Posts belonging to Category 'Colitis Crohns'

HELP NEWLY DX WITH COLITIS

Question:

hi scott, welcome and really sorry you had to come see us here.  can i ask you to not type all caps?  is like you are yelling and i don’t think you mean to, even tho you probably would like to scream right now.  so, shut the caps key off pleeeeeeeeeese??? now, some basic understanding, there are basically two types of colitis, crohns colitis and ulcerative colitis.  this makes a difference. how were you dx’ed?  scope? smbft? ct scan? other?  what meds did doc start you on? did you discuss remicade?  an immunomodulator?  did doc start you on prednisone? immodium works good as a treatment for the diarrhea sc’s levbid works good for the cramping sx’s. there are others that help treat some of the sx’s, then you need something long term to reduce inflammation and try to put you in remission, this is where remicade and immunomodulators come into play.  do go to the ccfa.com web site to "bone up" on what you have and learn about treatments and so forth.  will be anxious to see your response for more info. good luck to you, jeffy – Hide quoted text — Show quoted text – HELLO GROUP,      I AM NEWLY DX WITH COLITIS, FOUND OUT BEFORE MY CRUISE TO THE CARIBBEAN. I HAVE THE DIARRHEA, CRAMPS, BLOODY STOOLS, WHAT CAN I DO TO ENJOY MY TRIP SOMEONE PLEASE HELP I AM GATHERING ALL THE INFO I CAN RIGHT KNOW. I HATE THE WAY I FEEL PHYSICALLY. SCOTT

Response:

I was working temporary for acouple months in Alaska when I got colitis. My sister got crohns when she was Newfoundland, Canada. We both got it when we got into the workforce at the age of 19. Stan

Response:

Um Mom, Sorry to hear your back on prednisone. I hope u have a good trip. – Hide quoted text — Show quoted text – Getting ready to do the same thing.  Doc put me on predisone for three weeks to help me through the trip along with my other meds and when I get back we make changes.  UM MOM Susan. ps, please take your caps off easier to read, thanks HELLO GROUP,      I AM NEWLY DX WITH COLITIS, FOUND OUT BEFORE MY CRUISE TO THE CARIBBEAN. I HAVE THE DIARRHEA, CRAMPS, BLOODY STOOLS, WHAT CAN I DO TO ENJOY MY TRIP SOMEONE PLEASE HELP I AM GATHERING ALL THE INFO I CAN RIGHT KNOW. I HATE  THE WAY I FEEL PHYSICALLY. SCOTT

Response:

Thank you Stan me too.  I need a big break from tests and drs. They can’t call me in the middle of the Carribean! ;-)  This time I asked for it though and he agreed.  Can’t take a chance of this inflamation getting out of control on islands that I can’t even drink the water.  No way  I will have medical there!! :-) )  UM MOM Susan

Um Mom, Sorry to hear your back on prednisone. I hope u have a good trip.

– Hide quoted text — Show quoted text – Getting ready to do the same thing.  Doc put me on predisone for three weeks to help me through the trip along with my other meds and when I get back we make changes.  UM MOM Susan. ps, please take your caps off easier to read, thanks HELLO GROUP,      I AM NEWLY DX WITH COLITIS, FOUND OUT BEFORE MY CRUISE TO THE CARIBBEAN. I HAVE THE DIARRHEA, CRAMPS, BLOODY STOOLS, WHAT CAN I DO TO ENJOY MY TRIP SOMEONE PLEASE HELP I AM GATHERING ALL THE INFO I CAN RIGHT KNOW. I HATE  THE WAY I FEEL PHYSICALLY. SCOTT

Response:

HELLO GROUP,      I AM NEWLY DX WITH COLITIS, FOUND OUT BEFORE MY CRUISE TO THE CARIBBEAN. I HAVE THE DIARRHEA, CRAMPS, BLOODY STOOLS, WHAT CAN I DO TO ENJOY MY TRIP SOMEONE PLEASE HELP I AM GATHERING ALL THE INFO I CAN RIGHT KNOW. I HATE THE WAY I FEEL PHYSICALLY. SCOTT

Response:

Getting ready to do the same thing.  Doc put me on predisone for three weeks to help me through the trip along with my other meds and when I get back we make changes.  UM MOM Susan. ps, please take your caps off easier to read, thanks

– Hide quoted text — Show quoted text – HELLO GROUP,      I AM NEWLY DX WITH COLITIS, FOUND OUT BEFORE MY CRUISE TO THE CARIBBEAN. I HAVE THE DIARRHEA, CRAMPS, BLOODY STOOLS, WHAT CAN I DO TO ENJOY MY TRIP SOMEONE PLEASE HELP I AM GATHERING ALL THE INFO I CAN RIGHT KNOW. I HATE THE WAY I FEEL PHYSICALLY. SCOTT

Response:

HELLO GROUP,      I AM NEWLY DX WITH COLITIS, FOUND OUT BEFORE MY CRUISE TO THE CARIBBEAN. I HAVE THE DIARRHEA, CRAMPS, BLOODY STOOLS, WHAT CAN I DO TO ENJOY MY TRIP SOMEONE PLEASE HELP I AM GATHERING ALL THE INFO I CAN RIGHT KNOW. I HATE THE WAY I FEEL PHYSICALLY. SCOTT

hi scott i just took a cruise to alaska while in a crohns flare…fever, D, blood, pain the works..i called my gi and he put me on an emergency dose of pred for a short time(i take 6mp and asacol regularly)..it worked.. the other thing is…rest as much as u can..dont stand when u can sit(when we were getting on the ship there was a HUGE line due to an earlier screwup…i pulled a chair into the line and moved the chair along with me..a lot of people thought it was funny..but were whispering that it was a good idea lol)..it saved me a lot of standing..i rested before meals..we took elevators rather than stairs on the ship..i was careful not to get too cold(u wont have to worry on the caribbean..just dont get too warm)..take your meds and make sure u take them when u are supposed to…even tho the food is available all the time..try to eat at regular times to keep your system fairly regular…i supplemented with a snack here and there..but we ate at the same basic times we eat at home…i also took a short nap every day..in the stateroom…eyes closed..for around an hour..i do that at home too..it helped give me more energy to enjoy the trips off the ship and the fun on the ship..dont over do on the ship..i cant have alcohol with what i am on anyway..or not much ..i had one drink the entire cruise..the last night.. i danced a bit but not a lot..but i had a terrific time and saw everything i wanted to see in alaska..we planned shore trips ;that did not involve a lot of walking..either trains, buses, etc..that also saved on energy.. it did not take away from our fun have a great time…relax and enjoy.. annie

Response:

crohn's or UC

Question:

Annie, It sounds like you have crohns disease and not ulcerative colitis. Crohns can appear anywhere in the digestive system from the mouth to the anus. When it is confined to the colon and/or the rectum, it is called crohns colitis. It is still crohns and not UC. That makes it very difficult to distinguish it from ulcerative colitis. — Paul Visit our photo albums at http://www.laflammefamily.ca To reply, replace "deadspam.com" with "laflammefamily.ca" — – Hide quoted text — Show quoted text – hi chad i was like u dx’d with uc at first..in 1978…then in 1981 they changed it to crohns and uc…i was told the following: the dx for crohns involves having fistulas which show on the scope and which i did NOT have AND involves spreading..in patches around the colon and possibly into other areas, esophagus, stomach etc etc…uc on the other hand..usually involved the rectal area and was always ‘together’ in one place in the colon and did NOT spread or appear in patches….well my "uc" did NOT involve the rectal area..and was all over the colon in patches..and after that for each scope it appeared in a new place..always luckily only in the colon..but obviously in patches..so they called it crohns colitis…some of each…the bad part is like crohns..they dont lke to operate cos crohns spreads and can attack vital organs if whereever it is is removed…but like uc..u are at a higher risk for colon cancer…so its the worst of both worlds in some ways..but here i am age 55 and still alive and kicking…no surgeries…and the same "crohns colitis’ still spreading around my colon in patches in different places at different times.. colazel did nothing for me…i am currently on 6mp and asacol and am finally not bleeding tho still in pain a lot.. thre is a test out there which supposedly determines whether its crohns or uc but its only 50percent reliable, its very costly, it is NOT covered by the hmos, and it was impossibly to contact the person involved with it so i could even ask questions..my gi had a lot of problems finding him too..so we decided ot let it go..my gi only suggested it in case i ever need surgery…but i wouldnt have surgery unless the situation were life threatening…so far when i have gotten very ill, prednisone and hospitalization have helped..cept this last time..when the 6mp seems to have helped instead.. so u may have both or a combination..i am wondering if there isnt a third ibd form that might be what u and i have… if your med is NOT working then let them know cos there is a lot of stuff out there which might help..pentasa helps a lot of people(didnt do a thing for me)..asacol has been the best for me so far..but once i got really sick last year..only the 6mp put a stop to the bleeding..good luck annie

Response:

Hello All,   I was diagnosed with UC 1 year ago, but my doctor is not convinced his diagnosis is correct, he seems to think I may have crohns’s instead, but he is unable to make a concrete diagnosis. I have had all of the tests, and my symptoms are responding to Colazal, which treats UC, yet I have continuous flare-ups with mild abdominal pain.   Is anybody else in this type of situation?

