Posts belonging to Category 'Bronchial Asthma Treatment'

Books on Ayurveda and Alternative Medicine

Question:

Do you have any good books on dog training? no, but if your dog was into…. Philosophy, Religion (Hinduism, Buddhism, Jainism and Christianity) History, Geography, Art, Archaeology, Sociology, Sanskrit, Ayurveda ,Tibetan, Unani, Yoga, they could help….. knowledge is power – growing old is mandatory – growing wise is optional     "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc

Response:

she likes to dig in the dirt.  does that qualify as archaeology?

– Hide quoted text — Show quoted text – Do you have any good books on dog training? no, but if your dog was into…. Philosophy, Religion (Hinduism, Buddhism, Jainism and Christianity) History, Geography, Art, Archaeology, Sociology, Sanskrit, Ayurveda ,Tibetan, Unani, Yoga, they could help….. knowledge is power – growing old is mandatory – growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc

Response:

Do you have any good books on dog training?

Response:

Books on Ayurveda and Alternative Medicine Indian Books Centre Serving The Scholary World Since 1976 Dear Sir/ Madam, Our company is one of the leading publishers and suppliers of books related to Philosophy, Religion (Hinduism, Buddhism, Jainism and Christianity) History, Geography, Art, Archaeology, Sociology, Sanskrit, Ayurveda ,Tibetan, Unani, Yoga and other medicinal therapies. We have over 1000 titles of our own and we stock more than 50,000 titles of well known authors and publishers. Important Books on Ayurveda and Alternative Medicinal Therapies Published under our imprint Sri Satguru Publications New Releases Heart Disorders & Their Care in Ayurveda By Prof. Ajay Kumar Sharma Year 2005 US$ 23 The book "Heart Disorders & Their Care in Ayurveda" Written by the well known author Professor Ajay Kumar harma is a complete and comprehensive treatise on the subject. This is the first book in english which deals with the subject in all completeness and clarity covering all aspects of "Hrdroga" as described in various tretise of Ayurveda. The book contains the following chapters: Cardiology in Ayurveda, Clinical Approach in the Examination of a Cardiac Patient, Laboratory Investigations Recommended in Cardiac Patients, Hrdroga in Ayurveda, Heart Failure, Shock, Inflammatory Diseases of the Heart (Aupsargika Hrdroga, Infective Endocarditis, Hrdaantartwaca sotha), Rheumatic Heart Diseases( Rheumatic Fever, Rheumatoid Arthritis, Ayurvedic Concepts), Ischaemic Heart Diseases- hrchchula, Hyperlipidaemia in Ayurveda, Prevention of Ischaemic Heart Diseases, Hypertension, Introduction to Congenital Heart diseases, Ayurvedic Approach of Dietary Management of Hrdroga, Role of Yoga and Life Style Modification in Preventing Hrdroga, Conditions Warranting a Physician for referring a Patient to Cardiologist, Tips for Preventing Heart Diseases and Prolonging Life Span, Use of Some Herbal Drugs in Cardiovascular Disorders. The Ayurvedic Plants By Dr. P.H. Kulkarni, Dr. Shahida Ansari Year.2004 US$ 66 The book is designed as such that each page contains the details and line drawing of one plant and all plants are arranged alphabetically in ascending order with their scientific names. The Encyclopaedia of Ayurveda By. Prof. Dr. P.H. Kulkarni Year.2005 2 Vols. (Set) US$ 266. About the Author Prof. Dr. P.H Kulkarni is a well known Ayurvedic Physician and Research Guide in Ayurveda , University of Pune. He is the Founder Director of Institute of Indian Medicine/ Ayurveda Academy, Poona and is the editor of seven Medical Journals including ‘Deerghayu International’ . Author of more than twenty five books related to Ayurveda. He worked as Patron, President, Secretary, Treasurer of many Ayurvedic , Medical and Social Organisations at national and international level. Prof. Kulkarnui has established several Ayurvedic Centres around the World and traveled extensively for propogation, education and research in Ayurveda for over two decades . Prof. Kulkarni is recipient of many national and international awards including Pax Mundi Fellowship ( Dag Hammarkjold Awards Committee) for Professional Excellence & Life Time achievement award. Other related titles S.No and Book Details 1. Hindu Practice of Medicine/ K.R.L. Gupta, US$ 13 2. Hindu Anatomy, Physiology, Therapeutics, History of Medicine and Practice of Physics/ K.R.L. Gupta, US$ 13 3. Clinical Application of Ayurvedic Remedies and a List of Ayurvedic Preparations/ Panel of Vaidyas, US$ 13 4. The Diagnosis and Treatment of Svasa(Asthama)/ Dr. S.R. Sudarshhan, US$ 4 5. Colloquies on the Simples and Drugs of India/ G. Orta, US$ 53 6. Science of Sphygmica/ K.R.L. Gupta, US$ 10 7. Madhava Nidana/ Trans. K.R.L. Gupta, US$ 13 8. A Manual of Family Medicine and Hygiene for India/ W. Moore, US$ 40 9. Ayurveda or Hindu System of Medical Science, US$ 8 10. Astanga Sangraha-Sarira Sthana/ Ed. Ramachandra Sastri Kinjavadekara and New Introduction in English by Vaidya Bhagwan Dash, US$ 26 11. Astanga Sangraha-Sutra Sthana/ Ed. Ramachandra Sastri Kinjavadekara and New Introduction in English by Vaidya Bhagwan Dash, US$ 26 12. Astanga Sangraha-Sarira Sthana/ Ed. Ramacandra Sastri Kinjavadekara and New Introduction in English by Vaidya Bhagwan Dash, US$ 26 13. Positive Health in Tibetan Medicine-Vaidya-Jiva-Sutra/ Vaidya Bhagawan Dash & Ven. Doboom Tulku, US$ 10 14. Medicinal Flowers or Pushpayurveda/ Dr.Gyanendra Pandey, US$ 13 15. Gyanendra Enumertio Planta-Medica/ Dr.Sumitra Pandey, US$ 10 16. Child Health Care in Ayurveda/ Dr. Abhimanyu Kumar, US$ 30 17. Pharmacopoeia of Tibetan Medicine/ Vaidya Bhagwan Dash, US$ 40 18. Materia Medica of Tibetan Medicine/ Vaidya Bhagwan Dash, US$ 80 19. Healing and Treatment of Diseases through Water/ Sebastian Kneipp, US$ 20 20. Encyclopaedia of Tibetan Medicine/ Vaidya Bhagwan Dash, Vol.1 to 4 & 6 each US$ 40 and Vol.5 , 7, each US$ 63 21. Uncommon Plants Drugs of Ayurveda/ Dr.Gyanendra Pandey, US$ 40 22. Pharmacopoeial Standards of Herbal Plants/ Dr.C.R. Karnick, 2 Vols.Set, US$ 46 (Set) 23. Vriksayurveda / Tr. N.N. Sarkar, Roma Sircar, US$ 26 24. Principles of Ayurvedic Therapeutics / Dr.A. Vinaya Kumar, US$ 26 25. Medicinal Plants of Himalayas/ Dr. Gyanendra Pandey, Vol.1, US$ 43 26. The Caraka Samhita- English Translation/ A..C. Kaviratna, P. Sharma, 5 Vols. Set, US$ 200 (Set) 27. Studies of Genetic- Complex of Ayurvedic Plants/ Dr. C.R. Karnick, US$ 8 28. Pharmacology of Ayurvedic Medicinal Plants/ Dr. C.R. Karnick, US$ 8 29. Ayurvedic Narcotic Medicinal Plants/ Dr. C.R. Karnick, US$ 26 30. Health Care of Temperaments and Constitutional Defects/ R. Narain, US$ 16 31. Encyclopaedia of Domestic Medicine with Domestic Materia Medica/ Thomas J. Graham, 2 Vols Set, US$ 80 (Set) 32. Naturopathy- The Art of Drugless Healing/ V.M. Kulkarni, US$ 13 33. Some Lesser Known Herbal Drugs in Ayurveda/ Dr. Gyanendra Pandey, US$ 15 34. Tibetan Medicine-Theory & Practice/ Vaidya Bhagwan Dash, US$ 15 35. Hamdard Pharmacopoeia of Eastern Medicine/ Hakim Mohammad Said, US$ 133 36. Agnipuran Ki Ayurvediye Anusandhanatmak Sameeksha (In Hindi) / Dr. Vivekanand Pandey, US$ 40 37. The Science of Pulse Examination in Ayurveda/ Dr.G.P. Upadhyaya, US$ 15 38. Herbal Indian Perfumes and Cosmetics/ Asha Ram, US$ 13 39. A Comparative Study of Ayurveda and Treatment by Indian Drugs/ P.K. Chitale, US$ 23 40. Ayurvedic Clinical Medicine/ A.Vinaya Kumar, US$ 30 41. Tribal Wisdom of Medicinal and Economic Plants ( Uttar Pradesh and Uttaranchal)/ K.K. Singh, Anand Prakash, US$ 26 42. Traditional Medicine of South-East Asia and Indian Medical Science/ Dr.Gyanendra Pandey, US$ 40 43. The Wealth of Indian Alchemy and rolex 50th anniversary submariner replica its Medicinal uses/ Being and English Trans. of Rasajalanidhi/ B. Mukherji, 2 Vols. Set, US$ 66 (Set) 44. The Ayurvedic System of Medicine (Second Revised Ed.)/ Kaviraj Nagendra Nath Sengupta, 2 Vols. Set, US $ 133 (Set) 45. A Glossary of Ayurveda, Tibetan and Unani Medicines , US$ 40 46. Ayurvedic Treatment of Common Diseases/ Dr.M.H. Paranjape, US$ 10 47. Instant and Fast Acting Ayurvedic Treatment / Vaidya S.D.Jalukar, US$ 20 48. Fundamentals of Ayurvedic Medicine (Revised and Enlarged Edition)/ Vaidya Bhagwan Dash, US$ 26 49. Medicinal Flowers of Himalaya / Dr.Gyanandra Pandey, Vol.2, US$ 4 50. Ayurveda Nidan/ Prof.Dr. P.H. Kulkarni, US$ 10 51. Ayurveda Panchakarma/ Prof. Dr. P.H.Kulkarni, US$ 10 52. Ayurveda Philosophy/ Prof. Dr.P.H.Kulkarni, US$ 10 53. Ayurveda Soundaryam ( Towards Beauty ) / Prof. Dr.P.H.Kulkarni, US$ 10 54. Ayurveda Aahar: Food/Diet/ Prof. Dr. P.H.Kulkarni, US$ 13 55. Ayurveda Upchar (Treatment ) / Prof. Dr. P.H.Kulkarni, US$ 10 56. Ayurveda Herbs/ Prof. Dr. P.H.Kulkarni, US$ 10 57. Ayurveda Minerals/ Prof. Dr.P.H.Kulkarni, US$ 10 58. Ayurveda Chikitsa/ Prof.Dr. P.H.Kulkarni, US$ 10 59. Ayurveda Therapy/ Prof. Dr. P.H. Kulkarni, US$ 36 60. Tibetan Medicine/ Trans.by Ven.Rechung Rinpoche , Jampal Kunzang , US$ 53 61. Ayurveda Vistas/ Prof. Dr. P.H.Kulkarni, US$ 16 62. Musing Ayurved/ Prof. Dr. P.H.Kulkarni, US$ 13 63. Heartcare in Ayurved/ Prof. Dr. P.H.Kulkarni, US$ 13 64. Handbook of Clinical Ayurveda Practice/ Prof. Dr. P.H.Kulkarni, US$ 10 65. Panchakarma in Ayurveda/ Ed.Prof. Dr. P.H.Kulkarni, US$ 13 66. Joint Disorders Care in Ayurveda/ Ed.Prof. Dr. P.H.Kulkarni, US$ 13 67. Bronchial Asthma Care in Ayurveda and Holistic Systems/ Ed.Prof. Dr. P.H.Kulkarni, US$ 10 68. Ayurvedic Therapeutics/ Ed. by Prof. Dr. P.H.Kulkarni, US$ 13 69. Ayurved and Hepatic Disorders/ Ed.Prof. Dr. P.H.Kulkarni, US$ 13 70. Secrets of Mind-Body Health Through Holistic Care/ Ed.Prof. Dr. P.H.Kulkarni, US$ 13 71. Child Care in Ancient India from the Perspectives of Development Psychology and Paediatrics/ Dr.Malavika Kapur, Hemalata Mukundan, US$ 13 72. Anticancer Herbal Drugs of India/ Dr.Gyanendra Pandey, US$ 13 73. Piles Care and Treatment in Ayurveda/ Dr. M.Bhaskar Rao, US$ 20 74. Ayurveda for Women/ Prof. Dr. P.H.Kulkarni, US$ 3 75. Common Symptoms Effective Remedies/ Prof . Dr. P.H.Kulkarni, US$ 3 76. KnowAyurveda/ Prof. Dr. P.H.Kulkarni, US$ 3 77. Ayurveda for Child Health Care/ Prof. Dr. P.H.Kulkarni, US$ 13 78. The Vital Force in Health and Disease/ Prof. Dr. S.K.Ramachandra Rao, US$ 10 79. Ayurvedic Aahar:The Scientific Diet/ Prof. Dr. P.H.Kulkarni, US$ 20 80. A Descriptive Glossary of Diseases in Ayurveda/ Dr. S.R. Sudarshan, US$ 33 81. Ayurveda Rejuvenation/ Dr. P.H Kulkarni, US$ 6 82. Ayurveda Virilization/ Dr. P.H. Kulkarni. US$ 6 83. Anti- Leucorrhoel Drugs of Ayurveda/ Gyanendra Pandey, US$ 16 84. Salient Features of Ayurveda/ S.D. Jalukar, US$ 20 85. The Primer of Ayurveda/ Dr. P.H. Kulkarni, US$ 20 86. Anti Aging Herbal Drugs of Ayurveda/ Gyanendra Pandey, US$ 53 87. The Pancakarma … read more »

Response:

am i a freak?

Question:

here a few sites for help with meds. http://www.phrma.org/ http://www.themedicineprogram.com/ hope they help.

Response:

Robert, Thank you , your post was excellent and very informative! I added a few more web sites also, but forgot to mention that before injectable drugs also have three medication programs. Like copaxone. I’ll post the Web sites and phone numbers unless you beat me to it. I also have more pharmaceutical web sites that offer free medications also. Thanks again , Robert

Response:

Hi Jackee What you are describing sounds like MS to me at least clinically. I have been diagnosed with MS off and on for 5 years and now my Neuro finally says I have it only due to the clinical signs. Your not crazy at all…and it is a normal reaction to think it at least it was to me. Can you go to a doctor and get something for fatigue..sounds like your depressed also, so maybe a anti-depressant will help. It will help with the fatigue also. Loss of memory is also a sign…funny for me is that I don’t have a short term memory but my long term memory is coming back…weird. Hang in there and ask any questions you have as there are plenty of people here you can help you come to terms with it. Welcome to the group Jackee Gloria "Jackee" <happeejac…@cableone.net

wrote in message

news:vn70fhgolqstc9@corp.supernews.com… – Hide quoted text — Show quoted text -

Hi everyone, I have never posted here before, just been peaking in for a month or so to see what is out there.  I need to know if I am crazy.  My diagnosis of ms came on May 4th, 2002 at age 23.  Now 25, I live pretty

much

a normal life.  I experience things that I don’t know if are MS related or not.  Due to money/ insurance I am not seeking any treatment.  Most of the time I am in denial about having it, they only reason I think I might is because of the optic neuritis I had and the numbness in my hands and feet. I always wonder if I was mis-diagnosed, I think that is probably a denial tactic.  I guess I just have some questions for fellow ms’ers.  I have

done

my share of research about MS, but still feel like I need answers from people with it. I get tired, and have a hard time keeping a fast pace for several days in

a

row, ok maybe even one is hard.  My memory is terrible anymore.  I have numbness in my hands, so bad that I ended up losing a hunk of skin off of

my

ring finger by not realizing it was too tight.  I get dizzy, a lot. I get the stutters and sometimes just about cant spit anything out. Are these normal MS things?  I am a freak?  I don’t know, I just want some feedback

if

anyone has some time.

Response:

Robert Did you notice any type of stress when the attack of stuttering came on. I too stutter sometimes..like it is on the tip of my tongue but I can’t get it all out..drives me crazy. Gloria "Robert" <rob…@bellsouth.net

wrote in message

news:u9Ycb.26060$an.8387@bignews6.bellsouth.net… – Hide quoted text — Show quoted text -> "Jackee" <happeejac…@cableone.net

wrote in message

> news:vn70fhgolqstc9@corp.supernews.com… > >  Due to money/ insurance I am not seeking any treatment. > Many of the drug companies have special programs for special-needs people. > Below is a list I got from an MS magazine: > Pfizer offers the Share Card for Medicare recipients who have no > prescription coverage and whose gross income does not exceed $18,000 for > individuals or $24,000 for couples. The card entitles the holder to a flat > rate of $15 for each 30 day supply of any Pfizer prescription drug (except > Celebrex) including Zoloft and Neurontin. Pfizer can be contacted at > 800-717-6005 or www.pfizerforliving.com > Eli Lilly’s LillyAnswersCard has identical income requirements to Pfizer’s.

The card entitles holders to a flat $12 for a month’s supply of a lilly prescription medication, exduding medicines administered by a doctor or in

a

hospital or controlled substances. Contact Eli Lilly at 877-795-4559 or www.lilyanswers.com GlaxoSmithKline offers the Orange Card. The income allowances are $26,000 for singles and $35,000 for couples. Holders save 30% to 40% on all GlaxoSmithKline medications that are not administered by a doctor or in a hospital. GlaxosmithKline can be reached at 888-672-6436 or www.gsk.com Novartis offers the Care Card, which entitles holders to savings of 30-40% off selected outpatient products. The income allowance is approximately $26,000 for individuals and $35,000 for couples. Novartis can be contacted at 888-NOW-NOVA or www.novartis.com The Together Rx card is offered by a consortium of drug manufacturers-including GlaxoSmithKline, Novartis, and five others. As

with

the other cards, you must be enrolled in Medicare to participate and have

no

other prescription coven age. The Together Rx card has income allowances

of

up to $28,000 for singles and $38,000 for couples and offers savings of

20%

to 40%. Call 800-865-7211 or go to www.together-rx.com That may get you started because drug treatment is very important, especially in the early stages of the disease. Catch it quick and do SOMEthing before things go too far seems to be a key. Samples from your doctor are another good idea. the stutters and sometimes just about cant spit anything out. In the period of time before I had a firm diagnosis, I had numbness (made

me

think it was a pinched nerve at first) and some other problems to some degree or another that you mention. The stuttering one was a real puzzler. I, too, had a bout of trying to say something and getting all twisted and not (to me, at least) seeming coherent. I was very distressed by this! Thankfully that only lasted a short time (don’t remember exactly but don’t think it was longer than a month or so) and it’s never happened since.

That

was almost 20 years ago. I hope you seek and are able to obtain some type of treatment to address whatever symptoms you have now and that it will prevent things from

getting

worse or at least slow down any progression. This disease can move at so many different rates for so many different people you just can’t say. Good luck to you. Robert

Response:

Hi Jackee;

I have never posted here before, just been peaking in for a month or so to see what is out there.  I need to know if I am crazy.  My diagnosis of ms came on May 4th, 2002 at age 23.  Now 25, I live pretty much a normal life.  I experience things that I don’t know if are MS related or not.  Due to money/ insurance I am not seeking any treatment.  Most of the time I am in denial about having it, they only reason I think I might is because of the optic neuritis I had and the numbness in my hands and feet. I always wonder if I was mis-diagnosed, I think that is probably a denial tactic.  I guess I just have some questions for fellow ms’ers.  I have done my share of research about MS, but still feel like I need answers from people with it.

No, you are not crazy!  A lot of the things you are experiencing sound like MS to me.  How did you get your diagnosis?  Why do you think it may have been wrong? MS is a weird disease; you can go for years with few or no symptoms. You say you are not getting any treatment because of money and insurance issues, but someone has already posted a list of resources to use.  I would suggest that you look into this.

I get tired, and have a hard time keeping a fast pace for several days in a row, ok maybe even one is hard.  My memory is terrible anymore.  I have numbness in my hands, so bad that I ended up losing a hunk of skin off of my ring finger by not realizing it was too tight.  I get dizzy, a lot. I get the stutters and sometimes just about cant spit anything out. Are these normal MS things?  I am a freak?  I don’t know, I just want some feedback if anyone has some time.

Yes, these are all "normal" for people with MS.  And, no, you are not a freak! Please post again and let us know how you are doing! Sylvia

Response:

In <news:EJRcb.3900$tv1.473582@news02.tsnz.net

,

John Fletcher said: – Hide quoted text — Show quoted text -

I get tired, and have a hard time keeping a fast pace for several days in a row, ok maybe even one is hard.  My memory is terrible anymore.  I have numbness in my hands, so bad that I ended up losing a hunk of skin off of my ring finger by not realizing it was too tight.  I get dizzy, a lot. I get the stutters and sometimes just about cant spit anything out. Are these normal MS things?  I am a freak?  I don’t know, I just want some feedback if anyone has some time. Are you a freak? Now way. All those symptoms are pretty darn normal for MS. I think the best way to help yourself is to think about trying to treat that fatigue symptom if you can. Some of the drugs for it are not that expensive. Ritalin which incidentally binds to the same sites in the brain as Cocaine has been around for 40 years or so. Provigil (Modafinil) Amantadine (Symmetrel) Pemoline (Cylert) Methylphenidate (Ritalin) 4-Aminopyridine (4-AP) Anyone know any other good drugs for fatigue?

Amphetamine (Biphetamine and other trade-names) Dextroamphetamine (Dexedrine) Some MAO-inhibitor and tricyclic antidepressants can be helpful for fatigue in some people (though they can have the opposite effect in others,) and I personally cannot make it through any day that doesn’t begin with a litre of very strong coffee. ((U))   M

Response:

JOHN I find 5 mg of ENADA(NADH) in early morning followed occasionally by 2.5 mg in afternoon eliminates a lot of my fatigue. I also get a Diet PEPSI fix in late afternoon(contains l-phenyalanine). "PHENYLALAINE (Essential Amino Acid) Used by the brain to produce Norepinephrine, a chemical that transmits signals between nerve cells and the brain; keeps you awake & alert; reduces hunger pains; functions as an antidepressant and helps improve memory." Add a little Vinpocetine(a Phosphodiesterase inhibitor (PDI)) and some other PDIs and get yourself a cure for MS. Jack N Dalton P.S. It also helps to add in some Idebenone, lots of CQ10, Alpha Lipoic Acid, R-lipoic acid, Acetyl-L-Carnitine, Gamma E Tocopherols/Tocotrienols and tons of antioxidants. NADH A NEW THERAPEUTIC APPROACH IN CHRONIC FATIGUE SYNDROME (CFS) L.M. Forsyth, M.D.; A.L. MacDowell-Carnciro, M.D.; G.D. Birkmayer, M.D.; Ph.D.; H.G. Preuss, M.D.; and J.A. Bellanti, M.D.; Departments of Pediatrics and Microbiology-Immunology and the Immunology Center, Georgetown University Medical Center, Washington, D.C. Background: Chronic fatigue syndrome (CFS) is a disorder of unknown etiology, consisting of prolonged, debilitating fatigue, and a multitude of symptoms including neurocognitive dysfunction, flu-like symptoms, myalgia, muscle weakness, arthralgia, low-grade fever, sore throat, headache, sleep disturbances, and swelling and tenderness of lymph nodes. No effective treatment for CFS is known. Objective: The purpose of the study was to evaluate the efficacy of the reduced form of nicotinamide adenine dinucleotide (NADH) administered orally in a randomized, double-blind, placebo-control, crossover study in patients with CFS. NADH is known to trigger energy production through ATP generation, which may form the basis of its potential effects. The study drug is ENADA(r) NADH the only stabilized absorbable oral form of NADH a nutritional supplement product. Methods: Twenty-six evaluatable patients who fulfilled the CDC criteria for CFS completed the study. Medical history, physical examination, laboratory studies and questionnaire were obtained at baseline, 4, 8 and 12 weeks. Subjects were randomly assigned to receive either 10 mg of NADH (ENADA(r)) or placebo at week 0 for a four-week period, followed by a four-week wash-out period, followed by a final four-week period in which subjects were crossed to an alternative regimen. Results: No adverse effects were observed related to the study drug. Within this cohort of twenty-six patients, four times more patients responded to NADH (ENADA(r)) compared to placebo. Conclusion: Collectively, the results of this preliminary study indicate that NADH (ENADA(r)) may be an effective therapy in the management of the Chronic Fatigue Syndrome and suggest that further clinical trials be performed to establish its efficacy in this clinically perplexing disorder. The study was published in the February 1999 issue of Annals of Allergy, Asthma and Immunology. Open-Label Study: During a follow-up, open label, pilot study, it was observed that 73% of the subjects achieved marked improvement over time. Therefore, based upon these encouraging results, we have decided to continue the open-label study in a larger cohort of participants. Ibudilast, a Nonselective Phosphodiesterase Inhibitor, Regulates Th1/Th2 Blance and NKT Cell Subset in Patients with Multiple Sclerosis Juan Feng, Tatsuro Misu, Kazuo Fujihara, Sendai, Japan, Saburo Sakoda, Yuji Nakatsuji, Osaka, Japan, Hikoaki Fukaura, Seiji Kikuchi, Kunio Tashiro, Sapporo, Japan, Akio Suzumura, Nagoya, Japan, Naoto Ishii, Kazuo Sugamura, Ichiro Nakashima, Yasuto Itoyama, Sendai, Japan Objective: To investigate the immunoregulatory effects of ibudilast in patients with multiple sclerosis (MS) Background: Multiple sclerosis is an inflammatory demyelinating disease of the central nervous system, and the immunological findings suggest that MS is a helper T cell type 1 (Th1)-dominant condition. Phosphodiesterase inhibitors (PDI) sup press Th1 responses in vitro and in animal studies and are candidate drugs to treat MS. However, much larger doses than those in clinical use and multiple PDI are often needed to achieve the Th1 suppression. Ibudilast, a nonselective PDI, has been administered to patients with stroke and bronchial asthma, and this PDI in relatively small doses ameliorated experimental autoimmune encephalomyelitis (EAE). We studied the effects of ibudilast monotherapy at a clinically applicable dose on Th1/Th2 balance and natural killer T (NKT) cells, a lymphocyte subset shown to suppress EAE, in MS patients. Design/Methods: Eleven patients with relapsing-remitting MS were orally administered ibudilast, 60mg (in 3 divided doses) a day, for 4 weeks. Peripheral blood was collected before and after the therapy. CD4+cells were isolated from the blood with a magnetic cell seperation system (autoMACS), and the purity was over 97%. One g of total RNA extracted from the CD4+cells was reverse-transcribed into cDNA. The cDNA was subjected to real-time PCR (TaqMan method) for interferon (IFN)-,tumor necrosis factor (TNF)-, interleukin (IL)-4 and IL-10, and the PCR products were quantified with ABI PRISM 7700 sequence detection system using a comparative threshold cycle method. -actin was used as a reference. The NKT cell subset (CD3+V24+) was analyzed with a flow cytometer (FACSCalibur). Informed consent was obtained prior to the study, and the study protocol was approved by the Institutional Review Board. Results: One patient had transient palpitation and the administration of ibudilast was discontinued, but the therapy was well tolerated in the rest of the patients. None had a relapse of MS during the therapy. After the therapy, there was a tendency for IFN- and TNF- to be downregulated and for IL-4 and IL-10 to be upregulated, and the IFN-/IL-4 and IFN-/IL-10 ratios decreased significantly (P0.05). The NKT cell subset significantly increased (P0.05) following the therapy. Conclusions: Our study showed that ibudilast monotherapy induced a shift in the cytokine profile from Th1 toward Th2 and increased the NKT cell subset in MS patients. Ibudilast may be promising for the treatment of MS, and it will be necessary to study its clinical effects. 1: Mult Scler 2000 Feb;6(1):56-8Related Articles, Books, LinkOut Drop in relapse rate of MS by combination therapy of three different phosphodiesterase inhibitors. Suzumura A, Nakamuro T, Tamaru T, Takayanagi T. Department of Neurology, Nara Medical University, 840 Shijo-cho, Kashihara, Nara 634-0813, Japan. Phosphodiesterase inhibitors (PDEIs), when used in combination, synergistically suppress TNFalpha production by various cells and also suppress experimental demyelination at very low concentrations. We conducted a pilot study to determine whether the combination of three PDEIs suppresses the relapse of MS at the usual therapeutic doses. Of the 12 relapsing remitting MS, the mean relapse rate/year dropped remarkably (from 3.08+/-3.32 to 0.92+/-1.86) after PDEI treatment. Seven out of 12 (58.3%) were relapse-free in the follow up period (499+/-142 days). The combination of three PDEIs can be safe and useful strategy for the future treatment of MS. – 58 PMID: 10694847 [PubMed - indexed for MEDLINE]

Response:

On Thu, 25 Sep 2003 18:01:54 -0600, "Jackee" <happeejac…@cableone.net

wrote:

|Hi everyone, I have never posted here before, just been peaking in for a |month or so to see what is out there.  I need to know if I am crazy.   Welcome to Freakland!!!!  Your membership card and free t-shirt are already in the mail (just kidding, of course). As many have said before, ask your neurologist about starting one of the CRAB (Copaxone, Rebif, Avonex, or Betaseron) drugs.  These are VERY successful in retarding the progression of Multiple Sclerosis. They are injected drugs, so they do require a regimented requirement on your part. If nothing else, you may gain some peace of mind as far as future exacerbations and disease progression are concerned.  Be warned, though, some neurologists will not prescribe them immediately, because they tend to want to observe you for 6 months to 1 year to see exactly what "type" of MS you have. Your other symptoms would be treated individually.  For most of us, Baclofen is prescribed to cut down on tremors/spasms. That is probably the one drug that most of us have in common.  Depending on your neurologist, you will find that there are prescriptions to help ease or lessen all or most of the symptoms you described. Your fatigue *might* be indicative of some other autoimmune disorder (DON’T QUOTE ME – like Chronic Fatigue Syndrome or Fibromyalgia).  Other specialists would be responsible for the diagnosis of these ailments… not your neurologist… although he/she may refer you to someone who could examine you for these matters.  Autoimmune disorders tend to piggy-back, so it’s rare that you find a person with only one.  (For instance, I have MS, Fibromyalgia, Hypothyroidism, and some other gems.) Hope this helps.  :) Kris Lewis :)  I asked God for strength, and He gave me Richard, my hero, my inspiration, my reason to breathe, and my one true love.

Response:

Agreed – I would have to say that had you not gotten the signs of MS you were sure having some really classic MS problems.  This was how my first few years went.  If you have not and you have the means find a way to get yourself on an abc drug.  They are beneficial in the long run, and I *thought* I had heard that the earlier you start the better. — Laura If ya’ can’t beat ‘em? Join ‘em "John Fletcher" <harvest%20this@%20abuse%40localhost%20.com

wrote in

message news:EJRcb.3900$tv1.473582@news02.tsnz.net… – Hide quoted text — Show quoted text -

I get tired, and have a hard time keeping a fast pace for several days

in a

row, ok maybe even one is hard.  My memory is terrible anymore.  I have numbness in my hands, so bad that I ended up losing a hunk of skin off

of my

ring finger by not realizing it was too tight.  I get dizzy, a lot. I

get

the stutters and sometimes just about cant spit anything out. Are these normal MS things?  I am a freak?  I don’t know, I just want some

feedback if

anyone has some time. Are you a freak? Now way. All those symptoms are pretty darn normal for

MS.

I think the best way to help yourself is to think about trying to treat

that fatigue symptom if you

can. Some of the drugs for it are not that expensive. Ritalin which

incidentally binds to the same – Hide quoted text — Show quoted text -

sites in the brain as Cocaine has been around for 40 years or so. Provigil (Modafinil) Amantadine (Symmetrel) Pemoline (Cylert) Methylphenidate (Ritalin) 4-Aminopyridine (4-AP) Anyone know any other good drugs for fatigue? All the best John

Response:

I would tend to agree with doe… the abc drugs may be an option for you? I had pretty much the same symptoms you describe (some).. the bladder was a hoot to deal with.. :) Betaseron (lottery days) was a savior for about 9 years… I’m surprised your neuro hasn’t suggested… cZ "doe" <the_happy_w…@myrealbox.bom

wrote in message

news:p63db.17193$KJ5.2231@fe2.columbus.rr.com… – Hide quoted text — Show quoted text -

Agreed – I would have to say that had you not gotten the signs of MS you were sure having some really classic MS problems.  This was how my first

few

years went.  If you have not and you have the means find a way to get yourself on an abc drug.  They are beneficial in the long run, and I *thought* I had heard that the earlier you start the better. — Laura If ya’ can’t beat ‘em? Join ‘em "John Fletcher" <harvest%20this@%20abuse%40localhost%20.com wrote in message news:EJRcb.3900$tv1.473582@news02.tsnz.net… I get tired, and have a hard time keeping a fast pace for several days in a row, ok maybe even one is hard.  My memory is terrible anymore.  I

have

numbness in my hands, so bad that I ended up losing a hunk of skin off of my ring finger by not realizing it was too tight.  I get dizzy, a lot. I get the stutters and sometimes just about cant spit anything out. Are

these

normal MS things?  I am a freak?  I don’t know, I just want some feedback if anyone has some time. Are you a freak? Now way. All those symptoms are pretty darn normal for MS. I think the best way to help yourself is to think about trying to treat that fatigue symptom if you can. Some of the drugs for it are not that expensive. Ritalin which incidentally binds to the same sites in the brain as Cocaine has been around for 40 years or so. Provigil (Modafinil) Amantadine (Symmetrel) Pemoline (Cylert) Methylphenidate (Ritalin) 4-Aminopyridine (4-AP) Anyone know any other good drugs for fatigue? All the best John

Response:

"doe" <the_happy_w…@myrealbox.bom

Laura;

If ya’ can’t beat ‘em? Join ‘em

LOL!  This was priceless!  The first time I read your post, I thought, "What’s going on here?  Doe sounds rational!" Maybe we should ALL become a group of "Doe."  The guys here can become "Buck" if they choose, but then Starbucks may sue the lot of us! Too funny! Thanks for making my day! Sylvia the Doe

Response:

In <news:vn70fhgolqstc9@corp.supernews.com

,

Jackee said:

Hi everyone, I have never posted here before, just been peaking in for a month or so to see what is out there.  I need to know if I am crazy.

I’m not qualified to make that diagnosis… but I’ll happily sign an unofficial and unsworn statement if it will help.  :-) (Sorry, I couldn’t resist.  Welcome to the public side of things here, Jackee.)

I get tired, and have a hard time keeping a fast pace for several days in a row, ok maybe even one is hard.  My memory is terrible anymore.  I have numbness in my hands, so bad that I ended up losing a hunk of skin off of my ring finger by not realizing it was too tight.  I get dizzy, a lot. I get the stutters and sometimes just about cant spit anything out. Are these normal MS things?  I am a freak?  I don’t know, I just want some feedback if anyone has some time.

You’re probably not a freak.   These things are all common enough in MS to be called "normal" for people who live with it… though not everyone will have them happen in their particular version of the disease, and even those who do may not have them all the time… so if you *do* have MS, it’s quite possible that it’s what’s causing this stuff. ((U))   M

Response:

Hi Jackee, Yes, these are symptoms of MS. Is it possible to go to your docs and see if you can get some free samples of meds? There are meds out there that are not too expensive and they will help with many symptoms. BTW, I’m 26 and I was diagnosed at 23. I have no symptoms of MS and because of  my first symptoms I didn’t question the diagnosis. However, my parents did and probably still do. Hang in there Jen "Jackee" <happeejac…@cableone.net

wrote in message

news:vn70fhgolqstc9@corp.supernews.com… – Hide quoted text — Show quoted text -

Hi everyone, I have never posted here before, just been peaking in for a month or so to see what is out there.  I need to know if I am crazy.  My diagnosis of ms came on May 4th, 2002 at age 23.  Now 25, I live pretty

much

a normal life.  I experience things that I don’t know if are MS related or not.  Due to money/ insurance I am not seeking any treatment.  Most of the time I am in denial about having it, they only reason I think I might is because of the optic neuritis I had and the numbness in my hands and feet. I always wonder if I was mis-diagnosed, I think that is probably a denial tactic.  I guess I just have some questions for fellow ms’ers.  I have

done

my share of research about MS, but still feel like I need answers from people with it. I get tired, and have a hard time keeping a fast pace for several days in

a

row, ok maybe even one is hard.  My memory is terrible anymore.  I have numbness in my hands, so bad that I ended up losing a hunk of skin off of

my

ring finger by not realizing it was too tight.  I get dizzy, a lot. I get the stutters and sometimes just about cant spit anything out. Are these normal MS things?  I am a freak?  I don’t know, I just want some feedback

if

anyone has some time.

Response:

I get tired, and have a hard time keeping a fast pace for several days in a row, ok maybe even one is hard.  My memory is terrible anymore.  I have numbness in my hands, so bad that I ended up losing a hunk of skin off of my ring finger by not realizing it was too tight.  I get dizzy, a lot. I get the eta swiss watch replica stutters and sometimes just about cant spit anything out. Are these normal MS things?  I am a freak?  I don’t know, I just want some feedback if anyone has some time.

Are you a freak? Now way. All those symptoms are pretty darn normal for MS. I think the best way to help yourself is to think about trying to treat that fatigue symptom if you can. Some of the drugs for it are not that expensive. Ritalin which incidentally binds to the same sites in the brain as Cocaine has been around for 40 years or so. Provigil (Modafinil) Amantadine (Symmetrel) Pemoline (Cylert) Methylphenidate (Ritalin) 4-Aminopyridine (4-AP) Anyone know any other good drugs for fatigue? All the best John

Response:

"Jackee" <happeejac…@cableone.net

wrote in message

news:vn70fhgolqstc9@corp.supernews.com…

 Due to money/ insurance I am not seeking any treatment.

Many of the drug companies have special programs for special-needs people. Below is a list I got from an MS magazine: Pfizer offers the Share Card for Medicare recipients who have no prescription coverage and whose gross income does not exceed $18,000 for individuals or $24,000 for couples. The card entitles the holder to a flat rate of $15 for each 30 day supply of any Pfizer prescription drug (except Celebrex) including Zoloft and Neurontin. Pfizer can be contacted at 800-717-6005 or www.pfizerforliving.com Eli Lilly’s LillyAnswersCard has identical income requirements to Pfizer’s. The card entitles holders to a flat $12 for a month’s supply of a lilly prescription medication, exduding medicines administered by a doctor or in a hospital or controlled substances. Contact Eli Lilly at 877-795-4559 or www.lilyanswers.com GlaxoSmithKline offers the Orange Card. The income allowances are $26,000 for singles and $35,000 for couples. Holders save 30% to 40% on all GlaxoSmithKline medications that are not administered by a doctor or in a hospital. GlaxosmithKline can be reached at 888-672-6436 or www.gsk.com Novartis offers the Care Card, which entitles holders to savings of 30-40% off selected outpatient products. The income allowance is approximately $26,000 for individuals and $35,000 for couples. Novartis can be contacted at 888-NOW-NOVA or www.novartis.com The Together Rx card is offered by a consortium of drug manufacturers-including GlaxoSmithKline, Novartis, and five others. As with the other cards, you must be enrolled in Medicare to participate and have no other prescription coven age. The Together Rx card has income allowances of up to $28,000 for singles and $38,000 for couples and offers savings of 20% to 40%. Call 800-865-7211 or go to www.together-rx.com That may get you started because drug treatment is very important, especially in the early stages of the disease. Catch it quick and do SOMEthing before things go too far seems to be a key. Samples from your doctor are another good idea.

the stutters and sometimes just about cant spit anything out.

In the period of time before I had a firm diagnosis, I had numbness (made me think it was a pinched nerve at first) and some other problems to some degree or another that you mention. The stuttering one was a real puzzler. I, too, had a bout of trying to say something and getting all twisted and not (to me, at least) seeming coherent. I was very distressed by this! Thankfully that only lasted a short time (don’t remember exactly but don’t think it was longer than a month or so) and it’s never happened since. That was almost 20 years ago. I hope you seek and are able to obtain some type of treatment to address whatever symptoms you have now and that it will prevent things from getting worse or at least slow down any progression. This disease can move at so many different rates for so many different people you just can’t say. Good luck to you. Robert

Response:

Hi everyone, I have never posted here before, just been peaking in for a month or so to see what is out there.  I need to know if I am crazy.  My diagnosis of ms came on May 4th, 2002 at age 23.  Now 25, I live pretty much a normal life.  I experience things that I don’t know if are MS related or not.  Due to money/ insurance I am not seeking any treatment.  Most of the time I am in denial about having it, they only reason I think I might is because of the optic neuritis I had and the numbness in my hands and feet. I always wonder if I was mis-diagnosed, I think that is probably a denial tactic.  I guess I just have some questions for fellow ms’ers.  I have done my share of research about MS, but still feel like I need answers from people with it. I get tired, and have a hard time keeping a fast pace for several days in a row, ok maybe even one is hard.  My memory is terrible anymore.  I have numbness in my hands, so bad that I ended up losing a hunk of skin off of my ring finger by not realizing it was too tight.  I get dizzy, a lot. I get the stutters and sometimes just about cant spit anything out. Are these normal MS things?  I am a freak?  I don’t know, I just want some feedback if anyone has some time.

Response:

Humidifier issues

Question:

I think I did but that was a long time ago. On Sat, 02 Aug 2003 00:27:45 GMT, NormC <no…@socal.rr.com

wrote: Because Len has it continuously, I’d suspect the distilled water.   I think he lives in Canada.  I live in the US.  Unlikely that all Canadian distilled water is bad.  Maybe just one manufacturer Len – Have you tried more than one brand of distilled water?

REMOVE the NOCRAP in my address to reply.

Response:

I really have no idea why you have never cleaned any of yours, as I said I tried the distilled water and if I did not clean the chamber it got slimmy.  I would have it all nice and clean and fill it and when I got up if it was under half full I would fill it again, if I did not take it apart and clean it this day but used it again the way it was I would have to clean it the next day as when bedtime rolled around it would be slimmy. On Fri, 01 Aug 2003 23:34:30 GMT, NormC <no…@socal.rr.com

wrote: Len wrote: I got my humidifier 7 or 8+ years ago F&P and it came with a chamber that the bottom plate comes off of, no disposable’s back then. I tried using distilled water in it and found that if I did not take it apart every day to clean it that by the end of the week it was slimy, I always filled it because it seemed that depending on to many things one night it would use lots of water and another it would use hardly any, I ended up putting more water down the drain than I was using from the jug. This something that I, and a number of others here, just cannot conceive.  I haven’t cleaned any of my 3 chambers, that I rotate through, in almost three years.  I never dump any water.  Do you have any thoughts on why you do and I don’t? <g

REMOVE the NOCRAP in my address to reply.

Response:

I don’t have a problem when using tap water, when I got this thing I always used distilled water in it and always had a problem if not cleaned every few days. I have tried the vinegar, the disinfectant soaps, nothing helps but tap water. The reverse osmosis water I used was sent through 2 external filters plus the 2 filters on the reverse osmosis unit then though the reverse osmosis thing itself. On Fri, 01 Aug 2003 21:12:14 -0700, The Somnolent Phantom – Hide quoted text — Show quoted text -<nos…@nospam.com

wrote: Len, Could the water chamber be getting contaminated from the tap water that you are using to clean it?  I clean mine about once a week, and I have never had any contamination problems. I let it soak for a couple minutes in a mild white vinegar solution……. just to be on the safe side. I have never given this much thought before……. I had always thought of distilled water as being sterile. Maybe this isn’t always true. It could easily become recontaminated in bottling, handling and storage. Most distilled water sold in grocery stores probably ends up in car batteries and steam irons. Sterility (or the lack thereof) is not a concern, in those applications. Norm has a good suggestion. I would sterilize the water chamber in white vinegar solution, let it air dry completely, and refill it with a different brand of distilled water….. perhaps from a different store. If this doesn’t work…. disinfect the chamber again, and refill it with distilled water that has been boiled for 3 minutes and allowed to cool down. If this STILL doesn’t do the trick, there must be some type of contamination "dug in" to the chamber itself. You would have to replace the chamber.

REMOVE the NOCRAP in my address to reply.

Response:

FWIW, here is my experience:- I am too lazy/disorganised to bother with distilled/demineralised water. I fill with warm water from the tap. I do this usually when going to bed which is normally about 30 mins before going to sleep. I set the cpap to warm the humidifier. It automatically passes a slow stream of air through the humidifier. I would guess that this together with the heat drives off the worst of the chemicals in the water before I start breathing it. I have no problems with sludge. This is a hard water area and I get limescale deposits in the bottom of the humidifier. I use citric acid crystals to clean this out every 2/3 months. I have been using the same hunidifier for 3 years now without any leaks etc. If I am shortening the life of the humidifier by not using distilled water, I am saving the cost of the distilled water to put towards the cost of a new one when this one fails. I would go over to distilled water if I thought that the chemicals in the tap water were harming me. So far, that has not been (perceived by me as) a major issue. Some people on this NG reported putting salt in their humidifiers, which they said helped them. It would certainly help to keep down any bacteria. Regards Geoff

Response:

My sister came to visit and we went to the "high" country in Nortern

Arizona.

Due to circumstances the stores were closed and I only had a popular brand

of

spring water.  I used this one night and there were deposits on the metal bottom of the heated humidifier.  YMMV.

spring water or mineral water is the WORST kinda water you could be putting in there…..it’s full of minerals etc that WILL be left as deposits on the bottom of the chamber….. although, i guess dirty puddle water would be worse hehe — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

My sister came to visit and we went to the "high" country in Nortern Arizona. Due to circumstances the stores were closed and I only had a popular brand of spring water.  I used this one night and there were deposits on the metal bottom of the heated humidifier.  YMMV. Bob

Response:

Chris wrote:

My heated humidifier , I’m told by my doc, is supposed to be used with ONLY distilled water. Granted, distilled water is easy enough for me to obtain,

Yes, but you will see salts building up. Distilled is cleaner.

and since I’ve been told also that my humidifier parts are dishwasher safe,

Resmed tells me that too, but I’ve seen what dishwashers do to that sort of plastic overtime, so I just wash mine by hand.

putting a drop or two of the eucalyptus in the humidifier would help keep my nasal passages clear?

No, the oils  can affect the plastics of the humidifier, rubber in seals etc.. The humidifier will force the smell out in a strong rush, which will irritate your nose. Just run the smell machine (aroma whatsit) as normal, perhaps moving it slightly close to air intake (don’t over do it). —    Terry Collins {:-)}}} email: terryc at woa.com.au  www: http://www.woa.com.au      Wombat Outdoor Adventures <Bicycles, Computers, GIS, Printing, Publishing

 "People without trees are like fish without clean water"

Response:

- Hide quoted text — Show quoted text -Tal wrote:

I got my humidifier 7 or 8+ years ago F&P and it came with a chamber that the bottom plate comes off of, no disposable’s back then. I tried using distilled water in it and found that if I did not take it apart every day to clean it that by the end of the week it was slimy, I always filled it because it seemed that depending on to many things one night it would use lots of water and another it would use hardly any, I ended up putting more water down the drain than I was using from the jug. This something that I, and a number of others here, just cannot conceive.  I haven’t cleaned any of my 3 chambers, that I rotate through, in almost three years.  I never dump any water.  Do you have any thoughts on why you do and I don’t? <g I’ve had this happen before……but only once that i’ve noticed… which is why i argue against those people who say distilled water will mean no bacteria – cause i’ve seen it happen, and yup, used water straight from the sealed bottle.  I wonder if maybe some kind of contaminant gets through the filter on the machine…..only thing i can think of, or that the water, tho marketed as distilled wasn’t pure for some reason…..packaging problem perhaps?

Because Len has it continuously, I’d suspect the distilled water.    I think he lives in Canada.  I live in the US.  Unlikely that all Canadian distilled water is bad.  Maybe just one manufacturer Len – Have you tried more than one brand of distilled water? – Hide quoted text — Show quoted text -

This is one reason a number of us would not use tap water…. for the exact reason you use it, the chlorine.  I wouldn’t let chlorine get near my lungs (bronchial asthma). I once ran out of distilled water – i knew using the machine without humidifier was gonna kill me so i thought for just one night tap water couldn’t hurt… i felt ill from it though and after an hour dumped the water out and put up with the dry bloody nose next morning. — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

- Hide quoted text — Show quoted text -NormC wrote:

The Somnolent Phantom wrote: X-No-Archive: yes NormC wrote: Joe wrote: The documentation for my humidifier (the integrated humidifier in the Fisher & Paykel CPAP units, which is the same as their standalone humidifier, essentially) says that distilled water is preferred, but only because it increases the longevity of the chamber. If tap water is used, the metal base plate of the chamber will wear (pit) earlier. Mind you, these chambers are disposable anyway, so things could be different for a chamber which is non disposable. But it doesn’t mention anything about bacteria. (FWIW) Joe. p.s As an aside, one reason I switched from a Respironics Remstar CPAP machine with it’s associated humidifier to the Fisher & Paykel is that the Respironics chamber leaked after I had taken it apart the first time to clean it. The Fisher & Paykel chambers are a permanently sealed design and I suspect will be less prone to leakage. The meaning of ‘permanent’ and ‘throw away’ chambers has been discussed before (read about them in the archives).  Although I understand the basic differences, I’m not sure what the practical differences are. I have an F&P HC200 with the ‘throw away’ chambers.  I use nothing but distilled water.  I have been rotating through 3 chambers for 2 3/4 years with no problems, leaks, whatsoever. Norm, I am somewhat reluctant to revisit this topic…….. <gbg Never fear.  In addition to my not being able to remember the original visit too well, as you say below, there are always new people who have never known. However, since there are  new members on the group that are interested in heated humidifiers. …..I will venture into the murky waters, so to speak.<g The water can get a lot more murky if someone doesn’t use distilled water. …but I wont go there again…….. <GBG I think the use of distilled has been beat to death.  It’s in the archives, but the matter of humidifier reservoirs I can’t remember any conclusions. For me, the heated humidifier is a necessity, not an option. Over the years on this group, I have seen a heated humidifier make a hugh difference for many people on XPAP. I never needed one for the replica watches area reasons everyone has stated here.  I needed it because positive room temperature air pressure made me cough, because of my bronchial asthma. As soon as they turned the air on during titration, I coughed to the point that they had to remove the mask.  I didn’t know anything about humidifiers.  I said to the tech, "You better be able to heat that air or the titration is over."  And this she did.  I knew right then that I had to have heated air.  I was to learn later that this was not the primary reason for heated humidifiers. As a result, I was propably able to get a heated humidifier  much easier than most.  Just provided Medicare with letter of medical necessity with doctors record of diagosis of bronchial asthma. Interesting thing is that I used an Autoset T for a week with no humidifier.  I had no cough, but felt like crap that week, unrelated to a humidifier. IMHO (and experience), for people with nasal (septum/turbinate) "problems" and/or sinus "problems",  a heated humidifier can and will make the difference between a successful OSA treatment experience, and non compliant XPAP failure. Certainly been a lot of posts confirming this. Again, IMHO….many OSA patients that have been driven out of desperation to barbaric surgical butchery because of CPAP treatment failure would not have gone down the surgery road if they had a heated humidifier. Including you too, right? I use the "permanent" HC-300 water chamber. It has a stainless steel bottom plate that is removable for cleaning. With the bottom removed, the internal baffle on the air port is also removable for cleaning. It uses a rubber "O" ring gasket for sealing, and mine has never leaked……… knock on wood <g  I replace the "O" ring every other year…….just to avoid potential leakage problems.. I think the walls of the "permanent" chamber may be a bit thicker and made of a different type of plastic am not sure on this, the design may have changed since I purchased mine. Now that you remind me, I came to this conclusion the last time around.  Mine is about 6 years (or so) old, and it still works and looks fine. Like you, I have always used distilled water. Does the "throw away" camber have a removable bottom? No.  There is a seal and, what appears to be, an aluminum bottom with short fingers bent around a flange on the plastic every 1/2 inch.

Whoops!  Every 1/8 inch. – Hide quoted text — Show quoted text -

I wonder if their is any kind of adhesive used. As I recall, it does not. This may be the biggest actual "functional" difference between the permanent one and the disposable unit. I think you’re correct.  I still wonder what, if anything, is going to happen to mine.  Guess the only thing it can do is leak, but I’m unsure why it would.  Guess it depends on what all they used to make the seal IMHO (and experience) the F&P heated humidifier is a well made and dependable unit. I am happy with mine.  However, if I were buying a new one today, I would buy the one with the ambient temperature sensor. This feature was not available when I got my unit.

Response:

I got my humidifier 7 or 8+ years ago F&P and it came with a chamber that the bottom plate comes off of, no disposable’s back then. I tried using distilled water in it and found that if I did not take it apart every day to clean it that by the end of the week it was slimy, I always filled it because it seemed that depending on to many things one night it would use lots of water and another it would use hardly any, I ended up putting more water down the drain than I was using from the jug. This something that I, and a number of others here, just cannot conceive.  I haven’t cleaned any of my 3 chambers, that I rotate through, in almost three years.  I never dump any water.  Do you have any thoughts on why you do and I don’t? <g

I’ve had this happen before……but only once that i’ve noticed… which is why i argue against those people who say distilled water will mean no bacteria – cause i’ve seen it happen, and yup, used water straight from the sealed bottle.  I wonder if maybe some kind of contaminant gets through the filter on the machine…..only thing i can think of, or that the water, tho marketed as distilled wasn’t pure for some reason…..packaging problem perhaps?

This is one reason a number of us would not use tap water…. for the exact reason you use it, the chlorine.  I wouldn’t let chlorine get near my lungs (bronchial asthma).

I once ran out of distilled water – i knew using the machine without humidifier was gonna kill me so i thought for just one night tap water couldn’t hurt… i felt ill from it though and after an hour dumped the water out and put up with the dry bloody nose next morning. — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep Newsgroup Archives http://talhost.net/sleep/archives.htm this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

Len wrote:

I got my humidifier 7 or 8+ years ago F&P and it came with a chamber that the bottom plate comes off of, no disposable’s back then. I tried using distilled water in it and found that if I did not take it apart every day to clean it that by the end of the week it was slimy, I always filled it because it seemed that depending on to many things one night it would use lots of water and another it would use hardly any, I ended up putting more water down the drain than I was using from the jug.

This something that I, and a number of others here, just cannot conceive.  I haven’t cleaned any of my 3 chambers, that I rotate through, in almost three years.  I never dump any water.  Do you have any thoughts on why you do and I don’t? <g

I then tried reverse osmosis water out of a $400+ filter I have here in the house same thing, sure the water was cheaper but again after 3 days without a tear down and wash it was slimey. So I decided since my are uses clorine or some derivative of it in the water I started using it,

This is one reason a number of us would not use tap water…. for the exact reason you use it, the chlorine.  I wouldn’t let chlorine get near my lungs (bronchial asthma). – Hide quoted text — Show quoted text -

no more slime problem, and I have gone over 4 weeks without a tear down, I fill it every second night right out of the tap with a couple partial fills till the warm water gets upstairs then I fill it with warm water and don’t have to wait for it to warm up in the heater. Once a month or so I dump some vinegar in it swish it around for a few minutes till the bottom plate looks good then dump it on a cloth then use the cloth to clean the plastic, sure the plastic is a little scratched and the plate looks a little scratched but hell its old and still holding up well. The seal on the bottom has given me no problems at all with leaks of any sort, a little vaseline every so often helps that. On Sat, 2 Aug 2003 02:28:17 +1000, "Joe" <j…@nowhere.com wrote: The documentation for my humidifier (the integrated humidifier in the Fisher & Paykel CPAP units, which is the same as their standalone humidifier, essentially) says that distilled water is preferred, but only because it increases the longevity of the chamber. If tap water is used, the metal base plate of the chamber will wear (pit) earlier. Mind you, these chambers are disposable anyway, so things could be different for a chamber which is non disposable. But it doesn’t mention anything about bacteria. (FWIW) Joe. p.s As an aside, one reason I switched from a Respironics Remstar CPAP machine with it’s associated humidifier to the Fisher & Paykel is that the Respironics chamber leaked after I had taken it apart the first time to clean it. The Fisher & Paykel chambers are a permanently sealed design and I suspect will be less prone to leakage. REMOVE the NOCRAP in my address to reply.

Response:

"The Somnolent Phantom" <nos…@nospam.com

wrote in message

news:3F2AE58E.F6665A2E@nospam.com…

Does the "throw away" camber have a removable bottom? As I recall, it does

not.

This may be the biggest actual "functional" difference between the

permanent one

and the disposable unit.

That’s correct – the bottom is not removable on the disposable ones – at least – there is no mention of this in the booklet, and I certainly aren’t going to try removing mine. Joe.

Response:

I got my humidifier 7 or 8+ years ago F&P and it came with a chamber that the bottom plate comes off of, no disposable’s back then. I tried using distilled water in it and found that if I did not take it apart every day to clean it that by the end of the week it was slimy, I always filled it because it seemed that depending on to many things one night it would use lots of water and another it would use hardly any, I ended up putting more water down the drain than I was using from the jug. I then tried reverse osmosis water out of a $400+ filter I have here in the house same thing, sure the water was cheaper but again after 3 days without a tear down and wash it was slimey. So I decided since my are uses clorine or some derivative of it in the water I started using it, no more slime problem, and I have gone over 4 weeks without a tear down, I fill it every second night right out of the tap with a couple partial fills till the warm water gets upstairs then I fill it with warm water and don’t have to wait for it to warm up in the heater. Once a month or so I dump some vinegar in it swish it around for a few minutes till the bottom plate looks good then dump it on a cloth then use the cloth to clean the plastic, sure the plastic is a little scratched and the plate looks a little scratched but hell its old and still holding up well. The seal on the bottom has given me no problems at all with leaks of any sort, a little vaseline every so often helps that. – Hide quoted text — Show quoted text -On Sat, 2 Aug 2003 02:28:17 +1000, "Joe" <j…@nowhere.com

wrote: The documentation for my humidifier (the integrated humidifier in the Fisher & Paykel CPAP units, which is the same as their standalone humidifier, essentially) says that distilled water is preferred, but only because it increases the longevity of the chamber. If tap water is used, the metal base plate of the chamber will wear (pit) earlier. Mind you, these chambers are disposable anyway, so things could be different for a chamber which is non disposable. But it doesn’t mention anything about bacteria. (FWIW) Joe. p.s As an aside, one reason I switched from a Respironics Remstar CPAP machine with it’s associated humidifier to the Fisher & Paykel is that the Respironics chamber leaked after I had taken it apart the first time to clean it. The Fisher & Paykel chambers are a permanently sealed design and I suspect will be less prone to leakage.

REMOVE the NOCRAP in my address to reply.

Response:

- Hide quoted text — Show quoted text -The Somnolent Phantom wrote:

X-No-Archive: yes NormC wrote: Joe wrote: The documentation for my humidifier (the integrated humidifier in the Fisher & Paykel CPAP units, which is the same as their standalone humidifier, essentially) says that distilled water is preferred, but only because it increases the longevity of the chamber. If tap water is used, the metal base plate of the chamber will wear (pit) earlier. Mind you, these chambers are disposable anyway, so things could be different for a chamber which is non disposable. But it doesn’t mention anything about bacteria. (FWIW) Joe. p.s As an aside, one reason I switched from a Respironics Remstar CPAP machine with it’s associated humidifier to the Fisher & Paykel is that the Respironics chamber leaked after I had taken it apart the first time to clean it. The Fisher & Paykel chambers are a permanently sealed design and I suspect will be less prone to leakage. The meaning of ‘permanent’ and ‘throw away’ chambers has been discussed before (read about them in the archives).  Although I understand the basic differences, I’m not sure what the practical differences are. I have an F&P HC200 with the ‘throw away’ chambers.  I use nothing but distilled water.  I have been rotating through 3 chambers for 2 3/4 years with no problems, leaks, whatsoever. Norm, I am somewhat reluctant to revisit this topic…….. <gbg

Never fear.  In addition to my not being able to remember the original visit too well, as you say below, there are always new people who have never known.

However, since there are  new members on the group that are interested in heated humidifiers. …..I will venture into the murky waters, so to speak.<g The water can get a lot more murky if someone doesn’t use distilled water. …but I wont go there again…….. <GBG

I think the use of distilled has been beat to death.  It’s in the archives, but the matter of humidifier reservoirs I can’t remember any conclusions.

For me, the heated humidifier is a necessity, not an option. Over the years on this group, I have seen a heated humidifier make a hugh difference for many people on XPAP.

I never needed one for the reasons everyone has stated here.  I needed it because positive room temperature air pressure made me cough, because of my bronchial asthma. As soon as they turned the air on during titration, I coughed to the point that they had to remove the mask.  I didn’t know anything about humidifiers.  I said to the tech, "You better be able to heat that air or the titration is over."  And this she did.  I knew right then that I had to have heated air.  I was to learn later that this was not the primary reason for heated humidifiers. As a result, I was propably able to get a heated humidifier  much easier than most.  Just provided Medicare with letter of medical necessity with doctors record of diagosis of bronchial asthma. Interesting thing is that I used an Autoset T for a week with no humidifier.  I had no cough, but felt like crap that week, unrelated to a humidifier.

IMHO (and experience), for people with nasal (septum/turbinate) "problems" and/or sinus "problems",  a heated humidifier can and will make the difference between a successful OSA treatment experience, and non compliant XPAP failure.

Certainly been a lot of posts confirming this.

Again, IMHO….many OSA patients that have been driven out of desperation to barbaric surgical butchery because of CPAP treatment failure would not have gone down the surgery road if they had a heated humidifier.

Including you too, right?

I use the "permanent" HC-300 water chamber. It has a stainless steel bottom plate that is removable for cleaning. With the bottom removed, the internal baffle on the air port is also removable for cleaning. It uses a rubber "O" ring gasket for sealing, and mine has never leaked……… knock on wood <g  I replace the "O" ring every other year…….just to avoid potential leakage problems.. I think the walls of the "permanent" chamber may be a bit thicker and made of a different type of plastic am not sure on this, the design may have changed since I purchased mine.

Now that you remind me, I came to this conclusion the last time around.

 Mine is about 6 years (or so) old, and it still works and looks fine. Like you, I have always used distilled water. Does the Alot more "throw away" camber have a removable bottom?

No.  There is a seal and, what appears to be, an aluminum bottom with short fingers bent around a flange on the plastic every 1/2 inch.  I wonder if their is any kind of adhesive used.

As I recall, it does not. This may be the biggest actual "functional" difference between the permanent one and the disposable unit.

I think you’re correct.  I still wonder what, if anything, is going to happen to mine.  Guess the only thing it can do is leak, but I’m unsure why it would.  Guess it depends on what all they used to make the seal – Hide quoted text — Show quoted text -

IMHO (and experience) the F&P heated humidifier is a well made and dependable unit. I am happy with mine.  However, if I were buying a new one today, I would buy the one with the ambient temperature sensor. This feature was not available when I got my unit.

Response:

NO NO NO  NO  NO!!!! Nothing but water in the humidifer. PERIOD. Distilled is best as it means you can go longer between humidifier cleaning. You DO NOT want to force chemicals into your nose at high pressure. *VERY* bad medicine. regards, eric pearson db2e…@nospammindspring.com On Wed, 30 Jul 2003 20:07:16 -0400, " Chris" <trigger…@hotmail.com

wrote: – Hide quoted text — Show quoted text -

Okay everyone, I’ve got another question. (I know, half the room just went :Oh boy, here he goes again.) :) My heated humidifier , I’m told by my doc, is supposed to be used with ONLY distilled water. Granted, distilled water is easy enough for me to obtain, and since I’ve been told also that my humidifier parts are dishwasher safe, I’ve been wondering. Can I use regular water in it? Also, some nights to clean out my sinuses, I use an liquid incense burner. usually with eucalyptus and water. REALLY is great for migraines too. Just wondering if putting a drop or two of the eucalyptus in the humidifier would help keep my nasal passages clear? -Chris

Response:

" Chris" <trigger…@hotmail.com

wrote in message

news:AUYVa.2600$BY2.781@fe02.atl2.webusenet.com… – Hide quoted text — Show quoted text -

Okay everyone, I’ve got another question. (I know, half the room just went :Oh boy, here he goes again.) :) My heated humidifier , I’m told by my doc, is supposed to be used with ONLY distilled water. Granted, distilled water is easy enough for me to obtain, and since I’ve been told also that my humidifier parts are dishwasher

safe,

I’ve been wondering. Can I use regular water in it? Also, some nights to clean out my sinuses, I use an liquid incense burner. usually with eucalyptus and water. REALLY is great for migraines too. Just

wondering

if putting a drop or two of the eucalyptus in the humidifier would help keep

my

nasal passages clear? -Chris

Just a thought – maybe you would be a good candidate for the Oracle? (Your wife might appreciate it too – keeps your mouth full of device so there will be less lip out of you….) http://www.fphcare.com.au/ is their web site if you want to read up on it. Would solve your tape problems & it has no headgear as an added bonus. Kit — To reply replace nospam with kamuzz

Response:

Hey.. I’ll jump in here with my conjectures (since I have no facts).

I was told by my DME that if you use regular water it will eventually break down the seal on the chamber, causing it to leak.

Across the USA there is quite a wide range of chemicals in water.  I suppose some places may have additives or pollutants that would damage a seal (a rubber seal, a harbor seal… :-)

Other people have mentioned that if you don’t use distilled water, it opens up the possibility of bacterial infection.

I know that you have to be extremely careful about a thing like this. Remember the big scare about household humidifiers a few years back? Lots of people geting sick traced to molds er sumthin. Since the whole point is to evaporate water, distilled water will prevent most deposits from forming on the container.  This would be mostly calcium, maybe other stuff depending on where you are.  I think.  These deposits may form a conducive habitat for bacteria and molds.  Regular soaking in vinegar or other mild acids may keep these deposits away.

wondering if putting a drop or two of the eucalyptus in the humidifier would help keep my nasal passages clear?

Don’t know.  But it sounds like a great way to savor a good margurita.

Response:

The documentation for my humidifier (the integrated humidifier in the Fisher & Paykel CPAP units, which is the same as their standalone humidifier, essentially) says that distilled water is preferred, but only because it increases the longevity of the chamber. If tap water is used, the metal base plate of the chamber will wear (pit) earlier. Mind you, these chambers are disposable anyway, so things could be different for a chamber which is non disposable. But it doesn’t mention anything about bacteria. (FWIW) Joe. p.s As an aside, one reason I switched from a Respironics Remstar CPAP machine with it’s associated humidifier to the Fisher & Paykel is that the Respironics chamber leaked after I had taken it apart the first time to clean it. The Fisher & Paykel chambers are a permanently sealed design and I suspect will be less prone to leakage.

Response:

- Hide quoted text — Show quoted text -Joe wrote:

The documentation for my humidifier (the integrated humidifier in the Fisher & Paykel CPAP units, which is the same as their standalone humidifier, essentially) says that distilled water is preferred, but only because it increases the longevity of the chamber. If tap water is used, the metal base plate of the chamber will wear (pit) earlier. Mind you, these chambers are disposable anyway, so things could be different for a chamber which is non disposable. But it doesn’t mention anything about bacteria. (FWIW) Joe. p.s As an aside, one reason I switched from a Respironics Remstar CPAP machine with it’s associated humidifier to the Fisher & Paykel is that the Respironics chamber leaked after I had taken it apart the first time to clean it. The Fisher & Paykel chambers are a permanently sealed design and I suspect will be less prone to leakage.

The meaning of ‘permanent’ and ‘throw away’ chambers has been discussed before (read about them in the archives).  Although I understand the basic differences, I’m not sure what the practical differences are. I have an F&P HC200 with the ‘throw away’ chambers.  I use nothing but distilled water.  I have been rotating through 3 chambers for 2 3/4 years with no problems, leaks, whatsoever.

Response:

Okay everyone, I’ve got another question. (I know, half the room just went :Oh boy, here he goes again.) :) My heated humidifier , I’m told by my doc, is supposed to be used with ONLY distilled water. Granted, distilled water is easy enough for me to obtain, and since I’ve been told also that my humidifier parts are dishwasher safe, I’ve been wondering. Can I use regular water in it? Also, some nights to clean out my sinuses, I use an liquid incense burner. usually with eucalyptus and water. REALLY is great for migraines too. Just wondering if putting a drop or two of the eucalyptus in the humidifier would help keep my nasal passages clear? -Chris

Response:

" Chris" <trigger…@hotmail.com

wrote in message

news:AUYVa.2600$BY2.781@fe02.atl2.webusenet.com… – Hide quoted text — Show quoted text -

Okay everyone, I’ve got another question. (I know, half the room just went :Oh boy, here he goes again.) :) My heated humidifier , I’m told by my doc, is supposed to be used with ONLY distilled water. Granted, distilled water is easy enough for me to obtain, and since I’ve been told also that my humidifier parts are dishwasher

safe,

I’ve been wondering. Can I use regular water in it? Also, some nights to clean out my sinuses, I use an liquid incense burner. usually with eucalyptus and water. REALLY is great for migraines too. Just

wondering

if putting a drop or two of the eucalyptus in the humidifier would help keep

my

nasal passages clear? -Chris

Chris How about you check out the archives? Most of these questions have been asked before. Then if you need more specific information, you can ask for that extra clarification. Saves the regulars wearing out their fingers typing the same responses over and over again… Norm gets grumpy sometimes <vbg

You might like to start with the web site: http://www.talhost.net/sleep/cpap.htm#humidifiers for Q1 http://www.talhost.net/sleep/cpap.htm#aromatherapy for Q2 Newsgroup Archives http://talhost.net/sleep/archives.htm Happy searching! Kit — To reply replace nospam with kamuzz

Response:

Ok, thanks! – Hide quoted text — Show quoted text -

Chris How about you check out the archives? Most of these questions have been asked before. Then if you need more specific information, you can ask for that extra clarification. Saves the regulars wearing out their fingers typing the

same

responses over and over again… Norm gets grumpy sometimes <vbg You might like to start with the web site: http://www.talhost.net/sleep/cpap.htm#humidifiers for Q1 http://www.talhost.net/sleep/cpap.htm#aromatherapy for Q2 Newsgroup Archives http://talhost.net/sleep/archives.htm Happy searching! Kit — To reply replace nospam with kamuzz

Response:

" Chris" <trigger…@hotmail.com

writes: Okay everyone, I’ve got another question. (I know, half the room just went :Oh boy, here he goes again.) :) My heated humidifier , I’m told by my doc, is supposed to be used with ONLY distilled water. Granted, distilled water is easy enough for me to obtain, and since I’ve been told also that my humidifier parts are dishwasher safe, I’ve been wondering. Can I use regular water in it?

I was told by my DME that if you use regular water it will eventually break down the seal on the chamber, causing it to leak. Other people have mentioned that if you don’t use distilled water, it opens up the possibility of bacterial infection.

Also, some nights to clean out my sinuses, I use an liquid incense burner. usually with eucalyptus and water. REALLY is great for migraines too. Just wondering if putting a drop or two of the eucalyptus in the humidifier would help keep my nasal passages clear?

I don’t know on this one. — Michael Meissner email: mrmn…@the-meissners.org http://www.the-meissners.org

Response:

Humidifier question

Question:

I have had 2 sleep studies which determined mild apnea, resulting in a prescription for a CPAP. I bought my machine outright and use it religiously, but have NEVER again had the great feeling I did that morning after my second sleep study. The only  benefit I seem to get from the use of the CPAP is that I no longer snore (and more no longer ’slobber’ on my pillow).  More as a courtesy to my wife than anything else, I continue its use. I also had to buy a watch dog because I cannot hear as well at night with the machine running. However, I have recently (the past 6 moths or so) been having a runny nose, especially in the morning, and an apparent loss of my sense of smell (it seems I no longer need a bathroom air freshener, but my wife disagrees).  I wrote to this list twice regarding this, but only received a single reply which suggested the use of a humidifier.  I’m not sure if this will help, but I’m willing to try so that I can continue using CPAP for my wife’s sake. I don’t mind buying a humidifier for a trial, but not sure whether to get a heated or non-heated unit.  Also, because I fired my doctor, I am unable to get a prescription, so will have to either buy from an individual or eBay. If anyone on this list has one available I would like to hear from them directly, off list. ron.carr…@att.net I would appreciate recommendation regarding the advantages/disadvantages of heated  vs. non-heated before I buy. Thanks, Ron

Response:

I don’t mind buying a humidifier for a trial, but not sure whether to get

a

heated or non-heated unit.  Also, because I fired my doctor, I am unable

to

get a prescription, so will have to either buy from an individual or eBay. If anyone on this list has one available I would like to hear from them directly, off list. ron.carr…@att.net

A heated humidifier may solve your problem. the constant irritation of pressurised air through your nose causes congestion and sometimes swelling……………….the heated humidifer helps avoid this problem. Note that you will also benefit from insulating your hose once you get the humidifier – especially if your bedroom is cold.  A heated unit is nearly always much more beneficial than a passover (non-heated) one….if it’s not beyond your means, go for the heated one.

Response:

Ron wrote:

I don’t mind buying a humidifier for a trial, but not sure whether to get a heated or non-heated unit.  Also, because I fired my doctor, I am unable to get a prescription, so will have to either buy from an individual or eBay. If anyone on this list has one available I would like to hear from them directly, off list. ron.carr…@att.net

If you are paying for it, go with the heated. If you don’t need the heat, you can turn it off and use it unheated, but if the cold humidifier doesn’t give enough moisture you will be back to buy a heated one. — Magesteff Freedom is hammered out on the anvil of discussion, dissent, and debate. -Hubert H. Humphrey (1911-1978), Speech, June 6, 1965, Syracuse University, N.Y

Response:

Ron <just-me@#home-sweet-home.com

wrote: I appreciate the information and tip regarding condensation, I’ll use it. FYI, I went online to the CPAPMAN.COM and he has a notice that humidifiers require a prescription. Good news if they don’t.

As I said, http://www.cpap-company.com/ did not require a prescription for the humidifier. I guess that since the humidifier for the RemStars won’t fit or work with any other machine, and if you have a RemStar, you got it with a prescription, you don’t need a separate one for the humidifier. :-)

Been sleeping well with the humidifier. I have it set to the max and with the insulation on the hose, I don’t have much problem with condensation. Only found out there was some when I awoke and rolled over to turn on the light. When the exhaust port faced down, water came out, several drops. None in the nose, which is what counts! Several things to consider. Use steam distilled water in the humidifier to prevent deposits and because nothing will grow in it. Get some extra of the fine filters for the CPAP, the fine ones are not reusable, but are very inexpensive, only a couple of bucks each at the CPAP Company. Check the fine filter and change if needed monthly, (adjust interval as needed). The fine filter keeps out pollen and other fine stuff, which can help give your nose a rest from having to filter it out and will help if you have alergies or not. If the fine filter gets  ’full’, it will restrict the intake of air to the CPAP and you may get reduced pressure, so do check it at least monthly. Also remember that apnea is a condition and CPAP is a treatment. This means it isn’t a ‘cure’. Treatment means it is an ongoing process. It will take time to get the full benefit, though you should see some results fairly quickly. It also means that your condition may vary depending on a number of factors and you will need to adjust the treatment over time. I know that I have to change the humidifer setting as the weather changes. With CPAP, think of it as a journey of discovery. I have had my CPAP for about 4 months now. I got it on December 31’st. I haven’t missed a night yet. The problems without having a heated humidifer at first were not fun at all and why I strongly reccomend getting the heated humidifier to people, even if they have to pay out of pocket. Compliance, (meaning using the CPAP, not just having it hold down papers on a table), depends heavily on ‘comfort level’, and a heated humidifer makes a huge difference. The heated humidifier is one of the few thigs you can control. If you read this newsgroup, you probably know that there are a lot of different masks. There are only a few that seem to get high marks from a lot of people. However there are others that may fit you better. This is part of what the Sleep Lab and DME should help with. I have a moustache and found the mask they gave me for the sleep test leaked through the moustache and I did not like the cold air leaking, it was noisy and uncomfortable. So I went with the nasal pillows for my CPAP setup. I asked for the Breeze as it was highly reccomended on this newsgroup by those that use the nasal pillows. Insurance only went for the less expensive ADAM Circuit. After I found out that I needed the next larger size pillows and got a set and got the ‘flexible hose’ which is a short length of pleated hose that goes from the angle adaptor over the head to the swivel joint, I found I like the ADAM Circuit. After insulating the hose all is well and I am sleeping better than I can remember for decades. I now can sleep on my back for the first time in longer than I can remember! Are there negatives to CPAP, yes. The inconvenience of having to attend to the machine, blowing out the water in the hose in the morning, cleaning the nasal pillows daily, putting more water in the humidifer chamber, putting Ayer Saline Gel in my nose each night before bed and putting on the CPAP before sleep. Is it worth it? YES!!! I’ve rambled on long enough, so all that is left is to wish you good luck and good times and pleasant and abundant sleep with the CPAP. Ross Bernheim As my mother said, "If at first you don’t succeed, suck eggs, they’re much softer!"

Response:

"Ron" <just-me@#home-sweet-home.com

wrote: I bought my machine outright and use it religiously, but have NEVER again had the great feeling I did that morning after my second sleep study.

Did you ever go back for re-titration?  You may just need a little more pressure.

I don’t mind buying a humidifier for a trial, but not sure whether to get a heated or non-heated unit.  Also, because I fired my doctor, I am unable to get a prescription, so will have to either buy from an individual or eBay.

I’d certainly look at a heated unit, but you might be ok with a good passive unit, like the Respironics Oasis, since you’ve been doing fairly well without any humidification. I believe that any doctor can write the prescription, it doesn’t have to come from a sleep specialist. Tom

Response:

Ron <just-me@#home-sweet-home.com

wrote: I don’t mind buying a humidifier for a trial, but not sure whether to get a heated or non-heated unit.  Also, because I fired my doctor, I am unable to get a prescription, so will have to either buy from an individual or eBay. If anyone on this list has one available I would like to hear from them directly, off list. ron.carr…@att.net

The humidifier is not a prescription item. I was able to walk into a local DME whom I had never seen before and purchace a heated humidifer for my CPAP off the shelf. This is the web address for the company where I got the humidifer;  http://www.cpap-company.com/   the are very friendly and helpful people and seem to have some good deals. Also check out http://www.cpapman.com/ a very highly reccomended source by those in this news group.

I would appreciate recommendation regarding the advantages/disadvantages of heated  vs. non-heated before I buy.

Definitely go heated and buy or sew an insulating cover for the hose to allow more heat and humidity without condensation problems and water in the nose. Humidity  is really relative humidity and the warmer the air, the more humidity it can hold. You want a lot of humidity or at least the ability to get a lot if you want or need it. Insulate the hose as it is cooler and causes condensation unless insulated. Ross Bernheim

Response:

Thanks for your help, Ross. I appreciate the information and tip regarding condensation, I’ll use it. FYI, I went online to the CPAPMAN.COM and he has a notice that humidifiers require a prescription. Good news if they don’t. Good night, Ron "Ross Bernheim" <ross…@mindspring.com

wrote in message

news:1fb9jgz.uz6l1py31fleN%rossber@mindspring.com… – Hide quoted text — Show quoted text -

Ron <just-me@#home-sweet-home.com wrote: I don’t mind buying a humidifier for a trial, but not sure whether to

get a

heated or non-heated unit.  Also, because I fired my doctor, I am unable

to

get a prescription, so will have to either buy from an individual or

eBay.

If anyone on this list has one available I would like to hear from them directly, off list. ron.carr…@att.net The humidifier is not a prescription item. I was able to walk into a local DME whom I had never seen before and purchace a heated humidifer for my CPAP off the shelf. This is the web address for the company where I got the humidifer;  http://www.cpap-company.com/   the are very friendly and helpful people and seem to have some good deals. Also check out http://www.cpapman.com/ a very highly reccomended source by those in this news group. I would appreciate recommendation regarding the advantages/disadvantages

of

heated  vs. non-heated before I buy. Definitely go heated and buy or sew an insulating cover for the hose to allow more heat and humidity without condensation problems and water in the nose. Humidity  is really relative humidity and the warmer the air, the more humidity it can hold. You want a lot of humidity or at least the ability to get a lot if you want or need it. Insulate the hose as it is cooler and causes condensation unless insulated. Ross Bernheim

Response:

Not all passive humidifiers are equal. The OASIS puts a *lot* more water into the air than others. If the pressure is low (maybe 10-12cm or less?) the OASIS might do just fine. OASIS are available on ebay frequently and some times go for < $50. I am at 18cm and lived with an OASIS for 3 yrs before buying a Humidaire on ebay. I still use the OASIS as my travel humidifier. Unless the room is very cold and dry it suffices. And you can make an OASIS put out even more water by wrapping it in a small heating pad.  With a heating pad, I can get rainout from the OASIS even with insulated tubing. That tells me the OASIS is putting a lot of water into the air. The amount of water the unheated OASIS uses per night at 18cm CPAP  is about 2/3 of what the Humidaire does at a setting of 5.5 regards, eric pearson db2e…@nospammindspring.com On Fri, 26 Apr 2002 21:55:43 -0400, "S. J. Muller" <mages…@juno.com

wrote: – Hide quoted text — Show quoted text -

Ron wrote: I don’t mind buying a humidifier for a trial, but not sure whether to get a heated or non-heated unit.  Also, because I fired my doctor, I am unable to get a prescription, so will have to either buy from an individual or eBay. If anyone on this list has one available I would like to hear from them directly, off list. ron.carr…@att.net If you are paying for it, go with the heated. If you don’t need the heat, you can turn it off and use it unheated, but if the cold humidifier doesn’t give enough moisture you will be back to buy a heated one.

Response:

"gaj" <shalomnum…@attbi.com

wrote in message

news:3F048A7C.27FAAE78@attbi.com…

I wish your doctor would explain why demineralized water is better than distilled water.  Chemically, I believe that distilled water is as close to pure water that you can get, also that it is totally sterilized during distillation, which is not the case for demineralized water. I use distilled because it does not leave any residue upon evaporation, and I clean it out every two or three months.  Tap water should be fine, except for the heavy mineral deposits over time.  You can use vinegar to remove them periodically. — Glenn

For a number of reasons demineralized (or deionized) water tends to have a higher purity in terms of salts.  But it’s not the salts that are concerning people.  It’s the bugs.  Distilled should be better for bugs. Paul R

Response:

Maybe your tap water…. but not mine.  Too many possible bacterial problems there, plus the smell of chlorination.

Good point.  I drink Lake Erie water.  Lake Erie water is pretty soft and doesn’t have a high sulfide load.  Chlorination is fairly light so it doesn’t smell (to me, anyway) like a bleach bottle or a swimming pool. Paul R

Response:

"eric" <db2e…@nospammindspring.com

wrote in message

news:ba89gv416sct82fvasd7v6122uldst2r62@4ax.com…

It is a problem. How big a problem depends upon how ‘hard’ your water is and your degree of toleratoin of the humidifier cleaning process. If you use distilled water, the humidifier needs cleaning less frequently. Period. regards, eric pearson

Agreed! I’m not sure that daily, weekly, monthly cleaning is really needed.  But not doing it creeps me out, so I do it. Paul R

Response:

- Hide quoted text — Show quoted text -Paul R wrote:

"eric" <db2e…@nospammindspring.com wrote in message news:ba89gv416sct82fvasd7v6122uldst2r62@4ax.com… It is a problem. How big a problem depends upon how ‘hard’ your water is and your degree of toleratoin of the humidifier cleaning process. If you use distilled water, the humidifier needs cleaning less frequently. Period. regards, eric pearson Agreed! I’m not sure that daily, weekly, monthly cleaning is really needed.  But not doing it creeps me out, so I do it.

Never heard of a better reason than that!!!

Response:

How can you tell if you should be using a cold air humidfer or a hot air humidifer?  I have a humidifer that uses room temp. water and I hear a lot about the heated humidifer and I want to ask my doctor about which one is best but I want to know something about the difference before doing so thank you joe from baltimore

Response:

Reading all with interest in this thread…. De-mineralised – due to no buildup…. No tapwater due to potential bugs (and minerals). In Different Parts of Australia, the quality of the tapwater varies greatly, I have lived in several parts, some of which I would not drink the tapwater! In my case, my sleep doc/DME recommended de-mineralised water due to the tapwater in this part of the country being rather heavy, compared to other parts of the country.  (DME recommendation was probably also due to the fact that at first I was only renting the machine, and if I did return it, they wanted it to be Very easy to clean….) A few Years ago, there was a nasty scare in Sydney WRT to tapwater, It did in fact get a nasty bug and everyone was told to boil it.  The source of the contamination was the pipes it was being delivered in. I appreciate comments being made here about how much/little people clean various parts of their xPAP and for what reasons. I probably should have said a little more….  I personally put into the humidifier chamber just enough water, so it is all gone by morning – trial and error over several days.   rarely throw out any water. I, like a lot of other people, do not wash everything out, the exception being my interface (due to excessive oily skin) but leave it to dry in the room each day.  We can all see from comments posted, there is a lot of mis-information and myths, but I think someone else best summed it up – Do whatever you feel comfortable doing.  It that is sterilising everything daily – do it. If it means washing it if it looks dirty – do it.  If it means chucking it out when it wears out with never having cleaned it ……. Norm, In relation to "diplomated sleep doc" I am not aware of any such thing in Aus… Other than any specialist having studied in their field…. You are right, we may all speak the English language, but English probably has more "regional Dialects" than any other language in the world, but this is another debate I am sure!!!!! ( WRT Frankie and CA- ) From looking at the posts, there are only a handful of posters from Aus here and I personally do not say anything unless I feel can make a worthwhile contribution or offer a different perspective.  If I know nothing about a subject I would pose a Question….. Bob in Aus "NormC" <no…@socal.rr.com

wrote in message

news:3F04BF24.8090204@socal.rr.com… – Hide quoted text — Show quoted text -

Forgot the most important factor:  My respiratory health has been much better since I’ve been on cpap.  And I’m not the only one to post this. NormC wrote: Quick wrote: Norm, [I won't cut anything from the post since I notice you never do that but I've extracted the sections I wanted to comment on and brought them to the top. Original post is below in its entirety.] As far as cleaning any part of the humidifier, tube, mask system,  there isn’t any real reason to clean it at all.  You’re inhaling the same air you breath if you are awake, but it is filtered by the blower filter.  The distilled water vapor it picks up is, by definition, bacteria free. If you were to search the archives, you’d find that in the last 2 1/2 years, what I have indicated here is the prevailing opinion from long term users (4 years). In addition, there have been link to studies/tests about the impossibility of a heated humidifier and distilled water cauing any kind of illness. I agree that distilled water will not cause any illness by itself and its obvious that you are inhaling the same air you breath when awake. Is there anything about distilled water that would prevent it from being a good medium for "incubating" biological organisms? IMHO, yes, by definition of what distilled water is.  Although it’s in the archives, I will try to find the link that was posted by someone a couple years ago and satisfied me and a number of others who had been around here for longer than me. Based on your ‘probabilistic’ comment in the ‘lightning’ thread, I’m sure you will understand that I can’t say there is a zero probablility of any kind of incubation.  But, like you, I CAN say that, although 0, it is very, very small. Especially heated for periods of time and at room tempurature the rest of the

time.

Certainly the air you breath contains various agents in varying concentrations. While those things may be harmless in the air you breath I would think there is some small chance that some may become harmful if concentrated or allowed to "grow" or multiply in what amounts to a petri dish? (I could imagine this may be the fallacy in my thinking) I cleaned my system the first few months, per the handbook, until my cognition improved to the point that I could once again think clearly. Then I realized that it didn’t make any sense (to me) and even the ratio of vinegar to water was not consistent from one manual to another or from one RT to another.  All of it was posted here.  See it in the archives. I haven’t washed any part of my system for over two years.  And that’s on top of having a compromised immune system and bronchial asthma. I do one thing that I’m not aware of anyone else doing:  Whe first day I started on cpap I dropped and broke one of the two humidifier reservoirs that came with the blower.  I wanted to have a spare, but they came in pairs.  So, I have three. I get a little uneasy when I see moisture accumulating at the top of the reservoir (don’t ask me why, because I haven’t the faintest idea), so I remove one when I don’t like the way it looks and replace it with another, letting the first completely dry until the same thing happens to the second one. The only other thing I do is pull the tube/hose off the humidifier every single morning, to let what little moisture accumulates at that end, dry.  Oh, yes, I wash my face every night. I run my tube/hose from one side to the other, above my head, on the pillow.  I have never had rainout, not even durng the rainy season. I use distilled water primarily for the lack of deposits since I am not  worried about my tap water (I wouldn’t be drinking it, cooking with it, or bathing in steamy showers with it otherwise). For me, 20-30 minutes in a steamy shower, where I live, results in more respiratory distress than 8 1/2 hours on my CPAP. For this reason (mistaken?) I dump the remains in my humidifier each morning — the RemStar humidifier chamber is easily removed, dumped, disassembled (remove bottom) and left to dry. Assuming this is possible I suppose that it may take days or weeks for anything harmful to "grow" or achieve harmful concentrations and constantly refilling the humidifier might have the effect of running water eliminating that. My daily routine involves: Remove hose from mask and humidifier and leave coiled on shelf to dry. Remove humidifier, dump, disassemble and leave on shelf to dry. Remove pillows from interface, wash with anti-bacterial hand soap, and leave on shelf to dry with the other part (mainly to remove skin oils, etc). Every couple of weeks or at most monthly I soak all the above and the

air

filter with dish soap in the kitchen sink. I figure letting everything dry puts you on par with the air you

breath. > > Sounds like a good reson for my assuring that moisture doesn’t accumlate > > at the top of my reservoir or in the beginning of the tube/hose. > > HTH > >> -Quick > >> "NormC" <no…@socal.rr.com

wrote in message

> >> news:3F049151.903@socal.rr.com… > >>> Bob – It becomes more clear (to me), every day, that even though > >>> we all speak English in the US, Canada, UK, and Australia, what > >>> the doctors tell us about sleep disorders, and the treatment we > >>> receive, in each country is noticeably different. > >>> Take Frankie, for example, in the UK.  She appears to have > >>> central apnea and the NHS just lets her drop by the wayside?!?!? > >>> Any idea of what they do about CA in Australia (or Canada)? > >>> Noone from Australia (or Canada) has responded to her posts. > >>> Maybe the a.lange & sohne replica watches word ‘distilled’ and ‘demineralized’ mean different > >>> things in Australia than the US.  But, I doubt it. > >>> IMHO you received a lot of questionable information from your > >>> sleep doctor.  Does he have any kind of certification to be a > >>> sleep doc, or don’t they have that sort of thing in Australia? > >>> As any kind of doctor, he should know the difference between > >>> distilled water and demineralzed water, as indicated by Lee. So a > >>> real (good) sleep doc, should know it. > >>> IIRC, Legionaires disease was first discovered in the US, at an > >>> American Legion Convention in a particular hotel.  IIRC it was > >>> associated with their refrigerated air conditioning system. > >>> I was not aware of one person giving another person Legionaires > >>> disease.  However, it has occurred more than once in the US in > >>> large groups. > >>> Every post I’ve ever read here indicated that their User Manual > >>> indicated distilled water.  Mine does.  What does your manual say? > >>> IMHO, the use of demineralized water would be totally > >>> inconsistent with trying to avoid any kind of ‘disease’.  And > >>> throwing away any unused distilled water is a waste of money. > >>> As far as cleaning any part of the humidifier, tube, mask system, > >>>  there isn’t any real reason to clean it at all.  You’re > >>> inhaling the same air you breath if you are awake, but it is > >>> filtered by the blower filter.  The

… read more »

Response:

Use de-mineralised water, not tap water or distilled water. So this is what confused me. From Bob’s post his doctor told him that de-mineralised water would have less chance of being or getting biologically contaminated.  Was it a typo?

I’m wondering if there was a communication and either the doc said, or the OP heard distilled water instead of mineral water…….it would make more sense — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

Any chance of this happening with a unclean air conditioner? I have not used a filter in mine for a couple of years because I lost it, by reading this I think it may be time to order one! thanks. Don "Bob in Aus" <bREMOVEo…@norcom.net.au.remove.me

wrote in message

news:3f0425b3$0$59955$c30e37c6@lon-reader.news.telstra.net… – Hide quoted text — Show quoted text -

I was a bit on the lazy side as well until it was put into terms that I

now

understand that it is not laziness but a necessity. I recently had a follow-up with my sleep doc and he explained to me

why….

Use de-mineralised water, not tap water or distilled water. Empty out any remaining water in the humidifier on a daily basis. The reason he gave was simply de-mineralised water will harbour the least amount of bacteria, and will not leave any residue in the chamber (well,

not

any, but the least amount) Chuck out the remaining every morning as the Legionella (sp?) virus can

kill

you! Here in Australia, we hear of several (up to 10) per year cases of legionnaires disease, basically a virus that kills people. The source is usually traced to contaminated water in cooling systems in large office buildings, shopping centres or other public buildings. I think that by chucking out a bit of water each day, rather than

breathing > in a potential source for (often Fatal) infection for 7 1/2 hours a day a > simple and worthwhile procedure. > Put in these terms, that is a pretty good incentive for me to keep my > humidifier clean! > Bob in Aus > "Tchmuzk" <tchm…@surfbest.net

wrote in message

> news:be143p$og8$1@news.chatlink.com… > > I’ve been on CPAP for about 3-4 months now.  When I got my stuff, my DMA > > told me to use distilled water only in my humidifier.  Lazy SOB that I am,

I never got any and have been using tap water since day one. Is this a real problem? I have heated humidity, but I don’t turn on the heat now that my forced hot air is off for the summer. Joe

Response:

Hello joe, I noticed no one has answered your question yet so I’ll give it a whirl.  I have the option on my F&P (NADA) to use no humidity, cold passove,r and heated humidity.  I like cold passover, but the heated humidity works better for me.  The cold passover is good, but it leaves me with a little dryness in the nose.  I have more congestion with the cold passover. A friend of mine who is also a hoover head does not have humidity and is VERY congested upon waking.  It takes a while to clear that out in the morning if you know what I mean. I was titrated without humidity.  Woke up with dryness and soreness inside the throat and nose. I first started using CPAP with the highest heat setting on the machine.  I was told to do this to get used to CPAP quicker.  It worked.  I have lowered it to about a third of what I started out at and I’m fine.  I highly recommend the heated humidity if you can get it! HTH Marco Polo On Thu, 3 Jul 2003 22:05:20 -0400 (EDT), peacefulf…@webtv.net (joe) wrote:

How can you tell if you should be using a cold air humidfer or a hot air humidifer? I have a humidifer that uses room temp. water and I hear a lot about the heated humidifer and I want to ask my doctor about which one is best but I want to know something about the difference before doing so thank you joe from baltimore

"Never, never doubt what nobody is really sure about!" Marco Polo

Response:

I’m not as enthusiastic as Anna is below, but I DO clean out everything at some point.  The mask cushion–every day.  Mask shell, hose, and water chamber = once a week and I switch out the water chamber with the spare that I’ve already cleaned (no vinegar though). Every month, I clean the CPAP unit and check the air filter–change it if necessary.  I only use Ivory Liquid dishwashing detergent (NADA) in warm water. I guess how much you clean depends on how susceptible you are to infection.  Prior to my septoplasty in 2001, I would get sinus infections almost at the drop of a hat.  After surgery, they are less frequent, and if I play it right, I can go a couple of years without infection.  I also irrigate with .9% saline solution at least every other day and use Ponaris oil. I dump the heated distilled water right back into the gallon jug of distilled water I buy from Wal-Mart (NADA).  The room is cool enough that bacteria don’t thrive. Now a discussion like this begs the question: has anyone ever sneezed while wearing their mask? Marco Polo On Thu, 03 Jul 2003 22:43:40 -0700, Anna LeBlanc <lebla…@qwest.net

wrote: >Almost every day I dump, rinse, wash in sudsy water, rinse, hang to dry, and >sometimes reassemble the hose part to my RemStar and blow it to dry while I >eat breakfast. I’m way at the fastidious end of the scale around here. <g

>But I don’t know how to remove the bottom of the RemStar humidifier chamber! >Does it slide off one end? I don’t see any hinges, how do you do it? >Thanks >Anna

"Never, never doubt what nobody is really sure about!" Marco Polo

Response:

in article 1057269089.462083@sj-nntpcache-3, Quick at dhorw…@NOSPAMcisco.com wrote on 7/3/2003 2:50 PM: – Hide quoted text — Show quoted text -

For this reason (mistaken?) I dump the remains in my humidifier each morning — the RemStar humidifier chamber is easily removed, dumped, disassembled (remove bottom) and left to dry. Assuming this is possible I suppose that it may take days or weeks for anything harmful to "grow" or achieve harmful concentrations and constantly refilling the humidifier might have the effect of running water eliminating that. My daily routine involves: Remove hose from mask and humidifier and leave coiled on shelf to dry. Remove humidifier, dump, disassemble and leave on shelf to dry. Remove pillows from interface, wash with anti-bacterial hand soap, and leave on shelf to dry with the other part (mainly to remove skin oils, etc). Every couple of weeks or at most monthly I soak all the above and the air filter with dish soap in the kitchen sink. I figure letting everything dry puts you on par with the air you breath. -Quick

Quick, Almost every day I dump, rinse, wash in sudsy water, rinse, hang to dry, and sometimes reassemble the hose part to my RemStar and blow it to dry while I eat breakfast. I’m way at the fastidious end of the scale around here. <g

But I don’t know how to remove the bottom of the RemStar humidifier chamber! Does it slide off one end? I don’t see any hinges, how do you do it? Thanks Anna

Response:

"Quick" <dhorw…@NOSPAMcisco.com

wrote in message

news:1057263453.408921@sj-nntpcache-5… – Hide quoted text — Show quoted text -

"Lee Babcock" <leebabc…@pathcom.com wrote Quick wrote: "Bob in Aus" <bREMOVEo…@norcom.net.au.remove.me wrote Use de-mineralised water, not tap water or distilled water. I always thought distilled water *was* de-mineralised? Can somebody elaborate on the differences? I suppose there is a difference in the process to produce it? -Quick Distilled water is de-mineralized among other things, but de-mineralized water is water that was passed through a mechanical filter to remove the minerals. The heat of the distillation process also kills bacteria and the evaporation of the condesation of the vapour leaves you with just water. Regards Lee in Toronto So this is what confused me. From Bob’s post his doctor told him that de-mineralised water would have less chance of being or getting biologically contaminated.  Was it a typo? -Quick

Demineralizing water is a two step process.  Industrially this is usually done in two separate vessels, but the steps can be combined if you’re willing to accept lower efficiency for greater convenience.  The first step takes out metal ions like Calcium and Sodium and replaces them with Hydrogen (acid).  The second step takes out the anions like sulfate, chloride, etc. replacing them with Hydroxyl (caustic).  The Hydrogen and Hydroxyl combine simply producing more water.  The result is that you have no (none, zilch) salts left.  That’s really great if you’re dealing with a soap that will crap out (precipitate) in the presence of salts.  But the deionizer doesn’t do anything about biologics like bacteria, or organics like gasoline, phenol or methyl-ethyl bad stuff. Distilled water will get rid of anything that evaporates at a higher temperature than water, but not lower unless a fractionating column is used like in a refinery (do the maker of distilled water use these?  Since most evil stuff in water is higher boiling than water, stills produce good water. Having said all of that, I use tap water.  Tap water is chlorinated, so any bugs should be dead.  Unless you’re dealing with a real fly-by-night water company, or have a non-certified well, the chemical load should be acceptable.  And the water may be a whole lot cleaner than the bottled water (depending on the care of the bottler).  I certainly agree with dump the water daily and rince the humidifier out.  Then weekly take the thing apart if you can and give it a good cleaning.  Note:  If your tap water is hard, then you must use distilled water.  Or you’ll build up a crust in the humidifier. Paul R

Response:

Forgot the most important factor:  My respiratory health has been much better since I’ve been on cpap.  And I’m not the only one to post this. – Hide quoted text — Show quoted text -NormC wrote:

Quick wrote: Norm, [I won't cut anything from the post since I notice you never do that but I've extracted the sections I wanted to comment on and brought them to the top. Original post is below in its entirety.] As far as cleaning any part of the humidifier, tube, mask system,  there isn’t any real reason to clean it at all.  You’re inhaling the same air you breath if you are awake, but it is filtered by the blower filter.  The distilled water vapor it picks up is, by definition, bacteria free. If you were to search the archives, you’d find that in the last 2 1/2 years, what I have indicated here is the prevailing opinion from long term users (4 years). In addition, there have been link to studies/tests about the impossibility of a heated humidifier and distilled water cauing any kind of illness. I agree that distilled water will not cause any illness by itself and its obvious that you are inhaling the same air you breath when awake. Is there anything about distilled water that would prevent it from being a good medium for "incubating" biological organisms? IMHO, yes, by definition of what distilled water is.  Although it’s in the archives, I will try to find the link that was posted by someone a couple years ago and satisfied me and a number of others who had been around here for longer than me. Based on your ‘probabilistic’ comment in the ‘lightning’ thread, I’m sure you will understand that I can’t say there is a zero probablility of any kind of incubation.  But, like you, I CAN say that, although 0, it is very, very small. Especially heated for periods of time and at room tempurature the rest of the time. Certainly the air you breath contains various agents in varying concentrations. While those things may be harmless in the air you breath I would think there is some small chance that some may become harmful if concentrated or allowed to "grow" or multiply in what amounts to a petri dish? (I could imagine this may be the fallacy in my thinking) I cleaned my system the first few months, per the handbook, until my cognition improved to the point that I could once again think clearly.   Then I realized that it didn’t make any sense (to me) and even the ratio of vinegar to water was not consistent from one manual to another or from one RT to another.  All of it was posted here.  See it in the archives. I haven’t washed any part of my system for over two years.  And that’s on top of having a compromised immune system and bronchial asthma. I do one thing that I’m not aware of anyone else doing:  Whe first day I started on cpap I dropped and broke one of the two humidifier reservoirs that came with the blower.  I wanted to have a spare, but they came in pairs.  So, I have three. I get a little uneasy when I see moisture accumulating at the top of the reservoir (don’t ask me why, because I haven’t the faintest idea), so I remove one when I don’t like the way it looks and replace it with another, letting the first completely dry until the same thing happens to the second one. The only other thing I do is pull the tube/hose off the humidifier every single morning, to let what little moisture accumulates at that end, dry.  Oh, yes, I wash my face every night. I run my tube/hose from one side to the other, above my head, on the pillow.  I have never had rainout, not even durng the rainy season. I use distilled water primarily for the lack of deposits since I am not  worried about my tap water (I wouldn’t be drinking it, cooking with it, or bathing in steamy showers with it otherwise). For me, 20-30 minutes in a steamy shower, where I live, results in more respiratory distress than 8 1/2 hours on my CPAP. For this reason (mistaken?) I dump the remains in my humidifier each morning — the RemStar humidifier chamber is easily removed, dumped, disassembled (remove bottom) and left to dry. Assuming this is possible I suppose that it may take days or weeks for anything harmful to "grow" or achieve harmful concentrations and constantly refilling the humidifier might have the effect of running water eliminating that. My daily routine involves: Remove hose from mask and humidifier and leave coiled on shelf to dry. Remove humidifier, dump, disassemble and leave on shelf to dry. Remove pillows from interface, wash with anti-bacterial hand soap, and leave on shelf to dry with the other part (mainly to remove skin oils, etc). Every couple of weeks or at most monthly I soak all the above and the air filter with dish soap in the kitchen sink. I figure letting everything dry puts you on par with the air you breath. Sounds like a good reson for my assuring that moisture doesn’t accumlate at the top of calibre 16 replica my reservoir or in the beginning of the tube/hose. HTH -Quick "NormC" <no…@socal.rr.com wrote in message news:3F049151.903@socal.rr.com… Bob – It becomes more clear (to me), every day, that even though we all speak English in the US, Canada, UK, and Australia, what the doctors tell us about sleep disorders, and the treatment we receive, in each country is noticeably different. Take Frankie, for example, in the UK.  She appears to have central apnea and the NHS just lets her drop by the wayside?!?!? Any idea of what they do about CA in Australia (or Canada)? Noone from Australia (or Canada) has responded to her posts. Maybe the word ‘distilled’ and ‘demineralized’ mean different things in Australia than the US.  But, I doubt it. IMHO you received a lot of questionable information from your sleep doctor.  Does he have any kind of certification to be a sleep doc, or don’t they have that sort of thing in Australia? As any kind of doctor, he should know the difference between distilled water and demineralzed water, as indicated by Lee. So a real (good) sleep doc, should know it. IIRC, Legionaires disease was first discovered in the US, at an American Legion Convention in a particular hotel.  IIRC it was associated with their refrigerated air conditioning system. I was not aware of one person giving another person Legionaires disease.  However, it has occurred more than once in the US in large groups. Every post I’ve ever read here indicated that their User Manual indicated distilled water.  Mine does.  What does your manual say? IMHO, the use of demineralized water would be totally inconsistent with trying to avoid any kind of ‘disease’.  And throwing away any unused distilled water is a waste of money. As far as cleaning any part of the humidifier, tube, mask system,  there isn’t any real reason to clean it at all.  You’re inhaling the same air you breath if you are awake, but it is filtered by the blower filter.  The distilled water vapor it picks up is, by definition, bacteria free. If you were to search the archives, you’d find that in the last 2 1/2 years, what I have indicated here is the prevailing opinion from long term users (4 years). In addition, there have been link to studies/tests about the impossibility of a heated humidifier and distilled water cauing any kind of illness. The bottom line is to do what you feel is appropriate for your well being (both physical and psychological). Bob in Aus wrote: I was a bit on the lazy side as well until it was put into terms that I now understand that it is not laziness but a necessity. I recently had a follow-up with my sleep doc and he explained to me why…. Use de-mineralised water, not tap water or distilled water. Empty out any remaining water in the humidifier on a daily basis. The reason he gave was simply de-mineralised water will harbour the least amount of bacteria, and will not leave any residue in the chamber (well, not any, but the least amount) Chuck out the remaining every morning as the Legionella (sp?) virus can kill you! Here in Australia, we hear of several (up to 10) per year cases of legionnaires disease, basically a virus that kills people. The source is usually traced to contaminated water in cooling systems in large office buildings, shopping centres or other public buildings. I think that by chucking out a bit of water each day, rather than breathing in a potential source for (often Fatal) infection for 7 1/2 hours a day a simple and worthwhile procedure. Put in these terms, that is a pretty good incentive for me to keep my humidifier clean! Bob in Aus "Tchmuzk" <tchm…@surfbest.net wrote in message news:be143p$og8$1@news.chatlink.com… I’ve been on CPAP for about 3-4 months now.  When I got my stuff, my DMA told me to use distilled water only in my humidifier.  Lazy SOB that I am, I never got any and have been using tap water since day one. Is this a real problem? I have heated humidity, but I don’t turn on the heat now that my forced hot air is off for the summer. Joe

Response:

- Hide quoted text — Show quoted text -Quick wrote:

Norm, [I won't cut anything from the post since I notice you never do that but I've extracted the sections I wanted to comment on and brought them to the top. Original post is below in its entirety.] As far as cleaning any part of the humidifier, tube, mask system,  there isn’t any real reason to clean it at all.  You’re inhaling the same air you breath if you are awake, but it is filtered by the blower filter.  The distilled water vapor it picks up is, by definition, bacteria free. If you were to search the archives, you’d find that in the last 2 1/2 years, what I have indicated here is the prevailing opinion from long term users (4 years). In addition, there have been link to studies/tests about the impossibility of a heated humidifier and distilled water cauing any kind of illness. I agree that distilled water will not cause any illness by itself and its obvious that you are inhaling the same air you breath when awake. Is there anything about distilled water that would prevent it from being a good medium for "incubating" biological organisms?

IMHO, yes, by definition of what distilled water is.  Although it’s in the archives, I will try to find the link that was posted by someone a couple years ago and satisfied me and a number of others who had been around here for longer than me. Based on your ‘probabilistic’ comment in the ‘lightning’ thread, I’m sure you will understand that I can’t say there is a zero probablility of any kind of incubation.  But, like you, I CAN say that, although

0, it is very, very small. Especially heated for periods of time and at room tempurature the rest of the time. Certainly the air you breath contains various agents in varying concentrations. While those things may be harmless in the air you breath I would think there is some small chance that some may become harmful if concentrated or allowed to "grow" or multiply in what amounts to a petri dish? (I could imagine this may be the fallacy in my thinking)

I cleaned my system the first few months, per the handbook, until my cognition improved to the point that I could once again think clearly.  Then I realized that it didn’t make any sense (to me) and even the ratio of vinegar to water was not consistent from one manual to another or from one RT to another.  All of it was posted here.  See it in the archives. I haven’t washed any part of my system for over two years.  And that’s on top of having a compromised immune system and bronchial asthma. I do one thing that I’m not aware of anyone else doing:  Whe first day I started on cpap I dropped and broke one of the two humidifier reservoirs that came with the blower.  I wanted to have a spare, but they came in pairs.  So, I have three. I get a little uneasy when I see moisture accumulating at the top of the reservoir (don’t ask me why, because I haven’t the faintest idea), so I remove one when I don’t like the way it looks and replace it with another, letting the first completely dry until the same thing happens to the second one. The only other thing I do is pull the tube/hose off the humidifier every single morning, to let what little moisture accumulates at that end, dry.  Oh, yes, I wash my face every night. I run my tube/hose from one side to the Knowledge other, above my head, on the pillow.  I have never had rainout, not even durng the rainy season.

I use distilled water primarily for the lack of deposits since I am not  worried about my tap water (I wouldn’t be drinking it, cooking with it, or bathing in steamy showers with it otherwise).

For me, 20-30 minutes in a steamy shower, where I live, results in more respiratory distress than 8 1/2 hours on my CPAP. – Hide quoted text — Show quoted text -

For this reason (mistaken?) I dump the remains in my humidifier each morning — the RemStar humidifier chamber is easily removed, dumped, disassembled (remove bottom) and left to dry. Assuming this is possible I suppose that it may take days or weeks for anything harmful to "grow" or achieve harmful concentrations and constantly refilling the humidifier might have the effect of running water eliminating that. My daily routine involves: Remove hose from mask and humidifier and leave coiled on shelf to dry. Remove humidifier, dump, disassemble and leave on shelf to dry. Remove pillows from interface, wash with anti-bacterial hand soap, and leave on shelf to dry with the other part (mainly to remove skin oils, etc). Every couple of weeks or at most monthly I soak all the above and the air filter with dish soap in the kitchen sink. I figure letting everything dry puts you on par with the air you breath.

Sounds like a good reson for my assuring that moisture doesn’t accumlate at the top of my reservoir or in the beginning of the tube/hose. HTH – Hide quoted text — Show quoted text -

-Quick "NormC" <no…@socal.rr.com wrote in message news:3F049151.903@socal.rr.com… Bob – It becomes more clear (to me), every day, that even though we all speak English in the US, Canada, UK, and Australia, what the doctors tell us about sleep disorders, and the treatment we receive, in each country is noticeably different. Take Frankie, for example, in the UK.  She appears to have central apnea and the NHS just lets her drop by the wayside?!?!? Any idea of what they do about CA in Australia (or Canada)? Noone from Australia (or Canada) has responded to her posts. Maybe the word ‘distilled’ and ‘demineralized’ mean different things in Australia than the US.  But, I doubt it. IMHO you received a lot of questionable information from your sleep doctor.  Does he have any kind of certification to be a sleep doc, or don’t they have that sort of thing in Australia? As any kind of doctor, he should know the difference between distilled water and demineralzed water, as indicated by Lee. So a real (good) sleep doc, should know it. IIRC, Legionaires disease was first discovered in the US, at an American Legion Convention in a particular hotel.  IIRC it was associated with their refrigerated air conditioning system. I was not aware of one person giving another person Legionaires disease.  However, it has occurred more than once in the US in large groups. Every post I’ve ever read here indicated that their User Manual indicated distilled water.  Mine does.  What does your manual say? IMHO, the use of demineralized water would be totally inconsistent with trying to avoid any kind of ‘disease’.  And throwing away any unused distilled water is a waste of money. As far as cleaning any part of the humidifier, tube, mask system,  there isn’t any real reason to clean it at all.  You’re inhaling the same air you breath if you are awake, but it is filtered by the blower filter.  The distilled water vapor it picks up is, by definition, bacteria free. If you were to search the archives, you’d find that in the last 2 1/2 years, what I have indicated here is the prevailing opinion from long term users (4 years). In addition, there have been link to studies/tests about the impossibility of a heated humidifier and distilled water cauing any kind of illness. The bottom line is to do what you feel is appropriate for your well being (both physical and psychological). Bob in Aus wrote: I was a bit on the lazy side as well until it was put into terms that I now understand that it is not laziness but a necessity. I recently had a follow-up with my sleep doc and he explained to me why…. Use de-mineralised water, not tap water or distilled water. Empty out any remaining water in the humidifier on a daily basis. The reason he gave was simply de-mineralised water will harbour the least amount of bacteria, and will not leave any residue in the chamber (well, not any, but the least amount) Chuck out the remaining every morning as the Legionella (sp?) virus can kill you! Here in Australia, we hear of several (up to 10) per year cases of legionnaires disease, basically a virus that kills people. The source is usually traced to contaminated water in cooling systems in large office buildings, shopping centres or other public buildings. I think that by chucking out a bit of water each day, rather than breathing in a potential source for (often Fatal) infection for 7 1/2 hours a day a simple and worthwhile procedure. Put in these terms, that is a pretty good incentive for me to keep my humidifier clean! Bob in Aus "Tchmuzk" <tchm…@surfbest.net wrote in message news:be143p$og8$1@news.chatlink.com… I’ve been on CPAP for about 3-4 months now.  When I got my stuff, my DMA told me to use distilled water only in my humidifier.  Lazy SOB that I am, I never got any and have been using tap water since day one. Is this a real problem? I have heated humidity, but I don’t turn on the heat now that my forced hot air is off for the summer. Joe

Response:

gaj wrote:

I wish your doctor would explain why demineralized water is better than distilled water.  Chemically, I believe that distilled water is as close to pure water that you can get, also that it is totally sterilized during distillation, which is not the case for demineralized water.   I use distilled because it does not leave any residue upon evaporation, and I clean it out every two or three months.

What do you clean out of it?   Tap water should be fine, Maybe your tap water…. but not mine.  Too many possible bacterial problems there, plus the smell of chlorination. – Hide quoted text — Show quoted text -

except for the heavy mineral deposits over time.  You can use vinegar to remove them periodically.

Response:

It is a problem. How big a problem depends upon how ‘hard’ your water is and your degree of toleratoin of the humidifier cleaning process. If you use distilled water, the humidifier needs cleaning less frequently. Period. regards, eric pearson db2e…@nospammindspring.com On Thu, 3 Jul 2003 07:29:53 -0400, "Tchmuzk" <tchm…@surfbest.net

wrote: – Hide quoted text — Show quoted text -

I’ve been on CPAP for about 3-4 months now.  When I got my stuff, my DMA told me to use distilled water only in my humidifier.  Lazy SOB that I am, I never got any and have been using tap water since day one. Is this a real problem? I have heated humidity, but I don’t turn on the heat now that my forced hot air is off for the summer. Joe

Response:

Norm, [I won't cut anything from the post since I notice you never do that but I've extracted the sections I wanted to comment on and brought them to the top. Original post is below in its entirety.]

As far as cleaning any part of the humidifier, tube, mask system,   there isn’t any real reason to clean it at all.  You’re inhaling the same air you breath if you are awake, but it is filtered by the blower filter.  The distilled water vapor it picks up is, by definition, bacteria free. If you were to search the archives, you’d find that in the last 2 1/2 years, what I have indicated here is the prevailing opinion from long term users (4 years). In addition, there have been link to studies/tests about the impossibility of a heated humidifier and distilled water cauing any kind of illness.

I agree that distilled water will not cause any illness by itself and its obvious that you are inhaling the same air you breath when awake. Is there anything about distilled water that would prevent it from being a good medium for "incubating" biological organisms? Especially heated for periods of time and at room tempurature the rest of the time. Certainly the air you breath contains various agents in varying concentrations. While those things may be harmless in the air you breath I would think there is some small chance that some may become harmful if concentrated or allowed to "grow" or multiply in what amounts to a petri dish? (I could imagine this may be the fallacy in my thinking) I use distilled water primarily for the lack of deposits since I am not  worried about my tap water (I wouldn’t be drinking it, cooking with it, or bathing in steamy showers with it otherwise). For this reason (mistaken?) I dump the remains in my humidifier each morning — the RemStar humidifier chamber is easily removed, dumped, disassembled (remove bottom) and left to dry. Assuming this is possible I suppose that it may take days or weeks for anything harmful to "grow" or achieve harmful concentrations and constantly refilling the humidifier might have the effect of running water eliminating that. My daily routine involves: Remove hose from mask and humidifier and leave coiled on shelf to dry. Remove humidifier, dump, disassemble and leave on shelf to dry. Remove pillows from interface, wash with anti-bacterial hand soap, and leave on shelf to dry with the other part (mainly to remove skin oils, etc). Every couple of weeks or at most monthly I soak all the above and the air filter with dish soap in the kitchen sink. I figure letting everything dry puts you on par with the air you breath. -Quick "NormC" <no…@socal.rr.com

wrote in message

news:3F049151.903@socal.rr.com… – Hide quoted text — Show quoted text -> Bob – It becomes more clear (to me), every day, that even though > we all speak English in the US, Canada, UK, and Australia, what > the doctors tell us about sleep disorders, and the treatment we > receive, in each country is noticeably different. > Take Frankie, for example, in the UK.  She appears to have > central apnea and the NHS just lets her drop by the wayside?!?!? > Any idea of what they do about CA in Australia (or Canada)? > Noone from Australia (or Canada) has responded to her posts. > Maybe the word ‘distilled’ and ‘demineralized’ mean different > things in Australia than the US.  But, I doubt it. > IMHO you received a lot of questionable information from your > sleep doctor.  Does he have any kind of certification to be a > sleep doc, or don’t they have that sort of thing in Australia? > As any kind of doctor, he should know the difference between > distilled water and demineralzed water, as indicated by Lee. So a > real (good) sleep doc, should know it. > IIRC, Legionaires disease was first discovered in the US, at an > American Legion Convention in a particular hotel.  IIRC it was > associated with their refrigerated air conditioning system. > I was not aware of one person giving another person Legionaires > disease.  However, it has occurred more than once in the US in > large groups. > Every post I’ve ever read here indicated that their User Manual > indicated distilled water.  Mine does.  What does your manual say? > IMHO, the use of demineralized water would be totally > inconsistent with trying to avoid any kind of ‘disease’.  And > throwing away any unused distilled water is a waste of money.

As far as cleaning any part of the humidifier, tube, mask system,   there isn’t any real reason to clean it at all.  You’re inhaling the same air you breath if you are awake, but it is filtered by the blower filter.  The distilled water vapor it picks up is, by definition, bacteria free. If you were to search the archives, you’d find that in the last 2 1/2 years, what I have indicated here is the prevailing opinion from long term users (4 years). In addition, there have been link to studies/tests about the impossibility of a heated humidifier and distilled water cauing any kind of illness.

> The bottom line is to do what you feel is appropriate for your > well being (both physical and psychological). > Bob in Aus wrote: > > I was a bit on the lazy side as well until it was put into terms that I now

understand that it is not laziness but a necessity. I recently had a follow-up with my sleep doc and he explained to me

why….

Use de-mineralised water, not tap water or distilled water. Empty out any remaining water in the humidifier on a daily basis. The reason he gave was simply de-mineralised water will harbour the

least

amount of bacteria, and will not leave any residue in the chamber (well,

not

any, but the least amount) Chuck out the remaining every morning as the Legionella (sp?) virus can

kill

you! Here in Australia, we hear of several (up to 10) per year cases of legionnaires disease, basically a virus that kills people. The source is usually traced to contaminated water in cooling systems in large office buildings, shopping centres or other public buildings. I think that by chucking out a bit of water each day, rather than

breathing

in a potential source for (often Fatal) infection for 7 1/2 hours a day

a > > simple and worthwhile procedure. > > Put in these terms, that is a pretty good incentive for me to keep my > > humidifier clean! > > Bob in Aus > > "Tchmuzk" <tchm…@surfbest.net

wrote in message

> > news:be143p$og8$1@news.chatlink.com… > >>I’ve been on CPAP for about 3-4 months now.  When I got my stuff, my DMA > >>told me to use distilled water only in my humidifier.  Lazy SOB that I am,

I never got any and have been using tap water since day one. Is this a real problem? I have heated humidity, but I don’t turn on the heat now that my forced hot air is off for the summer. Joe

Response:

I wish your doctor would explain why demineralized water is better than distilled water.  Chemically, I believe that distilled water is as close to pure water that you can get, also that it is totally sterilized during distillation, which is not the case for demineralized water.   I use distilled because it does not leave any residue upon evaporation, and I clean it out every two or three months.  Tap water should be fine, except for the heavy mineral deposits over time.  You can use vinegar to remove them periodically. — Glenn

Response:

"Lee Babcock" <leebabc…@pathcom.com

wrote

– Hide quoted text — Show quoted text -> Quick wrote: > > "Bob in Aus" <bREMOVEo…@norcom.net.au.remove.me

wrote

> > > Use de-mineralised water, not tap water or distilled water. > > I always thought distilled water *was* de-mineralised? > > Can somebody elaborate on the differences? I suppose there > > is a difference in the process to produce it? > > -Quick > Distilled water is de-mineralized among other things, but de-mineralized > water is water that was passed through a mechanical filter to remove the > minerals. > The heat of the distillation process also kills bacteria and the > evaporation of the condesation of the vapour leaves you with just water. > Regards > Lee in Toronto

So this is what confused me. From Bob’s post his doctor told him that de-mineralised water would have less chance of being or getting biologically contaminated.  Was it a typo? -Quick

Response:

Bob – It becomes more clear (to me), every day, that even though we all speak English in the US, Canada, UK, and Australia, what the doctors tell us about sleep disorders, and the treatment we receive, in each country is noticeably different. Take Frankie, for example, in the UK.  She appears to have central apnea and the NHS just lets her drop by the wayside?!?!? Any idea of what they do about CA in Australia (or Canada)? Noone from Australia (or Canada) has responded to her posts. Maybe the word ‘distilled’ and ‘demineralized’ mean different things in Australia than the US.  But, I doubt it. IMHO you received a lot of questionable information from your sleep doctor.  Does he have any kind of certification to be a sleep doc, or don’t they have that sort of thing in Australia? As any kind of doctor, he should know the difference between distilled water and demineralzed water, as indicated by Lee. So a real (good) sleep doc, should know it. IIRC, Legionaires disease was first discovered in the US, at an American Legion Convention in a particular hotel.  IIRC it was associated with their refrigerated air conditioning system. I was not aware of one person giving another person Legionaires disease.  However, it has occurred more than once in the US in large groups. Every post I’ve ever read here indicated that their User Manual indicated distilled water.  Mine does.  What does your manual say? IMHO, the use of demineralized water would be totally inconsistent with trying to avoid any kind of ‘disease’.  And throwing away any unused distilled water is a waste of money. As far as cleaning any part of the humidifier, tube, mask system,   there isn’t any real reason to clean it at all.  You’re inhaling the same air you breath if you are awake, but it is filtered by the blower filter.  The distilled water vapor it picks up is, by definition, bacteria free. If you were to search the archives, you’d find that in the last 2 1/2 years, what I have indicated here is the prevailing opinion from long term users (

4 years).

In addition, there have been link to studies/tests about the impossibility of a heated humidifier and distilled water cauing any kind of illness. The bottom line is to do what you feel is appropriate for your well being (both physical and psychological). – Hide quoted text — Show quoted text -Bob in Aus wrote:

I was a bit on the lazy side as well until it was put into terms that I now understand that it is not laziness but a necessity. I recently had a follow-up with my sleep doc and he explained to me why…. Use de-mineralised water, not tap water or distilled water. Empty out any remaining water in the humidifier on a daily basis. The reason he gave was simply de-mineralised water will harbour the least amount of bacteria, and will not leave any residue in the chamber (well, not any, but the least amount) Chuck out the remaining every morning as the Legionella (sp?) virus can kill you! Here in Australia, we hear of several (up to 10) per year cases of legionnaires disease, basically a virus that kills people. The source is usually traced to contaminated water in cooling systems in large office buildings, shopping centres or other public buildings. I think that by chucking out a bit of water each day, rather than breathing in a potential source for (often Fatal) infection for 7 1/2 hours a day a simple and worthwhile procedure. Put in these terms, that is a pretty good incentive for me to keep my humidifier clean! Bob in Aus "Tchmuzk" <tchm…@surfbest.net wrote in message news:be143p$og8$1@news.chatlink.com… I’ve been on CPAP for about 3-4 months now.  When I got my stuff, my DMA told me to use distilled water only in my humidifier.  Lazy SOB that I am, I never got any and have been using tap water since day one. Is this a real problem? I have heated humidity, but I don’t turn on the heat now that my forced hot air is off for the summer. Joe

Response:

I’ve been on CPAP for about 3-4 months now.  When I got my stuff, my DMA told me to use distilled water only in my humidifier.  Lazy SOB that I am, I never got any and have been using tap water since day one. Is this a real problem? I have heated humidity, but I don’t turn on the heat now that my forced hot air is off for the summer. Joe

Response:

I was a bit on the lazy side as well until it was put into terms that I now understand that it is not laziness but a necessity. I recently had a follow-up with my sleep doc and he explained to me why…. Use de-mineralised water, not tap water or distilled water. Empty out any remaining water in the humidifier on a daily basis. The reason he gave was simply de-mineralised water will harbour the least amount of bacteria, and will not leave any residue in the chamber (well, not any, but the least amount) Chuck out the remaining every morning as the Legionella (sp?) virus can kill you! Here in Australia, we hear of several (up to 10) per year cases of legionnaires disease, basically a virus that kills people. The source is usually traced to contaminated water in cooling systems in large office buildings, shopping centres or other public buildings. I think that by chucking out a bit of water each day, rather than breathing in a potential source for (often Fatal) infection for 7 1/2 hours a day a simple and worthwhile procedure. Put in these terms, that is a pretty good incentive for me to keep my humidifier clean! Bob in Aus "Tchmuzk" <tchm…@surfbest.net

wrote in message

news:be143p$og8$1@news.chatlink.com… – Hide quoted text — Show quoted text -

I’ve been on CPAP for about 3-4 months now.  When I got my stuff, my DMA told me to use distilled water only in my humidifier.  Lazy SOB that I am,

I

never got any and have been using tap water since day one. Is this a real problem? I have heated humidity, but I don’t turn on the heat now that my forced

hot

air is off for the summer. Joe

Response:

I’ve been on CPAP for about 3-4 months now.  When I got my stuff, my DMA told me to use distilled water only in my humidifier.  Lazy SOB that I am,

I

never got any and have been using tap water since day one. Is this a real problem?

http://www.talhost.net/sleep/cpap.htm#humidifiers — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://talhost.net/sleep this site is a work in progress – feel free to submit info/articles Remove my name to reply

Response:

"Bob in Aus" <bREMOVEo…@norcom.net.au.remove.me

wrote Use de-mineralised water, not tap water or distilled water.

I always thought distilled water *was* de-mineralised? Can somebody elaborate on the differences? I suppose there is a difference in the process to produce it? -Quick

Response:

Quick wrote:

"Bob in Aus" <bREMOVEo…@norcom.net.au.remove.me wrote Use de-mineralised water, not tap water or distilled water. I always thought distilled water *was* de-mineralised? Can somebody elaborate on the differences? I suppose there is a difference in the process to produce it? -Quick

Distilled water is de-mineralized among other things, but de-mineralized water is water that was passed through a mechanical filter to remove the minerals. The heat of the distillation process also kills bacteria and the evaporation of the condesation of the vapour leaves you with just water. Regards Lee in Toronto —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 80,000 Newsgroups – 16 Different Servers! =—–

Response:

Venting a Little Pettiness and Hate

Question:

On a serious note, we got the call from the evaluator to make an appointment for Brian and BM together next week, as he is finishing up his report.  I swear every time the phone rings or the mail comes I get sick to my stomach these days.  I will be so glad when this is over.

Geri, I’ve forgotten, when is the court date? I know what it is like to live with chronic anxiety.  I hope it will be over for you soon. Sheila

Response:

Geri, I’ve forgotten, when is the court date? I know what it is like to live with chronic anxiety.  I hope it will be over for you soon.

July 8, if it doesn’t get continued again. Tonight we had an appointment with SD’s psychiatrist with us, SD and BM.  SD has this infection that started this week inside her mouth and BM has been treating it like a canker sore.  The whole bottom gum has pus pockets.  BM didn’t even notice that skin had grown over that earring back until I asked SD how her ear was.  BM said, "I didn’t even know about it."  (it happened during her time)  She wanted to see the ear then and SD said, "I don’t want you to touch it." to her.  We pretty much noticed (again) that SD just walks all over BM and BM just pleads with her to do whatever, which SD ignores.  Also as BM was shooting her mouth off, it came out that six months after SD has been on her Strattera, BM still doesn’t know how it works, because she asked a bunch of stupid questions she should have known the answer to.  She is an idiot. The topper is that after we have been strong-armed into sending SD to summer school by the school and district, as well as getting pounced on by the evaluator about it, because BM was going to, it turns out that BM doesn’t plan on sending SD to summer school, because she doesn’t have daycare/aftercare that will work for her.  So, we are going to have to figure out (again) what is going to happen with SD for summer.  We wanted her to stay home in the first place.  OTOH, SD is missing out what the school district "recommends" because BM doesn’t have daycare.  (We did get a note from SD’s psychiatrist stating that in his opinion, her riding all that way for half-day summer school is not in her best interest.) This woman is a f**king train wreck who does not deserve to have a pet rock, much less a child. ~~Geri~~ "Filled with doomsday devices and liberally enhanced with enormous metal doors that slam shut with nerve jangling severity, an underground headquarters is a diabolical lair of which you can be proud." (*How To Be A Villain*)

Response:

Geri, first of all, I cannot *wait* for you to be on the back side of all this court stuff.  I know it’s wearing on you. (((((((((((((GERI)))))))))))))))))))

Thanks, Ruth!  At least being able to buy that new pink purse cheered me up for a few days!  I cannot tell you how glad I will be to just have this OVER, one way or the other – then I can stop imagining all the different ways we can get screwed in this deal and just deal with what happens.

I love it!  my Dr. told me to do a sinus wash with one of those baby-booger-sucker-outers, but it really gagged me.

I tried this once on myself without success, just to see if it would work.  I figured if it works on kids, it might work for me.  No such luck.

I researched and discovered sinus washing with a waterpik type device, and it is truly amazing.  My ENT recommends it too.

I may have to investigate this, because this SoCal climate does not agree with my sinuses at all.  All the years I lived in Kansas City, I never had to take any allergy or asthma medication at all. ~~Geri~~ "Filled with doomsday devices and liberally enhanced with enormous metal doors that slam shut with nerve jangling severity, an underground headquarters is a diabolical lair of which you can be proud." (*How To Be A Villain*)

Response:

It showed up late and knocked over a few people getting to a chair.  There should be a law against capri pants on an ass (and gut) that wide.  Really, it was a very scary Glamour "Don’t".  Pair that with a skin tight tee that showed every roll of blubber and it was a frightening thing.  

Grin.  You crack me up…. I hope the job turns out great for Brian :) "This time: gonna do it RIGHT!" — Bob Seger Jennaii

Response:

I hope the job turns out great for Brian :)

Thanks!  Me too! ~~Geri~~ "Filled with doomsday devices and liberally enhanced with enormous metal doors that slam shut with nerve jangling severity, an underground headquarters is a diabolical lair of which you can be proud." (*How To Be A Villain*)

Response:

"Geri and sometimes Brian" <gplen…@aol.commotion

wrote in message

news:20030611191635.04144.00000604@mb-m28.aol.com… <snip

It showed up late and knocked over a few people getting to a chair.  There should be a law against capri pants on an ass (and gut) that wide.

Really, it

was a very scary Glamour "Don’t".  Pair that with a skin tight tee that

showed

every roll of blubber and it was a frightening thing.

OMG.  Our BM’s must be twins…  Ours prefers stretch pants (sometimes capri) with her too tight shirts – you could usually play dot to dot with her celulite dimples if you were so inclined and heaven help your eyesight when the shirt and pants to reach each other…   I’ve have several friends who are somewhat large, but they dress appropriately for it and look fine. Wendi

Response:

OMG.  Our BM’s must be twins…  Ours prefers stretch pants (sometimes capri) with her too tight shirts – you could usually play dot to dot with her celulite dimples if you were so inclined and heaven help your eyesight when the shirt and pants to reach each other…

ROFL!! On a serious note, we got the call from the evaluator to make an appointment for Brian and BM together next week, as he is finishing up his report.  I swear every time the phone rings or the mail comes I get sick to my stomach these days.  I will be so glad when this is over. ~~Geri~~ "Filled with doomsday devices and liberally enhanced with enormous metal doors that slam shut with nerve jangling severity, an underground headquarters is a diabolical lair of which you can be proud." (*How To Be A Villain*)

Response:

"Geri and sometimes Brian" <gplen…@aol.commotion

wrote in message

news:20030611191635.04144.00000604@mb-m28.aol.com…

Being somewhat small and competitive about it, without apology, I was

pleased

to note I have the better camera and had the better location for taking pictures, the better outfit and the cuter new handbag.

Geri! For shame! Competitive? You should be appalled at yourself. Talk about swatting a fly with a Buick. Of COURSE you have a better everything than BM. Gimme a break. I can’t even imagine that you’d look at her long enough to make the comparison. I think that probably one of the biggest reasons that BM has a problem with you…okay, well, the biggest reason is just that she’s an ass, plain and simple…but besides that, I’ll bet that SD can’t stop talking about Geri does this and Geri does that and Geri’s hair is so pretty and Geri taught me to do it (some prissy, girly totally princess thing) this way. I’ll bet you anything she idolizes you. Hang in there, I.

Response:

"Conspicuous" <listmas…@internetfornospamtherestofus.com

wrote in message

news:0RRFa.13006

Yech. Mika! Nothing like adding insult to injury. Hey, would you like me

to

do some research on why this lady was put in jail for the alienation/visitation denial stuff? It’s local and I’ll bet I could find

out

what happened if it will help.

Sure. That would be terrific. Thanks. The more information we can get the better. DH and I have taken a page from Geri and Brian’s book and started really educating ourselves about the laws and all that stuff. We also started organizing all correspondence and documents and all that. I am now working on 3" – 3 ring binder #5. The other four are stuffed full. Feel free to email me privately if you want to. Mika

Response:

Of COURSE you have a better everything than BM. Gimme a break. I can’t even imagine that you’d look at her long enough to make the comparison.

LOL!  Irene, you are my new best friend!  As far as looking at her, well you know, it is the whole trainwreck phenomenon – it is hard not to look.

but besides that, I’ll bet that SD can’t stop talking about Geri does this and Geri does that and Geri’s hair is so pretty and Geri taught me to do it (some prissy, girly totally princess thing) this way. I’ll bet you anything she idolizes you.

You know when she chopped all her bangs off over Christmas at her mom’s house (unsupervised), it was because she said she wanted to have bangs like mine. (I don’t have bangs.  I pulled my hair forward over my face so she could see where my bangs would be.)  I am sure that didn’t go over well. What is really kind of sad for SD in the whole deal is that unfortunately BM is unable to appreciate that I might bring some different things to SD’s life that she is not willing or able to do.  (Jane, one time, had an excellent post about her kid’s SM and that very subject.)  I, on the other hand, am perfectly capable of realizing that BM brings that special ability to walk, talk and sit like a truck driver (with apologies to any truck drivers out there) and that is something she would never learn from me. :-) ~~Geri~~ "Filled with doomsday devices and liberally enhanced with enormous metal doors that slam shut with nerve jangling severity, an underground headquarters is a diabolical lair of which you can be proud." (*How To Be A Villain*)

Response:

In article <20030611222124.23175.00000…@mb-m21.aol.com

,

Geri and sometimes Brian <gplen…@aol.commotion

wrote: Thanks, Mika!  Do you know, I have a nasal spray that finally seems to help my sinus headaches and I haven’t had one for a few days now, but don’t you know that the minute before I left to go to this thing, I was hit with a raging headache.  Coincidence much? ~~Geri~~

What do you use?  Rhinocort has been my miracle allery med–for the first time in many, many years I feel like I have no allergies at all! Deb R. – Hide quoted text — Show quoted text –

Response:

What do you use?  Rhinocort has been my miracle allery med–for the first time in many, many years I feel like I have no allergies at all!

I am using NasalCrom, which is OTC.  Brian’s doctor gave some to him when he had a sinus infection to use, along with an antibiotic and Allegra, and he had great results.  I used to use Flonase with good results, but didn’t want to go to the doctor unless I have to. ~~Geri~~ "Filled with doomsday devices and liberally enhanced with enormous metal doors that slam shut with nerve jangling severity, an underground headquarters is a diabolical lair of which you can be proud." (*How To Be A Villain*)

Response:

"Geri and sometimes Brian" <gplen…@aol.commotion

wrote in message

news:20030611222124.23175.00000272@mb-m21.aol.com…

Geri, my hugs, prayers and sympathy are on approach to your doorstep. I totally understand your frustration and feeling that it would be so easy just to move on and not have the burden anymore. There have been so many things going through our minds along the same lines. Thanks, Mika!  Do you know, I have a nasal spray that finally seems to

help my

sinus headaches and I haven’t had one for a few days now, but don’t you

know

that the minute before I left to go to this thing, I was hit with a raging headache.  Coincidence much?

Ughhhh!! I hate that for you. Sinus headaches are nasty. We must be having simultaneous bouts of nerves. While we were on our journey, I broke out with a nasty case of shingles. Never had them before in my life but did have chickenpox when I was about 4. It started out with a tiny little blister. DH said it looked like a bug bite. But it just kept spreading and feeling like clusters of blisters. And itched like all get out. It’s finally clearing up now but it still itches. So I guess we’re both enjoying these *cough* wonderful *choke* coincidences. :-/ Mika

Response:

"Deborah M Riel" <dr…@wpi.edu

wrote in message

news:bc8obj$cr7$1@bigboote.WPI.EDU…

What do you use?  Rhinocort has been my miracle allery med–for the first time in many, many years I feel like I have no allergies at all!

I use the Rhinocort Aqua with Allegra. I never really had allergy problems until we moved to NY. Then I was suddenly being plagued with allergy induced bronchial asthma. And I have NEVER had asthma. But the Rhinocort Aqua and Allegra sure help me and here in NY we have some nasty pollen and mold. Not to mention the smog/pollution. Mika

Response:

"Mika" <tajmaha…@hotmail.com

wrote in message

news:UKRFa.27440$ly.11805638@news4.srv.hcvlny.cv.net…

Ughhhh!! I hate that for you. Sinus headaches are nasty. We must be having simultaneous bouts of nerves. While we were on our journey, I broke out

with

a nasty case of shingles. Never had them before in my life but did have chickenpox when I was about 4. It started out with a tiny little blister.

DH

said it looked like a bug bite. But it just kept spreading and feeling

like

clusters of blisters. And itched like all get out. It’s finally clearing

up

now but it still itches. So I guess we’re both enjoying these *cough* wonderful *choke* coincidences. :-/

Yech. Mika! Nothing like adding insult to injury. Hey, would you like me to do some research on why this lady was put in jail for the alienation/visitation denial stuff? It’s local and I’ll bet I could find out what happened if it will help. Best, I – Hide quoted text — Show quoted text -

Mika

Response:

Geri and sometimes Brian <gplen…@aol.commotion

wrote: Thanks, Mika!  Do you know, I have a nasal spray that finally seems to

help my

sinus headaches and I haven’t had one for a few days now, but don’t you

know

that the minute before I left to go to this thing, I was hit with a

raging

headache.  Coincidence much? ~~Geri~~ What do you use?  Rhinocort has been my miracle allery med–for the first time in many, many years I feel like I have no allergies at all! Deb R.

Geri, first of all, I cannot *wait* for you to be on the back side of all this court stuff.  I know it’s wearing on you. (((((((((((((GERI))))))))))))))))))) secondly, you guys may think I’m weird, but I’ll risk it….LOL…  I have discovered sinus irrigation!!  I love it!  my Dr. told me to do a sinus wash with one of those baby-booger-sucker-outers, but it really gagged me.  so I researched and discovered sinus washing with a waterpik type device, and it is truly amazing.  My ENT recommends it too. here’s a link in case you want to check it out: http://www.pharmacy-solutions.com/hp.htm — God Bless! ——- Ruth Berry Signature Images http://www.berryimages.com Psalms 27:14  Wait on the Lord: be of good courage, and He shall strengthen thine heart: wait, I say, on the Lord.

Response:

"Geri and sometimes Brian" <gplen…@aol.commotion

wrote in message

news:20030611191635.04144.00000604@mb-m28.aol.com…

(Snarky bitching alert!)  Ugh.  I have never, ever met another individual

who

grates on my nerves like a dull saw as my SD’s BM.  I have to type this

out to

get it out of my system for today.

Geri, my hugs, prayers and sympathy are on approach to your doorstep. I totally understand your frustration and feeling that it would be so easy just to move on and not have the burden anymore. There have been so many things going through our minds along the same lines. Mika

Response:

Geri, my hugs, prayers and sympathy are on approach to your doorstep. I totally understand your frustration and feeling that it would be so easy just to move on and not have the burden anymore. There have been so many things going through our minds along the same lines.

Thanks, Mika!  Do you know, I have a nasal spray that finally seems to help my sinus headaches and I haven’t had one for a few days now, but don’t you know that the minute before I left to go to this thing, I was hit with a raging headache.  Coincidence much? ~~Geri~~ "Filled with doomsday devices and liberally enhanced with enormous metal doors that slam shut with nerve jangling severity, an underground headquarters is a diabolical lair of which you can be proud." (*How To Be A Villain*)

Response:

It really does help to vent a bit, doesn’t it :)

It really does. (snip)

(One of them even said something to Brian about how cute she is dressed on our weeks and he gave the credit to me, which he knew would please me.) SD will remember this many years from now.

I hope she does.  I am surprised she didn’t rebel about the sandals/socks thing.  But, especially if it turns out that I don’t get to see her anymore, I hope she remembers that I bought her cute clothes and shoes! (Her mom doesn’t like to shop, so it is hand-me-down city for her at her other house.) One thing that was interesting was that evidently she discovered this imbedded earring back during the little program and she came over to show me, not her mom. ~~Geri~~ "Filled with doomsday devices and liberally enhanced with enormous metal doors that slam shut with nerve jangling severity, an underground headquarters is a diabolical lair of which you can be proud." (*How To Be A Villain*)

Response:

(((((((((((((((hug))))))))))))))))))))) next round of margaritas are on me! *bri  (who has been known to refer to her ex as ‘it’ from time to time out of earshot of my DS)

Well, this whole ordeal is enough to drive a  person to drink and I rarely drink!   ~~Geri~~ "Filled with doomsday devices and liberally enhanced with enormous metal doors that slam shut with nerve jangling severity, an underground headquarters is a diabolical lair of which you can be proud." (*How To Be A Villain*)

Response:

(((((((((((((((hug))))))))))))))))))))) next round of margaritas are on me! *bri  (who has been known to refer to her ex as ‘it’ from time to time out of earshot of my DS) "Geri and sometimes Brian" <gplen…@aol.commotion

wrote in message

news:20030611191635.04144.00000604@mb-m28.aol.com… – Hide quoted text — Show quoted text -

(Snarky bitching alert!)  Ugh.  I have never, ever met another individual

who

grates on my nerves like a dull saw as my SD’s BM.  I have to type this

out to

get it out of my system for today. Today was a little award program they put on over at Stalag 13 where every

kid

got some sort of certificate – a feel goody sort of deal for the kids.  I

went

to it, although Brian had to work.  (Yay!  Even though it is a temp job,

it has

potential to be permanent, and depending on the outcome of the custody

hearing,

this (big!) corporation also has a large branch in Omaha.)  Of course I suspected BM would be there, and it was.   Thank God I didn’t have to

speak to

it. It showed up late and knocked over a few people getting to a chair.  There should be a law against capri pants on an ass (and gut) that wide.

Really, it

was a very scary Glamour "Don’t".  Pair that with a skin tight tee that

showed

every roll of blubber and it was a frightening thing.  Not only that she

had SD

dressed in a pink tee and capri jeans that clearly had seen better days,

and

these dirty white heeled sandal things with PINK SOCKS!!  Sandals with

socks

… shudder!    (Ok, ok, I know this is not a big deal in the big scheme

of

things, but it still is icky.) It also turns out that BM has not been paying attention to SD’s earrings

this

week and skin has grown over the back of one of them.  SD came over and

showed

me this, and it is going to *hurt* to get it out.  (I am going to see if I

can

get some Emla cream to use.)  Naturally, her mom was not even aware of

this.

Also, SD showed me a large infected area in her mouth that BM has done

nothing

about except have her rinse with salt water.  I got a picture of this "to

show

dad". SD was happy with her little certificates (which BM *immediately* grabbed)

and

I took a bunch of pictures of her.  I also called Brian on the cell phone

and

let him talk to SD for a couple of minutes until BM rushed her off the

phone.

SD seemed really happy that I was there, as well as BM.  BM did its level

best

to keep her away from me, but SD did get away a few times, to visit with

me.

Being somewhat small and competitive about it, without apology, I was

pleased

to note I have the better camera and had the better location for taking pictures, the better outfit and the cuter new handbag.  Additionally, I

have

the knowledge that on our custody weeks, every single day SD gets a

compliment

on her outfit of the day from one or more staff member and this does not

happen

on BM’s weeks.  (One of them even said something to Brian about how cute

she is

dressed on our weeks and he gave the credit to me, which he knew would

please

me.) I guess I will probably be more relaxed when this custody evaluation is

over,

one way or the other.  Brian and SD had another visit last week (which I

was

not invited to) with evaluator where they had to play with that doll house again.  Brian and I both feel that we are not really being heard by this

guy

and that he is basing his decision on the psychological tests and the collateral information provided by others, but I guess we will see. Next week, BM and SD will be doing the same visit and BM called to *inform

us*

she would be taking three of our custody hours next week to do this

because of

the doctor’s schedule.  We are not throwing it at her that she just broke

a

court order to plan this, because we want to look cooperative to the

evaluator,

but she didn’t even take into account our schedule next week when she made

this

plan. I am sure there is more to bitch about, but I need to go to the store. Grrrrrrrrrr. ~~Geri~~ "Becoming a brain in a jar has been a favorite strategy among

supervillains for

decades." (*How To Be A Villain*)

Response:

(Snarky bitching alert!)  Ugh.  I have never, ever met another individual who grates on my nerves like a dull saw as my SD’s BM.  I have to type this out to get it out of my system for today. Today was a little award program they put on over at Stalag 13 where every kid got some sort of certificate – a feel goody sort of deal for the kids.  I went to it, although Brian had to work.  (Yay!  Even though it is a temp job, it has potential to be permanent, and depending on the outcome of the custody hearing, this (big!) corporation also has a large branch in Omaha.)  Of course I suspected BM would be there, and it was.   Thank God I didn’t have to speak to it. It showed up late and knocked over a few people getting to a chair.  There should be a law against capri pants on an ass (and gut) that wide.  Really, it was a very scary Glamour "Don’t".  Pair that with a skin tight tee that showed every roll of blubber and it was a frightening thing.  Not only that she had SD dressed in a pink tee and capri jeans that clearly had seen better days, and these dirty white heeled sandal things with PINK SOCKS!!  Sandals with socks … shudder!    (Ok, ok, I know this is not a big deal in the big scheme of things, but it still is icky.) It also turns out that BM has not been paying attention to SD’s earrings this week and skin has grown over the back of one of them.  SD came over and showed me this, and it is going to *hurt* to get it out.  (I am going to see if I can get some Emla cream to use.)  Naturally, her mom was not even aware of this.   Also, SD showed me a large infected area in her mouth that BM has done nothing about except have her rinse with salt water.  I got a picture of this "to show dad". SD was happy with her little certificates (which BM *immediately* grabbed) and I took a bunch of pictures of her.  I also called Brian on the cell phone and let him talk to SD for a couple of minutes until BM rushed her off the phone. SD seemed really happy that I was there, as well as BM.  BM did its level best to keep her away from me, but SD did get away a few times, to visit with me. Being somewhat small and competitive about it, without apology, I was pleased to note I have the better camera and had the better location for taking pictures, the better outfit and the cuter new handbag.  Additionally, I have the knowledge that on our custody weeks, every single day SD gets a compliment on her outfit of the day from one or more staff member and this does not happen on BM’s weeks.  (One of them even said something to Brian about how cute she is dressed on our weeks and he gave the credit to me, which he knew would please me.) I guess I will probably be more relaxed when this custody evaluation is over, one way or the other.  Brian and SD had another visit last week (which I was not invited to) with evaluator where they had to play with that doll house again.  Brian and I both feel that we are not really being heard by this guy and that he is basing his decision on the psychological tests and the collateral information provided by others, but I guess we will see. Next week, BM and SD will be doing the same visit and BM called to *inform us* she would be taking three of our custody hours next week to do this because of the doctor’s schedule.  We are not throwing it at her that she just broke a court order to plan this, because we want to look cooperative to the evaluator, but she didn’t even take into account our schedule next week when she made this plan. I am sure there is more to bitch about, but I need to go to the store. Grrrrrrrrrr. ~~Geri~~ "Becoming a brain in a jar has been a favorite strategy among supervillains for decades." (*How To Be A Villain*)

Response:

Strattera FAQ?

Question:

Well, I realize that asking a group of ADDers to collaborate on a project could be asking for trouble, but maybe we can do this! :)  (I resemble that remark!) So far I’ve discovered that forums and usenet have been the best source of strattera information.  www.strattera.com is utterly useless, since it’s mostly put together by evil marketing people. It just seems like we’re all looking for information on this stuff, and that when we see it it’s like gold.  And also I’ve noticed that side effects thread have a tendency to bring on "Oh, thank god it’s not just me…" effect. Anyway, anybody good at putting together FAQs?  It doesn’t have to be fancy.  We can get started easier.  I think everybody wants to know Q.  What are are ALL the possible side effects?  (this has been under reported IMHO) Q.  Describe these sexual side effects?  (people are afraid to talk about this, so we might as well get it out there) Q.  Do the side effects go away?  How long does it take? Q.  How long does it take to work? (varies) Q.  Sources/links with strattera information? This is not frequently asked, but I think it may be on everybody’s mind.  We all probably read the pamphlet.  And we know that Strattera is a  selective norepinephrine reuptake inhibitor. Ok, so what the hell is a selective norepinephrine reuptake inhibitor???? If somebody more medically inclined can answer that in a way that we can understand it, I think that’d be very helpful.  I’ve come across the following which has helped me a little bit, the results came up from Encyclopedia.com http://www.encyclopedia.com/html/n1/norepine.asp (n

OT rant…I hate colds!!!

Question:

Hey gang, what started out as allergies has turned into an ugly cold.  I haven’t had one this bad in a while.  I remember when I was on Topamax I had two awful back-to-back bouts of the flu. Anyway, my head feels like a brick, my cough sounds gross, my nose won’t stop dripping, my eyes burn, my nostrils burn from all the nose blowing, the post nasal drip tastes just awful…ugh!!!  Sorry for sharing too much LOL. I won’t go to the doctors though cuz I hate what antibiotics do to my body. I grew up on those things and pretty much blame them for a lot of my illnesses today.  The good news is the worst is over.  My throat feels a lot better than it did a couple days ago.  I still feel like I’m in a fog, though. Oh well, thanks for listening :) Distant hugs (don’t want you to catch it), Jasmine

Response:

Awwww, thanks Lamonster :)  I have been taking Dayquil gelcaps – they just don’t seem to help for long.  Tea and soup has helped, especially with my throat. Have a great weekend!!! Hugs, Jasmine – Hide quoted text — Show quoted text – <smooch on the forehead Dear Jasmine, full of snot and such…..do have some Chicky Noodle soup and some toast….tea….whatever makes you feel pampered.  Unless your tummy is full of boogers and you can’t eat yet.  Poor dear…… Dayquil gelcaps tend to help my cold symptoms….maybe there is an OTC that could help you feel less miserable? Deep peace (and hoping you feel better,) Lamonster Hey gang, what started out as allergies has turned into an ugly cold.  I haven’t had one this bad in a while.  I remember when I was on Topamax I had two awful back-to-back bouts of the flu. Anyway, my head feels like a brick, my cough sounds gross, my nose won’t stop dripping, my eyes burn, my nostrils burn from all the nose blowing, the post nasal drip tastes just awful…ugh!!!  Sorry for sharing too much LOL. I won’t go to the doctors though cuz I hate what antibiotics do to my body. I grew up on those things and pretty much blame them for a lot of my illnesses today.  The good news is the worst is over.  My throat feels a lot better than it did a couple days ago.  I still feel like I’m in a fog, though. Oh well, thanks for listening :) Distant hugs (don’t want you to catch it), Jasmine

Response:

[snip] (((((((((((Jasmine)))))))))) Hope you feel better soon. I avoid the doc too as I would prefer to have my body fight the illness. I’ve managed to avoid most of what goes around even when the rest of the family succumbs but there are many allergy triggers now. My head is hurting today too and I’m in a fog as well. Hope to be better by Sunday as my kids are looking forward to making me the traditional breakfast in bed. Kadee

Thanks so much, Kadee!  I thought I was the only one who made my body fight the illness. I hope you’re feeling better before Sunday!!!  I’m hoping to be better so I can make something yummy for my mom :) Hugs, Jasmine

Response:

<smooch on the forehead Dear Jasmine, full of snot and such…..do have some Chicky Noodle soup and some toast….tea….whatever makes you feel pampered.  Unless your tummy is full of boogers and Aid you can’t eat yet.  Poor dear…… Dayquil gelcaps tend to help my cold symptoms….maybe there is an OTC that could help you feel less miserable? Deep peace (and hoping you feel better,) Lamonster

– Hide quoted text — Show quoted text – Hey gang, what started out as allergies has turned into an ugly cold.  I haven’t had one this bad in a while.  I remember when I was on Topamax I had two awful back-to-back bouts of the flu. Anyway, my head feels like a brick, my cough sounds gross, my nose won’t stop dripping, my eyes burn, my nostrils burn from all the nose blowing, the post nasal drip tastes just awful…ugh!!!  Sorry for sharing too much LOL. I won’t go to the doctors though cuz I hate what antibiotics do to my body. I grew up on those things and pretty much blame them for a lot of my illnesses today.  The good news is the worst is over.  My throat feels a lot better than it did a couple days ago.  I still feel like I’m in a fog, though. Oh well, thanks for listening :) Distant hugs (don’t want you to catch it), Jasmine

Response:

Good time to curl up with a pot of tea and a good movie.  Bonus points if you have a cat or dog.  I somewhat enjoyed being sick, at least before I had small children, as I could give myself permission to relax and laze around the house.   I hope you have some opportunity to do this. Erik – Hide quoted text — Show quoted text – Hey gang, what started out as allergies has turned into an ugly cold.  I haven’t had one this bad in a while.  I remember when I was on Topamax I had two awful back-to-back bouts of the flu. Anyway, my head feels like a brick, my cough sounds gross, my nose won’t stop dripping, my eyes burn, my nostrils burn from all the nose blowing, the post nasal drip tastes just awful…ugh!!!  Sorry for sharing too much LOL. I won’t go to the doctors though cuz I hate what antibiotics do to my body. I grew up on those things and pretty much blame them for a lot of my illnesses today.  The good news is the worst is over.  My throat feels a lot better than it did a couple days ago.  I still feel like I’m in a fog, though. Oh well, thanks for listening :) Distant hugs (don’t want you to catch it), Jasmine

Response:

Oh, how scary.  When I’ve gotten bronchitis in the past it’s felt somewhat like asthma.  I hated it because I would panic when my airways would close up.  My mom would try to calm me down so I can take little breaths (ugh!!!). I feel for you, Barbara :( I was explaining my symptoms to my mom just yesterday and she said it sounds more like I have the flu (noooooooooo!!!).  This morning I took an extra steamy shower to help break things up – gross, gross, gross. Thanks for listening to my rant, Jasmine

– Hide quoted text — Show quoted text – Jasmine: The last time I had a cold was right at Thanksgiving. For me it started with a sinus infection and then I got the post nasal drip and my throat felt like it had alot of junk in it. I did get a runny nose and then the post-nasal drip went down into my chest and I got Bronchial Asthma. That is when I went to my allergist for the antibiotics. Everytime I get a cold I have to be careful, because I have Asthma and sometimes when I get a cold is could get into my chest and then I will get Bronchial Asthma. Barbara Booth

Response:

Jasmine: Diego’s weather is going to be warmer than yesterday and It is going to get into the 70’s in the coastal area and near 80 inland by the middle of next week. So the weather should help with fighting the cold you have. Barbara Booth

Response:

Jasmine: The last time I had a cold was right at Thanksgiving. For me it started with a sinus infection and then I got the post nasal drip and my throat felt like it had alot of junk in it. I did get a runny nose and then the post-nasal drip went down into my chest and I got Bronchial Asthma. That is when I went to my allergist for the antibiotics. Everytime I get a cold I have to be careful, because I have Asthma and sometimes when I get a cold is could get into my chest and then I will get Bronchial Asthma. Barbara Booth

Response:

Awwww, you’re too sweet, Barbara.  Actually it was my friend’s birthday yesterday.  I feel so bad because a few of her friends already had plans to hang with her but then things came up.  I was the only one left to help her celebrate her day and then I couldn’t make it cuz of my stupid cold/flu/whatever this is.  She understood, but I still feel bad.  It’s the same when we have special occasions and a migraine pops in…sucks!!! Have a great weekend, Jasmine

– Hide quoted text — Show quoted text – Jasmine: San Diego’s weather is going to be warmer than yesterday and It is going to get into the 70’s in the coastal area and near 80 inland by the middle of next week. So the weather should help with fighting the cold you have. Barbara Booth

Response:

Michelle, so sorry to hear you’re going through the same.  Today’s the birthday of a very good friend of mine and I wasn’t able to see her (plus I missed my pool therapy this morning).  I’ll be toughing it out right along with ‘cha, girlfriend :)  Here’s to a healthier tomorrow – for all of us!!! Hugs, Jasmine

– Hide quoted text — Show quoted text – Oh, sorry, I’ve am right there along with you and it’s now in my chest and kind of nestled snuggly in my sinuses.  Like you I haven’t had one for awhile and I don’t like antibiotics either…they mess up my hormones something awful.  So, it’s tough it out…and it stinks. I’m there in complete sympathy with you, Jasmine. :-( Michelle Hey gang, what started out as allergies has turned into an ugly cold.  I haven’t had one this bad in a while.  I remember when I was on Topamax I had two awful back-to-back bouts of the flu. Anyway, my head feels like a brick, my cough sounds gross, my nose won’t stop dripping, my eyes burn, my nostrils burn from all the nose blowing, the post nasal drip tastes just awful…ugh!!!  Sorry for sharing too much LOL. I won’t go to the doctors though cuz I hate what antibiotics do to my body. I grew up on those things and pretty much blame them for a lot of my illnesses today.  The good news is the worst is over.  My throat feels a lot better than it did a couple days ago.  I still feel like I’m in a fog, though. Oh well, thanks for listening :) Distant hugs (don’t want you to catch it), Jasmine

Response:

[snip] – Hide quoted text — Show quoted text – I bet the "flu" was really the Topamax.  I thought I had the flu a lot when I was on Topamax too.  Anyways, I get really bad colds that turn into bronchitis.  The first time it happened to me I went to the dr. and they tried 3 different anti-biotics and none of them worked.  I’ve always been a vitamin c fan but I was just so sick for some reason I hadn’t thought of it. So I went and got some emergen-c which is powdered vita c that you  mix with water and makes a tasty drink and also has potassium and other good stuff in there for you.  I took two packets a day or basically 2000 mg of Vita c a day.  In 3 days my bronchitis was gone.  If I take one packet a day every day, I do not get colds period.  When I forget to take it for a while and start feeling a cold coming on I bump myself up to two packets a day again and get rid of it before it turns into bronchitis.  Give it a try!

Hi Kristy and thanks for the Vitamin C tip.  Sorry to hear Topamax messed you up, too. I had a lot of strep throat as a kid, but I only had bronchitis a couple times.  It’s no fun.  Glad the Vitamin C keeps them at bay for you. Have a great weekend, Jasmine

Response:

Thanks Erik.  We have two dogs, and replica cartier tank francaise watch today it was their job to keep me warm :) Jasmine

– Hide quoted text — Show quoted text – Good time to curl up with a pot of tea and a good movie.  Bonus points if you have a cat or dog.  I somewhat enjoyed being sick, at least before I had small children, as I could give myself permission to relax and laze around the house.   I hope you have some opportunity to do this. Erik Hey gang, what started out as allergies has turned into an ugly cold.  I haven’t had one this bad in a while.  I remember when I was on Topamax I had two awful back-to-back bouts of the flu. Anyway, my head feels like a brick, my cough sounds gross, my nose won’t stop dripping, my eyes burn, my nostrils burn from all the nose blowing, the post nasal drip tastes just awful…ugh!!!  Sorry for sharing too much LOL. I won’t go to the doctors though cuz I hate what antibiotics do to my body. I grew up on those things and pretty much blame them for a lot of my illnesses today.  The good news is the worst is over.  My throat feels a lot better than it did a couple days ago.  I still feel like I’m in a fog, though. Oh well, thanks for listening :) Distant hugs (don’t want you to catch it), Jasmine

Response:

Oh, sorry, I’ve am right there along with you and it’s now in my chest and kind of nestled snuggly in my sinuses.  Like you I haven’t had one for awhile and I don’t like antibiotics either…they mess up my hormones something awful.  So, it’s tough it out…and it stinks. I’m there in complete sympathy with you, Jasmine. :-( Michelle

– Hide quoted text — Show quoted text – Hey gang, what started out as allergies has turned into an ugly cold.  I haven’t had one this bad in a while.  I remember when I was on Topamax I had two awful back-to-back bouts of the flu. Anyway, my head feels like a brick, my cough sounds gross, my nose won’t stop dripping, my eyes burn, my nostrils burn from all the nose blowing, the post nasal drip tastes just awful…ugh!!!  Sorry for sharing too much LOL. I won’t go to the doctors though cuz I hate what antibiotics do to my body. I grew up on those things and pretty much blame them for a lot of my illnesses today.  The good news is the worst is over.  My throat feels a lot better than it did a couple days ago.  I still feel like I’m in a fog, though. Oh well, thanks for listening :) Distant hugs (don’t want you to catch it), Jasmine

Response:

Hey gang, what started out as allergies has turned into an ugly cold.  I haven’t had one this bad in a while.  I remember when I was on Topamax I had two awful back-to-back bouts of the flu.

I bet the "flu" was really the Topamax.  I thought I had the flu a lot when I was on Topamax too.  Anyways, I get really bad colds that turn into bronchitis.  The first time it happened to me I went to the dr. and they tried 3 different anti-biotics and none of them worked.  I’ve always been a vitamin c fan but I was just so sick for some reason I hadn’t thought of it. So I went and got some emergen-c which is powdered vita c that you  mix with water and makes a tasty drink and also has potassium and other good stuff in there for you.  I took two packets a day or basically 2000 mg of Vita c a day.  In 3 days my bronchitis was gone.  If I take one packet a day every day, I do not get colds period.  When I forget to take it for a while and start feeling a cold coming on I bump myself up to two packets a day again and get rid of it before it turns into bronchitis.  Give it a try!

Response:

You too, Michelle.  And thanks :) Jasmine

– Hide quoted text — Show quoted text – I know the feeling.  I got some new meds today…I think the Nyquil was actually making the chest congestion worse, so I picked up an expectorant. I’m getting an icky feeling this has turned into a bronchitis.  I was exposed to someone with a viral bronchitis right before I got sick…makes me mad.  At least she had the guts to call me and let me know she had it….as if it helps once you’re exposed.  Oh well…I guess we get over as we do. I’ll be thinking about you Jasmine…get rest and get better. Blessings, Michelle Awwww, you’re too sweet, Barbara.  Actually it was my friend’s birthday yesterday.  I feel so bad because a few of her friends already had plans to hang with her but then things came up.  I was the only one left to help her celebrate her day and then I couldn’t make it cuz of my stupid cold/flu/whatever this is.  She understood, but I still feel bad.  It’s the same when we have special occasions and a migraine pops in…sucks!!! Have a great weekend, Jasmine Jasmine: Today’s San Diego’s weather is going to be warmer than yesterday and It is going to get into the 70’s in the coastal area and near 80 inland by the middle of next week. So the weather should help with fighting the cold you have. Barbara Booth

Response:

Glad to hear your family is okay, but how awful that they all have the flu :( Jasmine

– Hide quoted text — Show quoted text – Jasmine: My brother called us yesterday from Denver and he and his wife and their 5 month old daughter are sick with the flu, too. My mom called them the other day because she heard on the T.V that there was a tornado in Denver and she wanted to make sure that he and his family were O.K. He told us yesterday that the tornado turned into sleet and then it turned into wet snow. Barbara Booth

Response:

Barbara, I’m up here in Cheyenne about 100 miles north of Denver.  We had the snow, rain, sleet, snot, whatever you want to call it the last couple of days.  As in Denver, colds and flu are all over the place here as well.  I had a coworker out with pneumonia for two weeks.  Nasty.  I didn’t see much of this in Dallas, but it was normal as I grew up in Minnesota.  I guess I’ve moved far enough north to get back to that kind of weather. Hope your brother and family get better too…it’s rough with a small infant sick. Michelle

– Hide quoted text — Show quoted text – Jasmine: My brother called us yesterday from Denver and he and his wife and their 5 month old daughter are sick with the flu, too. My mom called them the other day because she heard on the T.V that there was a tornado in Denver and she wanted to make sure that he and his family were O.K. He told us yesterday that the tornado turned into sleet and then it turned into wet snow. Barbara Booth

Response:

I know the feeling.  I got some new meds today…I think the Nyquil was actually making the chest congestion worse, so I picked up an expectorant. I’m getting an icky feeling this has turned into a bronchitis.  I was exposed to someone with a viral bronchitis right before I got sick…makes me mad.  At least she had the guts to call me and let me know she had it….as if it helps once you’re exposed.  Oh well…I guess we get over as we do. I’ll be thinking about you Jasmine…get rest and get better. Blessings, Michelle

– Hide quoted text — Show quoted text – Awwww, you’re too sweet, Barbara.  Actually it was my friend’s birthday yesterday.  I feel so bad because a few of her friends already had plans to hang with her but then things came up.  I was the only one left to help her celebrate her day and then I couldn’t make it cuz of my stupid cold/flu/whatever this is.  She understood, but I still feel bad.  It’s the same when we have special occasions and a migraine pops in…sucks!!! Have a great weekend, Jasmine Jasmine: Today’s San Diego’s weather is going to be warmer than yesterday and It is going to get into the 70’s in the coastal area and near 80 inland by the middle of next week. So the weather should help with fighting the cold you have. Barbara Booth

Response:

Jasmine: My brother called us yesterday from Denver and he and his wife and their 5 month old daughter are sick with the flu, too. My mom called them the other day because she heard on the T.V that there was a tornado in Denver and she wanted to make sure that he and his family were O.K. He told us yesterday that the tornado turned into sleet and then it turned into wet snow. Barbara Booth

Response:

Help please. Don't get sleepy, but tired all the time.

Question:

A pulmonologist is a doctor who specializes in the respiratory system. Many sleep docs are pulmonologists. Most of them like to treat the mechanics with non-invasive treatments like *PAP. Some sleep docs are neurologists who want to bombard you with drugs. Some sleep docs are ENT (ear-nose-throat, also known as otolaryngologists), who want you to have expensive, painful, and useless surgery in order to facilitate their next Lexu$ acquisition. regards, eric pearson db2e…@nospammindspring.com On Mon, 13 Jan 2003 22:08:20 -0500, Liam Ness <work…@the.factory

wrote: – Hide quoted text — Show quoted text ->Who is a pulmonologist.  See, I can’t even mantain my concentration >enough to remember what I was talking about…. By truly, thanks for >all the help. >On Tue, 14 Jan 2003 01:29:09 GMT, NormC <no…@socal.nospam.com

>wrote: >>> Thank you and everyone else who have taken the time to share your >>> knowledge.  I have made an appointment to see the closest diplomated >>> MD at the end of Feburary. >>…. who is a ??? >>> On Mon, 13 Jan 2003 20:07:08 GMT, NormC <no…@socal.nospam.com

>>> wrote: >>> >Here’s how my thoughts ran on choosing a sleep doctor with a particular >>> >specialty, in your case the same as mine, a neurologist or a pulmonologist. >>> >I connect sleep to the brain, not the lungs <vsg> (very small grin).  I did not >>> >have any kind of airway/breathing problem.  So I chose a neurologist sleep doc. >>> >After I started on cpap I developed some possible breathing problems associated >>> >with my fairly well controlled bronchial-asthma, so I went to a pulmonologist. >>> >But I specifically picked one that was not a diplomated sleep doc because I >>> >wanted a pulmonologist who spent all his time working on pulmonology. >>> >Probably, quite fortunately, his office partner is a diplomated sleep doc; >>> >however I’ve never seen him…. and hope I never have to. >>> >Since I have 100% coverage for doctors (no prescriptions though) via medicare >>> >and Blue Shield, it is difficult for me to ’stronly suggest’ that you pay out of >>> >your own pocket,  For me it would depend on whether I felt good enough to spend >>> >the money anywhere at all.  If not, see the neurologist. >>> >HTH >>> >Liam Ness wrote: >>> >> Thanks for getting back to me a second time in one night!  I have read >>> >> the material that Mike pointed me to ( except the google stuff which I >>> >> am working on ).  I found it pretty interesting and for what it is >>> >> worth with only one night’s research, it does seem that I have DSPS, >>> >> or something akin to it. >>> >> I also checked out the ABSM site that he hyperlinked, and there are >>> >> nine doctors listed for my state.  Eight are listed as Pulmonology >>> >> (only six are M.D.’s) and one as Neurology.  The Neurologist is about >>> >> 4hrs away and not covered by my insurance. >>> >> I have two questions re the doctors.  1. how big a difference is the >>> >> neurology vs. pulmonology distinction?  2. If I have to go out of >>> >> pocket to see the neurologist, what kind of money are we talking >>> >> about? >>> >> I also want to thank Deirdre Saoirse Moen for her(?) reply. And >>> >> Deirdre, no I have not had a sleep study since my prior Doc’s were >>> >> primarily focused on my work schedule, and I was too exhausted (but >>> >> not concerned enough) to push them. >>> >> On Mon, 13 Jan 2003 08:18:33 GMT, NormC <no…@socal.nospam.com

>>> >> wrote: >>> >> >Liam Ness wrote: >>> >> >> On Mon, 13 Jan 2003 05:56:48 GMT, NormC <no…@socal.nospam.com

>>> >> >> wrote: >>> >> >> I’ve discussed it with 3 doctors; an internist, a gp and a family >>> >> >> physician. >>> >> >Most of us here have not had much luck with these three ’specialties’ for sleep >>> >> >disorders.  Once again, try to find a neurologist who is a certified sleep doc. >>> >> >And, read closely what Mike suggests.  He’s still fighting the battle. >>> >> >> At the time I was working 85 -100hrs a week and the general >>> >> >> response was something like "of course you are exhausted, you work to >>> >> >> much", totally ignoring the sleeping issue.  I have since radically >>> >> >> cut back on my work schedule, but the problem remains the same.  That >>> >> >> said, nuless it is nuts and buts mainstream medicine, I put very >>> >> >> little faith in the art of medicine.  What they know, they know well, >>> >> >> but everything on the edges of their understanding is as much hit and >>> >> >> miss as going to a witch doctor. >>> >> >> >First things first.  Have you seen a doctor, at any time, about what you have >>> >> >> >described?  If not, why don’t you find a certified sleep doc in your area, >>> >> >> >IMNSHO a neurologist.  See http://www.absm.org/Diplomates/listing.htm

Response:

In article <20030122001652.05409.00000…@mb-mp.aol.com

,

vparle…@aol.com (Vparlette) wrote:

Hi I was wondering if you’ve had any insight into this problem.  I too have had a increasingly severe case of insomnia.  Always present but now I feel like I can no lobger function the way I used to, I’m lethargic, confused and irritable yet cannot fall asleep.  I absolutely do not know how! I didn’t sleep at all last night or the night before (Sunday and Monday) on Saturday I slept only for 3 hours and Friday just one.  My average was 3 per night sometimes missing one night a week.  But now it has gotten so much worse.  I am terrified and don’t know what to do? I’m really worried about how this will impact my career and health.

When I was depressed after my late husband’s death, this sounds just like my most obvious symptom of depression. I didn’t have *any* of the classic big ticket items at first (like crying jags, etc.). But I went to my doctor because I couldn’t sleep. He put me on a double-whammy (Elavil and Serzone). The first helped my sleep all by itself. There may, of course, be other causes, as Lee points out. Your doc should also check your blood pressure or have you monitor it periodically during the day for a time. (I did, and was quite surprised to find out that my 2 p.m. crash was literally when my blood pressure was at its lowest during the day). — _Deirdre                                             http://deirdre.net A: No. Q: Should I include quotations after my reply?

Response:

- Hide quoted text — Show quoted text -No Rest wrote:

You’re not alone.  My sleepless nights always occur when I know that my work day is going to be busy or stressful.  Sleeping pills don’t work for me either.  I just lie there with a tired buzz. "Vparlette" <vparle…@aol.com wrote in message news:20030122001652.05409.00000165@mb-mp.aol.com… Hi I was wondering if you’ve had any insight into this problem.  I too have had a increasingly severe case of insomnia.  Always present but now I feel like I can no lobger function the way I used to, I’m lethargic, confused and irritable yet cannot fall asleep.  I absolutely do not know how! I didn’t sleep at all last night or the night before (Sunday and Monday) on Saturday I slept only for 3 hours and Friday just one.  My average was 3 per night sometimes missing one night a week.  But now it has gotten so much worse.  I am terrified and don’t know what to do? I’m really worried about how this will impact my career and health.

Your answer is in your second sentance.  You are hypertensive and/or depressed.  You need to see a doctor about this. SOON! Regards Lee in Toronto —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 80,000 Newsgroups – 16 Different Servers! =—–

Response:

Hi I was wondering if you’ve had any insight into this problem.  I too have had a increasingly severe case of insomnia.  Always present but now I feel like I can no lobger function the way I used to, I’m lethargic, confused and irritable yet cannot fall asleep.  I absolutely do not know how! I didn’t sleep at all last night or the night before (Sunday and Monday) on Saturday I slept only for 3 hours and Friday just one.  My average was 3 per night sometimes missing one night a week.  But now it has gotten so much worse.  I am terrified and don’t know what to do? I’m really worried about how this will impact my career and health.

Response:

You’re not alone.  My sleepless nights always occur when I know that my work day is going to be busy or stressful.  Sleeping pills don’t work for me either.  I just lie there with a tired buzz. "Vparlette" <vparle…@aol.com

wrote in message

news:20030122001652.05409.00000165@mb-mp.aol.com… – Hide quoted text — Show quoted text -

Hi I was wondering if you’ve had any insight into this problem.  I too

have had

a increasingly severe case of insomnia.  Always present but now I feel

like I

can no lobger function the way I used to, I’m lethargic, confused and

irritable

yet cannot fall asleep.  I absolutely do not know how! I didn’t sleep at

all

last night or the night before (Sunday and Monday) on Saturday I slept

only for

3 hours and Friday just one.  My average was 3 per night sometimes missing

one

night a week.  But now it has gotten so much worse.  I am terrified and

don’t

know what to do? I’m really worried about how this will impact my career

and

health.

Response:

Who is a pulmonologist.  See, I can’t even mantain my concentration enough to remember what I was talking about…. By truly, thanks for all the help. On Tue, 14 Jan 2003 01:29:09 GMT, NormC <no…@socal.nospam.com

wrote: – Hide quoted text — Show quoted text ->> Thank you and everyone else who have taken the time to share your >> knowledge.  I have made an appointment to see the closest diplomated >> MD at the end of On this site Feburary. >…. who is a ??? >> On Mon, 13 Jan 2003 20:07:08 GMT, NormC <no…@socal.nospam.com

>> wrote: >> >Here’s how my thoughts ran on choosing a sleep doctor with a particular >> >specialty, in your case the same as mine, a neurologist or a pulmonologist. >> >I connect sleep to the brain, not the lungs <vsg> (very small grin).  I did not >> >have any kind of airway/breathing problem.  So I chose a neurologist sleep doc. >> >After I started on cpap I developed some possible breathing problems associated >> >with my fairly well controlled bronchial-asthma, so I went to a pulmonologist. >> >But I specifically picked one that was not a diplomated sleep doc because I >> >wanted a pulmonologist who spent all his time working on pulmonology. >> >Probably, quite fortunately, his office partner is a diplomated sleep doc; >> >however I’ve never seen him…. and hope I never have to. >> >Since I have 100% coverage for doctors (no prescriptions though) via medicare >> >and Blue Shield, it is difficult for me to ’stronly suggest’ that you pay out of >> >your own pocket,  For me it would depend on whether I felt good enough to spend >> >the money anywhere at all.  If not, see the neurologist. >> >HTH >> >Liam Ness wrote: >> >> Thanks for getting back to me a second time in one night!  I have read >> >> the material that Mike pointed me to ( except the google stuff which I >> >> am working on ).  I found it pretty interesting and for what it is >> >> worth with only one night’s research, it does seem that I have DSPS, >> >> or something akin to it. >> >> I also checked out the ABSM site that he hyperlinked, and there are >> >> nine doctors listed for my state.  Eight are listed as Pulmonology >> >> (only six are M.D.’s) and one as Neurology.  The Neurologist is about >> >> 4hrs away and not covered by my insurance. >> >> I have two questions re the doctors.  1. how big a difference is the >> >> neurology vs. pulmonology distinction?  2. If I have to go out of >> >> pocket to see the neurologist, what kind of money are we talking >> >> about? >> >> I also want to thank Deirdre Saoirse Moen for her(?) reply. And >> >> Deirdre, no I have not had a sleep study since my prior Doc’s were >> >> primarily focused on my work schedule, and I was too exhausted (but >> >> not concerned enough) to push them. >> >> On Mon, 13 Jan 2003 08:18:33 GMT, NormC <no…@socal.nospam.com

>> >> wrote: >> >> >Liam Ness wrote: >> >> >> On Mon, 13 Jan 2003 05:56:48 GMT, NormC <no…@socal.nospam.com

>> >> >> wrote: >> >> >> I’ve discussed it with 3 doctors; an internist, a gp and a family >> >> >> physician. >> >> >Most of us here have not had much luck with these three ’specialties’ for sleep >> >> >disorders.  Once again, try to find a neurologist who is a certified sleep doc. >> >> >And, read closely what Mike suggests.  He’s still fighting the battle. >> >> >> At the time I was working 85 -100hrs a week and the general >> >> >> response was something like "of course you are exhausted, you work to >> >> >> much", totally ignoring the sleeping issue.  I have since radically >> >> >> cut back on my work schedule, but the problem remains the same.  That >> >> >> said, nuless it is nuts and buts mainstream medicine, I put very >> >> >> little faith in the art of medicine.  What they know, they know well, >> >> >> but everything on the edges of their understanding is as much hit and >> >> >> miss as going to a witch doctor. >> >> >> >First things first.  Have you seen a doctor, at any time, about what you have >> >> >> >described?  If not, why don’t you find a certified sleep doc in your area, >> >> >> >IMNSHO a neurologist.  See http://www.absm.org/Diplomates/listing.htm

Response:

On Mon, 13 Jan 2003 05:56:48 GMT, NormC <no…@socal.nospam.com

wrote: I’ve discussed it with 3 doctors; an internist, a gp and a family physician. At the time I was working 85 -100hrs a week and the general response was something like "of course you are exhausted, you work to much", totally ignoring the sleeping issue.  I have since radically cut back on my work schedule, but the problem remains the same.  That said, nuless it is nuts and buts mainstream medicine, I put very little faith in the art of medicine.  What they know, they know well, but everything on the edges of their understanding is as much hit and miss as going to a witch doctor. – Hide quoted text — Show quoted text -

First things first.  Have you seen a doctor, at any time, about what you have described?  If not, why don’t you find a certified sleep doc in your area, IMNSHO a neurologist.  See http://www.absm.org/Diplomates/listing.htm

Response:

On Mon, 13 Jan 2003 01:16:41 -0500, Liam Ness <work…@the.factory

wrote: Oh, sorry I forgot, but thanks very much for getting back to me so quickly.  I guess that is one of the benefits of an insomnic newsgroup, you can get an answer anytime of the night. – Hide quoted text — Show quoted text ->On Mon, 13 Jan 2003 05:56:48 GMT, NormC <no…@socal.nospam.com

>wrote: >I’ve discussed it with 3 doctors; an internist, a gp and a family >physician. At the time I was working 85 -100hrs a week and the general >response was something like "of course you are exhausted, you work to >much", totally ignoring the sleeping issue.  I have since radically >cut back on my work schedule, but the problem remains the same.  That >said, nuless it is nuts and buts mainstream medicine, I put very >little faith in the art of medicine.  What they know, they know well, >but everything on the edges of their understanding is as much hit and >miss as going to a witch doctor. >>First things first.  Have you seen a doctor, at any time, about what you have >>described?  If not, why don’t you find a certified sleep doc in your area, >>IMNSHO a neurologist.  See http://www.absm.org/Diplomates/listing.htm

Response:

"Liam Ness" <work…@the.factory

wrote in message

news:03e42vs8e4a63qdv8sa7naba1tkdf1k822@4ax.com… – Hide quoted text — Show quoted text -

I need some help, advice, info pointers or something and I hope someone can steer me the right way. In a nutshell: I sleep about 3.5 to 4.5 hrs a night, feel tired (exhausted) most of the time and have mild mental confusion and irritability.  I know my estimates for sleep are correct, because I don’t go to bed until 3 or 4 am  and I am up by 7am because of work.  I don’t go to bed before then because I dont feel sleepy until then.  When I try to go to bed earlier I just lay in bed feeling wide awake.  When I do sleep I can stay asleep for 18+ hours on days when I don’t have to work and my wife/kids will let me. As far as I can recall in my entire life, I have never woken up feeling rested. Not in a nutshell: At least since my early teens I have had some trouble sleeping.  I would lay in bed for a long time trying to get to sleep.  It would take 2-3 hours until I would fall asleep, but then I would sleep the night through until I needed to get up for school.  On weekends I would sleep 10-14hrs per night, still taking 2-3 hours to fall asleep, but not getting up until the afternoon. At that time occasionally, I would get fitful sleep waking a number of times through the night and being miserable that I couldn’t get back to sleep until 4 or 5am when I would fall asleep until the 6:30 alarm. This was pretty infrequent and usually around a test or big event. As an adult I continued to have difficulty sleeping, but the pattern changed.  Since I have no set bedtime, I just stay up until I feel sleepy.  When I do go to bed, I fall asleep pretty much immediately, but I don’t feel sleepy until 3 or 4 am.  If I try to go to sleep earlier, I just lay in bed wide awake for hours.  As an adult I’ve only had one or two episodes of fitful sleep in the past 15yrs. When I do sleep, I can sleep for as many hours as someone will let me. On an average day, I have to get up by 7am because of work and/or family.  On three or four occassions have slept for 30+ hours, and numerous occasions (5 or 6 times a year) for 18+ hours.  I almost never remember any of my dreams except when I pull an 18+ hour sleep session.  If I wake up during the night to answer natures call or take care of the kids I have no problem getting back to sleep whether I was up for a minute or 20minutes.  When I pull an 18+ hour sleep session, I usually will wake up 4-6 times, but I roll over and go right back to sleep.  After an an 18+ hour sleep session I go right back to my usual pattern and get sleepy around 3 or 4 am even if I was only up for a few hours.  Anytime when I am asleep, I love being asleep and everytime I awaken I crave the chance to go back to sleep, but once I am up for the day I don’t really miss or long for sleep until early morning.  I do hate feeling tired most of the time and not feeling mentally sharp. I almost never feel sleepy anytime except in the very early morning, but infrequently I do get an ovewhelming sleepyness in the mid-afternoon.  Also I frequently get sleepy while driving the car during the afternoon or evening and have to fight (slap face, bite tounge or cheek, etc.) to stay awake.  Even though I don’t get sleepy, I do walk around in a more or less permanent state of moderate to high physical tiredness and mild mental confusion. I’ve tried sominex once, but it made me feel like I was on a bad drug trip and didn’t put me to sleep.  I tried flexeril (muscle relaxant) which made me physically exhausted beyond belief for 3-4 hours, but only advanced my sleep to 1:30 am and made it almost impossible to wake up the next morning.  I’ve cut out all caffeine and I never really drink alcohol. I tried going to bed early for a couple of weeks, but I just stayed wide awake until 3 or 4 am.  I tried to get up earlier, but I am just so sleepy once I go to sleep that I couldn’t do it.  I’ve tried meditation, hot showers, not eating after 6pm, eating a moderate meal before trying to sleep, eating a huge meal before trying to sleep to no avail.  I did have some moderate success for a while with moderate exercise but I got even less sleep that normal with heavy exercise. I’ve lost 30lbs which stopped my infrequent snoring, but didn’t have any noticable effect on my sleeping. As I have aged, this lack of sleep has really began to take a greater and greater toll on my abilitiy to function.  Until recently I haven’t spent much time trying to do anything about my insomnia rather I never really thought about it and just accepted it as part of life.  But for the past year and a half as my ability to function has been more and more of a problem, I have become more concerned. Can anyone help me figure out what kind of insomnia causes this kind of problem, and what seems to help people who have this kind of insomnia to function better when awake or to get more sleep?   Also, does anyone know if the years of lack of sleep cause an irreversible loss of function, or if I will spring back once I find a "magic" cure?

Medical community likes to call this chronic insomnia. Tough to fix and therapy options depend on what the heck is causing it. Read "Subject: Re: Late Onset Sleep…no cure?" as there was some info on insomnia on there. Always pays to do a http://www.google.com/grphp and use insomnia or Delayed Sleep Phase Syndrome (DSPS) as search words. I would read these: http://www.helioshealth.com/sleep/sleep_01.html Circadian cycles, important to understand. http://www.sleepdisorderchannel.net/dsps/treatment.shtml A must read, explains DSPS and clock adjusters. http://www.postgradmed.com/issues/2002/03_02/attarian.htm Sleep apnea. This might be a little advanced for first timers but is good (thanks Lee :o ) Doctors are almost useless for chronic insomnia which is actually different than DSPS. With DSPS you should feel rested and fit if you were allowed to sleep your normal sleep cycle (say 4 AM to around Noon, for example). You have built up one hairy sleep debt and would takes possible months of sleeping your "normal: sleep cycle to catch up. You can educate yourself on the clock adjusters like cronotherapy and bright light therapy but you need a doctor to help diagnose possible sleep apnea. Trust me, you can’t dislike doctors as much as I do (just trust me on this) but you probably need a sleep test and you can’t do that yourself. Hope this helps. Give a holler if I can explain any of this better for you. Mike — Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.443 / Virus Database: 248 – Release Date: 1/10/2003

Response:

- Hide quoted text — Show quoted text -Liam Ness wrote:

All 9 were diplomated.  I kind of see your point about the neurologist v. pulmonologist and it makes sense if you buy that a neurologist really has any kind of understanding about sleep and the brain other than voodoo.  I’m jaded.  I’ve done biomedical research and I know how little is really known, how little is understood, how much experiments are interpreted to foster a particular view point already held by the researcher, the medical community and the funders. If based on my short time researching treatments the choices are limited to medication, behavior modification, mechanical devices, light, surgery and psychobabble, I don’t see how a witch doctor specializing in the brain would be any better than one specializing in the lungs. (of course the 4hr one way travel time to the only diplomated neurologist in maine plays the most substantial part of my view point at this time — oh, yea the horrendous lack of sleep doesn’t help much either) Thank you and everyone else who have taken the time to share your knowledge.  I have made an appointment to see the closest diplomated MD at the end of Feburary.

…. who is a ??? – Hide quoted text — Show quoted text -

On Mon, 13 Jan 2003 20:07:08 GMT, NormC <no…@socal.nospam.com wrote: Here’s how my thoughts ran on choosing a sleep doctor with a particular specialty, in your case the same as mine, a neurologist or a pulmonologist. I connect sleep to the brain, not the lungs <vsg (very small grin).  I did not have any kind of airway/breathing problem.  So I chose a neurologist sleep doc. After I started on cpap I developed some possible breathing problems associated with my fairly well controlled bronchial-asthma, so I went to a pulmonologist. But I specifically picked one that was not a diplomated sleep doc because I wanted a pulmonologist who spent all his time working on pulmonology. Probably, quite fortunately, his office partner is a diplomated sleep doc; however I’ve never seen him…. and hope I never have to. Since I have 100% coverage for doctors (no prescriptions though) via medicare and Blue Shield, it is difficult for me to ’stronly suggest’ that you pay out of your own pocket,  For me it would depend on whether I felt good enough to spend the money anywhere at all.  If not, see the neurologist. HTH Liam Ness wrote: Thanks for getting back to me a second time in one night!  I have read the material that Mike pointed me to ( except the google stuff which I am working on ).  I found it pretty interesting and for what it is worth with only one night’s research, it does seem that I have DSPS, or something akin to it. I also checked out the ABSM site that he hyperlinked, and there are nine doctors listed for my state.  Eight are listed as Pulmonology (only six are M.D.’s) and one as Neurology.  The Neurologist is about 4hrs away and not covered by my insurance. I have two questions re the doctors.  1. how big a difference is the neurology vs. pulmonology distinction?  2. If I have to go out of pocket to see the neurologist, what kind of money are we talking about? I also want to thank Deirdre Saoirse Moen for her(?) reply. And Deirdre, no I have not had a sleep study since my prior Doc’s were primarily focused on my work schedule, and I was too exhausted (but not concerned enough) to push them. On Mon, 13 Jan 2003 08:18:33 GMT, NormC <no…@socal.nospam.com wrote: Liam Ness wrote: On Mon, 13 Jan 2003 05:56:48 GMT, NormC <no…@socal.nospam.com wrote: I’ve discussed it with 3 doctors; an internist, a gp and a family physician. Most of us here have not had much luck with these three ’specialties’ for sleep disorders.  Once again, try to find a neurologist who is a certified sleep doc. And, read closely what Mike suggests.  He’s still fighting the battle. At the time I was working 85 -100hrs a week and the general response was something like "of course you are exhausted, you work to much", totally ignoring the sleeping issue.  I have since radically cut back on my work schedule, but the problem remains the same.  That said, nuless it is nuts and buts mainstream medicine, I put very little faith in the art of medicine.  What they know, they know well, but everything on the edges of their understanding is as much hit and miss as going to a witch doctor. First things first.  Have you seen a doctor, at any time, about what you have described?  If not, why don’t you find a certified sleep doc in your area, IMNSHO a neurologist.  See http://www.absm.org/Diplomates/listing.htm

Response:

All 9 were diplomated.  I kind of see your point about the neurologist v. pulmonologist and it makes sense if you buy that a neurologist really has any kind of understanding about sleep and the brain other than voodoo.  I’m jaded.  I’ve done biomedical research and I know how little is really known, how little is understood, how much experiments are interpreted to foster a particular view point already held by the researcher, the medical community and the funders. If based on my short time researching treatments the a lange sohne replica watches choices are limited to medication, behavior modification, mechanical devices, light, surgery and psychobabble, I don’t see how a witch doctor specializing in the brain would be any better than one specializing in the lungs. (of course the 4hr one way travel time to the only diplomated neurologist in maine plays the most substantial part of my view point at this time — oh, yea the horrendous lack of sleep doesn’t help much either) Thank you and everyone else who have taken the time to share your knowledge.  I have made an appointment to see the closest diplomated MD at the end of Feburary. On Mon, 13 Jan 2003 20:07:08 GMT, NormC <no…@socal.nospam.com

wrote: – Hide quoted text — Show quoted text ->Here’s how my thoughts ran on choosing a sleep doctor with a particular >specialty, in your case the same as mine, a neurologist or a pulmonologist.   >I connect sleep to the brain, not the lungs <vsg> (very small grin).  I did not >have any kind of airway/breathing problem.  So I chose a neurologist sleep doc. >After I started on cpap I developed some possible breathing problems associated >with my fairly well controlled bronchial-asthma, so I went to a pulmonologist. >But I specifically picked one that was not a diplomated sleep doc because I >wanted a pulmonologist who spent all his time working on pulmonology. >Probably, quite fortunately, his office partner is a diplomated sleep doc; >however I’ve never seen him…. and hope I never have to. >Since I have 100% coverage for doctors (no prescriptions though) via medicare >and Blue Shield, it is difficult for me to ’stronly suggest’ that you pay out of >your own pocket,  For me it would depend on whether I felt good enough to spend >the money anywhere at all.  If not, see the neurologist. >HTH >Liam Ness wrote: >> Thanks for getting back to me a second time in one night!  I have read >> the material that Mike pointed me to ( except the google stuff which I >> am working on ).  I found it pretty interesting and for what it is >> worth with only one night’s research, it does seem that I have DSPS, >> or something akin to it. >> I also checked out the ABSM site that he hyperlinked, and there are >> nine doctors listed for my state.  Eight are listed as Pulmonology >> (only six are M.D.’s) and one as Neurology.  The Neurologist is about >> 4hrs away and not covered by my insurance. >> I have two questions re the doctors.  1. how big a difference is the >> neurology vs. pulmonology distinction?  2. If I have to go out of >> pocket to see the neurologist, what kind of money are we talking >> about? >> I also want to thank Deirdre Saoirse Moen for her(?) reply. And >> Deirdre, no I have not had a sleep study since my prior Doc’s were >> primarily focused on my work schedule, and I was too exhausted (but >> not concerned enough) to push them. >> On Mon, 13 Jan 2003 08:18:33 GMT, NormC <no…@socal.nospam.com

>> wrote: >> >Liam Ness wrote: >> >> On Mon, 13 Jan 2003 05:56:48 GMT, NormC <no…@socal.nospam.com

>> >> wrote: >> >> I’ve discussed it with 3 doctors; an internist, a gp and a family >> >> physician. >> >Most of us here have not had much luck with these three ’specialties’ for sleep >> >disorders.  Once again, try to find a neurologist who is a certified sleep doc. >> >And, read closely what Mike suggests.  He’s still fighting the battle. >> >> At the time I was working 85 -100hrs a week and the general >> >> response was something like "of course you are exhausted, you work to >> >> much", totally ignoring the sleeping issue.  I have since radically >> >> cut back on my work schedule, but the problem remains the same.  That >> >> said, nuless it is nuts and buts mainstream medicine, I put very >> >> little faith in the art of medicine.  What they know, they know well, >> >> but everything on the edges of their understanding is as much hit and >> >> miss as going to a witch doctor. >> >> >First things first.  Have you seen a doctor, at any time, about what you have >> >> >described?  If not, why don’t you find a certified sleep doc in your area, >> >> >IMNSHO a neurologist.  See http://www.absm.org/Diplomates/listing.htm

Response:

In article <og652v0mo5eo249mf932qn13qnf5pq1…@4ax.com

, Liam Ness

<work…@the.factory

wrote: I also want to thank Deirdre Saoirse Moen for her(?) reply. And Deirdre, no I have not had a sleep study since my prior Doc’s were primarily focused on my work schedule, and I was too exhausted (but not concerned enough) to push them.

Oh, I’m most definitely a her. There is one ng member who can verify that. :) And you’re welcome. A sleep study might help by showing what it is that you’re getting or missing sleep-wise. — _Deirdre                                             http://deirdre.net "Ideally pacing should look like the stock market for the year 1999, up and up and up, but with lots of little dips downwards…."                                      – Wen Spencer on plotting a novel

Response:

Here’s how my thoughts ran on choosing a sleep doctor with a particular specialty, in your case the same as mine, a neurologist or a pulmonologist.   I connect sleep to the brain, not the lungs <vsg

(very small grin).  I did not

have any kind of airway/breathing problem.  So I chose a neurologist sleep doc. After I started on cpap I developed some possible breathing problems associated with my fairly well controlled bronchial-asthma, so I went to a pulmonologist. But I specifically picked one that was not a diplomated sleep doc because I wanted a pulmonologist who spent all his time working on pulmonology. Probably, quite fortunately, his office partner is a diplomated sleep doc; however I’ve never seen him…. and hope I never have to. Since I have 100% coverage for doctors (no prescriptions though) via medicare and Blue Shield, it is difficult for me to ’stronly suggest’ that you pay out of your own pocket,  For me it would depend on whether I felt good enough to spend the money anywhere at all.  If not, see the neurologist. HTH – Hide quoted text — Show quoted text -Liam Ness wrote:

Thanks for getting back to me a second time in one night!  I have read the material that Mike pointed me to ( except the google stuff which I am working on ).  I found it pretty interesting and for what it is worth with only one night’s research, it does seem that I have DSPS, or something akin to it. I also checked out the ABSM site that he hyperlinked, and there are nine doctors listed for my state.  Eight are listed as Pulmonology (only six are M.D.’s) and one as Neurology.  The Neurologist is about 4hrs away and not covered by my insurance. I have two questions re the doctors.  1. how big a difference is the neurology vs. pulmonology distinction?  2. If I have to go out of pocket to see the neurologist, what kind of money are we talking about? I also want to thank Deirdre Saoirse Moen for her(?) reply. And Deirdre, no I have not had a sleep study since my prior Doc’s were primarily focused on my work schedule, and I was too exhausted (but not concerned enough) to push them. On Mon, 13 Jan 2003 08:18:33 GMT, NormC <no…@socal.nospam.com wrote: Liam Ness wrote: On Mon, 13 Jan 2003 05:56:48 GMT, NormC <no…@socal.nospam.com wrote: I’ve discussed it with 3 doctors; an internist, a gp and a family physician. Most of us here have not had much luck with these three ’specialties’ for sleep disorders.  Once again, try to find a neurologist who is a certified sleep doc. And, read closely what Mike suggests.  He’s still fighting the battle. At the time I was working 85 -100hrs a week and the general response was something like "of course you are exhausted, you work to much", totally ignoring the sleeping issue.  I have since radically cut back on my work schedule, but the problem remains the same.  That said, nuless it is nuts and buts mainstream medicine, I put very little faith in the art of medicine.  What they know, they know well, but everything on the edges of their understanding is as much hit and miss as going to a witch doctor. First things first.  Have you seen a doctor, at any time, about what you have described?  If not, why don’t you find a certified sleep doc in your area, IMNSHO a neurologist.  See http://www.absm.org/Diplomates/listing.htm

Response:

Lori&Mike wrote:

"Liam Ness" <work…@the.factory wrote in message news:og652v0mo5eo249mf932qn13qnf5pq1ufn@4ax.com… Thanks for getting back to me a second time in one night!  I have read the material that Mike pointed me to ( except the google stuff which I am working on ).  I found it pretty interesting and for what it is worth with only one night’s research, it does seem that I have DSPS, or something akin to it. That is my unofficial unlicensed guess, you are a classic DSPSer with possible mild sleep apnea. Need to get that checked! Actually, SuperNorm posted the doctor link so I will defer to him on those answers. I’ve been to Pulmonologists and Neurologist Sleep Specilaist and found them both wanting

For the purpose of furthering my knowledge <g

, were either diplomated?

– Hide quoted text — Show quoted text -

:o ) Mike I also checked out the ABSM site that he hyperlinked, and there are nine doctors listed for my state.  Eight are listed as Pulmonology (only six are M.D.’s) and one as Neurology.  The Neurologist is about 4hrs away and not covered by my insurance. I have two questions re the doctors.  1. how big a difference is the neurology vs. pulmonology distinction?  2. If I have to go out of pocket to patek philippe 4908 11r replica see the neurologist, what kind of money are we talking about? I also want to thank Deirdre Saoirse Moen for her(?) reply. And Deirdre, no I have not had a sleep study since my prior Doc’s were primarily focused on my work schedule, and I was too exhausted (but not concerned enough) to push them. On Mon, 13 Jan 2003 08:18:33 GMT, NormC <no…@socal.nospam.com wrote: Liam Ness wrote: On Mon, 13 Jan 2003 05:56:48 GMT, NormC <no…@socal.nospam.com wrote: I’ve discussed it with 3 doctors; an internist, a gp and a family physician. Most of us here have not had much luck with these three ’specialties’ for sleep disorders.  Once again, try to find a neurologist who is a certified sleep doc. And, read closely what Mike suggests.  He’s still fighting the battle. At the time I was working 85 -100hrs a week and the general response was something like "of course you are exhausted, you work to much", totally ignoring the sleeping issue.  I have since radically cut back on my work schedule, but the problem remains the same.  That said, nuless it is nuts and buts mainstream medicine, I put very little faith in the art of medicine.  What they know, they know well, but everything on the edges of their understanding is as much hit and miss as going to a witch doctor. First things first.  Have you seen a doctor, at any time, about what you have described?  If not, why don’t you find a certified sleep doc in your area, IMNSHO a neurologist.  See http://www.absm.org/Diplomates/listing.htm — Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.443 / Virus Database: 248 – Release Date: 1/10/2003

Response:

- Hide quoted text — Show quoted text -Liam Ness wrote:

I need some help, advice, info pointers or something and I hope someone can steer me the right way. In a nutshell: I sleep about 3.5 to 4.5 hrs a night, feel tired (exhausted) most of the time and have mild mental confusion and irritability.  I know my estimates for sleep are correct, because I don’t go to bed until 3 or 4 am  and I am up by 7am because of work.  I don’t go to bed before then because I dont feel sleepy until then.  When I try to go to bed earlier I just lay in bed feeling wide awake.  When I do sleep I can stay asleep for 18+ hours on days when I don’t have to work and my wife/kids will let me. As far as I can recall in my entire life, I have never woken up feeling rested. Not in a nutshell: At least since my early teens I have had some trouble sleeping.  I would lay in bed for a long time trying to get to sleep.  It would take 2-3 hours until I would fall asleep, but then I would sleep the night through until I needed to get up for school.  On weekends I would sleep 10-14hrs per night, still taking 2-3 hours to fall asleep, but not getting up until the afternoon. At that time occasionally, I would get fitful sleep waking a number of times through the night and being miserable that I couldn’t get back to sleep until 4 or 5am when I would fall asleep until the 6:30 alarm. This was pretty infrequent and usually around a test or big event. As an adult I continued to have difficulty sleeping, but the pattern changed.  Since I have no set bedtime, I just stay up until I feel sleepy.  When I do go to bed, I fall asleep pretty much immediately, but I don’t feel sleepy until 3 or 4 am.  If I try to go to sleep earlier, I just lay in bed wide awake for hours.  As an adult I’ve only had one or two episodes of fitful sleep in the past 15yrs. When I do sleep, I can sleep for as many hours as someone will let me. On an average day, I have to get up by 7am because of work and/or family.  On three or four occassions have slept for 30+ hours, and numerous occasions (5 or 6 times a year) for 18+ hours.  I almost never remember any of my dreams except when I pull an 18+ hour sleep session.  If I wake up during the night to answer natures call or take care of the kids I have no problem getting back to sleep whether I was up for a minute or 20minutes.  When I pull an 18+ hour sleep session, I usually will wake up 4-6 times, but I roll over and go right back to sleep.  After an an 18+ hour sleep session I go right back to my usual pattern and get sleepy around 3 or 4 am even if I was only up for a few hours.  Anytime when I am asleep, I love being asleep and everytime I awaken I crave the chance to go back to sleep, but once I am up for the day I don’t really miss or long for sleep until early morning.  I do hate feeling tired most of the time and not feeling mentally sharp. I almost never feel sleepy anytime except in the very early morning, but infrequently I do get an ovewhelming sleepyness in the mid-afternoon.  Also I frequently get sleepy while driving the car during the afternoon or evening and have to fight (slap face, bite tounge or cheek, etc.) to stay awake.  Even though I don’t get sleepy, I do walk around in a more or less permanent state of moderate to high physical tiredness and mild mental confusion. I’ve tried sominex once, but it made me feel like I was on a bad drug trip and didn’t put me to sleep.  I tried flexeril (muscle relaxant) which made me physically exhausted beyond belief for 3-4 hours, but only advanced my sleep to 1:30 am and made it almost impossible to wake up the next morning.  I’ve cut out all caffeine and I never really drink alcohol. I tried going to bed early for a couple of weeks, but I just stayed wide awake until 3 or 4 am.  I tried to get up earlier, but I am just so sleepy once I go to sleep that I couldn’t do it.  I’ve tried meditation, hot showers, not eating after 6pm, eating a moderate meal before trying to sleep, eating a huge meal before trying to sleep to no avail.  I did have some moderate success for a while with moderate exercise but I got even less sleep that normal with heavy exercise. I’ve lost 30lbs which stopped my infrequent snoring, but didn’t have any noticable effect on my sleeping. As I have aged, this lack of sleep has really began to take a greater and greater toll on my abilitiy to function.  Until recently I haven’t spent much time trying to do anything about my insomnia rather I never really thought about it and just accepted it as part of life.  But for the past year and a half as my ability to function has been more and more of a problem, I have become more concerned. Can anyone help me figure out what kind of insomnia causes this kind of problem, and what seems to help people who have this kind of insomnia to function better when awake or to get more sleep?   Also, does anyone know if the years of lack of sleep cause an irreversible loss of function, or if I will spring back once I find a "magic" cure?

You give a lot of detail, but none regarding medical diagnosis/treatment. You need to get to a doctor and have a sleep study done to try to get at the root of your problem.  You seem to be treating symptoms, not causes. Regards Lee in Toronto —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 80,000 Newsgroups – 16 Different Servers! =—–

Response:

"Liam Ness" <work…@the.factory

wrote in message

news:og652v0mo5eo249mf932qn13qnf5pq1ufn@4ax.com…

Thanks for getting back to me a second time in one night!  I have read the material that Mike pointed me to ( except the google stuff which I am working on ).  I found it pretty interesting and for what it is worth with only one night’s research, it does seem that I have DSPS, or something akin to it.

That is my unofficial unlicensed guess, you are a classic DSPSer with possible mild sleep apnea. Need to get that checked! Actually, SuperNorm posted the doctor link so I will defer to him on those answers. I’ve been to Pulmonologists and Neurologist Sleep Specilaist and found them both wanting :o ) Mike – Hide quoted text — Show quoted text -

I also checked out the ABSM site that he hyperlinked, and there are nine doctors listed for my state.  Eight are listed as Pulmonology (only six are M.D.’s) and one as Neurology.  The Neurologist is about 4hrs away and not covered by my insurance. I have two questions re the Significantly more doctors.  1. how big a difference is the neurology vs. pulmonology distinction?  2. If I have to go out of pocket to see the neurologist, what kind of money are we talking about? I also want to thank Deirdre Saoirse Moen for her(?) reply. And Deirdre, no I have not had a sleep study since my prior Doc’s were primarily focused on my work schedule, and I was too exhausted (but not concerned enough) to push them. On Mon, 13 Jan 2003 08:18:33 GMT, NormC <no…@socal.nospam.com wrote: Liam Ness wrote: On Mon, 13 Jan 2003 05:56:48 GMT, NormC <no…@socal.nospam.com wrote: I’ve discussed it with 3 doctors; an internist, a gp and a family physician. Most of us here have not had much luck with these three ’specialties’ for sleep disorders.  Once again, try to find a neurologist who is a certified sleep doc. And, read closely what Mike suggests.  He’s still fighting the battle. At the time I was working 85 -100hrs a week and the general response was something like "of course you are exhausted, you work to much", totally ignoring the sleeping issue.  I have since radically cut back on my work schedule, but the problem remains the same.  That said, nuless it is nuts and buts mainstream medicine, I put very little faith in the art of medicine.  What they know, they know well, but everything on the edges of their understanding is as much hit and miss as going to a witch doctor. First things first.  Have you seen a doctor, at any time, about what you

have

described?  If not, why don’t you find a certified sleep doc in your area, IMNSHO a neurologist.  See http://www.absm.org/Diplomates/listing.htm

— Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.443 / Virus Database: 248 – Release Date: 1/10/2003

Response:

Thanks for getting back to me a second time in one night!  I have read the material that Mike pointed me to ( except the google stuff which I am working on ).  I found it pretty interesting and for what it is worth with only one night’s research, it does seem that I have DSPS, or something akin to it.   I also checked out the ABSM site that he hyperlinked, and there are nine doctors listed for my state.  Eight are listed as Pulmonology (only six are M.D.’s) and one as Neurology.  The Neurologist is about 4hrs away and not covered by my insurance.   I have two questions re the doctors.  1. how big a difference is the neurology vs. pulmonology distinction?  2. If I have to go out of pocket to see the neurologist, what kind of money are we talking about? I also want to thank Deirdre Saoirse Moen for her(?) reply. And Deirdre, no I have not had a sleep study since my prior Doc’s were primarily focused on my work schedule, and I was too exhausted (but not concerned enough) to push them. On Mon, 13 Jan 2003 08:18:33 GMT, NormC <no…@socal.nospam.com

wrote: – Hide quoted text — Show quoted text ->Liam Ness wrote: >> On Mon, 13 Jan 2003 05:56:48 GMT, NormC <no…@socal.nospam.com

>> wrote: >> I’ve discussed it with 3 doctors; an internist, a gp and a family >> physician. >Most of us here have not had much luck with these three ’specialties’ for sleep >disorders.  Once again, try to find a neurologist who is a certified sleep doc. >And, read closely what Mike suggests.  He’s still fighting the battle. >> At the time I was working 85 -100hrs a week and the general >> response was something like "of course you are exhausted, you work to >> much", totally ignoring the sleeping issue.  I have since radically >> cut back on my work schedule, but the problem remains the same.  That >> said, nuless it is nuts and buts mainstream medicine, I put very >> little faith in the art of medicine.  What they know, they know well, >> but everything on the edges of their understanding is as much hit and >> miss as going to a witch doctor. >> >First things first.  Have you seen a doctor, at any time, about what you have >> >described?  If not, why don’t you find a certified sleep doc in your area, >> >IMNSHO a neurologist.  See http://www.absm.org/Diplomates/listing.htm

Response:

Liam Ness wrote:

On Mon, 13 Jan 2003 05:56:48 GMT, NormC <no…@socal.nospam.com wrote: I’ve discussed it with 3 doctors; an internist, a gp and a family physician.

Most of us here have not had much luck with these three ’specialties’ for sleep disorders.  Once again, try to find a neurologist who is a certified sleep doc. And, read closely what Mike suggests.  He’s still fighting the battle. – Hide quoted text — Show quoted text -

At the time I was working 85 -100hrs a week and the general response was something like "of course you are exhausted, you work to much", totally ignoring the sleeping issue.  I have since radically cut back on my work schedule, but the problem remains the same.  That said, nuless it is nuts and buts mainstream medicine, I put very little faith in the art of medicine.  What they know, they know well, but everything on the edges of their understanding is as much hit and miss as going to a witch doctor. First things first.  Have you seen a doctor, at any time, about what you have described?  If not, why don’t you find a certified sleep doc in your area, IMNSHO a neurologist.  See http://www.absm.org/Diplomates/listing.htm

Response:

In article <jvl42vsiaa9uqq936c584r8itpi5mk1…@4ax.com

, Liam Ness

<work…@the.factory

wrote: On Mon, 13 Jan 2003 05:56:48 GMT, NormC <no…@socal.nospam.com wrote: I’ve discussed it with 3 doctors; an internist, a gp and a family physician. At the time I was working 85 -100hrs a week and the general response was something like "of course you are exhausted, you work to much", totally ignoring the sleeping issue.  I have since radically cut back on my work schedule, but the problem remains the same.  That said, nuless it is nuts and buts mainstream medicine, I put very little faith in the art of medicine.  What they know, they know well, but everything on the edges of their understanding is as much hit and miss as going to a witch doctor.

Have you actually had a sleep study? Because that gives a doc hard numbers. — _Deirdre                                             http://deirdre.net "Ideally pacing should look like the stock market for the year 1999, up and up and up, but with lots of little dips downwards…."                                      – Wen Spencer on plotting a novel

Response:

Good, glad the links helped! Lots of reading for sure. Yeah, I used to be at the distrust stage a few years back. Wait until you see a dozen or more doctors trying to get something resolved (migrates into dislike :o ) Anyway, sleep diary is a good idea for a start except not that lame one. Use this one http://www.sleepfoundation.org/publications/diary.html You fill one out when you get up in the morning after sleep. Then you do a different one at the end of the day. Comparison of the two tries to see if something during the day messed up that night’s sleep. Mike. "Liam Ness" <work…@the.factory

wrote in message

news:b4p42vc0tp88838lc573bi04hmee2lhlk0@4ax.com… – Hide quoted text — Show quoted text -

Thanks for getting back to me.  I’ve checked out your links and I think I will try a sleep diary for the next two weeks to get a more "objective" handle on my habits.  I’m doing the google search as well. Just to make it clear, I don’t dislike doctors.  I just don’t put faith in the art aspect of their profession.  I generally do trust the science aspect, but in many areas, such as sleep, there is precious little hard science. On Mon, 13 Jan 2003 01:31:10 -0600, "Lori&Mike" <mpow…@nospamthe-beach.net wrote: Medical community likes to call this chronic insomnia. Tough to fix and therapy options depend on what the heck is causing it. Read "Subject: Re: Late Onset Sleep…no cure?" as there was some info on insomnia on there. Always pays to

do a

http://www.google.com/grphp and use insomnia or Delayed Sleep Phase Syndrome (DSPS) as search words. I would read these: http://www.helioshealth.com/sleep/sleep_01.html Circadian cycles, important to understand. http://www.sleepdisorderchannel.net/dsps/treatment.shtml A must read, explains DSPS and clock adjusters. http://www.postgradmed.com/issues/2002/03_02/attarian.htm Sleep apnea. This

might

be a little advanced for first timers but is good (thanks Lee :o ) Doctors are almost useless for chronic insomnia which is actually different

than

DSPS. With DSPS you should feel rested and fit if you were allowed to sleep

your

normal sleep cycle (say 4 AM to around Noon, for example). You have built up

one

hairy sleep debt and would takes possible months of sleeping your "normal:

sleep

cycle to catch up. You can educate yourself on the clock adjusters like cronotherapy and bright light therapy but you need a doctor to help diagnose possible sleep apnea. Trust me, you can’t dislike doctors as much as I do (just trust me on this) but you probably need a sleep test and you can’t do that yourself. Hope this helps. Give a holler if I can explain any of this better

for

you. Mike — Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.443 / Virus Database: 248 – Release Date: 1/10/2003

— Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.443 / Virus Database: 248 – Release Date: 1/10/2003

Response:

Thanks for getting back to me.  I’ve checked out your links and I think I will try a sleep diary for the next two weeks to get a more "objective" handle on my habits.  I’m doing the Extra google search as well. Just to make it clear, I don’t dislike doctors.  I just don’t put faith in the art aspect of their profession.  I generally do trust the science aspect, but in many areas, such as sleep, there is precious little hard science. On Mon, 13 Jan 2003 01:31:10 -0600, "Lori&Mike" – Hide quoted text — Show quoted text -<mpow…@nospamthe-beach.net

wrote: Medical community likes to call this chronic insomnia. Tough to fix and therapy options depend on what the heck is causing it. Read "Subject: Re: Late Onset Sleep…no cure?" as there was some info on insomnia on there. Always pays to do a http://www.google.com/grphp and use insomnia or Delayed Sleep Phase Syndrome (DSPS) as search words. I would read these: http://www.helioshealth.com/sleep/sleep_01.html Circadian cycles, important to understand. http://www.sleepdisorderchannel.net/dsps/treatment.shtml A must read, explains DSPS and clock adjusters. http://www.postgradmed.com/issues/2002/03_02/attarian.htm Sleep apnea. This might be a little advanced for first timers but is good (thanks Lee :o ) Doctors are almost useless for chronic insomnia which is actually different than DSPS. With DSPS you should feel rested and fit if you were allowed to sleep your normal sleep cycle (say 4 AM to around Noon, for example). You have built up one hairy sleep debt and would takes possible months of sleeping your "normal: sleep cycle to catch up. You can educate yourself on the clock adjusters like cronotherapy and bright light therapy but you need a doctor to help diagnose possible sleep apnea. Trust me, you can’t dislike doctors as much as I do (just trust me on this) but you probably need a sleep test and you can’t do that yourself. Hope this helps. Give a holler if I can explain any of this better for you. Mike — Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.443 / Virus Database: 248 – Release Date: 1/10/2003

Response:

First things first.  Have you seen a doctor, at any time, about what you have described?  If not, why don’t you find a certified sleep doc in your area, IMNSHO a neurologist.  See http://www.absm.org/Diplomates/listing.htm – Hide quoted text — Show quoted text -Liam Ness wrote:

I need some help, advice, info pointers or something and I hope someone can steer me the right way. In a nutshell: I sleep about 3.5 to 4.5 hrs a night, feel tired (exhausted) most of the time and have mild mental confusion and irritability.  I know my estimates for sleep are correct, because I don’t go to bed until 3 or 4 am  and I am up by 7am because of work.  I don’t go to bed before then because I dont feel sleepy until then.  When I try to go to bed earlier I just lay in bed feeling wide awake.  When I do sleep I can stay asleep for 18+ hours on days when I don’t have to work and my wife/kids will let me. As far as I can recall in my entire life, I have never woken up feeling rested. Not in a nutshell: At least since my early teens I have had some trouble sleeping.  I would lay in bed for a long time trying to get to sleep.  It would take 2-3 hours until I would fall asleep, but then I would sleep the night through until I needed to get up for school.  On weekends I would sleep 10-14hrs per night, still taking 2-3 hours to fall asleep, but not getting up until the afternoon. At that time occasionally, I would get fitful sleep waking a number of times through the night and being miserable that I couldn’t get back to sleep until 4 or 5am when I would fall asleep until the 6:30 alarm. This was pretty infrequent and usually around a test or big event. As an adult I continued to have difficulty sleeping, but the pattern changed.  Since I have no set bedtime, I just stay up until I feel sleepy.  When I do go to bed, I fall asleep pretty much immediately, but I don’t feel sleepy until 3 or 4 am.  If I try to go to sleep earlier, I just lay in bed wide awake for hours.  As an adult I’ve only had one or two episodes of fitful sleep in the past 15yrs. When I do sleep, I can sleep for as many hours as someone will let me. On an average day, I have to get up by 7am because of work and/or family.  On three or four occassions have slept for 30+ hours, and numerous occasions (5 or 6 times a year) for 18+ hours.  I almost never remember any of my dreams except when I pull an 18+ hour sleep session.  If I wake up during the night to answer natures call or take care of the kids I have no problem getting back to sleep whether I was up for a minute or 20minutes.  When I pull an 18+ hour sleep session, I usually will wake up 4-6 times, but I roll over and go right back to sleep.  After an an 18+ hour sleep session I go right back to my usual pattern and get sleepy around 3 or 4 am even if I was only up for a few hours.  Anytime when I am asleep, I love being asleep and everytime I awaken I crave the chance to go back to sleep, but once I am up for the day I don’t really miss or long for sleep until early morning.  I do hate feeling tired most of the time and not feeling mentally sharp. I almost never feel sleepy anytime except in the very early morning, but infrequently I do get an ovewhelming sleepyness in the mid-afternoon.  Also I frequently get sleepy while driving the car during the afternoon or evening and have to fight (slap face, bite tounge or cheek, etc.) to stay awake.  Even though I don’t get sleepy, I do walk around in a more or less permanent state of moderate to high physical tiredness and mild mental confusion. I’ve tried sominex once, but it made me feel like I was on a bad drug trip and didn’t put me to sleep.  I tried flexeril (muscle relaxant) which made me physically exhausted beyond belief for 3-4 hours, but only advanced my sleep to 1:30 am and made it almost impossible to wake up the next morning.  I’ve cut out all caffeine and I never really drink alcohol. I tried going to bed early for a couple of weeks, but I just stayed wide awake until 3 or 4 am.  I tried to get up earlier, but I am just so sleepy once I go to sleep that I couldn’t do it.  I’ve tried meditation, hot showers, not eating after 6pm, eating a moderate meal before trying to sleep, eating a huge meal before trying to sleep to no avail.  I did have some moderate success for a while with moderate exercise but I got even less sleep that normal with heavy exercise. I’ve lost 30lbs which stopped my infrequent snoring, but didn’t have any noticable effect on my sleeping. As I have aged, this lack of sleep has really began to take a greater and greater toll on my abilitiy to function.  Until recently I haven’t spent much time trying to do anything about my insomnia rather I never really thought about it and just accepted it as part of life.  But for the past year and a half as my ability to function has been more and more of a problem, I have become more concerned. Can anyone help me figure out what kind of insomnia causes this kind of problem, and what seems to help people who have this kind of insomnia to function better when awake or to get more sleep?   Also, does anyone know if the years of lack of sleep cause an irreversible loss of function, or if I will spring back once I find a "magic" cure?

Response:

I need some help, advice, info pointers or something and I hope someone can steer me the right way. In a nutshell: I sleep about 3.5 to 4.5 hrs a night, feel tired (exhausted) most of the time and have mild mental confusion and irritability.  I know my estimates for sleep are correct, because I don’t go to bed until 3 or 4 am  and I am up by 7am because of work.  I don’t go to bed before then because I dont feel sleepy until then.  When I try to go to bed earlier I just lay in bed feeling wide awake.  When I do sleep I can stay asleep for 18+ hours on days when I don’t have to work and my wife/kids will let me. As far as I can recall in my entire life, I have never woken up feeling rested. Not in a nutshell: At least since my early teens I have had some trouble sleeping.  I would lay in bed for a long time trying to get to sleep.  It would take 2-3 hours until I would fall asleep, but then I would sleep the night through until I needed to get up for school.  On weekends I would sleep 10-14hrs per night, still taking 2-3 hours to fall asleep, but not getting up until the afternoon. At that time occasionally, I would get fitful sleep waking a number of times through the night and being miserable that I couldn’t get back to sleep until 4 or 5am when I would fall asleep until the 6:30 alarm. This was pretty infrequent and usually around a test or big event. As an adult I continued to have difficulty sleeping, but the pattern changed.  Since I have no set bedtime, I just stay up until I feel sleepy.  When I do go to bed, I fall asleep pretty much immediately, but I don’t feel sleepy until 3 or 4 am.  If I try to go to sleep earlier, I just lay in bed wide awake for hours.  As an adult I’ve only had one or two episodes of fitful sleep in the past 15yrs. When I do sleep, I can sleep for as many hours as someone will let me. On an average day, I have to get up by 7am because of work and/or family.  On three or four occassions have slept for 30+ hours, and numerous occasions (5 or 6 times a year) for 18+ hours.  I almost never remember any of my dreams except when I pull an 18+ hour sleep session.  If I wake up during the night to answer natures call or take care of the kids I have no problem getting back to sleep whether I was up for a minute or 20minutes.  When I pull an 18+ hour sleep session, I usually will wake up 4-6 times, but I roll over and go right back to sleep.  After an an 18+ hour sleep session I go right back to my usual pattern and get sleepy around 3 or 4 am even if I was only up for a few hours.  Anytime when I am asleep, I love being asleep and everytime I awaken I crave the chance to go back to sleep, but once I am up for the day I don’t really miss or long for sleep until early morning.  I do hate feeling tired most of the time and not feeling mentally sharp. I almost never feel sleepy anytime except in the very early morning, but infrequently I do get an ovewhelming sleepyness in the mid-afternoon.  Also I frequently get sleepy while driving the car during the afternoon or evening and have to fight (slap face, bite tounge or cheek, etc.) to stay awake.  Even though I don’t get sleepy, I do walk around in a more or less permanent state of moderate to high physical tiredness and mild mental confusion.   I’ve tried sominex once, but it made me feel like I was on a bad drug trip and didn’t put me to sleep.  I tried flexeril (muscle relaxant) which made me physically exhausted beyond belief for 3-4 hours, but only advanced my sleep to 1:30 am and made it almost impossible to wake up the next morning.  I’ve cut out all caffeine and I never really drink alcohol. I tried going to bed early for a couple of weeks, but I just stayed wide awake until 3 or 4 am.  I tried to get up earlier, but I am just so sleepy once I go to sleep that I couldn’t do it.  I’ve tried meditation, hot showers, not eating after 6pm, eating a moderate meal before trying to sleep, eating a huge meal before trying to sleep to no avail.  I did have some moderate success for a while with moderate exercise but I got even less sleep that normal with heavy exercise. I’ve lost 30lbs which stopped my infrequent snoring, but didn’t have any noticable effect on my sleeping. As I have aged, this lack of sleep has really began to take a greater and greater toll on my abilitiy to function.  Until recently I haven’t spent much time trying to do anything about my insomnia rather I never really thought about it and just accepted it as part of life.  But for the past year and a half as my ability to function has been more and more of a problem, I have become more concerned. Can anyone help me figure out what kind of insomnia causes this kind of problem, and what seems to help people who have this kind of insomnia to function better when awake or to get more sleep?   Also, does anyone know if the years of lack of sleep cause an irreversible loss of function, or if I will spring back once I find a "magic" cure?

Response:

Question… How much does a heated humidifier help?

Question:

Liz, can I take my water on a plane for my trip? Will they want to know what it is etc? MLC "LizNwilbur" <liznwil…@aol.com

wrote in message

news:20021229092429.29719.00000357@mb-cv.aol.com… – Hide quoted text — Show quoted text -

I started cpap with a cold humidifier (BCBS was stingy). It helped very

little

if any. If I measured how much water I put in, and how much remained the

next

am. It only seemed to consume (add to the air) about two-three tablespoons

of

water most nights. After about six months, I finally got a heated

humidifier.

Warm water evaporates more readily than cold, just like when we heat water

on

the stove, and get steam, and virtually nothing from a cold bowl of water.

I

was sleeping at 18cmh2o.   I found it helped me tremendously to get the HEATED version. Less

dryness and

sore throat!  I have just on a few occassions, slept without it when

traveling,

and was so miserable, I now travel with my jug of distilled water, and

heated

humidifier no matter if I’m going to be gone one night or many. PS If you sleep with your bedroom very cool, you will probably want an insulating sleeve to prevent condensation in the hose or mask.

Response:

Why not just pick up a bottle of diistilled water from a market at your destination? On Sun, 29 Dec 2002 20:20:42 GMT, "Margaret Cunningham" – Hide quoted text — Show quoted text -<lonest…@thumb.net

wrote: Liz, can I take my water on a plane for my trip? Will they want to know what it is etc? MLC "LizNwilbur" <liznwil…@aol.com wrote in message news:20021229092429.29719.00000357@mb-cv.aol.com… I started cpap with a cold humidifier (BCBS was stingy). It helped very little if any. If I measured how much water I put in, and how much remained the next am. It only seemed to consume (add to the air) about two-three tablespoons of water most nights. After about six months, I finally got a heated humidifier. Warm water evaporates more readily than cold, just like when we heat water on the stove, and get steam, and virtually nothing from a cold bowl of water. I was sleeping at 18cmh2o.   I found it helped me tremendously to get the HEATED version. Less dryness and sore throat!  I have just on a few occassions, slept without it when traveling, and was so miserable, I now travel with my jug of distilled water, and heated humidifier no matter if I’m going to be gone one night or many. PS If you sleep with your bedroom very cool, you will probably want an insulating sleeve to prevent condensation in the hose or mask.

Response:

Well yeh, I know that would be easy, except that Ill be in a hotel alone for 2 weeks with no car, relying on a shuttle to get back and forth to my classes… I was thinking maybe I better take something with me just in case I cant find a store close by in the city. MLC "Ralph Jungheim" <ralph.junghe…@verizon.net

wrote in message

news:crqu0vo8cbftrqr36ivo4t628lmtu3i4f7@4ax.com… – Hide quoted text — Show quoted text -

Why not just pick up a bottle of diistilled water from a market at your destination? On Sun, 29 Dec 2002 20:20:42 GMT, "Margaret Cunningham" <lonest…@thumb.net wrote: Liz, can I take my water on a plane for my trip? Will they want to know

what > >it is etc? > >MLC > >"LizNwilbur" <liznwil…@aol.com

wrote in message

> >news:20021229092429.29719.00000357@mb-cv.aol.com… > >> I started cpap with a cold humidifier (BCBS was stingy). It helped very > >little > >> if any. If I measured how much water I put in, and how much remained the

next am. It only seemed to consume (add to the air) about two-three

tablespoons

of water most nights. After about six months, I finally got a heated humidifier. Warm water evaporates more readily than cold, just like when we heat

water

on the stove, and get steam, and virtually nothing from a cold bowl of

water.

I was sleeping at 18cmh2o.   I found it helped me tremendously to get the HEATED version. Less dryness and sore throat!  I have just on a few occassions, slept without it when traveling, and was so miserable, I now travel with my jug of distilled water, and heated humidifier no matter if I’m going to be gone one night or many. PS If you sleep with your bedroom very cool, you will probably want an insulating sleeve to prevent condensation in the hose or mask.

Response:

"Margaret Cunningham" <lonest…@thumb.net

wrote in message

news:YsLP9.39296$VA5.7495588@news1.news.adelphia.net…

Well yeh, I know that would be easy, except that Ill be in a hotel alone

for

2 weeks with no car, relying on a shuttle to get back and forth to my classes… I was thinking maybe I better take something with me just in

case

I cant find a store close by in the city. MLC

——————————————————————- It won’t hurt you or your humidifer to occasionally use tap water. Carting water along just isn’t worth the hassle youg might face at airport checkin. Hal

Response:

They will make you take a swallow of the water at checkin…….so you will have to uncork the bottle……Janet — "h.sanders" <h.sand…@attbi.com

wrote in message

news:awLP9.553493$QZ.80287@sccrnsc02… – Hide quoted text — Show quoted text -> "Margaret Cunningham" <lonest…@thumb.net

wrote in message

> news:YsLP9.39296$VA5.7495588@news1.news.adelphia.net… > > Well yeh, I know that would be easy, except that Ill be in a hotel alone > for > > 2 weeks with no car, relying on a shuttle to get back and forth to my > > classes… I was thinking maybe I better take something with me just in > case > > I cant find a store close by in the city. > > MLC > ——————————————————————- > It won’t hurt you or your humidifer to occasionally use tap water. Carting > water along just isn’t worth the hassle youg might face at airport checkin.

Hal

Response:

Margaret Cunningham wrote:

Well yeh, I know that would be easy, except that Ill be in a hotel alone for 2 weeks with no car, relying on a shuttle to get back and forth to my classes… I was thinking maybe I better take something with me just in case I cant find a store close by in the city. MLC

Are you saying you won’t have any checkable baggage?  If notm why not put water in that bag? You want to be careful about using tap water in your humidifier, especially if you use a resevoir that doesn’t give you inside access to the heating plate.  It will corrode and develop hot spots leading to deterioation of the plate. – Hide quoted text — Show quoted text -

"Ralph Jungheim" <ralph.junghe…@verizon.net wrote in message news:crqu0vo8cbftrqr36ivo4t628lmtu3i4f7@4ax.com… Why not just pick up a bottle of diistilled water from a market at your destination? On Sun, 29 Dec 2002 20:20:42 GMT, "Margaret Cunningham" <lonest…@thumb.net wrote: Liz, can I take my water on a plane for my trip? Will they want to know what it is etc? MLC "LizNwilbur" <liznwil…@aol.com wrote in message news:20021229092429.29719.00000357@mb-cv.aol.com… I started cpap with a cold humidifier (BCBS was stingy). It helped very little if any. If I measured how much water I put in, and how much remained the next am. It only seemed to consume (add to the air) about two-three tablespoons of water most nights. After about six months, I finally got a heated humidifier. Warm water evaporates more readily than cold, just like when we heat water on the stove, and get steam, and virtually nothing from a cold bowl of water. I was sleeping at 18cmh2o.   I found it helped me tremendously to get the HEATED version. Less dryness and sore throat!  I have just on a few occassions, slept without it when traveling, and was so miserable, I now travel with my jug of distilled water, and heated humidifier no matter if I’m going to be gone one night or many. PS If you sleep with your bedroom very cool, you will probably want an insulating sleeve to prevent condensation in the hose or mask.

— Sleep well/eat well/be well Norm To email replace nospam with rr

Response:

As usual, you folks have been fantastic (as you have been over many of the years I’ve been using a CPAP). My sincere thanks for the suggestions and comments. It sounds like I definitely need one at 12ccH2O and my sinus problems. My wife uses a much lower pressure 8ccH2O, but being new to CPAP, her compliance is still low, and from my "googling" and external reading, it sounds like heated humidifiers make a big difference there too. I shouldn’t have any problems getting our doctors to prescribe the humidifiers. My doctor will probably jump at anything that would help reduce nasal irritation for me <grin

.

It will be interesting to see how much I need/use the humidifier since I live in the South Florida area in the USA (near Fort Lauderdale). As you may know, during the spring, summer and fall our humidity can run in the 90% range most of the time. The other side of this is that we live with our air conditioners running pretty much all the time which dries the air back out a lot. Currently it’s 56 degrees F and the humidity is 80% outside. Inside it’s about 74 degrees F and the humidity is around 61% (assuming this old meter is accurate). My next bit of research is to see if they make any "universal" HHs (Heated Humidifier) or if they have to be specific for our machines. I’ll look into this and give a shout if I need help. I have to write down the model and maker info before I hit google anyway. My thanks again! Oh yea.. Mare Egrets Moose Panda Hippo Gnu Deer! Happy holidays to all. Dan Rhea "Loyalty is for family, friends and country, not operating systems, compilers and computers"   – Dan Rhea, 1986 "Quoting yourself is the first sign of insanity"  - Anon

Response:

Dan, I’m going to SWAG this one. At  8cm maybe 20-60% of patients need humidity and maybe 10-50% need heated. At 12cm maybe  50-100% of patients need humidity and maybe 40-80% need heated. At 20 cm probably 100% need heated. At 10cm I was fine with no humid, and heated humid gagged me. At 14cm passive was a need. At 18cm I needed heated. YMMV. But to prevent internecine rivalry: If doc and insuance will do it, get heat for both of you. If not, at least get passive plus a written on paper Rx for heated which will allow you to get humid on the Web at about 1/2 to 1/3 what your local evil ripoff DME will charge. regards, eric pearson db2e…@nospammindspring.com On Sun, 29 Dec 2002 23:16:35 -0500, "Dan Rhea" <danr…@bellsouth.net

wrote: – Hide quoted text — Show quoted text -

As usual, you folks have been fantastic (as you have been over many of the years I’ve been using a CPAP). My sincere thanks for the suggestions and comments. It sounds like I definitely need one at 12ccH2O and my sinus problems. My wife uses a much lower pressure 8ccH2O, but being new to CPAP, her compliance is still low, and from my "googling" and external reading, it sounds like heated humidifiers make a big difference there too. I shouldn’t have any problems getting our doctors to prescribe the humidifiers. My doctor will probably jump at anything that would help reduce nasal irritation for me <grin. It will be interesting to see how much I need/use the humidifier since I live in the South Florida area in the USA (near Fort Lauderdale). As you may know, during the spring, summer and fall our humidity can run in the 90% range most of the time. The other side of this is that we live with our air conditioners running pretty much all the time which dries the air back out a lot. Currently it’s 56 degrees F and the humidity is 80% outside. Inside it’s about 74 degrees F and the humidity is around 61% (assuming this old meter is accurate). My next bit of research is to see if they make any "universal" HHs (Heated Humidifier) or if they have to be specific for our machines. I’ll look into this and give a shout if I need help. I have to write down the model and maker info before I hit google anyway. My thanks again! Oh yea.. Mare Egrets Moose Panda Hippo Gnu Deer! Happy holidays to all. Dan Rhea "Loyalty is for family, friends and country, not operating systems, compilers and computers"  - Dan Rhea, 1986 "Quoting yourself is the first sign of insanity" – Anon

Response:

At  8cm maybe 20-60% of patients need humidity and maybe 10-50% need heated. At 12cm maybe  50-100% of patients need humidity and maybe 40-80% need heated.

$^*(& !! until you show us clinical studies on this, i will NOT accept it….. PROOOOOF – give us some – i know you can’t….cause there isn’t any — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://www.anchorweb.com.au/sleepdisorders this site is a work in progress – feel free to submit info/articles

Response:

Tal wrote:

At  8cm maybe 20-60% of patients need humidity and maybe 10-50% need heated. At 12cm maybe  50-100% of patients need humidity and maybe 40-80% need heated. $^*(& !! until you show us clinical studies on this, i will NOT accept it….. PROOOOOF – give us some – i know you can’t….cause there isn’t any

Beth you cut out his escape <g

,  the word SWAG.  One doesn’t prove a scientific

wild assed guess. <grin

 Perhaps you should put SWAG on the website, since we do a

lot of it on this newsgroup.  LOFLOL — Sleep well/eat well/be well Norm To email replace nospam with rr

Response:

Beth you cut out his escape <g,  the word SWAG.  One doesn’t prove a

scientific

wild assed guess. <grin  Perhaps you should put SWAG on the website,

since we do a

lot of it on this newsgroup.  LOFLOL

it just annoys me how every post abot humidifiers he’s gotta say that low pressures dont’ need humidifers….yet he has no evidence of it whatsoever …..NONE – despite people asking him repeatedly (and as you know, it’s not just me doing the asking) — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://www.anchorweb.com.au/sleepdisorders this site is a work in progress – feel free to submit info/articles

Response:

Tal wrote:

Beth you cut out his escape <g,  the word SWAG.  One doesn’t prove a scientific wild assed guess. <grin  Perhaps you should put SWAG on the website, since we do a lot of it on this newsgroup.  LOFLOL it just annoys me how every post abot humidifiers he’s gotta say that low pressures dont’ need humidifers….yet he has no evidence of it whatsoever …..NONE – despite people asking him repeatedly (and as you know, it’s not just me doing the asking)

I’ve pretty much avoided the subject, because I would have had to give it more thought than I was prepared to do at the time.  However, many months ago I did post that my neuro sleep doc poo-poo’d humidifiers "here", which was in West Los Angeles, CA.  However, I live in the San Fernando Valley and it gets a lot hotter here than in LA. And add to continue reading that the fact that for my week long autopap test, he didn’t provide me with any kind of humidifier.  And I didn’t notice a thing.   I have absolutely no idea if the need is affected by pressure.  But there are some basic fluid dynamics (air is considered a fluid) involved that tend to indicate such to me.  From my recollection of the subject, I’d explain what happens this way. Once the particular air pressure (high or low depending n the ’strength of the obstruction) opens the obstruction, air will flow freely.  The higher the pressure, the greater the volume of air.  So there would be more air passing through the nose with a high pressure than a low pressure.  It strikes me that the higher the pressure and the higher the volume of air, the more ___I___ would need a humidifer to keep from getting dried out.  Since heated humidifiers provide more moisture to that drying air, I would expect that the need for same would be greater at higher pressures. I’m open to any of the younger engineers reading here that may have take a fluids class more recently. — Eat well/sleep well/be well Norm T2 Got feeling that T2s are much different than T1s Or I’m different than everyone!!! To email replace nospam with rr

Response:

Well yeh, I know that would be easy, except that Ill be in a hotel alone

for

2 weeks with no car, relying on a shuttle to get back and forth to my classes… I was thinking maybe I better take something with me just in

case

I cant find a store close by in the city. MLC

someone here was talking a while back a bout having arranged for the hotel to get some distilled water in for them….that might be an option, i fyou call them – explain the cpap and why you need the distilled water they may help — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://www.anchorweb.com.au/sleepdisorders this site is a work in progress – feel free to submit info/articles

Response:

I started cpap with a cold humidifier (BCBS was stingy). It helped very little if any. If I measured how much water I put in, and how much remained the next am. It only seemed to consume (add to the air) about two-three tablespoons of water most nights. After about six months, I finally got a heated humidifier. Warm water evaporates more readily than cold, just like when we heat water on the stove, and get steam, and virtually nothing from a cold bowl of water. I was sleeping at 18cmh2o.   I found it helped me tremendously to get the HEATED version. Less dryness and sore throat!  I have just on a few occassions, slept without it when traveling, and was so miserable, I now travel with my jug of distilled water, and heated humidifier no matter if I’m going to be gone one night or many. PS If you sleep with your bedroom very cool, you will probably want an insulating sleeve to prevent condensation in the hose or mask.

Response:

Depends on the person, the environment, and the pressure. At 4cm in a humid room nobody needs a heated humidifier. At 20cm in a dry room everyone needs one. What is her/your pressure? What is the ambient humidity? regards, eric pearson db2e…@nospammindspring.com On Sat, 28 Dec 2002 21:22:39 -0500, "Dan Rhea" <danr…@bellsouth.net

wrote: – Hide quoted text — Show quoted text -

Greetings all… Simple question I hope… since I’m considering this for my wife and myself… Does a heated humidifier make a big difference in comfort while sleeping? I have asthma (mostly under control) and sinus problems (inflammation, congestion and some dryness at times) so I wanted to get some recommendations and opinions before I buy something like this. FYI.. I’m a long-time CPAP user (since 1987) and my wife is a bit of a newbie (less than three months and is still removing her mask in her sleep most nights). Dan Rhea "Loyalty is for family, friends and country, not operating systems, compilers and computers"  - Dan Rhea, 1986 "Quoting yourself is the first sign of insanity" – Anon

Response:

Depends on the person, the environment, and the pressure. At 4cm in a humid room nobody needs a heated humidifier. At 20cm in a dry room everyone needs one.

pressure is NOT a direct indicator of whether or not you need a humidifier…it depends completely on the individual….some need humidification at basically no pressure (like me for example ) and some DON’T need it at high pressures…… — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://www.anchorweb.com.au/sleepdisorders this site is a work in progress – feel free to submit info/articles

Response:

Greetings all… Simple question I hope… since I’m considering this for my wife and myself… Does a heated humidifier make a big difference in comfort while sleeping? I have asthma (mostly under control) and sinus problems (inflammation, congestion and some dryness at times) so I wanted to get some recommendations and opinions before I buy something like this. FYI.. I’m a long-time CPAP user (since 1987) and my wife is a bit of a newbie (less than three months and is still removing her mask in her sleep most nights). Dan Rhea "Loyalty is for family, friends and country, not operating systems, compilers and computers"   – Dan Rhea, 1986 "Quoting yourself is the first sign of insanity"  - Anon

Response:

Hi Dan. I have severe allergies and 75% of the time I have basically no airflow through my nose. My therapist set me up with a fisher paykel humidified unit from the beginning, and I find that on the days that Im having an allergy flareup the humidity helps to keep the swelling of my mucous membranes under control a bit. In fact, on a really bad day I will stay in bed with my cpap on all day and turn the humidity up a bit more, to help get me some airflow. All I can say is it really helps me, I love my humidified cpap! I hope you get some more comments from others. MLC

Response:

- Hide quoted text — Show quoted text -Dan Rhea wrote:

Greetings all… Simple question I hope… since I’m considering this for my wife and myself… Does a heated humidifier make a big difference in comfort while sleeping? I have asthma (mostly under control) and sinus problems (inflammation, congestion and some dryness at times) so I wanted to get some recommendations and opinions before I buy something like this. FYI.. I’m a long-time CPAP user (since 1987) and my wife is a bit of a newbie (less than three months and is still removing her mask in her sleep most nights). Dan Rhea

I started with an F&P HC200, with built-in humidifier.  I knew I’d need it because cool air makes me cough (bronchial asthma).  I did a week-long autopap test a few months ago with no humidifier (passover OR heated) at all.  Didn’t notice a thing. — Sleep well/eat well/be well Norm To email replace nospam with rr

Response:

Dan Rhea <danr…@bellsouth.net

wrote: Simple question I hope… since I’m considering this for my wife and myself… Does a heated humidifier make a big difference in comfort while sleeping? I have asthma (mostly under control) and sinus problems (inflammation, congestion and some dryness at times) so I wanted to get some recommendations and opinions before I buy something like this.

Yes, the higher the pressure, the greater the difference acording to those on this news group. I am at 13 cm pressure and would have after the first week without it. My HMO and insurance company would not go for the heated humidifier last year. After the first week without it, I went out and bought one on my own nickel. By the end of the first week on the heated humidifier, the problems that I had the first week had been reversed. Ross Bernheim

Response:

"Dan Rhea" <danr…@bellsouth.net

wrote in message

news:GWsP9.14491$nc7.7448@news.bellsouth.net… – Hide quoted text — Show quoted text -

Greetings all… Simple question I hope… since I’m considering this for my wife and myself… Does a heated humidifier make a big difference in comfort while sleeping? I have asthma (mostly under control) and sinus problems (inflammation, congestion and some dryness at times) so I wanted to get some recommendations and opinions before I buy something like this. FYI.. I’m a long-time CPAP user (since 1987) and my wife is a bit of a newbie (less than three months and is still removing her mask in her sleep most nights). Dan Rhea "Loyalty is for family, friends and country, not operating systems, compilers and computers"   – Dan Rhea, 1986 "Quoting yourself is the first sign of insanity"  - Anon

——————————–  In my opinion a heated humidifer makes a huge difference. I have a BiPAP set at a relatively low pressure (11i, 6e), but after sleeping one night without my F&P, I would never do it again if at all possible. Hal S. – Hide quoted text — Show quoted text –

Response:

Simple question I hope… since I’m considering this for my wife and myself… Does a heated humidifier make a big difference in comfort while sleeping? I have asthma (mostly under control) and sinus

for the swiss made bell & ross replica majority a heated humidifier seems to make a good deal of difference.  There are a few who are quite happy with out one, and a few who even say they do better without one….but for the majority, it helps a lot. I would recommend one of the new F&P ones with Ambient Tracking — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://www.anchorweb.com.au/sleepdisorders this site is a work in progress – feel free to submit info/articles

Response:

Tal <beth…@hotmail.com

wrote in message

news:aum8pl$88iga$1@ID-148111.news.dfncis.de…

Simple question I hope… since I’m considering this for my wife and myself… Does a heated humidifier make a big difference in comfort while sleeping? I have asthma (mostly under control) and sinus for the majority a heated humidifier seems to make a good deal of difference.  There are a few who are quite happy with out one, and a few

who

even say they do better without one….but for the majority, it helps a

lot.

I would recommend one of the new F&P ones with Ambient Tracking

I’m collecting my new F&P HC221 tomorrow, the brochure mentions ‘ HC221 compliance data storage’,  ’up to 256 nights’ and ‘HC221 compliance reporter s/w’ can this be obtained for users self-monitoring purposes, here in Australia? Chuck — – Hide quoted text — Show quoted text -

Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://www.anchorweb.com.au/sleepdisorders this site is a work in progress – feel free to submit info/articles

Response:

I’m collecting my new F&P HC221 tomorrow, the brochure mentions ‘ HC221 compliance data storage’,  ’up to 256 nights’ and ‘HC221 compliance reporter s/w’ can this be obtained for users self-monitoring purposes, here in

Australia? I have no idea if patients can get the software associated with the complaince stats the HC221 stores….but if it’s avaialble, it will certainly be so in Australia… F&P release stuff in Aust before they do in the US. — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here http://www.anchorweb.com.au/sleepdisorders this site is a work in progress – feel free to submit info/articles

Response:

- Hide quoted text — Show quoted text -Leonid S wrote:

Tal <beth…@hotmail.com wrote in message news:aum8pl$88iga$1@ID-148111.news.dfncis.de… Simple question I hope… since I’m considering this for my wife and myself… Does a heated humidifier make a big difference in comfort while sleeping? I have asthma (mostly under control) and sinus for the majority a heated humidifier seems to make a good deal of difference.  There are a few who are quite happy with out one, and a few who even say they do better without one….but for the majority, it helps a lot. I would recommend one of the new F&P ones with Ambient Tracking I’m collecting my new F&P HC221 tomorrow, the brochure mentions ‘ HC221 compliance data storage’,  ’up to 256 nights’ and ‘HC221 compliance reporter s/w’ can this be obtained for users self-monitoring purposes, here in Australia? Chuck

Here in the US you can buy the 220 (no compliance) or the 221, whichever one you want, with script.  But the 221 cost a few bucks more because of the extra capability. — Sleep well/eat well/be well Norm To email replace nospam with rr

Response:

Anyone have comments on Fisher Paykal HC221?

Question:

With improved sleep comes improved rest and recuperation. With that, we have a wee bit more energy, so the dreams get more interesting!  ;-)) Give us guys 25 cents more energy and we will get $1.00 more in dreams!! ;-) ) Best— Ron – Hide quoted text — Show quoted text -"bob" <rjmye…@gte.net

wrote in message news:3E0F7C73.89D613FD@gte.net… Hi Margaret (and others); Well, it’s been almost 1 week now with the HC221. Outside of my little experiment with bumping up the temperature setting a tad and then having to put it back, I’ve had no problems with the unit at all.  I’ve been waking up with my sinuses being clear and not having any issues with breathing. Only interesting quirk about the unit is having to get replacement chambers for it (the DME feels they need to be replaced every 3 months, or sooner if they somehow get damaged). Really interesting thing about using this unit for me is the fact that I’m starting to really have some "interesting" dreams again, along with getting some childhood memories going (nothing like having a fixation to find out more about Marvel’s METAL MEN or Green Lantern as to how they’ve evolved/ended). take care… -bob Margaret Cunningham wrote: Hi Bob, I too use the HC220 and absolutely love it… wouldnt get in bed without it… (well almost … *g* ) "NormC" <no…@socal.nospam.com wrote in message news:3E0A6D2F.EED27D22@socal.nospam.com… bob myers wrote: Hi; Well, I’m close to being in year 4 of using a cpap now. I’ve heard from others (as well as read here at times) about the benefits of using heated humidifiers.  Since I thought my Sullivan V unit was starting to show signs of age, I talked to my sleep specialist and now have a new Fisher & Paykil HC221 unit.  Tonight will be my 3rd night using it —  I have it on a setting of about

2-1/2

for heating the distilled water. So far, I’ve been able to get to sleep a bit faster as well as wake up feeling more refreshed.  I’m surprised at the low amount of water that is consumed — a far cry from the amount of water that

I

had to put into the passive humidifier that I got with my Sullivan V CPAP machine. (I stopped using the passive humidifier after going through so much water and not being sure if I was seeing any real benefit). So, can anyone else who has this unit comment on it?  I’d appreciate any insights/comments/etc. from others who have more experience with it. -bob I use the HC220 which, IIRC, is identical to the HC221, but the 220 doesn’t have a compliance meter. The amount of water it uses depends on what the local humidify is,

where I

have it set and how long I sleep.  One time I turned it up because the air seemed very cold for my bronchial-asthma.  It ran out of water. I normally  keep it where you have yours. HTH — Sleep well/eat well/be well Norm To email replace nospam with rr

Response:

"news.verizon.net" <leslie.re…@verizon.net

wrote in message

news:0pkP9.8681$Jb.6849@nwrddc02.gnilink.net…

I also use the 221 and it varies by the room temprature as to how much

water

I use.  However there is a "rainout" feature bulit in to the machine which also mantains water temprature depending on the room conditions. Check your owners manual. Happy Holidays to All, Mark

Hi Mark Does the "rainout feature" work well? Thanks

Response:

Hi, Thanks for your comments and valuable information. I was asking about "Which CPAP? because I wanted to pay for a new one for my Father. My Father has been using a Resmed Sulivan 5 but it sounds to me like the motor is giving out (grinding noises). In addition to your comments I also asked a woman at a sleep clinic and did some research myself. I thought that the Respironics CPAP (can’t remember the name) was just a copy of the Resmed Auto CS but with a couple of improvements. What put me off the Resmed Auto CS however was mainly that it seems that you have to use a Resmed mask with a Resmed machine. This severely limits your choices and I do not like to be locked in to a company . Also I know someone who works for Resmed and hates it. It sounds to me like they they have grown too quickly, employed incompetant management and are now wasting too much energy on internal politics. Anyway I eventually took the advice of the woman at the Sleep Clinic who said that she had got good feedback on the  Fisher and Paykel machine. My Father is happy with his machine and says that it is easy to operate which is good as he has mild dementa. PS – I don’t have any shares or other interests in the companies mentioned above. What "Baza" <B…@hotmail.com

wrote in message

news:3e1d4df2$1_1@news.iprimus.com.au… – Hide quoted text — Show quoted text -> "news.verizon.net" <leslie.re…@verizon.net

wrote in message

> news:0pkP9.8681$Jb.6849@nwrddc02.gnilink.net… > > I also use the 221 and it varies by the room temprature as to how much > water > > I use.  However there is a "rainout" feature bulit in to the machine which

also mantains water temprature depending on the room conditions. Check your owners manual. Happy Holidays to All, Mark Hi Mark Does the "rainout feature" work well? Thanks

Response:

In article <3E0F7C73.89D61…@gte.net

, bob <rjmye…@gte.net wrote: Really interesting thing about using this unit for me is the fact that I’m starting to really have some "interesting" dreams again, along with getting some childhood memories going (nothing like having a fixation to find out more about Marvel’s METAL MEN or Green Lantern as to how they’ve evolved/ended).

I’ve been having interesting dreams again. I think the housing complex consisting solely of lanais (being sold as houses) was one of the more peculiar, but inherently believable within the dream. — _Deirdre                                             http://deirdre.net "Ideally pacing should look like the stock market for the year 1999, up and up and up, but with lots of little dips downwards…."                                      – Wen Spencer on plotting a novel

Response:

bob wrote:

Hi Margaret (and others); Well, it’s been almost 1 week now with the HC221. Outside of my little experiment with bumping up the temperature setting a tad and then having to put it back, I’ve had no problems with the unit at all.  I’ve been waking up with my sinuses being clear and not having any issues with breathing. Only interesting quirk about the unit is having to get replacement chambers for it (the DME feels they need to be replaced every 3 months, or sooner if they somehow get damaged).

I think you’ll find that is a quirk with the DME, not the HC221.  I use the HC220 and TTBOMK they use the same chamber.  I have rotated (to assure complete drying – a personal matter) through 3 chanbers over 24 months (average 7 months) and I see no indication that they will ever need to be replaced. However, do not use tap water in them.  I could see this being the reason for 3 month replacement. HTH

Really interesting thing about using this unit for me is the fact that I’m starting to really have some "interesting" dreams again, along with getting some childhood memories going (nothing like having a fixation to find out more about Marvel’s METAL MEN or Green Lantern as to how they’ve evolved/ended).

Many of us have experienced the same thing…. in the beginning. – Hide quoted text — Show quoted text -

take care… -bob Margaret Cunningham wrote: Hi Bob, I too use the HC220 and absolutely love it… wouldnt get in bed without it… (well almost … *g* ) "NormC" <no…@socal.nospam.com wrote in message news:3E0A6D2F.EED27D22@socal.nospam.com… bob myers wrote: Hi; Well, I’m close to being in year 4 of using a cpap now. I’ve heard from others (as well as read here at times) about the benefits of using heated humidifiers.  Since I thought my Sullivan V unit was starting to show signs of age, I talked to my sleep specialist and now have a new Fisher & Paykil HC221 unit.  Tonight will be my 3rd night using it —  I have it on a setting of about 2-1/2 for heating the distilled water. So far, I’ve been able to get to sleep a bit faster as well as wake up feeling more refreshed.  I’m surprised at the low amount of water that is consumed — a far cry from the amount of water that I had to put into the passive humidifier that I got with my Sullivan V CPAP machine. (I stopped using the passive humidifier after going through so much water and not being sure if I was seeing any real benefit). So, can anyone else who has this unit comment on it?  I’d appreciate any insights/comments/etc. from others who have more experience with it. -bob I use the HC220 which, IIRC, is identical to the HC221, but the 220 doesn’t have a compliance meter. The amount of water it uses depends on what the local humidify is, where I have it set and how long I sleep.  One time I turned it up because the air seemed very cold for my bronchial-asthma.  It ran out of water. I normally  keep it where you have yours. HTH — Sleep well/eat well/be well Norm To email replace nospam with rr

— Sleep well/eat well/be well Norm To email replace nospam with rr

Response:

You’re using less water and you are more comfortable? Is the heat of the mist helping you so much that you maybe need less water? as compared to the cooler humidity of the passover? I’m not sure I got you right. This could be interesting for the rest of us. Thanks— Ron "bob myers" <rjmye…@gte.net

wrote in message

news:3E0A435B.C0EB33C3@gte.net… – Hide quoted text — Show quoted text -

Hi; Well, I’m close to being in year 4 of using a cpap now. I’ve heard from others (as well as read here at times) about the benefits of using heated humidifiers.  Since I thought my Sullivan V unit was starting to show signs of age, I talked to my sleep specialist and now have a new Fisher & Paykil HC221 unit.  Tonight will be my 3rd night using it —  I have it on a setting of about 2-1/2 for heating the distilled water. So far, I’ve been able to get to sleep a bit faster as well as wake up feeling more refreshed.  I’m surprised at the low amount of water that is consumed — a far cry from the amount of water that I had to put into the passive humidifier that I got with my Sullivan V CPAP machine. (I stopped using the passive humidifier after going through so much water and not being sure if I was seeing any real benefit). So, can anyone else who has this unit comment on it?  I’d appreciate any insights/comments/etc. from others who have more experience with it. -bob

Response:

- Hide quoted text — Show quoted text -bob myers wrote:

Hi; Well, I’m close to being in year 4 of using a cpap now. I’ve heard from others (as well as read here at times) about the benefits of using heated humidifiers.  Since I thought my Sullivan V unit was starting to show signs of age, I talked to my sleep specialist and now have a new Fisher & Paykil HC221 unit.  Tonight will be my 3rd night using it —  I have it on a setting of about 2-1/2 for heating the distilled water. So far, I’ve been able to get to sleep a bit faster as well as wake up feeling more refreshed.  I’m surprised at the low amount of water that is consumed — a far cry from the amount of water that I had to put into the passive humidifier that I got with my Sullivan V CPAP machine. (I stopped using the passive humidifier after going through so much water and not being sure if I was seeing any real benefit). So, can anyone else who has this unit comment on it?  I’d appreciate any insights/comments/etc. from others who have more experience with it. -bob

I use the HC220 which, IIRC, is identical to the HC221, but the 220 doesn’t have a compliance meter. The amount of water it uses depends on what the local humidify is, where I have it set and how long I sleep.  One time I turned it up because the air seemed very cold for my bronchial-asthma.  It ran out of water. I normally  keep it where you have yours. HTH — Sleep well/eat well/be well Norm To email replace nospam with rr

Response:

Ron; I guess that it may have been either the time of year when I tried first using the passive humidifier or just the fact that it seemed like I was putting a lot of water in the plastic container each night when I tried using it.  It also could be due to the weather conditions of the part of the country that I’m living in (I live near Dallas). Actually, last night I woke up and found that the my adjusted setting of 2-1/2 was a tad too high — found moisture on my face.  I put the setting back to 2 and was able to get back to sleep after a short while.  When I woke up at my normal time, I found no moisture on my face. The only thing that I still have to resolve is the headgear that’s on my replacement Profile Lite mask (it seems to ‘ride up’). -bob – Hide quoted text — Show quoted text -Ron Gould wrote:

You’re using less water and you are more comfortable? Is the heat of the Even more mist helping you so much that you maybe need less water? as compared to the cooler humidity of the passover? I’m not sure I got you right. This could be interesting for the rest of us. Thanks— Ron "bob myers" <rjmye…@gte.net wrote in message news:3E0A435B.C0EB33C3@gte.net… Hi; Well, I’m close to being in year 4 of using a cpap now. I’ve heard from others (as well as read here at times) about the benefits of using heated humidifiers.  Since I thought my Sullivan V unit was starting to show signs of age, I talked to my sleep specialist and now have a new Fisher & Paykil HC221 unit.  Tonight will be my 3rd night using it —  I have it on a setting of about 2-1/2 for heating the distilled water. So far, I’ve been able to get to sleep a bit faster as well as wake up feeling more refreshed.  I’m surprised at the low amount of water that is consumed — a far cry from the amount of water that I had to put into the passive humidifier that I got with my Sullivan V CPAP machine. (I stopped using the passive humidifier after going through so much water and not being sure if I was seeing any real benefit). So, can anyone else who has this unit comment on it?  I’d appreciate any insights/comments/etc. from others who have more experience with it. -bob

Response:

Hi Margaret (and others); Well, it’s been almost 1 week now with the HC221. Outside of my little experiment with bumping up the temperature setting a tad and then having to put it back, I’ve had no problems with the unit at all.  I’ve been waking up with my sinuses being clear and not having any issues with breathing. Only interesting quirk about the unit is having to get replacement chambers for it (the DME feels they need to be replaced every 3 months, or sooner if they somehow get damaged). Really interesting thing about using this unit for me is the fact that I’m starting to really have some "interesting" dreams again, along with getting some childhood memories going (nothing like having a fixation to find out more about Marvel’s METAL MEN or Green Lantern as to how they’ve evolved/ended). take care… -bob – Hide quoted text — Show quoted text -Margaret Cunningham wrote:

Hi Bob, I too use the HC220 and absolutely love it… wouldnt get in bed without it… (well almost … *g* ) "NormC" <no…@socal.nospam.com wrote in message news:3E0A6D2F.EED27D22@socal.nospam.com… bob myers wrote: Hi; Well, I’m close to being in year 4 of using a cpap now. I’ve heard from others (as well as read here at times) about the benefits of using heated humidifiers.  Since I thought my Sullivan V unit was starting to show signs of age, I talked to my sleep specialist and now have a new Fisher & Paykil HC221 unit.  Tonight will be my 3rd night using it —  I have it on a setting of about 2-1/2 for heating the distilled water. So far, I’ve been able to get to sleep a bit faster as well as wake up feeling more refreshed.  I’m surprised at the low amount of water that is consumed — a far cry from the amount of water that I had to put into the passive humidifier that I got with my Sullivan V CPAP machine. (I stopped using the passive humidifier after going through so much water and not being sure if I was seeing any real benefit). So, can anyone else who has this unit comment on it?  I’d appreciate any insights/comments/etc. from others who have more experience with it. -bob I use the HC220 which, IIRC, is identical to the HC221, but the 220 doesn’t have a compliance meter. The amount of water it uses depends on what the local humidify is, where I have it set and how long I sleep.  One time I turned it up because the air seemed very cold for my bronchial-asthma.  It ran out of water. I normally  keep it where you have yours. HTH — Sleep well/eat well/be well Norm To email replace nospam with rr

Response:

"bob" <rjmye…@gte.net

wrote in message news:3E0B0248.8AC1B2C9@gte.net… The only thing that I still have to resolve is the headgear that’s on my replacement Profile Lite mask (it seems to ‘ride up’). -bob

A tech had me re-adjust all the straps so the back "patch" on the back of my head, was not on the "top back" of my head, but at the "bottom curvature" of the back of my head, (above my shoulders). It solved the "riding up" because the "pull" on the mask was slightly downward now. Hope this makes sense— Best— Ron

Response:

I also use the 221 and it varies by the room temprature as to how much water I use.  However there is a "rainout" feature bulit in to the machine which also mantains water temprature depending on the room conditions. Check your owners manual. Happy Holidays to All, Mark

Response:

Hi Bob, I too use the HC220 and absolutely love it… wouldnt get in bed without it… (well almost … *g* ) "NormC" <no…@socal.nospam.com

wrote in message

news:3E0A6D2F.EED27D22@socal.nospam.com… – Hide quoted text — Show quoted text -

bob myers wrote: Hi; Well, I’m close to being in year 4 of using a cpap now. I’ve heard from others (as well as read here at times) about the benefits of using heated humidifiers.  Since I thought my Sullivan V unit was starting to show signs of age, I talked to my sleep specialist and now have a new Fisher & Paykil HC221 unit.  Tonight will be my 3rd night using it —  I have it on a setting of about 2-1/2 for heating the distilled water. So far, I’ve been able to get to sleep a bit faster as well as wake up feeling more refreshed.  I’m surprised at the low amount of water that is consumed — a far cry from the amount of water that I had to put into the passive humidifier that I got with my Sullivan V CPAP machine. (I stopped using the passive humidifier after going through so much water and not being sure if I was seeing any real benefit). So, can anyone else who has this unit comment on it?  I’d appreciate any insights/comments/etc. from others who have more experience with it. -bob I use the HC220 which, IIRC, is identical to the HC221, but the 220

doesn’t have

a compliance meter. The amount of water it uses depends on what the local humidify is, where I

have

it set and how long I sleep.  One time I turned it up because the air

seemed

very cold for my bronchial-asthma.  It ran out of water. I normally  keep it where you have yours. HTH — Sleep well/eat well/be well Norm To email replace nospam with rr

Response:

Hi; Well, I’m close to being in year 4 of using a cpap now.   I’ve heard from others (as well as read here at times) about the benefits of using heated humidifiers.  Since I thought my Sullivan V unit was starting to show signs of age, I talked to my sleep specialist and now have a new Fisher & Paykil HC221 unit.  Tonight will be my 3rd night using it —  I have it on a setting of about 2-1/2 for heating the distilled water. So far, I’ve been able to get to sleep a bit faster as well as wake up feeling more refreshed.  I’m surprised at the low amount of water that is consumed — a far cry from the amount of water that I had to put into the passive humidifier that I got with my Sullivan V CPAP machine. (I stopped using the passive humidifier after going through so much water and not being sure if I was seeing any real benefit). So, can anyone else who has this unit comment on it?  I’d appreciate any insights/comments/etc. from others who have more experience with it. -bob

Response: