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Stoma
Question:
Go for it Barbara!!!!!! – Hide quoted text — Show quoted text – My wife has Crohn’s disease for about 12 years now. She had 2 surgeries and afterwards she felt better. Now things are going worse again and her specialist told her she might need a stoma if things won’t improve in time. This frightens her of course and she has a real negative idea about this. Is there anyone who can tell us about his or hers experience with a stoma?
Response:
My wife has Crohn’s disease for about 12 years now. She had 2 surgeries and afterwards she felt better. Now things are going worse again and her specialist told her she might need a stoma if things won’t improve in time. This frightens her of course and she has a real negative idea about this. Is there anyone who can tell us about his or hers experience with a stoma?
I remember the time when my gastroenterologist first mentioned the possibility of having a ileostomy, stoma. I told my wife I would rather die. That was several years ago when I was very negative about having a "bag" As it has turned out it was one of the best decisions I have made. The pain has gone. The pluses are almost to many to list in this reply. My wife and I have got our life back. We can go out together without the fear of pain, running to the toilet, the mess I would make at home trying to get to the bathroom on my hands and knees. There are still moments of mild depression, body image etc, but I’ll never forget waking up in the intensive care ward after my surgery was completed. The crohn’s pain HAD GONE. I can remember the pain from the operation and I was hurting a lot, but nevertheless that horrible, persistant, crohn’s pain was gone. But I’m sure you will get other view points, you couldn’t have come to a better place for comments and support. You might like to check out alt.support.ostomy as well. John Harman(I)
Response:
I had Crohn’s and had an ileostomy in 1975 and have never regretted it. Your wife can email me if she likes. Also the suggestion of alt.support.ostomy is a good one too. Love, Bonnie aka DAWN
Response:
My wife has Crohn’s disease for about 12 years now. She had 2 surgeries and afterwards she felt better. Now things are going worse again and her specialist told her she might need a stoma if things won’t improve in time. This frightens her of course and she has a real negative idea about this. Is there anyone who can tell us about his or hers experience with a stoma?
My life began at age 34 when I got my ileostomy! I can do so many things I could never do before. I’m out of pain and am no longer tied to the bathroom. I too was afraid than an ostomy would limit me — instead it has freed me. I have written a series of ostomy myths and will e-mail them to you. Barbara Skoglund (I)
Response:
hi well i have had a stoma about 6 yrs and just this last august i fell ill again and had my colon removed and the stoma was moved from my left side to my right side. living with a stoma is not nearly as bad as you would believe. it took me a couple of months to adjust to it but you need to remenber that even if you have trouble adjustingto a stoma it beats the alternative. if you have specific questions {come on with them}
Response:
My wife has Crohn’s disease for about 12 years now. She had 2 surgeries and afterwards she felt better. Now things are going worse again and her specialist told her she might need a stoma if things won’t improve in time. This frightens her of course and she has a real negative idea about this. Is there anyone who can tell us about his or hers experience with a stoma?
Response:
I suggest you visit "alt.support.ostomy" for information and support for both of you. It’s a great group. You can ask absolutely anything and get helpful responses. Someone in that group has "been there–done that". I do suggest that you check the back postings to that group on dejanews–there are some recent threads that should be very helpful. I had UC, which tends to produce different results and experiences from those who have to deal with Crohn’s, so your best bet is to follow "Crohnies" postings. But any should help. Barbara, Joy, Crystal–chime in here with the womens’ perspective. All the best to both of you. Carl – Hide quoted text — Show quoted text – My wife has Crohn’s disease for about 12 years now. She had 2 surgeries and afterwards she felt better. Now things are going worse again and her specialist told her she might need a stoma if things won’t improve in time. This frightens her of course and she has a real negative idea about this. Is there anyone who can tell us about his or hers experience with a stoma?
Response:
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