hi chad i was like u dx’d with uc at first..in 1978…then in 1981 they changed it to crohns and uc…i was told the following: the dx for crohns involves having fistulas which show on the scope and which i did NOT have AND involves spreading..in patches around the colon and possibly into other areas, esophagus, stomach etc etc…uc on the other hand..usually involved the rectal area and was always ‘together’ in one place in the colon and did NOT spread or appear in patches….well my "uc" did NOT involve the rectal area..and was all over the colon in patches..and after that for each scope it appeared in a new place..always luckily only in the colon..but obviously in patches..so they called it crohns colitis…some of each…the bad part is like crohns..they dont lke to operate cos crohns spreads and can attack vital organs if whereever it is is removed…but like uc..u are at a higher risk for colon cancer…so its the worst of both worlds in some ways..but here i am age 55 and still alive and kicking…no surgeries…and the same "crohns colitis’ still spreading around my colon in patches in different places at different times.. colazel did nothing for me…i am currently on 6mp and asacol and am finally not bleeding tho still in pain a lot.. thre is a test out there which supposedly determines whether its crohns or uc but its only 50percent reliable, its very costly, it is NOT covered by the hmos, and it was impossibly to contact the person involved with it so i could even ask questions..my gi had a lot of problems finding him too..so we decided ot let it go..my gi only suggested it in case i ever need surgery…but i wouldnt have surgery unless the situation were life threatening…so far when i have gotten very ill, prednisone and hospitalization have helped..cept this last time..when the 6mp seems to have helped instead.. so u may have both or a combination..i am wondering if there isnt a third ibd form that might be what u and i have… if your med is NOT working then let them know cos there is a lot of stuff out there which might help..pentasa helps a lot of people(didnt do a thing for me)..asacol has been the best for me so far..but once i got really sick last year..only the 6mp put a stop to the bleeding..good luck annie

Response:

Oh it could be MUCH MUCH worse! Debs – Hide quoted text — Show quoted text – well, i guess, but not much more! jeffy Jeffy – Yep…but hey, it could be a whole lot worse!! Christine UC Class of 01 wow, you’ve been all over the friggin map christine! jeffy And it’s really so frustrating not to be 100% sure of a diagnosis.  It can make a difference as far as medical insurance, life insurance and SSD are concerned too I think. My original diagnosis was UC by my first GI (whom I eventually got rid of); next GI swore I had CD; my current GI says UC with possibility of Crohn’s Colitis, but treatment would remain the same.  So far, it’s limited to left-side so crossing my fingers it stays put. Christine UC Class of 01 I was told by my son’s GI that it is actually difficult to diagnose CD definitively from the biopsy because it can be difficult to capture the identifying tissue. About 10 to 15 percent of colitis cases can’t be distinguished as Crohn’s or UC, despite all the radiology, endoscopy, pathology, serology, etc. The new Prometheus blood tests, which claim to help make the differentiation between UC and CD, haven’t put a big dent in that 10 – 15 percent figure, unfortunately.

Response:

And it’s really so frustrating not to be 100% sure of a diagnosis.  It can make a difference as far as medical insurance, life insurance and SSD are concerned too I think. My original diagnosis was UC by my first GI (whom I eventually got rid of); next GI swore I had CD; my current GI says UC with possibility of Crohn’s Colitis, but treatment would remain the same.  So far, it’s limited to left-side so crossing my fingers it stays put. Christine UC Class of 01

– Hide quoted text — Show quoted text – I was told by my son’s GI that it is actually difficult to diagnose CD definitively from the biopsy because it can be difficult to capture the identifying tissue. About 10 to 15 percent of colitis cases can’t be distinguished as Crohn’s or UC, despite all the radiology, endoscopy, pathology, serology, etc. The new Prometheus blood tests, which claim to help make the differentiation between UC and CD, haven’t put a big dent in that 10 – 15 percent figure, unfortunately.

Response:

wow, you’ve been all over the friggin map christine! jeffy

– Hide quoted text — Show quoted text – And it’s really so frustrating not to be 100% sure of a diagnosis.  It can make a difference as far as medical insurance, life insurance and SSD are concerned too I think. My original diagnosis was UC by my first GI (whom I eventually got rid of); next GI swore I had CD; my current GI says UC with possibility of Crohn’s Colitis, but treatment would remain the same.  So far, it’s limited to left-side so crossing my fingers it stays put. Christine UC Class of 01 I was told by my son’s GI that it is actually difficult to diagnose CD definitively from the biopsy because it can be difficult to capture the identifying tissue. About 10 to 15 percent of colitis cases can’t be distinguished as Crohn’s or UC, despite all the radiology, endoscopy, pathology, serology, etc. The new Prometheus blood tests, which claim to help make the differentiation between UC and CD, haven’t put a big dent in that 10 – 15 percent figure, unfortunately.

Response:

Jeffy – Yep…but hey, it could be a whole lot worse!! Christine UC Class of 01 – Hide quoted text — Show quoted text – wow, you’ve been all over the friggin map christine! jeffy And it’s really so frustrating not to be 100% sure of a diagnosis.  It can make a difference as far as medical insurance, life insurance and SSD are concerned too I think. My original diagnosis was UC by my first GI (whom I eventually got rid of); next GI swore I had CD; my current GI says UC with possibility of Crohn’s Colitis, but treatment would remain the same.  So far, it’s limited to left-side so crossing my fingers it stays put. Christine UC Class of 01 I was told by my son’s GI that it is actually difficult to diagnose CD definitively from the biopsy because it can be difficult to capture the identifying tissue. About 10 to 15 percent of colitis cases can’t be distinguished as Crohn’s or UC, despite all the radiology, endoscopy, pathology, serology, etc. The new Prometheus blood tests, which claim to help make the differentiation between UC and CD, haven’t put a big dent in that 10 – 15 percent figure, unfortunately.

Response:

well, i guess, but not much more! jeffy

– Hide quoted text — Show quoted text – Jeffy – Yep…but hey, it could be a whole lot worse!! Christine UC Class of 01 wow, you’ve been all over the friggin map christine! jeffy And it’s really so frustrating not to be 100% sure of a diagnosis.  It can make a difference as far as medical insurance, life insurance and SSD are concerned too I think. My original diagnosis was UC by my first GI (whom I eventually got rid of); next GI swore I had CD; my current GI says UC with possibility of Crohn’s Colitis, but treatment would remain the same.  So far, it’s limited to left-side so crossing my fingers it stays put. Christine UC Class of 01 I was told by my son’s GI that it is actually difficult to diagnose CD definitively from the biopsy because it can be difficult to capture the identifying tissue. About 10 to 15 percent of colitis cases can’t be distinguished as Crohn’s or UC, despite all the radiology, endoscopy, pathology, serology, etc. The new Prometheus blood tests, which claim to help make the differentiation between UC and CD, haven’t put a big dent in that 10 – 15 percent figure, unfortunately.

Response:

I was told by my son’s GI that it is actually difficult to diagnose CD definitively from the biopsy because it can be difficult to capture the identifying tissue.

It is difficult, but difficult doesn’t mean impossible, however. Normally the diagnosis is made on a number of factors, including the distribution of inflamed areas, biopsy, a blood test, radiology, etc. Larry — Larry Finch N 40

New – Can I join u?

Question:

I am curious Mr. NA, are you a Doctor yourself or what.  If you have all this knowledge you say than why insist on getting proof and just irritating people or irritating me.  I trust my docs completely and I am not about to go in to their office and insist on seeing some document to please you. Thank you. Jennie :)

– Hide quoted text — Show quoted text – Yes and so do my docs believe you can have both.  I know people who do have both. My doc believes that too…. Again, I repeat the challenge I made to Susan: Talk to your doctors, and if they can provide a single article–just one–in a peer-reviewed medical journal or medical textbook describing just one patient with both diseases, please post the citation here. I will look it up, and if it does indeed document a case of someone having both, I will post the entire article here.

Response:

My drs believe you can have both.  UM MOM Susan

As I recall, the last time this question came up and you made this statement, you were confused by the difference between "ulcerative colitis" as a specific disease and "colitis" as a general term meaning ANY form of colonic inflammation, regardless of cause. What your doctor probably means is either: You can have Crohn’s and a NON-IBD form of colitis, such as antibiotic-associated colitis, radiation colitis, etc. or You can have Crohn’s in both the small intestine (Crohn’s ileitis) and the large intestine (Crohn’s colitis). If your doctor insists that you can have both UC and CD, ask him to show you an article in a medical journal or professional textbook stating that, and then post the citation here. I’d be happy to look it up, and if he’s right, I’ll post the article in its entirety.

Response:

Yes and so do my docs believe you can have both.  I know people who do have both. My doc believes that too….

Again, I repeat the challenge I made to Susan: Talk to your doctors, and if they can provide a single article–just one–in a peer-reviewed medical journal or medical textbook describing just one patient with both diseases, please post the citation here. I will look it up, and if it does indeed document a case of someone having both, I will post the entire article here.

Response:

 By the way, it is possible to have both diseases.  I do.  Take care.

I know that a military doctor once told margie this, but for the record, virtually no gastroenterologist believes it’s possible to have both. In the 75 years since Crohn’s was first described, there has not been a single report in the medical literature of someone having both diseases. In a few cases, Crohn’s colitis can look like ulcerative colitis, and that’s undoubtedly what’s going on in her case.

Response:

My drs believe you can have both.  UM MOM Susan

– Hide quoted text — Show quoted text –  By the way, it is possible to have both diseases.  I do.  Take care. I know that a military doctor once told margie this, but for the record, virtually no gastroenterologist believes it’s possible to have both. In the 75 years since Crohn’s was first described, there has not been a single report in the medical literature of someone having both diseases. In a few cases, Crohn’s colitis can look like ulcerative colitis, and that’s undoubtedly what’s going on in her case.

Response:

My doc believes that too….thats why I had my colectomy a few years back. They confirmed UC and I still have crohns….One would aggravate the other and I was alot worse off with both than I am now… My drs believe you can have both.  UM MOM Susan

Lisa :-)

Response:

Yes and so do my docs believe you can have both.  I know people who do have both. Jennie :)

– Hide quoted text — Show quoted text – My doc believes that too….thats why I had my colectomy a few years back. They confirmed UC and I still have crohns….One would aggravate the other and I was alot worse off with both than I am now… My drs believe you can have both.  UM MOM Susan Lisa :-)

Response:

Anyway I was only diagnosed with ulcerative colitis last Oct.  Now after having another colonoscopy (last week) they say I may have crohns. I just wish they would make up their mind! I am on a lot of medication that includes; prednisone, asacol and imuran. I would be really grateful if you could include me in your newsgroup, as sometimes it is hard not too feel isolated in having this disease. And not to mention very frustrating!

Dear Barbara:   As usual for me, I got ahead of myself and did not read further down before sending a post to you before reading this one!  Oh well…anyway….I thing we all know how you feel.  Isolation is, I think, the biggest  and hardest feeling to get over.  And yes, it is very frustrating.  But that is what is so great about this ng…there is not a question you cannot ask that someone won’t either have the answer for you or be able to direct you to a place to find an answer.  By the way, it is possible to have both diseases.  I do.  Take care. Love,   Margie CD Class of 67 UC Class of 96

Response:

welcome to the group.  just go ahead and chat away.  we are here to help and support and once in a while, we need the support in return. here is to you feel’in better, jeff, imied, class of 99; c.d., class of 01; extreme p.g., class of 02

– Hide quoted text — Show quoted text – Hi all My name is Barbara and I stumbled across this newsgroup and my first thought was:  GREAT!! Now I can finally begin to communicate with others who have these diseases we know as crohns and colitis. That is if you will have me. I am 22 yrs old, and am from a country called New Zealand, do you guys know where that is?? Anyway I was only diagnosed with ulcerative colitis last Oct.  Now after having another colonoscopy (last week) they say I may have crohns. I just wish they would make up their mind! I am on a lot of medication that includes; prednisone, asacol and imuran. I would be really grateful if you could include me in your newsgroup, as sometimes it is hard not too feel isolated in having this disease. And not to mention very frustrating! Well I wish you all well. Take care Barbara Ryan

Response:

Yea now that you mentions kids, How is our Stephanie and Arianna doing?  UM MOM Susan

– Hide quoted text — Show quoted text – Hi Barbara, Welcome to the group!  I have had CD for many years and have been in an active flare since last summer.  I’m from the U.S. :)  The folks in this group are the most compassionate bunch you’ll ever meet.  We also like to kid around alot, so just jump on in whenever  you like :) Hugs,  Linda Welcome Barbara, I have Ulcerative Colitis for the last 1-

arthritis?????

Question:

I had a bad bout of arthritis for about a month I think. I was close to being wheelchair bound but not quite. Just shuffled around reeeeeeealy slowly and couldn’t take the tops off of bottles and jars because my hands were too weak. I have read something somewhere about the arthritis associated with ibd. I recall reading that it was ideopathalogical or something like that and that it doesn’t damage the joints the way "regular" arthritis does. Celebrex helped me and I haven’t really had any other arthritis pain since then ( a year and a half ago). John

– Hide quoted text — Show quoted text – I have a question on all those who suffer from arthritis that is related to you colitis/crohns. I’ve just recently been dx with arthritis. My question is does it last for long periods of time? Will it go away? The reason I’m asking is in april I was confined to a wheel chari because I could not walk plus my right hand was not  functional at all during that time. Now with by the grace of God and my thearpy I can walk (with a limp) and I can use my hand somewhat. Now my left hand is starting to swell and is very painful to move or lift anything with any weight to it.. Anyways Im on celebrex, prednisoine, and asulfidine. I feel like I have one good day and Im thinking that Im getting better and then the very next morning I can hardly move my hands and my limp is really bad. Whats the deal??? Is this something I should expect?  Im just afraid that Im gonna be this way forever. :-( My doc said something about mexathtrate*spelling* for the arthritis ..Whats that like??? I was on 6 mp for colitis for a couple of months and I had to come off that because it was to strong for me and kept me nausiated all the time.Is this mexathratate that strong?? Also, I have searched the net for some sites that tells about arthritis from colitis, and have come up empty handed.  Is there such a site? Any suggestions as to wher to get infor about this?? Tina UC 95

Response:

Oxidative Stress (Free Radicals)  plays a part in both IBD and Arthritis. Thats why a good nutritional program is so effective in helping with these diseases.  Even Turmeric which is a cox2 anti inflammatory is a great choice for IBD and Arthritis alike. You are not taking anything to help with the Arthritis, the pain relief from Celebrex is all symptomatic. They are both listed as autoimmune diseases also. Y. Henrotin, et al. Active oxygen species, articular inflammation and cartilage damage. EXS-Free Radicals and Aging 62 (1992): 308-322. R. Miesel, et al. Enhanced mitochondrial radical production in patients with rheumatoid arthritis correlates with elevated levels of tumor necrosis factor alpha in plasma. Free Radical Research 25, no. 2 (August 1996): 161-169. P. Mary, et al. Oxidative damage to lipids within the inflamed human joint provides evidence of radical-mediated hypoxic-reperfusion injury. American Journal of Clinical Nutrition 52 (1991): 362S-369S. G. W. Comstock, et al. Serum concentrations of alpha-tocopherol, beta-carotene, and retinol preceding the diagnosis of rheumatoid arthritis and systemic lupus erythermatosis. Annals of Rheumatic Diseases 56, no. 5 (Mau 1997): 323-325.  P. Mulder, et al. Effect of oral zinc supplementation on metallothionein and superoxide dismutase concentrations in patients with inflammatory bowel disease. Journal of Gastroenterol Hepatology 9, no. 5 ( September-October 1994): 472-477. L. Lih-Brody, et al. Increased oxidative stress in decreased antioxidant defenses in mucosa of inflammatory bowel disease. Digestive Diseases and Science 41, no. 10 (October 1996); 2078-2086. A. Burke, et al. Nutrition and ulcerative colitis. Baillieres Clinical Gastroenterology 11, no. 1 (March 1997): 153-174. I. Beno, et al. Ulcerative colitis: Activity of antioxidant enzymes of the colonic mucosa. Presse Med 26, no. 31 (October 18, 1997): 1474-1477. E. J. Hoffenberg, et al. Circulating antioxidant concentration in children with inflammatory bowel disease. American Journal of Clinical Nutrition 65, no. 5 (May 1997): 1482-1488. Ken.W  7 Years Med Free! Proud member of the USANA Family

– Hide quoted text — Show quoted text – I have a question on all those who suffer from arthritis that is related to you colitis/crohns. I’ve just recently been dx with arthritis. My question is does it last for long periods of time? Will it go away? The reason I’m asking is in april I was confined to a wheel chari because I could not walk plus my right hand was not  functional at all during that time. Now with by the grace of God and my thearpy I can walk (with a limp) and I can use my hand somewhat. Now my left hand is starting to swell and is very painful to move or lift anything with any weight to it.. Anyways Im on celebrex, prednisoine, and asulfidine. I feel like I have one good day and Im thinking that Im getting better and then the very next morning I can hardly move my hands and my limp is really bad. Whats the deal??? Is this something I should expect?  Im just afraid that Im gonna be this way forever. :-( My doc said something about mexathtrate*spelling* for the arthritis ..Whats that like??? I was on 6 mp for colitis for a couple of months and I had to come off that because it was to strong for me and kept me nausiated all the time.Is this mexathratate that strong?? Also, I have searched the net for some sites that tells about arthritis from colitis, and have come up empty handed.  Is there such a site? Any suggestions as to wher to get infor about this?? Tina UC 95

Response:

I have a question on all those who suffer from arthritis that is related to you colitis/crohns. I’ve just recently been dx with arthritis. My question is does it last for long periods of time? Will it go away? The reason I’m asking is in april I was confined to a wheel chari because I could not walk plus my right hand was not  functional at all during that time. Now with by the grace of God and my thearpy I can walk (with a limp) and I can use my hand somewhat. Now my left hand is starting to swell and is very painful to move or lift anything with any weight to it.. Anyways Im on celebrex, prednisoine, and asulfidine. I feel like I have one good day and Im thinking that Im getting better and then the very next morning I can hardly move my hands and my limp is really bad. Whats the deal??? Is this something I should expect?  Im just afraid that Im gonna be this way forever. :-( My doc said something about mexathtrate*spelling* for the arthritis ..Whats that like??? I was on 6 mp for colitis for a couple of months and I had to come off that because it was to strong for me and kept me nausiated all the time.Is this mexathratate that strong?? Also, I have searched the net for some sites that tells about arthritis from colitis, and have come up empty handed.  Is there such a site? Any suggestions as to wher to get infor about this?? Tina UC 95

Response:

Has anyone tried unfiltered Vinegar?

Question:

also works as a great shaving tool

Response:

do you douche with cranberry juice ?? YUCK

Response:

Response:

Fran, I was once told that you could add a cap full of bleach to your bottle of shampoo and that would help keep them away. Staci – Hide quoted text — Show quoted text – And for one more tip on ways to use white vinegar, which I’m almost embarrassed to post. But I used to work in a kindergarten and you NEED to know these kinds of things..lol.. it repels head lice also! Just wash and rinse your hair in it. Won’t work if you already have them tho. It does?  Seriously?  What gets rid of them once they’re already in residence?  I’ve tried the various lotions and potions from the pharmacy but they don’t really seem to work all that well.  I’ve considered trying to get hold of industrial strength DDT, but for some strange reason no one wants to sell it to me… Tea tree oil has been suggested by some people, but maybe I’m a cynic or something… if it does half that’s claimed for it, how come it isn’t more widely available in ‘mainstream’ shops?  It’s very much the preserve of health food shops and the like, and it’s also very expensive.  There must be *something* the little blighters don’t like, surely? — Fran Off now to buy some white vinegar

Response:

apple cider vinegar is good for digestion when taken with meals, so it may indirectly help with colitis/crohns.

– Hide quoted text — Show quoted text – Does it help your colitis or crohns?

Response:

Hi Kitty, Yes, I believe it’s mixed w/water.  Years ago, my GYN dr told me there is really no reason for women to douche and their bodies will take care of themselves.  Douching may be in order though for certain conditions, he said.  I haven’t done it since that time and have not had any problems at all. Hugs,  Linda

– Hide quoted text — Show quoted text – I’ve heard this also – you’re supposed to douche with it. ****** but you  do mix it with water right? I’ve heard conflicting opinons on douching. Miss Kitty

Response:

that is one of the PRIMARY reasons i DON’T live in either of those 2 states…esp fla…….LOL jeffy

– Hide quoted text — Show quoted text – Every year we get more and more fire ants here in Alabama.  And I get stung every year :o /  What a nasty booboo they leave :(  I have a shallow ditch behind my house and they seem to like to have their nests at the top of the banks.  Last year, my dog stepped in one after she wrapped her leash around a tree and in the couple seconds it took me to get her unwound, her back leg was covered with them.  Even my horse got into one!  We use Amdro to get rid of them. Hugs,  Linda I hate fire ants .. will remember the white vinegar for that .. we are loaded with fire ants here in florida

Response:

Like cranberry juice ;o) – Hide quoted text — Show quoted text – I also heard it is a great way to keep yeast  infections in woman under control

Response:

Yes, it works for most insects stings. Nice old wives remedy ;o) No

constipation/diet what's happening???

Question:

It’s the dried fruit and meat (jerky) that causes me problems. I have to drink about a gallon to help offset the effects when I do eat it.  It absorbs the water in your gut on the way out and creates constipation.  Good luck — JS

– Hide quoted text — Show quoted text – I have had colitis/crohns since 1975 Since my last check up in january I have gone on a rigid diet to lose weight and improve my health I now eat fruit and veg like mad and dried fruit and nuts. I used to go about 6 times a day to the toilet,but found soon due to my new diet that came down to about three. But in the last few days I am constipated,and going to the loo is difficult and painful in that the stools(sorry to describe this)are dry;certainy different to before. I contacted NHS direct and they associated it with my diet and told me to drink lots of water and go back at least a small way to my old diet. I have evaded,eggs,pasta,cheese throughout my new diet. Was my changeover to radical? Just need some reassurance Thanks Rob

Response:

My suggestion is to increase your fat in-take — not by a whole lot, but that should help grease the ol’ chute, as it were. But I understand what you mean. At one point, I went on a low fat diet and suddenly began having "normal" bowel movements once again after years of watery and soft bowel movements. I never got as far along as you did, but I allowed myself a few perks — namely, Fridays were free, meaning I didn’t count fat grams that day. And the increase in water is probably a good suggestion, too. I didn’t lose any weight on the diet, but I was on prednisone at the time. Regardless, I stayed on the diet for nearly a year, stopping only when I had a flare up. After that last major flare up, everything went down hill and I was never able to get the same results by dieting. Oh, well! steve – Hide quoted text — Show quoted text – I have had colitis/crohns since 1975 Since my last check up in january I have gone on a rigid diet to lose weight and improve my health I now eat fruit and veg like mad and dried fruit and nuts. I used to go about 6 times a day to the toilet,but found soon due to my new diet that came down to about three. But in the last few days I am constipated,and going to the loo is difficult and painful in that the stools(sorry to describe this)are dry;certainy different to before. I contacted NHS direct and they associated it with my diet and told me to drink lots of water and go back at least a small way to my old diet. I have evaded,eggs,pasta,cheese throughout my new diet. Was my changeover to radical? Just need some reassurance Thanks Rob

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Response:

Hi Rob I have to say that I agree with Steve, the first thing that came to mind was the sudden lack of fats or oils. Like you I aim to eat lots of fruit and veg, especially raw, when I’m being disciplined and for me it was the first thing that helped my Colitis. Perhaps a cod liver oil supplement or maybe more avocado.  Have you tried eating Medjool dates?  I love them and they seem to keep me right on time if you catch my drift! Mandy

Response:

Yes thats a pretty abrupt change over…..But seeing as how you have been on it a while already stick with it…..Especially if this is your only complaint…..Just increase your water and Essential fatty Acid intake. That should solve your problem….and good for you for taking the initiative for improving your health. Ken.W  6 Years Med Free! Proud member of the USANA Family

– Hide quoted text — Show quoted text – I have had colitis/crohns since 1975 Since my last check up in january I have gone on a rigid diet to lose weight and improve my health I now eat fruit and veg like mad and dried fruit and nuts. I used to go about 6 times a day to the toilet,but found soon due to my new diet that came down to about three. But in the last few days I am constipated,and going to the loo is difficult and painful in that the stools(sorry to describe this)are dry;certainy different to before. I contacted NHS direct and they associated it with my diet and told me to drink lots of water and go back at least a small way to my old diet. I have evaded,eggs,pasta,cheese throughout my new diet. Was my changeover to radical? Just need some reassurance Thanks Rob

Response:

Thanks Pearl At one stage I thought things were going so well,I felt better,in my mind as well as my body. Looks like it was too radical and now have to reintroduce my old diet. I am now drinking loads of water,am going to blow out on tuna pasta tonight and hopefully in the next few days get back to some sort of normality. Rob

– Hide quoted text — Show quoted text – Personally I believe in moderation – anytime we initiate change it should be done gradually so as not to "shock" he system. By making one change at a time we can identify an "offending agent" if and when there is an adverse or beneficial affect. I would have added one new food or food group at a time. However, now that you inititated these changes and it has been several months I would increase your fluid intake and back off on the amount of fiber you ingest. Too much of anything is not good. Those of us who live with IBD must realize that the recommendations that are advocated for the "normal" healthy population do not apply to us in the same manner. Since I have an ileostomy I certainly would not consider adopting the guidelines recommended to protect one from colon cancer. We must use common sense and logic when trying to make dietary changes. We cannot simply adopt what would be recommended for the average healthy individual. We could end up being our own worst enemy. — Pearl L I have had colitis/crohns since 1975 Since my last check up in january I have gone on a rigid diet to lose weight and improve my health I now eat fruit and veg like mad and dried fruit and nuts. I used to go about 6 times a day to the toilet,but found soon due to my new diet that came down to about three. But in the last few days I am constipated,and going to the loo is difficult and painful in that the stools(sorry to describe this)are dry;certainy different to before. I contacted NHS direct and they associated it with my diet and told me to drink lots of water and go back at least a small way to my old diet. I have evaded,eggs,pasta,cheese throughout my new diet. Was my changeover to radical? Just need some reassurance Thanks Rob

Response:

Personally I believe in moderation – anytime we initiate change it should be done gradually so as not to "shock" he system. By making one change at a time we can identify an "offending agent" if and when there is an adverse or beneficial affect. I would have added one new food or food group at a time. However, now that you inititated these changes and it has been several months I would increase your fluid intake and back off on the amount of fiber you ingest. Too much of anything is not good. Those of us who live with IBD must realize that the recommendations that are advocated for the "normal" healthy population do not apply to us in the same manner. Since I have an ileostomy I certainly would not consider adopting the guidelines recommended to protect one from colon cancer. We must use common sense and logic when trying to make dietary changes. We cannot simply adopt what would be recommended for the average healthy individual. We could end up being our own worst enemy. — Pearl L

– Hide quoted text — Show quoted text – I have had colitis/crohns since 1975 Since my last check up in january I have gone on a rigid diet to lose weight and improve my health I now eat fruit and veg like mad and dried fruit and nuts. I used to go about 6 times a day to the toilet,but found soon due to my new diet that came down to about three. But in the last few days I am constipated,and going to the loo is difficult and painful in that the stools(sorry to describe this)are dry;certainy different to before. I contacted NHS direct and they associated it with my diet and told me to drink lots of water and go back at least a small way to my old diet. I have evaded,eggs,pasta,cheese throughout my new diet. Was my changeover to radical? Just need some reassurance Thanks Rob

Response:

I have had colitis/crohns since 1975 Since my last check up in january I have gone on a rigid diet to lose weight and improve my health I now eat fruit and veg like mad and dried fruit and nuts. I used to go about 6 times a day to the toilet,but found soon due to my new diet that came down to about three. But in the last few days I am constipated,and going to the loo is difficult and painful in that the stools(sorry to describe this)are dry;certainy different to before. I contacted NHS direct and they associated it with my diet and told me to drink lots of water and go back at least a small way to my old diet. I have evaded,eggs,pasta,cheese throughout my new diet. Was my changeover to radical? Just need some reassurance Thanks Rob

Response:

SCDIET.ORG

Question:

I read that carbs in your diet are considered low residue and aid against any possible flares. It’s quite confusing trying to understand and follow so many opinions. Thanks, Ted

Response:

I read that carbs in your diet are considered low residue and aid against any possible flares. It’s quite confusing trying to understand and follow so many opinions. Thanks, Ted

If you read the SCDiet book "Breaking the Vicious Cycle" this is all explained in detail. The idea is that colitis/Crohns involves an imbalance of "good" and "bad" bacteria in your gut (normally kept in balance by each other). Excess carbs from your food are converted into sugar in your intestine, and this sugar then provides food for the "bad" bacteria and begins a vicious cycle. The bad bacteria starts to get out of control and your body’s attempt to combat them actually damages the intestinal wall. It’s all a complex chemical process I don’t entirely understand, but the fundamentals make sense to me. By avoiding complex carbs and refined sugar (as opposed to simple carbs and simple sugars in fruit and veggies) you essentially starve the bad bacteria of its energy source. No excess carbs/sugar=no food for bad bacteria=healthy colon. I’m vastly simplifying things, the book explains it in much greater detail. All I can say is it worked very well for me. Basically, most the junk food out there is chocked full of complex carbs and sugars, and the body just wasn’t meant to deal with it. True, most people survive okay eating it — but they either gain weight or develop diabetes, or any number of bad maladies. In many ways, the SCDiet goes back to the kind of food the human body evolved to eat prior to 20th century, before everything was packaged, refined, and dosed with sugar. Before breakfast meant a high-sugar/carb cereal and a high-sugar/carb donut. Or lunch meant a high-carb Big Mac. Or dinner meant a pre-packaged TV dinner resembling nothing found in nature. (For example, according to the SCDiet book, your average store-bought ketchup is almost 40% sugar! What happened to the tomato paste it was supposed to be?) However, I should add that not all cases of colitis seem to be equal. I use myself as an example. The SCDiet worked wonders for me after my first flare. I maintained perfect health for 7 months until my most recent flare. Even though I’m sticking to the diet, this flare won’t end. As I mentioned in my previous message, I believe it’s due to a iron supplements I was taking in my vitamins, which have been shown to worsen inflammation in rats that have colitis. So it seems I’ve "triggered" my flare in a new way that doesn’t respond to the diet. I’m still trying to figure out how to end this mess… (So if nothing else, AVOID vitamins with iron. Get the iron-free kind.) bye John

Response:

I had my first colitis flare in April 2001.  After much suffering, I started taking Asacol and began the SCDiet as well.  All my symptoms cleared up fairly quickly (the bleeding stopped; so did the diarrhea), and I decided to remain on the diet indefinitely. I only eat chicken, fish, fruit, vegetables, and the special muffins and yogurt that the SCDiet recommends (NOT store-bought yogurt).  It was tough to give up all the junk food I’d been eating for years, but I figure anything is better than rectal bleeding! Since then I have been following the diet religiously and remained completely symptom free until about two weeks.  I’m not sure why I’m suffering a new flare, I think it may be the fact that I started taking vitamins that had iron in them.  I just read somewhere that excess iron can’t escape the colon and becomes a "free radical" that can trigger colitis into a flare.  This seems to be the reason for the flare.  I don’t think the diet had anything to do with it, because for nearly seven months I was totally healthy. I did test the diet.  Once or twice I strayed and ate something I shouldn’t just to see what would happen. Within a day or two I could feel the first "grumblings" of something going wrong in my gut.  By sticking to the diet it didn’t get any worse and went away, so I’m convinced the diet works. At first it seems impossible and no fun.  You really do have to cut out ALL refined sugar and most carbs from your food , and that eliminates 90% of the junk they sell in supermarkets.  But once you’ve gone without it for a month or two, you get used to it and actually start to feel better in general. I no longer drink coffee because I don’t need it — I have more energy since I started the diet.  I also lost 35 pounds, getting me back to my old college weight (I was definitely getting fatter every year on the typical American diet). All in all, the SC diet was a real silver lining.  I eat very healthy now.  Everything is fresh — nothing is packaged, preserved, refined, or fattening. It was a radical shift for me, but in the long run this type of eating ought to have great health benefits for anyone, not just for colitis sufferers. I look at it this way — I spent the first 30 years of my life eating garbage, now it’s time to take out the trash! As for your question about not eating fruits or vegetables — I eat them all the time and they’re no problem for me. I eat lots of bananas, kiwis, mangos, blueberries, strawberries, onions, carrots, lettuce, red peppers, green beans, etc. and not once did they cause a problem. Good luck, John – Hide quoted text — Show quoted text – I read a post last week talking about an alternative to medical drugs etc. and how more Drs. are coming around. The posted message suggested looking into a site scdiet.org. The diet talked about how the injured intestine could be made well by eliminating those foods that injured the intestine by feeding the bad bacteria. Now I’m confused. This diet says to eat all the foods that I have been told to stay away from which I have been told previously would cause you to flair such as:( fresh fruit, raw vegatables, etc.) Whats up with that? Ted

Response:

I read a post last week talking about an alternative to medical drugs etc. and how more Drs. are coming around. The posted message suggested looking into a site scdiet.org. The diet talked about how the injured intestine could be made well by eliminating those foods that injured the intestine by feeding the bad bacteria. Now I’m confused. This diet says to eat all the foods that I have been told to stay away from which I have been told previously would cause you to flair such as:( fresh fruit, raw vegatables, etc.) Whats up with that? Ted

Response:

Even more so with this disease we need good healthy food.How we gonna get healthy if we don’t eat healthy? Ken.W  6 Years Med Free! Proud member of the USANA Family

– Hide quoted text — Show quoted text – I read a post last week talking about an alternative to medical drugs etc. and how more Drs. are coming around. The posted message suggested looking into a site scdiet.org. The diet talked about how the injured intestine could be made well by eliminating those foods that injured the intestine by feeding the bad bacteria. Now I’m confused. This diet says to eat all the foods that I have been told to stay away from which I have been told previously would cause you to flair such as:( fresh fruit, raw vegatables, etc.) Whats up with that? Ted

Response:

crohn's and colitis sufferers

Question:

Just a simple straight forward set of questions. Questions appear to be stress related. Navid   I am currently conducting a short survey about crohn’s, colitis and other chronic stomach ailments.  I was diagnosed with Crohn’s over 10 years ago, and I am intersested in other people’s experiences. Please take this short survey.

Response:

Survey seemed to work fine. No advertisements or intrusive questions. – Hide quoted text — Show quoted text – I am currently conducting a short survey about crohn’s, colitis and other chronic stomach ailments.  I was diagnosed with Crohn’s over 10 years ago, and I am intersested in other people’s experiences. Please take this short survey.

Response:

I am currently conducting a short survey about crohn’s, colitis and other chronic stomach ailments.  I was diagnosed with Crohn’s over 10 years ago, and I am intersested in other people’s experiences. Please take this short survey.

Response:

Beware! This doesn’t even have colitis spelled right (inside). It is a commercial site, of some sort. Boyd — "The cure for boredom is curiosity. There is no cure for curiosity."

Response:

boyd, thank you for catching the spelling errors. this is also a real survey and i really have been suffering from what the doctors tell me is crohn’s for over 10 years. just wanted to get some input on some things i’ve been recognizing over the past few years from someone other than doctors. thanks, asmax1

– Hide quoted text — Show quoted text – Beware! This doesn’t even have colitis spelled right (inside). It is a commercial site, of some sort. Boyd — "The cure for boredom is curiosity. There is no cure for curiosity."

Response:

I tried to hit the site  and got this reply "This survey has been suddenly Stopped Please try again later or contact the survey administrator. Thank You for your participation." Mike – Hide quoted text — Show quoted text – boyd, thank you for catching the spelling errors. this is also a real survey and i really have been suffering from what the doctors tell me is crohn’s for over 10 years. just wanted to get some input on some things i’ve been recognizing over the past few years from someone other than doctors. thanks, asmax1 Beware! This doesn’t even have colitis spelled right (inside). It is a commercial site, of some sort. Boyd — "The cure for boredom is curiosity. There is no cure for curiosity."

All opinions expressed are mine unless otherwise noted. Copyright

UC or CD – i'm confused!

Question:

Prednisone gave me spots and inflammation on my tongue.  On a high dose, I burned and was sore all the time.  The corners of my lips would get sores.  If you are on prednisone it could be causing some of your problems. Staci

Response:

ej I think there are more similarities than differences, but there are differences. Ulcerative Colitis affects only the colon, where Crohn’s Disease can affect any part of the digestive system, although I think it is more often found in the small intestine. With UC the inflammation is continous, where CD can have spots of inflammation here and there. CD will (or can) also move from one place to another. Surgery (removal of the colon) will cure UC; however surgery, although it is is sometimes necessary with CD will not get rid of it because it can move to another area. Check the Crohn’s & Colitis Foundation of America (CCFA) webpage for more information. (click on ‘Medical Central’ to get to the ‘Library.’) http://www.ccfa.org/ Howard – Hide quoted text — Show quoted text – Quesion for you – is there a big difference between Chrohns and Colitis? My doc sais no! I have Colitis but get mouth sores, low grade fevers, do you know if this could mean I have Crohns? thanks. ej

Response:

ej, There is a difference in crohns and colitis. Crohns is primarily in the small intestine, Colitis is primarily in the large intestine. Now I have been told that crohns can affect any part of the digestive system, from the mouth to the anus. I have never heard of colitis in the small intestine. Hope this helps. Mark CD c/o 88 – Hide quoted text — Show quoted text – Quesion for you – is there a big difference between Chrohns and Colitis? My doc sais no! I have Colitis but get mouth sores, low grade fevers, do you know if this could mean I have Crohns? thanks. ej

Response:

Technically, the difference is in that crohns afflicts ‘deeper’ layers of tissue, while colitis afflicts surface tissue. Both share the same traits, however, colitis is relatively religated to the end of the digestive tract, while crohns can show up anywhere along the digestive tract as well as other tissues… Andy

Response:

The other major difference is that UC is considered cured if the colon is removed.  There is no cure for CD. :)  mgbio – Hide quoted text — Show quoted text – ej, There is a difference in crohns and colitis. Crohns is primarily in the small intestine, Colitis is primarily in the large intestine. Now I have been told that crohns can affect any part of the digestive system, from the mouth to the anus. I have never heard of colitis in the small intestine. Hope this helps. Mark CD c/o 88 Quesion for you – is there a big difference between Chrohns and Colitis? My doc sais no! I have Colitis but get mouth sores, low grade fevers, do you know if this could mean I have Crohns? thanks. ej

Response:

Quesion for you – is there a big difference between Chrohns and Colitis? My doc sais no! I have Colitis but get mouth sores, low grade fevers, do you know if this could mean I have Crohns? thanks. ej

Response:

There is a big difference! Get a second opinion, preferrably from an IBD specialist.  I’m glad I did! Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address: – Hide quoted text — Show quoted text – Quesion for you – is there a big difference between Chrohns and Colitis? My doc sais no! I have Colitis but get mouth sores, low grade fevers, do you know if this could mean I have Crohns? thanks. ej

Response:

Trying out DSMO

Question:

Also read the post below : Iron and Colitis (Ken. W) A study confirms David Greggs theory that iron activates the Haber-Weiss reaction in the intestines ! Read the story (Iron and Colitis) and read the following link… http://www.krysalis-sparx.com/crohn.htm Thanks, Ed

Response:

There are several references, I’ll look for them to post, that MSM (Methyl Sulfonyl Methane.  MSM is also called "organic sulfur." ) is the beneficial ingredient in DMSO.

Not exactly an ingredient– MSM is one of the things your body metabosizes DMSO into…the stuff that has the beneficial effects…. Anti inflammatory, reduces pain, etc, amazing stuff, said to be safer than aspirin, etc. I do not have Crohns. My interest here is because a good friend of mine has CD. I use MSM for back and joint pain and find it very effective. MSM is also DMSO2…one Oxygen added to DMSO….DMSO is a powerful antioxident whereas it is uncertain if MSM is an antioxident. I have read that MSM does enhance the effects of steroids, which might mean that less of the steroid might be needed or perhaps that the steroid just works better. Recently read a study done of the effects of adding DMSO to prednisone and it looked promising. I think it was a link posted here by Member4165 http://www.dmso.org/articles/intestinal/colitis1.htm http://www.dmso.org/articles/intestinal/colitis2.htm Please go to the above sites and read. Your doctors might find this study interesting. excerpt below: "The remission rate after 2 weeks of active treatment was significantly (p < 0.01) higher in the allopurinol (40 patients, 87%) and DMSO (38 patients, 84%) groups than that in the sulfasalazine and prednisolone group (23 patients, 51%). In the remaining cases orally administered prenisolone was increased to 15 mg four times a day. All patients in the allopurinol and DMSO groups became free of symptoms with 3 weeks of treatment, a result that was superior (p < 0.01) to that of the sulfasalazine and prednisolone group in which only 66% of patients were free of symptoms at this stage. Remission in all members of the latter group was achieved after 4 weeks of treatment. In every patient the clinical recovery from an attack was associated with sigmoidoscopic appearances of remission and the histologic observation of an inflammatory bowel disease in an inactive phase. Thus the remission rate on the basis of symptoms coincided with that which was determined histologically. During prophylactic treatment, 10 patients (25%) in the sulfasalazine alone group and two patients (5%) in each of the other groups had recurrent attacks of moderate proctosigmoiditis. All of these relapses were symptomatic and were confirmed histologically. There were no cases of histologically active disease in a patient who was free of symptoms (i.e., silent relapses). The results illustrate that addition of allopurinol of DMSO to sulfasalazine significantly (p < 0.5) enhances its protective effects. The colonoscopies and barium enema, which were performed during the maintenance therapy year, demonstrated no change in the extent of the disease. A series of Cox proportional hazard models was fitted with all factors other than treatment with radical scavengers as covariates to obtain a group of patients and conditions that independently and significantly influence the rate of disease relapse and remission. Allopurinol or DMSO was then added to treatment as separate covariates. Increasing duration of symptoms, anemia, constitutional disturbances, and increasing number of daily bowel movements all had a significantly (p < 0,001) detrimental effect on the rate of disease relapse and remission at the 5% level. When these and all the other nonsignificant variables were allowed for, treatment with allopurinol or DMSO continued to exert a significant beneficial effect on the rate of remission after an acute attack (p < 0.01) and on reducing the maintance treatment (p < 0.05)."

Response:

Julie There are several references, I’ll look for them to post, that MSM (Methyl Sulfonyl Methane.  MSM is also called "organic sulfur." ) is the beneficial ingredient in DMSO. Here’s a link someone sent me in this thread http://www.msm.com/book/msm-part1.html Nick

– Hide quoted text — Show quoted text – what is MSM? Kim After 9 months of active crohns, I did several things, stopped eating salad, stopped drinking my one cup of coffee, stopped drinking my one glass of wine and started taking 1 3mg Melatonin every night & two Glucosomine and MSM capsules (500mg each) every other day.  I felt better within a couple of days.  Now the problem is I don’t know why. Though I suspect a Dr. or most folks in this newsgroup would say I simply went into a partial remission. Maybe so.  Maybe not. Since Nov 7 when I started I’ve introduced and occasional cup of coffee and wine, but kept out the salad and increased the G & MSM. No change, still feel good!  Is the MSM helping?  Well it sure as heck isn’t hurting! At considerable risk (since I’ll have to feel bad again to find it) I plan on trying to target which of these factors has the biggest bang.  I’ll let you know. Try what you can that is within the limits of "safe" and see what works for you. Keep us posted. Nick I’ve read that Pure DMSO is not absorbed as readily as DMSO that is diluted. Also remember seeing something about different dilutions being more effective for different things. Sorry I can’t be more specific but you may want to look into it. Most of the over the counter or over the internet DMSO is available diluted with 30% water or aloe vera. The aloe is supposed to help minimize the itching, but my experience is that it still itches a little. I have used DMSO several times over the last 10 years or so and have never noticed any ill effects or anything I can attribute to it carrying stuff with it through the skin BUT it is a possibility. Normal hygiene and rinse well, plane ol’ soap, no deodorant or anything that implies that it ‘leaves’ protection on you. Also it is likely that you clothing may have a dye in it so be careful. If you must keep moving, I have heard that some people wrap the application site with Saran Wrap. Very glad to hear that it seems to be working for you Ed. I am still wondering if MSM would be of use for Crohn’s. Anybody tried it? Kim I’m also trying DMSO.. I’m doing really fine now… I’ve gained 2,5 – 3 kilos in about a week since first applying DMSO ! I went down from 72 to 65 and after using DMSO I’m 67,5 – 68 again ! My energy level is a lot higher.. I use pure DMSO (99% pure) and I’ve also dissolved B12 in it… What helps the itching is mixing the DMSO, with 30% water… I clean my stumach using water only (also wash your hands carefully).. Also, when the DMSO has entered your body, apply some water on the places that itch.. The itching is primarily caused by the dehydration.. I also feel like going back to playing tennis and soccer ! I quit doing that some time ago.. As i said before, I’ve also run the stairs like I haven’t done in some time… I’m glad you’ve also used, so I’m not the only person anymore… Thanks, Greetings from the Netherlands, Ed Sources for information : Treating Crohns Disease with DMSO / B12 / Folic Accid http://www.krysalis-sparx.com/crohn.htm Testiomials http://www.krysalis-sparx.com/crohntest.htm Info on DMSO http://www.medical-library.net/sites/_dmso_(dimethylsulfoxide).html Double blind medical study about treating Crohns with DMSO http://www.dmso.org/articles/intestinal/colitis1.htm A study confirming the B12 deficiency in Crohns patients : Study of nutritional status in recently diagnosed patients with inflammatory bowel disease Patients with inflammatory bowel disease (IBD) often have malnutrition, although little is known regarding the nutritional status in patients with recently diagnosed IBD. This investigation aimed to study the nutritional status of this population, and included 69 IBD patients (23 with Crohn_s disease [CD] and 46 with ulcerative colitis [UC]) and 69 age- and sex-matched population controls. The following parameters were used to assess their nutritional status: (1) body composition (anthropometry and dual-energy X-ray absorptiometry); (2) dietary intake (dietary history); (3) biochemical indexes of nutrition; and (4) muscle strength (isokinetic dynamometer). The results showed that UC patients had lower body weight and body mass index than controls; the mean daily intake of carbohydrates was higher in CD patients than controls, and the intake of protein, calcium, phosphorus and riboflavin was lower in UC patients than controls. When looking at serum concentrations of nutrients such as beta-carotene, magnesium, selenium and zinc, they were significantly lower in UC patients compared with controls. CD patients had significantly lower serum vitamin B12 concentration. Regarding muscle strength, it did not differ between IBD patients and controls. In conclusion, when IBD is diagnosed, the nutritional status is already affected negatively. These results suggest that nutritional supplementation could play a role regarding the clinical course of the disease in recently diagnosed IBD patients. (Geerling, B.J. et al. Eur J Clin Nutr 2000; 54(6): 514-521.)

Response:

Ed,  thanks for the link to the MSM stuff! Good health to you Nick

– Hide quoted text — Show quoted text – I’ve read that Pure DMSO is not absorbed as readily as DMSO that is diluted. Also remember seeing something about different dilutions being more effective for different things. Sorry I can’t be more specific but you may want to look into it. Most of the over the counter or over the internet DMSO is available diluted with 30% water or aloe vera. The aloe is supposed to help minimize the itching, but my experience is that it still itches a little. I have used DMSO several times over the last 10 years or so and have never noticed any ill effects or anything I can attribute to it carrying stuff with it through the skin BUT it is a possibility. Normal hygiene and rinse well, plane ol’ soap, no deodorant or anything that implies that it ‘leaves’ protection on you. Also it is likely that you clothing may have a dye in it so be careful. If you must keep moving, I have heard that some people wrap the application site with Saran Wrap. Very glad to hear that it seems to be working for you Ed. I am still wondering if MSM would be of use for Crohn’s. Anybody tried it? Kim Hi Kim, Thanks for your info.. I’ve used MSM for three weeks orso. I think it did help a bit (but I’m not sure because I also used melatonin at that time)… My big intestines started to work a lot better, they dehydrated the residue much better. I didn’t help for my anemia or my general feeling.. I also didn’t gain weight… A quote from : http://www.msm.com/book/msm-part1.html (The Miracle of MSM by S.W. Jacob M.D.) 77 MSM and Inflammation Oral MSM helps relieve inflammatory bowel conditions such as Crohn’s

disease and ulcerative colitis. Crohns usually affects the lower segment of the small intestine, causing both severe pain and diarrhea. The diarrhea, in turn, leads to painful irritation and inflammation in the perineal area between the anus and the genitals. MSM helps reduce the inflammation in the gut, which will lessen pain and diarrhea. This in turn reduces inflammation of the perineal tissue. Ulcerative colitis involves inflammation of the inner lining of the colon

and rectum. The effect of MSM here is the same as it is with Crohn’s. Patients report a lessening of symptoms and a more normal stool size, color, and frequency. Ulcerative colitis is associated with an increased risk of colon cancer. Both of these conditions often generate secondary inflammation in the

joints. MSM helps reduce the inflammation in the joints as well as the intestines – Hide quoted text — Show quoted text – Thanks, Ed

Response:

Kim After 9 months of active crohns, I did several things, stopped eating salad, stopped drinking my one cup of coffee, stopped drinking my one glass of wine and started taking 1 3mg Melatonin every night & two Glucosomine and MSM capsules (500mg each) every other day.  I felt better within a couple of days.  Now the problem is I don’t know why. Though I suspect a Dr. or most folks in this newsgroup would say I simply went into a partial remission. Maybe so.  Maybe not. Since Nov 7 when I started I’ve introduced and occasional cup of coffee and wine, but kept out the salad and increased the G & MSM. No change, still feel good!  Is the MSM helping?  Well it sure as heck isn’t hurting! At considerable risk (since I’ll have to feel bad again to find it) I plan on trying to target which of these factors has the biggest bang.  I’ll let you know. Try what you can that is within the limits of "safe" and see what works for you. Keep us posted. Nick

– Hide quoted text — Show quoted text – I’ve read that Pure DMSO is not absorbed as readily as DMSO that is diluted. Also remember seeing something about different dilutions being more effective for different things. Sorry I can’t be more specific but you may want to look into it. Most of the over the counter or over the internet DMSO is available diluted with 30% water or aloe vera. The aloe is supposed to help minimize the itching, but my experience is that it still itches a little. I have used DMSO several times over the last 10 years or so and have never noticed any ill effects or anything I can attribute to it carrying stuff with it through the skin BUT it is a possibility. Normal hygiene and rinse well, plane ol’ soap, no deodorant or anything that implies that it ‘leaves’ protection on you. Also it is likely that you clothing may have a dye in it so be careful. If you must keep moving, I have heard that some people wrap the application site with Saran Wrap. Very glad to hear that it seems to be working for you Ed. I am still wondering if MSM would be of use for Crohn’s. Anybody tried it? Kim I’m also trying DMSO.. I’m doing really fine now… I’ve gained 2,5 – 3 kilos in about a week since first applying DMSO ! I went down from 72 to 65 and after using DMSO I’m 67,5 – 68 again ! My energy level is a lot higher.. I use pure DMSO (99% pure) and I’ve also dissolved B12 in it… What helps the itching is mixing the DMSO, with 30% water… I clean my stumach using water only (also wash your hands carefully).. Also, when the DMSO has entered your body, apply some water on the places that itch.. The itching is primarily caused by the dehydration.. I also feel like going back to playing tennis and soccer ! I quit doing that some time ago.. As i said before, I’ve also run the stairs like I haven’t done in some time… I’m glad you’ve also used, so I’m not the only person anymore… Thanks, Greetings from the Netherlands, Ed Sources for information : Treating Crohns Disease with DMSO / B12 / Folic Accid http://www.krysalis-sparx.com/crohn.htm Testiomials http://www.krysalis-sparx.com/crohntest.htm Info on DMSO http://www.medical-library.net/sites/_dmso_(dimethylsulfoxide).html Double blind medical study about treating Crohns with DMSO http://www.dmso.org/articles/intestinal/colitis1.htm A study confirming the B12 deficiency in Crohns patients : Study of nutritional status in recently diagnosed patients with inflammatory bowel disease Patients with inflammatory bowel disease (IBD) often have malnutrition, although little is known regarding the nutritional status in patients with recently diagnosed IBD. This investigation aimed to study the nutritional status of this population, and included 69 IBD patients (23 with Crohn_s disease [CD] and 46 with ulcerative colitis [UC]) and 69 age- and sex-matched population controls. The following parameters were used to assess their nutritional status: (1) body composition (anthropometry and dual-energy X-ray absorptiometry); (2) dietary intake (dietary history); (3) biochemical indexes of nutrition; and (4) muscle strength (isokinetic dynamometer). The results showed that UC patients had lower body weight and body mass index than controls; the mean daily intake of carbohydrates was higher in CD patients than controls, and the intake of protein, calcium, phosphorus and riboflavin was lower in UC patients than controls. When looking at serum concentrations of nutrients such as beta-carotene, magnesium, selenium and zinc, they were significantly lower in UC patients compared with controls. CD patients had significantly lower serum vitamin B12 concentration. Regarding muscle strength, it did not differ between IBD patients and controls. In conclusion, when IBD is diagnosed, the nutritional status is already affected negatively. These results suggest that nutritional supplementation could play a role regarding the clinical course of the disease in recently diagnosed IBD patients. (Geerling, B.J. et al. Eur J Clin Nutr 2000; 54(6): 514-521.)

Response:

what is MSM? – Hide quoted text — Show quoted text – Kim After 9 months of active crohns, I did several things, stopped eating salad, stopped drinking my one cup of coffee, stopped drinking my one glass of wine and started taking 1 3mg Melatonin every night & two Glucosomine and MSM capsules (500mg each) every other day.  I felt better within a couple of days.  Now the problem is I don’t know why. Though I suspect a Dr. or most folks in this newsgroup would say I simply went into a partial remission. Maybe so.  Maybe not. Since Nov 7 when I started I’ve introduced and occasional cup of coffee and wine, but kept out the salad and increased the G & MSM. No change, still feel good!  Is the MSM helping?  Well it sure as heck isn’t hurting! At considerable risk (since I’ll have to feel bad again to find it) I plan on trying to target which of these factors has the biggest bang.  I’ll let you know. Try what you can that is within the limits of "safe" and see what works for you. Keep us posted. Nick I’ve read that Pure DMSO is not absorbed as readily as DMSO that is diluted. Also remember seeing something about different dilutions being more effective for different things. Sorry I can’t be more specific but you may want to look into it. Most of the over the counter or over the internet DMSO is available diluted with 30% water or aloe vera. The aloe is supposed to help minimize the itching, but my experience is that it still itches a little. I have used DMSO several times over the last 10 years or so and have never noticed any ill effects or anything I can attribute to it carrying stuff with it through the skin BUT it is a possibility. Normal hygiene and rinse well, plane ol’ soap, no deodorant or anything that implies that it ‘leaves’ protection on you. Also it is likely that you clothing may have a dye in it so be careful. If you must keep moving, I have heard that some people wrap the application site with Saran Wrap. Very glad to hear that it seems to be working for you Ed. I am still wondering if MSM would be of use for Crohn’s. Anybody tried it? Kim I’m also trying DMSO.. I’m doing really fine now… I’ve gained 2,5 – 3 kilos in about a week since first applying DMSO ! I went down from 72 to 65 and after using DMSO I’m 67,5 – 68 again ! My energy level is a lot higher.. I use pure DMSO (99% pure) and I’ve also dissolved B12 in it… What helps the itching is mixing the DMSO, with 30% water… I clean my stumach using water only (also wash your hands carefully).. Also, when the DMSO has entered your body, apply some water on the places that itch.. The itching is primarily caused by the dehydration.. I also feel like going back to playing tennis and soccer ! I quit doing that some time ago.. As i said before, I’ve also run the stairs like I haven’t done in some time… I’m glad you’ve also used, so I’m not the only person anymore… Thanks, Greetings from the Netherlands, Ed Sources for information : Treating Crohns Disease with DMSO / B12 / Folic Accid http://www.krysalis-sparx.com/crohn.htm Testiomials http://www.krysalis-sparx.com/crohntest.htm Info on DMSO http://www.medical-library.net/sites/_dmso_(dimethylsulfoxide).html Double blind medical study about treating Crohns with DMSO http://www.dmso.org/articles/intestinal/colitis1.htm A study confirming the B12 deficiency in Crohns patients : Study of nutritional status in recently diagnosed patients with inflammatory bowel disease Patients with inflammatory bowel disease (IBD) often have malnutrition, although little is known regarding the nutritional status in patients with recently diagnosed IBD. This investigation aimed to study the nutritional status of this population, and included 69 IBD patients (23 with Crohn_s disease [CD] and 46 with ulcerative colitis [UC]) and 69 age- and sex-matched population controls. The following parameters were used to assess their nutritional status: (1) body composition (anthropometry and dual-energy X-ray absorptiometry); (2) dietary intake (dietary history); (3) biochemical indexes of nutrition; and (4) muscle strength (isokinetic dynamometer). The results showed that UC patients had lower body weight and body mass index than controls; the mean daily intake of carbohydrates was higher in CD patients than controls, and the intake of protein, calcium, phosphorus and riboflavin was lower in UC patients than controls. When looking at serum concentrations of nutrients such as beta-carotene, magnesium, selenium and zinc, they were significantly lower in UC patients compared with controls. CD patients had significantly lower serum vitamin B12 concentration. Regarding muscle strength, it did not differ between IBD patients and controls. In conclusion, when IBD is diagnosed, the nutritional status is already affected negatively. These results suggest that nutritional supplementation could play a role regarding the clinical course of the disease in recently diagnosed IBD patients. (Geerling, B.J. et al. Eur J Clin Nutr 2000; 54(6): 514-521.)

Response:

- Hide quoted text — Show quoted text – I’ve read that Pure DMSO is not absorbed as readily as DMSO that is diluted. Also remember seeing something about different dilutions being more effective for different things. Sorry I can’t be more specific but you may want to look into it. Most of the over the counter or over the internet DMSO is available diluted with 30% water or aloe vera. The aloe is supposed to help minimize the itching, but my experience is that it still itches a little. I have used DMSO several times over the last 10 years or so and have never noticed any ill effects or anything I can attribute to it carrying stuff with it through the skin BUT it is a possibility. Normal hygiene and rinse well, plane ol’ soap, no deodorant or anything that implies that it ‘leaves’ protection on you. Also it is likely that you clothing may have a dye in it so be careful. If you must keep moving, I have heard that some people wrap the application site with Saran Wrap. Very glad to hear that it seems to be working for you Ed. I am still wondering if MSM would be of use for Crohn’s. Anybody tried it? Kim

Hi Kim, Thanks for your info.. I’ve used MSM for three weeks orso. I think it did help a bit (but I’m not sure because I also used melatonin at that time)… My big intestines started to work a lot better, they dehydrated the residue much better. I didn’t help for my anemia or my general feeling.. I also didn’t gain weight… A quote from : http://www.msm.com/book/msm-part1.html (The Miracle of MSM by S.W. Jacob M.D.) 77 MSM and Inflammation Oral MSM helps relieve inflammatory bowel conditions such as Crohn’s disease and ulcerative colitis. Crohns usually affects the lower segment of the small intestine, causing both severe pain and diarrhea. The diarrhea, in turn, leads to painful irritation and inflammation in the perineal area between the anus and the genitals. MSM helps reduce the inflammation in the gut, which will lessen pain and diarrhea. This in turn reduces inflammation of the perineal tissue. Ulcerative colitis involves inflammation of the inner lining of the colon and rectum. The effect of MSM here is the same as it is with Crohn’s. Patients report a lessening of symptoms and a more normal stool size, color, and frequency. Ulcerative colitis is associated with an increased risk of colon cancer. Both of these conditions often generate secondary inflammation in the joints. MSM helps reduce the inflammation in the joints as well as the intestines

Thanks, Ed

Response:

What type of health food store?  I can’t find it anywhere.  Are you in the US? Nick

Hi Nick, I’ve bought my DMSO here : http://store.yahoo.com/dmso1/index.html They also send the DMSO to almost every country ! Also try this one : http://www.dmso.net/pricelist.htm Please note : I’m not spamming, and I’m in no way connected to any of the above stores… I’m just trying to help someone… Thanks, Greetings from the Netherlands, Ed

Response:

I’ve read that Pure DMSO is not absorbed as readily as DMSO that is diluted. Also remember seeing something about different dilutions being more effective for different things. Sorry I can’t be more specific but you may want to look into it. Most of the over the counter or over the internet DMSO is available diluted with 30% water or aloe vera. The aloe is supposed to help minimize the itching, but my experience is that it still itches a little. I have used DMSO several times over the last 10 years or so and have never noticed any ill effects or anything I can attribute to it carrying stuff with it through the skin BUT it is a possibility. Normal hygiene and rinse well, plane ol’ soap, no deodorant or anything that implies that it ‘leaves’ protection on you. Also it is likely that you clothing may have a dye in it so be careful. If you must keep moving, I have heard that some people wrap the application site with Saran Wrap. Very glad to hear that it seems to be working for you Ed. I am still wondering if MSM would be of use for Crohn’s. Anybody tried it? Kim – Hide quoted text — Show quoted text – I’m also trying DMSO.. I’m doing really fine now… I’ve gained 2,5 – 3 kilos in about a week since first applying DMSO ! I went down from 72 to 65 and after using DMSO I’m 67,5 – 68 again ! My energy level is a lot higher.. I use pure DMSO (99% pure) and I’ve also dissolved B12 in it… What helps the itching is mixing the DMSO, with 30% water… I clean my stumach using water only (also wash your hands carefully).. Also, when the DMSO has entered your body, apply some water on the places that itch.. The itching is primarily caused by the dehydration.. I also feel like going back to playing tennis and soccer ! I quit doing that some time ago.. As i said before, I’ve also run the stairs like I haven’t done in some time… I’m glad you’ve also used, so I’m not the only person anymore… Thanks, Greetings from the Netherlands, Ed Sources for information : Treating Crohns Disease with DMSO / B12 / Folic Accid http://www.krysalis-sparx.com/crohn.htm Testiomials http://www.krysalis-sparx.com/crohntest.htm Info on DMSO http://www.medical-library.net/sites/_dmso_(dimethylsulfoxide).html Double blind medical study about treating Crohns with DMSO http://www.dmso.org/articles/intestinal/colitis1.htm A study confirming the B12 deficiency in Crohns patients : Study of nutritional status in recently diagnosed patients with inflammatory bowel disease Patients with inflammatory bowel disease (IBD) often have malnutrition, although little is known regarding the nutritional status in patients with recently diagnosed IBD. This investigation aimed to study the nutritional status of this population, and included 69 IBD patients (23 with Crohn_s disease [CD] and 46 with ulcerative colitis [UC]) and 69 age- and sex-matched population controls. The following parameters were used to assess their nutritional status: (1) body composition (anthropometry and dual-energy X-ray absorptiometry); (2) dietary intake (dietary history); (3) biochemical indexes of nutrition; and (4) muscle strength (isokinetic dynamometer). The results showed that UC patients had lower body weight and body mass index than controls; the mean daily intake of carbohydrates was higher in CD patients than controls, and the intake of protein, calcium, phosphorus and riboflavin was lower in UC patients than controls. When looking at serum concentrations of nutrients such as beta-carotene, magnesium, selenium and zinc, they were significantly lower in UC patients compared with controls. CD patients had significantly lower serum vitamin B12 concentration. Regarding muscle strength, it did not differ between IBD patients and controls. In conclusion, when IBD is diagnosed, the nutritional status is already affected negatively. These results suggest that nutritional supplementation could play a role regarding the clinical course of the disease in recently diagnosed IBD patients. (Geerling, B.J. et al. Eur J Clin Nutr 2000; 54(6): 514-521.)

Response:

I’m still really new to this group so I don’t know if I’m just repeating things that everybody else has been through.  But after finding several interesting articles on DSMO and Crohns/Colitis.  I really thought I should try it.  After the first three days,  my flare up has calmed down a whole bunch ( I mean alot!) and I’ve also elliminated a back pain that I’ve dealt with for the past year.  Although I have to admit..  the gel does burn a little.  Am I missing something here because there’s only a few messages even mentioning it?

Response:

Hi–glad to hear you’re feeling better.  Where did you get the DSMO and did you add anything to it?  The theory sounds weird but , if it works, the theory will sound much better. Thanx and stay well! Mel – Hide quoted text — Show quoted text -I’m still really new to this group so I don’t know if I’m just repeating things that everybody else has been through.  But after finding several interesting articles on DSMO and Crohns/Colitis.  I really thought I should try it. After the first three days,  my flare up has calmed down a whole bunch ( I mean alot!) and I’ve also elliminated a back pain that I’ve dealt with for the past year.  Although I have to admit..  the gel does burn a little.  Am I missing something here because there’s only a few messages even mentioning it?

Response:

I grabbed a jar of the DSMO at the health food store.  It was around the MSM. And it’s pretty cheap. It looks like it can be ordered through animal supply catologues because they use it for horses as a muscle ointment.  It’s interesting.  I keep finding more articles on it.  I decided to do the vit B12 and folic acid combo but I’m not doing that topically like the cream.  I have a history of fitness training and massage therapy and it sort of makes sense the more I look into it.  In fact, this morning I went to the gym and was doing leg squats which puts alot of stress in that region and I came through it excellent.

Response:

Even washing the skin prior to DMSO application can cause problems, because (guess what) soap residue can be carried into the body with the DMSO. If anyone plans on using DMSO as a ‘therapy’, keep in mind that what it can bring ‘into’ the body along with it, can kill you (and that is anything on the skin), or at least make you very very sick. I dont know the odds, but I know it can (and does) happen.  I’m not going to preach, just warn anyone who may not be aware. Andy

Response:

I grabbed a jar of the DSMO at the health food store.  It was around the MSM. And it’s pretty cheap. It looks like it can be ordered through animal supply catologues because they use it for horses as a muscle ointment.  It’s interesting.  I keep finding more articles on it.  I decided to do the vit B12 and folic acid combo but I’m not doing that topically like the cream.  I have a history of fitness training and massage therapy and it sort of makes sense the more I look into it.  In fact, this morning I went to the gym and was doing leg squats which puts alot of stress in that region and I came through it excellent.

Hi, I’m also trying DMSO.. I’m doing really fine now… I’ve gained 2,5 – 3 kilos in about a week since first applying DMSO ! I went down from 72 to 65 and after using DMSO I’m 67,5 – 68 again ! My energy level is a lot higher.. I use pure DMSO (99% pure) and I’ve also dissolved B12 in it… What helps the itching is mixing the DMSO, with 30% water… I clean my stumach using water only (also wash your hands carefully).. Also, when the DMSO has entered your body, apply some water on the places that itch.. The itching is primarily caused by the dehydration.. I also feel like going back to playing tennis and soccer ! I quit doing that some time ago.. As i said before, I’ve also run the stairs like I haven’t done in some time… I’m glad you’ve also used, so I’m not the only person anymore… Thanks, Greetings from the Netherlands, Ed Sources for information : Treating Crohns Disease with DMSO / B12 / Folic Accid http://www.krysalis-sparx.com/crohn.htm Testiomials http://www.krysalis-sparx.com/crohntest.htm Info on DMSO http://www.medical-library.net/sites/_dmso_(dimethylsulfoxide).html Double blind medical study about treating Crohns with DMSO http://www.dmso.org/articles/intestinal/colitis1.htm A study confirming the B12 deficiency in Crohns patients : Study of nutritional status in recently diagnosed patients with inflammatory bowel disease Patients with inflammatory bowel disease (IBD) often have malnutrition, although little is known regarding the nutritional status in patients with recently diagnosed IBD. This investigation aimed to study the nutritional status of this population, and included 69 IBD patients (23 with Crohn_s disease [CD] and 46 with ulcerative colitis [UC]) and 69 age- and sex-matched population controls. The following parameters were used to assess their nutritional status: (1) body composition (anthropometry and dual-energy X-ray absorptiometry); (2) dietary intake (dietary history); (3) biochemical indexes of nutrition; and (4) muscle strength (isokinetic dynamometer). The results showed that UC patients had lower body weight and body mass index than controls; the mean daily intake of carbohydrates was higher in CD patients than controls, and the intake of protein, calcium, phosphorus and riboflavin was lower in UC patients than controls. When looking at serum concentrations of nutrients such as beta-carotene, magnesium, selenium and zinc, they were significantly lower in UC patients compared with controls. CD patients had significantly lower serum vitamin B12 concentration. Regarding muscle strength, it did not differ between IBD patients and controls. In conclusion, when IBD is diagnosed, the nutritional status is already affected negatively. These results suggest that nutritional supplementation could play a role regarding the clinical course of the disease in recently diagnosed IBD patients. (Geerling, B.J. et al. Eur J Clin Nutr 2000; 54(6): 514-521.)

Response:

Have you read this medical study on DMSO and colitis.  Mike F http://www.dmso.org/articles/intestinal/colitis1.htm

Response:

What type of health food store?  I can’t find it anywhere.  Are you in the US? Nick

– Hide quoted text — Show quoted text – I grabbed a jar of the DSMO at the health food store.  It was around the MSM. And it’s pretty cheap. It looks like it can be ordered through animal supply catologues because they use it for horses as a muscle ointment.  It’s interesting.  I keep finding more articles on it.  I decided to do the vit B12 and folic acid combo but I’m not doing that topically like the cream.  I have a history of fitness training and massage therapy and it sort of makes sense the more I look into it.  In fact, this morning I went to the gym and was doing leg squats which puts alot of stress in that region and I came through it excellent.

Response:

From what I’ve read, DSMO can be used by itself or be used as a vehicle for getting other substances through the skin and into the system.  But I’ve also read that for this reason, there is the potential for it to introduce undesirable foreign substances (ie. bacteria).  My warning would be to carefully wash the skin prior to applying the DSMO.  I tried it years ago but the irritation was too much. Diana   CD ‘81

Response: