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have to say Amen to all that you said…..you just seem to know how to say it all……Steve, Damn your good!!! He he he he…..

Yes, well — if there’s one thing I really appreciate, it’s the sound of my own voice — even via Usenet! Thanks! love, steve preferred e-mail address: without the "SPAM," of course! HOME: http://www.digdat.com/~psyche0/index.html ASCC: http://www.geocities.com/HotSprings/Falls/3298/

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Steve, I couldn’t agree more with everything you said!  You really have a way with words:) Paty

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Maybe it’s because we have seen too many doctors who think they know everything and their patients don’t know jack

i agree with Steve! or too, because so often we take our troubles to them …only to hear lines like, "well…if it hasnt killed you by now, it’s not likely it will!!"  hmmmm…. funny the things they say to you that stick with you long after they FINALLY make that long overdue dx of Crohns/colitis, huh?!!  or perhaps in the case of my "former" GI doc who implied that i asked too many questions, stating that he felt he gave me TOO much information!! debbie

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Thanks…I’ll try to remember those!! Philnhet

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I’m thinkin’! Last time a pharmacist questioned one of my prescriptions, I told him in no uncertain terms that unless there was a big risk of drug interaction, he had no business attempting to tell my doctor how to treat my illnesses —

and that I would not tolerate any bull shit from that   . i gather my dr has told her that he will personally have her license yanked and her firstborn child shot if she pulls this stunt again……. hmmm–for some reason my computer refuses to type capitals suddenly1 john

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Hey!  Why do some people feel as if their Doctor is the enemy?  It’s not their fault that Prednisone is the only answer in some cases and keep in mind that no one can "make" you take anything!  Maybe it’s just my Docs but, at some point in their life; they have spent some time in a hospital for one thing or another OR a relative etc…  So they want to help and I really believe some wish they had a magic wand and could make it all go away…  But, back to reality…

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Hey!  Why do some people feel as if their Doctor is the enemy?  It’s not their fault that Prednisone is the only answer in some cases and keep in mind that no one can "make" you take anything!  Maybe it’s just my Docs but, at some point in their life; they have spent some time in a hospital for one thing or another OR a relative etc…  So they want to help and I really believe some wish they had a magic wand and could make it all go away…  But, back to reality…

Maybe it’s because we have seen too many doctors who think they know everything and their patients don’t know jack. Maybe it’s because of the ER doctor who told me he couldn’t treat me (for what turned out to be my first kidney stone) if I couldn’t keep quiet. Maybe it was the 2nd year Resident who looked like OJ before that was a bad thing — the one that told me he could flush all the barium out of my system before the tests tomorrow after I specifically told him that things tend to get caught in this fistula or that and move in different speeds. Maybe it was the director of GI medicine who told me that "a little knowledge is a dangerous thing" as he dodged my questions about CD. Maybe it was the intern who wrote that I was "uncooperative" when I told her that my ass was too sore from all the tests and preps to take another series of enemas. Maybe it was the doc who came into my room and asked my room-mate, who was undergoing chemotherapy for leukemia, if he could take the aortic catheter out so he could practice putting it back in. I’ve had some really good doctors in my time, and I thank God for each and every one of them! But I am paying them for a service — they are not doing me a favor by treating me, I am paying them and paying them very well. And when it all comes down to it, very few of them can meet the standards set by first doc — the doc who delivered me in 1964 and then had me take a medical leave from college in 1982 so he could figure out what was really wrong with me — CD. The doc that sat down with my mom outside my hospital room when I had a near total obstruction and asked, "What are we going to do? Our boy is really sick and may need surgery." I really don’t see doctors as the enemy until they have proven that they are, but it’s hard to accept less when you’ve had the best. And no, no one wanted me on prednisone for 11 years — but they were a whole lot quicker to do that than they are to consider that I might really need some relief from this damn pain! Sorry, I sound a lot angrier than I really am! Like I said, I have good doctors, and I expect that they WILL respond to my needs, but I just don’t see why they all shouldn’t be so good. love, steve preferred e-mail address: without the "SPAM," of course! HOME: http://www.digdat.com/~psyche0/index.html ASCC: http://www.geocities.com/HotSprings/Falls/3298/

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have to say Amen to all that you said…..you just seem to know how to say it all……Steve, Damn your good!!! He he he he…..

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HELLO STEVE!!! I would like to give you great big hugs right at this moment, I just feel like you need them…..and thank you for the hugs for my little guy….that really is a nice feeling to know that there are great people out here that really do care about others even in their own times of suffering…….Lots of hugs to you Steve….. Tisha

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HELLO STEVE!!! I would like to give you great big hugs right at this moment, I just feel like you need them…..and thank you for the hugs for my little guy….that really is a nice feeling to know that there are great people out here that really do care about others even in their own times of suffering…….Lots of hugs to you Steve….. Tisha

Thanks — I was kind of all over the place last night! I’m not quite as tired tonight, but I still feel pretty bad — and I still think my point about pain medicine is accurate! Hugs all around — they may not cost anything, but they sure are worth a whole lot! love, steve preferred e-mail address: without the "SPAM," of course! HOME: http://www.digdat.com/~psyche0/index.html ASCC: http://www.geocities.com/HotSprings/Falls/3298/

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Addiction is a horrible thing – I don’t think the Dr’s mean it in that sense. I do know people who take heavy pain-meds and after surgery could get no relief.  Not even Morphine will work. I started taking pain meds and the doses got higher and the meds more potent – I had built up a tolerance to the drugs. I look at it this way – I’m 27yrs old – if I rely on pain meds now – what am I going to do 20years from now?? I smoke pot! – this helps – relaxes my muscles and I actually can eat!  If you research pain meds – you will find a whole lot of them have terrrible side-effects – Marijuanna does not – Of course there’s that "legal" issue – but I’m willing to take the risk

True — we do have to consider tolerance or habituation to pain medicines, but the docs are really only worried that someone will see them as pain-pill pusher — that’s their main dig. But they sure didn’t seem to mind so much when they got me addicted to steroids. And that’s the bottom line — they did that so that I could survive in some semblance of comfort despite the horrible side-effects later down the line, so why not the pain meds? love, steve preferred e-mail address: without the "SPAM," of course! HOME: http://www.digdat.com/~psyche0/index.html ASCC: http://www.geocities.com/HotSprings/Falls/3298/

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I smoke pot! – this helps – relaxes my muscles and I actually can eat!  If you research pain meds – you will find a whole lot of them have terrrible side-effects – Marijuanna does not – Of course there’s that "legal" issue – but I’m willing to take the risk

Oh, and marijuana gives me horrendous headaches! I had to stop smoking that a long time ago, and a new trial not so long ago proved that I still cannot tolerate it. Oh, well! love, steve preferred e-mail address: without the "SPAM," of course! HOME: http://www.digdat.com/~psyche0/index.html ASCC: http://www.geocities.com/HotSprings/Falls/3298/

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I was just told by my (now EX!!!) pharmacist that she had reported me and my doctor to the police!!!  She said I was the only patient she had getting a "controlled substance" and wanted to have the cops look into me and my dr because of my tincture of opium!!!! John

Hmm, does the term "meddling bitch" ring a bell? I’m thinkin’! Last time a pharmacist questioned one of my prescriptions, I told him in no uncertain terms that unless there was a big risk of drug interaction, he had no business attempting to tell my doctor how to treat my illnesses — and that I would not tolerate any bull shit from that quarter. Just my opinion! steve preferred e-mail address: without the "SPAM," of course! HOME: http://www.digdat.com/~psyche0/index.html ASCC: http://www.geocities.com/HotSprings/Falls/3298/

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I feel the same way as Spoilboys…..sick and tired of unsympathetic Dr’s. I am lucky though, that my PCP is sensitive enough to give me sedatives to get me through any of the GI procedures whenever I insist upon it. I’m considering a pain clinic too….I’m tired of dealing with my monthly cramps in addition to the GI pain……when the only thing that helps is Ibuprophin and I’m not supposed to take that! (Bad for the gut..I also have GERD)..so they suggest My opinion, is that if we are closely monitored, why not let us use RX pain meds when necessary? I’ve used Vicodin (when I could get it) and it works beautifully (only when I’m not driving and working)..it makes me "woozy". Oh well…there’s my 2 cents worth. Philnhet

I have been told that it works for some people — I’d just as soon drink a glass of water, myself! Incidentally, there are a few newer NSAID’s that are more gut-friendly that you may want to talk with your doc about — Relafen and Arthrotec, and there is another, but I don’t remember what it is, though I may have to try it soon! love, steve preferred e-mail address: without the "SPAM," of course! HOME: http://www.digdat.com/~psyche0/index.html ASCC: http://www.geocities.com/HotSprings/Falls/3298/

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I am on a morphine based pain control program, MS-Contin-30,  a slow release form of morphine which I take twice a day and regular 10 mg morphine tablets when the pain breaks through.  Because one can develop a tolerance for morphine I was a little bit worried when I went in for a hernia repair last month.  Would they take into account the crohn’s pain as well as any tolerance I may have developed over the last few years in addition too the pain from the surgery.  I spent the first post-op day in the ICU "so we can give you plenty ofpain killers without having to worry about your breathing"  Let me tell you fentanyl (SP) is really marvelous stuff, my wife said she saw me melt as they administered it.  Then it was morphine via the  PCA machine for a few days followed by MS-Contin and morphine injections as required. For the record I have been on the morphine program for over three years and I am not displaying signs of adiction yet.  I wrote my ham radio exam while I was under the influence and got 89%.  The only thing that I don’t do is drive unless I have skipped my meds. Being pain free is almost as good as being cured!!!! Good luck with your Doc. – Paul – Hide quoted text — Show quoted text – Addiction is a horrible thing – I don’t think the Dr’s mean it in that sense. I do know people who take heavy pain-meds and after surgery could get no relief.  Not even Morphine will work. I started taking pain meds and the doses got higher and the meds more potent – I had built up a tolerance to the drugs. I look at it this way – I’m 27yrs old – if I rely on pain meds now – what am I going to do 20years from now?? I smoke pot! – this helps – relaxes my muscles and I actually can eat!  If you research pain meds – you will find a whole lot of them have terrrible side-effects – Marijuanna does not – Of course there’s that "legal" issue – but I’m willing to take the risk

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Addiction is a horrible thing – I don’t think the Dr’s mean it in that sense. I do know people who take heavy pain-meds and after surgery could get no relief.  Not even Morphine will work. I started taking pain meds and the doses got higher and the meds more potent – I had built up a tolerance to the drugs. I look at it this way – I’m 27yrs old – if I rely on pain meds now – what am I going to do 20years from now?? I smoke pot! – this helps – relaxes my muscles and I actually can eat!  If you research pain meds – you will find a whole lot of them have terrrible side-effects – Marijuanna does not – Of course there’s that "legal" issue – but I’m willing to take the risk

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I feel the same way as Spoilboys…..sick and tired of unsympathetic Dr’s. I am lucky though, that my PCP is sensitive enough to give me sedatives to get me through any of the GI procedures whenever I insist upon it. I’m considering a pain clinic too….I’m tired of dealing with my monthly cramps in addition to the GI pain……when the only thing that helps is Ibuprophin and I’m not supposed to take that! (Bad for the gut..I also have GERD)..so they suggest My opinion, is that if we are closely monitored, why not let us use RX pain meds when necessary? I’ve used Vicodin (when I could get it) and it works beautifully (only when I’m not driving and working)..it makes me "woozy". Oh well…there’s my 2 cents worth. Philnhet

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I was just told by my (now EX!!!) pharmacist that she had reported me and my doctor to the police!!!  She said I was the only patient she had getting a "controlled substance" and wanted to have the cops look into me and my dr because of my tincture of opium!!!! John

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hi everyone, this pisses me off too. the biggest reason i have to take percocet isnt so much for the pain (its some of the reason) but it slows down my diahrehea . narcotics are contsapating, although i will never be constapated, it does slow down my system.our pain isnt going to stop 3 weeks from tuesday, or next week, why do they have to include addiction into the picture. the reason i think anyone who can get into a pain mgmt. clinic should do so, thats their specialty, they are tought that pain will change personality, ruin the quality of life, and will increase suicide. i old my dr. that a person with cancer is given high doses of narcotics, they will either get better, or they will pass on,,,our crohns or uc  isnt gonna kill us tommorrow,, we have a cronic illness . it most likely isnt going away, so if a couple percocet is needed so that i can eat and leave the house,,,im gonna take it, if you dont want to perscribe it,,,ill go to someone who will. love you money talks,mine,says, "goodbye"

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You just derscribed my life.  I also take vicidin the pain is daily and constant, the only thing t hat helps is these pills.  My new dr. does not believe in "pain meds"  says it is only a band aid.  thank god my mom can get them , she gives to me when needed.  I too feel like a junkie, when i talk about it.  If only "healthy people knew what is really like.  Good luck, i hope things work out with you.  you are not alone

I am sorry — this just pisses me off no end! It’s not like we don’t have enough to deal with in just having IBD — but there’s just no reason we should also have to suffer a lot of pain with joint aches and abdominal cramps and all that on top of everything else! I am sick and tired of the bullshit! I don’t care what any doctor says, I’ll take the risk of addiction over the pain any day of the week! And so what if I do get addicted — as long as I’m in pain and the docs have the meds to keep me comfortable, why should anyone care whether I get addicted or not? Any doctor who says differently has no concept of what life is like from our side of the coin. It’s time that we stopped playing their stupid games and told them like it really is! They can label me a junkie if they want to — I don’t give a shit anymore! I’m telling my doctor I’m tired of hurting when he can give me something to help and that if he won’t, I’m gonna find a doc who understands what it is like to be in constant pain — when there is no reason I should have to be in constant pain! It isn’t just that it hurts, people — though that is a big part of it. Do you realize how much energy your body and mind must burn on dealing with chronic pain? It wears you out! It puts you in bed early! It means that a walk through the mall wears you out before you even have time to buy something! You know, I’ll try things. I’ll go to a pain clinic if they ask. I’ll try biofeedback and other techniques for relieving the pain if they will help me — but they are not going to sit back in their chairs and lecture me about addiction and then turn down my request for medicine any more. I refuse to put up with it! Sorry, I am just so tired of hurting all the time, I mean, even the darvocets and percocets only do so much anymore. It’s not like they get rid of the pain — they just knock it down to a more tolerable level. I don’t think its asking too much for a medical practitioner to provide his patients with a little bit of comfort. It’s funny — I am a strong person. I doubt that a lot of people would be able to handle what I handle as well as I do. But we all have our points where we need help, and I’m pretty sure that’s what I’m paying my doctor to do. I’m not asking for a miracle here — just a little help! Can you guys tell that I don’t feel well? <grin I’m sorry, I spent yesterday running down to South Boston, and Jeannie had the kids with her, but at one point she was so sick, and the kids were so tired of playing quietly with the leggo’s while Jeannie was getting the ISIS infusion that I just grabbed coats and said, "I think we need to go outside and run around a while." I spent today in bed sleeping it off — not that I regret it or anything! I love kids, and I loved playing with them, and I would gladly do the same all over again! If you could have seen the look on little Matthew’s face when Jeannie told them to sit down and play with the leggo’s — after they had been playing with them for an hour and a half and had just put them up — you guys probably would have done the same! And Jeannie didn’t have any choice — she was hooked up to the IV and had her head propped up on the trash can thinking she was going to spew at any moment, and having mood swings from the prednisone withdrawal. He he he — she threatened to drop them off at my house at midnight — I told her I needed something to do when the IBD-induced sleep problems hit! But she didn’t hold it against me that her daughter’s white tights are going to require a session of Chlorox therapy after the running around session! Besides, I’m pretty sure the reason that Matthew and Spencer put up the leggo’s was so they could crawl in my lap and play — so I figured I owed it to ‘em to get them out of there and let them have some fun! Oh, I’ve gone on and on again. He he he he he! Okay, so now you know where the screen-name ISpoilBoys really comes from! I’m sorry, they were just so cute and sweet little boys who needed to be loud and have fun and some adult attention! And Jeannie’s little girl was as big a tom-boy as either of the little ones who really were boys! I hope that Jeannie will be joining us here real soon — she need us here. She’s much better about not getting embarrassed about the CD and all — and I’ve told her that we talk straight here, we don’t pull the punches; we’re just as likely to complain about the shits as we are the "big d!" and that’s what she needs! Plus, she needs to feel the sense of belonging that we have here. This is such a wonderful place for those of us with these illnesses. Besides, I don’t know if I’ll get to see Matthew and Spencer again, but I hope that I can at least keep up with them if Jeannie is here! Smack me, people! I’m running on like a really bad sentence! love, ISpoilBoys Remove All SPAM Before Mailing! http://netdump.com/users/ispoilboys

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Well I thought I had found the closest thing to normalcy with vicodin/hydrocodone/lortab…I recently moved and went to a new doctor yesterday.  He seems optimistic and says that he can do me better than the pain meds.  Says I have IBD as well as Crohn’s.  Says that pain meds are bad because of the addiction factor esp for someone as young as me.  I’m perfectly willing to try the new drugs he suggests but am terrified that if they don’t work i’ll be left in a functionless state and in pain of course. Anyone have any advice.  If it comes down to running out of my prescription before he gets things undercontrol with his meds/ideas what is the fastest way to see a doctor who will prescribe my pain meds.  Jeez, I always feel like a junkie talking about pain meds but really without them I would be very uncomfortable every single day, unless of course I stopped eating then I would just be doubled over with hunger pains though i imagine they go away… -Kim

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I really wonder about some of the theoris from drs.  Pre requisites for graduation from med school should be 1 – have the belly slit open – not laproscopic either & 2  spend at least 1 week in a hosp bed totally dependent on the nursing staff.  It is amazing what a difference it makes when an md has experienced some of the "good things" they have so many idealistic theories about.  I can remember working in hosp with resident drs who were not real compassionate and several yrs later what a change in attitude after being on the other side of the fence.  That pres business could get to be a problem. Have you totally severed connections with prior doc? Dumb question – sure – if you’ve moved, that bridge is burned so to speak. Maybe you need to search for another GI doc  and that could be a eal challenge.  Far better to work on that now before getting in a corner.  Too much pain with this stuff to procrastinate.  Good Luck!

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Pre requisites for graduation from med school should be 1 – have the belly slit open – not laproscopic either & 2  spend at least 1 week in a hosp bed totally dependent on the nursing staff.

Better yet, make it a large county hospital with plenty of indigent patients, interns and student nurses.  And tape  his mouth shut so he can’t tell anyone he’s a doctor.  LOL!! Jan…  

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You just derscribed my life.  I also take vicidin the pain is daily and constant, the only thing t hat helps is these pills.  My new dr. does not believe in "pain meds"  says it is only a band aid.  thank god my mom can get them , she gives to me when needed.  I too feel like a junkie, when i talk about it.  If only "healthy people knew what is really like.  Good luck, i hope things work out with you.  you are not alone

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