Posts belonging to Category 'Bowel Inflammation'

Thought this maybe of interest

Question:

I hope things improve for you Sue! :)  mgbio – Hide quoted text — Show quoted text – I’d love to, no one enjoys Disney World more than I do, and I’d love to meet you guys, but even though I don’t talk about it much, my health really, really, REALLY sucks pretty much all the time. Sue, I agree with Rebecca!  If not for you, we’d all be sitting with a heating pad, twiddling our fingers!! Love & Peace, Linda Hey Sue, Any chance YOU can make it to Orlando in October? Doesn’t seem fitting that we have the first (annual?) NG meeting without our fearless leader! Rebecca :-) Saturday Night Live used to run a segment of their "newscast" on stories appearing in a fictional medical magazine called "DUH" that would feature true medical news stories of the week that were really obvious.  Always cracked me up. (Saeja65) writes: Mike, No matter how pissy your mood I always find the humor in them.  They usually crack me up. Sometimes I just listen to what the doctors and scientists say and all that comes to mind is"DUH!!!!" Staci

Response:

Rebecca trying Kangalooshes everyone !!!! Love & Peace Maryjo

Response:

I’d love to, no one enjoys Disney World more than I do, and I’d love to meet you guys, but even though I don’t talk about it much, my health really, really, REALLY sucks pretty much all the time. – Hide quoted text — Show quoted text -Sue, I agree with Rebecca!  If not for you, we’d all be sitting with a heating pad, twiddling our fingers!! Love & Peace, Linda Hey Sue, Any chance YOU can make it to Orlando in October? Doesn’t seem fitting that we have the first (annual?) NG meeting without our fearless leader! Rebecca :-) Saturday Night Live used to run a segment of their "newscast" on stories appearing in a fictional medical magazine called "DUH" that would feature true medical news stories of the week that were really obvious.  Always cracked me up. (Saeja65) writes: Mike, No matter how pissy your mood I always find the humor in them.  They usually crack me up. Sometimes I just listen to what the doctors and scientists say and all that comes to mind is"DUH!!!!" Staci

Response:

What did they eat, tuna fish? Eileen^4 – Hide quoted text — Show quoted text – NEW YORK – A special diet that excludes certain "ultrafine” particles found in some foods may fight the intestinal disorder Crohn’s disease, according to results from a small study in the UK. In a study of 20 Crohn’s disease patients, researchers found that the half who were put on a "low-microparticle” diet experienced a significant improvement in their symptoms over 4 months. The diet, which prohibits many processed foods, may help by reducing inflammation in the small intestine, according to a report in the February issue of the European Journal of Gastroenterology and Hepatology. Crohn’s is an inflammatory bowel disease marked by abdominal pain and diarrhea. Inflammation in the small intestine can also lead to complications such as poor absorption of nutrients. While researchers believe genetic factors are involved in the development of Crohn’s, the exact cause remains unknown. Treatment may include drugs such corticosteroids, which ease the bowel inflammation, or surgery to remove the part of the intestine affected by the disease. No single diet has proven effective against Crohn’s. In the current study, Dr. Jonathan J. Powell and his colleagues at St. Thomas’ Hospital in London tested the theory that "undegradable” microparticles that get into foods either naturally or through additives might worsen the inflammation seen in Crohn’s. In earlier research, the investigators found such particles–mainly titanium dioxide and aluminosilicates–in intestinal cells. Titanium dioxide is a "whitening” agent used in candy and other confections, some cheeses and sauces, toothpaste and many medications. Aluminosilicates prevent caking and are therefore often used in granular and powdered food products, according to the report. So Powell’s team developed a diet that excluded these types of products: gone were ready-made meals, processed meats, fish and cheese, and instant noodle products. Study patients who followed the diet also peeled and washed fresh fruits and vegetables to cut down on soil residue. And they avoided over-the-counter drugs, which often contain titanium dioxide. Both study groups avoided high-fiber fruits and vegetables, whole-grain flours and cereals with fruit or nuts. Low-fiber diets have been shown to help some Crohn’s patients. After 4 months, Powell’s team found that seven of the nine patients on the diet were in remission, compared with none of those in the other group. A Crohn’s expert not involved in the study called the results ”interesting and important.” Dr. Bret Lashner of the Cleveland Clinic Foundation in Ohio told Reuters Health that the microparticle theory is a "novel and unique hypothesis” on how diet can worsen Crohn’s symptoms. Moreover, he said, "this is not a fad diet. It has reasonable restrictions.” Still, Lashner said, "I don’t think people with Crohn’s should run out and try this.” The disease is complex, Lashner explained, and dietary recommendations need to be individualized. SOURCE: European Journal of Gastroenterology and Hepatology 2001;13:101- — remove campanology Things that don’t alter remain as they are.

Response:

Hhhmm Maryjo.  If this possibly is not "the mysterious Leah", I wonder Love & Peace, Linda

– Hide quoted text — Show quoted text – Linda Staci and I live in the same town and yet to meet face to face with the mysterious Leah , though I did talk with someone named Leah when our Troll Killer was missing and Mike did bring the mysterious Leah to my work place on my day off and made my boss tell me there was truly a Leah and he did show me a fake ID liscense with Leahs name on it !!! … So I would be so surprised if Mike ever lets Leah really meet us …. He must be so very afraid of us !!! Re: Thought this maybe of interest I hope to meet Mike in October!! Hear that Mike? You need to be there – with Leah I hope. Love & Peace, Linda If you think Mike is funny with his posts on the ng …… You should meet him in person !!!! Love & Peace Maryjo Love & Peace Maryjo

Response:

Maybe he is afraid Leah will not let him on the computer anymore after she see’s all the hot gals of the NG.. — Re: Thought this maybe of interest   Linda Staci and I live in the same town and yet to meet face to face with the mysterious Leah , though I did talk with someone named Leah when our Troll Killer was missing and Mike did bring the mysterious Leah to my work place on my day off and made my boss tell me there was truly a Leah and he did show me a fake ID liscense with Leahs name on it !!! … So I would be so surprised if Mike ever lets Leah really meet us …. He must be so very afraid of us !!!

Response:

Hahaha Rebecca, I can drink anything except water. denis — Re: Thought this maybe of interest   If you come, I’ll buy you a drink —- heck, I’ll buy everyone a drink! Of course, since none of us can drink alcohol, or soda, or caffeine, guess I’ll buy you all a glass of water! <G I’m bringing a cooler full of Wisconsin cheese if that makes any difference. Rebecca :-)

Response:

Sue, BUT This wasn’t the First annual Florida IBD Get together … The first one was in December when Lynn and Tracy and I met (with our hubby’s) The one in October will be the 2nd !!! But bigger !!! Re: Thought this maybe of interest   Hey Sue, Any chance YOU can make it to Orlando in October? Doesn’t seem fitting that we have the first (annual?) NG meeting without our fearless leader! Rebecca :-)

Saturday Night Live used to run a segment of their "newscast" on stories appearing in a fictional medical magazine called "DUH" that would feature true medical news stories of the week that were really obvious. Always cracked me up. (Saeja65) writes:

Mike, No matter how pissy your mood I always find the humor in them. They usually crack me up. Sometimes I just listen to what the doctors and scientists say and all that comes to mind is"DUH!!!!" Staci Love & Peace Maryjo

Response:

Or I may be protecting you…. Mike – Hide quoted text — Show quoted text -Linda Staci and I live in the same town and yet to meet face to face with the mysterious Leah , though I did talk with someone named Leah when our Troll Killer was missing and Mike did bring the mysterious Leah to my work place on my day off and made my boss tell me there was truly a Leah and he did show me a fake ID liscense with Leahs name on it !!! … So I would be so surprised if Mike ever lets Leah really meet us …. He must be so very afraid of us !!! Re: Thought this maybe of interest   I hope to meet Mike in October!! Hear that Mike? You need to be there – with Leah I hope. Love & Peace, Linda If you think Mike is funny with his posts on the ng …… You should meet him in person !!!! Love & Peace Maryjo Love & Peace Maryjo

All opinions expressed are mine unless otherwise noted. Copyright

Crohn's & Chiropractic

Question:

I have cleaned and loaded my gun for my visit to my GI on Thursday.  He also likes to poke around my belly (and other unmentionables) and ask "does that hurt?"  "No, feels great doc!  More!  More pain!"  (BANG! You’re dead!)  (Just kidding.  He’s really very gentle.) Love & Peace, Connie

Response:

I would however be open to changing my opinion if you can provide some kind of empirical evidence to that effect. I would add that it’s just these sorts of views that chiropractors attempt to promote as if they have the sorts of answers that the conventional medical establishment doesn’t.

***** Somewhat they do have some answers that ‘conventional’ establishments should pay attention to.  MD’s give you a pill that ’supposed’ to cure all.  How conventional is it that a good percentage of the people here believe they got UC/Colitis from antibiotics prescribed by an MD? Also, ever crack your knuckles and then your hands feel better?  What about hiccups?  Arent they caused by pressure on a nerve inside your body that changes an internal response.  There are hundreds and thousands of known internal responses to pressure changes, muscle spasms, mis-alignments etc… known both to Chiro’s, MD’s and the medical community in general. Practical chiropractic’s main benefit is to work to alleviate musculo skeletal problems that affect the body as a whole. Of course there are 2 schools of Chiropractic.  While not all are ‘mainstream’, most are.  Just like MD’s are not "Gods"…  Steer clear of the ‘cure alls’ as you would a MD that prescribes drugs at the drop of a hat. Pinch a nerve and Chiropractic works to straighten out the cause.  MD’s give you a drug and hope it will go away.  Thats the main difference… I hope thats empirical enough… Andy

Response:

I would however be open to changing my opinion if you can provide some kind of empirical evidence to that effect. I would add that it’s just these sorts of views that chiropractors attempt to promote as if they have the sorts of answers that the conventional medical establishment doesn’t. ***** Somewhat they do have some answers that ‘conventional’ establishments should pay attention to.  MD’s give you a pill that ’supposed’ to cure all.  How conventional is it that a good percentage of the people here believe they got UC/Colitis from antibiotics prescribed by an MD?

Is this something these people " believe" or can we really know for certain whether those antibiotics were the cause. I submit the latter is the case here(after all, I said I wanted empirical evidence before and it isn’t evident in your statement). Also, ever crack your knuckles and then your hands feel better?  What about hiccups?  Arent they caused by pressure on a nerve inside your body that changes an internal response.  There are hundreds and thousands of known internal responses to pressure changes, muscle spasms, mis-alignments etc… known both to Chiro’s, MD’s and the medical community in general. Perhaps, but where’s the concrete evidence of these internal changes

leading to those so-called "mis-alignments"?  OTOH, I don’t have any problem with the muscle spasms because I myself have experienced that during flareups. – Hide quoted text — Show quoted text – Practical chiropractic’s main benefit is to work to alleviate musculo skeletal problems that affect the body as a whole. Of course there are 2 schools of Chiropractic.  While not all are ‘mainstream’, most are.  Just like MD’s are not "Gods"…  Steer clear of the ‘cure alls’ as you would a MD that prescribes drugs at the drop of a hat. Pinch a nerve and Chiropractic works to straighten out the cause.  MD’s give you a drug and hope it will go away.  Thats the main difference… I hope thats empirical enough… No, unfortunately it’s not(as I indicated above). Andy

Response:

Hi just my view from own experience I have been diagnosed with a form of Rhemtoiud arthritis in my hips and in the cartilage that is under my left rib cacge. My gut when it inflames feels like it is pushing my rib cage out of place and I believe a Chiropractor about this for over year till my GP got a x-ray done and my spine and ribs are strucually fine. Rheumatoid arthritis is not uncommon amongst IBD sufferers, they feel some problem that causes bowel to inflame also causes the tissue in the joints like the hip / shoulder to inflame for no reason. Good luck Phil – Hide quoted text — Show quoted text – The thing that can happen is that during a flare your gut’s strain on your back (your internal organs are attached to the ribs and vertebrae) provoke a misalignment. How this could possibly come about is way beyond me.  I think you’re giving the internal organs an influence they just couldn’t have in triggering these "misalignments".  I would however be open to changing my opinion if you can provide some kind of empirical evidence to that effect. I would add that it’s just these sorts of views that chiropractors attempt to promote as if they have the sorts of answers that the conventional medical establishment doesn’t. Mark Mandell  So there a chiropractor can be helpfull. I’ve seen four different chiropractors over the last ten years.  I recognized five years ago that when I was in a flare I also had mid-to-low back pain (actually it is in the exact same location on my spine every time).  I found that if I got an adjustment at that time, the flare significantly subsided.  I seek out holistic-type chiropractors.  The last two that I frequented were highly religious women who weren’t out to scam anyone.  Their fees are reasonable and their goal is to help others.  I don’t believe that the back misalignment is what causes the Crohn’s, but I do believe there is some type of connection. -putting in my two-cents worth for all of the honorable chiropractors out there Diana  CD ‘81

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Response:

I’ve seen four different chiropractors over the last ten years.  I recognized five years ago that when I was in a flare I also had mid-to-low back pain (actually it is in the exact same location on my spine every time).  I found that if I got an adjustment at that time, the flare significantly subsided.  I seek out holistic-type chiropractors.  The last two that I frequented were highly religious women who weren’t out to scam anyone.  Their fees are reasonable and their goal is to help others.  I don’t believe that the back misalignment is what causes the Crohn’s, but I do believe there is some type of connection. -putting in my two-cents worth for all of the honorable chiropractors out there Diana  CD ‘81

Response:

– Hide quoted text — Show quoted text – I’ve seen four different chiropractors over the last ten years.  I recognized five years ago that when I was in a flare I also had mid-to-low back pain (actually it is in the exact same location on my spine every time).  I found that if I got an adjustment at that time, the flare significantly subsided.  I seek out holistic-type chiropractors.  The last two that I frequented were highly religious women who weren’t out to scam anyone.  Their fees are reasonable and their goal is to help others.  I don’t believe that the back misalignment is what causes the Crohn’s, but I do believe there is some type of connection. -putting in my two-cents worth for all of the honorable chiropractors out there Diana  CD ‘81

The mid to low back pain is a "referred" pain the bowel inflammation or it may actually be an accompanying arthritis.  If the chiropractor has successfully treated this, my hat’s off to him.  But this is like prednisone(or all the other sorts of treatments we depend on)in that the symptoms are addressed but not the cause.  However, at the present time, that’s about the best we can hope for. Mark Mandell

Response:

The thing that can happen is that during a flare your gut’s strain on your back (your internal organs are attached to the ribs and vertebrae) provoke a misalignment. So there a chiropractor can be helpfull. – Hide quoted text — Show quoted text – I’ve seen four different chiropractors over the last ten years.  I recognized five years ago that when I was in a flare I also had mid-to-low back pain (actually it is in the exact same location on my spine every time).  I found that if I got an adjustment at that time, the flare significantly subsided.  I seek out holistic-type chiropractors.  The last two that I frequented were highly religious women who weren’t out to scam anyone.  Their fees are reasonable and their goal is to help others.  I don’t believe that the back misalignment is what causes the Crohn’s, but I do believe there is some type of connection. -putting in my two-cents worth for all of the honorable chiropractors out there Diana  CD ‘81

Response:

The thing that can happen is that during a flare your gut’s strain on your back (your internal organs are attached to the ribs and vertebrae) provoke a misalignment.

How this could possibly come about is way beyond me.  I think you’re giving the internal organs an influence they just couldn’t have in triggering these "misalignments".  I would however be open to changing my opinion if you can provide some kind of empirical evidence to that effect. I would add that it’s just these sorts of views that chiropractors attempt to promote as if they have the sorts of answers that the conventional medical establishment doesn’t. Mark Mandell  So there a chiropractor can be helpfull. – Hide quoted text — Show quoted text – I’ve seen four different chiropractors over the last ten years.  I recognized five years ago that when I was in a flare I also had mid-to-low back pain (actually it is in the exact same location on my spine every time).  I found that if I got an adjustment at that time, the flare significantly subsided.  I seek out holistic-type chiropractors.  The last two that I frequented were highly religious women who weren’t out to scam anyone.  Their fees are reasonable and their goal is to help others.  I don’t believe that the back misalignment is what causes the Crohn’s, but I do believe there is some type of connection. -putting in my two-cents worth for all of the honorable chiropractors out there Diana  CD ‘81

Response:

Anybody have any luck with Chiropractors giving you relief, or…ANYTHING?  I went to a free screening once and they said something like if I came in everyday forever AND bought their vitamins I’d be swell. Dave — Dave’s Crohn’s Disease Page CD Class of ‘94 http://crohnie.healingwell.com

About sixteen years ago, I visited a local chiropractor.  The treatment was based on acupressure and taking aloe veroe.  Well, I can say in all honesty that for about one week I felt fabulous, then after that it was back to square one.  This demonstrated to me that the so-called "placebo" effect was in effect here. Then there was another chiropractor I consulted who tried to convince me that misalignments in my back were responsible for my having CD but since I must have reacted with no small measure of skepticism he kind of backed down and said then that there MIGHT be some sort of connection.  Interestingly, though he was respected in the community, he was arrested sometime later for dealing with the drug, qualuude. Mark Mandell

Response:

I have had success in having my back pain treated by chiropracters. I haven’t sought their help in treating  my U.C.  I doubt they could help.   Chiropractors are most helpful in treating bone breaks, muscles strains and spasm, etc.  They are helpful in those areas, as evidenced  by all the professional athletes who have been successfully treated. Yes, chiropracters claim that they can cure just about anything.  Personally I don’t believe that spiel.  

Response:

Steve, you have got to be kidding!   He’d of tried that on me just once, and I’d be body slamming him before I walked out!!  I just can’t imagine pushing on someone’s belly with an intestinal disease.  He should be shot!! Linda – who can’t imagine how much pain Steve must have been in after that visit!!!  Arggg ~~~~~

– Hide quoted text — Show quoted text – I just caught this thread. My wife met a chiropractor at the school where my daughter goes, he is the father of one of the students. I guess she had told him about my problem with IBD and he asked me to come in so he could see about helping me. Big mistake. This big idiot nerve to press down across my guts and pushed down across my whole stomach. It killed me! You cannot do that to people with intestinal TO PEOPLE AND ESPECIALLY TO THOSE WITH INTESTINAL DISEASE. i GUESS THESE QUACks ACTUALLY THINK THEY CAN JUST PUSH IT OUT OF YOU! Unbelievable that anyone that works in a medical field can think and get away with doing that to another human being, thinking they can push the disease out of someone, then had you some tablets in a bottle to take everyday. I would have to say while they may be some chiroquacks that help others, there are some that should be sued and shot! stevenscott That makes me feel even better about having a DO (as I live in NJ.) I didn’t mean they were halfway doctors, I meant they were halfway between the ‘This drug will cure you" docs and the ‘You can’t possibly have any drugs’ docs. Sorry if I offended, Dave Actually in the US, DO’s are the same as MD’s but have additional training. Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address: An osteopath is a D.O. and a D.O. is a doctor who acts like a chiropractor, but who also prescribes medicines.  Sort of a halfway type thing. I think ‘git’ should have been ‘gut’ ;-) Dave Ok I am dumb, what is an osteopath and what is a git? Mike my email address to reply]" I had an osteopath manipulate my git.  It hurt, but the next day I was in remission.  I am assuming it was a coincidence. Thanks, Mike — To reply via email remove the (SPAM_BLOCKER) from my email address: Anybody have any luck with Chiropractors giving you relief, or…ANYTHING?  I went to a free screening once and they said something like if I came in everyday forever AND bought their vitamins I’d be swell. Dave — Dave’s Crohn’s Disease Page CD Class of ‘94 http://crohnie.healingwell.com All opinions expressed are mine unless otherwise noted. Copyright

REMICADE – Bad reaction – Maybe?

Question:

Hi! Nope, have not heard of this one.  Why did they use your hip port?  Mine was given to me via IV in the arm! Odie — Unconditional Love = A Loving Pet & This Family Is Blessed With 2 Wonderful Dobie-Kids

– Hide quoted text — Show quoted text – I had Remicade over a year ago, no problem. I’ve been having flare ups so we decided to go back for more Remicade. 2 weeks ago, no problem. I went for a 2 week follow up dose last Thursday and BOOM! about 15 minutes after the Remicade started (Through my hip port), I started with massive lower back spasms. They stopped the Remicade immediately and 45 minutes later the pain began to subside and then severe chills and shakes began (rigors), They wheeled me right over to the E-R and admitted me. THEY WILL NOT CONCEDE THAT THE REACTION WAS DUE TO THE REMICADE! The port was working just fine the night before with TPN. Cultures showed no infection. CT showed high bowel inflammation. They gave me IV antibiotics and steroids. Now I’m on oral Prednisone 60mg. ANYONE ELSE HAVE A REACTION LIKE THIS??? ANYONE EVER USE COMPAZINE FOR NAUSEA??? Just got home today. THANKS.

Response:

Thought it was common knowledge that if you don’t have remicade treatments on a regular basis you "can" develope an allergic reaction. That happened to me my second remicade treatment.  I didn’t have it within the alotted time and i had developed a minor reaction to it.  They didn’t let it get very far though …. it started with my feet itching …. majorly itching …. the nurse questioned me about it …… stopped the remicade ….. called my GI …. GI order IV bendadryl … itching stopped shortly after and I went on with the treatment. Hugs Pooh, who thinks that someone, somewhere was not doing their job properly – Hide quoted text — Show quoted text – ===== I had Remicade over a year ago, no problem. I’ve been having flare ups so we decided to go back for more Remicade. 2 weeks ago, no problem. I went for a 2 week follow up dose last Thursday and BOOM! about 15 minutes after the Remicade started (Through my hip port), I started with massive lower back spasms. They stopped the Remicade immediately and 45 minutes later the pain began to subside and then severe chills and shakes began (rigors), They wheeled me right over to the E-R and admitted me. THEY WILL NOT CONCEDE THAT THE REACTION WAS DUE TO THE REMICADE! The port was working just fine the night before with TPN. Cultures showed no infection. CT showed high bowel inflammation. They gave me IV antibiotics and steroids. Now I’m on oral Prednisone 60mg. ANYONE ELSE HAVE A REACTION LIKE THIS??? ANYONE EVER USE COMPAZINE FOR NAUSEA??? Just got home today. THANKS.

Response:

I had Remicade over a year ago, no problem. I’ve been having flare ups so we decided to go back for more Remicade. 2 weeks ago, no problem. I went for a 2 week follow up dose last Thursday and BOOM! about 15 minutes after the Remicade started (Through my hip port), I started with massive lower back spasms. They stopped the Remicade immediately and 45 minutes later the pain began to subside and then severe chills and shakes began (rigors), They wheeled me right over to the E-R and admitted me. THEY WILL NOT CONCEDE THAT THE REACTION WAS DUE TO THE REMICADE! The port was working just fine the night before with TPN. Cultures showed no infection. CT showed high bowel inflammation. They gave me IV antibiotics and steroids. Now I’m on oral Prednisone 60mg. ANYONE ELSE HAVE A REACTION LIKE THIS??? ANYONE EVER USE COMPAZINE FOR NAUSEA??? Just got home today. THANKS.

Response:

unexplained hip / lower abdomne pain possible answer!

Question:

Hi all, I do not know if anyone else has had this problem. First I sniffer from CD and have done so for 12 years. Had three small bowel resections done in 1995. As well as multiple abcess’s drained. Cd came back in late 1996. Before the third lot of surgery (while I still had my stoma) I developed another abceess in lower right quadrant of abdomen. This was drained under ct scan guidance. However wound from previous surgery had not totally healed. During 6 weeks in hospital while surgeon (anyone want a top surgeon who really listens in Melbourne Australia let me know) and radiologist tried to find what was feeding the leaking wound, I had a lot of pain near my right hip. We all thought it was just the inflammation from the bowel pressing on a nerve. Well 6 weeks ago, I started getting pain where the leg joins the stomach (the crease area) no sign of abcess or any real problem with CD. Was getting burning pain down inside right leg and around to the base of my back. Had Physio for 3 weeks. leg pain inproved, but he though something was wrong with my hip. Well a poor x-ray shows a possible fracture in actabular of right hip. This is the socket part of the hip where it joins the leg bone. Gradually this problem has got worse over the last 3 weeks. Left hip has same pain, no quite so bad. Physician (sports medicine / neurologist) feel there is something up with my hip which is for some unknown reason inflaming my salios muscle. They call it "Os Actabular" cannot find any reference to it on the net. He’s research on this fairly new problem has seen it on some patients and these people have CD as well. Well since the main problem with CD is bowel inflammation which doctors cannot control nor really no why it does this yet. We all wonder if the is a connection one way or the other. I was wondering if others with CD get any hip / lower back pain and if so, what has your doctors ever said about it? Thanks Phil emails are okay.

Response:

i’m sorry to hear about all the trouble you have been having.  i’ve never experienced this myself, but have you been on prednisone?  prednisone can cause bone loss and increase the risk of fracture.  i don’t know how they can treat it aside from immobilizing you and letting it heal on its own.  as for the lower back pain, i get pain that radiated from my "crohns spot" (lower right abdomen) to my lower back… doctor thinks its either the inflammed bowels pushing on something or adhesions from a previous resection..  i wish i could be more help to you, but maybe someone else on the group knows something.  good luck and feel better… hugs,leighann

: Hi all, : I do not know if anyone else has had this problem. : First I sniffer from CD and have done so for 12 years. : Had three small bowel resections done in 1995. : As well as multiple abcess’s drained. : Cd came back in late 1996. : Before the third lot of surgery (while I still had my stoma) I developed : another abceess in lower right quadrant of abdomen. This was drained : under ct scan guidance. : However wound from previous surgery had not totally healed. : During 6 weeks in hospital while surgeon (anyone want a top surgeon who : really listens in Melbourne Australia let me know) and radiologist tried : to find what was feeding the leaking wound, I had a lot of pain near my : right hip. : We all thought it was just the inflammation from the bowel pressing on a : nerve. : Well 6 weeks ago, I started getting pain where the leg joins the stomach : (the crease area) no sign of abcess or any real problem with CD. Was : getting burning pain down inside right leg and around to the base of my : back. : Had Physio for 3 weeks. leg pain inproved, but he though something was : wrong with my hip. : Well a poor x-ray shows a possible fracture in actabular of right hip. : This is the socket part of the hip where it joins the leg bone. : Gradually this problem has got worse over the last 3 weeks. : Left hip has same pain, no quite so bad. : Physician (sports medicine / neurologist) feel there is something up : with my hip which is for some unknown reason inflaming my salios muscle. : They call it "Os Actabular" cannot find any reference to it on the net. : He’s research on this fairly new problem has seen it on some patients : and these people have CD as well. : Well since the main problem with CD is bowel inflammation which doctors : cannot control nor really no why it does this yet. We all wonder if the : is a connection one way or the other. : I was wondering if others with CD get any hip / lower back pain and if : so, what has your doctors ever said about it? : Thanks : Phil : emails are okay.

Response:

Phil, I also have pain in my lower back and around the right hip, in the same areas that you have described.  I had a CT scan a couple of days ago, and am currently waiting for the results.  My specialist suspects Osteopinia, which is the start of osteoperosis.  My SI joint is constantly inflamed, and I can’t stay in any one position for long, or my back seizes up on me.  Right now I am taking Celebrex for the inflammation.  It is an anti-inflammatory drug that is compatable with CD.  I have spoken to many people that have CD, and quite a few have similar problems.  Mine is a combination of the CD and long term use of prednisone.  Prednisone destroys any calcium you ingest, and causes density loss in your bones.  I don’t know what to do about it at this time.  I tried Physio and that just made it worse for me.  When I get the results back from my CT scan, and will pass on what the doctor says.  I sympathize with your pain, and hope that you get well soon.   – Hide quoted text — Show quoted text – i’m sorry to hear about all the trouble you have been having.  i’ve never experienced this myself, but have you been on prednisone?  prednisone can cause bone loss and increase the risk of fracture.  i don’t know how they can treat it aside from immobilizing you and letting it heal on its own.  as for the lower back pain, i get pain that radiated from my "crohns spot" (lower right abdomen) to my lower back… doctor thinks its either the inflammed bowels pushing on something or adhesions from a previous resection..  i wish i could be more help to you, but maybe someone else on the group knows something.  good luck and feel better… hugs,leighann : Hi all, : I do not know if anyone else has had this problem. : First I sniffer from CD and have done so for 12 years. : Had three small bowel resections done in 1995. : As well as multiple abcess’s drained. : Cd came back in late 1996. : Before the third lot of surgery (while I still had my stoma) I developed : another abceess in lower right quadrant of abdomen. This was drained : under ct scan guidance. : However wound from previous surgery had not totally healed. : During 6 weeks in hospital while surgeon (anyone want a top surgeon who : really listens in Melbourne Australia let me know) and radiologist tried : to find what was feeding the leaking wound, I had a lot of pain near my : right hip. : We all thought it was just the inflammation from the bowel pressing on a : nerve. : Well 6 weeks ago, I started getting pain where the leg joins the stomach : (the crease area) no sign of abcess or any real problem with CD. Was : getting burning pain down inside right leg and around to the base of my : back. : Had Physio for 3 weeks. leg pain inproved, but he though something was : wrong with my hip. : Well a poor x-ray shows a possible fracture in actabular of right hip. : This is the socket part of the hip where it joins the leg bone. : Gradually this problem has got worse over the last 3 weeks. : Left hip has same pain, no quite so bad. : Physician (sports medicine / neurologist) feel there is something up : with my hip which is for some unknown reason inflaming my salios muscle. : They call it "Os Actabular" cannot find any reference to it on the net. : He’s research on this fairly new problem has seen it on some patients : and these people have CD as well. : Well since the main problem with CD is bowel inflammation which doctors : cannot control nor really no why it does this yet. We all wonder if the : is a connection one way or the other. : I was wondering if others with CD get any hip / lower back pain and if : so, what has your doctors ever said about it? : Thanks : Phil : emails are okay.

Response:

Samson's sick

Question:

Poor lad started acting a bit listless last Saturday afternoon, and was off his food, which is *way* out of character for him.  Vet was already shut for the weekend, and it wasn’t severe enough to call the emergency number – he wasn’t in pain, or showing acute symptoms, so we left it until this morning.  By this morning, though, he was very lethargic compared to normal, and his stomach was a bit distended, though he’s been eliminating normally. Vet couldn’t find any trace of a blockage (my main worry, since he’s a terror for snaffling any food he finds while out walking – he’ll even try to eat food wrappers – you’d think we starved him or something, which is anything but the case), but said he’s suffering from a bowel inflammation.  Has given us some liquid stuff to help his symptoms, and some antibiotics to kill the infection. Any tips on how to look after a dog with a sore stomach, and what to watch out for in case he takes a turn for the worse?  Will keep you posted on his recovery. Cheers, — Steve Walker http://www.skwalker.demon.co.uk/index.htm

Response:

Any tips on how to look after a dog with a sore stomach, and what to

watch out for in case he takes a turn for the worse? Will keep you posted on his recovery. Good Morning Steve and Samson~ Make up some chicken rice soup (warmed) and put some crackers in it. Just like with people Chicken Soup is good for the Soul,huh? Feed him small amounts three times a day, with room temperature water. Nothing should be too cold or too hot. Let him be in a quiet spot in the house,and leave him be. Keep him comfy and warm and out of drafts. By tomorrow he should have come around a bit. If not, check his gums to see if they are "whitish" NOT a good sign. See if his eyes appear "sunken" again NOT good, and his general attitude. Is he HOT? Does his tummy hurt? If he is still listless, and NOT eating by tomorrow afternoon, bring him back to the vets and have them do an xray,okay? All good thoughts. Paulette~ A dogs life is too short…    Their only fault,really… http://community.webtv.net/BRDOGS/BrownDogsChristmas

Response:

Hi Steve.  Not to be an alarmist but here’s one other thing to keep an eye out for that many vets miss. When Gremlin was about 8 months old she started regurgitating everything that she ate.  Her bowel movements also suddenly stopped.  I took her to the vet for x-rays to check for a blockage.  The x-rays were negative. Woman’s intuition still told me that it was a blockage.  The vet assured me that it wasn’t because the x-rays were negative.  He ordered hundred’s of dollars worth of tests.  All test’s were negative.  He reordered the tests at his own expense.  Still negative.  Took other x-ray still negative.  Meanwhile Gremlin stopped eating.  He had to start feeding her intravenously.  Slowly little by little, day by day she was withering away to nothing.  The vet called in a specialist who said that nothing was wrong – that the symptoms were psychosomatic.  The vet called in a behaviorist who suggested that maybe I was abusing my dog.  The vet assured him that this was not the case given that I rescue abused dogs and that I had spent months working with Gremlin to recover from the abuse she was rescued from.  He also told the behaviorist that a dog that was being abused would not wag her tail so profusely every time someone came to see her.  More tests were ordered.  Still nothing. Meanwhile six weeks had passed in which she was in the hospital being kept alive with intravenous fluids.  I would visit her every night and out would come this little thing all skin and bones, dragging an I.V. behind her and wagging her tail.  And every night I would cry hysterically and pray that whatever was wrong would be found out. The vet at this point had given up hope and said she had maybe a week left and maybe it would be more humane to euthanize her. Since this was in 1990, the internet was just beginning and I was a member of Prodigy.  I posted notes about Gremlin’s condition, begging for help, in the dog’s section.  And this was what saved Gremlin’s life. I woke up on the morning after I posted the inquiries and the vet called and suggested euthanasia.  I told the vet to wait and let me check Prodigy for replies.  I logged on and there were a whole bunch of replies from people who had lost their puppies who had the exact same symptoms.  It was only after autopsies that it was found that the puppies did in fact have a blockage, but that the blockage wasn’t visible on the x-rays.  They said that if their vet had performed a colonoscopy that their puppies lives would have been saved. I called the vet and informed him of my responses.  He said I’ll do a colonoscopy right now and hung up the phone.  Before hanging up he had also warned me that Gremlin might not survive the procedure given how weak she was. About a half hour later the vet called and said two words "underwear and socks." As it turned out Gremlin had developed an hysterical pregnancy and started eating underwear and socks.  He said he found some socks and articles of underwear that were swallowed whole. And that’s the end of the story.  In a couple of days, after seven weeks in the hospital and hundreds of tests I was able to bring Gremlin home from the hospital. So I recommend a colonoscopy if your vet doesn’t find a cause of Samson’s symptoms soon.  Even though his bowel movements are normal he could still have a blockage. Good luck and keep us posted. — Adrienne Gremlin, Bruno, Lewis, Yoko, Freneau John Muir, "Stickeen: The Story of a Dog" http://www.sierraclub.org/john_muir_exhibit/writings/stickeen/the_sto… (In memory of Pepe, Pepper, Cinder, Rascal, Tucker, Max, Hubble and Puppy)

Response:

Good luck and keep us posted. — AHhhhhhhh the wonders of the internet : ) Great advice Adrienne! Also when Brier my GSP had a blockage I kept feeding him scrambled eggs and cottage cheese,ad he had a chicken bone caught in his intestines,and this also did the trick instead of surgery. How come you don’t still have Prodigy??? A dogs life is too short…    Their only fault,really… http://community.webtv.net/BRDOGS/BrownDogsChristmas

Response:

Also when Brier my GSP had a blockage I kept feeding him scrambled eggs and cottage cheese,ad he had a chicken bone caught in his intestines,and this also did the trick instead of surgery.

Maybe since Samson is still able to eliminate the cottage cheese, scrambled eggs thing will help. How come you don’t still have Prodigy???

Because they, at least when I was last a member, had the "prodigy police" who would monitor everything written on the bullentin boards.  They would automatically delete any posts with the words Prodigy in them that said anything unfavorable.  They would also monitor compliance with topics, uses of profanity, etc.  While this kept the troll statistics down, it was also a violation of freedom of speech.  So even if they changed their policies, I’m too angry for now to join *P* again (the *P* incidently is what we often used to discuss Prodigy without our posts getting deleted : ) Adrienne Gremlin, Bruno, Lewis, Yoko, Freneau John Muir, "Stickeen: The Story of a Dog" http://www.sierraclub.org/john_muir_exhibit/writings/stickeen/the_sto… (In memory of Pepe, Pepper, Cinder, Rascal, Tucker, Max, Hubble and Puppy)

Response:

Hi Steve.  Not to be an alarmist but here’s one other thing to keep an eye out for that many vets miss.

<snip Thanks for the pointer, Adrienne.  We haven’t missed any socks or other similar items, but I will mention this to the vet – am typing this while trying to get through on the emergency number (10:30pm).  When I got home tonight, Samson was *much* better – a lot more lively, looked generally much more perky.  The vet had given him an injection of Dexadreson (a steroid, I think), and one of Synulox, an antibiotic, as well as Synulox tablets and Kaogel V suspension to be given by syringe (I guess this must be a kaolin-based anti-diarrhoea treatment, although he doesn’t have diarrhoea – his problem was coming out the other end). But he went lethargic again tonight, just lay down next to me, and then suddenly got up and vomited.  I got him outside, and he seemed OK, so I cleaned up inside.  When I went back out a few minutes later, he was waiting for me, then suddenly started this horrible, gurgling retching that went on in 2 spells of about 30 seconds each.  During each spell, his stomach and throat were making constant sounds like a washing machine, coming so close together that the poor lad couldn’t even get a breath.  Very little came up, though it sounded like there was plenty in there. :( After that, he seemed to settle, and is lying on his cushion now – I lay with him for about quarter of an hour until he went to sleep.  But I’m pretty worried about him.  Wish the damn vet would hurry up and get off the mobile.  He’s due another antibiotic pill now – he’s not interested in eating anything, so we’re going to have to crush the tablet and syringe it in with some water. Right, that’s done – he is *so* good.  Kath held him on her knee while I gave him the antibiotic – had to fill the syringe twice, to get all the powder out of the syringe and into him.  When I put the syringe against the corner of his mouth, he opened wide and let me squirt the whole lot in both times, with no attempt to spit any out. Those who believe in prayer – please pray!  Will keep you all advised. 10.50pm – just got through to the vet.  He’s going to be at the surgery for appr. 11.30pm to see Samson, so I’ll be off there soon.  At the moment, he’s just laid on his cushion looking deathly, though he will stick his tongue out to lick my hand when I stroke him. :( — Steve Walker http://www.skwalker.demon.co.uk/index.htm

Response:

10.50pm – just got through to the vet.  He’s going to be at the surgery for appr. 11.30pm to see Samson, so I’ll be off there soon.  At the moment, he’s just laid on his cushion looking deathly, though he will stick his tongue out to lick my hand when I stroke him. :(

Oh, Steve, that’s so scary. I really hope it just some minor bug. –Terri & Harlan — SURGEON GENRERAL’S WARNING: PROLONGED EXPOSURE TO ULTRA SONIC BLACK BOXES MAY CAUSE BRAIN DAMAGE IN HUMANS.

Response:

Steve…..I hope Samson is okay. We had a scare with our Kizzy last Friday. I got up about four am for a quick trip to the bathroom and I noticed Kizzy wasn’t lying on the bed like she usually did, but found her in the kitchen getting a drink and trying to look very casual…..if a dog could whistle and put her hands in her pockets, she would have been doing it. If I’d been more awake I would have seen the problem right off, but didn’t and went back to bed. 6am, I woke up to her huddled up against my back, shivering and grunting in pain. When I turned on the lights and looked at her, I was just in shock…..she was so distended and swollen, she looked like a sausage with legs. My first thought was a blockage, so I called my vet, woke him up and insisted he meet me at the clinic immediately. I even thought I knew what she had eaten…..Sable, the GSD had chewed pieces off his hard plastic frisbee, and I’d taken it away from him, and I was positive I’d missed a piece, and it had ended up in Miss Greedygut’s mouth. So I rushed her down the freeway at 70mph, (if I were stopped I’d use my husband’s name and plead a medical emergency) and pulled into the vets’ office, just in time to meet him pulling in as well. "HE" took one look at her and took her right in to be x-rayed……it turned out that she wasn’t blocked (thank doG….I don’t need the bills at this discovered the source of the problem. Somehow she had pushed the babygate in the laundry room, until she could squeeze alongside it, and had chewed a hole in the bottom of the catfood sack….AND HAD EATEN NEARLY THE ENTIRE 12 lb BAG!!!!!!! After an enema (vet provided…..nope not me)….everything worked out "in the end" and she’s feeling much better now. Boy did she have gas tho!! Next time I catch her looking guilty and trying to look natural, I’m going to check to see what she’s gotten into….the little pig!! Hope Samson recovers right away. Lois E.

Response:

Steve, I’d insist he do an X-ray.  Fish bones also don’t show up on an X-ray.  Has he been eliminating normally?  When did he last poop?  And what did it look like?  What does the vomit look like?  As for not missing anything, well, until you have a puppy, you have no idea what your missing! And if you walk him in the dark you have no idea what he ate.  One of mine is an expert at looking like she’s sniffing something only to come up chomping on some garbage. We’ll be thinking about you – please post back buglady take out the dog before replying Thanks for the pointer, Adrienne.  We haven’t missed any socks or other similar items, but I will mention this to the vet –

<snip

Response:

Those who believe in prayer – please pray!  Will keep you all advised.

You got it.  We’re here with you and Steve.  And, of course, little Samson. — Adrienne Gremlin, Bruno, Lewis, Yoko, Freneau John Muir, "Stickeen: The Story of a Dog" http://www.sierraclub.org/john_muir_exhibit/writings/stickeen/the_sto… (In memory of Pepe, Pepper, Cinder, Rascal, Tucker, Max, Hubble and Puppy)

Response:

Hi Steve.  Not to be an alarmist but here’s one other thing to keep an eye out for that many vets miss.

<Snip I know a Lab that went through something similar.  Nothing would stay down and he wasn’t eating or drinking much.  The x-rays didn’t show anything blocking his intestines, but they traced some sort of radioactive liquid though his system (can’t remember exactly what, but the same sort of stuff they use with people).  The liquid went only partway through his system, but they still couldn’t see anything.   Based on his history (two other blockages) they went ahead and opened him up and found out that his intestines had knotted up and a two foot section had basically rotted away.  He’s ok now, but it was a close call. Ludwig Smith Dog FAQS http://www.k9web.com/dog-faqs/ rec.pets.dogs.info

Response:

Glad to hear it Steve!  You just never know about these things.  Sounds like buglady take out the dog before replying – Hide quoted text — Show quoted text – OK, latest news. So, we’re feeling much happier now, and Samson is going to sleep again – but looking much happier than before.

Response:

OK, latest news.  Just back from the vets – once I got him in the car, Samson perked up considerably (maybe because the car has really positive associations for him normally?), and was even climbing about.  By the time I got into the waiting room, he was walking around sniffing everywhere at all the interesting smells – still subdued by his standards, but I guess he must have looked pretty normal to the vet. Who was very nice about it nonetheless.  But my kids have done this to me, and now Samson has too – look like they’re at death’s door, then as soon as the doctor arrives, miraculous recovery.  This dog was flopping all over, punctuated only by ‘John Hurt in "Alien"’ impressions at home, then this. :) The vet gave him a thorough check-over, and said he thinks Samson has been suffering from a case of bloat, which he said can be fatal for large dogs but one of Samson’s size should recover just fine.  He’s given him an anti-emetic injection to help him sleep through the night, and said not to let him eat anything until tomorrow night, even if he seems well in the morning (so far today, you couldn’t get him interested in food).  Samson was an angel, shivering just a little on the examining table, but not protesting at all for the examination – even the injection and the rectal thermometer (which, when inserted, caused a *huge* fart, which probably made Samson feel a lot more comfortable, and the humans a lot less!). So, we’re feeling much happier now, and Samson is going to sleep again – but looking much happier than before.  He’s not curled up so foetal as before, and one ear is sticking up like normal, instead of both being floppy, along with the rest of him.  We’ve to call the vet again tomorrow if Samson seems off-colour, but the vet thought it likely that he’d be fine, and he even said he was glad I called him out (I was feeling a bit ill at ease over the bloke driving in from the countryside through a heavy frost), as some of Samson’s symptoms could have been signs of something much more serious, and only the examination showed there was no need to worry.  Nice bloke – but another 40 quid (appr. US$70) for the call-out.  Glad we took out the pet insurance – we have to pay the first 35 pounds, but anything on top of that (per illness) is covered.  Just wish we had no need to make a claim. Anyway, wanted to let you all know the good news before I go to bed! Cheers, — Steve Walker http://www.skwalker.demon.co.uk/index.htm

Response:

Anyway, wanted to let you all know the good news before I go to bed!

Thank you Steve. I was kind of worried about the little guy; he deserves only the best. –Terri & Harlan — SURGEON GENRERAL’S WARNING: PROLONGED EXPOSURE TO ULTRA SONIC BLACK BOXES MAY CAUSE BRAIN DAMAGE IN HUMANS.

Response:

<snip Make up some chicken rice soup (warmed) and put some crackers in it. Just like with people Chicken Soup is good for the Soul,huh? Feed him small amounts three times a day, with room temperature water.

Hi Paulette!  Vet said not to feed him anything until tonight, but this sounds like a good thing to start him on when he can eat again – would help make sure he gets fluid as well, as he hasn’t been that interested in even drinking – though he will take a little when we give him his bowl, just to humour us. Nothing should be too cold or too hot. Let him be in a quiet spot in the house,and leave him be. Keep him comfy and warm and out of drafts.

All done.  Though this morning he got out of bed to come over for a group hug from all the family.  *Very* sweet and pitiful-looking. By tomorrow he should have come around a bit.

This morning, he’s still very quiet, by his standards, but perked up considerably as I was getting ready to go to work.  He thought I was going out for a walk, and he definitely wanted to come with me, which is a good sign.  Until I carried him out to the vet last night, he wasn’t showing any interest in getting up for anything. If not, check his gums to see if they are "whitish" NOT a good sign. See if his eyes appear "sunken" again NOT good, and his general attitude.

No, neither of these are showing. Is he HOT?

No, according to the vet his temperature is just as it should be. Does his tummy hurt?

No.  Even when it was distended (seems much more normal now), he wasn’t protesting or showing any sign of pain when we or the vet were palpating it. If he is still listless, and NOT eating by tomorrow afternoon, bring him back to the vets and have them do an xray,okay?

OK.  Maybe a day off eating will bring back his appetite tonight – he *was* showing an interest in our breakfast this morning, which again is a definite improvement on yesterday. All good thoughts.

We and Samson thank everyone for their good wishes/prayers! Cheers, — Steve Walker http://www.skwalker.demon.co.uk/index.htm

Response:

Steve, I’d insist he do an X-ray.  Fish bones also don’t show up on an X-ray.  Has he been eliminating normally?  When did he last poop?  And what did it look like?  What does the vomit look like?  

Samson seems comfortable, though a little weary, this morning.  Some interest in what we were eating, which is a good sign, even though we’re not to give him anything until tonight.  But if he doesn’t continue to improve, I’ll definitely insist on that x-ray.  He’s been eliminating fine, with no diarrhoea or anything – stools look normal in colour and consistency (having a dog certainly ‘lowers the tone’ of one’s conversations, doesn’t it?!).  The vomit was initially look like a mix of diced veg and kibble, then changed to being more or less just water, as I guess he had nothing else to bring up. As for not missing anything, well, until you have a puppy, you have no idea what your missing!

This is true!  Though he doesn’t have access to areas where he might find socks and stuff to eat, and we’ve changed all our Christmas decorations to make sure there’s nothing in reach that might harm him. And if you walk him in the dark you have no idea what he ate.  One of mine is an expert at looking like she’s sniffing something only to come up chomping on some garbage.

Samson is a real vacuum cleaner (I’m sure passers-by must think we starve him or something!), so we’re really watchful when we walk him, so we can pull him up if he tries to eat something.  After having to remove soggy chocolate bars and pork ribs from his mouth, we soon figured out it was easier to take preventative action, rather than curative!  But as you say, it’s impossible to be 100% sure.  If he doesn’t keep improving, I’ll press for the x-rays to be on the safe side. We’ll be thinking about you – please post back

Thanks!  I’ll keep you updated.  He seems better, albeit a bit weak, this morning.  (See other posts as well) God bless, — Steve Walker http://www.skwalker.demon.co.uk/index.htm

Response:

    Oh Lois, I’m so glad the Kiz is okay, but I gotta tell ya, I’m laughing away…..now that I know she is okay.     That is too funny, I KNOW that look, Ceilidh does it all the time. Of course you know all my stories about her, so I’m wise to it right away. I think sometimes she does it just to get me going, as I find nothing wrong, once in awhile. <EG It’s funny, tho, that even tho she is a goat, I keep their kibble in a fancy type trash can, but Rudy’s is out in the bag in the kitchen, and NONE of my dogs have ever gone after the bag……too weird. Of course now that I’ve said this……<G     Thank goodness she was just a pig, now she can join THINAP, I’m sure !!! <G MaryBeth

Response:

Steve…..I hope Samson is okay. We had a scare with our Kizzy last Friday.

<snip Hi Lois – glad to hear Kizzy’s alright, and that you avoided that big vets bill! I don’t need the bills at this discovered the source of the problem. Somehow she had pushed the babygate in the laundry room, until she could squeeze alongside it, and had chewed a hole in the bottom of the catfood sack….AND HAD EATEN NEARLY THE ENTIRE 12 lb BAG!!!!!!! After an enema (vet provided…..nope not me)….everything worked out "in the end" and she’s feeling much better now. Boy did she have gas tho!! Next time I catch her looking guilty and trying to look natural, I’m going to check to see what she’s gotten into….the little pig!!

Like Marybeth, I’m laughing about this now that it’s all over and your dog’s fine.  When Samson first went off his food, it did occur to me that he might just be full, but all his food is in a pantry that he can’t access, no other food was missing, and the bits of kibble we use for click-training are taken from his meal quantities, so he doesn’t overeat.  As far as we can ascertain, he hasn’t had access to anything he shouldn’t have – we had to completely re-think our decorations this year to make sure they were dog-friendly, but he’s shown no interest in the tree anyway (and doesn’t get left alone in that room, just in case). So I think that if it’s been caused by something he’s eaten, it can only be something he’s snaffled in the street while walking.  But Kath & I can’t think of anything troublesome he’s grabbed in the last 10 days or so – nothing more than the odd chip (French fry). Marybeth sent me an email with details about her dog’s pancreatitis (thanks MB!), and some of the symptoms are similar, though Samson hasn’t shown any signs of being in pain – so if this drags on more than another day or two, I’m going to ask the vet to test for that. Hope Samson recovers right away.

Thanks! — Steve Walker http://www.skwalker.demon.co.uk/index.htm

Response:

Hi Steve, glad to hear Samson’s doing better.  Best of luck and keep us posted. Christine

– Hide quoted text — Show quoted text – OK, latest news.  Just back from the vets – once I got him in the car, Samson perked up considerably (maybe because the car has really positive associations for him normally?), and was even climbing about.  By the time I got into the waiting room, he was walking around sniffing everywhere at all the interesting smells – still subdued by his standards, but I guess he must have looked pretty normal to the vet. Who was very nice about it nonetheless.  But my kids have done this to me, and now Samson has too – look like they’re at death’s door, then as soon as the doctor arrives, miraculous recovery.  This dog was flopping all over, punctuated only by ‘John Hurt in "Alien"’ impressions at home, then this. :) The vet gave him a thorough check-over, and said he thinks Samson has been suffering from a case of bloat, which he said can be fatal for large dogs but one of Samson’s size should recover just fine.  He’s given him an anti-emetic injection to help him sleep through the night, and said not to let him eat anything until tomorrow night, even if he seems well in the morning (so far today, you couldn’t get him interested in food).  Samson was an angel, shivering just a little on the examining table, but not protesting at all for the examination – even the injection and the rectal thermometer (which, when inserted, caused a *huge* fart, which probably made Samson feel a lot more comfortable, and the humans a lot less!). So, we’re feeling much happier now, and Samson is going to sleep again – but looking much happier than before.  He’s not curled up so foetal as before, and one ear is sticking up like normal, instead of both being floppy, along with the rest of him.  We’ve to call the vet again tomorrow if Samson seems off-colour, but the vet thought it likely that he’d be fine, and he even said he was glad I called him out (I was feeling a bit ill at ease over the bloke driving in from the countryside through a heavy frost), as some of Samson’s symptoms could have been signs of something much more serious, and only the examination showed there was no need to worry.  Nice bloke – but another 40 quid (appr. US$70) for the call-out.  Glad we took out the pet insurance – we have to pay the first 35 pounds, but anything on top of that (per illness) is covered.  Just wish we had no need to make a claim. Anyway, wanted to let you all know the good news before I go to bed! Cheers, — Steve Walker http://www.skwalker.demon.co.uk/index.htm

Response:

The vet gave him a thorough check-over, and said he thinks Samson has been suffering from a case of bloat, which he said can be fatal for large dogs but one of Samson’s size should recover just fine.

Bloat is very common in my breed (Great Dane) and what is recommended for dogs who are prone to bloat is elevating the food dish, no excercise before or after eating, access to water while eating, moistening dry food, and two or more meals per day as opposed to one.  Just some helpful hints for ya :) Dogstar716 Come see Gunnars Life: http://www.angelfire.com/ut/Gunnar " I AM a lunatic, and I AM obsessed with this business" – Jerry Howe

Response:

OK, latest news.  Just back from the vets – once I got him in the car, Samson perked up considerably (maybe because the car has really positive associations for him normally?), and was even climbing about.  By the time I got into the waiting room, he was walking around sniffing everywhere at all the interesting smells – still subdued by his standards, but I guess he must have looked pretty normal to the vet. Who was very nice about it nonetheless.  <snip

Glad to hear everything is ok … don’t feel bad about an unnecessary trip to the vet:  it’s a new parent thing!  I took my new dog to the vet’s over a torn toenail… Emily * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!

Response:

I keep their kibble in a fancy type trash can,

I had a piggy golden years ago who jumped into the 55 gallon can I kept the dog food in and got stuck there, face down, back legs hanging over the edge… he was happy as a clam until he ate enough food that he lowered the level so he couldn’t reach it anymore. THEN he raised a ruckus for me to come get him :- This is the same dog who dug out of the yard and was rescued by a kind lady from inside the grocery store . He was running up and down the isles with a large roast in his mouth. I offered her a reward, which she refused, although she did have to pay for the roast. :-) And then there’s Shammie, aka as The "Chow"mie, who is such a snarfer that I feed her "air cookies". I snatch an imaginary treat from thin air and offer it to her, and in her haste to gobble, half the time I’m pretty sure that she really thinks she’s gotten something! Susan Fraser, Sheeb ‘n Sham

Response:

– Hide quoted text — Show quoted text – OK, latest news.  Just back from the vets – once I got him in the car, Samson perked up considerably (maybe because the car has really positive associations for him normally?), and was even climbing about.  By the time I got into the waiting room, he was walking around sniffing everywhere at all the interesting smells – still subdued by his standards, but I guess he must have looked pretty normal to the vet. Who was very nice about it nonetheless.  <snip Glad to hear everything is ok … don’t feel bad about an unnecessary trip to the vet:  it’s a new parent thing!  I took my new dog to the vet’s over a torn toenail…

Yup – if only I had a pound for every time my kids did that to me (and not just when I was a new parent!), I’d have a lot of pounds!  ’Broken’ fingers in the casualty department, causing agonised screams if you even think about touching them, that miraculously disappear as soon as the doctor shows up to examine them; ‘meningitis’ causing pain, total apathy and aversion to light – until the doctor on call-out gets there (don’t know what it’s like in the US, but here they give you a *really* hard time before they’ll send out a doctor, so false alarms do *not* make you popular!), when they suddenly sit up and make another miraculous recovery….. Kids and dogs – who’d have them!?  Us, I guess! :) — Steve Walker http://www.skwalker.demon.co.uk/index.htm

Response:

The vet gave him a thorough check-over, and said he thinks Samson has been suffering from a case of bloat, which he said can be fatal for large dogs but one of Samson’s size should recover just fine. Bloat is very common in my breed (Great Dane) and what is recommended for dogs who are prone to bloat is elevating the food dish, no excercise before or after eating, access to water while eating, moistening dry food, and two or more meals per day as opposed to one.  Just some helpful hints for ya :)

Thanks!  Samson is *much* better.  He hasn’t eaten yet – when I called in to settle the bill, the vet said to leave it until this morning before feeding him – but he’s definitely wanting to, and we had a houseful of visitors last night and we wanted to keep him quiet in his bed in the kitchen, but he was having none of it, and ended up having a whale of a time getting petted and pampered by everyone.  At one point, he came up to sit on my knee, and I was surrounded by attractive young ladies – but may as well have been furniture for the amount of attention they were paying to me. :) I can remember the days when I didn’t need a dog on my knee to be the centre of attention for young women…… well, actually, no I can’t! My wife has no need to worry! :) Cheers, — Steve Walker http://www.skwalker.demon.co.uk/index.htm

Response:

<snip And then there’s Shammie, aka as The "Chow"mie, who is such a snarfer that I feed her "air cookies". I snatch an imaginary treat from thin air and offer it to her, and in her haste to gobble, half the time I’m pretty sure that she really thinks she’s gotten something! Susan Fraser, Sheeb ‘n Sham

What a great idea!  gotta try this one with my food fiend… Emily * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!

Response:

low-carb diet and bowel inflammation

Question:

Hi everyone, I would like to know if anyone here suffers from bowel inflammation and has had achieved positive results on a low-carb diet. If so how is the tolerance of fruit? Thanks for any comment.

Response:

I don’t suffer from bowel inflamation but I do suffer from Irratiable bowel syndrom and it is almos gone since I went on this diet.

Response:

Don Wiss might pipe up in this conversation, I hope he does. Anyhoo bowel inflammation is often caused by food sensitivities, like sensititvities to wheat.  Because lowcarb eliminates something like 8 of the top ten known food allergens (at least the way I lowcarb does this) folks often report an improvement in bowel problems. K in Cali

:Hi everyone, : :I would like to know if anyone here suffers from bowel inflammation and has :had achieved positive results on a low-carb diet. If so how is the tolerance :o f fruit? : :Thanks for any comment. :

Response:

Recent Diagnosis

Question:

Hello, I am 32 yrs. old, married, 3 children, and a full time job.  I have noticed over the last 3 years since the birth of my youngest, some mild joint pains, mostly in my wrists and fingers.  I do type alot and at work I type just about all day. I love the work that I do and I’ve always loved typing.   About a year and a half ago I had some cosmetic surgery and got saline breast implants.  I have noticed that for about the last 3 months though my wrists and fingers have gotten worse and I thought I might have Carpal Tunnel Syndrome.  I decided to go to the doctor, first time ever with my complaint of joint pains.  She stuck a thin pin in several places on one hand and then the other and various other things with my hands and came up with a diagnosis of Tendonitis.  I have to wear a splint on my right hand for a month and she prescribed Daypro 600 mg. twice a day for a month too. She also wanted to get some blood tests done.  There were 4 vials of blood taken on me, one to test for Thyroid Disease, one to test for Anemia, one to test the SED Rate, and the last was a FANA test.  Well, yesterday my doctor called me with the results.  My thyroid test came back ok, and I’m not amemic, but the SED rate was 75 and my FANA was 1:1280.  She said it was strongly evident that I have Lupus and she is going to refer me to a Rheumatologist.   I am very shocked about this and wonder if that’s really what I have at all.  I do not have many symtoms relating to Lupus.  I only have some joint pains, some swelling, some fatigue and some mental confusion (that seems normal for me though).  I don’t have any rashes and I’m not sensitive to the sun… as a matter of fact the sun feels very good on my face and puts me in a good mood.  I am so outdoorsy anyway. I have so many questions and I’ve been reading alot of books.  But what I am specifically wondering is if maybe my having getting the saline implants a year and a half ago would make my SED rate be high or even the FANA test? Or could it be from the implants that I may have gotten the Lupus in the first place?  I called my cosmetic surgeons office today and they said that I could not get Lupus from my Saline Implants. Any opinions?   Replies welcome. Connie

Response:

<<I am very shocked about this and wonder if that’s really what I have at all.  I do not have many symtoms relating to Lupus.  I only have some joint pains, some swelling, some fatigue and some mental confusion (that seems normal for me though).  I don’t have any rashes and I’m not sensitive to the sun… as a matter of fact the sun feels very good on my face and puts me in a good mood.  I am so outdoorsy anyway. Not everyone with lupus is sensitive to the sun.  I believe the incidence is somewhere around 35-50%.  Mental confusion, fatigue, joint pain and swelling are all symptoms common with lupus.  However, you’re right that this still might NOT be lupus at all.  Still, it’s likely not nothing either.  There are other diseases similar to lupus which need to be ruled out, plus you need blood work to see if you have any other antibody titers or blood abnormalities.   You really need to have this followed-up with a rheumatologist like your doctor says.  You’re lucky to have a rather enlightened and astute doctor.  Too many would blow off your test results and symptoms, and send you away with no referrals.  I know how shocking this is because we’ve just gone through all of this, but it’s necessary to investigate it further.  You can live well  with lupus, but you need to be informed. Sandra

Response:

I"m not sensitive to the sun either, where in some causes the rashes.  But the sun does make me swell and become stiff,  so I guess maybe I am sensitive in away.  I’m an outdoors person myself, and have learned how much is too much.  But too, you never know, could change for that matter, I’m never the same from one day to the next.

Response:

Hi Connie, Your rheumatologist is the only one qualified to diagnose you.   However, it is unusual to have such a high ANA titer without having an underlying rheumatic disease.  My symptoms started out much like yours.  For years I had joint pains and fatigue but about 5 years ago started having problems with photosensitivity.  You didn’t mention any other blood tests.  Your rheumie should do a CBC, SMAC and Urinalysis to check for other organ involvement or low wbc/rbc counts (often seen with Lupus and other autoimmune disease). It’s important to know that in the US you must fit at least 4 of the American College of Rheumatology’s SLE Criteria.  Your rheumie may not find that given your description of your symptoms.  In which case, with that high ANA you may be given a diagnosis such I was initially given "Rheumatism with Lupus-Like symptoms".  But your ESR and ANA are definitely not to be ignored at those levels.  It may not be lupus, it might be RA.  I imagine your Rheumatologist will check for RA as well as other autoimmune probabilities. Recognize that not *all* lupus patients have photosensitivity though many eventually develop it after disease has progressed.  My sister has little *sun* sensitivity but becomes ill when exposed to fluorescent lighting for too long (Does shopping in brightly lit, unprotected lighting grocery stores or the like tire you out more than you would think reasonable?)  I long hated shopping at Walmart or the grocery store (and even some department stores only put baffles on their lights (which just distributes the UV more evenly) because I inevitably got sick to my stomach or just extremely fatigued.  But it wasn’t until I started getting sun sensitivity tht I made the connection.  Why one did more damage first I don’t know. Anyway… There are 11 major criteria (some of which include several possibilities per category) that are used to dx this disease as well as family history.  Your doc willl go through all of these.  I"m not a doctor so I’m only guessing that you *might* have RA rather than Lupus.  But the above tests mentioned, and others are required to determine that.   Recommend you read the Hamline Lupus pages or the LFA’s pages which will have a list of these criteria and some of the ways the disease is diagnosed. hamline:  http://www.hamline.edu/lupus LFA uhh… http://www.lupus.org/lupus I think…. On Wed, 10 Mar 1999 22:08:11 -0500, "Connie" <stars…@mindspring.com

wrote:

Hello, I have so many questions and I’ve been reading alot of books.  But what I am specifically wondering is if maybe my having getting the saline implants a year and a half ago would make my SED rate be high or even the FANA test? Or could it be from the implants that I may have gotten the Lupus in the first place?  I called my cosmetic surgeons office today and they said that I could not get Lupus from my Saline Implants. Any opinions?   Replies welcome. Connie

Though implants are blamed for "triggering" SLE in some people.  They can not *cause* the disease.  Being saline I would doubt that they are really the culprit here. SLE and DLE (Discoid (skin) Lupus) are genetic predispositions.  That is, they are not a genetic disease in the sense that there is a single gene that causes them.  But their are a set of genes that one inherits that make one more susceptible to the disease and if your immune system improperly selects antibodies (meaning it allows wbc’s to exist that create antibodies to the self) then you will have an autoimmune condition.  Whether it progresses to SLE, DLE, RA, Scleroderma, etc. will depend on the individual and their autoantibody repertoir.  But no, your implants can *cause* the disease.  It’s possible that silicone implants trigger the disease but then so can strong food allergic responses, insect bites/stings (multiple), a long sun-bathing effort (what triggered my first bout with photosensitivity), extreme physical or emotional stress, an injury, surgery, a bad virus, etc. Just about anything that stresses the body for any length of time, can trigger flares of autoimmune disease.  That is why even if you aren’t photosensitive now, you should take precautions to avoid becoming so (use sunBLOCK, wear a hat, etc). Well, I’ve rambled enough for this time.  (more than enough by some folks standards).   Feel free to visit my website or write to me and feel free to hit the group with specific questions.   kc posted and emailed (p’d and e’d) ******************** kc cat kcdoc…@ghg.net http://www.ghg.net/schwerpt/mypage.htm           ()()         ().–.()             (__)     ()()                  ().–.()                      (__)

Response:

On Thu, 11 Mar 1999 22:34:46 -0800, "Paul Blake" <kbl…@kwic.com

wrote:

Same thing just happened to me. I was in for some pains in my foot & the doc did an ANA . He says my (never severe but often apparent) back pain was due to lupus arthritis because of the ANA at 1:640. I question this diagnosis myself, I have no other symptoms but regular bowel inflammation which I don’t know is Lupus related. I love the sun. I am just wondering if I have GETTING the other symptoms to look forward to! Any ideas group?

What kind of doc was this? This is a bit of a stretch IMO.  1:640 is about the lowest a rheumie will go to diagnose lupus and you need more than that and some back pain to diagnose the disease.  IBS is *very* common in SLE and is sometimes caused by vasculitis (but this is hard to detect).  Have you ever had a colonoscopy?  A colonoscopy with biopsy of possible lesions would determine if this is a lupus related problem rather than some other reason for the IBS.  biopsies of lupus lesions whether on the outside or inside of the body will show high ANA titers (very high usually).  My suggestion is that if you haven’t seen a rheumie, that you do so and go through the whole round of questions and examination before accepting this dx.  it may be that you are in the early stages of sle and that over time other symptoms will develop.  As I often say though – just because you can be a sunworshipper now does not mean it will remain that way.   But it could be RA which usually (but not always) doesn’t include the internal effects that  lupus does.  RA will often show a positive ANA too. kc ******************** kc cat kcdoc…@ghg.net http://www.ghg.net/schwerpt/mypage.htm           ()()         ().–.()             (__)     ()()                  ().–.()                      (__)

Response:

The positive ANA doesn’t point irrevocably at lupus.  Look at the Immunology Lab Test Chart at http://www.labmed.washington.edu/Division/Immunology/ref_chart.html —

Response:

- Hide quoted text — Show quoted text -Connie wrote:

Hello, I am 32 yrs. old, married, 3 children, and a full time job.  I have noticed over the last 3 years since the birth of my youngest, some mild joint pains, mostly in my wrists and fingers.  I do type alot and at work I type just about all day. I love the work that I do and I’ve always loved typing. About a year and a half ago I had some cosmetic surgery and got saline breast implants.  I have noticed that for about the last 3 months though my wrists and fingers have gotten worse and I thought I might have Carpal Tunnel Syndrome.  I decided to go to the doctor, first time ever with my complaint of joint pains.  She stuck a thin pin in several places on one hand and then the other and various other things with my hands and came up with a diagnosis of Tendonitis.  I have to wear a splint on my right hand for a month and she prescribed Daypro 600 mg. twice a day for a month too. She also wanted to get some blood tests done.  There were 4 vials of blood taken on me, one to test for Thyroid Disease, one to test for Anemia, one to test the SED Rate, and the last was a FANA test.  Well, yesterday my doctor called me with the results.  My thyroid test came back ok, and I’m not amemic, but the SED rate was 75 and my FANA was 1:1280.  She said it was strongly evident that I have Lupus and she is going to refer me to a Rheumatologist. I am very shocked about this and wonder if that’s really what I have at all.  I do not have many symtoms relating to Lupus.  I only have some joint pains, some swelling, some fatigue and some mental confusion (that seems normal for me though).  I don’t have any rashes and I’m not sensitive to the sun… as a matter of fact the sun feels very good on my face and puts me in a good mood.  I am so outdoorsy anyway. I have so many questions and I’ve been reading alot of books.  But what I am specifically wondering is if maybe my having getting the saline implants a year and a half ago would make my SED rate be high or even the FANA test? Or could it be from the implants that I may have gotten the Lupus in the first place?  I called my cosmetic surgeons office today and they said that I could not get Lupus from my Saline Implants. Any opinions? Replies welcome. Connie

The symptoms you have given sound a lot like lupus.  I had most of them before my diagnosis.  I was not sun sensitive at first, but am extremely now.  With a sedrate of 75 something is definitely wrong.  My rheumy increases my prednisone when mine is 30.  I too am allergic to sulfa and was before the lupus.  Just before my diagnosis I had sinus infections, bladder infections, laryngitis, lost weight, was tired, couldn’t sleep, joint and muscle pain, numbness and many more things.  No one seems to know exactly what triggers lupus, so it could have been something you haven’t thought of.  My mother had rheumatoid arthritis and later lupus.  I have a teenage neice who tested positive for it, but doesn’t show any signs of it.  My mother’s sister was just diagnosed with rheum. arth. and possibly lupus.  I agree, you need to see a rheumatologist. They did blood work and a skin biopsy on me and said it all had to fit together like a puzzle and it did.  Good luck.  Mary

Response:

Same thing just happened to me. I was in for some pains in my foot & the doc did an ANA . He says my (never severe but often apparent) back pain was due to lupus arthritis because of the ANA at 1:640.  I question this diagnosis myself, I have no other symptoms but regular bowel inflammation which I don’t know is Lupus related. I love the sun. I am just wondering if I have GETTING the other symptoms to look forward to! Any ideas group?

Response:

pain since fall

Question:

hi all just to say that although i have had arthritis for a few years, since i had a fall recently the pain in my knees is getting worse. my doctor has given me more painkillers but they are causing me problems when going to the toilet.  although i was warned of this.   but at the moment i cannot win anyone know of any painkillers which does not have this effect. guinan_uk http://members.xoom.com/guinan_uk — http://members.xoom.com/guinan_uk/index.htm

Response:

Guinan-Invest in some dried prunes or other dried fruit and maybe some prune juice.  Eat lots of roughage, cabbage, lettuce, corn, fresh fruits and fresh vegetables.  It is something you can work with sweetie. Char – Hide quoted text — Show quoted text – hi all just to say that although i have had arthritis for a few years, since i had a fall recently the pain in my knees is getting worse. my doctor has given me more painkillers but they are causing me problems when going to the toilet.  although i was warned of this. but at the moment i cannot win anyone know of any painkillers which does not have this effect. guinan_uk http://members.xoom.com/guinan_uk — http://members.xoom.com/guinan_uk/index.htm

  maybull.vcf

< 1K Download

Response:

Bowel and gastro-intestinal problems can also be a complication of RA. Tell you primary and RD about the problem and see if they have any thoughts on it. — "Laughter is like changing a baby’s diaper– it doesn’t permanently solve any problems, but it makes things more acceptable for a while." Anonymous Norman Lampert

Response:

Bowel and gastro-intestinal problems can also be a complication of RA.

And other forms of arthritis. I get bowel inflammation but don’t have RA. Chase the cats away for e-mail 8=8

Response:

my doctor has given me more painkillers but they are causing me problems when going to the toilet.  although i was warned of this.   but at the moment i cannot win anyone know of any painkillers which does not have this effect.

I take it you are on codeine or some other narcotic? They ALL have problems with constipation, I believe. The only ones that don’t are NSAIDs (but have other GI side-effects) and paracetamol which isn’t as strong as a narcotic painkiller. Chase the cats away for e-mail 8=8

Response:

RA and bowel problems

Question:

Hey, Thanks for the mail.  I was afraid that was the truth.  Don’t know which pain is worse (hense, hysterectomy or colonoscopy?)    

Response:

Kim, Is there a blood test for fybromyalgia? Laurie

Response:

Norio, Yasa  meen-a  sigh?  !    My husband is japaneese.  My mother-in-law’s name is Hiroko Yamaha.   Do you have RA? I do,  5 yrs.   37 and 11 months old/female! Laurie

Response:

Hi Philips, Glad to hear from Asian. I’m one of rare Asian too. About CMO there has been discussions often, about once in a month. Please go to dejanews and search CMO there. You can easily find several thread in July,August and September.  If you have some difficulty to find them, E-mail me. Regards, Norio Re:CMO — Do you have any Info of CMOtm. http://cmocure.com Do u know anyone who has tried it & whether it works. Please advise. Bye Philips

– Norio Ohki    Nagoya Japan

Response:

CORRECTION The drug is MOBIC & not Mobin.Sorry Philips – Hide quoted text — Show quoted text – Hi Kris, COX 2 drug – Mobin is avlbl in S’pore & other countries I guess like South Africa & Europe etc.You can try the flwg site or try the site of the Mfr BOEHRINGER INGELHEIM http://www.aztec.co.za/users/drdoc/melox.htm In 1999 I guess it will be released in USA & Japan.

Response:

(Prtyobscur) writes: I’m just guessing, but I bet it’s the other way around…treat the RA, the bowel syndrome would get better.

I don’t have RA but I have inflammatory arthritis and get GI tract inflammation as well. My NSAIDs knock the GI tract inflammation on the head most times. :-) Chase the cats away for e-mail 8=8

Response:

My NSAIDs knock the GI tract inflammation on the head most times. :-)

Dear MP, I’m not sure if this means that the gi tract complaints are "knocked out" or if you have a headache in your tummy <g?  Upper gi problems go hand in hand with NSAIDS (so to speak <g), but I have no idea what happens in the lower tract. (I know, I never admit to having no idea but, it happens on occasion).  I only meant that the lower gi stuff that goes with some rheumatologic conditions gets better when the disease process is treated (as in dmard therapy).  If you’re getting relief from gi pain, etc, from your NSAIDS, you are a lucky girl…I forget which NSAID you take?  I want some of that <g! Warm regards, Angela Pseudo-arthritic and social director, FIWSASC "A computer lets you make more mistakes faster than any other invention in human history, with the possible exception of handguns and tequila." — Mitch Radcliffe

Response:

Hi, I just wanted to share with you my experience with IBS/GERD/FMS. I never ever had a problem with my digestive system until several years after I was diagnosed with fms. Now I have to take Prilosec daily, take Gaviscon with me everywhere I go. Now I have to be careful what I eat, even then if I am stressed, I have severe pain that feels like a heart attack. I vascillate from constipation to the big D. I bloat for seemingly no reason. I definitely think it is just another part of fm. Hi Cindy, Sorry about your problems…. Have you been checked for fibromyalgia?? Symptoms include IBS, chronic fatigue and headaches, body aches…just a thought. Sometimes RA and FMS go hand in hand. Hope you feel better, Kim

Response:

(Prtyobscur) writes: I’m not sure if this means that the gi tract complaints are "knocked out" or if you have a headache in your tummy <g?

LOL ;-) [snip] I only meant that the lower gi stuff that goes with some rheumatologic conditions gets better when the disease process is treated (as in dmard therapy).  If you’re getting relief from gi pain, etc, from your NSAIDS, you are a lucky girl.

I suppose what I was trying to say is that now I am on the NSAIDs, I don’t get the bowel inflammation to the same extent or as often as I used to (it has never been ‘permanent’ just seems to crop up when I have a bad ‘flare’) So I guess I am a lucky girl! :-) Chase the cats away for e-mail 8=8

Response:

Dear Cindy, I have RA and Bowel difficulties as well. Have been on steroidal treatment for tree years and am afraid to go back to NSAIDS but don’t know of any other choice. Do you Know of any? Steve Camarillo Ca

Response:

Dear Cindy, I have RA and Bowel difficulties as well. Have been on steroidal treatment for tree years and am afraid to go back to NSAIDS but don’t know of any other choice. Do you Know of any?

Hey Steve, I am not Cindy but I am known for throwing my 2 cents in where no one asked! <g I am unable to take NSAIDS and stick with a low dose of prednisone. What else do you take for your RA? I keep thinking one day my RA will be in such good control that I won’t need NSAIDS or Prednisone! The good news is that the COX2 drugs are coming out some time in the near future and should have the NSAID benefit without the side effects. Keep Smilin’ ~Krissy Akron, Ohio Visit my web pages at: http://arthritisnet.com http://members.aol.com/KrissyJo/RA.html

Response:

Dear Cindy, I have RA and Bowel difficulties as well. Have been on steroidal treatment for tree years and am afraid to go back to NSAIDS but don’t know of any other choice. Do you Know of any?

Steve Camarillo Ca Hi Steve, At the present time

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 Dear Cindy, I have RA and Bowel difficulties as well. Have been on steroidal treatment for tree years and am afraid to go back to NSAIDS but don’t know of any other choice. Do you Know of any? Steve Camarillo Ca

Hi Steve, Sorry I accidently sent part of the message by mistake. One of my fingers is really stiff and makes it hard to type. I  slipped and hit the send button by mistake. I don’t know what else to take for the bowel problems. I will probably know after next week, as that is when my conoloscopy is (Yuccckkkk). I am not taking NSAIDS at the present time because the Voltaren gave me diarrhea, the Dapro made my heart beat harder and the Tolmectin caused my feet and hands to swell. So at the present time I am taking only Azulfidine and Prednisone for the RA. When I find out what the gastro dr. finds out and what the RD says about it, I will let you know. Looks like a lot of people who have RA has bowel problems. Others will probably post what they are taking for it. One lady told me she keeps Immodium with her all the time. Cindy Houston

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I don’t get the bowel inflammation to the same extent or as often as I used to (it has never been ‘permanent’ just seems to crop up when I have a bad ‘flare’)

Chase the cats away for e-mail 8=8

What did your RD say about all this? When I told my RD that the bowel problem fares up when the RA flares up, that is when he told me to do the conoloscopy to find out if I have Crohn’s or IBS. I was just wondering what other RD’s have said about bowel problems flaring up when the RA flares up. Thanks, Cindy Houston

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Hi Kris, COX 2 drug – Mobin is avlbl in S’pore & other countries I guess like South Africa & Europe etc.You can try the flwg site or try the site of the Mfr BOEHRINGER INGELHEIM http://www.aztec.co.za/users/drdoc/melox.htm In 1999 I guess it will be released in USA & Japan. Y.day on my query my Rheumo switched me to Mobin from Voltaren.I feel quite OK so far. Hope it helps. Re:CMO — Do you have any Info of CMOtm. http://cmocure.com Do u know anyone who has tried it & whether it works. Please advise. Bye Philips – Hide quoted text — Show quoted text – Dear Cindy, I have RA and Bowel difficulties as well. Have been on steroidal treatment for tree years and am afraid to go back to NSAIDS but don’t know of any other choice. Do you Know of any? Hey Steve, I am not Cindy but I am known for throwing my 2 cents in where no one asked! <g I am unable to take NSAIDS and stick with a low dose of prednisone. What else do you take for your RA? I keep thinking one day my RA will be in such good control that I won’t need NSAIDS or Prednisone! The good news is that the COX2 drugs are coming out some time in the near future and should have the NSAID benefit without the side effects. Keep Smilin’ ~Krissy Akron, Ohio Visit my web pages at: http://arthritisnet.com http://members.aol.com/KrissyJo/RA.html

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I think I want a hysterectomy first. I thought this was a medium surgery, (not open heart) (not removal of a cyst) But, a friend of mine is having one and she says that her doctor told her she would need at least 3 or 4 weeks of rest, etc. I have RA for 5 yrs,I’m 37/f.  If I recuperate at my normal rate (say, for colds, etc) I’ll be in bed for months?

Dear Laurie, I had a partial hysterectomy (uterus and one ovary) a few years back…problem was endometriosis.  I spent right at 6 weeks in bed…I was on a fairly high dose of prednisone at the time, so that may have slowed my healing.  I wasn’t really very active for 3 months.  It may depend on the problem that the surgery is to correct. IOW, your milage may vary <g.   As a side note, the day of my surgery, both the surgeon and my RD ordered extra prednisone, so when I first woke up, I thought I was God <g .  They couldn’t keep me in bed.  Unfortunately, when I "crashed" a couple of days later, I figured out that I wasn’t even very nice.    Bummer. Warm regards, Angela Pseudo-arthritic and social director, FIWSASC "A computer lets you make more mistakes faster than any other invention in human history, with the possible exception of handguns and tequila." — Mitch Radcliffe

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My RD says RA often goes hand in hand with Crohn’s or IBS or ulcerative colitis. So I wonder if  treating one of these helps in the treatment of RA. I will find out soon. I just wondered if others have any of these problems and if they were treated for them. If so, did it improve theRA at all?

Dear Cindy, I’m just guessing, but I bet it’s the other way around…treat the RA, the bowel syndrome would get better.  BTW, unless the colitis is severe, diet is probably the best for such probs…eat lotsa fiber <g.   Warm regards, Angela Pseudo-arthritic and social director, FIWSASC "A computer lets you make more mistakes faster than any other invention in human history, with the possible exception of handguns and tequila." — Mitch Radcliffe

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Marge, My RD is doing a couple of other tests and if they turn out okay then he said he would let me try the antibiotic therapy. So after next week, I may give it a try. It certainly won’t hurt. The problem will be convincing him that I should try it for more than 3 months. My RD says RA often goes hand in hand with Crohn’s or IBS or ulcerative colitis. So I wonder if  treating one of these helps in the treatment of RA. I will find out soon. I just wondered if others have any of these problems and if they were treated for them. If so, did it improve theRA at all? Maybe I am just hoping. I am tired of all this mess and I certainly haven’t had the years of trouble and pain that many of the people on the ng have had. Cindy Houston

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My RD says RA often goes hand in hand with Crohn’s or IBS or ulcerative colitis. So I wonder if  treating one of these helps in the treatment of RA. I will find out soon. I just wondered if others have any of these problems and if they were treated for them.

I have mild IBS, but I can keep it in control with diet. I know what foods cause me problems so I avoid them…..unless I am staying close to home for awhile! <g Keep Smilin’ ~krissy Akron, Ohio Visit my web pages at: http://arthritisnet.com http://members.aol.com/KrissyJo/RA.html

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Hi Cindy, Sorry about your problems…. Have you been checked for fibromyalgia?? Symptoms include IBS, chronic fatigue and headaches, body aches…just a thought. Sometimes RA and FMS go hand in hand. Hope you feel better, Kim

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Cindy, Yes, It takes many months for the AT to work! ( they are going by Odells work) Alkso, I have actually healed a lot of things( ulcers etc. I no longer need Pepscid( rescrition) and bentyl which was a muscle relaxer for the spasms. The Meds caused a lot of the discomfort. Good Luck, BTW..I had to change docs and lots have used their internist after being begun by a rheumo. Take Care Marge Marge

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I gave in. I will have a "down hole video" done.(as my husband calls it – he does this with oil wells). I wonder, what all of this has to do with RA? I know that many people with RA have bowel problems of some kind. So what happens if they find out I have Crohns or IBS or something. Do they treat that separately? Does treating that help the RA? Does treating both at the same time make the RA better or more tolerable? Any ideas? I just wonder why my RD insists on knowing if I have bowel problems.  I do have some but is it any wonder with all the meds they give? Cindy Houston

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Cindy, I have the worst possible. It hurts so bad, I’ve actually passed out from the pain. I’ve had an endoscopy, upper gi, sigmoidoscopy, everything except a colonoscopy…Which my doctor tells me 1) He can’t believe someone hasn’t done that already (new doc) anyways… I think I want a hysterectomy first. I thought this was a medium surgery, (not open heart) (not removal of a cyst) But, a friend of mine is having one and she says that her doctor told her she would need at least 3 or 4 weeks of rest, etc. I have RA for 5 yrs,I’m 37/f.  If I recuperate at my normal rate (say, for colds, etc) I’ll be in bed for months?       What do you suggest?  Any esperience? Kinda got off track there (00ps)

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Hi Cindy, Boy, right you are.I was on a ton of meds and had such a spastic colon. Either it worked too well or not at all. I went on the antibiotic therpay and that has enabled me to get off all the other stuff. The drugs that I found dramtic results were coming off GI meds that were given for MTX and cytoxan. It seems without the  mtx and with the minocin I no longer needed them and I have been almost normal( not happened in many years. Wonder if you want .. I just cannot believe all the different other things I had gotten as a result. Take Care Marge Marge

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I think I want a hysterectomy first. I thought this was a medium surgery, (not open heart) (not removal of a cyst)

Its a pretty major surgery! But, a friend of mine is having one and she says that her doctor told her she would need at least 3 or 4 weeks of rest, etc.

The usual is 6-8 weeks off work. No driving for a month….yadda yadda yadda. I have RA for 5 yrs,I’m 37/f.  If I recuperate at my normal rate (say, for colds, etc) I’ll be in bed for months?      

I had my hyst pre RA. I recovered very quickly. Was room mother at the pre school halloween party a week post op. Pretty much just slowed me down for a week..after that I was back to being me. But I doubt I’d bounce back that fast now!!!!! Keep Smilin’ ~krissy Akron, Ohio Visit my web pages at: http://arthritisnet.com http://members.aol.com/KrissyJo/RA.html

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Sulfer Drugs and Prednisone

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Sulfa is the # 1 way to treat IBD.If you can take sulfa, many are allergic to it.

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Who can tell me why the Doctor recomended treating my first flare up with prednisone and some sort of sulfer drug? What does each do? I know the down side of prednisone.. Please help.

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Who can tell me why the Doctor recomended treating my first flare up with prednisone and some sort of sulfer drug? What does each do? I know the down side of prednisone.. Please help.

Prednisone and Sulfa (not sulfer; the two are completely different) both reduce inflamation in different ways. — Larry

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Who can tell me why the Doctor recomended treating my first flare up with prednisone and some sort of sulfer drug? What does each do? I know the down side of prednisone.. Please help.

Azulfidine, a sulfa drug, is generally the first drug tried with CD and UC. The sulfa is an inactive component; the other component is a 5-ASA compound that has shown some efficacy in reducing bowel inflammation. Doctors are now tending to use the non-sulfa compounds such as Asacol, Pentasa and Rowasa more frequently. Prednisone is an artificial corticosteroid that is commonly used to reduce inflammation. It also suppresses the immune system and may help IBD in that way as well. For many of us, steroids are absolutely necessary when IBD flares; for some of us, steroids are the only things that can control IBD at all. Hope that helps! Good luck & good health! steve preferred e-mail address: without the "SPAM," of course! My life goes on in endless song above Earth’s lamentations, I hear the real, though far off, hymn, that hails a new creation. Through all the tumult and the strife I hear its music ringing, It sounds an echo in my soul. How can I keep from singing?           — from the song How Can I Keep from Singing

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