My Crohn's and Colitis Blog » Chron's Disease » To David
To David
Question:
(FlyLikeAnEa…@United.Com) writes:
Hi Chloe, Yikes… Have they recalled the products, though…? We’re in the process of identifying the customers. It looks like six to eight weeks of installs are bad. The fix should be simple enough that most customers could be talked through it. There is no doubt that we will fix the problem.
Goodie, then….At least you won’t have to worry about poeple being injured…
That’s nice! To know friends do not forget us and are there thinking of us… Though it might make you wish even more to be closer to them…. Is there no possibility of tranfers with your job/work field that woudl get you closer to "home"…? A transfer would be unlikely. I look for jobs closer to home but none have been a great match thus far. A few have come close and then got hung up on money. I won’t take a 50% pay cut just to get home again. When all the stars line up just right I’ll move on.
It will happen….Just a matter of as you say the "stars lining up". And they will, unless meanwhile you woudl happen to find the love of your life or whatever would suddenly make you want to stay where you are….;-)
Let’s hope you get some income tax return that falls right on time to cover those…. Hehehe. I should start doing my taxes. They are just lying on the living room floor. One of these days I’ll get ambitious and do it all in one or two sittings.
Each time I plan to do them, some new paper comes along to add to them and make me start what I’ve done all over again. Was forst the landlord that ahd not handed me the tax deduction papers yet. When I finally got that, where for soem reason I thought they had to be put on the federal report (we have two to make here, one provincial, one federal, a real pain in the neck:(), I then realized they had to be put on the provincial one, which I ahd entirely finished sure the missing papers were for the federal report. Argh. Had to start all over again., BUT…As I got ready to do it, my sister told me that dental costs can go under "medical" expenses for decuctions too. Say..what? If so, never knew…Gee… That means I got to find out about that before callingmy dentist and asking for the total amounts and statements, as I sure paid one bunch of dollars in dental fees this year! I also have a few hundred dolalrs of medical bills to look at (prescriptiosn in December with that abd flue and the back pain and then the facial nerve acting up…Cost me like 400-600 in one month…:(). Argh. Just when you think you got an easy year for the filing to do, it starts pouring on you… But after I get the info about dental bills, if applicable or not for medical deduction, and where (Provincial? Fed? Both?), I can finally start.. They owe me, so its not liek I;d do it on purpose to send it late or something!!
Thank you for sharing your experience. It was great that you were able to regain above normal hearing.
I did for years, yes. Lately wit the otitis I donlt always hear well. All sounds muffled… Then oen day it just pops where I will relaize I hear better a second or ten, then go away again with the ears acting up… But I donlt think anythign permanent for dammages is occuring, or at least I most certainly hope not…It feels more like occasional congestion "in the ears" on those days….
I’m sure that my new set of ears will make differences that I’ve yet to imagine. Hmm, maybe I should change my pen name to "four ears".
Apparently some of those hearing aids acn be adjusted to even catch sounds in a different room, like across a wall:). You coudl start a private investigator career, maybe!;-):):)
either. That remains. We remain much more able to hear better with the heart, then…In fact, knowign you a bit, I am surprised it never crossed my mind before that you might not hear well: I dunno, I sometimes find that some specific sort of caring and being more attuned to others comes with that, where you certainly showed that caring "tuning" with me… I shoudl ahve known…:) You learned to hear with your heart…. And that will remain as you will ehar better now with your ears,and come and make your life have a richer dimension that you will better be able to participate with and create aroudn you too, for yourself…and for others. So smile, David….You donlt have soemthign less: you just have been granted something *more*!:) I’ve always had a good sense about what people are feeling. You are right though, I’ve probably spent a little more time knowing people here since I couldn’t elsewhere.
Oh, but I did not mean "here" in particular. It will take a while, but you willsee what I mean over time…We keep tending to still look at facial expressions, while we hear better, and in that end up deciphering more things that little facial ticks say, communicate, sort of, where we then maybe can in that pick up faster how this or that person feels as they yet talk about other things, for instance…I dunno….It seems to just be that way, where withjout realizing it, we develop a sort of observation sense to compensate forthe eharing loos,where when some eharing is gained, we remain attuned to those little things just the same, where it then ads up to the "hearing" experience….Its like hearing more than is said, in a way, if you see what I mean….Or reading in expressions and non verbal ways what is said, and in that "hearing" better….? But yep, it does sort of seem to go on with us even in reading, as it stays with us in everythign we live cause it just becomes a part of us, I guess. Experiences that "combine" to make it that way, I dunno how to say exactly what I mean. But I am sure you hear me loud and clear about it anyway!:) I’ve been around asl
for years. Usually I just emailed and helped where I could. Now that I need to talk to the group too its been nice to talk to everyone.
I think th4e ng is in fact best efficient for oen if one both gives *and takes* support. I sure have my ups and downs… Some find me too giddy rosy:), some too dramatic, depending on what post they read or…waht they "hear" . But I like to share both moods, in case one helps someone somewhere, even if just to offer a smile, even if just one would smile once, that already is a little soemthgn that can help, right…? And I take support too, in exchanging back and forth in post replies and emails…in my less rosy moments as well:). Maybe it is projection on my part, but I noticed I am in fact more at ease to take support from soemoen that also does take some at times… Else I’d feel preached at or woudl feel uneasy in some strange way… After all, not everyoen is here lookign for advice at all! Many are here just for company, or cyber friendships, where in friendship, two happen to help without counting the turns and without it being a help relationship. I tend to dislike help relationship, maybe cause I ahd too many of those where poeple counted on me for help, where I came here exactly hoping to find a two way thing with a person here or there… I’m not a helper, notr a helpee I guess si what I eman, just a lonely one writing with other lonely ones in hope we feel less lonely by doing so, simply:). But not just others!! Me too!!!!:)
Tsst! Just a little suggestion here: chose the son you want to hear forst after you ahve your hearign aids!! I’ve been thinking about it. I’ll probably listen to something by the Manhiem Steamroller. They were my favorite group for a long time. I have all their CDs. Actually I bought the CDs with my big stereo. I have a few more CDs now, but not all that much more. They play classical music to a rock beat on modern and classical instruments. I love the syncapation and depth of the songs. I know them very well by heart. It might be nice to relive one of the songs again and hear the parts I’ve forgotten.
I don’t *think* I ever heard them…. But me and names and group names and all that…. I once told a friend I did not know who baccarach was at all. I did not either, but …he one day started writing lyrics and I went on answerign with the rest. After he did that maybe 6 time,s he went "I thought you said you did NOT know Bacharach!". Well, no, I did not. But I knew those songs!! L:) Names ring no bell with me….Though I work hard to try and get better at that….And lately, sicne just maybe two months, soemtimes I can remember names!!!:)
The forst oen I heard was the Rolling Stone’s
"Satisfaction"…
"Satisfaction" is a great tune to dance to. I love to turn up the music and dance too. I feel the beat and syncapation and let it drive me. I never could dance like others, just to the beat.
Of course!!!!!! You love to dance too!!!!!!!!:) See, another thing that I think might be due to our FEELING music and not just hearing it!!:) We have to feel the drums and bass! Even eharign better, I just donlt liek to dance unless I can FEEL the music physically under my feet (love to dance barefoot then!:)) and in my thorax/ribcage…:)
So pay attention to what song you’ll listen to forst after you get your eharing aids, as it will stay with you all the rest fo your life. You woudl not want it to be Frere Jacques, right?LOL:) Don’t even think it!
Be sure to have the song you want to listen to next to you… Chpose one you know you;d never tire of, and woudl need to cheer you through life, oen that woudl bring joy each time you;d hear it again anywhere. Cause again, I can not ehar Satisfaction without reliving the moment and lovign it!:) Smiling THAT big, celebrating….Making "a joyful noise":). You woudl not want to get out of the dr with your new hearing aids on and be caught by the muzak in he elevator!!!! Right?:) – Hide quoted text — Show quoted text -
I might also listen to "Dr. Demento". Its a radio show that features
… read more »
Response:
Hi Chloe,
Yikes… Have they recalled the products, though…?
We’re in the process of identifying the customers. It looks like six to eight weeks of installs are bad. The fix should be simple enough that most customers could be talked through it. There is no doubt that we will fix the problem.
That’s nice! To know friends do not forget us and are there thinking of us… Though it might make you wish even more to be closer to them…. Is there no possibility of tranfers with your job/work field that woudl get you closer to "home"…?
A transfer would be unlikely. I look for jobs closer to home but none have been a great match thus far. A few have come close and then got hung up on money. I won’t take a 50% pay cut just to get home again. When all the stars line up just right I’ll move on.
Let’s hope you get some income tax return that falls right on time to cover those….
Hehehe. I should start doing my taxes. They are just lying on the living room floor. One of these days I’ll get ambitious and do it all in one or two sittings.
BTW, I was deaf at some point in my childhood up to age nine. No one kows
Thank you for sharing your experience. It was great that you were able to regain above normal hearing. I’m sure that my new set of ears will make differences that I’ve yet to imagine. Hmm, maybe I should change my pen name to "four ears".
either. That remains. We remain much more able to hear better with the heart, then…In fact, knowign you a bit, I am surprised it never crossed my mind before that you might not hear well: I dunno, I sometimes find that some specific sort of caring and being more attuned to others comes with that, where you certainly showed that caring "tuning" with me… I shoudl ahve known…:) You learned to hear with your heart…. And that will remain as you will ehar better now with your ears,and come and make your life have a richer dimension that you will better be able to participate with and create aroudn you too, for yourself…and for others. So smile, David….You donlt have soemthign less: you just have been granted something *more*!:)
I’ve always had a good sense about what people are feeling. You are right though, I’ve probably spent a little more time knowing people here since I couldn’t elsewhere. I’ve been around asl for years. Usually I just emailed and helped where I could. Now that I need to talk to the group too its been nice to talk to everyone.
Tsst! Just a little suggestion here: chose the son you want to hear forst after you ahve your hearign aids!!
I’ve been thinking about it. I’ll probably listen to something by the Manhiem Steamroller. They were my favorite group for a long time. I have all their CDs. Actually I bought the CDs with my big stereo. I have a few more CDs now, but not all that much more. They play classical music to a rock beat on modern and classical instruments. I love the syncapation and depth of the songs. I know them very well by heart. It might be nice to relive one of the songs again and hear the parts I’ve forgotten.
The forst oen I heard was the Rolling Stone’s "Satisfaction"…
"Satisfaction" is a great tune to dance to. I love to turn up the music and dance too. I feel the beat and syncapation and let it drive me. I never could dance like others, just to the beat.
So pay attention to what song you’ll listen to forst after you get your eharing aids, as it will stay with you all the rest fo your life. You woudl not want it to be Frere Jacques, right?LOL:)
Don’t even think it! I might also listen to "Dr. Demento". Its a radio show that features parodies of songs. I don’t listen very often since it is on late at night and I can only hear it while in my car a few miles up the road.
What woudl be your favorite drink, then…?:)
I’m hooked on something called Diet Mountain Dew. I was hooked on the sugared Mountain Dew at about six years old when I was home sick. I won a six pack from a kids show. Over the years it and Pepsi stuck with me. Around my college years one a day wasn’t enough and my taste for milk turned to soda. Now it seems my daily supply of water is nothing but caffinated pop. BTW, the caffiene doesn’t bother me one way or the other. I suppose my system just has too much of it to care about a little extra now and then. The last few months we’ve installed water coolers at work. I have been drinking water at work trying to reverse the trend. Someday they’ll say the stuff is bad for me.
I’ll have a big Easter Bunny this year! A penpal is visiting for Easter and the following week!:) A very enjoyable one at it!:)
That is great. You need to get ready. Easter will be here soon. Thanks for adding to my novel. I’m off to make some supper. At least my stove doesn’t burn everything. However, I do tend to burn stuff when I get online! Good evening, David
Response:
Hi Chloe, I couldn’t sleep. Today was hectic. Work was a challange diagnosing a customer problem. It turned out ot be a major snafu for someone — yet to be discovered. We shipped a bunch of products with only half their memory chips in them. Okay, sounds simple enough, but when these devices fail someone may get hurt. I’ve been trying not to worry but perhaps on some level I am. My friends have stayed in touch a little more. Little phone calls to talk and stuff like that. I think they are using up the last of their calling card. Some of our mutual friends who didn’t vacation this year have been writing emails. So it has helped a little. I spent part of the day bummed that I was having hearing problems. The Dr. confirmed just how bad my hearing is. At least I know where to set the balance and volume controls for the stereo in the car. My first aids will come just after Easter. I don’t know how I’ll pay for them but I’ll manage. I just hope they work well. Mostly I’ve been feeling pretty good. The weather is shaping up here. I enjoy having a nice sunny day — even though I work in a building without any windows. I always go out for lunch just to see the sun. Lately I’ve been coming home for lunch every day. Tomorrow (today) I’ll be eating with the rest of my group. We’re saying good-bye to a co-worker who decided it was time to move on. He developed Chron’s disease recently so that may be part of his decision. I don’t know him that well. Part of that hearing thing again (we’ve done lunch a couple times) and we don’t talk often since I’m on a team by myself. I’m having a mid-night soda (diet, lots of caffene) as my refreshment. I used to kid my dad that I wasn’t old enough to drink coffee. I just never developed the taste for it. I’ve had a few mocha lattes (or whatever they’re called) more than I’ve had coffee. I’m just not into hot drinks. That said, I’ll join yo for coffee anytime, so long as I can bring my own beverage. Easter I’ll be home to my mother’s and brother’s house for a couple days. No vacation left, but I can afford the ticket home for the weekend (4 days). Minus the travel that leaves 48 hours of visiting time. Short but sweet. My nephew (10 this Friday) emailed and wondered when I’d visit again. I was glad to tell him just a couple weeks. He’s more into the Nintendo stuff than talking with me, but he likes to visit and greet me at the airport. My brother picks me up. My mom isn’t up to walking, let alone driving. Her car doesn’t get much use. I do a lot of chores for her while I’m there. It would be nice if I could live closer. I’m glad my brother lives nearby her. I lived near my parents a few years back, before my dad died. That was before my brother moved home. Its odd that we traded places like that. I helped take care of my mom and dad while my dad was sick with cancer. It was a long couple years. Well, this is turning into a novel and I need my rest. One more half cup of soda and I’ll go back to bed. Good night Chloe, David On Wed, 13 Mar 2002 23:52:37 UTC, bc…@FreeNet.Carleton.CA (Eleonore – Hide quoted text — Show quoted text -Beaudoin) wrote:
Mult apologies for my being so late to get back in touch with you. Had many things happenign int he last two weeks, one being troubles with my web access…. Got some smiles to return though!:) And a few more just as a bonus;-)
Hope you are feelign better…I read your post where you seemed real down…. Is the weather finally turning over there? We had our forst real spring like day today! That is,m we had many in Jan and first week of Feb, actually, but then all went yuk, cold and grey… I hope your weather is nice…It must be hard after hollidays with friends to come back to an empty home and miss them and wodner why you are where you are, and they, all togehter in that town where you used to live before…. Hope your week picks up soon for you! Hug, Chloe
—
Response:
Hi, David!:) (FlyLikeAnEa…@United.Com) writes:
Hi Chloe, I couldn’t sleep. Today was hectic. Work was a challange diagnosing a customer problem. It turned out ot be a major snafu for someone — yet to be discovered. We shipped a bunch of products with only half their memory chips in them. Okay, sounds simple enough, but when these devices fail someone may get hurt. I’ve been trying not to worry but perhaps on some level I am.
Yikes… Have they recalled the products, though…? Sounds like one hectic day all right…. Hope all will be solved and smooth by the week end, so that you can rest and relax and enjoy…. Me thinks you could use a bit of enjoyment….
My friends have stayed in touch a little more. Little phone calls to talk and stuff like that. I think they are using up the last of their calling card. Some of our mutual friends who didn’t vacation this year have been writing emails. So it has helped a little.
That’s nice! To know friends do not forget us and are there thinking of us… Though it might make you wish even more to be closer to them…. Is there no possibility of tranfers with your job/work field that woudl get you closer to "home"…?
I spent part of the day bummed that I was having hearing problems. The Dr. confirmed just how bad my hearing is. At least I know where to set the balance and volume controls for the stereo in the car. My first aids will come just after Easter. I don’t know how I’ll pay for them but I’ll manage. I just hope they work well.
Let’s hope you get some income tax return that falls right on time to cover those…. BTW, I was deaf at some point in my childhood up to age nine. No one kows for sure when it started. I heard fine then less then did not hear, but I dunno, I guess I did not even realize soemthign was happening while it took plac,e nor anyone around me. I heard very low sounds, nothign else. Sounds that did vibrate say. Cars or drums and bass and my dad’s big low voice for a bit of it. It just sounded totally muffled though..Cpomparable to him talking with his hand clamped tight over his mouth, say… Looking back, I know I became a total loner at a point. I coudl not play ball with other kids in the school yard, I ahd not a clue what the rules were, what this was that they were doing runnign in all directions from the ball within lines on the pavement they woudl draw with chalk… I remember I spent recesses with my hnads behind my back, my back to a wall. I now know it was so that no one would bump into me. I was constantly bumped in from all sides…I read on lips…Things at school were hard that year, where I feel on one mean teacher and where that was enough on its own to make me feel like aloning myself, or so I felt then, but now I know that not hearing surely did not help…I soent my week ends walking alone around our house, on the shade side where no one ever went, just a few feet there before the neighbor’s fence, but no risk of being bumped in. Then one day a teacher from another grade came so kindly to me…I coudl see she was saying it was not normal for me to stay there, against the wall, where she then gently unglued me fromt hat wall and brought me in the middle of the playing lines where the ball was flying everywhere, a basket ball, and where I did not know what to do….Lost… Trying to run when I saw them run, going out of the lines, seing faces laugh at me…Being pushed gently again in the lines by that teacher, then wham. A mini miracle…The basket ball his my head, right on my left ear, soooo hard, it burnt and the wind and ressure it made hurt the inner ear as well…Suddenly I was on my knees, holding my *two* ears with both hands, pressing on them…Sound was getting in and it hurt, I did not know what it was but it was terribly disturbing…Way too loud, it felt like, I;d say now. Way way too loud! That teacher then took me out of there and was talkign to me but I was just even more lost…Had I done wrong? Was shew scolding me? Not she seemed worried….She tried to remove my hands from my ears to see if I was okay, but I’d automatically forwn and press my hands strongly against my ears….To stop the pain of "hearing too loud". Noises were"killing" me, it hurt like mad, when sounds hit the ears…Way too loud! But I did not know about "loud, louder, too loud" and did not know what was happening… I spoent thenect three days like this…Until my parents started worrying seing me constantly walk and do everythign all I coudl with my hands on my ears…Mom tried to remove my hands, I;d put them back clamped on my ears the second she woudl talk… But I heard her say to dad there was somethign wrong with me and they needed tob get me to a dr…They did get me t a specialist that checked my eras with sounds, froma cute to low, and declared I ahd very fine hearing, better than the average "best" and that I’d do great in music, apparently being able to discern sounds that were only 1/16th of a note higher or lower than others…I thought the pain "went away" in the next days, but I guess I just got used to hearing normally. All this to tell you that I can certainly relate to how not hearing well can make one feel apart and be isolated without even their realizing so… Where what we then do not realize is also the difference hearing makes, for having gradually forgotten about it….Where if you feel bad that your eharing is low, think of this: it was low before the dr told you. It already was affecting you, and the diagnoistic, as much as it can be disturbing, yet is a chance at knowign what is wrong and making things better. It’s never a pleasant idea to think we have to wear prothesis… Makes us feel different, sometimes even "lessened"… But I can assure you this: a worl is ahead of you that you had forgotten… havign forgotten all about! A new dimension will be added to your daily life and come and enhance your place in the world and your participation in it, and alleviate the alonement, to create a word, in ways you might imagine but still have to embrace and discover ahead… It is not a bad thing, far from it!:) And after not eharing well, one that hears better again has one big life experience that follws them forever: in the time we do not ehar well, we learn to read people’s facial expressiosn way more, without realizing it either. That remains. We remain much more able to hear better with the heart, then…In fact, knowign you a bit, I am surprised it never crossed my mind before that you might not hear well: I dunno, I sometimes find that some specific sort of caring and being more attuned to others comes with that, where you certainly showed that caring "tuning" with me… I shoudl ahve known…:) You learned to hear with your heart…. And that will remain as you will ehar better now with your ears,and come and make your life have a richer dimension that you will better be able to participate with and create aroudn you too, for yourself…and for others. So smile, David….You donlt have soemthign less: you just have been granted something *more*!:)
Mostly I’ve been feeling pretty good. The weather is shaping up
here. I enjoy having a nice sunny day — even though I work in a building without any windows. I always go out for lunch just to see the sun.
Good that you do that. It helps the mind to stay more alert. They shoudl not allow people to work in buildings without windows… In fact there are laws here against it…I dunno about the US, though… But still, most factories are without windows here…Save in the boss’s office of course;-) Lately I’ve been coming home for lunch every day.
Tomorrow (today) I’ll be eating with the rest of my group. We’re saying good-bye to a co-worker who decided it was time to move on. He developed Chron’s disease recently so that may be part of his decision. I don’t know him that well. Part of that hearing thing again (we’ve done lunch a couple times) and we don’t talk often since I’m on a team by myself.
Perhaps hearing better will happen to make that change of its own effect, never know!;-)… Sorry about the colleague who suffers from Chron’s…Ouch…:(…. Yesterday, I went out for a coffee and the papers, and a couple sitting next to me were tellign me all about how theur dayughter has been so ill sicne months and hwo a dr recently came up with a Chron’s disease diagnostic…The parents did not seem too aware of what it was, ad refusing the diagnostic…I hoped the dagnostic was wrong myself… Then she mentioend her daughter used to work there….I know her, as I often went there for my coffee and papers in the past….She is 19…. Sheesh…. But see, hearing, I could listen to the mom and how she felt and maybe offer a bit of support in that, in letting her let some pain out…. Which I could see in her eyeborows, her traits, marked deep as one that is sufferign sicne a while…And which coudl make me start a conversation, just a "nice day, is it not…?:)", where if she wanted she coudl use the occasion to chat and empty a bit of the load….See, you can now live that too, soon, David!:). And the smiles when they leave….and seing they’d like to stay longer…Just for being heard, somethign I was granted to do… And that you are too. With the heart first, THEN with the ears. Now that;’s the best way to make a life much risher than just with the ears first and nothign else chipping in after!;-):) Tsst! Just a little suggestion here: chose the son you want to hear forst after you ahve your hearign aids!! The forst oen I heard was the Rolling Stone’s "Satisfaction"… I ahd never danced….And did not understand dancing save for soemthign social my older borhters and sisters did but that left me thinking grown ups were not well L:). Well…The music completely took me over. Sittign quietly on my chair at home when it started on the radio, I was … read more »
Response:
Mult apologies for my being so late to get back in touch with you. Had many things happenign int he last two weeks, one being troubles with my web access…. Got some smiles to return though!:) And a few more just as a bonus;-) Hope you are feelign better…I read your post where you seemed real down…. Is the weather finally turning over there? We had our forst real spring like day today! That is,m we had many in Jan and first week of Feb, actually, but then all went yuk, cold and grey… I hope your weather is nice…It must be hard after hollidays with friends to come back to an empty home and miss them and wodner why you are where you are, and they, all togehter in that town where you used to live before…. Hope your week picks up soon for you! Hug, Chloe —
Response:
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