Question:
a chance of odds, but my surgery was on May 15th, close to your date of May 18th, but in 1996 Best– Ron "bch m8" <dc…@webtv.net
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Peg, By no means am I always happy…ask anybody here!! And, yes, I’m on anti-depressants. I don’t think they work as good as they used to…probably all the other drugs have weakened the effectiveness. I’m only 4 months into all this…ostomy due to severe Crohn’s with not much small bowel left. I did not want to live when the surgeon called on Valentine’s Day to tell me that he knew I didn’t want to hear it BUT an ostomy was my best shot at a better life. I struggled with the decision for basically 6 yrs. and I’m here to tell you (NEVER thought I’d say this) that YES, MY LIFE IS BETTER!! That’s not to say I don’t have problems. I can’t imagine your experience on the ventilator. I’ve come away from my hospital experience with a terrible fear of surgery and hospitals…to the point where I cry when thinking about it and dream about it…not because of the ostomy, though. Because I was losing so much blood and everyone around me was freaking out and my blood pressure and pulse were totally messed up and I was aware of what everyone was saying and doing (or maybe it’s what they weren’t doing)…total fear. Stick with this group. You’ll learn a lot…much more than any nurse or doctor will ever tell you. Susan (5-18-01…given a 2nd chance)
Response:
Lee, I had chemo and radiation therapy, at the same time, prior to my ostomy surgery. At the end I became very anemic and weak, but everyone reacts differently . I think having both at the same time was too much for me. However the treatments were painless. My radiation was for rectal Ca, so had some radiation burns on the rear, that were a little uncomfortable, but not unbearable. ( Much less discomfort than the rear after surgery) Good luck with your treatment. I have been cancer free for 4 years, so guess it was all worth a little discomfort Sonja.
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Thank you for responding to me . I am going to make an appointment with a clinical social worker as well as a psychiatrist to be evaluated. I can’t seem to stop thinking about being awake on the ventilator without crying. I am usually happy and find myself feeling sorry for myself. It seems that I am chronically sick for the past year. I want to start feeling healthy and get back to work and have a normal life again.
Response:
. I know for sure I am to have radiation treatment, and perhaps chemo. Maybe you have had the same experience. I just want to know what to expect.
Hi Lee, I am a six year cancer survivor. Went through complete regimen of radiation and 18 months of chemo. I’m assuming you had colon cancer? The chemo was not bad at all, just felt kind of yucky and tired, but did not lose hair or become nauseous to the point of vomiting. The radiation made me quite ill, had to be hospitalized twice during the six week regimen. But overall, the experience wasn’t unbearable. Your reaction may be completely different and better/worse than mine. Just know, you can live through it!! Have a good one, Joy
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Thank you so much for your input. You have made me feel better about the treatments. Lee
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You may need an antidepressent, However the biggest help for me was to realize that I was able to do 99% of the activities after surgery that I did before. Once I realized this and did a more and more of those activities I felt a lot better and tiredness went away. To put it bluntly get off your butt and get active. It works. However if the depression does continue get in and see your doctor soon. Wayne – Hide quoted text — Show quoted text -On Fri, 28 Sep 2001 20:31:03 -0400 (EDT), ME…@webtv.net wrote:
I went into the hospital with acute diverticulitis and an intestinal blockage. After 20 days of IV’s I had unexpected surgery, I woke up and found myself on a ventilator. I never realized one could be alert and oriented on a respirator. It was a petrifying experience to say the least. Now I am trying to deal with a colostomy, perforated wounds that are in the process of healing and chronic asthma. After the surgery I went to a rehab hosp. It is 2 months today since the surgery. I’ m home now and so tired of hearing Thank God you came out of surgery". I am really having a difficult time and find myself crying for no reason when I am alone. Has anyone felt like this? When I read the posts you all sound so happy. I’m wondering if I need an antidepressant. Peg
Response:
Have been on ventilator twice now. The first time was after going to theatre for observation due to severe abdominal pain. I was kept under for 13 days as bowel had burst and I had been given no chance of living. I cannot remember the ventilator that time but my family remember it and hated my pleading to take it out. The second time was precautionary because of how ill I had been so I was nor too scared although I did try and talk but to no avail/ – Hide quoted text — Show quoted text –
Response:
damn, i guess i had it easy. i was SO SICK before my surgery, that i needed ritalin to calm me down after surgery. i was so excited to be healthy and not in pain anymore, i was boucing off the walls. i was on zoloft for years pre-surgery. i was off nearly everything except pain killer after it. hang tough and do what you have to do get through the day. Lauren! (take out the "nojunk" to reply) beer drinking, sax playing, baseball junkie on a rampage … beware!
Response:
Its normal to feel out of sorts after a major operation. I remember trying not to look at myself in the mirror. Finally one day after about 3 weeks I took one long look and had a good cry. Now 4 years later I love my body more now then I did when I was sick. Why? Because my skin has a healthy glow now. I can eat food. When things get stressfull I don’t run to the bathroom. I just feel better overall. When you feel better, it shows. So yes I now undress in front of my husband (would not do that when I was sick) and I love to shop at Victoria Secrets. No I don’t look like the models in the ads but I bet I feel better then they do and thats what counts to me. Don’t rush the healing. Take each day as it comes. Do look into meds for depression to help pull you through this. Taking care of yourself is the best thing you can do for yourself and your family. Happy healing. — Susan R. VA
Response:
<ME…@webtv.net
wrote in message
news:774-3BB51647-76@storefull-117.iap.bryant.webtv.net…
I went into the hospital with acute diverticulitis and an intestinal blockage. After 20 days of IV’s I had unexpected surgery, I woke up and found myself on a ventilator. I never realized one could be alert and oriented on a respirator. It was a petrifying experience to say the least. Now I am trying to deal with a colostomy, perforated wounds that are in the process of healing and chronic asthma. After the surgery I went to a rehab hosp. It is 2 months today since the surgery. I’ m home now and so tired of hearing Thank God you came out of surgery". I am really having a difficult time and find myself crying for no reason when I am alone. Has anyone felt like this? When I read the posts you all sound so happy. I’m wondering if I need an antidepressant. Peg
Peg, I want you to know that you’re not alone and that many of us out here hear what you are saying. It IS petrifying. It’s a trauma that doesn’t disappear just because you are home now. You still have a lot to deal with and it will take time. You will get through it, but in your own way and your own time. People who have surgery without complications, go home & recover, are fortunate. People mean well when they say "Thank God you came out of the surgery", some times they don’t know what else to say. The implication, after what you have been through that no one understands, is that since you are home and it’s 2 mos post-op, that you must be "all better now". So, why aren’t you acting like you’re all better? Another good one is the stand-by, "She/he came through the surgery fine!", which actually means the patient didn’t *%#@ die. Take all the help you can get or feel comfortable with during this time. Don’t discount your own feelings and don’t let anyone else discount them. You lived through a horrifying ordeal and you deserve to find your OWN way to deal with it. It’s an emotional time after what you’ve experienced. Family and friends told me some years after, that after most of my surgeries (all with complications), especially after the ones with long periods in ICU, that I cried in my sleep. Deep down, a deep cry they said. I never knew that. But I’m glad I was able to keep crying the trauma out. Crying is good & make sure one of your drs know just how you are feeling and what you going through emotionally. Some of us on this ng have adverse reactions to most medications so I couldn’t take anti-depressants but as you see from the replies here they have helped large numbers of people on this newsgroup. What you need now is good support and a good ET. There is strong support on this group and you know where we are. Concentrate on people who ARE supportive and helpful. You need all your energies to heal and get through this. What you do not need is to have to explain why you aren’t out dancing yet. Try to surround yourself only with people who are positive for you. (I know, easier said….) You WILL be happy again. And you will feel joy. And this will end up way back in your past. Even if you can’t imagine it yet, just know it’s there, in the background. The first day you have a second or two when you are not in pain or you feel encouraged by something, you’ll know it’s started, and that more moments like that are coming, and the moments will become hours, then days. It’s the little things that give you hope in the beginning. Every single day is different. Do what you have to do and get all the support you can. Keep us posted if you feel up to it, Peg. NewzD…@NOSPAMyahoo.com remove NOSPAM to reply —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! Check out our new Unlimited Server. No Download or Time Limits! —–== Over 80,000 Newsgroups – 19 Different Servers! ==—–
Response:
Vince Puma <snick…@aug.com
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Thanks for the advice & support, Chuck, but I’ve tried every class of antidepressants at varying dosage levels in varying combinations and singularly, just about every permutation you could imagine, but alas, I’m one of those folks who is highly sensitive to meds overall. Ever read the PDR where it mentions the side-effects that less that 1% of the population experiences? Well, guess what? Now you know one of that 1%! (I even
added
one to Asacol a few years back. . . .) Thanks again. Vince
Vince, same here. Highly sensitive, that’s exactly what it is. In trying a medication I take just a quarter of a pill, never an entire dose so the reaction isn’t as bad if there is one. About the only thing left that doesn’t come in a capsule is my folic acid and plain tylenol. If I ever need sulfa or steroids again I’m SOL. How do you get antibiotics if you need them? I’m allergic to penicillin and just about everything these days has some form of it. I didn’t realize Cipro is included in that. The dr who rx’d it insisted that it was okay to take. The pharmacist insisted it had PCN properties. I touched a Cipro with a finger then put the finger on my tongue and my lips immediately started to swell. I kept washing it off but my throat did get tight too. Not all meds cause anaphylaxis, some are the adverse reactions from being highly sensitive to them. I wonder why it is that some of us are in that 1%. It can’t be gut related because there are others in that 1% who have no gut prob history. IIRC, your ostomy is not from UC or CD. I had UC. NewzD…@NOSPAMyahoo.com remove NOSPAM to reply —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! Check out our new Unlimited Server. No Download or Time Limits! —–== Over 80,000 Newsgroups – 19 Different Servers! ==—–
Response:
Thanks for the advice & support, Chuck, but I’ve tried every class of antidepressants at varying dosage levels in varying combinations and singularly, just about every permutation you could imagine, but alas, I’m one of those folks who is highly sensitive to meds overall. Ever read the PDR where it mentions the side-effects that less that 1% of the population experiences? Well, guess what? Now you know one of that 1%! (I even added one to Asacol a few years back. . . .) Thanks again. Vince "C. Berlin" <cberl…@pitt.edu
wrote in message
news:9p5a6n$oai@dispatch.concentric.net… – Hide quoted text — Show quoted text -> Dear Vince, > Interactions between antidepressants and other meds including > heart meds are pretty well defined at this point, and there are a > variety of antidepressant meds that have no significant > interactions with heart meds. You may well have other reasons to > not want or need antidepressant meds, but if the interaction > concerns are the main reason you’ve not pursued pharmacologic > help with this, you might want to consult with a knowledgeable > psychiatrist (or your cardiologist) about this. Meds or not, > however, individual therapy or a support group is almost always a > good idea. > Best regards, Chuck B. > "Vince Puma" <snick…@aug.com
wrote in message
> news:trc0h3k24e517c@corp.supernews.com… > > The only reason I’m not taking antidepressants is that they > interact with my > > heart meds, so I’ve been in therapy for a while now. Yeah, > clinical > > depression happens, and when it hits, it’s certainly best to > get help. Life > > is better, no doubt, but those downtimes can get really > paralyzing. Go > > ahead and get the help that you need. > > Peace, > > Vince > > <ME…@webtv.net
wrote in message
> > news:774-3BB51647-76@storefull-117.iap.bryant.webtv.net… > > > I went into the hospital with acute diverticulitis and an > intestinal > > > blockage. After 20 days of IV’s I had unexpected surgery, I > woke up and > > > found myself on a ventilator. I never realized one could be > alert and > > > oriented on a respirator. It was a petrifying experience to > say the > > > least. Now I am trying to deal with a colostomy, perforated > wounds that > > > are in the process of healing and chronic asthma. After the > surgery I > > > went to a rehab hosp. > > > It is 2 months today since the surgery. I’ m home now and > so tired of > > > hearing Thank God you came out of surgery". I am really > having a > > > difficult time and find myself crying for no reason when I am > alone. > > > Has anyone felt like this? > > > When I read the posts you all sound so happy. I’m wondering > if I need > > > an antidepressant. > > > Peg
Response:
Dear Vince, Interactions between antidepressants and other meds including heart meds are pretty well defined at this point, and there are a variety of antidepressant meds that have no significant interactions with heart meds. You may well have other reasons to not want or need antidepressant meds, but if the interaction concerns are the main reason you’ve not pursued pharmacologic help with this, you might want to consult with a knowledgeable psychiatrist (or your cardiologist) about this. Meds or not, however, individual therapy or a support group is almost always a good idea. Best regards, Chuck B. "Vince Puma" <snick…@aug.com
wrote in message
news:trc0h3k24e517c@corp.supernews.com… – Hide quoted text — Show quoted text -
The only reason I’m not taking antidepressants is that they
interact with my
heart meds, so I’ve been in therapy for a while now. Yeah,
clinical
depression happens, and when it hits, it’s certainly best to
get help. Life
is better, no doubt, but those downtimes can get really
paralyzing. Go > ahead and get the help that you need. > Peace, > Vince > <ME…@webtv.net
wrote in message
> news:774-3BB51647-76@storefull-117.iap.bryant.webtv.net… > > I went into the hospital with acute diverticulitis and an intestinal
blockage. After 20 days of IV’s I had unexpected surgery, I
woke up and
found myself on a ventilator. I never realized one could be
alert and
oriented on a respirator. It was a petrifying experience to
say the
least. Now I am trying to deal with a colostomy, perforated
wounds that
are in the process of healing and chronic asthma. After the
surgery I
went to a rehab hosp. It is 2 months today since the surgery. I’ m home now and
so tired of
hearing Thank God you came out of surgery". I am really
having a
difficult time and find myself crying for no reason when I am
alone.
Has anyone felt like this? When I read the posts you all sound so happy. I’m wondering
if I need
an antidepressant. Peg
Response:
In addition to possibly benefitting from an anti-depressent, you need to find somebody to talk to about your feelings and fears. You need to talk, and talk, and talk about them. If you can’t find a friend who will listen to you over and over again, find a good social worker or psychotherapist and pay them to listen to you. Life WILL get better, but this type of experience is not one that you just brush off and walk away from. It stays with you forever. Yes, most of us on this newsgroup are pretty happy (generally much happier than those on the Crohns & Colitis newsgroup who haven’t had surgery), but we all have our scars — and they aren’t just physical one’s either. Keep talking and keep writing.
Response:
I am manic depressive too!!!!! I think my long time use of steroids contributed to my highs and lows
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The only reason I’m not taking antidepressants is that they interact with my heart meds, so I’ve been in therapy for a while now. Yeah, clinical depression happens, and when it hits, it’s certainly best to get help. Life is better, no doubt, but those downtimes can get really paralyzing. Go ahead and get the help that you need. Peace, Vince <ME…@webtv.net
wrote in message
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I went into the hospital with acute diverticulitis and an intestinal blockage. After 20 days of IV’s I had unexpected surgery, I woke up and found myself on a ventilator. I never realized one could be alert and oriented on a respirator. It was a petrifying experience to say the least. Now I am trying to deal with a colostomy, perforated wounds that are in the process of healing and chronic asthma. After the surgery I went to a rehab hosp. It is 2 months today since the surgery. I’ m home now and so tired of hearing Thank God you came out of surgery". I am really having a difficult time and find myself crying for no reason when I am alone. Has anyone felt like this? When I read the posts you all sound so happy. I’m wondering if I need an antidepressant. Peg
Response:
Hi all, I was operated the beginning of June for a colostomy and then gall bladder 5 days later. Has anyone in the group had treatments for cancer? My surgeon has turned me over to my oncologist now to start treatment since all my wounds have healed. I know for sure I am to have radiation treatment, and perhaps chemo. Maybe you have had the same experience. I just want to know what to expect. Thank you in advance for any input, Lee
Response:
Anti-depressants here too. :) I can identify with that ventilator thing too ! I woke from surgery a couple of weeks ago with that tube down my throat and panicked big time! I’m not sure if it was connected to the ventilator, but I assume it was. I clearly remember them telling me that I could come off of it as soon as I had some muscle control and I couldnt’ hold my hand up by myself. I dont’ think you are supposed to remember that part LOL I think I was panicking a lot because someone finally said to take it out. What a scary thing that I hope never happens again ! I have a colostomy due to diverticulitis too
We have a club for it on yahoo, it’s kind of inactive right now, but I try ! *G* http://clubs.yahoo.com/clubs/diverticulosis Is yours permanent or temporary ? <ME…@webtv.net
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I went into the hospital with acute diverticulitis and an intestinal blockage. After 20 days of IV’s I had unexpected surgery, I woke up and found myself on a ventilator. I never realized one could be alert and oriented on a respirator. It was a petrifying experience to say the least. Now I am trying to deal with a colostomy, perforated wounds that are in the process of healing and chronic asthma. After the surgery I went to a rehab hosp. It is 2 months today since the surgery. I’ m home now and so tired of hearing Thank God you came out of surgery". I am really having a difficult time and find myself crying for no reason when I am alone. Has anyone felt like this? When I read the posts you all sound so happy. I’m wondering if I need an antidepressant. Peg
Response:
When I had my surgery, I almost bled to death on the table. They told me that it would take one and a half hrs. and it took five hrs.(for two hrs. I had zero blood pressure). I had 27 units of blood pumped in me- the body holds 11.We all deal with things in different ways. I try to use my sense of humor to get me thru it. I’ve had alot of tears, too.Don’t be afraid to try some anti-depressants.Sounds to me that you’re just a little "lost" right now.It can be so overwhelming at times.God bless you Peg, Suzanne (Suzzer) <ME…@webtv.net
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I went into the hospital with acute diverticulitis and an intestinal blockage. After 20 days of IV’s I had unexpected surgery, I woke up and found myself on a ventilator. I never realized one could be alert and oriented on a respirator. It was a petrifying experience to say the least. Now I am trying to deal with a colostomy, perforated wounds that are in the process of healing and chronic asthma. After the surgery I went to a rehab hosp. It is 2 months today since the surgery. I’ m home now and so tired of hearing Thank God you came out of surgery". I am really having a difficult time and find myself crying for no reason when I am alone. Has anyone felt like this? When I read the posts you all sound so happy. I’m wondering if I need an antidepressant. Peg
Response:
I, too, am on antidepressants…and I still have days that I curse at the fact that I have an ostomy ( I miss being able to be completely naked!)…I am thankful that I am no longer in pain and can lead a more normal life, but I still mourn my old body image…. What you are going thru is normal! God’s grace to you. eMi
Response:
eMi says it for me!! It’s been 6 years since cancer & and an ostomy. I can cry at the drop of a hat. Like you I look in the mirror and wonder at the weird body that stares back. I’m on antidepressants, I think they help sometimes, but not always. To top it all off, I’m a better person. I sympathise with other peoples misfortune more so now than when I was "healthy" . I think of myself as lucky! I’m a mass of contradictions but I’m generally contented. You’ll get use to it. John H(I) "Emily Barrett" <je…@bellsouth.net
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I, too, am on antidepressants…and I still have days that I curse at the fact that I have an ostomy ( I miss being able to be completely naked!)…I am thankful that I am no longer in pain and can lead a more normal life, but I still mourn my old body image…. What you are going thru is normal! God’s grace to you. eMi
Response:
Hi Peg! Glad you found this group. Depression is very normal after surgery. Your mind and body have been through a lot. I was on anti depressants for about 3 months. They help a lot so don’t hesitate to talk to your doctor about it. Love & Peace, Connie
Response:
On Fri, 28 Sep 2001 20:31:03 -0400 (EDT), ME…@webtv.net wrote:
It is 2 months today since the surgery. I’ m home now and so tired of hearing Thank God you came out of surgery". I am really having a difficult time and find myself crying for no reason when I am alone. Has anyone felt like this? When I read the posts you all sound so happy. I’m wondering if I need an antidepressant.
Try them. I think you’ll find many people who outwardly seem the life and soul of the party depend on their little pills. I do! Confession time. On top of my ileostomy I’m a bipolar manic depressive. I couldn’t get by without my daily Seroxat. My body lacks Vitamin B12, so I have weekly injections to top it up. Nobody thinks any the worse of me for that. My brain lacks Serotonin, so I take a pill to top it up. Why should that be any different? If they make you feel better, they’re doing their job. As usual, just my 2 (Euro) cents worth. — Bill
Response:
I went into the hospital with acute diverticulitis and an intestinal blockage. After 20 days of IV’s I had unexpected surgery, I woke up and found myself on a ventilator. I never realized one could be alert and oriented on a respirator. It was a petrifying experience to say the least. Now I am trying to deal with a colostomy, perforated wounds that are in the process of healing and chronic asthma. After the surgery I went to a rehab hosp. It is 2 months today since the surgery. I’ m home now and so tired of hearing Thank God you came out of surgery". I am really having a difficult time and find myself crying for no reason when I am alone. Has anyone felt like this? When I read the posts you all sound so happy. I’m wondering if I need an antidepressant. Peg
Response:
Peg, By no means am I always happy…ask anybody here!! And, yes, I’m on anti-depressants. I don’t think they work as good as they used to…probably all the other drugs have weakened the effectiveness. I’m only 4 months into all this…ostomy due to severe Crohn’s with not much small bowel left. I did not want to live when the surgeon called on Valentine’s Day to tell me that he knew I didn’t want to hear it BUT an ostomy was my best shot at a better life. I struggled with the decision for basically 6 yrs. and I’m here to tell you (NEVER thought I’d say this) that YES, MY LIFE IS BETTER!! That’s not to say I don’t have problems. I can’t imagine your experience on the ventilator. I’ve come away from my hospital experience with a terrible fear of surgery and hospitals…to the point where I cry when thinking about it and dream about it…not because of the ostomy, though. Because I was losing so much blood and everyone around me was freaking out and my blood pressure and pulse were totally messed up and I was aware of what everyone was saying and doing (or maybe it’s what they weren’t doing)…total fear. Stick with this group. You’ll learn a lot…much more than any nurse or doctor will ever tell you. Susan (5-18-01…given a 2nd chance)
Response: