Question:

Please take the flaming and name-calling to email guys, it’s not appropriate here. What is Alt.support.crohns-colitis? Alt.support.crohns-colitis was created in early 1994 as a forum where people suffering from ulcerative colitis, Crohn’s Disease, and irritable bowel syndrome can share their everyday struggles with these illnesses, as well as discuss medicines, treatments, surgery, diet, health care providers, related illnesses, and anything else anyone can think of that relates to these diseases.  In other words, this is the online equivalent of a support group, which means that no question is stupid and no condition embarrassing here.  It also means we’re all here to help each other out, so please be nice, be polite, and no flaming. Discussions of all types of medicine- conventional and alternative, Western and Eastern, your Aunt Harriet’s home remedies, whatever- are welcome here; however, any person discussing a potential remedy which he or she also sells must explicitly begin the "Subject" header of their post with the word "AD" or "ADVERTISEMENT" in all caps, regardless of whether or not they profit from such sales.  Spamming is expressly forbidden as violating the rules of netiquette as well as those of this newsgroup.  Finally, please keep in mind that no one knows what causes these illnesses, no one’s come up with a cure, and we need all the help we can get.

Response:

I thought Mr. Milberg advocated that food allergies did *not* cause/cure Crohn’s.   Of course, since people without IBD react differently to different foods, it only follows that people with IBD will also react in different ways. Different foods will probably exacerbate symptoms in different people — and it would be helpful to those people to find out what those foods were. I over used the word "diffferent" because I think it is the one word that best describes Crohn’s. Everybody’s symptoms are different and everybody’s "best" treatment is different. I still think (as I though Mr. Milberg did) that the key to controlling the disease is medication and the key to curing it lies in genetics. Chris    

Response:

- Hide quoted text — Show quoted text – Jennifer:<BR <BR Try an elimination diet. You will find out many interesting things<BR about your eating habbits. Almost everyone I have spoken to that has<BR tried an elimination diet was amazed at some of the food that bothered<BR them. I know I was.<BR <BR <BR <BR    But what do I do to try it?  I’ve heard of it many times, but I’m not sure <BR how to do it.  <BR  Jennifer<BR <BR Jennifer:<BR <BR You really should do this with the help of a nutritionist. You simply<BR eat a baseline of non-allergenic food (why you should see a<BR nutritionist) and when you have stabilized (roughly 2 weeks) you<BR introduce foods one at a time over a couple of day period. You will<BR then know which foods cause an allergic reaction including delayed<BR food allergies.<BR <BR You can also get a (considered) less effective method by a blood test<BR called IgG ELISA.<BR <BR Hope this helps<BR <BR <BR </HTML Leon: Will you PLEASE STOP  pushing other people in this direction!!!!!!!   Group:  It is because of an "elimination diet" that I ended up being mis-diagnosed for MANY YEARS!!!!   Leon:  Furthermore, would you PLEASE also provide me, and the rest of this newsgroup with PROOF that food "alergies" cause Crohn’s or UC OR IBD in ANY shape or form!!  Also, PROOF that,  by eliminating the so-called bad food, that Crohn’s, UC and/or IBD are put into remission, or CURED!!!! Group:  I have stated this before and will continue to do so…. There is NO PROOF that change in diet will bring on remission or a cure!!! Changes in diet CAN and WILL provide TEMPORARY relief during a flare but that’s about it…. Further:  It is NOT your fault that you have this disease!!!  Do not fall further into the guilt trap that can be caused by postings such as Leon’s. While we can ALL agree that there are some foods that WILL cause problems: Popcorn, Lettuce, Nuts, etc.  ~ For the most part, there is NOTHING you can eat or eliminate that will prevent the disease from riding it’s own destined course….   Leon:  PLEASE remember that we are ALL very different!!  Ever since I’ve discovered this newsgroup you have slammed those of us without Prednisone Alternative choices, Pushed your "elimination" diet, etc.   Instead of speaking as an "expert" would you PLEASE try to remember that some of us have already dealt with the "experts" of the world and are somewhat vulnerable to exploitation! Group:  Learn, learn and learn some more about YOUR flavor of YOUR disease. Learn what works for YOU, ask questions, ask again, consult with the Docs and ask again!!!  …but, remember – until there is a REAL cure, these so-called "experts" are just people with good guesses, at best….  Regardless of their intentions, THINK FOR YOURSELF !!  !! ~Lisa L. Voll    Read between the lines, criticize the words they’re selling    Think for yourself and feel the walls…  become sand beneath your feet.   ~Chris DeGarmo, Geoff Tate

Lisa: What kind of moron are you? I have never, nor will I ever state that diet can cure IBD. At best it can provide increased comfort. You must be very ignorant to read all these wonderful things into my statements. I challenge you to show any post of mine that claims a cure. Actually I think your ignorance lies from you complete inability to follow a thread. It is also not my fault you had a poor diagnostician. It is also not my fault you can’t follow a thread. Now get off it. Eliminating allergenic foods can improve comfort. Because I advocate diet testing does not in any way equate to me believing it’s a cure. If you wish I can rewrite my posts monosyllabically so you might get a glimmer of a clue.

Response:

Jennifer: Try an elimination diet. You will find out many interesting things about your eating habbits. Almost everyone I have spoken to that has tried an elimination diet was amazed at some of the food that bothered them. I know I was.

    Thanks.  Now I  just have to find a nutritionist.  My friend’s dad is a nutritionist, I think.  I’ll have to try this.       Jennifer – Hide quoted text — Show quoted text –    But what do I do to try it?  I’ve heard of it many times, but I’m not sure how to do it.    Jennifer Jennifer: You really should do this with the help of a nutritionist. You simply eat a baseline of non-allergenic food (why you should see a nutritionist) and when you have stabilized (roughly 2 weeks) you introduce foods one at a time over a couple of day period. You will then know which foods cause an allergic reaction including delayed food allergies. You can also get a (considered) less effective method by a blood test called IgG ELISA. Hope this helps

to reply remove nospam from address

Response:

- Hide quoted text — Show quoted text – Hello Jennifer, My CD has been relatively quiet since my third resection about 12 years ago.  My bowel is a bit short, not enough to interfer with nutrition but when it gets started moving, it may be a bit hard to slow it down.   I have found diabetes easier to deal with. It doesn’t always do what I would expect, but I can see some cause and effect relationship with what I do.   I have gone to a multiple shot (usually 3) insulin schedule so that I don’t commit to eating 6 or 8 hours later.  Of course, I am committing to eating shortly after a shot and sometimes to a snack a few hours later. Good luck, Art Schor

    Thank so much!  This is all very overwhelming for me right now.  I feel reassured by all the responses I’ve gotten on the NG and via email.  I’ll feel even better when I know exactly what’s going on.  I would think that diabetes would be easier to control because we know what to do for it, while Crohn’s is much more of a mystery.  I still can’t pick out certain foods that bother me after 6 years, although I’ve ruled out eating so many things already.  Thanks again.        Jennifer to reply remove nospam from address

Response:

Jennifer: Try an elimination diet. You will find out many interesting things about your eating habbits. Almost everyone I have spoken to that has tried an elimination diet was amazed at some of the food that bothered them. I know I was.

Response:

Jennifer: Try an elimination diet. You will find out many interesting things about your eating habbits. Almost everyone I have spoken to that has tried an elimination diet was amazed at some of the food that bothered them. I know I was.

    But what do I do to try it?  I’ve heard of it many times, but I’m not sure how to do it.     Jennifer to reply remove nospam from address

Response:

Jennifer: Try an elimination diet. You will find out many interesting things about your eating habbits. Almost everyone I have spoken to that has tried an elimination diet was amazed at some of the food that bothered them. I know I was.    But what do I do to try it?  I’ve heard of it many times, but I’m not sure how to do it.    Jennifer

Jennifer: You really should do this with the help of a nutritionist. You simply eat a baseline of non-allergenic food (why you should see a nutritionist) and when you have stabilized (roughly 2 weeks) you introduce foods one at a time over a couple of day period. You will then know which foods cause an allergic reaction including delayed food allergies. You can also get a (considered) less effective method by a blood test called IgG ELISA. Hope this helps

Response:

- Hide quoted text — Show quoted text -Jennifer:<BR <BR Try an elimination diet. You will find out many interesting things<BR about your eating habbits. Almost everyone I have spoken to that has<BR tried an elimination diet was amazed at some of the food that bothered<BR them. I know I was.<BR <BR <BR <BR    But what do I do to try it?  I’ve heard of it many times, but I’m not sure <BR how to do it.  <BR  Jennifer<BR <BR Jennifer:<BR <BR You really should do this with the help of a nutritionist. You simply<BR eat a baseline of non-allergenic food (why you should see a<BR nutritionist) and when you have stabilized (roughly 2 weeks) you<BR introduce foods one at a time over a couple of day period. You will<BR then know which foods cause an allergic reaction including delayed<BR food allergies.<BR <BR You can also get a (considered) less effective method by a blood test<BR called IgG ELISA.<BR <BR Hope this helps<BR <BR <BR </HTML

Leon: Will you PLEASE STOP  pushing other people in this direction!!!!!!!   Group:  It is because of an "elimination diet" that I ended up being mis-diagnosed for MANY YEARS!!!!   Leon:  Furthermore, would you PLEASE also provide me, and the rest of this newsgroup with PROOF that food "alergies" cause Crohn’s or UC OR IBD in ANY shape or form!!  Also, PROOF that,  by eliminating the so-called bad food, that Crohn’s, UC and/or IBD are put into remission, or CURED!!!! Group:  I have stated this before and will continue to do so…. There is NO PROOF that change in diet will bring on remission or a cure!!! Changes in diet CAN and WILL provide TEMPORARY relief during a flare but that’s about it…. Further:  It is NOT your fault that you have this disease!!!  Do not fall further into the guilt trap that can be caused by postings such as Leon’s. While we can ALL agree that there are some foods that WILL cause problems: Popcorn, Lettuce, Nuts, etc.  ~ For the most part, there is NOTHING you can eat or eliminate that will prevent the disease from riding it’s own destined course….   Leon:  PLEASE remember that we are ALL very different!!  Ever since I’ve discovered this newsgroup you have slammed those of us without Prednisone Alternative choices, Pushed your "elimination" diet, etc.   Instead of speaking as an "expert" would you PLEASE try to remember that some of us have already dealt with the "experts" of the world and are somewhat vulnerable to exploitation! Group:  Learn, learn and learn some more about YOUR flavor of YOUR disease. Learn what works for YOU, ask questions, ask again, consult with the Docs and ask again!!!  …but, remember – until there is a REAL cure, these so-called "experts" are just people with good guesses, at best….  Regardless of their intentions, THINK FOR YOURSELF !!  !! ~Lisa L. Voll     Read between the lines, criticize the words they’re selling     Think for yourself and feel the walls…  become sand beneath your feet.   ~Chris DeGarmo, Geoff Tate

Response:

Hello Jennifer, My CD has been relatively quiet since my third resection about 12 years ago.  My bowel is a bit short, not enough to interfer with nutrition but when it gets started moving, it may be a bit hard to slow it down.   I have found diabetes easier to deal with. It doesn’t always do what I would expect, but I can see some cause and effect relationship with what I do.   I have gone to a multiple shot (usually 3) insulin schedule so that I don’t commit to eating 6 or 8 hours later.  Of course, I am committing to eating shortly after a shot and sometimes to a snack a few hours later. Good luck, Art Schor – Hide quoted text — Show quoted text – I have to agree with Steve that the symptoms  may be CD itself.  The timing of one to two hours might indicate when food was moving through a battered section of the upper small intestine. Another possibility is reactive hyoglyemia.  This isn’t diabetes but has a familiar connection to diabetes.  In diabetics without reactive hypoglyemia,  this reaction only occurs when taking certain oral agents or insulin and running out of glucose ("food") before running out of insulin. If some one  around you has a glucose meter or you can borrow a backup meter from someone in the family, you can test during an attack.  Get instruction on using the meter and make sure to change the lancet in the finger sticker thing. before you use it and before you return it. I had CD symptoms about 44 years ago and was diagnosed 35 years ago.  I have had type II diabetes under treatment for over 10 years and used diet, oral agents and, now, insulin. Art Schor     Thanks for the advice, it reassured me.  I’m thinking it’s either what you say- a Crohn’s problem, or that it really is diabetes.  I do know that one can have low blood sugar without having diabetes.  It’s just the family history that gets me paranoid.  I have enough problems with CD that I don’t need another  serious illness!   I’m sorry to hear that you have both.  Which one do you find more difficult to control?  And is it a problem to eat the foods you need  with the CD?  Thanks.      Jennifer to reply remove nospam from address

Response:

- Hide quoted text — Show quoted text – I have to agree with Steve that the symptoms  may be CD itself.  The timing of one to two hours might indicate when food was moving through a battered section of the upper small intestine. Another possibility is reactive hyoglyemia.  This isn’t diabetes but has a familiar connection to diabetes.  In diabetics without reactive hypoglyemia,  this reaction only occurs when taking certain oral agents or insulin and running out of glucose ("food") before running out of insulin. If some one  around you has a glucose meter or you can borrow a backup meter from someone in the family, you can test during an attack.  Get instruction on using the meter and make sure to change the lancet in the finger sticker thing. before you use it and before you return it. I had CD symptoms about 44 years ago and was diagnosed 35 years ago.  I have had type II diabetes under treatment for over 10 years and used diet, oral agents and, now, insulin. Art Schor

    Thanks for the advice, it reassured me.  I’m thinking it’s either what you say- a Crohn’s problem, or that it really is diabetes.  I do know that one can have low blood sugar without having diabetes.  It’s just the family history that gets me paranoid.  I have enough problems with CD that I don’t need another  serious illness!   I’m sorry to hear that you have both.  Which one do you find more difficult to control?  And is it a problem to eat the foods you need  with the CD?  Thanks.      Jennifer to reply remove nospam from address

Response:

I have to agree with Steve that the symptoms  may be CD itself.  The timing of one to two hours might indicate when food was moving through a battered section of the upper small intestine. This is consistant with what I have experienced. About 2 hours after I eat I start experiencing horrible pain and I have small bowel crohn’s. I wait till late in the day to start eating and drink supplements in the am that way I only have to be in pain part of the day. Rachael

    Even if I don’t eat, I get the shakes, although not as bad as when I do eat.  I have pain all the time anyway.  If I didn’t eat, I would still have problems.  I’m very hungry in the morning, but I can’t eat much at night- that’s when my pain is the worst.      Jennifer to reply remove nospam from address

Response:

I have to agree with Steve that the symptoms  may be CD itself.  The timing of one to two hours might indicate when food was moving through a battered section of the upper small intestine. Another possibility is reactive hyoglyemia.  This isn’t diabetes but has a familiar connection to diabetes.  In diabetics without reactive hypoglyemia,  this reaction only occurs when taking certain oral agents or insulin and running out of glucose ("food") before running out of insulin. If some one  around you has a glucose meter or you can borrow a backup meter from someone in the family, you can test during an attack.  Get instruction on using the meter and make sure to change the lancet in the finger sticker thing. before you use it and before you return it. I had CD symptoms about 44 years ago and was diagnosed 35 years ago.  I have had type II diabetes under treatment for over 10 years and used diet, oral agents and, now, insulin. Art Schor – Hide quoted text — Show quoted text –    I’ve been having problems like getting the shakes and sweating only an hour or two after eating.  I was wondering if anyone knows if this can be caused by Crohn’s, or if I have diabetes too.  Diabetes does run in my family, but I’m not at high risk for it.  I’m going to talk to my doctor about it when I have my appointment in two weeks.  Thanks.       Jennifer to reply remove nospam from address I do not know about the blood sugar, but eating has and caused me great pain, fever, sweating, not sure about shaking as I already do that anyway. Please visit my site http://home1.gte.net/sputers/index.html http://www.geocities.com/HotSprings/Spa/4001/ Key ID 0×69D430FB Key fingerprint = A706 43EC 13B6 D8E4 9F19  F2D4 63A8 E71D 69D4 30FB Public Key located in the Public Key Directory at:               <http://www.pgp.com/ or e-mail with Public Key as the subject line – - – - – - – - – - – - – - – - – - – - – - – - – - "I’m sick and tired of having to rearrange my life     because of what the STUPIDEST people *might* do or     how they *might* react."        – Bill Maher

Response:

I have to agree with Steve that the symptoms  may be CD itself.  The timing of one to two hours might indicate when food was moving through a battered section of the upper small intestine.

This is consistant with what I have experienced. About 2 hours after I eat I start experiencing horrible pain and I have small bowel crohn’s. I wait till late in the day to start eating and drink supplements in the am that way I only have to be in pain part of the day. Rachael

Response:

    I’ve been having problems like getting the shakes and sweating only an hour or two after eating.  I was wondering if anyone knows if this can be caused by Crohn’s, or if I have diabetes too.  Diabetes does run in my family, but I’m not at high risk for it.  I’m going to talk to my doctor about it when I have my appointment in two weeks.  Thanks.        Jennifer to reply remove nospam from address

Response:

   I’ve been having problems like getting the shakes and sweating only an hour or two after eating.  I was wondering if anyone knows if this can be caused by Crohn’s, or if I have diabetes too.  Diabetes does run in my family, but I’m not at high risk for it.  I’m going to talk to my doctor about it when I have my appointment in two weeks.  Thanks.       Jennifer to reply remove nospam from address

I do not know about the blood sugar, but eating has and caused me great pain, fever, sweating, not sure about shaking as I already do that anyway. Please visit my site http://home1.gte.net/sputers/index.html http://www.geocities.com/HotSprings/Spa/4001/ Key ID 0×69D430FB Key fingerprint = A706 43EC 13B6 D8E4 9F19  F2D4 63A8 E71D 69D4 30FB Public Key located in the Public Key Directory at:               <http://www.pgp.com/ or e-mail with Public Key as the subject line – - – - – - – - – - – - – - – - – - – - – - – - – - "I’m sick and tired of having to rearrange my life     because of what the STUPIDEST people *might* do or     how they *might* react."        – Bill Maher

Response:

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