Question:
Nora – you poor thing, perhaps you can take some solice in the fact that you are not the only here who has had that happen, but I don’t burn my undies, just throw them out.
Jeff 2
– Hide quoted text — Show quoted text – This evening I was transporting a client in a state car, when I had sharp abdominal pains and nausea. Very intense. I started to break out in a sweat and I was shaking. I was only a couple of minutes from a toilet. I didn’t make it. I was incontinent, WITH A CLIENT!! I had to use her toilet to finish my diarrhea and then rushed out because I had "shit my pants". As I hobbled out to the car, I couldn’t help but remember an old Irish great aunt who use to mock the way her husband walked, "He walks like he’s got shit in his pants!" (We weren’t lace curtain Irish.) Of course the doc says I have very mild Chrons with IBS, so mild I shit my pants. I haven’t done that since I was four years old, (and of course five other previous episodes with this illness). I had to rush home, shower, and change my clothes. The underwear will be burned. I’m taking immodium, and it’s not holding me. Thanks for letting me share my (funny?) story. Nora
Response:
Correct, resections make diarrhea worse, at least in my case.
– Hide quoted text — Show quoted text – if it’s so bad that these don’t work then you can have a resection. All these should help with the diarrhea. Resections make diarrhea worse, not better. You lose all that absorptive surface area; that’s especially bad when what you are trying to absorb is bile salts; if you can’t absorb them in the end of the small intestine, as normally happens, they move on into the colon, where they act like (unwanted) laxatives.
Response:
as my flare worsened my GI gave me a sample of NuLev to lessen the cramping that went with the diarrhea. It helped the cramping symptoms a little, but the flare kept worsening. I felt so bad I ended up going the the ER on Aug 3, and spent 22 days in the hospital trying to get better. My symptoms are greatly lessened (no blood in stools, only mild abdominal pain, only 5-6 bowel movements/day), but I’m still not better. NuLev may help some of your symptoms, but it will not likely send your flare into remission. Good Luck! Doug
– Hide quoted text — Show quoted text – I see him next Tuesday, and will ask for it. I want it!! Thank you very much for the recommendation. Nora Correction – NuLev is for IBS (Irritable Bowel, not Inflammatory Bowel). I mis-typed. My GI gave it to me for Crohn’s, however. Geo
Response:
if it’s so bad that these don’t work then you can have a resection. All these should help with the diarrhea.
Resections make diarrhea worse, not better. You lose all that absorptive surface area; that’s especially bad when what you are trying to absorb is bile salts; if you can’t absorb them in the end of the small intestine, as normally happens, they move on into the colon, where they act like (unwanted) laxatives.
Response:
Before my second resection I was warned that the diarrhoea would be worse. And it is! As NA says it’s because of the bile salts. By the way, just noticed that UK ans US spelling of Diarrhoea seems to be different. Mel
– Hide quoted text — Show quoted text – if it’s so bad that these don’t work then you can have a resection. All these should help with the diarrhea. Resections make diarrhea worse, not better. You lose all that absorptive surface area; that’s especially bad when what you are trying to absorb is bile salts; if you can’t absorb them in the end of the small intestine, as normally happens, they move on into the colon, where they act like (unwanted) laxatives.
Response:
I better pump myself up with tea and get it all out before work. I work 2nd shift, so I’d have plenty of time. I requested Lomotil, but the last couple of days, immodium has held me during work. I’ve lost nine pounds and now weight 123. I’m becoming nauseous when experiencing diarrhea cramps. I’m 5′6" and 130 has always been a good weight for me. I look at myself and see Maria Shriver, all big Irish jaw. I see my collar bones sticking out and my wrist watch is rolling around on my wrist. I guess I can really play it up at work. The suffering martyr coming to work for the good of the clients she serves. (Maybe I’ll get a better employee evaluation!! :) – Hide quoted text — Show quoted text -Nora- I’ve been there… although only with family and friends. Hang in there…. know that you are not alone. We can sure relate!
Response:
I see him next Tuesday, and will ask for it. I want it!! Thank you very much for the recommendation. Nora – Hide quoted text — Show quoted text -Correction – NuLev is for IBS (Irritable Bowel, not Inflammatory Bowel). I mis-typed. My GI gave it to me for Crohn’s, however. Geo
Response:
Nora- I’ve been there… although only with family and friends. Hang in there…. know that you are not alone. We can sure relate!
Response:
Hey annie, That is oneof the ways that I manage to work while having Crohn’s as well. Isn’t it funny the survival mechanisms that we have to develop. *LOL* Ann
– Hide quoted text — Show quoted text – This evening I was transporting a client in a state car, when I had sharp abdominal pains and nausea. Very intense. I started to break out in a sweat and I was shaking. I was only a couple of minutes from a toilet. I didn’t make it. I was incontinent, WITH A CLIENT!! I had to use her toilet to finish my diarrhea and then rushed out because I had "shit my pants". As I hobbled out to the car, I couldn’t help but remember an old Irish great aunt who use to mock the way her husband walked, "He walks like he’s got shit in his pants!" (We weren’t lace curtain Irish.) Of course the doc says I have very mild Chrons with IBS, so mild I shit my pants. I haven’t done that since I was four years old, (and of course five other previous episodes with this illness). I had to rush home, shower, and change my clothes. The underwear will be burned. I’m taking immodium, and it’s not holding me. Thanks for letting me share my (funny?) story. Nora hi nora you poor thing..it must have been horrid..am glad u can see the humor? in it lol i have only shit in my pants once recently and that was last week when i went into a flare….immodium didnt hold me either…its gotta be ther worst feeling..but luckily i was home…just with my husband who totally understands..and could shower and change and wash my stuff in the machine.. all i can suggest..is what i used ot do when i used ot work…i would get the shits in the early morning..so i drank coffee..lots of it..well before i left for work..spent lotsa time in the john..and went on to work basically empty..by the time lunchtime came my tummy had settled down..(i rarely get the craps later than noon..tho last week it was evening lol)…but this cleaning out with coffee seemed to get me thru several years of working with ibd.. take care annie
Response:
Hi Geo! I use NuLev for general or mild cramping and bloating, and Levbid for more severe problems. They’re both the same main ingredient (hyoscyamine) just different strengths, and work wonders for me. Hope it works for you when necessary. Christine CD
– Hide quoted text — Show quoted text – Has anyone tried NuLev? I saw my GI a few days ago and she gave me free samples of it to try. When you feel pain, bloating and diarrhea coming on you disolve a tablet under your tongue (takes just a few seconds) and it is supposed to provide immediate relief. Says on the package it is for diarrhea associated with IBS (inflammatory bowel) but I have mild Crohn’s and it was reccomended to me. I havn’t tried it yet because I don’t have that problem very often. Geo
Response:
- Hide quoted text — Show quoted text – This evening I was transporting a client in a state car, when I had sharp abdominal pains and nausea. Very intense. I started to break out in a sweat and I was shaking. I was only a couple of minutes from a toilet. I didn’t make it. I was incontinent, WITH A CLIENT!! I had to use her toilet to finish my diarrhea and then rushed out because I had "shit my pants". As I hobbled out to the car, I couldn’t help but remember an old Irish great aunt who use to mock the way her husband walked, "He walks like he’s got shit in his pants!" (We weren’t lace curtain Irish.) Of course the doc says I have very mild Chrons with IBS, so mild I shit my pants. I haven’t done that since I was four years old, (and of course five other previous episodes with this illness). I had to rush home, shower, and change my clothes. The underwear will be burned. I’m taking immodium, and it’s not holding me. Thanks for letting me share my (funny?) story. Nora
hi nora you poor thing..it must have been horrid..am glad u can see the humor? in it lol i have only shit in my pants once recently and that was last week when i went into a flare….immodium didnt hold me either…its gotta be ther worst feeling..but luckily i was home…just with my husband who totally understands..and could shower and change and wash my stuff in the machine.. all i can suggest..is what i used ot do when i used ot work…i would get the shits in the early morning..so i drank coffee..lots of it..well before i left for work..spent lotsa time in the john..and went on to work basically empty..by the time lunchtime came my tummy had settled down..(i rarely get the craps later than noon..tho last week it was evening lol)…but this cleaning out with coffee seemed to get me thru several years of working with ibd.. take care annie
Response:
These are good suggestions but you most find the cause of the diarrhea and treat the cause not the symptoms. If you’re not on a steroid you could start that right away. 6MP is good for the long term. And if it’s so bad that these don’t work then you can have a resection. All these should help with the diarrhea. If you just try to stop the diarrhea itself, the CD could just get worse and worse.
– Hide quoted text — Show quoted text – Thank you all for your great responses. I had a colonoscopy six weeks ago, and I seem to have become sicker since then. I was put on Clinidian and Immodium, but am going to ask for Lomotil tomorrow. I will take Ann’s suggestion of extra panty liners and personal wipes. That is a great idea and I will persue this immediately. Thank you everyone. Nora This evening I was transporting a client in a state car, when I had sharp abdominal pains and nausea. Very intense. I started to break out in a sweat and I was shaking. I was only a couple of minutes from a toilet. I didn’t make it. I was incontinent, WITH A CLIENT!! I had to use her toilet to finish my diarrhea and then rushed out because I had "shit my pants". As I hobbled out to the car, I couldn’t help but remember an old Irish great aunt who use to mock the way her husband walked, "He walks like he’s got shit in his pants!" (We weren’t lace curtain Irish.) Of course the doc says I have very mild Chrons with IBS, so mild I shit my pants. I haven’t done that since I was four years old, (and of course five other previous episodes with this illness). I had to rush home, shower, and change my clothes. The underwear will be burned. I’m taking immodium, and it’s not holding me. Thanks for letting me share my (funny?) story. Nora
Response:
Thank you all for your great responses. I had a colonoscopy six weeks ago, and I seem to have become sicker since then. I was put on Clinidian and Immodium, but am going to ask for Lomotil tomorrow. I will take Ann’s suggestion of extra panty liners and personal wipes. That is a great idea and I will persue this immediately. Thank you everyone. Nora – Hide quoted text — Show quoted text – This evening I was transporting a client in a state car, when I had sharp abdominal pains and nausea. Very intense. I started to break out in a sweat and I was shaking. I was only a couple of minutes from a toilet. I didn’t make it. I was incontinent, WITH A CLIENT!! I had to use her toilet to finish my diarrhea and then rushed out because I had "shit my pants". As I hobbled out to the car, I couldn’t help but remember an old Irish great aunt who use to mock the way her husband walked, "He walks like he’s got shit in his pants!" (We weren’t lace curtain Irish.) Of course the doc says I have very mild Chrons with IBS, so mild I shit my pants. I haven’t done that since I was four years old, (and of course five other previous episodes with this illness). I had to rush home, shower, and change my clothes. The underwear will be burned. I’m taking immodium, and it’s not holding me. Thanks for letting me share my (funny?) story. Nora
Response:
Has anyone tried NuLev? I saw my GI a few days ago and she gave me free samples of it to try. When you feel pain, bloating and diarrhea coming on you disolve a tablet under your tongue (takes just a few seconds) and it is supposed to provide immediate relief. Says on the package it is for diarrhea associated with IBS (inflammatory bowel) but I have mild Crohn’s and it was reccomended to me. I havn’t tried it yet because I don’t have that problem very often. Geo
Response:
Correction – NuLev is for IBS (Irritable Bowel, not Inflammatory Bowel). I mis-typed. My GI gave it to me for Crohn’s, however. Geo
Response:
Never tried it so let us know how it works when you need to take it. Just so you know IBS is irritable syndrome not irritable bowel disease. UM MOM Susan
– Hide quoted text — Show quoted text – Has anyone tried NuLev? I saw my GI a few days ago and she gave me free samples of it to try. When you feel pain, bloating and diarrhea coming on you disolve a tablet under your tongue (takes just a few seconds) and it is supposed to provide immediate relief. Says on the package it is for diarrhea associated with IBS (inflammatory bowel) but I have mild Crohn’s and it was reccomended to me. I havn’t tried it yet because I don’t have that problem very often. Geo
Response:
ann, you are a very sweet person with great ideas. thank you for contributing. -mari – Path: tor-nn1.netcom.ca!tor-nx1.netcom.ca!newspeer.radix.net!news- spur1.maxwell.syr.edu!news.maxwell.syr.edu!nntp.abs.net! newsfeed2.telusplanet.net!newsfeed.telus.net!edtnps84.POSTED!not-for-mail – Newsgroups: alt.support.crohns-colitis – Lines: 49 – X-Priority: 3 – X-MSMail-Priority: Normal – X-Newsreader: Microsoft Outlook Express 6.00.2800.1158 – X-MimeOLE: Produced By Microsoft MimeOLE V6.00.2800.1165 – NNTP-Posting-Host: 161.184.180.65 – Xref: tor-nx1.netcom.ca alt.support.crohns-colitis:279552 – – Nora, – – That really sucks. I know that I have had many very close calls in similar – situations, but it has never happened when I was with a client. It has when – I have been by myself though…I have been lucky. – – I think that it is a good idea to look at a more effective antidiareal (sp?) – medication. I also always use extra coverage panty liners, so if it is a – mild accident, I can run to a bathroom and get rid of the evidence before it – becomes an issue. I carry extra panty liners and moist flushable wipes in – my purse at all times. That way, I can also clean myself up. – – By the way, it doesn’t sound to me as if your Crohn’s is all that mild. – Perhaps you need to talk to your Doc about this. When is the last time that – you had a colonoscopy? – – I noticed that your post was called "My worst fear happened!" Isn’t it – amazing how we can survive what we are most scared of? I put experiences – like that under the that which does not kill you makes you stronger – category. That is probably why people with IBD are so strong! – – *HUGS* – – Ann – – – – – –
– This evening I was transporting a client in a state car, when I had – sharp abdominal pains and nausea. Very intense. I started to break – out in a sweat and I was shaking. I was only a couple of minutes from – a toilet. I didn’t make it. I was incontinent, WITH A CLIENT!! I – had to use her toilet to finish my diarrhea and then rushed out – because I had "shit my pants". As I hobbled out to the car, I – couldn’t help but remember an old Irish great aunt who use to mock the – way her husband walked, "He walks like he’s got shit in his pants!" – (We weren’t lace curtain Irish.) Of course the doc says I have very – mild Chrons with IBS, so mild I shit my pants. I haven’t done that – since I was four years old, (and of course five other previous – episodes with this illness). I had to rush home, shower, and change – my clothes. The underwear will be burned. I’m taking immodium, and – it’s not holding me. Thanks for letting me share my (funny?) story. – Nora – –
Response:
Yep. Been there. Done that. As it were.
– Hide quoted text — Show quoted text – This evening I was transporting a client in a state car, when I had sharp abdominal pains and nausea. Very intense. I started to break out in a sweat and I was shaking. I was only a couple of minutes from a toilet. I didn’t make it. I was incontinent, WITH A CLIENT!! I had to use her toilet to finish my diarrhea and then rushed out because I had "shit my pants". As I hobbled out to the car, I couldn’t help but remember an old Irish great aunt who use to mock the way her husband walked, "He walks like he’s got shit in his pants!" (We weren’t lace curtain Irish.) Of course the doc says I have very mild Chrons with IBS, so mild I shit my pants. I haven’t done that since I was four years old, (and of course five other previous episodes with this illness). I had to rush home, shower, and change my clothes. The underwear will be burned. I’m taking immodium, and it’s not holding me. Thanks for letting me share my (funny?) story. Nora
Response:
that happened to me once when i was sightseeing with a boyfriend. i wasnt anywhere near home and i was totally miserable. it really is the worst nightmare isnt it? -mari – Path: tor-nn1.netcom.ca!tor-nx1.netcom.ca!priapus.visi.com!news- out.visi.com!green.readfreenews.net!news.readfreenews.net!cox.net!news- xfer.cox.net!in.100proofnews.com!in.100proofnews.com!prodigy.com! newsmst01.news.prodigy.com!prodigy.com!postmaster.news.prodigy.com! newssvr31.news.prodigy.com.POSTED!e526535b!not-for-mail – Newsgroups: alt.support.crohns-colitis – X-Newsreader: Forte Agent 1.91/32.564 – MIME-Version: 1.0 – Content-Type: text/plain; charset=us-ascii – Content-Transfer-Encoding: 7bit – Lines: 15 – NNTP-Posting-Host: 64.252.96.189 – X-Trace: newssvr31.news.prodigy.com 1062389702 ST000 64.252.96.189 (Mon, 01 Sep 2003 00:15:02 EDT) – Organization: SBC http://yahoo.sbc.com – X-UserInfo1: [[^D^JVUC[[LJKD]_LAPJYZTBMV [0;1;40;36mLWQHBATBTSUBYFWEAE – Xref: tor-nx1.netcom.ca alt.support.crohns-colitis:279531 – – This evening I was transporting a client in a state car, when I had – sharp abdominal pains and nausea. Very intense. I started to break – out in a sweat and I was shaking. I was only a couple of minutes from – a toilet. I didn’t make it. I was incontinent, WITH A CLIENT!! I – had to use her toilet to finish my diarrhea and then rushed out – because I had "shit my pants". As I hobbled out to the car, I – couldn’t help but remember an old Irish great aunt who use to mock the – way her husband walked, "He walks like he’s got shit in his pants!" – (We weren’t lace curtain Irish.) Of course the doc says I have very – mild Chrons with IBS, so mild I shit my pants. I haven’t done that – since I was four years old, (and of course five other previous – episodes with this illness). I had to rush home, shower, and change – my clothes. The underwear will be burned. I’m taking immodium, and – it’s not holding me. Thanks for letting me share my (funny?) story. – Nora
Response:
Hi Nora! I’m so sorry that happened to you! That must have been horrible! Take care!!!! Marlena – Hide quoted text — Show quoted text – This evening I was transporting a client in a state car, when I had sharp abdominal pains and nausea. Very intense. I started to break out in a sweat and I was shaking. I was only a couple of minutes from a toilet. I didn’t make it. I was incontinent, WITH A CLIENT!! I had to use her toilet to finish my diarrhea and then rushed out because I had "shit my pants". As I hobbled out to the car, I couldn’t help but remember an old Irish great aunt who use to mock the way her husband walked, "He walks like he’s got shit in his pants!" (We weren’t lace curtain Irish.) Of course the doc says I have very mild Chrons with IBS, so mild I shit my pants. I haven’t done that since I was four years old, (and of course five other previous episodes with this illness). I had to rush home, shower, and change my clothes. The underwear will be burned. I’m taking immodium, and it’s not holding me. Thanks for letting me share my (funny?) story. Nora
Response:
Nora, That really sucks. I know that I have had many very close calls in similar situations, but it has never happened when I was with a client. It has when I have been by myself though…I have been lucky. I think that it is a good idea to look at a more effective antidiareal (sp?) medication. I also always use extra coverage panty liners, so if it is a mild accident, I can run to a bathroom and get rid of the evidence before it becomes an issue. I carry extra panty liners and moist flushable wipes in my purse at all times. That way, I can also clean myself up. By the way, it doesn’t sound to me as if your Crohn’s is all that mild. Perhaps you need to talk to your Doc about this. When is the last time that you had a colonoscopy? I noticed that your post was called "My worst fear happened!" Isn’t it amazing how we can survive what we are most scared of? I put experiences like that under the that which does not kill you makes you stronger category. That is probably why people with IBD are so strong! *HUGS* Ann
– Hide quoted text — Show quoted text – This evening I was transporting a client in a state car, when I had sharp abdominal pains and nausea. Very intense. I started to break out in a sweat and I was shaking. I was only a couple of minutes from a toilet. I didn’t make it. I was incontinent, WITH A CLIENT!! I had to use her toilet to finish my diarrhea and then rushed out because I had "shit my pants". As I hobbled out to the car, I couldn’t help but remember an old Irish great aunt who use to mock the way her husband walked, "He walks like he’s got shit in his pants!" (We weren’t lace curtain Irish.) Of course the doc says I have very mild Chrons with IBS, so mild I shit my pants. I haven’t done that since I was four years old, (and of course five other previous episodes with this illness). I had to rush home, shower, and change my clothes. The underwear will be burned. I’m taking immodium, and it’s not holding me. Thanks for letting me share my (funny?) story. Nora
Response:
I took Lomotil for years. It is effective, but the body builds a tolerance to it, and I had to keep taking larger and larger doses to achieve the same effect. But it’s a logical place to start, in an attempt to control your diarrhea. However, I think incontinence is a good indication of your need for the gold standard of antidiarrheals: deodorized tincture of opium, or DTO. My doc gave me a prescription for it years ago, after a couple incidents like yours. It genuinely improved my life. The correct dose will give me four or more hours of no trips to the toilet, with 90% to 95% reliability. Its additional benefit is that it’s by far the cheapest antidiarrheal per dose, even if your health insurance won’t pay for it (and it probably won’t). The down side is that it is an opiate, and subject to abuse by people who tend to abuse those sorts of things. But I notice no "mental" effects at all with my normal dose, and I drive all the time with it on board, so to speak. I accidentally took a double dose one time, and it just made me sleepy for a few hours. Wayne Marsh Minneapolis, Minnesota, USA
Response:
Nora, are you taking anything for this D? Immodium, cholestrymine?
Response:
I take two colestid per day (two sachets I use the powder form) and it really helps. What medicines are you on? There’s lots you can do for the big D.
– Hide quoted text — Show quoted text – This evening I was transporting a client in a state car, when I had sharp abdominal pains and nausea. Very intense. I started to break out in a sweat and I was shaking. I was only a couple of minutes from a toilet. I didn’t make it. I was incontinent, WITH A CLIENT!! I had to use her toilet to finish my diarrhea and then rushed out because I had "shit my pants". As I hobbled out to the car, I couldn’t help but remember an old Irish great aunt who use to mock the way her husband walked, "He walks like he’s got shit in his pants!" (We weren’t lace curtain Irish.) Of course the doc says I have very mild Chrons with IBS, so mild I shit my pants. I haven’t done that since I was four years old, (and of course five other previous episodes with this illness). I had to rush home, shower, and change my clothes. The underwear will be burned. I’m taking immodium, and it’s not holding me. Thanks for letting me share my (funny?) story. Nora
Response:
This evening I was transporting a client in a state car, when I had sharp abdominal pains and nausea. Very intense. I started to break out in a sweat and I was shaking. I was only a couple of minutes from a toilet. I didn’t make it. I was incontinent, WITH A CLIENT!! I had to use her toilet to finish my diarrhea and then rushed out because I had "shit my pants". As I hobbled out to the car, I couldn’t help but remember an old Irish great aunt who use to mock the way her husband walked, "He walks like he’s got shit in his pants!" (We weren’t lace curtain Irish.) Of course the doc says I have very mild Chrons with IBS, so mild I shit my pants. I haven’t done that since I was four years old, (and of course five other previous episodes with this illness). I had to rush home, shower, and change my clothes. The underwear will be burned. I’m taking immodium, and it’s not holding me. Thanks for letting me share my (funny?) story. Nora
Response: