My Crohn's and Colitis Blog » Lymphocytic Colitis » Collagenous Colitis (lymphocytic)
Collagenous Colitis (lymphocytic)
Question:
I don’t think I’ve ever heard anyone mention that only certain TYPES of colitis are invited here! Welcome to the group! Sorry I can’t help with more information about your form of colitis. Best of luck to your wife and you! Kathi
Response:
I too was diagnosed with microscopic colitis at about the same time your wife was. I tried the Asacol route but had a serious flare up this last week so I began taking prednisone (a corticosteroid). I feel like a completely new person right now. For almost 10 years I have had symptoms that were apparently all indicative of an autoimmune disorder, but every time I would go to a doctor they would only look at the current symptom and never consider my medical history. I finally had a major flare up with multiple symptoms and had a doctor who was informed enough to take a complete history. This has made all the difference in the world. I fell like there might be light at the end of the tunnel after all. They are thinking that I might have lupus as well as the colitis, but are still doing testing. I have also printed out the information about treatment with pepto bismol to take to my doctor and let him read it. I have full faith in my gastroenterologist and will take his advice. Personally, I am thinking that if I can go into remission by taking pepto bismol instead of prednisone…OK! If not, well I am just so happy to be symptom free right now. I would suggest your wife might want to persue the possibility of celiac sprue as well as microscopic colitis, mostly because the vomiting was her first symptom. Find a good doctor who is willing to work with her and not just prescribe the latest medication. I am surprised that the Gastroenterologist referred her back to her primary care physician without first setting up a treatment plan for her. Best of luck to you both and I hope she is able to find some relief soon. Bonita
Response:
Hi- We are new to this newsgroup as of this article. I will try to give a history, and then ask some questions in future posts. My wife (40 yrs old) has just been diagnosed with lymphocytic colitis (a couple of days ago). The specialist’s office called back after weeks of a variety of tests, finally doing a colonscopy. The colonoscopy looked OK, but microscopic inspection of some tissue found the problem. This took about 2 months from her first attack. The only information we have so far is what I have found on the internet. Our primary care provider is out until Monday so I have been searching the internet and stumbled onto this group. I will go into more detail about the events that we think led up to this. We are thrilled to finally have a diagnosis, and understand it a little better based on what we have read on the internet (especially at http://qurlyjoe.bu.edu/cducibs/colcolfaq.html ). 12/27/98: We had a boiled dinner (Ham/potatoes etc.) which I wonder might have been the initial reason for her attack(s). Everything was fine until a couple of days later. 12/29/98: 7pm We had spaghetti with meatballs) 11pm: My wife started vomiting. The vomiting occurred every 15 minutes for about 4 hours hours. We finally called a doctor. The doc said it was probably the flu. After a couple more hours of vomiting we decided to go to the Emergency Room. She became dehydrated. A number of blood tests were done. On an Xray they thought they saw a partial blockage in the intestine, which other docs seemed to have discounted later. She was put on a restrictive diet by her primary care doc. the most chronic sympton (which she has currently) is constant watery diarrhea and (now) mild abdominal pain and bloating, and somewat chronic fatique at the end of the day. 12/30-1/6/99: She felt somewhat nauseated and weak did not go to work at all. She called the doctor back and had some more tests scheduled. 1/20/99 (approx): She had more Xrays, blood tests, and an upper GI all came back fine. she had last about 15 lbs since 12/30. 2/10/99: Coloscopy done. Colon looked normal during the procedure. Some tissues were take for biopsy’s. 2/25/99: Specialist’s office called back with a diagnosis of Lymphocytic colitis. They were unable to (or unwilling explain what it was or meantat that time). They said talk to primary care doc. 2/26/99: Called primary care doc, on vacation, call back Monday. During this time anytime she would go away from the restrictive diet (like any meat such hamburgers, steak etc. – she would feel nausea, and sometimes vomit. She only did steered from her diet 3 times in the past 2 months. Each time she did she would pay for it We discovered giardia in our well last summer (7/98) after some very unusual floods that hit in June and July. We are beginning to think that this may have been the beginning cause of her problems. Atleast in some of the research on the internet it sounds like that could possibly be one of root causes. We discovered last summer it because my wife raises cats and some of them were getting sick, and we had our well water tested after ruling out a bunch of other things for the cats. We would be anxious to hear from others with the same or other similar diagnosis. If this is not the place to discuss this particular disease let us know. Thank you very much.
Response:
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