Question:

Debbie, The best place to discuss this issue is with your Peadiatrian & GI specialists. I’ve read that an elemental diet can mitigate colitis flare ups without needing to much extra medication and some cases no medication at all. As a foodstuff it may depend on your locality/insurance status as to whether you can get them. They can’t be bought, they have to be pescribed and used under a dietician;s direction. An elemental diet is based the NASA food research for SkyLab and how feed Astronauts when they didn’t have good toilet facilities etc. So its a high nutrition, etremely low residue diet. This may be good option with a low risk to your baby that could help maximise your term and health state during this relapse. A good ref site is :- http://www.veritasmedicine.com/d_home.cfm?page=4&type=CO&did=9&treatm… Hope you go full term

– Hide quoted text — Show quoted text – Hi, I’m 28 weeks pregnancy and am experiencing a colitis flare-up.  I have had this condition for over 20 years, diagnosed at 14.  Generally it is quite good and in remission, and whilst in remission I don’t take any medication.  I am not taking anything at the moment, as I am waiting to see a specialist next week… this recent flare-up has been active and getting worse for just over a week.  Usually, I take Sulfasalazine and Hydrocortisone acetate (Coliform) to get this condition back under control, but am hestitent in taking anything until I have seen a doctor.  My baby is moving around normally. I’m trying to find out more about Colitis in pregnancy, and other than risk premature labour and still birth, I have been unable to find much.  Does anyone know what problems can occur when having a flare-up in third trimester or pregnancy? Also, if anyone has had any positive experiences, I would like to hear them.  At the moment, I am feeling very depressed and worried. Many thanks Deb

Response:

Keep in mind that true elemental diets are given by catheters that are given into large veins that lead to the heart, therefore keeping them sterile is a must as infections can be dangerous.  Also, these diets must be very closely monitored to be sure that the correct nutrient balance is maintained.  This is difficult enough is an average IBD patient, I can’t imagine how a pregnancy would complicate this.  Often this can be administered on an outpatient basis, but usually after has been stabilized as an inpatient.  This is not something to be decided upon lightly. mgbio – Hide quoted text — Show quoted text – Debbie, The best place to discuss this issue is with your Peadiatrian & GI specialists. I’ve read that an elemental diet can mitigate colitis flare ups without needing to much extra medication and some cases no medication at all. As a foodstuff it may depend on your locality/insurance status as to whether you can get them. They can’t be bought, they have to be pescribed and used under a dietician;s direction. An elemental diet is based the NASA food research for SkyLab and how feed Astronauts when they didn’t have good toilet facilities etc. So its a high nutrition, etremely low residue diet. This may be good option with a low risk to your baby that could help maximise your term and health state during this relapse. A good ref site is :- http://www.veritasmedicine.com/d_home.cfm?page=4&type=CO&did=9&treatm… Hope you go full term Hi, I’m 28 weeks pregnancy and am experiencing a colitis flare-up.  I have had this condition for over 20 years, diagnosed at 14.  Generally it is quite good and in remission, and whilst in remission I don’t take any medication.  I am not taking anything at the moment, as I am waiting to see a specialist next week… this recent flare-up has been active and getting worse for just over a week.  Usually, I take Sulfasalazine and Hydrocortisone acetate (Coliform) to get this condition back under control, but am hestitent in taking anything until I have seen a doctor.  My baby is moving around normally. I’m trying to find out more about Colitis in pregnancy, and other than risk premature labour and still birth, I have been unable to find much.  Does anyone know what problems can occur when having a flare-up in third trimester or pregnancy? Also, if anyone has had any positive experiences, I would like to hear them.  At the moment, I am feeling very depressed and worried. Many thanks Deb

Response:

Thank you Gail for your reply.  I’m sorry, I do not relate, being more on the scientific side than the holistic. I believe that my disease is hereditary(my Grandfather suffered from this).  This is inline with the recent finding that Colitis is genetic with the discovery of the kappa B1 (NFKB1) gene being linked to the disease. http://www.eurekalert.org/pub_releases/2003-12/jhmi-apo121903.php.  After having this disease for 24 years, I know exactly what triggers it, Stress. – Hide quoted text — Show quoted text – Deb, See if this will help, as I am sure this is a manmade illness.Someone you know is on a stimulant, maybe anti-depressant.  Crohns is weird, read my layman’s theory on it’s cause on website http://ascc.healingwell.com/info/gailfaq.htm Strange and almost unbelievable, but if you will relate, it will help you immeaserably. I have observed this for many years, and know this is the cause.   Since you are pregnant, ask the person if they could please cease the stimulant, if they will not try to distance yourself from them.  Crohns has symptoms no matter if you are in the same room or miles apart.  It is a mind connection that sets off the crohns and keeps it going. The person(s), of course do not realize they could be making anyone ill. Also, natural herbs that have natural stimulants cause crohns, as does Xanax, Buspar, Depakote, kava kava, st johns wort, Flexeril, etc. etc. Hard one to believe and impossible to explain, but it is so mysterious no one can grasp it. Try it, along with your medication, and you will be surprised. Geel well. Gail Michael

Response:

Good luck!  Please keep us updated.  mgbio – Hide quoted text — Show quoted text – Thank you for your reply.  I get to GI tomorrow, and midwife on Thursday. Hi Deb, I’ve never gone through pregnancy myself but from what I’ve read in the literature the 5ASA medications (basically what you take but without the sulfa component) are considered safe for pregnant and I believe for nursing women.  (Check w/ your OB/ GYN.)  Unfortunately, you are not like most women who, if they are healthy when they become pregnant, tend to stay healthy throughout their pregnancy.  I wish you the best during the rest of your pregnancy and get in a see both your OB and GI ASAP!  mgbio Hi, I’m 28 weeks pregnancy and am experiencing a colitis flare-up.  I have had this condition for over 20 years, diagnosed at 14.  Generally it is quite good and in remission, and whilst in remission I don’t take any medication.  I am not taking anything at the moment, as I am waiting to see a specialist next week… this recent flare-up has been active and getting worse for just over a week.  Usually, I take Sulfasalazine and Hydrocortisone acetate (Coliform) to get this condition back under control, but am hestitent in taking anything until I have seen a doctor.  My baby is moving around normally. I’m trying to find out more about Colitis in pregnancy, and other than risk premature labour and still birth, I have been unable to find much.  Does anyone know what problems can occur when having a flare-up in third trimester or pregnancy? Also, if anyone has had any positive experiences, I would like to hear them.  At the moment, I am feeling very depressed and worried. Many thanks Deb

Response:

Thank you for your reply.  I get to GI tomorrow, and midwife on Thursday. Hi Deb, I’ve never gone through pregnancy myself but from what I’ve read in

the literature the 5ASA medications (basically what you take but without the sulfa component) are considered safe for pregnant and I believe for nursing women.  (Check w/ your OB/ GYN.)  Unfortunately, you are not like most women who, if they are healthy when they become pregnant, tend to stay healthy throughout their pregnancy.  I wish you the best during the rest of your pregnancy and get in a see both your OB and GI ASAP! – Hide quoted text — Show quoted text –  mgbio Hi, I’m 28 weeks pregnancy and am experiencing a colitis flare-up.  I have had this condition for over 20 years, diagnosed at 14.  Generally it is quite good and in remission, and whilst in remission I don’t take any medication.  I am not taking anything at the moment, as I am waiting to see a specialist next week… this recent flare-up has been active and getting worse for just over a week.  Usually, I take Sulfasalazine and Hydrocortisone acetate (Coliform) to get this condition back under control, but am hestitent in taking anything until I have seen a doctor.  My baby is moving around normally. I’m trying to find out more about Colitis in pregnancy, and other than risk premature labour and still birth, I have been unable to find much.  Does anyone know what problems can occur when having a flare-up in third trimester or pregnancy? Also, if anyone has had any positive experiences, I would like to hear them.  At the moment, I am feeling very depressed and worried. Many thanks Deb

Response:

Deb, Please understand that, while Gail means well.  Her "theory" is at best crazy. mgbio – Hide quoted text — Show quoted text – Deb, See if this will help, as I am sure this is a manmade illness.Someone you know is on a stimulant, maybe anti-depressant.  Crohns is weird, read my layman’s theory on it’s cause on website http://ascc.healingwell.com/info/gailfaq.htm Strange and almost unbelievable, but if you will relate, it will help you immeaserably. I have observed this for many years, and know this is the cause.   Since you are pregnant, ask the person if they could please cease the stimulant, if they will not try to distance yourself from them.  Crohns has symptoms no matter if you are in the same room or miles apart.  It is a mind connection that sets off the crohns and keeps it going. The person(s), of course do not realize they could be making anyone ill. Also, natural herbs that have natural stimulants cause crohns, as does Xanax, Buspar, Depakote, kava kava, st johns wort, Flexeril, etc. etc. Hard one to believe and impossible to explain, but it is so mysterious no one can grasp it. Try it, along with your medication, and you will be surprised. Geel well. Gail Michael

Response:

Hi Deb, I’ve never gone through pregnancy myself but from what I’ve read in the literature the 5ASA medications (basically what you take but without the sulfa component) are considered safe for pregnant and I believe for nursing women.  (Check w/ your OB/ GYN.)  Unfortunately, you are not like most women who, if they are healthy when they become pregnant, tend to stay healthy throughout their pregnancy.  I wish you the best during the rest of your pregnancy and get in a see both your OB and GI ASAP!  mgbio – Hide quoted text — Show quoted text – Hi, I’m 28 weeks pregnancy and am experiencing a colitis flare-up.  I have had this condition for over 20 years, diagnosed at 14.  Generally it is quite good and in remission, and whilst in remission I don’t take any medication.  I am not taking anything at the moment, as I am waiting to see a specialist next week… this recent flare-up has been active and getting worse for just over a week.  Usually, I take Sulfasalazine and Hydrocortisone acetate (Coliform) to get this condition back under control, but am hestitent in taking anything until I have seen a doctor.  My baby is moving around normally. I’m trying to find out more about Colitis in pregnancy, and other than risk premature labour and still birth, I have been unable to find much.  Does anyone know what problems can occur when having a flare-up in third trimester or pregnancy? Also, if anyone has had any positive experiences, I would like to hear them.  At the moment, I am feeling very depressed and worried. Many thanks Deb

Response:

Deb, See if this will help, as I am sure this is a manmade illness.Someone you know is on a stimulant, maybe anti-depressant.  Crohns is weird, read my layman’s theory on it’s cause on website http://ascc.healingwell.com/info/gailfaq.htm Strange and almost unbelievable, but if you will relate, it will help you immeaserably. I have observed this for many years, and know this is the cause.   Since you are pregnant, ask the person if they could please cease the stimulant, if they will not try to distance yourself from them.  Crohns has symptoms no matter if you are in the same room or miles apart.  It is a mind connection that sets off the crohns and keeps it going. The person(s), of course do not realize they could be making anyone ill. Also, natural herbs that have natural stimulants cause crohns, as does Xanax, Buspar, Depakote, kava kava, st johns wort, Flexeril, etc. etc. Hard one to believe and impossible to explain, but it is so mysterious no one can grasp it. Try it, along with your medication, and you will be surprised. Geel well. Gail Michael

Response:

Hi, I’m 28 weeks pregnancy and am experiencing a colitis flare-up.  I have had this condition for over 20 years, diagnosed at 14.  Generally it is quite good and in remission, and whilst in remission I don’t take any medication.  I am not taking anything at the moment, as I am waiting to see a specialist next week… this recent flare-up has been active and getting worse for just over a week.  Usually, I take Sulfasalazine and Hydrocortisone acetate (Coliform) to get this condition back under control, but am hestitent in taking anything until I have seen a doctor.  My baby is moving around normally. I’m trying to find out more about Colitis in pregnancy, and other than risk premature labour and still birth, I have been unable to find much.  Does anyone know what problems can occur when having a flare-up in third trimester or pregnancy? Also, if anyone has had any positive experiences, I would like to hear them.  At the moment, I am feeling very depressed and worried. Many thanks Deb

Response:

Question:

Hello, I am new to this group.  There are more crohns subscribers than colitis ones in this newsgroup. I have a mild form of colitis.  I was briefly going over some postings.  I read that some thought nicotine helped colitis, but I don’t think it’s the nicotine I think it’s the actual smoking that does it. It’s more of a calming affect, right?

Not according to my GI, according to him it’s the Nicotine and he has a few of his UC patients on the Nicotine patches with varying sucess. Me, I have CD, so he tels me off if he smells smoke on me.         Cheers,                 Gary    B-) — Armful of chairs: Something some people would not know                    whether you were up them with or not                                       – Barry Humphries

Response:

Hello, I am new to this group.  There are more crohns subscribers than colitis ones in this newsgroup. I have a mild form of colitis.  I was briefly going over some postings.  I read that some thought nicotine helped colitis, but I don’t think it’s the nicotine I think it’s the actual smoking that does it. It’s more of a calming affect, right? I have my own opinion about colitis and it differs from some of the messages I read.  I notice my colitis is pretty good when I am relaxed.  But sometimes I get antsy and it’s hard to just relax.  This is when I notice that my colitis flares up.   I first got it 6 years ago, briefly, when I noticed blood in my stool.  Then I was going to school almost full-time, and working two jobs, one of those full-time.   I was all over the place and ofcourse something has to give, there is only so far you can push yourself. But it went away gladly without any medication and some slowing down.  But it flared up again about a year and a half ago, this time it got worse.  But I ended up taking "pentasa" and eventually it went away after about 2 months.  What I can say about pentasa is that it helped with the symptoms and to clear up my colitis. Recently it has flared up a bit again,  well, I have started a new position at my job, and ofcourse I can guarantee that the initial stress of that alone helped my colitis flare up again.  A lot of types of stress is good, don’t get me wrong, but sometimes I don’t learn how to relax properly. Anyways, I am taking pentasa again and the symptoms are getting better, and I can guarantee you it will clear up.  Whether it goes into remission is anyone’s guess, but that depends a lot on me.  So I will have to see.  I understand fully that my ulcerative colitis is directly linked to how I feel about my life and where it is going.  Family and friends are the biggest support group one can have when dealing with types of colitis.  Ofcourse not everyone has a healthy support group, so all you can do is try your best. But I know two things for sure, colitis is not affected by foods nor is it simply caused by immune system deficiency.

– Hide quoted text — Show quoted text –  Has anyone had any success with nicotine? Hi Nina,  I’m also new to this group and have never posted here yet. I’ve been reading though to learn, and there are some GOOD ppl here, thank you all.  Two years ago in January I quit         (only a pack a week/2weeks), I started running, and eating more heathly. Three months latter I was diagnosed with UC. Doc says it’s a mild case and from what I’ve read here I’m greatful it’s not worse. I went on Asacol and almost immeditly my UC was under control. I was depressed, went back to normal habbits,        , eating anything, no running……did this for 2 years. No flare ups everything was almost normal. (once you have UC it seems as though I’ll NEVER have a "Normal" bowel movment)   This Jan I decided it’s time to get heathly again. Again I quit   , eat right, start running. I’m now two weeks into my first flare up. I was on 2 asacol 3 times a day, now Doc’s got me on 4 tabs 3 times a day and a rectal enema 5ASA, one a night for 60 days to try to get it under control.   My Doc said he would’nt be surprised if it was due to the quitting       and suggested Nicotine Patches. They made me sick to my stomach, BAD. I finally gave in and had one long night of         ( night). The next day the cramping settled, my stools started to solid again, and no more mucose      ing.   I DON’T WANT TO SMOKE!!! I WANT TO QUIT!!! But what can I say….. I’m going to continue to smoke on a VERY limited basis. (Every other Sat. is       night). Kinda like a cigar at the       table.  Does Nicotine help??? I’ve read ALOT of contraversy online about this both ways. I’m NOT advocating ANYTHING either way but I did want to share my experence with you and let you make up your own mind.   All the best to you Nina, PLEASE let us know how everything goes. ***JediMike***

Response:

The computer at work has SERIOUS censorship issues!!! I’d thought I’d RE-POST my message WITHOUT Big Brothers "help" Thanks

– Hide quoted text — Show quoted text –  Has anyone had any success with nicotine? Hi Nina,  I’m also new to this group and have never posted here yet. I’ve been reading though to learn, and there are some GOOD ppl here, thank you all.  Two years ago in January I quit smoking (only a pack a week/2weeks), I started running, and eating more heathly. Three months later I was diagnosed with UC. Doc says it’s a mild case and from what I’ve read here I’m greatful it’s not worse. I went on Asacol and almost immeditly my UC was under control. I was depressed, went back to normal habbits, smoking, eating anything, no running……did this for 2 years. No flare ups everything was almost normal. (once you have UC it seems as though I’ll NEVER have a "Normal" bowel movment)   This Jan I decided it’s time to get heathly again. Again I quit smoking, eat right, start running. I’m now two weeks into my first  major flare up. I was on 2 asacol 3 times a day, now Doc’s got me on 4 tabs 3 times a day and a rectal enema 5ASA, one a night for 60 days to try to get it under control.   My Doc said he would’nt be surprised if it was due to the quitting smoking and suggested Nicotine Patches. They made me sick to my stomach, BAD. I finally gave in and had one long night of  smoking ( poker night). The next day the cramping settled, my stools started to solid again, and no more mucose bleeding.   I DON’T WANT TO SMOKE!!! I WANT TO QUIT!!! But what can I say….. I’m going to continue to smoke on a VERY limited basis. (Every other Sat. is Poker night). Kinda like a cigar at the poker table.  Does Nicotine help??? I’ve read ALOT of contraversy online about this both ways. I’m NOT advocating ANYTHING either way but I did want to share my experence with you and let you make up your own mind.   All the best to you Nina, PLEASE let us know how everything goes. ***JediMike***

Response:

 Has anyone had any success with nicotine?

Hi Nina,  I’m also new to this group and have never posted here yet. I’ve been reading though to learn, and there are some GOOD ppl here, thank you all.  Two years ago in January I quit         (only a pack a week/2weeks), I started running, and eating more heathly. Three months latter I was diagnosed with UC. Doc says it’s a mild case and from what I’ve read here I’m greatful it’s not worse. I went on Asacol and almost immeditly my UC was under control. I was depressed, went back to normal habbits,        , eating anything, no running……did this for 2 years. No flare ups everything was almost normal. (once you have UC it seems as though I’ll NEVER have a "Normal" bowel movment)   This Jan I decided it’s time to get heathly again. Again I quit       , eat right, start running. I’m now two weeks into my first       flare up. I was on 2 asacol 3 times a day, now Doc’s got me on 4 tabs 3 times a day and a rectal enema 5ASA, one a night for 60 days to try to get it under control.   My Doc said he would’nt be surprised if it was due to the quitting         and suggested Nicotine Patches. They made me sick to my stomach, BAD. I finally gave in and had one long night of         (     night). The next day the cramping settled, my stools started to solid again, and no more mucose      ing.   I DON’T WANT TO SMOKE!!! I WANT TO QUIT!!! But what can I say….. I’m going to continue to smoke on a VERY limited basis. (Every other Sat. is       night). Kinda like a cigar at the       table.  Does Nicotine help??? I’ve read ALOT of contraversy online about this both ways. I’m NOT advocating ANYTHING either way but I did want to share my experence with you and let you make up your own mind.   All the best to you Nina, PLEASE let us know how everything goes. ***JediMike***

Response:

Thanks for all the great info! I have a new specialist, one of the Dr’s I work with got me in, not before the megacolon though. I have been on the prednisone since Feb only and the new Dr wants me off by summer, no lifetime dose. I started at 40mg a day and now I’m at 30mg. I can’t believe how many people have this illness, I guess that treatment plans work for most because I don’t see many of us in the emerg all that much (except for Crohn’s, that must be just awful!). There has been discussion about the imuran (sp?) and the 5 ASA’s, but I apparently need to get my prednisone down first so they know what is working after having had megacolon. Has anyone had any success with nicotine?

Response:

Hi mghio, I have to disagree with you on whether you can reverse an osteoporosis diagnosis caused by prednisone. My 1st. bone scan was in 1996 which showed "marked osteoporosis" My doc (an endocrinologist) put me on caltrate,rocaltrol & magnesium. My 2nd. bone scan in 1998 still showed "marked osteoporosis" but I did have some improvement in the mean bone density. My 3rd. scan mentions my bone density consistent with "marked osteopenia" and "there is no osteoporosis by WHO standards however there is an increased risk of fracture" But goes on to say "The bone mineral density has increased since 1998" I must say that last bit has me a bit confused. But overall I’ve gone from osteoporosis to osteopenia. (osteopenia is a word the docs "made up" to make women more aware of osteoporosis. I read it on the net so it must be right!) John H(I)

Hi Nina, I’m glad that your experiences have made you even more sensitive to others

needs in times of medical crisis.  I do not believe that there is any way to reverse the damage from osteoporosis due to prednisone.  You can prevent some of it by taking steps to prevent bone loss while on pred.  This includes diet, exercise and possibly medications.  You should discuss this with your doctor.  Also, NOW is the time to have a baseline bone density test done, before pred. can do any damage.  Discuss this with your doctor. My PCP was the doctor who ordered the baseline test and will do any follow up.  Thankfully, I haven’t needed any long term pred. since my surgery (and I pray I won’t in the future) but if I do, that would be the time to start planning future bone density tests for me.  You will have to discuss a schedule with your doctor depending on how long you were on pred. and how high a dosage. – Hide quoted text — Show quoted text – Good luck!  mgbio Thanks for the welcome and info so far. It’s been quite a trip the last 3 months. I’m actually an imaging technologist in Canada who works with cancer patients and acutely ill people in angiography and interventional cases (you know, the "icky" stuff). I’ve always been an empathetic and sympathetic person to my patients but that will be on a whole new level when I return to work. My hospital does not do much with IBD so my access to info is limited in this area. I have one other question…. the osteoporosis from the prednisone, is that somewhat reversable if and when you can get off the stuff? I would like to get baseline bone density done when I’m off it (apparently my severity will have me off it one way or another) and get back to exercise for a year or so and have another scan done. Anyone know about this?

Response:

Some damage MAY be reversible, not all.  Also, she is just starting pred, so there may not be any damage, a good time for a baseline, why I suggested she should consult her doctor about this. mgbio – Hide quoted text — Show quoted text – Hi Nina, I do not believe that there is any way to reverse the damage from osteoporosis due to prednisone. Actually there is. The medical  literature fully documents that such reversals are not only possible but common. The results in part depend upon how thin your bones are are the start of the treatment, as well as other factors (age, sex, family history of bone loss, length of time on steroids and total dosage, excercise, etc.), but reversal of bone thinning via "bisphoshonates"–drugs like Fosamax and Actonel–as well as vitamin D and calcium, is in fact well documented and quantified. In fact, I believe the FDA has officially approved Actonel for just this purpose: rebuilding bone mass lost from steroids in both men and women.  NOW is the time to have a baseline bone density test done, <<before pred. can do any damage. Prednisone does most of its damage to bone in the first 6 months of a course of the drug. Additional damage occurs later, but at a much slower rate. As for when to get a baseline scan: Many doctors prefer to wait until you have been off steroids for a while before doing the density test. Anyone in the middle of a course of steroids will of course show bone loss. What matters more is how much bone is left once the steroid is no longer given and the body has reached a point of stability in its bone density. An endocrinologist or rheumatologist can tell ya more.

Response:

r I have one other question…. the osteoporosis from the prednisone, is that somewhat reversable if and when you can get off the stuff? Yes. It’s reversible with the prescription medication Fosamax (or Actonel) plus calcium and vitamin D supplements. "Bone strengthening" excercises are also said to help (excercises that put weight on the long bones–arm and leg and spine).

J Bone Miner Res. 2003 May 18(5):919-24. Prevention and treatment of glucocorticoid-induced osteoporosis: a comparison of calcitriol [form of Vitamin D], vitamin D plus calcium, and alendronate [Fosamax] plus calcium. Sambrook PN, Kotowicz M, Nash P, Styles CB, Naganathan V, Henderson-Briffa KN, Eisman JA, Nicholson GC. Institute of Bone & Joint Research, University of Sydney, Sydney, High-dose corticosteroids, used for many medical conditions, are associated with rapid bone loss from sites such as the vertebrae, and compression fractures can be observed within months. Recent trials suggest treatment with bisphosphonates or active vitamin D analogs can reduce bone loss and the risk of fracture associated with glucocorticoids, but few studies have directly compared such agents. We conducted a randomized, multicenter, open-label trial to compare the efficacy of alendronate [Fosamax], calcitriol [vitamin D analog], and simple vitamin D in prevention and treatment of glucocorticoid-induced bone loss. A total of 195 subjects (134 females and 61 males) commencing or already taking glucocorticoids were randomized to one of three groups: calcitriol, 0.5 to 0.75 microg/day; simple vitamin D (ergocalciferol, 30,000 IU weekly) plus calcium carbonate (600 mg daily); or alendronate, 10 mg/day plus calcium carbonate (600 mg daily). Over 2 years, mean lumbar bone mineral density change was:  +5.9% with alendronate [Fosamax],  -0.5% with ergocalciferol, and  -0.7% with calcitriol (p < 0.001). Over 2 years, at the femoral neck, there was no significant difference in bone mineral density change between the   treatments : +0.9% alendronate   -3.2% ergocalciferol , and -2.2% calcitriol   Lumbar bone loss varied according to whether patients were starting or receiving chronic glucocorticoids, and there was a significant treatment x prior glucocorticoid use interaction effect. 6 of 66 calcitriol subjects, 1 of 61 ergocalciferol subjects, and 0 of 64 alendronate subjects sustained new vertebral fractures. These data do not suggest any difference between simple vitamin D and calcitriol but do show that ***alendronate [Fosmax] was superior*** to either treatment for glucocorticoid induced bone loss.

Response:

Hi Nina, I do not believe that there is any way to reverse the damage from

osteoporosis due to prednisone. Actually there is. The medical  literature fully documents that such reversals are not only possible but common. The results in part depend upon how thin your bones are are the start of the treatment, as well as other factors (age, sex, family history of bone loss, length of time on steroids and total dosage, excercise, etc.), but reversal of bone thinning via "bisphoshonates"–drugs like Fosamax and Actonel–as well as vitamin D and calcium, is in fact well documented and quantified. In fact, I believe the FDA has officially approved Actonel for just this purpose: rebuilding bone mass lost from steroids in both men and women.  NOW is the time to have a baseline bone density test done, <<before pred. can do any damage. Prednisone does most of its damage to bone in the first 6 months of a course of the drug. Additional damage occurs later, but at a much slower rate. As for when to get a baseline scan: Many doctors prefer to wait until you have been off steroids for a while before doing the density test. Anyone in the middle of a course of steroids will of course show bone loss. What matters more is how much bone is left once the steroid is no longer given and the body has reached a point of stability in its bone density. An endocrinologist or rheumatologist can tell ya more.

Response:

Hi Nina, I’m glad that your experiences have made you even more sensitive to others needs in times of medical crisis.  I do not believe that there is any way to reverse the damage from osteoporosis due to prednisone.  You can prevent some of it by taking steps to prevent bone loss while on pred.  This includes diet, exercise and possibly medications.  You should discuss this with your doctor.  Also, NOW is the time to have a baseline bone density test done, before pred. can do any damage.  Discuss this with your doctor.  My PCP was the doctor who ordered the baseline test and will do any follow up.  Thankfully, I haven’t needed any long term pred. since my surgery (and I pray I won’t in the future) but if I do, that would be the time to start planning future bone density tests for me.  You will have to discuss a schedule with your doctor depending on how long you were on pred. and how high a dosage. Good luck!  mgbio – Hide quoted text — Show quoted text – Thanks for the welcome and info so far. It’s been quite a trip the last 3 months. I’m actually an imaging technologist in Canada who works with cancer patients and acutely ill people in angiography and interventional cases (you know, the "icky" stuff). I’ve always been an empathetic and sympathetic person to my patients but that will be on a whole new level when I return to work. My hospital does not do much with IBD so my access to info is limited in this area. I have one other question…. the osteoporosis from the prednisone, is that somewhat reversable if and when you can get off the stuff? I would like to get baseline bone density done when I’m off it (apparently my severity will have me off it one way or another) and get back to exercise for a year or so and have another scan done. Anyone know about this?

Response:

Hi, new to this! I just got my first flare of UC and was hopitalized for megacolon for 2 weeks in February. I’m on prednisone for months yet and have been for months.

Can you find a specialist who has more experience with UC? You could be on meds that are a lot more specific to UC  (and safer) than prednisone, for one thing. Also, it is a shame you got to the point where you developed megacolon–that’s a complication that is supposed to belong to "the old days," since there are now enough good medications to prevent it. It may be time to contact the Canadian Crohn’s and colitis organization and see if they maintain a list of more savvy IBD doctors near you. It’s reachable through the US organization: www.ccfa.org. At the very least, you should be tried on Colazal or Asacol and on an immune modulator for six months or so before resorting to getting your colon removed (if your condition can tolerate such trials, of course).

Response:

r I have one other question…. the osteoporosis from the prednisone, is that somewhat reversable if and when you can get off the stuff?

Yes. It’s reversible with the prescription medication Fosamax (or Actonel) plus calcium and vitamin D supplements. "Bone strengthening" excercises are also said to help (excercises that put weight on the long bones–arm and leg and spine).

Response:

Hi – I also don’t know specific answers to your questions but I’m really sorry to hear that you’ve had to come down with this illness. I also have pan-colitis(entire colon) and have had colitis for 11 years now (I’m 31).  You need to keep your colitis under control of course but you want to get off prednisone as quickly as you can – that stuff will continue to have more and worse side effects the longer and more you take it.  Has your doctor talked to you about imuran?  Not everyone can take it, but Imuran has helped me stay in remission and stay off of prednisone for many years with no side-effects. – Hide quoted text — Show quoted text – Thanks for the welcome and info so far. It’s been quite a trip the last 3 months. I’m actually an imaging technologist in Canada who works with cancer patients and acutely ill people in angiography and interventional cases (you know, the "icky" stuff). I’ve always been an empathetic and sympathetic person to my patients but that will be on a whole new level when I return to work. My hospital does not do much with IBD so my access to info is limited in this area. I have one other question…. the osteoporosis from the prednisone, is that somewhat reversable if and when you can get off the stuff? I would like to get baseline bone density done when I’m off it (apparently my severity will have me off it one way or another) and get back to exercise for a year or so and have another scan done. Anyone know about this?

Response:

Thanks for the welcome and info so far. It’s been quite a trip the last 3 months. I’m actually an imaging technologist in Canada who works with cancer patients and acutely ill people in angiography and interventional cases (you know, the "icky" stuff). I’ve always been an empathetic and sympathetic person to my patients but that will be on a whole new level when I return to work. My hospital does not do much with IBD so my access to info is limited in this area. I have one other question…. the osteoporosis from the prednisone, is that somewhat reversable if and when you can get off the stuff? I would like to get baseline bone density done when I’m off it (apparently my severity will have me off it one way or another) and get back to exercise for a year or so and have another scan done. Anyone know about this?

Response:

I can’t answer your question, I just wanted to say "welcome". One of the smarter folks will be along shortly. Mike Hi, new to this! I just got my first flare of UC and was hopitalized for megacolon for 2 weeks in February. I’m on prednisone for months yet and have been for months. My specialist says I’m still at risk for losing my colon this summer because of the severity of my illness. Apparently I’m one of the BAD 10%. I’m 36 years old and was trying to get pregnant with our second child when this happened, needless to say that’s on hold, forever? I have so many questions for people who are further down this path than I. I can still only tolerate the low residue diet, which goes against my normal eating habits and whacks out my blood sugars. Does anyone know why I would have residual peritonitis from the megacolon? Does this mean that my whole colon inflammed and not just the inside layer like everyone else? I appreciate any info, thanks in advance!

Drop PANTS before emailing. An education teaches you that you don’t know everything. Intelligence means you know where to find the information you are lacking. mgbio

Response:

Hi Nina, I’ve got UC as well.  I can’t help you with your questions regarding megacolon.  I do know that Prednisone is bad about raising glucose levels.  While I was on Prednisone I had to take large doses of insulin and even that didn’t help much.  It didn’t matter what I ate my glucose levels ran between 300 and 500 with insulin.  I am a type II diabetic, but before the Prednisone my glucose levels ranged from 100 to 150, without meds.  I do wish you the best and hope someone will come along and help with your questions. Dwight – Hide quoted text — Show quoted text – Hi, new to this! I just got my first flare of UC and was hopitalized for megacolon for 2 weeks in February. I’m on prednisone for months yet and have been for months. My specialist says I’m still at risk for losing my colon this summer because of the severity of my illness. Apparently I’m one of the BAD 10%. I’m 36 years old and was trying to get pregnant with our second child when this happened, needless to say that’s on hold, forever? I have so many questions for people who are further down this path than I. I can still only tolerate the low residue diet, which goes against my normal eating habits and whacks out my blood sugars. Does anyone know why I would have residual peritonitis from the megacolon? Does this mean that my whole colon inflammed and not just the inside layer like everyone else? I appreciate any info, thanks in advance!

Response:

Hi, new to this! I just got my first flare of UC and was hopitalized for megacolon for 2 weeks in February. I’m on prednisone for months yet and have been for months. My specialist says I’m still at risk for losing my colon this summer because of the severity of my illness. Apparently I’m one of the BAD 10%. I’m 36 years old and was trying to get pregnant with our second child when this happened, needless to say that’s on hold, forever? I have so many questions for people who are further down this path than I. I can still only tolerate the low residue diet, which goes against my normal eating habits and whacks out my blood sugars. Does anyone know why I would have residual peritonitis from the megacolon? Does this mean that my whole colon inflammed and not just the inside layer like everyone else? I appreciate any info, thanks in advance!

Response:

Question:

BJ – So glad that you were able to get out! The walls start closing in after a while don’t they? Leslie "BJ" <B…@sk.nojunk.ca

wrote in message

news:1022l85dqkp45fb@corp.supernews.com… – Hide quoted text — Show quoted text -

Hi Bruce, I have always been hyper too. I rarely get bored, but it has been far too cold to even go outside. Hubby and I drove to the city today and spent a

few

hours there. It is the first time I have been out of the house in a week

and

a half. That is a CGT that gave me a lift. It is only -20C here today and although there is a high wind chill, it is far better than it has been in

a > while. > BJ-Sk. Canada > "Bruce On." <rothnie2…@hotmail.com

wrote in message

> news:GEaUb.130590$9Ce1.92254@news04.bloor.is.net.cable.rogers.com… > > "BJ" <B…@sk.nojunk.ca

wrote in message

> > news:10221k9p5ia6cc6@corp.supernews.com… > > > Things have been very quiet around here lately. Do we need a roll call?

This is BJ checking in to say that I am still alive, tired of our long winter, and bored as heck. BJ-Sk. Canada Hugs BJ )) BIG migrane day , since 2 am. Bruce On. " Babes , how do you get bored feeling , never felt it. Maybe

I

am to hyper or is it a fiar maid thingy ? "

Response:

Beverley wrote:

Hey, Sharon have you considered the old paper chain thing (one link for each day of school) so you can shorten the chain each day that you have completed of school. It’s a pleasant visual thing that just might make you feel good about getting through it. BTW, what will you be getting your degree in? (Don’t you just love my grammar? LOL) Bev

<snip

Grammer shmammer..  :P Geology BA, with a studio art minor.  I’m working in web design now, and I think that after all those geology courses, I’ll be a web designer for a while. Paper chain sounds really fun, if you’ll make it for me.  ;) -Sharon — "Don’t make me come down there…"                            -God

Response:

hi, madison here.  dealing with colitis flare from new

Question:

Hi! You are NOT alone!  I have crohns and I am also constantly amazed at how much I go when flaring and how often I go!  I always wonder where it all came from to!  Take care…MaryAnn C

Response:

The real issue is to get your situation under control. What is the consistency of the output –  and is there blood and/or mucus in it? Do you have pain before during or after or does the pain go away after emptying the bowels? thanks, Jeff

Jokster Jeff and Bruce, thanks for the input on my output. I think both of you are right in the sense I may be misestimating the actual output vs blood, consistency, and all the other gross stuff. Thanks for the info.

– Hide quoted text — Show quoted text – The only explanation is that you must be full of sh*t. Just kidding, just kidding, couldn’t resist that one. No it’s a bit of a quandry. When I was flaring I would go more often but the output was small and really disgusting. Overall daily output was much less than it is now. I’ve found that probiotics have added to the bulk and consistency. Perhaps you may have some bacteriologic component that is adding something. But that’s a bit of a stretch I think. It may be hard to tell how much is really coming out depending on what the consistancy is as well as size and shape. There have been times when I seemed to have a lot of output but not for more than 2 or 3 days in a row. Regards, Jeff

Response:

I think you guys are forgetting that in a normal stool 50% of that is bacteria, so could it be possible that in an abnormal stool the volume of bacteria could be higher? Mike – Hide quoted text — Show quoted text – Bruce, you may have misread a small part of my question. I am ALWAYS productive (well 99%) of the time when I have to run to the bathroom. And on top of that I make probably ten to twelve trips a day. That’s a lot of excrement!!! How is it possible. I agree that food runs through faster, but that doesn’t account for how much is pooped. I ask again, how is it possible? I have a question I should probably know the answer to but don’t. Why is it that every time I have a Colitis flare-up, I make constant trips to the bathroom to make bowel movements? I should note that almost every time is a productive movement. I don’t make even half the BM’s when I’m in remission. How is it physically possible that a flare-up can create more poop? I know this sounds silly, but it just doesn’t make sense to me. HELP!!! The medical term is called tenesmus. You feel the need to "go" a lot but it’s not always as you say, "a productive movement".  And while your body doesn’t necessarily produce more waste with an inflammatory bowel disease things can certainly pass through a lot quicker when your intestines are badly inflamed and in the case of colitis, water is not absorbed as well. http://www.nlm.nih.gov/medlineplus/ency/article/003131.htm

Response:

Jokster Jeff and Bruce, thanks for the input on my output. I think both of you are right in the sense I may be misestimating the actual output vs blood, consistency, and all the other gross stuff. Thanks for the info. – Hide quoted text — Show quoted text – The only explanation is that you must be full of sh*t. Just kidding, just kidding, couldn’t resist that one. No it’s a bit of a quandry. When I was flaring I would go more often but the output was small and really disgusting. Overall daily output was much less than it is now. I’ve found that probiotics have added to the bulk and consistency. Perhaps you may have some bacteriologic component that is adding something. But that’s a bit of a stretch I think. It may be hard to tell how much is really coming out depending on what the consistancy is as well as size and shape. There have been times when I seemed to have a lot of output but not for more than 2 or 3 days in a row. Regards, Jeff Bruce, you may have misread a small part of my question. I am ALWAYS productive (well 99%) of the time when I have to run to the bathroom. And on top of that I make probably ten to twelve trips a day. That’s a lot of excrement!!! How is it possible. I agree that food runs through faster, but that doesn’t account for how much is pooped. I ask again, how is it possible? I have a question I should probably know the answer to but don’t. Why is it that every time I have a Colitis flare-up, I make constant trips to the bathroom to make bowel movements? I should note that almost every time is a productive movement. I don’t make even half the BM’s when I’m in remission. How is it physically possible that a flare-up can create more poop? I know this sounds silly, but it just doesn’t make sense to me. HELP!!! The medical term is called tenesmus. You feel the need to "go" a lot but it’s not always as you say, "a productive movement".  And while your body doesn’t necessarily produce more waste with an inflammatory bowel disease things can certainly pass through a lot quicker when your intestines are badly inflamed and in the case of colitis, water is not absorbed as well. http://www.nlm.nih.gov/medlineplus/ency/article/003131.htm

Response:

Bruce, you may have misread a small part of my question. I am ALWAYS productive (well 99%) of the time when I have to run to the bathroom. And on top of that I make probably ten to twelve trips a day. That’s a lot of excrement!!! How is it possible. I agree that food runs through faster, but that doesn’t account for how much is pooped. I ask again, how is it possible?

You’re right I did misread your question, my apologies.  My only guess is that you have additional water, leukocytes, blood, bile, nutrients, and sloughed-off colonic epithelial cells being excreted during a flare-up than during remission. Also because a person is going to the bathroom a large number of times it can often seem like the output is a lot more than would be normally over the course of a day.

Response:

The only explanation is that you must be full of sh*t. Just kidding, just kidding, couldn’t resist that one. No it’s a bit of a quandry. When I was flaring I would go more often but the output was small and really disgusting. Overall daily output was much less than it is now. I’ve found that probiotics have added to the bulk and consistency. Perhaps you may have some bacteriologic component that is adding something. But that’s a bit of a stretch I think. It may be hard to tell how much is really coming out depending on what the consistancy is as well as size and shape. There have been times when I seemed to have a lot of output but not for more than 2 or 3 days in a row. Regards, Jeff

Bruce, you may have misread a small part of my question. I am ALWAYS productive (well 99%) of the time when I have to run to the bathroom. And on top of that I make probably ten to twelve trips a day. That’s a lot of excrement!!! How is it possible. I agree that food runs through faster, but that doesn’t account for how much is pooped. I ask again, how is it possible?

– Hide quoted text — Show quoted text – I have a question I should probably know the answer to but don’t. Why is it that every time I have a Colitis flare-up, I make constant trips to the bathroom to make bowel movements? I should note that almost every time is a productive movement. I don’t make even half the BM’s when I’m in remission. How is it physically possible that a flare-up can create more poop? I know this sounds silly, but it just doesn’t make sense to me. HELP!!! The medical term is called tenesmus. You feel the need to "go" a lot but it’s not always as you say, "a productive movement".  And while your body doesn’t necessarily produce more waste with an inflammatory bowel disease things can certainly pass through a lot quicker when your intestines are badly inflamed and in the case of colitis, water is not absorbed as well. http://www.nlm.nih.gov/medlineplus/ency/article/003131.htm

Response:

Well, if you aren’t absorbing too much then it’s most likely just coming out the other end. Plus if you have disease in your colon (Idon’t remember if you do or not) then you are not absorbing all of the liquid that you should as well and that could be contributing too. Debs – Hide quoted text — Show quoted text – Bruce, you may have misread a small part of my question. I am ALWAYS productive (well 99%) of the time when I have to run to the bathroom. And on top of that I make probably ten to twelve trips a day. That’s a lot of excrement!!! How is it possible. I agree that food runs through faster, but that doesn’t account for how much is pooped. I ask again, how is it possible? I have a question I should probably know the answer to but don’t. Why is it that every time I have a Colitis flare-up, I make constant trips to the bathroom to make bowel movements? I should note that almost every time is a productive movement. I don’t make even half the BM’s when I’m in remission. How is it physically possible that a flare-up can create more poop? I know this sounds silly, but it just doesn’t make sense to me. HELP!!! The medical term is called tenesmus. You feel the need to "go" a lot but it’s not always as you say, "a productive movement".  And while your body doesn’t necessarily produce more waste with an inflammatory bowel disease things can certainly pass through a lot quicker when your intestines are badly inflamed and in the case of colitis, water is not absorbed as well. http://www.nlm.nih.gov/medlineplus/ency/article/003131.htm

Response:

Bruce, you may have misread a small part of my question. I am ALWAYS productive (well 99%) of the time when I have to run to the bathroom. And on top of that I make probably ten to twelve trips a day. That’s a lot of excrement!!! How is it possible. I agree that food runs through faster, but that doesn’t account for how much is pooped. I ask again, how is it possible? – Hide quoted text — Show quoted text – I have a question I should probably know the answer to but don’t. Why is it that every time I have a Colitis flare-up, I make constant trips to the bathroom to make bowel movements? I should note that almost every time is a productive movement. I don’t make even half the BM’s when I’m in remission. How is it physically possible that a flare-up can create more poop? I know this sounds silly, but it just doesn’t make sense to me. HELP!!! The medical term is called tenesmus. You feel the need to "go" a lot but it’s not always as you say, "a productive movement".  And while your body doesn’t necessarily produce more waste with an inflammatory bowel disease things can certainly pass through a lot quicker when your intestines are badly inflamed and in the case of colitis, water is not absorbed as well. http://www.nlm.nih.gov/medlineplus/ency/article/003131.htm

Response:

"Bathroom trips through the roof!" Basspro* Why can’t you use the bathroom door like everyone else? Navid

Response:

I have a question I should probably know the answer to but don’t. Why is it that every time I have a Colitis flare-up, I make constant trips to the bathroom to make bowel movements? I should note that almost every time is a productive movement. I don’t make even half the BM’s when I’m in remission. How is it physically possible that a flare-up can create more poop? I know this sounds silly, but it just doesn’t make sense to me. HELP!!!

The medical term is called tenesmus. You feel the need to "go" a lot but it’s not always as you say, "a productive movement".  And while your body doesn’t necessarily produce more waste with an inflammatory bowel disease things can certainly pass through a lot quicker when your intestines are badly inflamed and in the case of colitis, water is not absorbed as well. http://www.nlm.nih.gov/medlineplus/ency/article/003131.htm

Response:

hee hee.. is this what santa would do with crohn’s?

– Hide quoted text — Show quoted text – "Bathroom trips through the roof!" Basspro* Why can’t you use the bathroom door like everyone else? Navid

Response:

I have a question I should probably know the answer to but don’t. Why is it that every time I have a Colitis flare-up, I make constant trips to the bathroom to make bowel movements? I should note that almost every time is a productive movement. I don’t make even half the BM’s when I’m in remission. How is it physically possible that a flare-up can create more poop? I know this sounds silly, but it just doesn’t make sense to me. HELP!!!

Response:

Question:

Have been in remission from my UC for over a year now.  REcently started with the diahreah and intestinal cramping again.  I don’t believe the ulcers are back (no bleeding or mucus) so what is the problem?  Can you have a UC flare up without the ulcers?  I feel like I’m getting better and just wondering what happened! Heather

Response:

I think the intestines start to get inflammed at first and then later if untreated the ulcers develope. I may be wrong – not too sure but I think this is how it works sometimes. Sarah

– Hide quoted text — Show quoted text – Have been in remission from my UC for over a year now.  REcently started with the diahreah and intestinal cramping again.  I don’t believe the ulcers are back (no bleeding or mucus) so what is the problem?  Can you have a UC flare up without the ulcers?  I feel like I’m getting better and just wondering what happened! Heather

Response:

Have been in remission from my UC for over a year now.  REcently started with the diahreah and intestinal cramping again.  I don’t believe the ulcers are back (no bleeding or mucus) so what is the problem?  Can you have a UC flare up without the ulcers?  I feel like I’m getting better and just wondering what happened! Heather

I also feel that my symptoms are in abeyance, but occasionally get a distended belly and some aching, both of which were chronic when I was ill. Although I don’t get diarrhea, perhaps in your case and mine there has been some residual weakening and sensitivity. (Please also see my comment on your message at http://groups.google.com/groups?dq=&hl=en&lr=&ie=UTF-8&oe=UTF-8&threa…) Michael.

Response:

Sorry to hear that. I used to flare up almost every winter. Stan – Hide quoted text — Show quoted text – Have been in remission from my UC for over a year now.  REcently started with the diahreah and intestinal cramping again.  I don’t believe the ulcers are back (no bleeding or mucus) so what is the problem?  Can you have a UC flare up without the ulcers?  I feel like I’m getting better and just wondering what happened! Heather

Response:

Question:

Be careful with edema.  It can cause damage and I know this from personal experience.  As soon as you can, get a hold of your dr.   UM MOM Susan

– Hide quoted text — Show quoted text – My doctor has always told me to stay away from salty  and processed foods with lots of sodium in it, especially when your taking prednisone since it disrupts the balance of salt and water in your body. That very well may have caused the swelling in your legs. It can happen overnight when your taking prednisone. I tried to elevate my legs also but the swelling was beyond relief by elevation. Yes, I notice that the swelling is much better in the morning than last thing at night. I also notice that over the last 24 hours the swelling seems to be getting a little better. I’ve been drinking a fair amount of tea which I *think* (please don’t take my word for this) is a mild natural diuretic, and I was going to the loo a lot more yesterday than usual. I have also been wondering why this swelling happened so suddenly. Okay, maybe just the meds BUT it might not be a coincidence that on Thursday night I had decided to change my normal chicken/rice bland diet for grilled food. Just for once, a little experiment. Haven’t had anything like this in 6 months, and it was delicious, but left me with a very, very strong salty taste in my mouth. I thought it odd at the time. Is is possible that eating salty foods can trigger something like this? In any case the salty taste only just left me Friday evening, the swelling seems to be a little better, and I’m going back on chicken and rice until this flare is well out of the way. Diet is so important in this business, so perhaps diet can affect salt and water retention too. Jim one thing i noticed that helps, is keep your feet up.  yes, you are pretty much bed ridden if you do this, but the only thing i found that really helps. jeffy I got up this morning and the problem was no better, so I called the doc. We’ll be meeting up after the weekend and he suggested, as you did, a mild diuretic to help. Without any treatment it’s settled a little as the day has gone on so if it doesn’t get any worse, I’ll be fine. Thanks for your reassurance and advice, it really helped, Jim I was on prednisone 40 mgs reducing by 10 mgs for 6 weeks for a severe colitis flare up. During that time my ankles and calves were swollen so bad all the way up to my knees. I called my GI doctor and was told that was a side effect and I should just ride it out. I was not satisfied with that answer and called my primary care physician and she prescribed a extremely mild diuretic. It helped tremendously, within two days my legs were back to normal. I’ve just noticed that both my feet are quite swollen, and my right leg muscles feel "tight". I think this has only happened in the last 6-12 hours at most. I started on 40mg Pred a week ago, plus an increase from 1.5g/day to 3g/day Pentasa, with no worrying side effects until now (increased appetite, sleeplessness). I notice that the side effects listed for Pentasa includes swollen ankles. For Pred it lists water and salt retention. Would that cause such swelling? Is this a known problem for anyone else? I’ll contact my doc in the morning before taking any more of the stuff. (It’s just past midnight over here right now.) Cheers, Jim. — To reply by email, take out the "no.thanks." in my address. — To reply by email, take out the "no.thanks." in my address. — To reply by email, take out the "no.thanks." in my address.

Response:

It is definitely the prednisone. I have had both times I was on large doses that were administered intravenously. It does go away resonably quickly, but I worry about long term damage. I have had much more cramping in my feet ever since. The prednisone also causes a problem with a lack of potasium in your body which is the cause some of the cramping, so eat lots of bananas for a while. – Hide quoted text — Show quoted text – Be careful with edema.  It can cause damage and I know this from personal experience.  As soon as you can, get a hold of your dr.   UM MOM Susan My doctor has always told me to stay away from salty  and processed foods with lots of sodium in it, especially when your taking prednisone since it disrupts the balance of salt and water in your body. That very well may have caused the swelling in your legs. It can happen overnight when your taking prednisone. I tried to elevate my legs also but the swelling was beyond relief by elevation. Yes, I notice that the swelling is much better in the morning than last thing at night. I also notice that over the last 24 hours the swelling seems to be getting a little better. I’ve been drinking a fair amount of tea which I *think* (please don’t take my word for this) is a mild natural diuretic, and I was going to the loo a lot more yesterday than usual. I have also been wondering why this swelling happened so suddenly. Okay, maybe just the meds BUT it might not be a coincidence that on Thursday night I had decided to change my normal chicken/rice bland diet for grilled food. Just for once, a little experiment. Haven’t had anything like this in 6 months, and it was delicious, but left me with a very, very strong salty taste in my mouth. I thought it odd at the time. Is is possible that eating salty foods can trigger something like this? In any case the salty taste only just left me Friday evening, the swelling seems to be a little better, and I’m going back on chicken and rice until this flare is well out of the way. Diet is so important in this business, so perhaps diet can affect salt and water retention too. Jim one thing i noticed that helps, is keep your feet up.  yes, you are pretty much bed ridden if you do this, but the only thing i found that really helps. jeffy I got up this morning and the problem was no better, so I called the doc. We’ll be meeting up after the weekend and he suggested, as you did, a mild diuretic to help. Without any treatment it’s settled a little as the day has gone on so if it doesn’t get any worse, I’ll be fine. Thanks for your reassurance and advice, it really helped, Jim I was on prednisone 40 mgs reducing by 10 mgs for 6 weeks for a severe colitis flare up. During that time my ankles and calves were swollen so bad all the way up to my knees. I called my GI doctor and was told that was a side effect and I should just ride it out. I was not satisfied with that answer and called my primary care physician and she prescribed a extremely mild diuretic. It helped tremendously, within two days my legs were back to normal. I’ve just noticed that both my feet are quite swollen, and my right leg muscles feel "tight". I think this has only happened in the last 6-12 hours at most. I started on 40mg Pred a week ago, plus an increase from 1.5g/day to 3g/day Pentasa, with no worrying side effects until now (increased appetite, sleeplessness). I notice that the side effects listed for Pentasa includes swollen ankles. For Pred it lists water and salt retention. Would that cause such swelling? Is this a known problem for anyone else? I’ll contact my doc in the morning before taking any more of the stuff. (It’s just past midnight over here right now.) Cheers, Jim. — To reply by email, take out the "no.thanks." in my address. — To reply by email, take out the "no.thanks." in my address. — To reply by email, take out the "no.thanks." in my address.

Response:

My doctor has always told me to stay away from salty  and processed foods with lots of sodium in it, especially when your taking prednisone since it disrupts the balance of salt and water in your body. That very well may have caused the swelling in your legs. It can happen overnight when your taking prednisone. I tried to elevate my legs also but the swelling was beyond relief by elevation. – Hide quoted text — Show quoted text – Yes, I notice that the swelling is much better in the morning than last thing at night. I also notice that over the last 24 hours the swelling seems to be getting a little better. I’ve been drinking a fair amount of tea which I *think* (please don’t take my word for this) is a mild natural diuretic, and I was going to the loo a lot more yesterday than usual. I have also been wondering why this swelling happened so suddenly. Okay, maybe just the meds BUT it might not be a coincidence that on Thursday night I had decided to change my normal chicken/rice bland diet for grilled food. Just for once, a little experiment. Haven’t had anything like this in 6 months, and it was delicious, but left me with a very, very strong salty taste in my mouth. I thought it odd at the time. Is is possible that eating salty foods can trigger something like this? In any case the salty taste only just left me Friday evening, the swelling seems to be a little better, and I’m going back on chicken and rice until this flare is well out of the way. Diet is so important in this business, so perhaps diet can affect salt and water retention too. Jim one thing i noticed that helps, is keep your feet up.  yes, you are pretty much bed ridden if you do this, but the only thing i found that really helps. jeffy I got up this morning and the problem was no better, so I called the doc. We’ll be meeting up after the weekend and he suggested, as you did, a mild diuretic to help. Without any treatment it’s settled a little as the day has gone on so if it doesn’t get any worse, I’ll be fine. Thanks for your reassurance and advice, it really helped, Jim I was on prednisone 40 mgs reducing by 10 mgs for 6 weeks for a severe colitis flare up. During that time my ankles and calves were swollen so bad all the way up to my knees. I called my GI doctor and was told that was a side effect and I should just ride it out. I was not satisfied with that answer and called my primary care physician and she prescribed a extremely mild diuretic. It helped tremendously, within two days my legs were back to normal. I’ve just noticed that both my feet are quite swollen, and my right leg muscles feel "tight". I think this has only happened in the last 6-12 hours at most. I started on 40mg Pred a week ago, plus an increase from 1.5g/day to 3g/day Pentasa, with no worrying side effects until now (increased appetite, sleeplessness). I notice that the side effects listed for Pentasa includes swollen ankles. For Pred it lists water and salt retention. Would that cause such swelling? Is this a known problem for anyone else? I’ll contact my doc in the morning before taking any more of the stuff. (It’s just past midnight over here right now.) Cheers, Jim. — To reply by email, take out the "no.thanks." in my address. — To reply by email, take out the "no.thanks." in my address. — To reply by email, take out the "no.thanks." in my address.

Response:

It’s the prednisone. Mary

– Hide quoted text — Show quoted text – I’ve just noticed that both my feet are quite swollen, and my right leg muscles feel "tight". I think this has only happened in the last 6-12 hours at most. I started on 40mg Pred a week ago, plus an increase from 1.5g/day to 3g/day Pentasa, with no worrying side effects until now (increased appetite, sleeplessness). I notice that the side effects listed for Pentasa includes swollen ankles. For Pred it lists water and salt retention. Would that cause such swelling? Is this a known problem for anyone else? I’ll contact my doc in the morning before taking any more of the stuff. (It’s just past midnight over here right now.) Cheers, Jim. — To reply by email, take out the "no.thanks." in my address.

Response:

Yes, salt can help edema.  While you are in the flare and have the edema cut the salt out of your diet and see if this helps with the edema.  UM MOM Susan

– Hide quoted text — Show quoted text – Yes, I notice that the swelling is much better in the morning than last thing at night. I also notice that over the last 24 hours the swelling seems to be getting a little better. I’ve been drinking a fair amount of tea which I *think* (please don’t take my word for this) is a mild natural diuretic, and I was going to the loo a lot more yesterday than usual. I have also been wondering why this swelling happened so suddenly. Okay, maybe just the meds BUT it might not be a coincidence that on Thursday night I had decided to change my normal chicken/rice bland diet for grilled food. Just for once, a little experiment. Haven’t had anything like this in 6 months, and it was delicious, but left me with a very, very strong salty taste in my mouth. I thought it odd at the time. Is is possible that eating salty foods can trigger something like this? In any case the salty taste only just left me Friday evening, the swelling seems to be a little better, and I’m going back on chicken and rice until this flare is well out of the way. Diet is so important in this business, so perhaps diet can affect salt and water retention too. Jim one thing i noticed that helps, is keep your feet up.  yes, you are pretty much bed ridden if you do this, but the only thing i found that really helps. jeffy I got up this morning and the problem was no better, so I called the doc. We’ll be meeting up after the weekend and he suggested, as you did, a mild diuretic to help. Without any treatment it’s settled a little as the day has gone on so if it doesn’t get any worse, I’ll be fine. Thanks for your reassurance and advice, it really helped, Jim I was on prednisone 40 mgs reducing by 10 mgs for 6 weeks for a severe colitis flare up. During that time my ankles and calves were swollen so bad all the way up to my knees. I called my GI doctor and was told that was a side effect and I should just ride it out. I was not satisfied with that answer and called my primary care physician and she prescribed a extremely mild diuretic. It helped tremendously, within two days my legs were back to normal. I’ve just noticed that both my feet are quite swollen, and my right leg muscles feel "tight". I think this has only happened in the last 6-12 hours at most. I started on 40mg Pred a week ago, plus an increase from 1.5g/day to 3g/day Pentasa, with no worrying side effects until now (increased appetite, sleeplessness). I notice that the side effects listed for Pentasa includes swollen ankles. For Pred it lists water and salt retention. Would that cause such swelling? Is this a known problem for anyone else? I’ll contact my doc in the morning before taking any more of the stuff. (It’s just past midnight over here right now.) Cheers, Jim. — To reply by email, take out the "no.thanks." in my address. — To reply by email, take out the "no.thanks." in my address. — To reply by email, take out the "no.thanks." in my address.

Response:

one thing i noticed that helps, is keep your feet up.  yes, you are pretty much bed ridden if you do this, but the only thing i found that really helps. jeffy

– Hide quoted text — Show quoted text – I got up this morning and the problem was no better, so I called the doc. We’ll be meeting up after the weekend and he suggested, as you did, a mild diuretic to help. Without any treatment it’s settled a little as the day has gone on so if it doesn’t get any worse, I’ll be fine. Thanks for your reassurance and advice, it really helped, Jim I was on prednisone 40 mgs reducing by 10 mgs for 6 weeks for a severe colitis flare up. During that time my ankles and calves were swollen so bad all the way up to my knees. I called my GI doctor and was told that was a side effect and I should just ride it out. I was not satisfied with that answer and called my primary care physician and she prescribed a extremely mild diuretic. It helped tremendously, within two days my legs were back to normal. I’ve just noticed that both my feet are quite swollen, and my right leg muscles feel "tight". I think this has only happened in the last 6-12 hours at most. I started on 40mg Pred a week ago, plus an increase from 1.5g/day to 3g/day Pentasa, with no worrying side effects until now (increased appetite, sleeplessness). I notice that the side effects listed for Pentasa includes swollen ankles. For Pred it lists water and salt retention. Would that cause such swelling? Is this a known problem for anyone else? I’ll contact my doc in the morning before taking any more of the stuff. (It’s just past midnight over here right now.) Cheers, Jim. — To reply by email, take out the "no.thanks." in my address. — To reply by email, take out the "no.thanks." in my address.

Response:

YES! jeffy

– Hide quoted text — Show quoted text – I’ve just noticed that both my feet are quite swollen, and my right leg muscles feel "tight". I think this has only happened in the last 6-12 hours at most. I started on 40mg Pred a week ago, plus an increase from 1.5g/day to 3g/day Pentasa, with no worrying side effects until now (increased appetite, sleeplessness). I notice that the side effects listed for Pentasa includes swollen ankles. For Pred it lists water and salt retention. Would that cause such swelling? Is this a known problem for anyone else? I’ll contact my doc in the morning before taking any more of the stuff. (It’s just past midnight over here right now.) Cheers, Jim. — To reply by email, take out the "no.thanks." in my address.

Response:

I was on prednisone 40 mgs reducing by 10 mgs for 6 weeks for a severe colitis flare up. During that time my ankles and calves were swollen so bad all the way up to my knees. I called my GI doctor and was told that was a side effect and I should just ride it out. I was not satisfied with that answer and called my primary care physician and she prescribed a extremely mild diuretic. It helped tremendously, within two days my legs were back to normal. – Hide quoted text — Show quoted text – I’ve just noticed that both my feet are quite swollen, and my right leg muscles feel "tight". I think this has only happened in the last 6-12 hours at most. I started on 40mg Pred a week ago, plus an increase from 1.5g/day to 3g/day Pentasa, with no worrying side effects until now (increased appetite, sleeplessness). I notice that the side effects listed for Pentasa includes swollen ankles. For Pred it lists water and salt retention. Would that cause such swelling? Is this a known problem for anyone else? I’ll contact my doc in the morning before taking any more of the stuff. (It’s just past midnight over here right now.) Cheers, Jim. — To reply by email, take out the "no.thanks." in my address.

Response:

Jim I am on the Pentasa and also deal with vascular disease in my legs.  I can get acute edema very easily.  But both drugs can cause this effect so you need to talk to your dr.   Do not stop your meds without your drs ok. If you are real concerned call his service now and have him call you back. I know with pred you have to come down slowly.  Just started full maintenance dose of Pentasa and the side effects I am getting that the dr says might go away in time is low grade fever, chills, The big D (what’s new?! LOL) and slight headache.  What you are describing sounds more like Pred to me but only your dr can give you the answers of what to do.  UM MOM Susan

– Hide quoted text — Show quoted text – I’ve just noticed that both my feet are quite swollen, and my right leg muscles feel "tight". I think this has only happened in the last 6-12 hours at most. I started on 40mg Pred a week ago, plus an increase from 1.5g/day to 3g/day Pentasa, with no worrying side effects until now (increased appetite, sleeplessness). I notice that the side effects listed for Pentasa includes swollen ankles. For Pred it lists water and salt retention. Would that cause such swelling? Is this a known problem for anyone else? I’ll contact my doc in the morning before taking any more of the stuff. (It’s just past midnight over here right now.) Cheers, Jim. — To reply by email, take out the "no.thanks." in my address.

Response:

Question:

I just spent 18 days in the hospital due to a terrible colitis flare-up full of bloody bowel movements. They finally got it under control and I’m back home now, but I’m also suffering from a low blood count due to the endless bleeding. How long does it take to recover from this kind of anemia (since I guess that’s what it is)? I’m very frustrated at how weak and fatigued I can feel – some days are better than others, but I never feel a normal. Last time my blood was tested, my hemoglobin count was 10, hematocrit was around 30 (whatever that means). Thanks John

Response:

John, First sorry to here about such a long stay in the hospital. I can’t answer your questions about the " stats" but even if you weren’t anemic, you would be weak and fatigued. Your body has just gone through a horrible battle. Even if the blood has stopped, think about how long it takes for just a little paper cut to heal, your colon is going to need a bit of down time.  From my last couple experiences like yours, once it took me a few months to feel normal again.. that was on a long predisone with drawl and TPN, then the last time I recieved Remicade- for my UC, and it made me feel wonderful- very quickly. It was as if the Remicade healed my insides where as the predisone didn’t really work. I was able to get off the predisone quickly and I ws much better at following the advice of taking a multi vit, iron, as per prescribed by the doc and calcuim & magnesium, and other anti ox vit’s.. I suggest the vitamins, but check with your doc about the iron- I think you need to becare with that- make sure he tells you what those results mean. Also  Ken will probably respond. i hope you start  feeling better and have a long remission.

Response:

I just spent 18 days in the hospital due to a terrible colitis flare-up full of bloody bowel movements. They finally got it under control and I’m back home now, but I’m also suffering from a low blood count due to the endless bleeding.

 -snipped-   My boyfriend had to have several units of blood since his counts were so bad – it picked him up within a few days…I don’t know if you or your doctor would consider that…he was taking iron pills also but it didn’t seem like he was responding fast enough for the Dr. – Good luck Linda + Darin

Response:

I am conducting a research project through Suffolk University, Boston on how individuals cope and are resilient to both Crohn’s and Ulcerative Colitis. I need individuals between 18-35 to fill out a 30 minute survey which may be mailed to them.  Help expand the information about this disease and contact me at in the USA. Thank you, Jennifer Kaplan

Response:

Question:

Yes. These are all common with Colitis not settling down.

– Hide quoted text — Show quoted text – I have certainly experienced extreme fatigue, and have taken a lot of prednisone.  Also, easy bruising (is that the same as thin skin?) {{{{{Ron}}}}} I do hope you feel better soon.  : ) Reesie Hi people just got out of the hospital for 2.5 weeks on TPN and test cause my colitis flare up has been going on for 6 months , I discharged my self cause the hopital stay wasnt doing to good for me and the steroids they were pumping in me was to much!     So now i am home still taking 35 mg of prednisone still not outa this flare up and went from 155lbs to 125lbs in 6 months.     My question  is has any one else experience muscle lose  all over from the steroids because of prolonged use ?     And extreme fatigue etc.? Thin skin and dry? PLEASE RESPOND ( im freaking) Ron in windsor ontario canada

Response:

I have certainly experienced extreme fatigue, and have taken a lot of prednisone.  Also, easy bruising (is that the same as thin skin?) {{{{{Ron}}}}} I do hope you feel better soon.  : ) Reesie

– Hide quoted text — Show quoted text – Hi people just got out of the hospital for 2.5 weeks on TPN and test cause my colitis flare up has been going on for 6 months , I discharged my self cause the hopital stay wasnt doing to good for me and the steroids they were pumping in me was to much!     So now i am home still taking 35 mg of prednisone still not outa this flare up and went from 155lbs to 125lbs in 6 months.     My question  is has any one else experience muscle lose  all over from the steroids because of prolonged use ?     And extreme fatigue etc.? Thin skin and dry? PLEASE RESPOND ( im freaking) Ron in windsor ontario canada

Response:

It’s called wasting.It’s relatively common with IBD and yes it is scary!  I was down too 117lbs at my worst. If you were to be tested for oxidative stress you wold find that you are in the high mark. When I was in really bad shape I put myself onto a good quality nutritional program and still continue one today.I’m a big time believer in how helpful good quality nutritonal supplements can be with this disease. Ken.W  6 Years Med Free Proud member of the USANA Family

– Hide quoted text — Show quoted text – Hi people just got out of the hospital for 2.5 weeks on TPN and test cause my colitis flare up has been going on for 6 months , I discharged my self cause the hopital stay wasnt doing to good for me and the steroids they were pumping in me was to much!     So now i am home still taking 35 mg of prednisone still not outa this flare up and went from 155lbs to 125lbs in 6 months.     My question  is has any one else experience muscle lose  all over from the steroids because of prolonged use ?     And extreme fatigue etc.? Thin skin and dry? PLEASE RESPOND ( im freaking) Ron in windsor ontario canada

Response:

i am on 40 mg pred among much other stuff too.  i have these sx’s also…not anything new.  just got out hospital myself after 3 1/2 weeks of p.g.  i am on prograf…14.5 mg 2 times day, plus the pred plus hi blood pressure meds…dry skin….sweating profusely…. shakes, moon face, you name huron….howdy windsor neighbor!!!!! jeffy

– Hide quoted text — Show quoted text – Hi people just got out of the hospital for 2.5 weeks on TPN and test cause my colitis flare up has been going on for 6 months , I discharged my self cause the hopital stay wasnt doing to good for me and the steroids they were pumping in me was to much!     So now i am home still taking 35 mg of prednisone still not outa this flare up and went from 155lbs to 125lbs in 6 months.     My question  is has any one else experience muscle lose  all over from the steroids because of prolonged use ?     And extreme fatigue etc.? Thin skin and dry? PLEASE RESPOND ( im freaking) Ron in windsor ontario canada

Response:

Hi Ron, I’m so sorry your freaking.. I’ve been where you are- so sorry!! I can feel for you. Yes on the loose musles- actually the felt so week when I’d came home – like the weight I lost was all musle not fat. I could hardly walk at first. How much predisone where you on in the hospital- cause usually they have me at at least 60mgs- 35 seems low if you just got out. I did home care service and kept the picc line in and stayed at 60 with TPN until I was MUCH bette.  then I started to taper.. i didn’t get the fatigued until I got lower on the steriods – but maybe your weening to fast. Though it is normal to start to crash – Rebecca’s right your body it still fighting the flare, and the steriods do a number on your body and mind. Did  they give you something to help you sleep at night.. tell us more maybe we can help more.. LeeAnn

Response:

Ron, I feel for you!!! I just got out of the hospital  in January and I still can’t seem to get myself back on track! My doc put me on pred 60mg for 2 months. Until I found me a new doc I was and still am in the shape of a 89 year old woman. (I’m only 37) My blood count got extreemly low and its still low, my protein level got low, I lost 22lbs in like 2 wks. Plus, the side effects of colitis alone is all that I’ve mentioned +more and he puts me on pred. Now I’m having all those fun things that go along with that. Thanks be to God I finished up my LAST dose wednesday 27th but I’m having the fun with drawls that go with that. The fatigue, the irritability, the shakes. I will NEVER let another doc put me on that crap again… The only way I’ll take it is, if they tell me that I’ll die if I don’t take it and thats the only way!!!!!! I hate the stuff. When I changed to a new doc, I found out that there are soo many other drugs to take besisdes steroids. I’m on a new one now 6-mp and I hope it works. You should ask your doc to try something else besdies the pred.  and Rebecca is right if your doc don’t listen get a new one…. I had the same one for over 6 years and I was making no progress at all and now since I’ve switched I feel there is some hope now. My new doc is great!!! my huggs and prayers are going out to you! Tina UC 95

– Hide quoted text — Show quoted text – ((((((((((((((((RON))))))))))))))) It must be awful to be flaring for so long! Please know I am thinking of you! I don’t know about the muscle lose, but I can tell you that being in a flare and also tapering steroids can both lead to extreme fatigue. Let’s face it, you are really, really sick and your body is constantly trying to get well! That takes a LOT if not ALL of your energy right there. Sure wish there was some magic pill I could give you to get well. Have you tried any other meds besides steroids? Many here have had good luck with Imuran, Questran, RMAT, etc. Talk to your doc about how you are feeling. If s/he seems unresponsive, find a different doc. Only other advice I can give you is be careful what you eat (so you don’t make yourself worse, and to eat as healthy as possible), drink lots of fluids, take a good multi-vitamin, and get as much rest as humanly possible. Post here if you need a shoulder. Rebecca Hi people just got out of the hospital for 2.5 weeks on TPN and test cause my colitis flare up has been going on for 6 months , I discharged my self cause the hopital stay wasnt doing to good for me and the steroids they were pumping in me was to much!     So now i am home still taking 35 mg of prednisone still not outa this flare up and went from 155lbs to 125lbs in 6 months.     My question  is has any one else experience muscle lose  all over from the steroids because of prolonged use ?     And extreme fatigue etc.? Thin skin and dry? PLEASE RESPOND ( im freaking) Ron in windsor ontario canada

Response:

((((((((((((((((RON))))))))))))))) It must be awful to be flaring for so long! Please know I am thinking of you! I don’t know about the muscle lose, but I can tell you that being in a flare and also tapering steroids can both lead to extreme fatigue. Let’s face it, you are really, really sick and your body is constantly trying to get well! That takes a LOT if not ALL of your energy right there. Sure wish there was some magic pill I could give you to get well. Have you tried any other meds besides steroids? Many here have had good luck with Imuran, Questran, RMAT, etc. Talk to your doc about how you are feeling. If s/he seems unresponsive, find a different doc. Only other advice I can give you is be careful what you eat (so you don’t make yourself worse, and to eat as healthy as possible), drink lots of fluids, take a good multi-vitamin, and get as much rest as humanly possible. Post here if you need a shoulder. Rebecca

– Hide quoted text — Show quoted text – Hi people just got out of the hospital for 2.5 weeks on TPN and test cause my colitis flare up has been going on for 6 months , I discharged my self cause the hopital stay wasnt doing to good for me and the steroids they were pumping in me was to much!     So now i am home still taking 35 mg of prednisone still not outa this flare up and went from 155lbs to 125lbs in 6 months.     My question  is has any one else experience muscle lose  all over from the steroids because of prolonged use ?     And extreme fatigue etc.? Thin skin and dry? PLEASE RESPOND ( im freaking) Ron in windsor ontario canada

Response:

Hi people just got out of the hospital for 2.5 weeks on TPN and test cause my colitis flare up has been going on for 6 months , I discharged my self cause the hopital stay wasnt doing to good for me and the steroids they were pumping in me was to much!     So now i am home still taking 35 mg of prednisone still not outa this flare up and went from 155lbs to 125lbs in 6 months.     My question  is has any one else experience muscle lose  all over from the steroids because of prolonged use ?     And extreme fatigue etc.? Thin skin and dry? PLEASE RESPOND ( im freaking) Ron in windsor ontario canada

Response:

All these can be side effects of IBD unfortunately.  UM MOM Susan

– Hide quoted text — Show quoted text – Hi people just got out of the hospital for 2.5 weeks on TPN and test cause my colitis flare up has been going on for 6 months , I discharged my self cause the hopital stay wasnt doing to good for me and the steroids they were pumping in me was to much!     So now i am home still taking 35 mg of prednisone still not outa this flare up and went from 155lbs to 125lbs in 6 months.     My question  is has any one else experience muscle lose  all over from the steroids because of prolonged use ?     And extreme fatigue etc.? Thin skin and dry? PLEASE RESPOND ( im freaking) Ron in windsor ontario canada

Response:

Question:

Dwight, I’m sorry to hear about your experience. As for the zithormax, I have two pills left to take but tonight I feel absolutely lousy.  D, nausea, cramps, and I feel like I have a fever but it doesn’t seem like I do.  I left a voicemail for my GI but I won’t get a reply until midmorning at the earliest.  It may not be the antibiotic but two years ago another antibiotic got me really sick and instigated colitis and I’ve never gotten back to "normal" since, so I’d be willing to bet it is the zithormax. I’m trying not to freak about but two years ago I was so desperately sick and those memories are haunting me right now. *sigh* Well let’s see what the doctor says.  I hope she can see me right away and get me back on my feet.  If I stop the zithormax, how about you and me hold a joint ceremony and flush those remaining two pills down our respective toilets together?

Response:

Linda, Thanks, I’m starting to feel pretty good right now.  Even have my blood sugars coming back to a normal level ( I’m a type II diabetic who had to go on insulin when I started the prednisone). Dwight – One who is glad to be here. – Hide quoted text — Show quoted text – Geez Dwight, What an experience!!!!  I felt so bad reading your story.   You’re definitely in my thoughts and prayers!!  I hope you continue to improve and get back to working with the kids real soon. Hugs,  Linda Mike, Let me give you a little personal history that led to the Sulfasalazine.  I had a flare up of UC that started in June and lasted most of the Summer.  My doctor dropped me in May because my insurance was too slow at paying and contested everything he did.  I couldn’t get in to see a new doctor until August.  A week after seeing my new doctor and getting a referral for my gastrointerologist my wife took me into the ER because she thought I was dehydrated.  Turned out I had lost so much blood from the UC that I was severely anemic, my hematocrit or red blood count had dropped to around 5, normal for me is between 14 and 18. They immediately admitted me into the hospital and gave me 5 units of blood. While in the hospital they put me on a number of meds including the Sulfasalazine. I was released from the hospital after a one week stay.  About a week after getting out of the hospital I began running a fever and feeling extremely week and bad.  I went back to the doctors office and they drew some blood for lab work.  The next morning they called me early and told me not to go into school ( I’m a teacher ) and to quit taking the Sulfasalazine because my white blood count had dropped to 0.8.  I went back to the doctors office and had more lab work done, this time my white blood count had dropped to zero.  I was taken across the hallway to a hematologist who sent me across the street to the hospital where they were waiting for me.  I was placed in isolation and started on three different IV antibiotics.  Apparently in the one week I was out of the hospital and back in school I was picking up every infection I was near.  The list included a major staff infection, thrush, herpes austere (sp), pneumonia, sinus infection and some more I don’t remember.  The infectious disease doctor came in on Labor Day and said "I hope you have your affairs in order.  I’ve only seen three other patients with cases like yours and none of them lived." What a bedside manner.  He later came in and said it was a miracle and that I was an extremely lucky man.  I was in the hospital for two weeks of which I don’t remember anything from the first week and a half except the numerous attempts at starting an IV.  One of the antibiotics they had me on was tearing up my veins so bad they had to change sites very frequently before they got smart and put in a PIK line.  Not sure how to spell it, but it is an IV line that can be left in for up to six months, at least that is what I thought they told me.  Since I’ve been out of the hospital I’ve been very weak and I’ve had trouble with my memory and concentration.  I’ve been off of work since the Tuesday before Labor Day, and now it looks like I will finally be able to go back to work at the beginning of the year.  Finally getting my strength back, my concentration? The doctors didn’t put me on any of the 5ASA meds because they weren’t 100% sure that one of them might have caused the problem.  I’m taking Imuran now and today was my last day of pred.  I’m glad to get it over with, at least for now. I know this is more than you asked for, but I wanted to let you know just how severe my reaction was to the Sulfasalazine.  It has taught me to appreciate each and every day now. Good luck with the 5asa Dwight Moore – One who is glad to be here or anywhere. Dwight, Could you describe your bad reaction to Sulfasalazine?  I’m having some bad things happeneing to me, and the docs think it might be related to 5asa. Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address: Jennifer, I was on it for a different reason.  Still have my last two tablets in the cabinet.  I ended up in the hospital before I could finish the prescription.  The stay in the hospital didn’t have anything to do with the Zithromax, I had a bad reaction to Sulfasalazine (Azulfidine).  I was so ill that I don’t remember how well the Zithromax worked or if they finished out the dosage while I was in the hospital.  I have UC and it didn’t cause a flare up.  It was at the beginning of my latest remission that I started taking it. Hope this helps. Dwight Hello!  Have any of you used the antibiotic zithromax?  Did it make you sick?  Did it do wonders for you? I was given some today to clear up an ear infection and I took 500 mg today and will be taking 250 mg for the next four days.  I’m a bit scared of antibiotics since two years ago it was antibiotics that launched my whole colitis affair.  But my ear is hurting and I feel miserable, so I am going to give it a try.  I’ll be trying to eat yogurt for the next two weeks — any other advice? Jennifer

Response:

Geez Dwight, What an experience!!!!  I felt so bad reading your story.   You’re definitely in my thoughts and prayers!!  I hope you continue to improve and get back to working with the kids real soon. Hugs,  Linda – Hide quoted text — Show quoted text – Mike, Let me give you a little personal history that led to the Sulfasalazine.  I had a flare up of UC that started in June and lasted most of the Summer.  My doctor dropped me in May because my insurance was too slow at paying and contested everything he did.  I couldn’t get in to see a new doctor until August.  A week after seeing my new doctor and getting a referral for my gastrointerologist my wife took me into the ER because she thought I was dehydrated.  Turned out I had lost so much blood from the UC that I was severely anemic, my hematocrit or red blood count had dropped to around 5, normal for me is between 14 and 18. They immediately admitted me into the hospital and gave me 5 units of blood. While in the hospital they put me on a number of meds including the Sulfasalazine. I was released from the hospital after a one week stay.  About a week after getting out of the hospital I began running a fever and feeling extremely week and bad.  I went back to the doctors office and they drew some blood for lab work.  The next morning they called me early and told me not to go into school ( I’m a teacher ) and to quit taking the Sulfasalazine because my white blood count had dropped to 0.8.  I went back to the doctors office and had more lab work done, this time my white blood count had dropped to zero.  I was taken across the hallway to a hematologist who sent me across the street to the hospital where they were waiting for me.  I was placed in isolation and started on three different IV antibiotics.  Apparently in the one week I was out of the hospital and back in school I was picking up every infection I was near.  The list included a major staff infection, thrush, herpes austere (sp), pneumonia, sinus infection and some more I don’t remember.  The infectious disease doctor came in on Labor Day and said "I hope you have your affairs in order.  I’ve only seen three other patients with cases like yours and none of them lived." What a bedside manner.  He later came in and said it was a miracle and that I was an extremely lucky man.  I was in the hospital for two weeks of which I don’t remember anything from the first week and a half except the numerous attempts at starting an IV.  One of the antibiotics they had me on was tearing up my veins so bad they had to change sites very frequently before they got smart and put in a PIK line.  Not sure how to spell it, but it is an IV line that can be left in for up to six months, at least that is what I thought they told me.  Since I’ve been out of the hospital I’ve been very weak and I’ve had trouble with my memory and concentration.  I’ve been off of work since the Tuesday before Labor Day, and now it looks like I will finally be able to go back to work at the beginning of the year.  Finally getting my strength back, my concentration? The doctors didn’t put me on any of the 5ASA meds because they weren’t 100% sure that one of them might have caused the problem.  I’m taking Imuran now and today was my last day of pred.  I’m glad to get it over with, at least for now. I know this is more than you asked for, but I wanted to let you know just how severe my reaction was to the Sulfasalazine.  It has taught me to appreciate each and every day now. Good luck with the 5asa Dwight Moore – One who is glad to be here or anywhere. Dwight, Could you describe your bad reaction to Sulfasalazine?  I’m having some bad things happeneing to me, and the docs think it might be related to 5asa. Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address: Jennifer, I was on it for a different reason.  Still have my last two tablets in the cabinet.  I ended up in the hospital before I could finish the prescription.  The stay in the hospital didn’t have anything to do with the Zithromax, I had a bad reaction to Sulfasalazine (Azulfidine).  I was so ill that I don’t remember how well the Zithromax worked or if they finished out the dosage while I was in the hospital.  I have UC and it didn’t cause a flare up.  It was at the beginning of my latest remission that I started taking it. Hope this helps. Dwight Hello!  Have any of you used the antibiotic zithromax?  Did it make you sick?  Did it do wonders for you? I was given some today to clear up an ear infection and I took 500 mg today and will be taking 250 mg for the next four days.  I’m a bit scared of antibiotics since two years ago it was antibiotics that launched my whole colitis affair.  But my ear is hurting and I feel miserable, so I am going to give it a try.  I’ll be trying to eat yogurt for the next two weeks — any other advice? Jennifer

Response:

Mike, Let me give you a little personal history that led to the Sulfasalazine.  I had a flare up of UC that started in June and lasted most of the Summer.  My doctor dropped me in May because my insurance was too slow at paying and contested everything he did.  I couldn’t get in to see a new doctor until August.  A week after seeing my new doctor and getting a referral for my gastrointerologist my wife took me into the ER because she thought I was dehydrated.  Turned out I had lost so much blood from the UC that I was severely anemic, my hematocrit or red blood count had dropped to around 5, normal for me is between 14 and 18.  They immediately admitted me into the hospital and gave me 5 units of blood.  While in the hospital they put me on a number of meds including the Sulfasalazine.  I was released from the hospital after a one week stay.  About a week after getting out of the hospital I began running a fever and feeling extremely week and bad.  I went back to the doctors office and they drew some blood for lab work.  The next morning they called me early and told me not to go into school ( I’m a teacher ) and to quit taking the Sulfasalazine because my white blood count had dropped to 0.8.  I went back to the doctors office and had more lab work done, this time my white blood count had dropped to zero.  I was taken across the hallway to a hematologist who sent me across the street to the hospital where they were waiting for me.  I was placed in isolation and started on three different IV antibiotics.  Apparently in the one week I was out of the hospital and back in school I was picking up every infection I was near.  The list included a major staff infection, thrush, herpes austere (sp), pneumonia, sinus infection and some more I don’t remember.  The infectious disease doctor came in on Labor Day and said "I hope you have your affairs in order.  I’ve only seen three other patients with cases like yours and none of them lived."  What a bedside manner.  He later came in and said it was a miracle and that I was an extremely lucky man.  I was in the hospital for two weeks of which I don’t remember anything from the first week and a half except the numerous attempts at starting an IV.  One of the antibiotics they had me on was tearing up my veins so bad they had to change sites very frequently before they got smart and put in a PIK line.  Not sure how to spell it, but it is an IV line that can be left in for up to six months, at least that is what I thought they told me.  Since I’ve been out of the hospital I’ve been very weak and I’ve had trouble with my memory and concentration.  I’ve been off of work since the Tuesday before Labor Day, and now it looks like I will finally be able to go back to work at the beginning of the year.  Finally getting my strength back, my concentration? The doctors didn’t put me on any of the 5ASA meds because they weren’t 100% sure that one of them might have caused the problem.  I’m taking Imuran now and today was my last day of pred.  I’m glad to get it over with, at least for now. I know this is more than you asked for, but I wanted to let you know just how severe my reaction was to the Sulfasalazine.  It has taught me to appreciate each and every day now. Good luck with the 5asa Dwight Moore – One who is glad to be here or anywhere. – Hide quoted text — Show quoted text – Dwight, Could you describe your bad reaction to Sulfasalazine?  I’m having some bad things happeneing to me, and the docs think it might be related to 5asa. Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address: Jennifer, I was on it for a different reason.  Still have my last two tablets in the cabinet.  I ended up in the hospital before I could finish the prescription.  The stay in the hospital didn’t have anything to do with the Zithromax, I had a bad reaction to Sulfasalazine (Azulfidine).  I was so ill that I don’t remember how well the Zithromax worked or if they finished out the dosage while I was in the hospital.  I have UC and it didn’t cause a flare up.  It was at the beginning of my latest remission that I started taking it. Hope this helps. Dwight Hello!  Have any of you used the antibiotic zithromax?  Did it make you sick?  Did it do wonders for you? I was given some today to clear up an ear infection and I took 500 mg today and will be taking 250 mg for the next four days.  I’m a bit scared of antibiotics since two years ago it was antibiotics that launched my whole colitis affair.  But my ear is hurting and I feel miserable, so I am going to give it a try.  I’ll be trying to eat yogurt for the next two weeks — any other advice? Jennifer

Response:

I took it last month.  I don’t think it caused me any problems.  I’ve been flaring on and off for a couple months so……I wouldn’t have seen any difference. Sherry Hello!  Have any of you used the antibiotic zithromax?  Did it make you sick?  Did it do wonders for you? I was given some today to clear up an ear infection and I took 500 mg today and will be taking 250 mg for the next four days.  I’m a bit scared of antibiotics since two years ago it was antibiotics that launched my whole colitis affair.  But my ear is hurting and I feel miserable, so I am going to give it a try.  I’ll be trying to eat yogurt for the next two weeks — any other advice? Jennifer

Before you buy.

Response:

Dwight, Could you describe your bad reaction to Sulfasalazine?  I’m having some bad things happeneing to me, and the docs think it might be related to 5asa. Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address: – Hide quoted text — Show quoted text – Jennifer, I was on it for a different reason.  Still have my last two tablets in the cabinet.  I ended up in the hospital before I could finish the prescription.  The stay in the hospital didn’t have anything to do with the Zithromax, I had a bad reaction to Sulfasalazine (Azulfidine).  I was so ill that I don’t remember how well the Zithromax worked or if they finished out the dosage while I was in the hospital.  I have UC and it didn’t cause a flare up.  It was at the beginning of my latest remission that I started taking it. Hope this helps. Dwight Hello!  Have any of you used the antibiotic zithromax?  Did it make you sick?  Did it do wonders for you? I was given some today to clear up an ear infection and I took 500 mg today and will be taking 250 mg for the next four days.  I’m a bit scared of antibiotics since two years ago it was antibiotics that launched my whole colitis affair.  But my ear is hurting and I feel miserable, so I am going to give it a try.  I’ll be trying to eat yogurt for the next two weeks — any other advice? Jennifer

Response:

Jennifer, For ear infections, antibiotics are available in ear drop form.  The most common one now being cipro of all things.  Talk to your ear doctor and see if topical antibiotics are an option. Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address: – Hide quoted text — Show quoted text – Hello!  Have any of you used the antibiotic zithromax?  Did it make you sick?  Did it do wonders for you? I was given some today to clear up an ear infection and I took 500 mg today and will be taking 250 mg for the next four days.  I’m a bit scared of antibiotics since two years ago it was antibiotics that launched my whole colitis affair.  But my ear is hurting and I feel miserable, so I am going to give it a try.  I’ll be trying to eat yogurt for the next two weeks — any other advice? Jennifer

Response:

Jennifer, I was on it for a different reason.  Still have my last two tablets in the cabinet.  I ended up in the hospital before I could finish the prescription.  The stay in the hospital didn’t have anything to do with the Zithromax, I had a bad reaction to Sulfasalazine (Azulfidine).  I was so ill that I don’t remember how well the Zithromax worked or if they finished out the dosage while I was in the hospital.  I have UC and it didn’t cause a flare up.  It was at the beginning of my latest remission that I started taking it. Hope this helps. Dwight – Hide quoted text — Show quoted text – Hello!  Have any of you used the antibiotic zithromax?  Did it make you sick?  Did it do wonders for you? I was given some today to clear up an ear infection and I took 500 mg today and will be taking 250 mg for the next four days.  I’m a bit scared of antibiotics since two years ago it was antibiotics that launched my whole colitis affair.  But my ear is hurting and I feel miserable, so I am going to give it a try.  I’ll be trying to eat yogurt for the next two weeks — any other advice? Jennifer

Response:

Hello!  Have any of you used the antibiotic zithromax?  Did it make you sick?  Did it do wonders for you? I was given some today to clear up an ear infection and I took 500 mg today and will be taking 250 mg for the next four days.  I’m a bit scared of antibiotics since two years ago it was antibiotics that launched my whole colitis affair.  But my ear is hurting and I feel miserable, so I am going to give it a try.  I’ll be trying to eat yogurt for the next two weeks — any other advice? Jennifer

Response:

That is exactly what landed me into my second major colitis flare that is going on 5 weeks now. Z-pac i believe it was called. 6 pills over 5 days, 2 pills the first day. I had taken some for a bad upper respiratory infection that i couldnt shake. I wish I could take back having taken that stuff every single day. Be sure to load up on mega-acidophillus pills, yogurt, and garlic powder pills.

– Hide quoted text — Show quoted text – Hello!  Have any of you used the antibiotic zithromax?  Did it make you sick?  Did it do wonders for you? I was given some today to clear up an ear infection and I took 500 mg today and will be taking 250 mg for the next four days.  I’m a bit scared of antibiotics since two years ago it was antibiotics that launched my whole colitis affair.  But my ear is hurting and I feel miserable, so I am going to give it a try.  I’ll be trying to eat yogurt for the next two weeks — any other advice? Jennifer

Response:

Question:

Thanks for the reply – what are probiotics?

Response:

Thanks Margie – I will ask him to prescribe the patch for me – what can it hurt?

Response:

Thanks so much for the reply.  I appreciate the info from the Mayo clinic.  I will be showing this to my doctor, and see if he will prescribe the patch for me.  

Response:

I’m going to my Gastro next week, and I wanted ammunition regarding the nicotine patch. Any feedback would be greatly appreciated.  I’m almost to point of smoking again, to relieve this!!!   HELP!!!

As a smoker, and fellow UC sufferer, let me first say…PLEASE DON’T GO BACK TO SMOKING!!  That would be a shame.  The nicotine patch, from what I understand to date, does help with UC.  Many doctors are prescribing it for their patients.  I would try that first.  If I were able to give up smoking for as long as you have, it would be such a shame to take it up again now, when the patch can help so much without all that risk that cigarette smoking has.  Just a thought. Always,   Margie CD Class of 67 UC Class of 96

Response:

Check out the mayo’s website on the nico patch.  I found it there.

Response:

That is such a shame that they stopped the research.  I’m going to ask my dr.for it anyway.  What can it hurt.

Response:

Have the doctors ruled out CD on your wife? Just curious? Mike Got questions?  Get answers over the phone at Keen.com. Up to 100 minutes free! http://www.keen.com

Response:

About 2 years ago, I tried the nicotine patches for my UC. Had some success, but it was 20mg of prednisone for a month that finally cleared up my flare. Had been using the nicotine patches to quit smoking. When I stepped down from 14mg to 7mg patches, had a big flare. Saw this article in the Mayo Clinic Newsletter, showed it to my dr, and with his ok went back on the 21mg patch for about the next 3-4 months. It did help me some, but did not clear up the flare completely. Here is the link to the article. http://www.mayohealth.org/mayo/9803/htm/nicotine.htm And just a couple comments about nicotine patches. 1) they are expensive (and insurance does not pay) 2) they are ’strong medicine’ – I switched arms/shoulders every day and put them on different places to avoid the skin sensativity. (And I know some people who tried to use them to quit, but could not tolerate them because of this.) And follow the precautions on the package. The did help me some. Go for it. Howard in Alaska Let me cut & paste that article here.        ULCERATIVE COLITIS        Nicotine patch may help                                          03.11.98     Originally published in Mayo Clinic Health Letter, February     1998     Q. I’ve heard that the nicotine skin patch is a new     treatment for ulcerative colitis. Is this true?     A. Yes, the nicotine skin patch (the same kind used by     smokers to stop smoking) is a new option for treating     active ulcerative colitis. However, Mayo Clinic doctors     generally prefer trying more traditional drugs, such as     prednisone, sulfasalazine (Azulfidine) or mesalamine     (Asacol, Pentasa, Rowasa) before recommending the     patch.     Ulcerative colitis is a chronic inflammation of your     colon lining. About 320,000 Americans have it. The     disease can flare up unpredictably, often causing     abdominal cramping, urgent and frequent bowel     movements, diarrhea and bloody stools.     Between flare-ups, many people have long     remissions. Having ulcerative colitis increases your     risk for colon cancer. The risk steadily increases the     longer you have the disease.     Several studies have shown that using the nicotine     patch may help provide short-term relief from     ulcerative colitis flare-ups. In the most recent study,     which appeared in the March 1, 1997, Annals of     Internal Medicine, people with active ulcerative colitis     who wore the patch for a month were four times more     likely to experience relief than people who wore a     placebo patch.     How nicotine helps relieve symptoms of the disease     isn’t clear, although doctors believe it may protect your     colon by thickening and increasing mucus in it.     Nicotine may also play a role in reducing inflammation     in your colon.     Although the studies are promising, it’s important to     note that research has only shown that the nicotine     patch is effective in treating active ulcerative colitis for     a short time. It’s not yet clear whether it’s effective in     preventing relapses of the disease. In addition, more     study is needed to determine if the patch is an     effective way to treat flare-ups of the disease for an     extended length of time. – Hide quoted text — Show quoted text – Hi!! I haven’t posted in sooo long. No flare-ups for about 1 year!!! But—wham — now I am in the middle of the worst flare-up.  Bleeding for about 3 weeks now.  When I was posting, there was discussion about the nicotine patch to relieve UC.  It had worked for so many people, is it still working? I was a smoker, and three months after I quit, is when I had my first flare-up.  That was 5 years ago.  I WILL NOT TAKE PREDNISONE ANYMORE!!!  I am on Rowasa, but that is not helping right now.  I’m going to my Gastro next week, and I wanted ammunition regarding the nicotine patch. Any feedback would be greatly appreciated.  I’m almost to point of smoking again, to relieve this!!! HELP!!! Thanks

Response:

My wife who is a former smoker and has UC for 4 years tried the nicotine patch for a month. It did nothing for the UC but she then developed a skin sensitivity to the patch and she did not continue. This was under the supervision of 2 GI’s. Prednisone,Rowasa, Pepto Bismol, Asacol. Budesonide enemas, Cortenema, the SC Diet – all did not help. She has gained some relief lately through the use of Probiotics – "compressed" the period of BM’s into the 6AM-11 AM period, the rest of the day relatively OK.

Response:

I used to smoke and my UC went from left side only to full colon during that time.  So much for nicotine being a savior.  I have since quit Thank God and do not suggest smoking as an option.  Ask your doc to try the patch.  How about 6mp? That works the best for me.

– Hide quoted text — Show quoted text – Hi!! I haven’t posted in sooo long. No flare-ups for about 1 year!!! But—wham — now I am in the middle of the worst flare-up.  Bleeding for about 3 weeks now.  When I was posting, there was discussion about the nicotine patch to relieve UC.  It had worked for so many people, is it still working? I was a smoker, and three months after I quit, is when I had my first flare-up. That was 5 years ago.  I WILL NOT TAKE PREDNISONE ANYMORE!!!  I am on Rowasa, but that is not helping right now.  I’m going to my Gastro next week, and I wanted ammunition regarding the nicotine patch. Any feedback would be greatly appreciated.  I’m almost to point of smoking again, to relieve this!!! HELP!!! Thanks

Response:

Hi I used nicotine patch for 3 months, 1st month on 21mg, 2nd month on 14mg and last 6 weeks on 7 mg. I have been symptoms for the last 8 months. It did help me. Anju

– Hide quoted text — Show quoted text – Hi!! I haven’t posted in sooo long. No flare-ups for about 1 year!!! But—wham — now I am in the middle of the worst flare-up.  Bleeding for about 3 weeks now.  When I was posting, there was discussion about the nicotine patch to relieve UC.  It had worked for so many people, is it still working? I was a smoker, and three months after I quit, is when I had my first flare-up. That was 5 years ago.  I WILL NOT TAKE PREDNISONE ANYMORE!!!  I am on Rowasa, but that is not helping right now.  I’m going to my Gastro next week, and I wanted ammunition regarding the nicotine patch. Any feedback would be greatly appreciated.  I’m almost to point of smoking again, to relieve this!!! HELP!!! Thanks

Response:

I would try anything that shows promise as long as it does not pose a treat for major damage to the body. Give it a whirl, everything I had read about it has been good. I smoke and my Dr. told me to quit because it will slow the healing of the CD. When I said that every time I quit smoking I would flare. His response was my flair was caused by the stress of quitting and not the nicotine. He also said that if I had UC that the nicotine would help, but because I have CD I can’t use it as an excuse to keep smoking. (dang it… I have been using that one on my wife for 5 years… and he said this in front of her) Mike Got questions?  Get answers over the phone at Keen.com. Up to 100 minutes free! http://www.keen.com

Response:

Try the patch… what would it hurt? Mike Got questions?  Get answers over the phone at Keen.com. Up to 100 minutes free! http://www.keen.com

Response:

Nicotine therapy looked promising, however I just read that the company that was looking into it further discontinued research.  I’m hoping that they were smart enough not to equate therapeutic nicotine with cigasrettes and Big Tobacco.  If that was the reason they stopped, that kind of angers me. Andy – Hide quoted text — Show quoted text -Hi!! I haven’t posted in sooo long. No flare-ups for about 1 year!!! But—wham — now I am in the middle of the worst flare-up.  Bleeding for about 3 weeks now.  When I was posting, there was discussion about the nicotine patch to relieve UC.  It had worked for so many people, is it still working? I was a smoker, and three months after I quit, is when I had my first flare-up.  That was 5 years ago.  I WILL NOT TAKE PREDNISONE ANYMORE!!!  I am on Rowasa, but that is not helping right now.  I’m going to my Gastro next week, and I wanted ammunition regarding the nicotine patch. Any feedback would be greatly appreciated.  I’m almost to point of smoking again, to relieve this!!!   HELP!!! Thanks

Response:

My GI doctor prescribed the Nicotine Patch for me (I don’t smoke) but the insurance wouldn’t cover it. I ended up in the hospital where they had me on the patch for a few days. To make a long story short, I wasn’t on the patch long enough to see if it worked because I ended up having surgery. My doctor must have gotten some positive feedback on it though, since he wanted me to try it. Good Luck, I hope this works for you !!! Tammy Got questions?  Get answers over the phone at Keen.com. Up to 100 minutes free! http://www.keen.com

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Hi!! I haven’t posted in sooo long. No flare-ups for about 1 year!!! But—wham — now I am in the middle of the worst flare-up.  Bleeding for about 3 weeks now.  When I was posting, there was discussion about the nicotine patch to relieve UC.  It had worked for so many people, is it still working? I was a smoker, and three months after I quit, is when I had my first flare-up.  That was 5 years ago.  I WILL NOT TAKE PREDNISONE ANYMORE!!!  I am on Rowasa, but that is not helping right now.  I’m going to my Gastro next week, and I wanted ammunition regarding the nicotine patch. Any feedback would be greatly appreciated.  I’m almost to point of smoking again, to relieve this!!!   HELP!!! Thanks

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