription medication.One thing I do know is that she credits these nutritional products for clearing up her condition.Well to be more specific she says that the ulcers are clearing up.same thing for the CD for other people.Is CD a muscle or bone or fiber thing(no offence i justdont know)if it is this is what other people said cleared up on this progarm. PLEASE understand these products DO NOT claim to cure ANYTHING I’m just shareing the same information they shared with me. Im a newbie to newsgroups. Seen this one in a search and thought that if this info could maybe help one person it was worth any critcism. thanks AL
Response:
Honestly i know nothing about this stuff except for one thing. I have talked to 2 people with ulcerated colitis one of which said she had been suffering with this condition for 21 years. At the time i met here she was on a nutritional program that i was just starting.I dont know(off hand) how long she was on these products and i beleive she was still taking prescription medication.One thing I do know is that she credits these nutritional products for clearing up her condition.Well to be more specific she says that the ulcers are clearing up.same thing for the CD for other people.Is CD a muscle or bone or fiber thing(no offence i justdont know)if it is this is what other people said cleared up on this progarm. PLEASE understand these products DO NOT claim to cure ANYTHING I’m just shareing the same information they shared with me. Im a newbie to newsgroups. Seen this one in a search and thought that if this info could maybe help one person it was worth any critcism. thanks AL
Response:
Related Posts
- Specific Carbohydrate Diet (SCD) for newbies (a mini-FAQ)
- Any one else have shortness of breath?
- War Is Not The World's Greatest Evil--Not Even Close
- How to deal with a depressed Crohn's sufferer?
- To ALL Persons Getting Their Supplies Thru Medicare
- Plea for help: new to newsgroup
- Mutants, Genes, Germs and Flames
- is there a FAQ page
- Newbie in despair--desperately needs encouragement and a hug
- Daughter in Hospital
Categories: